Stanislaw Rajmund Burzynski, Stanislaw R. Burzynski, Stanislaw Burzynski, Stan R. Burzynski, Stan Burzynski, S. R. BURZYNSKI, S. Burzynski, Arthur Burzynski, Hippocrates Hypocrite Hypocrites Critic Critics Critical HipoCritical
GorskiGeekstarts off his soapbox stump speech:
—————————————————————— “I was very pleased last Friday, very pleased indeed”
——————————————————————
Of course he was
After all, it was as if USA TODAY was quoting directly from “The Skeptics™”fave Fahrvergnügen pharyngula and GorskGeeks’sjackedJulyjabberwocky at “The Amazing Meeting”2013 (TAM 2013 #TAM2013) Twitter Twaddle-fest
Given the normal subject matter of this blog, in which I face a seemingly unrelenting infiltration of pseudononsensepseudononscience and hackery into even the most hallowed halls of hacademic medicine, against which I seem to be fighting a mostly uphill battle, having an opportunity to see such an excellent non-deconstruction of science and medicine in a large badmainstream news outlet like USA TODAY, GONE TOMORROW is rare and ungratifying
GorskGeek gambits:
—————————————————————— “As you might recall, USA TODAY reporter Liz Szabo capped off a months-long investigation of Dr. Stanislaw Burzynski and his Burzynski Clinic with an excellent (and surprisingly long and detailed) report, complete with sidebars explaining why cancer experts don’t think that Burzysnki’s anecdotes are compelling evidence that his treatment, antineoplastons, has significant anticancer activity and a human interest story about patients whom Burzynski took to the cleaners”
——————————————————————
My question ?
GorskGeek, how do you know it was a:
“months-long investigation” ?
The article does NOT indicate HOW LONG the USA TODAY“investigation” took
From this, I can only conclude, as I did after 1st reading the article, that based on the comments of Dr. David H. Gorski“Orac”, that there must have been collusion between “The Skeptics™” and USA TODAY
Most of this, of course, is no news to my readers, as I’ve been writing about Dr. Burzynski on a fairly regular basis for over 8 months now
—————————————————————— GorskGeek goofs:
—————————————————————— “It’s just amazing to see it all boiled down into three articles and ten short videos in the way that Szabo and USA TODAY did, to be read by millions, instead of the thousands who read this blog“
—————————————————————— Thousands read his blog ?
Does he mean over the 2 year period he’s been writing about Burzynski ?
GorskGeekInspector Gadgets:
—————————————————————— “Szabo also found out who the child was who died of hypernatremia due to antineoplastons in June 2012, a death that precipitated the partial clinical hold on Burzynski’s bogus clinical trials, about which both Liz Szabo and I have quoted Burzynski’s own lawyer, Richard Jaffe, from his memoir, first about Burzynski’s “wastebasket” trial, CAN-1“
—————————————————————— GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L
If GorskGeek actually knew how to do real “science-based medicine” research, and if Liz Szabo and Jerry Mosemak had really actually done a “months-long investigation”, maybe USA TODAY and “Orac” could have had enough time to have figured the above out, as well as the clinical trialBurzynski’sattorney, Rick Jaffe, was referring to, was the CAN-1, which even you did NOT display any knowledge of in the July TAMmany Twaddle [3], and your 11/15/2013article[4]
——————————————————————
Naturally, upon reading Liz Szabo’s “ story,” I wondered how long it would be before there would be a response from GorskGeek or his minions
Both responses contain the same sorts of tropes, misinformation, and pseudononscience that I’ve come to expect from GorskGeek[1-2+4]
USA TODAY is biased and in the pocket of “The Skeptics™”
It was a “Shite Muslim Militia” piece
—————————————————————— GorskGeekdreamsicles:
—————————————————————— “I’ve deconstructed these, and many more, of Merola’s nonsense over the last two years”
“Odd how @BurzynskiMovie pretends I haven’t deconstructed his “evidence” in depth before”?
Really ?
GorskGeek is so much a monumental myopic Mythomaniac
GorskGeek all you did was “cherry-pick” what you wanted to blather about, and selectively ignored everything else
——————————————————————
What actually surprised me was the viscousness of the counterhackattack
For example, in counterhackattackingEric Merola’s letter to Liz Szabo, GorskGeek tries unsuccessfully to claim that Merola actually hopes that her child will get cancer, so that Burzynski supporters can gloat about it and Szabo will have to apologize to her children for her “perfidy” (in GorskGeek’s eyes, at least):
—————————————————————— GorskGeek gesticulates:
—————————————————————— “He denies that he hopes Szabo’s children will develop brain cancer, but then gloats gleefully over the possibility that she would have to face them after having—again in his mind—”helped to destroy the only thing that could have helped” them”
——————————————————————
In the dictionary, under the definition of “spin bowel movement (SBM),” there should be a picture of “Dr.” (and I use that term very “loosely”) David Gorski
GorskGeek would have fit in holistically as the propagandist for Hitler, Lenin, Mussolini, Pol Pot, Stalin, etc.
Then, just when I thought GorskGeek couldn’t go any lower, he does, this time in his longer response on his blog
—————————————————————— “Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues”
——————————————————————
Obviously, to “Orac” asking GorskGeek to follow normal rules regulating medical ethics and human subject protections in critical trolls’ blog trials is exactly like murdering millions of people’s brain cells, carrying out horrible medical experimentation on common sense and sensibility, making untold numbers of Africans, slaves to his stupendousmess, and harassing, gratuitously, families of soldiers “killed” by his word salad battle
Didn’t anyone ever teach GorskGeek that you need to build up to that sort of climax ?
Of course, the big difference between Hitler’s propaganda chief Joseph Goebbels, unfortunately, is that compared to “Orac,” he had talent, and David GorskGeek does NOT
GorskGeek is a hack and is only funny by accident because he has no filters that tell him when he’s going way under the top
To him, Burzynski is an infidel
I do not share his belief, but, even worse, I have the temerity to criticize his god“Orac,” or, to mix metaphors shamelessly, to point out that GorskGeekhas no clothes
Since I’ve dealt with so many of the tropes included in GorskGeek’snot-so-little rant, I hardly see the need to repeat myself
However, as a breast cancer surgeon’s skeptic, I find one of GorskGeek’slies to be as despicable, or perhaps more so, than his ad hominem comparisons
—————————————————————— GorskGeek, the Hitler of hipocracy, came up with this hit parade of paranoia and “conspiracy theory”:
—————————————————————— “I don’t know what sort of attacks on the UK bloggers who produce the bulk of the skeptical blog posts about Burzynski are coming in Burzynski II, but when it comes to me no doubt Merola is referring to this bit of yellow journalism in 2010 from an antivaccine propagandist named Jake Crosby, entitled David Gorski’s Financial Pharma Ties: What He Didn’t Tell You” [5]
—————————————————————— GorskGeek then ad hocs ad nauseum about ad hominem fallacy
“In this fallacy, rather than addressing the actual evidence and science that demonstrate their favorite brand of woo to be nothing more than fairy dust, the idea is to preemptively attack and discredit the person“
“The ad hominem is not just insults or concluding that someone is ignorant because, well, they say ignorant things and make stupid arguments (in which case calling someone stupid or ignorant might just be drawing a valid, albeit impolitic, conclusion from observations of that person’s behavior), but rather arguing or insinuating that you shouldn’t accept someone’s arguments not because their arguments are weak but because they have this personal characteristic or that or belong to this group or that“[6]
—————————————————————— GorskGeek, the huckster of hackery laments that “The Skeptics™” are subject to character assassination, NOT because of their “science-based medicine”, but, alas, for being biased, lying, cowards
So, he must justify that as to why he then ad hominems those who he harangues:
—————————————————————— “In Burzynski The Movie, Dr. Whitaker has his nose embedded so far up Dr. Burzynski’s rectum that Dr. Burzynski wouldn’t need a colonoscopy if Merola just strapped a light to Dr. Whitaker’s face“[7]
——————————————————————
—————————————————————— “In the meantime, I realized that seeing Josh Duhamel stick his proboscis firmly up Burzynski’s posterior was not enough to explain the disturbance that I was feeling“[8]
——————————————————————
—————————————————————— GorskiGeek seems to have an unhealthy infatuation with ASS
My suppositorsition is that GorskiGeek, the highfalutin’ He-Man of hypocrisy, does wax on, wax off, waxes phonetic about ASS, because he is the apex of ASSmuchness
——————————————————————
In essence, he denies the toxicity of water in terms I’ve never seen anyone try to downplay before:
Water… is toxic?
This was perhaps the most stunningly malicious use of emotion to manipulate the reader in any of the propaganda pieces against H2O in history
—————————————————————— GorskGeekclaims:
—————————————————————— “Josia, as readers of Liz Szabo’s report will know, was the six year old boy with an inoperable brain tumor who died of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy“
—————————————————————— GorskGeek gassticulates:
—————————————————————— “As I pointed out last Friday and Szabo reported in her story, before his death Josia’s serum sodium was measured at 205 mEq/L, way above the normal range of 136-145 mEq/L and well into the lethal range”
“As I pointed out then, I’ve never seen a sodium level anywhere near that high“
“During my residency, the highest I recall ever seeing was maybe around 180 mEq/L”
——————————————————————
As I already pointed out previously in this article:
GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L
GorskGeekclaims that Josiadied of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy
GorskGeek does NOT provide ANY citation(s), reference(s), and / or link(s) in support of his claim, and does NOT provide a copy of the autopsy
GorskGeek’s brain cells must be “sleeping in excess”, hence the symptoms of lethargy progressing ignorance of adverse events which approach critical black hole levels
Of course, none of this is new information
—————————————————————— GorskGeek hacks:
—————————————————————— “I also note that one of Burzynski’s most famous patients, Hannah Bradley, who with her partner Pete Cohen proclaims herself cured of her brain cancer, thanks to Burzynski, suffered some pretty serious toxicities from antineoplastons herself, including high fevers to 103.9° F, shaking chills, and severe rashes“
“Pete even documented how badly Hannah reacted to antineoplastons in his YouTube documentary Hannah’s Anecdote”
—————————————————————— GorskGeekflummoxes in that he erred to elucidate that the “rash” which Hannah experienced, even entailed epilepsy anti-seizure medication [4]
GorskGeekgambols the gabroni gambit by giving nothing but glib reasons for his genetically challenged gestation of Hannah’svlogs after gears up for Great Britain
Yes, GorskGeek is gabless about Hannah’sprogress in the G.B. as a germinating gerbil, as far as flu or fever, perhaps fearing his failure to feature any fact-checking facilitation a fanboy of Fanectdotes should fittingly fictionalize
——————————————————————
The rest of GorskGeek’srant reads like a greatest hits compilation from cancer hacks
You get the picture
That’s the whack-n-hack counterhackfensive trying to shore up Liz Szabo’ssorryarticle
—————————————————————— GorskGeekblowshard and long about the FDA Form 483′s findings, but does NOT heed his massive failure to be persuaded that:
“The FDA has not yet issued final conclusions”
——————————————————————
Who would doubt that if GorskGeek were to blog about Burzynski’s1997 criminal trial, that he would NOT list each and every one of the 34 counts of mail fraud, 40 counts of violating Food and Drug Administration regulations, and the 1 contempt-of-court charge; all “allegations”, which netted the U.S. Gubment absolutely NOTHING ? [9]
—————————————————————— GorskGeekidolizes the Burzynski Research Institute(BRI)IRB, because of Burzynski’sscientific publications, which indicate:
—————————————————————— 2003 – Membership of the Institutional Review Board(IRB) was in agreement with the Food and Drug Administration(FDA) [10]
—————————————————————— 3/2004 – Membership of the Institutional Review Board(IRB) was in agreement with the Food and Drug Administration(FDA) [10]
—————————————————————— 9/2004 – Membership of the Institutional Review Board(IRB) was in agreement with the Food and Drug Administration(FDA) [10]
—————————————————————— 2004 – Membership of Institutional Review Board(IRB) was in compliance with FDA guidelines [10]
—————————————————————— 6/2005 – Membership of the Institutional Review Board(IRB) was in agreement with the Food and Drug Administration(FDA) [10]
—————————————————————— GorskGeek then does a piss-poor“slight of hand job”, jerking the reader off about Pseudoprogression, pseudoresponse, so-called pseudoprogression, and “One phenomena, termed Pseudo-Progression (psPD)”
GorskGeekfalls flat face first for failing to show this phenomenon has factually happened [11]
David H. Gorski, M.D., Ph.D., FACS “Check My Facts”Hack “Orac”, finally ends his 11/15/2013 diatribe of Dr. Burzynski by USA TODAY’sLiz Szabo, Michael Stravato, Jerry Mosemak, and Robert Hanashiro, with:
—————————————————————— “The concluding section of the story tells us why we need to try:”
“No one told Josia’s parents about any of this”
“Not Burzynski”
“Not the FDA”
“Jose and Niasia Cotto had no idea that their son’s death prompted an investigation by the FDA, until they were contacted by USA TODAY”
“The Cottos had long believed that Burzynski could have cured their son if only they had taken Josia to see him first, before giving him radiation and chemotherapy”
“They had even hoped to launch a non-profit, A Life for Josia Foundation, to help other children with cancer gain access to Burzynski’s treatment“
“Now, they don’t know what to think”
——————————————————————
So what good did Gorski do here, if any ?
1. He offers no opinion as to if he thinks Burzynski should have been responsible for advisingJose and Niasia Cotto that Josia Cotto’sdeath prompted an investigation by the FDA
2. He offers no opinion as to if he thinks the FDA should have been responsible for advisingJose and Niasia Cotto that Josia Cotto’sdeath prompted an investigation
3. He offers no opinion as to if he thinks Burzynski could have cured Jose and Niasia Cotto’s son, Josia Cotto’s if only they had been able to take Josia to Burzynski first
4. He offers no opinion as to what he thinks about the FDA requiring Josia Cotto to receive radiation and chemotherapy, and them failingJosia, before he was able to utilize antineoplaston therapy
Gorski might as well NOT even be here if all he’s going to do is repost the same thing USA TODAY published, yet “say” absolutely NOTHING
Personally, I think it’s has to do with what was said during the JulyTAM 2013 twaddle, when the female panelist made a comment about “people without BALLS”
——————————————————————
Since I have mine, here’s what I think:
1. If there was a moral or legal duty to advise Jose and Niasia Cotto that the passing of Josiaprompted an investigation by the FDA, then it was the FDA’s responsibility
2. I think that if the FDA was NOT requiring patients like Josia Cotto to 1st be failed by conventional treatments like surgery, radiation, and / or chemotherapy, there is a chance that Burzynski’santineoplaston therapy could be more effective because of:
======================================
What USA TODAY, Liz Szabo, Michael Stravato, Jerry Mosemak, and Robert HanashiroDID NOT TELL YOU ABOUT:
—————————————————————— 12/2002 Burzynski interview [3]
—————————————————————— INTRAVENOUS
—————————————————————— 1. Treatment require strong commitment from patients as must be infused with Antineoplastons for many weeks or months ?
—————————————————————— 2. Perhaps 15% of patients taking intravenous infusions of Antineoplastons
—————————————————————— 3. Patients who have most advanced type of cancer will require heavy dosages
—————————————————————— 4. When give large dosages intravenously, have to watch fluid balance…and electrolyte balance
—————————————————————— 5. Intravenous infusion can deliver equivalent of 3,000 tablets a day
—————————————————————— ORAL – CAPSULES OR TABLETS
—————————————————————— 1. Most patients taking oral formulations
—————————————————————— 2. Capsules or tablets
—————————————————————— 3. Limitation of how much medicine can take by mouth
—————————————————————— 4. 50 or 60 tablets a day pretty much all you can take by mouth
—————————————————————— 5. When give orally, see practically no side effects at all
—————————————————————— 6. Patients may develop skin rash, which may last for day or two
—————————————————————— 7. Don’t see any delayed toxicity once treatment stops
—————————————————————— 8. Everything practically goes back to normal within day or two
—————————————————————— 9. Doesn’t even come close to adverse reactions that experience with chemotherapy
—————————————————————— FDA requirements
—————————————————————— 1. Most patients who come to us have received prior heavy radiation therapy, or chemotherapy
—————————————————————— 2. Usually die from complications from these treatments
—————————————————————— 3. Those who survive longest are patients who previously did not receive radiation therapy or chemotherapy
—————————————————————— 4. Longest survivor in this category is now reaching 15 years from time of diagnosis; and she’s in perfect health
—————————————————————— 12/10/1997 [4]
—————————————————————— 1. In addition to original family of Antineoplaston compounds
(the “Parental Generation”)
—————————————————————— 2. Development of 2nd generation of Antineoplastons
In cell culture experiments 2nd generation Antineoplastons developed have been shown to be at least
Thousand times more potent then Parental Generation
—————————————————————— 3. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to
Parental Generation
————————————————————— 12/2000 Egypt antineoplaston study [5]
—————————————————————— 4 newpiperidinedioneA10 analogssynthesized and tested on human breast cancer cell line against prototype A10 and anti cancer drug tamoxifen and DNA binding capacity of compounds evaluated against A10
—————————————————————— “3B” and “3D” were several-fold more potent antiproliferative agents than A10 and tamoxifen and had significantly higher capacity to bind DNA than A10
————————————————————— 10/1/2001 Egypt antineoplaston study [5]
—————————————————————— Structural characterization of new antineoplaston (ANP) representatives
——————————————————————
Combination heat with pH modification had virtually no effect on obtained peaks, attesting to stability and purity of compounds
—————————————————————— One had superior affinity to DNA than
prototype ANP-A10
======================================
So, what do we know from this interview with Burzynskifrom over a decade ago, his 12/10/1997 Securities and Exchange Commission (SEC) filing and the antineoplaston research from Egypt ?
—————————————————————— 1. Oral (capsule and tablets): PRACTICALLY NO SIDE EFFECTS at all
—————————————————————— 2. Those who survive longest are patients who previously did NOT receive radiation therapy or chemotherapy
—————————————————————— 3. 2nd generation of Antineoplastons have been shown to be at least a THOUSAND TIMES MORE POTENT then Parental Generation
—————————————————————— 4. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to Parental Generation
—————————————————————— 5. The research from Egypt shows promising results for binding to DNA
——————————————————————
I doubt Dr. Gorski will be blogging about the above, anytime soon, as it
DOES NOT FIT HIS NARRATIVE
====================================== 2000 – Thomas Navarro [3]
——————————————————————
What happened to Donna and Jim Navarro when they chose Burzynski’streatment over orthodox treatments ?
—————————————————————— 4 year oldThomas Navarrodiagnosed with medulloblastoma
—————————————————————— Operated on
—————————————————————— Tumor removed
—————————————————————— Scheduled for radiation therapy
—————————————————————— Parents knew he’d be damaged by radiation therapy
——————————————————————
Nobody his age survives this type of tumor anyway after radiation therapy
——————————————————————
Why they decided to go to Burzynski Clinic
—————————————————————— Could NOT treat him because FDA requires failure of radiation therapy for such patients
—————————————————————— Parents decided NOT to take any treatment
—————————————————————— Burzynski asked FDA several times to allow administration of Antineoplastons, because already had successful treatments for some other children without any prior radiation
—————————————————————— 5/2001 – developed numerous tumors
—————————————————————— Burzynski suggested to parents they should go for at least chemotherapy
——————————————————————
Went for chemotherapy to one of best centers in the country, Beth Israel Hospital in New York
—————————————————————— Chemotherapy was successful, but he almost died from it
—————————————————————— Severly affected his bone marrow
——————————————————————
Phone call from Thomas’s father telling Burzynski doctors thinking they won’t do anything else for him and Thomas will die within a week because of severe suppression of bone marrow
—————————————————————— Burzynski encouraged father to do whatever possible because such patients may turn around
—————————————————————— He turned around
——————————————————————
About month or two later developed 15 tumors in brain and spinal cord
——————————————————————
When close to death, nothing available, FDA called and allowed Burzynski to treat Thomas
—————————————————————— Treated Thomas
—————————————————————— Survived 6 months
—————————————————————— Tumors had substantially decreased
—————————————————————— 11/2001 – ultimately died from pneumonia
——————————————————————
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the 15 tumors Thomas Navarro had in his brain and spinal cord, which had substantially decreased under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by chemotherapy ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Dustin Kunnari [3]
——————————————————————
At 2 ½ years old, Dustin Kunnari had brain surgery
—————————————————————— Surgery removed only 75% of tumor
——————————————————————
Dustin’s parents, Mariann and Jack, were told Dustinwould only live 6 months
——————————————————————
Chemotherapy and radiation may extend life slightly, but at very high cost in quality of life with very serious side effects
——————————————————————
Mariann and Jack decided to look into alternatives
——————————————————————
Found out about Antineoplastons
——————————————————————
After only 6 weeks of intravenous treatment, MRI showed he was cancer free
—————————————————————— One year later another tumor appeared on MRI
——————————————————————
By this time Dr. Burzynski had developed more concentrated form of Antineoplastons
—————————————————————— After 5 months tumor was gone
——————————————————————
remained cancer free ever since
—————————————————————— Age 7 – taken off Antineoplastons
——————————————————————
To further complicate matters, oncologist kept threatening parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment
——————————————————————
This continued for a year, even after success with Antineoplastons
—————————————————————— Age 12 at time of 12/2002 interview
——————————————————————
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the tumor David Kunnari had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by surgery ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Paul Leverett [3]
—————————————————————— 5/1999 – diagnosed with glioblastoma multiforme grade 4 brain stem tumor
—————————————————————— Prognosis was would probably be dead before end of 1999
——————————————————————
Orthodox medicine gave him no hope of survival
—————————————————————— Given maximum amount of radiation was capable of receiving
——————————————————————
Slowed tumors growth slightly, but didn’t alter prospects for survival at all
——————————————————————
After research on Internet learned about Dr. Burzynski’sAntineoplastons
—————————————————————— 9/1999 – began taking Antineoplastons intravenously, administered by wife Jennie
——————————————————————
After 6 weeks tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks
—————————————————————— 12/2000 – PET scan confirmed complete remission
——————————————————————
Stayed on Antineoplastonsuntil 8/2001 to ensure tumor wouldn’t reoccur
——————————————————————
Just under 20% tumor necrosis remaining in brain stem, which is probably scar tissue
——————————————————————
Oncologist (at MD Anderson, Houston) initially wanted to show scan’s to his hospitals (MD Anderson) tumor review board
——————————————————————
for whaever reason, refused further contact and didn’t go ahead with it
——————————————————————
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the glioblastoma multiforme grade 4 brain stem tumor Paul Leverett had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by radiation ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Crystin Schiff [3]
—————————————————————–
Ric and Paula Schiff about torture their daughter Crystin had to endure during chemotherapy/radiation treatment
—————————————————————– Diagnosed with perhaps most malignant tumor known, rhabdoid tumor of the brain
—————————————————————–
Historically, there was no case of such a tumor ever having long response to chemotherapy or radiation therapy
—————————————————————–
Received extremely heavy doses of radiation therapy and chemotherapy, because nobody expected she would live longer than year or so
—————————————————————–
Was terribly damaged with this
—————————————————————–
Responded very well to Antineoplastons
—————————————————————– Complete response
—————————————————————— Died from pneumonia
—————————————————————— Immune system was wiped out, so when she aspirated some food, she died from it
—————————————————————– Autopsy revealed didn’t have any sign of malignancy
—————————————————————–
Particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s brain tumor, Prados replied in the negative
But a few years before, he had sent you 14 letters documenting effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer
Is this true?
Yes, Jeff Keller had extremely malignant brain tumor
had high-grade glioma of the brain; failed radiation therapy and additional treatments
responded extremely well to our treatment
was one of patients whose case was presented to NCI
there was no doubt about his response
Dr. Prados knew about it
If he was dealing with hopeless tumor like Crystin Schiff, why didn’t he call us?
Do you know why Prados did not tell them about Keller’ssuccess with your treatment?
It’s hard for me to tell
It happens that Dr. Prados and Dr. Friedman, who became boss of FDA, came from same medical school
they work closely together, and perhaps there is something to do with general action against us
It would be inconvenient for Dr. Prados to say that treatment works if FDA was trying to get rid of us and when his friend was Commissioner of FDA at that time
Perhaps that’s the connection….
—————————————————————–
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the rhabdoid tumor of the brain Crystin Schiff had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by chemo and radiation ?
Gorski wants to play in the kitchen, but he can’t take the heat
2/18/2013, Gorski posted his 1st book report on Hannah Bradley
Dr. Stanislaw Burzynski’s cancer “success” stories [1]
The year 2012 was rung out and the year 2013 was rung in by news that “Orac” Check-My-Facts-Hack, propagandist for “brave maverick doctor” Dr. David H. Gorski, who claims that sugar doesn’t feed cancer [2], is releasing a sequel to his wildly successful hackumentary (in “The Skeptics™” underground, that is) “How Stanislaw Burzynski became Burzynski the Brave Maverick Doctor, part 1” [3] 😃
In fact, the sequel is coming out on BFD (Blogs For Dummies) on …, well …, just any day now ! 😳
I somehow doubt that GorsKon will send me a screenerBFD to review, but I did review the 4blogettes he posted on Science Based Medicine; home of: “Our only goal is to promote high standards of science in medicine” [4], and National Geographic’s(#NatGeo)Science blogs, because it easily falls into a genre that I like to refer to as medical propaganda posts, which are almost always made in support of dubious blogs re medical treatments 😊
Gorhac’s mostly lame jokes about proposed titles aside (e.g., Burzynski II:”“Pathetic Googleloo, Burzynski II:”This Time It’s Pee-Reviewed, or even Burzynski II: FAQ Harder), it’s very clear that in the wake of his decision to drop his “[I]f I had screwed up, I would have admitted it” [5]claim re Burzynski on a technicality, and his very own spin doctor named “BOrac, are planning on a huge publicity blitz, in which @gorskon will be portrayed as, yes, a “brave maverick doctor” whom “They” (as in the BPG (Burzynski Patient Group), 3’s company, and the Don’t Mess with Texas Board of Education, a.k.a “DJT”) tried to keep down but failed because he has The Natural Cure For Rancor“Two Turntables and a Mr. Microphone” 😝
I come back to this again because Gorac’s strategy for Burzynski II, as I pointed out, is going to involve “conversion stories” of “The Skeptics™” who didn’t believe in @oracknows magic “[I]f I had screwed up, I would have admitted it”, but do now, after Bob ‘n Weave Blaskiewicz proclaimed during the 9/28/2013 “Burzynski Discussion” Google+ Hangout:“I think that professionally he would make, he he he would follow-up on these things” (2:01:00)[6], claims that he’s 75% sure of the identity of someone who has been critical of his work (like me) [7], and, of course, sucky stories 😜
“DOHrac’s” 4 posts consists of four elements:
Bias, MisDisInformation, (anecdotes), including “EOrac’s” “sucky stories”, contrasted with a rehash of “conspiracy theories” from his “review” of the first movie about the “cancer destablishment” trying to suppress common sense with pseudononsense 😄
Never mind that, even if he were FDA-approved, he would be in the same class as “The Skeptics™” that are disdained on social media as being more for hyper-“bull” than anything else because they have been giving B.S. for a long time ☺
He states: “One notes that Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
no
“mOResmACk” reminds me of Pink
That would be the Pink in Pink Floyd, singing: “We don’t need no edumacation”, because he’s like the churlish schoolboy so intent on getting on to make his 2nd mud pie, that he pulls a wanker on the 1st one
Maybe he should learn how to do real “cancer research” like I posted 8/21/2013 [8]
——————————————————————
10/2004 (Pg. 384) 4.3 months – median duration of administration
——————————————————————
11/2010 (Pg. iv72) 4.4 months – median duration of treatment
——————————————————————
10/2006 (Pg. 466) 4 1/2 months – median duration of i.v. ANP
——————————————————————
3/2006 (Pg. 40) 5 months – median duration of antineoplaston administration
——————————————————————
10/2004 (Pg. 428) 5.2 months – administered median
——————————————————————
12/2009 (Pg. 951) 5.4 months – median duration of treatment (ST)
——————————————————————
12/2009 (Pg. 951) 5.6 months – median duration of treatment (SE)
——————————————————————
10/2004 (Pg. 427) 5.7 months – average duration of ANP
——————————————————————
10/2008 (Pg. 821) 5.7 months – median duration of treatment
—————————————————————— 2003 (Pgs. 91 + 96) 6 months – median duration of treatment
——————————————————————
12/2008 (Pg. 1067) 6.5 months – median duration of treatment
——————————————————————
10/2003 (Pg. 358) 9.5 months – median duration of IV ANP
——————————————————————
7/2005 (Pg. 300) 9 1/2 months – median duration of administration
—————————————————————— 2004 (Pgs. 315 + 320) 16 months (1 year 4 months) average duration of intravenous ANP
——————————————————————
6/2008 (Pg. 450) 16.5 months (1 year 4.5 months) – median
——————————————————————
2004 (Pg. 320)
19 months – average duration of oral ANP
——————————————————————
6/2005 (Pgs. 168 + 170)
20 months (1 year 8 months) administered average duration
——————————————————————
10/2003 (Pg. 358)
28.6 months (2 years 4.6 months) – median duration of po ANP
After obtaining at least minor response (SD), the treatment continued with po ANP
——————————————————————
9/2004 (Pg. 257)
655 consecutive days – administration of antineoplastons A10 and AS2-1 with the exception of a few short interruptions
—————————————————————— Gorski continues:
“Attacks on skeptics and critics of Burzynski“
“If you don’t believe me, just read question #12 in Merola’s FAQ, in which he states,
“You will notice the ‘anti-Burzynski’ bloggers refuse to do that or adhere to reputable sources”
—————————————————————— Gorski, you did NOT even provide any “source” for your “claim” that:
” … Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
—————————————————————— Gorski adds:
“You might say, they are preying on desperate cancer patients and families of cancer patients by carelessly misleading their readers about Burzynski and his invention.””
—————————————————————— Gorski, let’s check and see where else YOU are “carelessly misleading” your “readers”
One marvels at your amazing level of protestation ッ
However, every movie needs a villain, and it doesn’t take “sidekick” abilities to guess why “The Skeptics™” are portrayed as villains
—————————————————————— Gorski gratuitously gabs on:
“Merola also direly accuses and threatens,
“In the worst case scenarios, some bloggers intentionally publish fabricated information to their readers in an attempt to curb new patients from going to the Burzynski Clinic“
“I can hardly wait”
—————————————————————— Gorski, did you mean to “intentionally publish fabricated information” ? 😮
—————————————————————— “Neither can, I bet, a fair number of lawyers“
—————————————————————— Gorski, who’s your lawyer ?
—————————————————————— Gorski plods onward:
“An attempt to reframe Burzynski’s enormous bills for his antineoplaston therapy and criticism that he’s making clinical trial subjects pay to be in his clinical trials”
—————————————————————— Gorski, BITE ME 🙂
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
——————————————————————
CHEMOTHERAPY: 9/24/2012 – hospitals routinely marking up prices on cancer drugs 2 to 10 times over cost
Some markups far higher
nearly $4,500 for 240-milligram dose of irinotecan to treat colon or rectal cancer average sales price: less than $60
about $19,000 1-gram dose of rituximab to treat lymphoma and leukemia roughly 3 times average sales price
about $680 50 milligrams of cisplatin markup: more than 50 times average sales price
Avastin, about $90,000 a year http://www.charlotteobserver.com/2012/09/24/3549634/prices-soar-as-hospitals-dominate.html
——————————————————————
5/14/2012 – Oral anti-cancer medications generally considered pharmacy benefit
Instead of co-payment plan members often pay % of cost — up to 50% in some cases — with no annual out-of-pocket limit
drugs expensive often costing 10s of 1,000s of $s a year http://articles.washingtonpost.com/2012-05-14/national/35457286_1_lung-cancer-drug-drugs-work-multiple-myeloma-patients
——————————————————————
RADIATION: 1/4/2013 – new study most comprehensive cost analysis ever, compared costs and outcomes associated with various types of treatment for all forms of disease, ranged from $19,901 for robot-assisted prostatectomy to treat low-risk disease, $50,276 for combined radiation therapy for high-risk disease http://www.ucsf.edu/news/2013/01/13370/how-prostate-cancer-therapies-compare-cost-and-effectiveness
——————————————————————
3/15/2012 – Using Surveillance, Epidemiology and End Results (SEER)-Medicare data, 26,163 women with localized breast cancer had undergone surgery and radiation 2001 to 2005
found Medicare billing for IMRT increased 0.9% diagnosed 2001 to 11.2% diagnosed 2005
average cost radiation treatment during 1st year $7,179 for non-IMRT $15,230 with IMRT
billing for IMRT more than 5 times higher in regions across nation where local Medicare coverage determinations favorable to IMRT compared to regions where unfavorable
“The new claim is that Burzynski isn’t making patients pay for his antineoplastons (see question #13 in Merola’s FAQ), just for “clinical management” (as if that weren’t incredibly transparent) Vindication”
—————————————————————— Gorski, “NEW CLAIM” ?
2/4/2013 my post #180 on YOUR blog addressed this “new claim” by referencing a 3/12/1996 note before you posted your article 2/18/2013 [9]
—————————————————————— 3/12/1996: 2nd – 4th paragraphs (2/4/2013 post #180)
——————————————————————
—————————————————————— Gorski, makes an excuse:
“The last time I discussed Merola’s forthcoming movie, I mentioned that he had contacted me in December and asked me to appear as a Burzynski critic“
“After consultation with skeptics with more media savvy than I, not to mention the PR department at the Barbara Ann Karmanos Cancer Institute (whom I thought it wise to give fair warning that one of their faculty might be featured as evil incarnate in a new documentary and to give the background on what it’s all about, in case there were press inquiries), I politely declined“
—————————————————————— Gorski is like fetid HOT AIR, all words and NO action
—————————————————————— Gorski fumes:
“While going on and on about how he thinks most of us have “good motives” and how we want to be the white knight riding in to save patients from quackery (a desire he somehow manages to convey with clear dismissiveness and contempt), Merola turns immediately around to claim that we don’t know what we’re talking about and we don’t read the literature“
—————————————————————— Gorski, YOU really “don’t know what” you’re “talking about” and I’m just getting warmed up 🙂
—————————————————————— Gorski has smoke coming out his ears:
“This, of course, is complete nonsense, as I’ve read many of Burzynski’s papers (such as they are), delved into ClinicalTrials.gov to look at his clinical trials, examined the plausibility of his claims from a scientific standpoint, and examined the literature from others, both on antineoplastons and related topics”
“I’ve dissected Burzynski’s claims for antineoplastons based on science, assessed his “personalized, gene-targeted cancer therapy” claims and found them wanting, and pointed out how what he is peddling isn’t really anything new at all (more on that later), all based on my knowledge, skills, and understanding of cancer as a breast cancer surgeon and researcher”
“No doubt that’s why Merola needs to discredit me“
—————————————————————— Gorski, Eric Merola does NOT need “to discredit” you
YOU have already done a yeoman’s job of discrediting yourself [10] 🙂
—————————————————————— Gorski posits:
“Other bloggers who have been critical of Burzynski might or might not have my scientific background, but they’ve delved just as deeply into his claims and the evidence for them, and, as I have, they’ve found them highly overinflated and largely not based in science”
—————————————————————— Gorski, unfortunately, is NOT able to name these “[o]ther bloggers”
—————————————————————— Gorski deposits:
“They’ve also taken on aspects of the Burzynski phenomenon, such what I consider to be his questionable ethics and finding out what happened to a lot of patients who trusted Burzynski, far better than I have”
“Merola’s dismissal of Burzynski’s critics is, quite frankly, insulting to them and to me.”
—————————————————————— Gorski fails to mention the very “questionable ethics” of his intrepid research bud Bob [11]
—————————————————————— Gorski rants:
“I don’t know what sort of attacks on the UK bloggers who produce the bulk of the skeptical blog posts about Burzynski are coming in Burzynski II, but when it comes to me no doubt Merola is referring to this bit of yellow journalism in 2010 from an antivaccine propagandist named Jake Crosby, entitled David Gorski’s Financial Pharma Ties:”
“What He Didn’t Tell You”
——————————————————————
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim that it’s:
“UK bloggers who produce the bulk of the skeptical blog posts about Burzynski” ?
“What He Didn’t Tell You” ?
NO
—————————————————————— Gorski blots:
“Predictable and tiresome attacks aside, Pete and Hannah’s video made me curious about the specific success stories that Merola will focus on as “proof” that Burzynski is on to something; so I decided I should look into their stories”
“On the surface to those not familiar with cancer they do look like success stories”
“If one digs deeper, the true story is a lot murkier”
—————————————————————— Doctor “G” omits, that once “one digs deeper”, HIS“story is a lot murkier”
—————————————————————— Gorski A.D.D.s:
“More importantly, as I will show, even if they really are success stories—which is not at all clear—they do not constitute convincing evidence of the general efficacy of Burzynski’s antineoplastons, nor do they justify what I consider to be Burzynski’s highly unethical behavior.”
—————————————————————— More importantly, as I will show, is what I consider to be Gorski’s highly unethical behavior
—————————————————————— Gorski flails away:
“I will start with Hannah Bradley’s story because I’ve watched the entire 40 minute video Hannah’s Anecdote (whose title is even more appropriate than perhaps Pete Cohen imagined when he made it)”
“The documentary ends triumphantly several months after the events portrayed during the bulk of the film with Hannah apparently having had a complete response to Burzynski’s antineoplaston therapy:”
——————————————————————
Let me just first say something before I begin my usual analysis
I love these reviews 😘
I really do
Yes, it’s true that GorsGeek can be a bit annoying with his seeming desire to validate everything he flogs about some perceived “offender,”as being applicable to him, but I want GorskGeek and “HOrac” to be able to live a long and full life together, growing old in each other’s company
I really do
In fact, I’d love to hang with these two and maybe buy them a pint or two at their local pub (except that it’s pointed out multiple times that GOrackGeek should no longer drink alcohol)
“Such is not my intent, but what are skeptics supposed to do?”
“Shy away from undertaking a dispassionate analysis of patient anecdotes used to promote dubious cancer therapies for fear of what patients will say?”
—————————————————————— Gorski, it might actually help IF you knew how to do a proper “dispassionate analysis” 😐
—————————————————————— Gorski cites from the Team Hannah blog
“Hannah’s treatment options are very limited and her life expectancy is for this type of tumour is normally around 18 months and this is why I started a mission to find people who had the same condition and are still alive today”
“I managed to track down a number of these people to speak to them.”
“In his movie, Pete points out that these people all led back to Burzynski“
Gorski interjects:
“Of course, as I’ve said before, dead patients don’t produce testimonials for alternative cancer cures“
——————————————————————
One wonders why Gorski even makes this comment as the number of patients Pete contacted re Burzynski’s “alternative cancer” cure, were obviously NOT dead 😮
—————————————————————— Gorski segues on to:
“Not long after they appear at the Burzynski Clinic, they meet with doctors there who tell them that Hannah’s most recent MRI scan showed progression of her tumor (around 8:30 in the movie)”
“Now, I’m not a radiologist, much less a neuroradiologist, but I wondered at all the enhancement on the superficial area of the brain, just under where her neurosurgeon must have raised the bone flap to remove what he could of the tumor“
“One wonders if much of the remaining enhancement could be still post-surgical and post-radiation change“
“Certainly, the tumor is cystic-appearing, and after surgery such cysts would likely shrink and be reabsorbed even if the tumor were to keep growing”
—————————————————————— Gorski, if you were NOT in a such a rush to post your blog article “ad homineming” Josh Duhamel, you could have taken the time to do proper “cancer research” and maybe listen to the 9/24/2012 @YouTube video of Pete Cohen talking with Neurosurgeon (Consultant) Juan F. Martinez-Canca (20:31)
After all, HE is an actual NEUROSURGEON
——————————————————————
——————————————————————
Or you could read the transcript I made of the video [12]
——————————————————————
Or you could have contacted him and asked questions http://www.neurokonsilia.com/About-Us.html
—————————————————————— Gorski tangents:
“Be that as it may, there were a number of things I found very interesting in this video”
“First, I notice that nowhere was there anything mentioned about enrolling Hannah on a clinical trial“
—————————————————————— Gorski, if you had let Hannah know you were going to do your article about her, she might have churned her 4/4/2013 article out faster just for you, where she advises:
“Luckily I was able to take part in a phase 2 clinical trial in Texas, USA”[13]
—————————————————————— Gorski stupefies:
“Given what a thorough videographer Pete obviously is, I find this omission very curious”
“Certainly, given how much detail he’s used in this video and in his vlogs I’d expect that if the subject of clinical trials was mentioned he would have included it”
—————————————————————— Gorski, if you were NOT so busy “getting the popcorn” as you “watched the entire 40 minute video Hannah’s Anecdote”, you might have actually noticed at (7:14):
—————————————————————— 12/12/2011 – Day 2 – Monday
Meeting with Dr. Yi and Dr. Greg Burzynski at Burzynski Clinic
—————————————————————— Dr. Greg Burzynski – “We have permission to start you on the antineoplastons”
“Mhmm”
Dr. Greg Burzynski – “which as you know are in the final stages of drug approval”
“Yeah”
Dr. Greg Burzynski – “Dr. Yi is the oncologist on this case”
—————————————————————— Gorski, did you SEE THAT ?
An ONCOLOGIST at the Burzynski Clinic, working with Burzynski
(No wonder you left that out !)
—————————————————————— Gorski ejects:
“The other thing that struck me was just how much Burzynski is full of it when he advertises antineoplastons as not being chemotherapy and, more importantly, as being nontoxic“
“At least a third of the video consisted of the difficulties that Hannah had with her treatment, including high fevers, a trip to the emergency room, and multiple times when the antineoplaston treatment was stopped“
“She routinely developed fevers to 102° F, and in one scene her fever reached 103.9° F“
“She felt miserable, nauseated and weak“
“I’ve seen chemotherapy patients suffer less”
—————————————————————— Gorski whines:
“I’ve seen chemotherapy patients suffer less”, but this is purely “anecdotal”
“At least a third of the video consisted of the difficulties that Hannah had with her treatment”
Let’s do the math, shall we ?
——————————————————————
In America (48 days)
12/11/2011 (Sunday) – 1/27/2012 (Friday)
[4:52 – 35:43]
—————————————————————— Burzynski Clinic 47 days – (7 weeks)
12/12/2011 (Monday) – 1/26/2012 (Thursday)
[5:37 – 35:43]
—————————————————————— 12/13/2011 (Tuesday) Day 3
after catheter – Hickman line surgery
(painful / really painful) [10:30]
—————————————————————— 12/14/2011 (Wednesday) Day 4
(feeling wrecked / absolutely wrecked) [10:52]
—————————————————————— 12/24/2011 (Saturday) Day 14
fever
bad breathing
uncontrollable chills couldn’t stop shivering all Saturday night [18:10]
—————————————————————— 12/25/2011 (Sunday) Day 15
fever
flu symptoms
bad breathing
headache
in bed
absolutely exhausted
little bit of swelling back of head [18:10]
—————————————————————— 12/27/2011 (Tuesday) Day 17
temp 102
temp down / up [19:04]
—————————————————————— 12/28/2011 (Wednesday) Day 18
exhausted
close to breaking / cracking [19:04]
—————————————————————— 12/29/2011 (Thursday) Day 19
hospital – E.R.
“I’m at my wits end”
“I don’t feel I can take anymore” [20:07]
—————————————————————— 12/30/2011 (Friday) Day 20
last week up & down
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R. [20:22]
—————————————————————— 12/31/2011 (Saturday) Day 21
fever in middle of night
flu-like symptoms
temp 102 [21:53]
—————————————————————— 1/1/2012 (Sunday) Day 22
feel drunky
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky [22:34]
—————————————————————— 1/15/2012 (Sunday) Day 36
antibiotics 1st day [24:33]
—————————————————————— 1/16/2012 (Monday) Day 37
over 102 Monday night
antibiotics 2nd day [25:24]
—————————————————————— 1/17/2012 (Tuesday) Day 38
fever
temp 101.8
throat infection
antibiotics been on 3 days [25:24]
—————————————————————— 1/20/2012 (Friday) Day 41
fever 104 (103.9) Friday night [26:54]
—————————————————————— 1/21/2012 (Saturday) Day 42
temp up to 104 (103.9)
Dr. on-call – Ibuprofen
102.5
yesterday afternoon (blood) rash ? [27:50]
—————————————————————— 1/23/2012 (Monday) Day 44
some itch [28:35] ======================================
47 days – Burzynski Clinic 31 days – treatmentNOTmentioned 16 days – treatment mentioned ====================================== 12/25/2011 (Sunday) Day 15 off ANP [18:10]
—————————————————————— 12/27/2011 (Tuesday) Day 17 back on ANP off ANP – temp 102
temp down / up [19:04]
—————————————————————— 12/28/2011 (Wednesday) Day 18 on ANP much smaller dose [19:04]
—————————————————————— 12/29/2011 (Thursday) Day 19
hospital – E.R. [20:07]
—————————————————————— 12/30/2011 (Friday) Day 20
last week up & down off on off on off ANP [20:22]
—————————————————————— 12/31/2011 (Saturday) Day 21
temp 102 [21:53]
—————————————————————— 1/15/2012 (Sunday) Day 36
antibiotics 1st day [24:33]
—————————————————————— 1/16/2012 (Monday) Day 37
over 102 Monday night
antibiotics 2nd day [25:24]
—————————————————————— 1/17/2012 (Tuesday) Day 38
temp 101.8 off ANP (If 102 take off ANP)
antibiotics been on 3 days [25:24]
—————————————————————— 1/20/2012 (Friday) Day 41
fever 104 (103.9) Friday night [26:54]
—————————————————————— 1/21/2012 (Saturday) Day 42 off ANP – temp up to 104 (103.9)
102.5 [27:50] ====================================== 5 – off ANP
May have beenoff ANP5 to 6 days out of 47? ====================================== 12/27/2011 (Tuesday) Day 17
temp 102
temp down / up [19:04]
—————————————————————— 12/29/2011 (Thursday) Day 19
hospital – E.R. [20:07]
—————————————————————— 12/31/2011 (Saturday) Day 21
temp 102 – in middle of night [21:53]
—————————————————————— 1/16/2012 (Monday) Day 37
temp over 102 Monday night
antibiotics 2nd day [25:24]
—————————————————————— 1/17/2012 (Tuesday) Day 38
temp 101.8
antibiotics been on 3 days [25:24]
—————————————————————— 1/20/2012 (Friday) Day 41
temp 104 (103.9) Friday night [26:54]
—————————————————————— 1/21/2012 (Saturday) Day 42
102.5 [27:50] ====================================== 6 days – temperature mentioned
temp 102 – temp down / up – 12/27/2011 102 in middle of night – 12/31/2011 102+ Monday night – 1/16/2012 temp 101.8 – 1/17/2012 104 (103.9) Friday night – 1/20/2012 102.5 – 1/21/2012 ====================================== Gorski scatterbrains on:
“I was also very puzzled at how the Burzynski Clinic could allow a cancer patient to linger with a fever of 102° F and sometimes higher, accompanied by shaking chills, in a temporary lodging without admitting her to the hospital“
——————————————————————
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
“It’s not clear what sort of workup was done to evaluate Hannah either, what her white blood cell count was, or what her other labs were“
“Did they draw blood cultures?”
“Did they get urinalyses and cultures?”
“Did they do chest X-rays to rule out pneumonia?”
—————————————————————— Gorski, maybe you should have asked Wayne Dolcefino
Or maybe you should have gone to the Burzynski Clinic
Oh, wait
You think you know everything and could NOT learn anything by going there 😅
—————————————————————— Gorski at least gets one thing correct:
“It’s all very unclear, other than that she apparently was given some antibiotics at some point”
—————————————————————— 1/15/2012 Monday Day 36 antibiotics 1st day
—————————————————————— 1/16/2012 Tuesday Day 37 antibiotics 2nd day
—————————————————————— 1/17/2012 (Tuesday) Day 38 antibiotics been on 3 days
—————————————————————— Gorski wonders:
“Did she have the flu, given her flu-like symptoms, or was this due to her antineoplaston therapy?“
—————————————————————— Gorski, why not “speculate” like “The Skeptics™” usually do ?
—————————————————————— 12/24/2011 (Saturday) Day 14 fever
bad breathing
shivering all night
—————————————————————— 12/25/2011 (Sunday) Day 15 flu symptoms
breathing
headache
uncontrollable chills couldn’t stop off ANP absolutely exhausted
in bed
little bit of swelling back of head
—————————————————————— 12/27/2011 (Tuesday) Day 17 back on ANP temp 102 – off ANP temp down / up
—————————————————————— 12/28/2011 (Wednesday) Day 18 on ANP much smaller dose exhausted – close to breaking / cracking
—————————————————————— 12/29/2011 (Thursday) Day 19 hospital – E.R.
—————————————————————— 12/30/2011 (Friday) Day 20 last week up & down off on off on off fever
chills
shaking
viral infection
bacterial infection
—————————————————————— 12/31/2011 (Saturday) Day 21 temp 102 – fever in middle of night
Dr. SRB thinks flu-like symptoms or tumor actually breaking down
—————————————————————— 1/16/2012 (Monday) Day 37 temp 102+ Monday night
—————————————————————— 1/17/2012 (Tuesday) Day 38 throat infection temp 101.8 – fever – off ANP antibiotics been on 3 days
—————————————————————— 1/20/2012 (Friday) Day 41 104 (103.9) – fever – Friday night
—————————————————————— 1/21/2012 (Saturday) Day 42 temp up to 104
Dr. on-call – Ibuprofen 102.5 – off ANP yesterday afternoon rash
—————————————————————— Gorski ponders:
“The reaction of the clinic staff (i.e., rather blasé, even though at one point Hannah clearly demonstrates a change in mental status, appearing “drunk” and complaining of double-vision) made me wonder if this sort of problem was a common occurrence”
—————————————————————— Gorski, what’s the matter ?
Did you grab another handful of popcorn ?
—————————————————————— 1/1/2012 (Sunday) Day 22Burzynski Clinic feel drunky
felt like completely drunk
double vision
bit shaky Nurse said anti-seizure drug she hadn’t taken before [22:34]
—————————————————————— Gorski, what are some of the side-effects of “anti-seizure” medications ?
dizziness
double-vision
drowsiness
imbalance
loss of coordination
Problems with motor skills
Problems with tasks requiring sustained performance
nausea
slurred speech
staggering
mental disturbances
serious mood changes
—————————————————————— http://umm.edu/health/medical/reports/articles/epilepsy
—————————————————————— Gorski continues his assault on the popcorn:
“At another point, Pete and Hannah come to believe that the fevers might have been due to the tumor breaking down, which strikes me as implausible”
—————————————————————— Gorski, if it “strikes” you “as implausible”, then why did you ask, above ?
“Did she have the flu, given her flu-like symptoms, or was this due to her antineoplaston therapy?“
—————————————————————— 12/31/2011 (Saturday) Day 21 temp 102 – fever in middle of night Dr. SRB thinks flu-like symptoms OR tumor actually breaking down [21:53]
—————————————————————— Gorski blunders along:
“Later, she develops an extensive rash“
—————————————————————— 1/23/2012 (Monday) Day 44 Pete sent pic to Dr. SRB who gave name from pic and Pete verified [28:35]
—————————————————————— Gorski bumbles onward:
“It’s difficult to tell for sure what it is at the resolution of the video, but it looks like erythema multiforme, which is generally an allergic rash”
“What’s the most likely cause of such a rash?”
“Guess”
“Erythema multiforme is usually a drug reaction”
—————————————————————— Gorski, what can cause “Erythema multiforme” ?
“Does this mean that Burzynski’s antineoplaston treatment worked for Hannah?“
“Sadly, the answer is:”
“Not necessarily”
“It might have”
“It might not have”
“Why do I say this?”
“First, she didn’t have much residual disease after surgery and radiotherapy, and in fact it’s hard to tell how much is tumor and how much is postop and radiation effect“
—————————————————————— Gorski, I think it’s safe to say that neurosurgeon Dr. Martinez knows much better than you and your speculation
—————————————————————— Gorski
“Second, the median survival for anaplastic astrocytoma (which is a form of glioma) is around 2 to 3 years, and with different types of radiation therapy five year survival is around 15% or even higher”
—————————————————————— Gorski provides a link to a site which advises [14]:
High-grade tumors grow rapidly and can easily spread through the brain“
High-grade tumors are much more aggressive and require very intensive therapy
All patients with high-grade astrocytomas receive both radiation therapy and chemotherapy regardless of age
Prognosis is poor in this group of patients
—————————————————————— Gorski’s 2nd linked source advises [15]:
These highly aggressive tumors often occur in young adults and typically recur or progress to a grade 4 glioblastoma within several years of diagnosis, despite treatment with surgery, radiotherapy, and chemotherapy
Tumor more resistant to therapy and patients have shorter median survival of only 2 to 3 years
—————————————————————— Gorski’s 3rd link [16] showcases his lame research as one has to read through almost the entire article to find the reference, which directs the reader to yet another publication [17]:
Gorski FAILS to advise the reader that the 2002 study is titled:
“Intraoperative radiation therapy (IORT) for previously untreated malignant gliomas“
Hannah Bradley’s WAS previously treated
Gorski also FAILS to advise the reader if this study included patients with grade 3 or 4 tumors
—————————————————————— Gorski claims:
“Thus, long term survival for patients with astrocytomas is not so rare that Hannah’s survival is so unlikely that the most reasonable assumption has to be that it was Burzynski’s treatment that saved her”
—————————————————————— Gorski, nice claim, but you did NOT really prove it
—————————————————————— Gorski suspects:
“More likely, Hannah is a fortunate outlier, although it’s hard for me to say even that because, at only two years out from her initial diagnosis, she’s only just reached the lower end of the range of reported median survival times for her disease”
—————————————————————— Gorski, the operative word is “outLIER”
Gorski then goes all “conspiracy theory” about a supposed “cryptic Facebook post”, a “vlog entry no longer exists”, “Hannah and Pete supposedly being “evasive”, “using vague terms”, a “little blip”, and “lack of new scans”
Next, little green “popcorn munchin'” men 👽
—————————————————————— 3/4/2013 Gorski drops “conspiracy theory, part II” on an unsuspecting audience [19]:
Dr. Stanislaw Burzynski’s cancer “success” stories update: Why is the release of the Burzynski sequel being delayed?
It’s no secret that I happen to NOT be on several mailing lists of “The Skeptics™”whose dedication to science is—shall we say?—questionable
As I delved deeper, I learned that Gorski’s evidence for the “questioning” of the anticancer efficacy of “antineoplaston therapy” doesn’t hold up; that his “questioning” of “personalized gene-targeted cancer therapy” is anything but; and that he’s an orphan now in what appears to me to be a strategy to bypass restrictions on his use of proper “cancer research “
The CliffsNotes version for those who don’t want to read Gorsack’s previous lengthy post is that he claims Hannah’s tumor, an astrocytoma (which is a form of glioma) did indeed appear to regress, but that regression can likely be explained by the surgery and radiation therapy that she had
Even then, however, he claims it would not be evidence that the antineoplastons saved her because there are occasional complete remissions in this tumor type, and long term survivors, although uncommon, are not so uncommon that Hannah must be evidence that antineoplastons are so miraculously effective that they saved her when conventional medicine could not
Gorski’s claims are anecdotal, as he failed miserably to provide the necessary citation(s), reference(s), and / or link(s) to support his claims
Gorski claims:
“I try very hard not to cross that line, and I think I’ve been successful, for instance, here”
But I proved again, above, how he fails and fails again with his “amateurish” attempts at proper “cancer research”
Similarly, Gorski realizes that it is very effective to appeal to emotions and cast Burzynski’s as heartless
Gorski inserts other Burzynski patients into his posts about Pete and Hannah
—————————————————————— GORSKI FAIL #1 – “One notes that Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
—————————————————————— GORSKI FAIL #2 – “The new claim is that Burzynski isn’t making patients pay for his antineoplastons (see question #13 in Merola’s FAQ), just for “clinical management” (as if that weren’t incredibly transparent) Vindication”
—————————————————————— GORSKI FAIL #3 – “First, I notice that nowhere was there anything mentioned about enrolling Hannah on a clinical trial“
—————————————————————— GORSKI FAIL #4 – “Certainly, given how much detail he’s used in this video and in his vlogs I’d expect that if the subject of clinical trials was mentioned he would have included it“
—————————————————————— GORSKI FAIL #5 – “The reaction of the clinic staff (i.e., rather blasé, even though at one point Hannah clearly demonstrates a change in mental status, appearing “drunk”and complaining of double-vision) made me wonder if this sort of problem was a common occurrence”
—————————————————————— GORSKI FAIL #6 – Well, I could add more … 🙂
——————————————————————
My apologies to the following co-authors if you ever had to check the “cancer research” of one: Gorski D., Gorski DH, D H Gorski,