Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html

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I will be doing some data clean-up and adding additional video transcripts
——————————————————————
What stood out to me in the first and last videos is that you could hear both sirens and birds

Unlike “The Skeptics™” (sirens) #whining, the birds were celebrating Hannah #winning
——————————————————————
Just as I did with the case of Burzynski patient Laura Hymas, so will I do with her friend, Hannah Bradley

Yes, unlike “Orac” I will let Hannah speak for herself instead of adding any bias as “Dr. Check my Facts” Hack does
——————————————————————
Team Hannah Blog

6/6/2013 – Posted by Hannah

(6:14)

Okay

Hello everyone

Hi

It’s uh Thursday the 6th of June

Yes

(laugh) And uh we’ve got some really good news

We’ve kind of been holding back a little but

we just wanted to be certain

so what were you going to say

Uh, I am finally off treatment

Finally off treatment which is great so as far as Dr. Burzynski is concerned, the treatment is now finished

Hannah is free

Free of the bag

Free of

Yes

Yes

How’s that feel

Yeah, it feels really kind of strange to be honest

Well you want to go back on it again

No

No

But I
I miss the bag, because I miss carrying around ohhh

Now you’re just being a little bit stupid

Um, but the great news is today, we went to go and see Hannah’s surgeon

Yes

Oncologist

A another surgeon another doctor um

Yeah

And that was a bit strange because the last time that we saw
surgeon he gave us
it was probably one of the worst days of our life

Yep

He gave us the results of

Your biopsy

Yep

Which was a grade 3 tumor uh I can remember that like that was yesterday

I don’t really remember

Well but I do

It was amazing uh seeing him today because he’s just basically just agreed with everything that uh that’s been said in America that Hannah’s doing really really well she as far as she’s concerned you don’t have to have any scan for another 6 months

No

Uh so you know really kind of cancer free and

Yep

Now, you know, it is incredible

It’s a bit of a miracle and

it both hasn’t hit home

really

How much

Yeah

How much is

Well we can start our life

We can start our lives, again

Again (laugh)

And um we just want to say

a massive thank you

the list is just

this isn’t the end for us

I’m sure we

boring you

(laughing)

had a very long day

We had to wait an hour and a half (laugh)

(laugh) Sorry I couldn’t help

Calm down

The the list of people that we have to thank

Need

Need to thank is so long, and obviously way up at the top of that list has to be uh Dr. Burzynski and all of the people at the Burzynski Clinic who have been just amazing, you know

Just so supportive um and I suppose really without that treatment I don’t
I don’t think

I don’t

No

I don’t think

You don’t think you’d what ?

It’s not worth thinking about

Yeah, it’s not worth thinking about

But um we have to thank every single person that contributed and helped us and supported us along the way

Everyone that helped us raise money

Um

to thank

Here we go

Who else do we need to thank

I think

Come back up

Come on

(laugh)

We have to thank uh

like I said it’s been a long day today

Uh we have to thank Jamie Lowe

Yes

We have to thank Lindley Gooden

Who else do we have to thank ?

Uh all the people that were in Team Hannah

Yeah

All of your friends

My parents

Your parents

Mhmm

Um just everyone that’s been watching these blogs

We really, really couldn’t have done it without you

And um

We are really, really thankful

You don’t want to go do you ?

Hannah and I were thinking about doing our own comedy show because a lot of people
comments like we’re so funny

Yeah

And who’s the funniest

Uh oh you

Yeah you

Me
Me
Me

Um

So, I don’t know what else to say really apart from, you know, this is really a bit of a fairy tale for us

We know how fortunate
we are and we know how
people
who we met along the way
who weren’t
haven’t been as fortunate as us

So we uh

So, are you alright down there ?

we’re talking about something serious

Very

Yeah, we know a lot of people who haven’t been as fortunate

As fortunate as we have people are forever in our hearts

You know, um, we know how lucky we are and um

We’re going to make the most of our lives the most of our lives together

Um, yeah

We really do think that

No don’t

You know, there was a time

Many, many times where I really didn’t think that Hannah would be here but, you know, we’re talking 2 1/2 years ago that she was diagnosed and she’s doing better than ever even though she is yawning

(laugh)

Um

I don’t think there’s any words that really put into a sense of how so lucky we think we are, and I really think it’s how our legacy to live with that and try and inspire other people as much as we can as well

Ok

So, we’re not going to get go anywhere we’re still we’ll still let you know from time to time how we’re getting on

Uh um I also think we need to give a massive shout out to Ben and Laura Hymas as well who, who really, we went to see them the week before we went to, out to America, and it was there, was a, was a bit of a shock

Really

Realizing what we were about to take on but um she’s

I’m very sorry

She’s someone else who’s done well and we want to give a big shout out to them because we know that they’ve got their lives ahead of them as well as we do too

So, I think without any further ado we’ll give your famous wave

(wave)

It’s not really a wave, is it

Thank you very much everyone

Thank you

Big hug

Wanna hug ?

C’mon

C’mon hug us [10]
======================================
London [1]

4/2010 – first met Hannah and we fell in love and since then our relationship has gone from strength to strength [3]

Hannah (28) has great personality and fantastic sense of humour [3]

10/5/2012 – from Elstead [12]

4/4/2013 – Hannah Bradley (28) [11]

Hannah Bradley from London, UK [15]

======================================
MOOD
======================================
Looking back now, was quite naive [1]

2/2011 – world took dramatic turn [11]

Hannah Bradley from London, UK [15]

To my complete horror [11]

whole world was turned upside down [11]

confused [11]

scared of all the unanswered questions that lay before me
why was this happening to ME? [11]

What did the future hold? [11]

Will I be okay? [11]

absolutely terrified as realised something seriously wrong [15]

Everybody else went into panic, but shock calmed [15]

Inside, scared, could see how frightened Pete was [15]

wasn’t easy decision but really wasn’t another choice [15]

Fear pulsed through me as was wheeled to theatre for operation [15]

4/2011 – thought once surgery over, tumour would be gone [1]

“Hello,” I croaked [15]

“Have I still got all my hair?” [15]

beamed as Pete nodded [15]

long blonde locks were pride and joy, and surgeons managed to operate without having to shave any [15]

Waiting for results was one of most harrowing periods for me and my partner [11]

had to wait for results of biopsy for few weeks and remained positive [3]

while trying to remain positive throughout [11]

tried to keep busy so didn’t dwell on what doctors would say [15]

it was hard [15]

sensed before they even spoke [15]

faces were so serious it had to be bad news [15]

Obviously medical professionals have to be detached when deliver news, but we completely broke down [15]

tried to bite back sobs so could hear what they were saying [15]

blinked for moment, realising meant me [15]

left hospital, in daze [15]

went to sit in park for 2 or 3 hours, working out how to tell everyone [15]

rang dad, feeling ashamed he had to deal with news [15]

didn’t want to upset him [15]

Pete and I rang close friends and family and became easier each time [15]

got chain going to spread news so didn’t have to ring everybody, which was relief [15]

gave me space to come to terms with diagnosis [15]

Once able to get head around it, felt detached from it: [15]

needed to get through next stage now [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

Hannah’s bravery and resolve once again rose up as shortly after this she started 6 week course of radiotherapy [3]

news was not good and world was rocked once more as results showed Grade III tumour [11]

whole world suddenly fell apart again and that very moment I didn’t know how to go on [11]

knew had to carry on and from somewhere I didn’t know existed within me, found some bravery and started to have next course of treatment, 6-week course of radiotherapy [11]

hope you will understand this was REALLY difficult for me as I loved my hair and without it felt horrible and ugly [11]

coped well at first, until hair came out in clumps [15]

warned could be few patches of fall, but lost it all [15]

wore headscarves but mourned my hair [15]

work in skincare sales and used to having to look my best [15]

know it was vain, but hair was part of my femininity [15]

missed it [15]

awful but kept going, knowing had to [15]

Seeking alternatives [15]

full of hope [15]

know it’s long fight ahead but feel everyone is behind me and
get so much from that [15]

have a mantra, which like to think I made up but think I read somewhere: [15]

‘You never know how strong you are until being strong is the only choice you have.’ [15]

exactly how I feel [15]

there was some hope [12]

was truly an incredible time and once again I was filled with hope as so many people came to my aid to support me by raising money and donating what they had [11]

still so thankful for all that support [1]

absolutely overjoyed [1]

wouldn’t turn my back on conventional medicine, but would advise anyone in situation like mine to look into other options – there could always be another way [1]

“If this whole thing has taught me anything, it’s that.” [1]

Thankfully along with other treatment, strategy has worked for me and I’m now trying to help others who are fighting against this horrible disease [11]

======================================
HEALTH
======================================
was salesperson when diagnosed with cancer [1]

ate on the run [1]

smoked [1]

had no real symptoms or warning signs [1]

2/2011 – out of the blue, Hannah had major seizure in middle of the night [3]

2/2011 – one night Hannah’s life changed drastically without any prior health concerns suddenly had major seizure [12]

2/2011 – had grand seizure while asleep [1]

2/2011major seizure in middle of night [11]

arms up in the air, body shaking [1]

2/2011lost consciousness and was rushed to hospital [3 + 11]

woke in hospital, had no idea what had happened, tests revealed brain tumour size of golf ball in frontal lobe [15]

didn’t know anything wrong before had massive seizure in sleep [15]

boyfriend thought was having nightmare at first, but when couldn’t wake me, realised was unconscious and called ambulance [15]

came round in hospital few days later and didn’t remember anything [15]

underwent countless tests, absolutely terrified as realised something seriously wrong [15]

2/2011 – 4/2011 – don’t remember much about 2 months that followed apart from seeing many doctors, having constant headaches and a # of seizures [11]

had constant headaches and number of seizures [3]

Eventually CT scan showed brain tumour, turned out to be very aggressive, anaplastic astrocytoma [1]

week after CAT and MRI scans told had brain tumour size of golf ball [15]

in frontal lobe and probably growing there for years [15]

doctor gave 3 options: [15]

leave it and see what happened
have biopsy to discover what type of tumour it was and how aggressive
go for surgery to try to remove as much as possible [15]

diagnosed with very serious brain tumour [3]

diagnosed with very aggressive brain tumour [11-12]

2/2011 – 4/2011 – have no memories of that time, from the night of seizure to coming around from 8-hour operation to remove tumour 2 months later [1]

had about 4 more seizures – including one 2 nights before surgery last April – after discharged because tumour growing and putting so much pressure on brain [15]

Pain throbbed through inside of skull as peeled eyes open [15]

Groggy, focused and saw Pete smiling down at me [15]

was in hospital 5 days before going home to rest and getting biopsy results [15]

2 weeks later, went back to see consultant and specialist nurse [15]

news was not good and our world was rocked once more as results showed Grade III tumour [3]

tumour was cancerous and had scary name – anaplastic astrocytoma [15]

4 grades of brain tumours with 4th being worst [15]

Mine grade 3 [15]

statistics quoted said person with grade-3 tumour lives around 5 years [15]

life expectancy for people with tumours like this was 18 months [1]

2 weeks into treatment was hit by wave of tiredness [15]

so shattered had to go to bed for week [15]

went well for 1st few weeks but followed by hair falling out and bouts of tiredness and lethargy [3]

lost hair
started having seizures and didn’t know how long she had to live [12]

was still having seizures and lost independence with losing driving licence [11]

On top of all of this, dealing with losing driving licence as had number of seizures and now has epilepsy [3]

At end of July, had another MRI scan, revealed still residue left from tumour [15]

6 weeks after radiotherapy finished, had another MRI to see what was going on with tumour, Once again more bad news, as there were still remnants of aggressive tumour [3]

Although it was hard I remained hopeful that 6 weeks after radiotherapy would help and I could go on to live a normal life but again results of next MRI were not good [11]

There were still remnants of aggressive tumour [11]

At this point treatment options where very limited and life expectancy was not very long [11]

was told only options available on National Health Service were to operate or have radiotherapy again [15]

Chemotherapy also mentioned but not strong enough for that [15]

doctors said were really uncertain of expected life span if didn’t do anything and since treatment options in UK so limited, we want to try something else [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Just 8 months after starting treatment had some incredible news [12]

latest scans show she is cancer free [12]

desire to beat this disease led me to make number other lifestyle changes [11]

One of biggest changes has been dietary; specifically cutting out most sugars from my diet [11]

involved learning how to cook, which in itself was huge challenge because I hated cooking with a passion [11]

Over time I started experimenting with different foods and became more and more adventurous and dare I say it, I even started to enjoy coming up with new healthy recipes [11]

quickly learned that exclusive food of cancer is sugar, so quickly embraced this and cut out almost completely starchy carbohydrates and refined sugars by incorporating sugar free/starch free food plan [11]

idea being that diet would feed my body, mind and starve cancer into submission [11]

also learnt this type of diet is good for blood sugar regulation, body composition and is consistent with the way that our ancestors ate thousands of years ago [11]

After months of experimentation and with help of couple of great cooks, have learned to make delicious and nutritious healthy meals and this is why I decided to write my own book, The Team Hannah Cookbook [11]

It’s my contribution to helping and inspiring others to eat a better diet [11]

I would hope you can enjoy these recipes and make them part of your diet [11]

This book will show you how easy it is uto cut out the carbs and still eat “normally.” [11]

I now believe that dieting and counting calories doesn’t work [11]

Low carb is the way forward [11]

You will find in my book great low carbohydrate recipes for – Breakfasts, Breads & Pastries, Starters, Salads, Mains, Desserts, Treats [11]

======================================
TREATMENT
======================================
2/2011 – partner, Pete, called ambulance, was rushed to hospital, unconscious [1]

decided to have operation, hopeful would get rid of it [15]

in hospital 2 weeks following 1st seizure and put on strong medication to stop from having fits [15]

kept awake 2 1/2 hours of 6-hour surgery – medical team wanted to make sure weren’t damaging any part of brain, where tumour was, relating to speech and language [15]

made list of what to talk about with speech therapist during operation, such as meeting Pete at conference in Croatia year before; favourite American TV series, Friends, niece who’d been staying with family week before seizure [15]

remember having to touch fingers with thumbs to check movement still there, hand or my leg would involuntarily move when surgeon touched particular part of brain and asking anaesthetist to scratch itch on nose [15]

“It’s going fine, we’re putting you back to sleep now,” voice said and everything went black [15]

4/2011 – 8-hour operation to remove tumour [1]

4/1/2011 – decided to have surgery underwent 6 1/2 hour operation [3]

4/1/2011surgery and underwent grueling 6 1/2 hour operation [11]

awake for nearly 3 hours of this operation [3]

nearly 3 hours of operation was awake [11]
——————————————————————
Pete Cohen chats with Dr. Juan F. Martinez-Canca, Neurosurgeon (Consultant) about Hannah Bradley:
https://stanislawrajmundburzynski.wordpress.com/2013/11/08/pete-cohen-chats-with-dr-juan-f-martinez-canca-neurosurgeon-consultant-about-hannah-bradley/
——————————————————————
operation was success and they managed to remove nearly all of tumour [3]

To my relief
results of operation were fairly successful and surgeon managed to remove uhmost of tumour [11]

diagnosed with Anaplastic Astrocytoma brain tumour and over next few months endured 6-hour operation and 6 weeks of radiotherapy [12]

started radiotherapy 8 weeks after surgery [15]

full on – 6 weeks of treatment, Monday to Friday [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

radiotherapy went well for 1st few weeks but fears were confirmed when hair started to fall out [11]

was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour [1]

Pete started researching alternative treatments from beginning and was Dr Stanislaw Burzynski, biochemist and physician in US, who seemed right choice for me [15]

found pioneering treatment in America which could give her a chance [12]

One name kept cropping up [1]

Dr Burzynski [1]

treatment is controversial – claims to have identified peptides called antineoplastons, which act as molecular switch to turn off cancer cells without harming normal cells [15]

After reading everything we could, decided to try it [15]

At his clinic in Houston he’s developed a treatment using anti-cancer compounds he discovered and now manufactures – and is treating aggressive tumours, especially ones in the brain [1]

controversial [1]

medical community claims unscientific and unproven [1]

oncologist didn’t want me to go – he wanted to monitor tumour and maybe give more radiotherapy in future [1]

that was like containing it, not getting rid of it, and treatment hadn’t worked so far [1]

Dr Burzynski seemed to be only hope of getting rid of cancer for good [1]

In order to get it needed to raise £150,000 [12]

treatment wasn’t cheap (about £200,000) [1]

treatment very costly, and even using all savings didn’t have nearly enough [15]

£200,000 (Dh1.16 million) needed to go to US, plus ongoing shipping of drugs from States and private monthly scans will need for 12-18 months, was out of reach [15]

Family and friends offered to help, soon there was Team Hannah website [15]

Within few weeks had £35,000, enough to go to US for consultation and start treatment [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Treatment available in America [12]

Luckily was able to take part in phase 2 clinical trial in Texas, USA [11]

treatment isn’t available via NHS so had to raise considerable amount of money [11]

12/2011 – flew with Pete to Burzynski Clinic [1]
——————————————————————
12/10/2011Saturday – video blog
leaving tomorrow morning
——————————————————————
12/11/2011 – Day 1 – Sunday
flew to USA
massive headache
thought was going to faint

——————————————————————
12/12/2011 – Day 2 – Monday
Burzynski Clinic
temp check
vision test
meeting: Dr. Yi oncologist / Dr. Greg Burzynski
(Dr. Rowkowski)

——————————————————————
12/13/2011 – Day 3 – Tuesday
Burzynski Clinic
inject sugar syrup
PET scan
MRI scan review

?’s memory / spelling jumbled
fill out form
Valium
(as much local anesthetic as could give her w/o knocking her out)
catheter – Hickman line
(painful / really painful)
——————————————————————
12/14/2011 – Day 4 – Wednesday
Burzynski Clinic
(feeling wrecked / absolutely wrecked)
start treatment
6 doses of antineoplaston a day
4 hours apart
almost 24 hours continuously
(had chest x-ray)
(Dr. Barbera – talk pain medication)
lessons: clamps / hoses / pump
——————————————————————
12/15/2011 – Day 5 – Thursday
Burzynski Clinic
(Day 2 of treatment)
lessons: change pump
——————————————————————
12/20/2011 – Day 10 – Tuesday
Burzynski Clinic
Dr. Yi / Dr. SRB
enhancing – asked to stay month – next MRI to be done
——————————————————————
12/22/2011 – Day 12 – Thursday
Dr. Hilary Jones on Daybreak
(Pete’s colleague)
——————————————————————
12/24/2011 – Day 14 – Saturday
fever
bad breathing
shivering all night
——————————————————————
12/25/2011 – Day 15 – Sunday
Burzynski Clinic
flu symptoms
breathing
headache
uncontrollable chills couldn’t stop
Monica
off ANP
absolutely exhausted
in bed
little bit of swelling back of head
——————————————————————
12/27/2011 – Day 17 – Tuesday
back on ANP
temp 102
called Burzynski Clinic
off ANP
temp down / up
——————————————————————
12/28/2011 – Day 18 – Wednesday
Burzynski Clinic
on ANP much smaller dose
exhausted
close to breaking / cracking
——————————————————————
12/29/2011 – Day 19 – Thursday
hospital
“I’m at my wits end”
“I don’t feel I can take anymore”
——————————————————————
12/30/2011 – Day 20 – Friday
last week up & down
off on off on off
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R.
surreal
——————————————————————
12/31/2011 – Day 21 – Saturday
fever in middle of night
temp 102
Dr. SRB thinks flu-like symptoms or tumor actually breaking down ->
——————————————————————

1/2012 – started treatment [11]

——————————————————————
1/1/2012 – Day 22 – Sunday
Burzynski Clinic
feel drunky
prob w pump – not closing
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky

Gary – directions re pump equip
——————————————————————
1/17/2012 – Day 38 – Tuesday
Burzynski Clinic
temp 101.8
throat infection
If 102 take off ANP
BC 3x – blood – supplies
antibiotics 1 day

antibiotics 2 day – over 102 last night

fever
antibiotics been on 3 days
off ANP
disappointed
pointless
——————————————————————
1/20/2012 – Day 41 – Friday
fever
104 (103.9)
Friday night
——————————————————————
1/21/2012 – Day 42 – Saturday
Burzynski Clinic
temp up to 104
Dr. on-call – Ibuprofen
102.5
yesterday afternoon (blood) rash ?
off ANP
Dr. Popper
——————————————————————
1/23/2012 – Day 44 – Monday
Burzynski Clinic
Dr. SRB
gave name from pic
some itch
MRI – was to have Wed (12/29/2011 prev MRI)
less tumor
less enhancement
shrunk by at least 10%
call Dad

Been 1 month
Discharge
take Ashley
Rick
Fri – leave
——————————————————————
1/26/2012 – Day 47 – Thursday
Burzynski Clinic
Stable Disease
stabilization
——————————————————————
1/27/2012 – Friday – leave
——————————————————————
medication is administered directly into your body through Hickman line 24 hours a day [1]

not an easy option [1]

Pete and I learnt how to prepare and administer treatment ourselves and carried on in Britain for another 18 months (1 year 6 months) [1]

were there for 7 weeks, and scans showed in that time tumour reduced by 11% [1]

Thankfully has been successful in shrinking tumour [11]

blood was checked twice a week, was scanned every 6 weeks at private hospital [1]

Most importantly, seemed to be working [1]
——————————————————————
6/2012 – back 6 months
3 scans

6/13/2011
12/7/2011

3/21/2012 – 1
5/2/2012 – 2
7/29/2012 – 3

7 weeks at Burzynski Clinic

Complete Response
——————————————————————
tumour kept getting smaller, in January this year it was all gone [1]

started treatment and after 9 months had complete response and will continue on treatment until 4/2013 / 5/2013 [3]

now off treatment but still being monitored [1]

Dr Burzynski isn’t miracle worker [1]

There are well-publicised cases of families raising money for children to be treated at the clinic but children still tragically dying [1]

People have posted on our website that it doesn’t work, but I’m convinced that, if we hadn’t found him, I wouldn’t be here today [1]

======================================
SUPPORT
======================================
Pete Cohen: Team Hannah set up to save life of my partner, Hannah Bradley, who’s 28 years old and has brain cancer [3]

All this time, without knowing, Pete had been looking into things, searching, talking to anyone and everyone who could possibly help [1]

needed to raise around £200,000 to give her opportunity to have life-saving treatment at The Burzynski Clinic in Houston, Texas [3]

Pete launched campaign – friends and family gathered around, held events, our local radio station supported us – in 2 months already had £100,000, enough to start treatment [1]

You helped her to get it… [12]

Eagle Radio wanted to help give Hannah hope by raising money towards her fund [12]

you wanted to help too [12]

Hannah came in to Eagle Radio to meet Breakfast Show presenters PG and Bev [12]

Listen to interview here: [12]

Pete (Hannah’s boyfriend) met our reporter Anthony Zahra and starts by talking about how couple met: [12]

Jeremy (Hannah’s dad) spoke to our reporter Elizabeth Williams: [12]

photos on Hope for Hannah appeal [12]
——————————————————————
Fundraising events you told us about [12]
——————————————————————
7/21 – Matthew Cank from Farnham doing sponsored bike ride with friends riding from John O’Groats to Lands End [12]
http://2theend.co.uk
——————————————————————
**
2/24 (Friday) – Pure Dance at Backline, Guildford from 8pm to 2.30am House, electro & trance music with DJs on rotation Entry £10 with all proceeds going to the appeal [12]
——————————————————————
**
2/25 (Saturday) – Dinner, Dance and Auction at The Mandolay Hotel, Guildford (6.30pm to 12.30am) evening of fantastic food & excellent entertainment [12]
——————————————————————
**
3/3 (Saturday) – special night held at Godalming Naval Club by Hannah’s best friend
£7.50 a ticket All money to the appeal Includes – food, disco, raffles, auction and more [12]
——————————————————————
**
5/19 (Saturday) – Health, Beauty & Fitness Fair at Clock Barn Hall, Godalming Free admission, free talks on health, fitness and nutrition Includes – mini treatments, fitness drop in classes, taster sessions, new health products Raffle & bucket collection to raise money for Team Hannah [12]
——————————————————————
Your generosity was astounding and Hannah surpassed her target much earlier than she could have dreamed [12]

Hannah’s Annectdote

A film about Hannah’s journey to The Burzynski Clinic

film we made called Hannah’s Anecdote [3]

made to share with world Hannah’s journey to beat cancer and live normal life [3]

you can see Team Hannah blog we started October last year as well more information about Dr. Burzynski and treatment for cancer [3]

totally aware of controversy surrounding Dr. Burzynski but have seen with our own eyes he saved Hannah’s life [3]

share this with everyone you can, so together we can raise awareness of Hannah’s success and of Dr. Burzynski [3]

cookbook by Hannah available at teamhannah.com [1]

Any help you give will be most appreciated and will keep you updated with Hannah’s journey [3]
http://www.teamhannah.com/

Thank you for donating, raising awareness and simply helping to give Hannah hope [12]
——————————————————————
Hannah’s Annectdote: (40:42)
——————————————————————
A film about Hannah’s journey to The Burzynski Clinic
——————————————————————
Look

You’ve got a spirit level in the cam, in the front of the camera for a reason

I know

Ok
——————————————————————
Hannah’s Anectdote
——————————————————————
I’m Hanna Bradley and I’m 27 years old
I have
Well, I found out I had a brain tumor in February 2011
The way I found out is, I had a seizure in, during the middle of the night
I don’t remember anything, but my partner Pete tells me that I did
Rushed to hospital and about week later I was diagnosed with a, an aggressive brain tumor
And then I had to have an operation to remove the brain tumor and I went back for the results, which weren’t that good and I had to go for a radiotherapy

And I spoke to a friend of mine, an incredible man, he’s a doctor, he, he’s retired, he said, why don’t you just look and find people in the world who still have this condition and still alive
So, that’s what I did
And I found some people, and it, and they all led to this guy Burzynski, but you mention Burzynski to uh people who work in the world of cancer, and it’s just like, they, you know, the barriers come up immediately
Chemotherapy, radiotherapy, there’s no question about the fact that these things uh, are reflective and they are, save people’s lives, but that’s not what Hannah wants to do
(If I could go there, and take myself off there, I could)
Burzynski’s work is, some people wouldn’t say it is gene-targeted therapy
Basically it’s peptides
Peptides uh form amino acids in the body, and he’s found from his research that uh, certain people do not have these types of peptides, and uh especially people with certain types of cancer
What have you got to lose, and what’s the worst thing that can happen, if it doesn’t work ?
What’s the best thing that can happens ?
It saves her life
(laughter)
(I’ll give the ass a smack)
——————————————————————
video blog 13th of November 2011 (2:00)
——————————————————————
(Come sit down)
Good morning
Good morning
Good Morning

Why this week is such a big week is we go to see Hannah’s uh GP tomorrow, and we really need him on side with the treatment that Hannah’s going to have, and, and that could pose a bit of a challenge, because this treatment with Dr. Burzynski is not peer-reviewed, and what that means is that, with the NICE guidelines in this country, people are
very unlike to promote a uh treatment that isn’t peer-reviewed in the way that they would want it to be, but, we’re hoping that he will help and support is when we come back

Yeah

We will also go and see the oncologist this

Yes

which is gonna be a very interesting conversation because again, we want their support
It’s unlikely, very unlikely that they’ll give us the support that we need
because when Hannah comes back, she’s going to need MRI’s every month, and that’s just not gonna happen
We’re going to have to pay for that, but, we’ll let the pets do that of course
We’ll let you know next week, but this week is gone, but for now this is Team Hannah saying, Team Hannah, Team Hannah saying
Goodbye
Bye
Goodbye
That the wave that you do
(laugh)
I’m getting better at the wave
I don’t know about that, darling
——————————————————————
Royal Free Hospital
London – December 2011 (3:19)
——————————————————————
You know, maybe I’ve been led down a garden path if you like, going to work with Burzynski, because you speak to any oncologist; which we have, lots of (?) specialists in this field and they say:
“No don’t do it”
“The guy’s a charlatan”
“You’re wasting your time”
“You’re wasting your money”
“It’s not going to work”
“There’s no clinical research”
But I feel in my heart that we’ve gotta do this
Not just because, you know, what is there left to do, but I actually think it’s going to work
Is it going to be a placebo effect, or is it actually going to be that what this guy does works ?
I’ve spoken to people who he, who he’s treated uh and they all can’t speak highly enough of him and of the clinic that we’re going to
So I’m going to film as much as I can of her journey, and she’s happy for me to film
And the clinic in Houston are happy for me to film whatever I want
So I’m going to
——————————————————————
video blog 10th of December 2011 (4:10)
——————————————————————
I don’t know how many blog videos we’ve done but we’ve done quite, quite a few and I think it’s amazing that we’ve got to this point
It doesn’t seem very long ago that we were sitting and talking about doing this, and within a few months we’ve raised all this money and we’re, my bags are packed
Your bags is almost packed

My bag is packed

And your bag is packed and we’re leaving tomorrow morning
I know there’s been a little bit of controversy

Yeah

about what we’re doing, but please, whatever you hear about it, we have done a lot of research into this
and we feel very confident about what we’re doing, were going to get very well looked after and we’ll be able to share all of that with you
So, next time you see us we’re going to be in

Houston

Texas
——————————————————————
Day One (4:52)
——————————————————————
Good morning Hannah

Good morning

And where are we ?

At the airport

So, you ready for this ?

I’m ready

Ready to start this next phase of our journey ?

Yeah

Ok

I’m really ready
I hurt, like I’ve got a massive headache

Yeah
That was pretty traumatic for you, wasn’t it ?

Yep
Pressure
Um, and getting through customs and everything like that
I felt like I was going to faint
Um, yeah, apart from that all good

Yeah ?

Yeah

And how’s it feel to be in Texas

It doesn’t feel any different at the moment

(laughing) (?) that’s a (?) Avis rent-a-car thing-a-ma-bob
——————————————————————
Day Two (5:37)
——————————————————————
(?) there you go
Right-o

Hello everyone

Hi

I’ve

Ok

I’ve got less hair than Pete

Are you looking in the camera or are you looking in here ?

I’m looking in here

Uh what are you looking there ?

(laughing)

Hello
Everyone
Today is going to be a very interesting day
We’re going to film, all that we can
We’re not going to meet Dr. Burzynski
We won’t be meeting him until the 19th, but we feel more than happy to be meeting his fellow doctors
What’d you reckon ?

You’re going to kill me in the car before you, we get there ?

Why

Because you’re trying to film and drive, and you don’t know where we’re going

Well spotted
Look
There it is
We’ve finally made it

So how’d you feel, that we’re finally here ?

Yeah
I feel good

Do you ?

Yeah

You ready ?

What are your expectations ?

I have no idea

Well, lets go and find out

Don’t have any expectations although I sure don’t want to be disappointed
——————————————————————
[Temperature]
(Close your lips please)
——————————————————————
[Eyesight]
(Ok
How about this one ?)

D

(Ok. We’ll have to go )

(laughing)

(I’m sorry)

Should I actually be able to ?

(#5)

Ok
P E C F D

(Ok. Good)
——————————————————————
So, was that bad ?

Uh, can’t see any of them

Oh, ok
——————————————————————
Meeting with Dr. Yi and Dr. Greg Burzynski (7:14)
——————————————————————
(?) we’ve reviewed your scans, your MRI, and we’re very aware of your case

Yes

We have permission to start you on the antineoplastons

Mhmm

which as you know are in the final stages of drug approval

Yeah

Dr. Yi is the oncologist on this case

Yeah

Likewise Dr. Rowkowski will be involved
Likewise I’ve an I’ll, I’ll be on the case

Ok. Great

And my father as you know is aware of what we’re doing here

Yeah

So as early as Wednesday we’ll be starting treatment

Mhmm

Tomorrow we can put in the catheter, and this is an external
——————————————————————
Day Three (7:44)
——————————————————————
What else is happening today ?
Look

Don’t want to think about it right now
Gonna have some sugar syrup put into me

(?) PET scan

Yeah
Which they inject sugar
I’d rather eat some

Yeah
Inject sugar and then you’re also having a, this Hickman line fitted

Yeah

Hopefully they’re gonna let me put on a white coat and come and be by your side

You can’t put on a white coat
You’re not a doctor

Well hopefully they’ll let me film

Well I don’t care about filming
I just care about you being there
——————————————————————
Hannah’s MRI scan review (8:15)
——————————————————————
So this is the one that was done in December, right ?

Yeah
This is the one that was done in December, and it has increased

‘Cause if I look at the, it’s more intense

Yeah

There’s more weight

Yeah

upon the image
Ok

Seen change in a month, right ?

Yeah
It’s in a month
That’s why

Less than a month

Yeah
That’s why kind of it’s a little scary
’cause it has
I mean it looks like it’s more prominent now

Yeah
——————————————————————
(8:46)
——————————————————————
after (?) this MRI scan, and you can see that the tumor is enhancing
She doesn’t know that
How will I tell her ?
Probably not, but she’s probably going to ask, and if the tumor grows like it’s, then you just saw in the scan, then how long does Hannah have left
——————————————————————
(9:06)
——————————————————————
Yeah
That would mean very

That’s pretty good
Ok
That’s good
That’s good enough
So any memory problems ?
Any speaking proc, speaking problems

No
No, not really

Ok

Spelling
Spelling, yes

Ever since surgery

So, what kind of problem ?
Like when you spell you miss letters ?

Yeah
Her spelling

Why, yeah
It’s just I’m jumbled

Ok

Yeah
——————————————————————
(9:28)
——————————————————————
Right
So uh were just getting ready now for Hannah to go in and have her PET scan and uh catheter Hickman line fitted and she’s just filling in the form
I’m not even going to ask her how she’s feeling or anything like that ’cause she’s feeling a little emotional
——————————————————————
(9:48)
——————————————————————
(?)

(laughing) You’ve just taken some , some Valium as well, have you ?

Not helping

This is like your biggest con, fear, isn’t it ?
I just show everyone what you’ve just done to my hand as well
——————————————————————
(10:04)
——————————————————————
What I’m doing is I’m creating a little tunnel under the skin
So I have to use just a little bit of pressure
So if I hurt you, you tell me
Ok ?

How are you feeling ?

Shhh

(laugh)
Well, you’ve done so well darling

I’m feeling really cold

Hungry ?

Yep

Alright
——————————————————————
(10:30)
——————————————————————
You look like you’re some sort of Holy Woman
People are going to come in here and bow to you
Did, did, did you feel that when it was going in and stuff ?

Not really

Little bit
It’s a little bit painful now ?

Yeah
It’s quite really painful now
Yeah

Well, it’s a massive tic, of something we have to get done

Yeah, I know
——————————————————————
Day Four (10:52)
——————————————————————
I’m feeling wrecked, absolutely wrecked

(laugh)
Well you had, bit of Valium yesterday

Yeah

And you had as much um local anesthetic

Yep

as he could give you he said, without knocking you out,

Yeah

but you were very, very brave yesterday, do you not think ?

I don’t think so

Why not ?

I wasn’t brave about the (canada ?) they put in here
——————————————————————
(11:23)
——————————————————————
Yes

What’d you think of
What, now what did you think of Judith Curran ?
Talk to

Oh, she’s great

( Skype on at the same time)

She’s like a mother

Yeah

Yeah
Is she ?

Yeah

(Yeah that’s fine. Whatever)

Yeah, she really does love you

( I’ve got something)

More than most

(?) all mom’s girlfriends

Mum uh Hannah just, I said, I just asked what she thought of you and she said she thought you’re like a mother

(Pete’s Mum)

Ohhh

I really do need you here

Oh dear
Well you have to have a partner mother at the moment

Yeah

But you need cuddles you mean ?

Yeah

Ohhh lots of cuddles
Oh no, no, no don’t

I asked
I’ll go

I need something dressed there

She needs help getting dressed
——————————————————————
(12:16)
——————————————————————
It’s, it’s, you know, it’s basically it’s uh, it’s a little roadway right into your bloodstream, so yeah, it has to stay very clean, and our thing is that we have to teach you

Yeah

how to do this

Yeah
——————————————————————
(12:32)
——————————————————————
You get 6 doses of antineoplaston a day,

Mhmm

they’re 4 hours apart
So, yeah, it’s almost 24 hours continuously

Mhmm
——————————————————————
(12:41)
——————————————————————
These are your bags

Ok. Thank you

and I’m going to wait until Dr. Barbera comes and talks to you about the pain medicine

Yeah

Then we will go ahead and hook up

Yes

because she did get the chest x-ray and everything’s a go
——————————————————————
(12:51)
——————————————————————
And everything goes in with a push and a twist

Ok
Quite simple

Alright

Yep

So obviously we’re gonna, when the fluid, we need to open up the clamp

Mhmm

And I always double, triple-check, make sure all the clamps are open

Yep
——————————————————————
(13:10)
——————————————————————
I’ve been on the treatment, I don’t know
It, it’s about
I don’t know
Half day ?

How are you feeling ?

It doesn’t hurt

Yeah
And this is what you’ve got to carry around with you

Yep

Now it’s like

It’s (?) my new bike

a baby
Something you have to have with you all of the time, and me with you all of the time

Oh (laugh) Oh god
I can cope with that

Ever since this all happened it seems like it’s just been one thing after another

Yeah

of obstacles

Yep

But we’ve got this far
Who woulda believed that we’d raise the money to get out here

Mhmm

which we have done, and now we’ve started on the treatment and I am pretty impressed with them there I must admit

Yeah
They’re really nice
——————————————————————
Day Five (13:52)
——————————————————————
Yeah
This is day, it’s day 4 yeah ?
Day 2 on the job
Day 5
Day 2 on the treatment
Mmmm I need a bit of a shave
um and um yep

You need a bit of a shave
So do I

Yeah, yeah, yeah, yeah, yeah
——————————————————————
(14:08)
——————————————————————
Hi
So, can I get ya

You need a pen ?

Uh, yes please
So pull this back ?

Pull it back to undo the lock
Ok, pump is off, so your next step is to disconnect it
So push in and twist, clockwise
——————————————————————
(14:26)
——————————————————————
How’s your new friend ?

Yeah, she’s good

Yeah ?

Mmm

What have we done today ?

We’ve learnt more lessons

I’ve learnt more lessons about changing the, changing the pump
How did I do ?

Honey you did well

You think so ?

considering

Considering what ? (laughing) How challenged I am

No, considering how hard it actually is
That you did well
——————————————————————
Day Ten (14:54) Meeting with Dr. Yi and Dr. Stanislaw Burzynski and
——————————————————————
Yeah, I think so far where we are we have been very impressed with all we’ve seen

Thank you very much
It looks like (?) we should not (?)

a pretty traumatic day because uh we met with Dr. Burzynskibut he didn’t give us the sort of news that we wanted uh because he’s concerned that the treatment may be enhancing uh and he wants us to stay here until at least um Hannah’s had one month on the treatment and to do MRI and see what’s going on
We can stay here
That’s the most important thing
Just imagine if we had to go home
You know ?
I know you’re tired of all this, you know, and its hard work, and it’s, you know ?
——————————————————————
Day Twelve (15:46)
——————————————————————
So the last time we kind of filmed was when we were with Dr. Burzynski and him saying do we want to stay and that

Yep

And how, how do you feel about that now ?

Yeah, i’ve got my head ’round it

Do you have faith in him and ?

Yeah, again I know that I’m in the best hands
——————————————————————
Pete’s colleague Dr. Hilary Jones appears on ‘Daybreak’ morning TV show in the UK (16:04)
——————————————————————
Are there question marks for you with regards to going over there to this particular clinic ?

I think what we have to bare in mind is that uh the treatment that, that Dr. Burzynski is offering is, is very uh experimental
It’s pioneering research, and pioneers in medicine tend to get a rough ride to begin with, and uh he hasn’t uh uh published the numbers of people in trials that convince the established authorities that his treatment uh works
It’s very interesting treatment
We’ve known about these peptides which can switch uh tumor genes on or off, and this is a different approach to these kind of tumors, that’s uh over and above oncology, chemotherapy, radiotherapy
Um, his results um, if you look at them um, sometimes appear extraordinary in some cases um but of course not in all cases
So it’s very difficult to evaluate, how effective it is
I I researched it pretty carefully myself because I have a friend there at the moment with his partner and the reports I’m getting back are they’re getting excellent treatment, excellent support, very impressed
This is somebody who, who knows a lot about medicine
Very impressed with what’s going on there
Um, we need to keep an open mind

Yes

Um it’s unfortunate it costs so much money but pioneering treatment does, and I really hope, that if you go that route that it works out for you
I really hope

Thank you

Indeed
——————————————————————
(17:20)
——————————————————————
So, that was uh, I didn’t know uh he was doing that, and actually the weird thing was that the day before I had actually contacted him just to say that we were doing really well

Yeah

But poor old Hilary was so caught up in that yesterday
On Twitter, I mean it was just nonstop
People just saying
Burzynski’s a fraud”
Um, but we certainly don’t feel that he’s a fraud, do we ?

No

No
I get the impression that he’s 100% genuine
——————————————————————
12/25/2011 – Christmas Day (17:50)
——————————————————————
Hello there

Hi. How are you today ?

We’re doing ok

Documenting that ?

Um yeah I’m documenting

(laughing)

everything

That’s against the rules

Really ? Oh dear

(? again)

Collecting evidence ?

Yeah, I am

We’re gonna sue
We’re gonna, we’re gonna sue a few people

(laughing)

That’s what you love to do in America, right ?
——————————————————————
(18:10)
——————————————————————
So same symptoms ?

Yeah

The flu symptoms

Mhmm

Yeah. Ok. How’s your breathing ?

The same

That was, really bad yesterday, wasn’t it ?

Yeah

Ok. Um, any headache ?

Yep

Ok. And you said you had, are they tremors or are they like shakes, like chills ?

Yeah, chills

Chills, ok

But, you know, like I couldn’t stop

Ok.

myself

It was just

Yeah

Ok. So it was un, uncontrollable ?

Yeah

Ok
——————————————————————
(18:41)
——————————————————————
This is how we spent Christmas Day, in the Burzynski Clinic

With the lovely Monica

Of course

And

How (?) would you have it any other way

And the Christmas songs

Hey (mouthing words to song)
——————————————————————
(19:04)
——————————————————————
We went to the clinic this morning, and she was shivering all night, fever
So she’s off the antineoplastons for the day, and she’s just basically in bed now, just absolutely exhausted, and now she’s got a little bit of swelling on the back of her head, which obviously is a ca, cause for concern when you’ve got a uh, a brain tumor
——————————————————————
Day Eighteen (19:04)
——————————————————————
Hannah was back on treatment yesterday, and last night her temperature went up to 102
So I phoned uh the clinic, and they said take her off the medication, the anti, antineoplastons
So I took her off
Her temperature came down
Then it went up again, and then we went back to the hospital today, back to the clinic, and they’re giving her a much smaller dose um and she’s on much smaller dose and she’s just come back, and she’s just exhausted

And she, I can see she’s just so close to breaking, which is cracking completely
(Christmas tree)
——————————————————————
(20:07)
——————————————————————
um and I’m just, got to the point where I can’t, I’m just, don’t know what to do
——————————————————————
Day Twenty (20:22)
——————————————————————
Well the last week has been very up and down
Um I have come off the dose
Gone back on it
Come

Come off it

back on
Yeah, and then come back off it again um, for several reasons: Fever, um shaking, chills, fever, and bacterial infection, um viral infection, every infection, um and then ended up with me having to go to E.R., the Emergency Room

Well at that point I was really fearing the worst

Mhmm

Because you’d a scan when we got out of here, right ?

Mhmm

and the scan definitely showed some tumor growth

Mhmm

um and I was thinking, what 2 and 1/2 weeks later from that

Yeah

That we were going back in the hospital

Mhmm

Because the tumor had gotten bigger

Yep

What has this whole experience like for you at the moment

Oh it’s just surreal
I just, I can’t explain it
It’s just surreal, to me

What, like its not happening to you ?

Yeah

You did actually said to me yesterday in the hospital, you said:
“I’m at my wits end”
“I don’t feel I can take anymore”

Yep

And what about today ? (laugh)

Well, I reckon I’ve been, I’ve just realized I’ve got to get on with it again
——————————————————————
Day Twenty-Two (21:53)
——————————————————————
So it’s, January the 1st, 2012, and we haven’t really got the,
We haven’t got off to a great start, have we ?

No

Why ?

Because I’ve had a fever

Uh you, when did you start, feeling feverish ?
In the middle of the night ?

Yeah. Yeah

And your temperature went up to 102

Yeah

What Dr. Burzynski thinks you, why you’re having a fever
you’ve either still got some flu-like symptoms or it could be the, the tumor actually breaking down

Yeah

which hopefully, that’s what it is, right ?

Yeah
——————————————————————
(22:34)
——————————————————————
Yeah, feel drunky

You know you haven’t had a drink for a year so

I haven’t had a drink for a year

(laughing)

(But I think this)

Yeah

We’ve also got some problems with our pump this morning

(So what do you think ?)

Yeah, it’s not closing again

(And then you can also see the)

Uh, there it goes

(?)

But

It ain’t gonna stay that way

I don’t think it’s going to stay closed

Huh, what’d you think about that ?

(unintelligible)
(? get it fixed)

(and this looks like it’s ?)

(? fix ?)
Love you
——————————————————————
(23:09)
——————————————————————
The last time we saw you, you felt like you were completely drunk

Yeah

And you had double vision

Mhmm

So,then what, ended up, happening ?

Well, one of the nurses, kindly, pointed out
She said: “What have you taken ?”
That is where we recognized it was an anti-seizure drug, that I hadn’t taken before

And how do you feel now ?

I feel ok
I feel a but shaky

Yeah

I just have to (?) something to eat
Um, I’m just so tired
——————————————————————
(23:50)
——————————————————————
Hi, I’m Pete Cohen
Uh you might recognize me

Oh god

from morning television in the

Yeah

U.K.

Nobody recognizes you anymore
——————————————————————
(23:58)
——————————————————————
You should keep your fingers above the little

Ok

guard thing, yeah, and try to hold this

I’ve done it

as straight as you can

Ok. I’ve done it there Gary

and put some support

Yeah

on it

In there

and then you twist them down

Easier said than done (?)

I know

You can give it much more of a whack and you can u, use the other end as well

Ok

No, like this

(laughing)

Got no chance

Use the other end
(?) better

Ok. Thank you

(laughing)

You’re welcome

There you go
There you go (?)
There you go
——————————————————————
Day Thirty-Eight (24:33)
——————————————————————
I’ve never had to take care of anyone, the way I’m kind of having to take care of Hannah, and its just constant, and I get stressed around her, which isn’t fair, you know
She’s now got another temperature
She’s got a throat infection
Her temperatures up, uh and uh if it goes up over 102, it’s 101.8
If it goes up over 102 she’s got to come off of the treatment again um, oh, just, just feels like non-stop, you know
Cooking, and changing the bags
I’ve been into this, the clinic 3 times today
Taking her blood
Taking her back, get supplies
Take her back there
——————————————————————
(25:24)
——————————————————————
I’ve got a fever
It was over 102 last night

Yep. And

I’ve got antibiotics

Which you’ve been on for how many days ?

3 days

And we’re off the treatment
So, all in all
But you feel bad because you just want to be on the treatment, and just keep coming off
It’s just
How does that make you feel ?

Just, I don’t know, angry
Disappointed
Pointless

What you mean like
The while things pointless

Yeah

because you can’t stand

I just hope one day we can look back at this and laugh

Yeah

and just think: “We beat that”
because you couldn’t be doing anymore than what you’re doing
You know ?
You really couldn’t
Should really get a few of your friends to come over

Yeah

’cause you must be a bit bored of me

(laughing). No

C’mon, I’ve been really annoying
How grumpy was I yesterday ?

(laughing)

on a scale of 1 to 10 ?

(laughing)

I don’t know

C’mon

6

Really ?

Yeah
——————————————————————
Day Forty-Two (26:54)
——————————————————————
It’s 6 o’clock in the morning, and Hannah is lying here
Her temperature went up to the highest I’ve ever seen a temperature, on the thermometer
Where is the thermometer ?
Up to 104
I’m gonna just, I’m just trying to cool her down
I just phoned the doctor on-call and she said take some ibuprofen which Hannah has, and the result is ?
It’s come down a bit
Where is it ?
There it is
102.5
Well you’d think it’d come down
My god you’re so hot
I can’t believe how hot that is, thats got
Unbelievable
——————————————————————
(27:50)
——————————————————————
Hannah
Show me what’s going on
This all came up
When did you notice this ?

Yesterday afternoon, but its got worse since then

Yeah, lift up a bit higher if you can
Just zoom in on that
Yep
So it’s just one thing after another at the moment, isn’t it ?
Aye ?

Yes

Open your hands a little bit

Yeah (?)

And obviously we’re off, treatment at the moment

Mhmm

And we’re just waiting for who ?

Dr. Popper

What do you think he’s going to have to say ?

Mmm I don’t know

Ok

Ok, bye
——————————————————————
Day Forty-Four (28:35)
——————————————————————
Who um gave it a name ?

I sent a picture of it to Dr. B and he came back and said I think that’s what it is, and I looked into it and could see that that’s exactly what it is

Well does it bother you or does it just ?

No, it does

Like

Yeah

And itch ?

In some cases

Oh I’m sorry

Especially under the dressing

(?) Hannah had a fever
104 on Friday night

104 ?

103.9 I should, if I’m being absolutely, precise
So I think it’s brought this out

I think you can, you can say 104
——————————————————————
(28:50)
——————————————————————
So, we’re now going to have the MRI that we were going to have on Wednesday
We’re going to have it today

Mhmm

so we can see what is going on

Mhmm
——————————————————————
(29:17)
——————————————————————
(?)

Why are you filming me ?

Why not ?

Please stop filming me now (laughing)

That didn’t work
I’m still filming you

(laughing)
——————————————————————
1/23/2012 MRI (29:29)
——————————————————————
This is one that was just done today ?

2012 Jan 23
Acq Tim: 12:13:09
955000
320 x 230

Today

2011 Dec 29
Acq Tim: 14:50:12
497500
256 x 192

Today
So the difference is that you can see there
How would you describe the differences between
and what you see here ?

Well 1st of all the size of the tumor is less, and um, if you see the actual, the solid enhancing part of the tumor
This is how it looks now

So from that you can see that it’s definitely, something definitely is going on
It’s changing

Yes

There’s no question about that

The size is less
The intensity of the enhancement is less

So wha, whe, whe, when you see something like this, wha, what does that show you ?

Well, certainly the, we see that the tumor’s most likely working, as the tumor is showing less enhancement, meaning less activity

Yeah

And the tumor’s by effect smaller

Yeah

So, ideally the next scan should be better
So we, we’re definitely going in the right direction

That’s, great

That’s for sure, and it’s brilliant that uh we’re going home on, on

On a high note

On a high note
Especially after our trials and tribulations
So

Certainly
——————————————————————
(30:47)
——————————————————————
Hannah’s tumor has started to shrink, and she doesn’t know
She doesn’t know that
So I’m going to go in the house
I think she’s still asleep, and give her the good news

(?)

Hannah

Can we go home ?
Can we go home ?

Guess what ?

We can go home ?

Yeah

Yea !

And guess what ?

Guess what

Your tumor started shrinking

Yea !

It shrunk by at least 10%

Let me just give you a kiss

Thank you

It’s ok
It’s ok
——————————————————————
(31:30)
——————————————————————
Hi Daddy

Hello, how are you ?

Yeah, I’m sorry for ringing so late

That’s alright

Um but I’m ringing with really, really good news

Good, that’s what I wanna hear

Go on you tell

No, you tell him

I don’t think I can

(Go on ?)

(? tell me ?)

Um

C’mon

my tumor

Yeah

has already shrunk by 10%

You’re f’n ‘ell man

F’

(?)

That is absolute, amazing

And considering I haven’t been on the treatment for

You’ve been on the dose, off the dose, and on it
F’n ‘ell
What
When you get started on the
F’n ‘ell man

(laughing)

I’m glad you phoned me

Yeah, you’re the 1st person I called, obviously
——————————————————————
(32:22)
——————————————————————
So what can you believe we’ve now been here for one month

Yes

And we’re going now
What are we going in to have done ?

Hopefully, be discharged

And are you pleased with the progress you’ve made ?

Yeah

It’s been up and down

Yeah it’s been up and down

(Trip, trip ?)

You look like a Hollywood star

(laughing)
Not many Hollywood stars have a backpack like this though

Yeah but it was also a week ago
I don’t know how long ago that was where you couldn’t even

What ?

What ?
In you go

In I go

Hi

We can’t stay away

(laugh)

We’re getting discharged now

Oh really ?

I think so

Well that’s wonderful

Yeah

Well yeah, oh we, we don’t wanna go
Right turn mate
Which floor ?
2nd floor

Oh, you’re still filming

Yeah, I just, you know, I mean, you know, why not ?
I haven’t filmed all of this
We’re going up

This was great when I was feeling really sick, ’cause it

Seems like we’ve spent a lifetime together, we used to go to the 4th floor

(laugh)

(Ok)

Hi

Ohhh

Hello

Hello

Hi

Hi

Hi everyone

Hello

Hello

Um Hannah and I are leaving on Friday
What’s going to be your overriding memory of us ?

No

What are we gonna do ?

Hey

Are you going to miss us ?

What are we gonna do ?

Of course

Peace and love

(Remind me, is Hannah ?)

Why don’t you stay

(?) who’s your favorite, because you remember we said we were gonna say

(laughing)

‘Cause, ’cause we can o, we can only take one of ’em home, and who’s it gonna be ?

(? the rash (?) dude)

(laughing)

Well you can only take one attribute from each person, what would it be ?

I’m going to take Ashley home

(laughing)

Really ? Why ?

Yes, I like that

Because she’s, because she has the same condition ?

Yep

(laughing)

Because she can look after

Very good

(laughing)

So Rick you were told I was a big shot

Yes, going to film everything so

(Who knows ?)

you have to watch out

So, c’mon, what, what point in your head did you think: “My god this guy’s an absolute idiot”

(laughing)
——————————————————————
Day Forty-Seven (34:55)
——————————————————————
This, this December 29
This is January 27
Here we have the tumor, visible previously
And we have now
Certainly, outside diameters have decreased

Mhmm

So to some extent, but also the, the intensity of the enhancement, has decreased

Mhmm

As you can see this was much brighter before, now is less
Which means that the tumor is decreasing and it’s uh losing its activity at the same time

Mhmm

Which is a good news

But, again, we are not at the remission
This is called Stable Disease
Stabilization

Mhmm

Probably next time we see this is shrinking more and this wide band is getting thinner, and thinner, and finally

Mhmm

it should disappear
So that’s what you should be looking for

Ok
——————————————————————
(35:43)
——————————————————————
There’s some hair on the camera

Well it’s not mine

It’s definitely not mine

Hmmm

Um

No
I’m gonna start

Ok

(laughing)

Go on then

Ok
So it’s June 2012, and we have been back for approximately 6 months from the, America, and generally it’s all going well

I’ve had about 3 scans since I have been back, and they’ve all looked fairly positive

I think they’ve looked more than positive but yeah, go on
Carry on

(laughing)

Um, yeah, so the tumor, well the enhancing part of the tumor is getting smaller

Basically there’s such a small little part left that I’m sure when you watch this you’ll be able to see some images so people can see your scans

December 7th 2011 scan

Yeah, mhmm

March 21st 2012 scan

and we know that if Hannah hadn’t had this treatment, with the type of tumor that she had

May 2nd 2012 scan

she might already be dead, or she probably wouldn’t be here

June 13th 2011 scan

Yeah

much longer

July 29 2012 scan

She is very much alive at this point in time

Yeah

And what’d you think about all this controversy, because the controversy around what we’re doing, and it’s just, just
I can’t believe it personally
I find it very, very hard the, the hatred and the skepticism, of, um, what Hannah’s doing
What, what, what’s that like for you ?

Well, as I, as I’ve always said along the way, you know, any of the skeptics, what would they do, if they were in my position ?
Would they want to die in 3 to 5 years or ?

Probably less than that

Uh (both)

And that’s a horrible thought

Um

Yeah, uh everyone has a, has a right to be sceptic and everyone has a right to their own opinion

Yeah, they do

Um, and, but the funny thing about people’s opinions is, opinions are often based on, what they’ve heard

Yeah

or what someone hasn’t done, whereas uh, we spent 7 weeks at the Burzynski Clinic uh

And we saw everything

We saw everything
We spent time with this man um, and I tell you from my, from, from, I think from both, I can maybe speak for you hey ?, but uh

(laughing)

he’s one of the most honest, kindest people

Yeah, he is

‘Cause I, I said to you, the other day, about making this film, and you said: “Even if I was going to die tomorrow, I would still want this to be made”

Yeah

You remember saying that ?

Yeah

What, what, why did you say that ?
Why ?

Because, it might give other people a shake up

Mhmm

Yeah

Yeah, because uh, yeah
Why did we make this ?
Well I made this because I thought it was a journey that was well worth documenting

(?)

and maybe could help other people, and maybe help people realize there are other options, apart from the conventional treatment for cancer, and to inspire people
I hope you’re inspired by Hannah’s story because she’s an amazing, she’s a, honestly she’s annoying sometimes

(laugh)

but not very often

So are you. Yep

She has such a desire to live, uh and to enjoy her life, and I think
I don’t know, if there’s anything else that we

Ok, that’s enough for now

Hannah’s most recent scan confirmed she has now had a complete response to the treatment
——————————————————————
(39:35)
——————————————————————
Special thanks to

Bacon, Lesley
Bradley, Jeremy and Irene
Cank, Elizabeth
Cohen, Judith and David
Gooden, Lindley
Jones, Dr. Hilary
Levitt, Chris and Gina
Martinez, Dr. Juan
Merola, Eric
Newman, Ofir
Norouzi, Minou
Ramsey, Anna
Rowkowski, Dr. Bob
White, Gemma

Hannah Bradley’s GP
The Eagle radio station
——————————————————————
(39:40)
——————————————————————
Dr. Stanislaw Burzynski
and all the staff at the Burzynski Clinic
——————————————————————
(39:48)
——————————————————————
camera
Pete Cohen

additional camera
Lindley Gooden

editor
Jamie Lowe
——————————————————————
(39:54)
——————————————————————
A film by
Jamie Lowe & Pete Cohen
——————————————————————
(40:00)
——————————————————————
This film is dedicated to all the people who donated their time and energy to raise funds to save Hannah’s life
——————————————————————
(40:08)
——————————————————————
To follow the progress of Hannah’s recovery and find out more about the treatment she received please visit:
http://www.teamhannah.com/blog


======================================
Extra clips from Hannah and Pete’s trip to Texas
======================================
Pete Cohen chats with Dr. Stanislaw Burzynski:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/
======================================
======================================
REFERENCES:
======================================
[1] – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies
——————————————————————
http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html
======================================
[2] –

——————————————————————
http://www.teamhannah.com/the-film/
======================================
[3] – Team Hannah: Hannah’s Annectdote:
——————————————————————
http://www.teamhannah.com/
======================================
[4] –

——————————————————————
http://www.teamhannah.com/blog/page/5/
======================================
[5] –

——————————————————————

======================================
[6] –

——————————————————————
http://www.teamhannah.com/blog/page/4/
======================================
[7] –

——————————————————————

======================================
[8] –

——————————————————————
http://www.teamhannah.com/blog/page/3/
======================================
[9] –

——————————————————————
http://www.teamhannah.com/blog/page/2/
======================================
[10] –

——————————————————————
http://www.teamhannah.com/blog/
======================================
[11] –

——————————————————————
http://m.huffpost.com/uk/entry/3012836
======================================
[12] – Last Updated (Friday, 10/5/2012 03:32)

——————————————————————
http://www.964eagle.co.uk/hopeforhannah/
======================================
[13] –

——————————————————————
http://scienceblogs.com/insolence/2013/10/22/four-misleading-cancer-testimonials-and-reverse-balance/
======================================
[14] –

——————————————————————

======================================
[15] – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
——————————————————————
http://m.gulfnews.com/i-ll-try-anything-to-beat-brain-cancer-1.981203
======================================
Team Hannah Blog (2:46)
4/1/2013 – Posted by Hannah
======================================
(laughing) Don’t
‘Cause you’ll put this bit in
Promise ?

Yeah

Ok

(laugh) Ok, so, it’s April the 1st and it’s 2 years on since I had my operation and but ? obviously is out

So, I just wanted to (laugh)

Start again
Start again
Start again
Start again

Ok
Ok

I don’t believe you

I have
Start today again

(laugh) I don’t believe you
It didn’t go “beep beep”

Because it’s on silent

(laugh) Do you think that I’m an idiot ?

No

(laugh)

Ok
3 2 1 go

Hi there um it’s (laugh) the, the 1st of April and it’s 2 years on since I had my operation and I’m pleased to tell you that I’m obviously still here, and um that’s thanks to you guys and thanks to me I suppose from, for fighting so hard for my life

And what, and what have you been up to then ?

I have been up to um just resting a lot and uh making up new recipes uh

Your next book

Yeah, for my next book and
Yeah, that’s pretty much it

And when are you thinking you might be able to come off the treatment ?

June
End of May
June

I have a scan in a couple of weeks and we’ll update you after that

And what will that be like, coming off the treatment ?

Oh, it’ll be amazing
Yeah, amazing

So you won’t be walking around with

No

this fellow here ?

No

Ok
Is there anything else you’d like to say ?

Um, just love to you all

Oh
The wave
——————————————————————
Team Hannah Blog (3:34)
3/2/2013 – Posted by Hannah
======================================
Hi
This is the Team Hannah blog and it is the 3rd of March and Peter is actually filming me today

He’s not there, where he normally is

Yeah
Exactly
So I’m on my own
Flying solo

Um I’d just like to say how well I’m doing and my last
Ohhh went a bit northern then
My last scan um was mid-February and it showed no enhancing tumor

So that’s really good

Um I’ve just got um a really cystic area in my head

So it looks like they’ve predicted June me me to be off the treatment
So, fingers crossed for June

What will that be like to, to come off the treatment ?

Um, yeah, it will be
The treatment is so uh, restricting I would say
Yeah, it would be good to come off

And what else have you been up to ?

I have been (holding up Team Hannah Cookbook) selling lots of copies,

Yeah

and, and,

the other book a little bit
I know that you mentioned in the last blog, but just
What, what’s the book about ?

Well it’s low-carb recipes and I’ve
Been on the radio
I did a radio
promoting it and um it’s great for anyone who wants to cut out sugar
to lose weight and decrease their, and what, decrease their

Risk

Yeah, risk of getting disease

Yeah, ’cause we saw a doctor in America, Dr. Rowkowski
and he, and one of the things he said to you was you really need to cut sugar out of your diet
to
sugar is what he said

Yeah

Um, and you’ve been getting a lot of people that
trying your recipes and taking photos

Yeah
picking up
on Facebook on Pete’s favorite page
to cook something from the book

put them up on the
page as well

And um where can people find out about your book

Um just slide over to, to Hannah Cookbook and you will find it there

And your blog as well, yeah ?

Yeah

So, I think we’re done

I just want to say there’s an airplane going overhead
Thank you to everyone whose supported us
it seems a lot of, a lot of film

And why are you laughing

Pajamas

pajamas

I didn’t quite
yep

What are those

(laughing)

This bench has seen a lot of action

Yeah, it has
Video action, that is

(laughing)

And we’re very thankful to everyone

Yeah
Thank you, yeah, again

Yeah

We try and do one after next scan

Big wave, please

Bye bye

Bye
======================================
Sapphire Sings For Team Hannah
1/3/2012 – Posted (3:00)

======================================
(Last) Christmas, I gave you my heart
The very next day, you gave it away
This year, to save me from tears
I’ll give it to someone special
Once bitten, and twice shy
I keep my distance, but you catch my eye
Tell me baby, do you recognize me ?
Well, it’s been a year, it does not surprise me
Happy Christmas, I wrapped it up and sent it
With a note saying, “I love you”, I meant it
Now I know, what a fool I’ve been
But if you kiss me now, I know you’d fool me again
Last Christmas, I gave you my heart
The very next day, you

——————————————————————
(1:04)
——————————————————————
Ok
Sapphire, all I have to say is
“Thank you, thank you, thank you
You have compiled a CD, um, in aid of Help for Hannah, and you have had quite a lot of sales so far, and you have got a beautiful voice, and I’m sure you’ll go very, very, very far, but “Thank you”, and this is just a little “Thank you” for you, but obviously other people are going to hear it
Thank you
Love you
Bye

Did you
Sorry
Did she also, sing this yesterday, uh, somewhere?

Yeah, she sung it at Aldershot uh Football Club

Again, so Aldershot was playing football against another team

Plymouth, yeah

Plymouth
And she sang it for everyone ?

Yeah

And they raised some money for you ?

Yep

Yes, so this has been a big “Thank you” from both of us (laughing)
Let’s, let’s play out a bit more of that song

Ok
‘Cause we love this song
It’s off

Uh yep, it’s my favorite Christmas song
It’s the only Christmas song
(gave it away)
we can hear when it’s not Christmas
This year, to save me from tears
I’ll give it to someone special
A crowded room, friends with tired eyes
I’m hiding from you, and your soul of ice
My god I thought you were someone to rely on
Me ? I guess I was a shoulder to cry on
A face on a lover with a fire in his heart
A man undercover but you tore me apart
Now I’ve found a real

Thank you so much
——————————————————————
An Update For You

10/21/2011 – Posted

A Message From Pete About Team Hannah (3:07)

A MESSAGE FROM PETE

Hi it’s Pete Cohen and I just wanted to share something with you

Uh in February this year my girlfriend was diagnosed with a, with a brain tumor and when this happened it really obviously rocked our world

You know, everything seemed to be ok

Everything was great in life

And then something happened, and everything changed

And I don’t know whether anything like that has ever happened to you

But these things happen don’t they

And when they happen they really test you

They really challenge you

They, it’s very easy

It made me question lots of things

It made me think to myself, well, you know, what, is life, really fair ?

You know, should this happen to such a young person ?

These things do happen

And it really puts us in a position where it questions what we have

What we have to deal with such difficult circumstances

And I’ve definitely found things in myself that I didn’t know wa was there, you know, resolve, compassion, determination just to, to keep going

And this is the thing human beings we all have this kind of, we all have something else don’t we

All, we all have something more than our stress, and our worry, and our anxiety

We have a our true nature I think can overcome so much, of what life throws at us

You know, obviously we can’t overcome, everything

But what I really wanted to share with you is something that I’ve been so taken aback with, and that’s the beautiful nature of human beings, because we’re trying to take my girlfriend over to America to be treated over there, and we’re having to raise a considerable sum of money, and we’ve actually had to ask people, for help

Now that’s something that’s a bit alien to me, is to ask people and say, you know, can you help me, can you help us

Maybe that’s an insecurity that I have

Bur we’ve asked for help and it’s been amazing to see people all over the world spread the world, donate some money

And I’ve been so touched by that

It’s so life affirming

It so, it gives us such great strength

Any my girlfriend and I have been
so touched by that

So what’s my point here ?

Recognize how important it is for all of us to support each other

Recognize how important it is to affirm each other

You know, that’s one of the most important human needs we all have;
affirmation, it’s the fact that, to take the time to recognize each other

Hello

How are you

I care for you

So, thank you so much for watching this, and if you want to help us out please just uh visit the web-site we’ve put together for Hannah

It’s just called Team Hannah . com, and on there you can see a little more about Hannah and what’s happened to her, and the treatment we’re looking for her to have, in America

So, I hope you all have a great day and please, take the time to be there for other people, to care for other people, because that’s what makes this world great

Thanks for watching

Bye, bye
======================================
v=p5tAeYsNOZQ?rel=0
======================================
——————————————————————
Hannah’s message [3]
——————————————————————
(3:02)
——————————————————————
Ok
So what’s your name ?

I’m Hannah Bradley, and I’m 27 years old, and I come from North Hampton

And what happened to you ?

I had a seizure in middle of the night and my partner tells me I was rushed to hospital

That was in February 2011

And from there I had lots and lots of tests, and they decided that I had a brain tumor, and they were going to operate, and they successfully operated on the 1st of April, 2011, and they, the biopsy went off to be um checked

I found out that I had a grade 3 tumor

I then, under, underwent a, I had a 6 week course of radiotherapy, and that left me with no hair, and can’t remember what else (laugh)
And um that I went under another MRI scan 6 weeks after radiotherapy and we, that again wasn’t particularly good news, and we found out that there was still remnants of the tumor, and the future for me is very uncertain

So what, what are you looking for ?
What are you looking to do ?

Um, I, sorry

What do you want Hannah ?
What is it you’re looking for ?

Um, mainly I, um, I can’t

You just want to live, right ?

Yeah

So what are you asking for ?
What, what, what do you need ?

I um, I need people to raise money, for, uh, my treatment
I’m looking to going to America because there are things that they can offer me here on the NHS or locally (?) is very, very limited, and there’s a doctor in Houston, and he’s able to help

So you want some help in raising some money, yeah ?

Yeah, it’s completely out of our reach to raise that much money, and it’s, I’d like help to raise the money
——————————————————————
9/17/2012
Monday, 17 September 2012 07:23 | Written by Administrator

Hannah Bradley

Hannah’s amazing story, fighting and winning over her Brain tumor (Anaplastic Astrocytoma) is available on her support site

Team Hannah

There are more videos by Pete and Hannah, documenting her fight and the Burzynski Clinic
======================================

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DJT’s Comments – September 28, 2013 “The Skeptics™” Burzynski discussion: By Bob Blaskiewicz – 2:19:51

Yes
Okay
Well as I put in my about page, I agreed with the juror that he was neither guilty or innocent
So, so since I see all this opposition by these Skeptics, and I see that the they’re getting all of their facts straight
I decided to take the position of being a Skeptic Skeptic
In other words I am skeptical of Skeptics who do not fact-check their information before they post it on social media
And since I see ahhh y’all pretty much trying to take over the net with y’all’s information I decided to come back and correct all the false information that was being put out by other Skeptics
Well the major issue is that the FDA’s own information says if phase 3 trials are approved – phase 2 trials is to see if there’s evidence of effectiveness
And so if phase 3 trials are approved, that means you’ve provided evidence of effectiveness
That’s the FDA’s own information – I have that clearly on my blog
Also the FDA has given Burzynski uhhh Orphan Drug Designation in 2004 for uhhh brainstem glioma and then in 2009 for all gliomas
So that must mean that there is evidence of effectiveness, otherwise I don’t think they would be doing that
Well the issue is he was given 2 phase 3 trials that we know of
One was on uh Clinical Trials . gov – the one about eye cancer
The vision cancer
And then the other one was not posted on there, but then again the FDA has said, and I posted this on my blog because I specifically contacted and asked them and they said we don’t post all clinical trials on our web-site
And so he obviously had that other one about brainstem glioma, that he was trying to get started
But the other issue is that Skeptics have posted on there that he could not get that accelerated approval until he had published a phase 2 trial and that is exactly not the case because other drugs have been given accelerated approval before their results were published in phase 2 clinical trial publications, cuz, so that question remains as well
Well, what we do know is that in the movie, Merola showed that one page rejection from The Lancet
where Burzynski was trying to show his results from like 8 to 16 years, and they said we think your uh publication would be seen best elsewhere, or some ridiculous statement like that
And so, I thought that funny of The Lancet
Of course, I understand their 2nd response, which came out, which Eric posted on his Facebook page, y’all, that y’all have talked about – that, you know, they’re busy, they get a lot of
submissions
I understand that, so obviously he would have to look for a different publication for both of those, things he’s trying to get published
Well a lot of the time I’m making fun of y’all’s favorite oncologist, the way he words his blogs, and uhmmm I cite specifically from the FDA, from from the National Cancer Institute, from these other scientific sources, from scientific publications
I give people specific information so they can fact-check me, unlike a lot of The Skeptics who just go out there and say things and publish things on social media, they provide no back-up for their uhhh sayings
And so when I critique an oncologist or any other Skeptic I always provide source material so people can always fact-check me and I specifically said that people should fact-check everything ummm that the oncologist should say because he has, I’ve proven him to be frequently incorrect about his information and misleading
And so I’ve tried to add those things and allow people to search, on specific things like publications, or what I posted about The Lancet, or specifically about The Skeptics, or specifically about the oncologist
So whenever I see something posted new on Twitter, by y’all, sometimes I’ll check it out and sometimes I won’t, and sometimes I’ll comment on it
I was, on there just yesterday to see some more of your post on there
Well the thing is, when you accepted this hangout, I published my newest blog article and I specifically listed all the information I had critiqued from you previously including Amelia, and I posted the specific Twitter responses by BurzynskiMovie; which is probably Eric, to your issues with Amelia, and he disagrees with what the oncologist posted, and so I pretty much let his Twitter responses stand to what the oncologist said
Well I also did a critique of the newspaper story that was put out about Amelia in the U.K.
And they had 2, 2 patients that were dealt with
And
I believe, yes
And one of the patients, Burzynski has specifically published in one of his scientific publications that maximum dosage is not reached for a month
So if someone, so if someone only goes in there and has treatment for a month, they’re not even, you know, they’re finally going to reach the uh maximum dosage
And I think that was maybe the case with Luna, I think she was only there for a month
Well my only thing is, uh, we know that sometimes he will go to a maximum dosage, or you know, the suggested dosage, but he will back down off it, in fact in the uh adverse effects you mentioned those are specifically adverse effects mentioned in his publications, and when that happens normally they will subside within 24 to 48 hours is what it says once you take them off the treatment and let, you know, those conditions take care of themselves, and then you will slowly raise the medication again
So, you know, it just didn’t tell, if only one month of treatment was enough to even start to do anything for her
Well the thing is, the FDA has approved phase 3, and also given them the Orphan Drug Designation, which means they should have some knowledge about what’s going on, I would think
Plus we don’t know for sure, we’ve heard about, ummm, some of the things supposedly the oncologist has talked about, which is cutting off the blood flow, to the tumor, which is something that some uhhh drugs can do, and I think that’s one of the things Burzynski has tried to do, ah he’s specifically mentioned it in his personalized treatment
But I don’t know for sure if it’s also something that’s done with the ANP’s in just the clinical trials environment
So, that could be a possibility
Well
Well what I find interesting about these other doctors is like like the doctors mentioned in the movie and BBC Panorama’s report and in some of these newspaper articles where they are mentioned again is that these doctors never do a review of Burzynski’s scientific publications and including our favorite oncologist who refuses to do so
Uhhh
Oh yeah he says he’s read everything but uh you know he claims that he’s uhmmm reviewed, reviewed uh Burzynski’s personalized gene targeted therapy but he, but then just a few months ago he admitted, you know, I don’t know where Burzynski says which genes are targeted by antineoplastons
And I pointed out which specific publications that Burzynski published, publications which specifically mention which genes are targeted by antineoplastons, and I said how can you claim that you’ve read and reviewed every Burzynski publication and you didn’t know which genes are targeted by antineoplastons when that’s specifically in the publications ?
To me that tells me that you do not know how antineoplastons work be because you just admitted you don’t know which genes Burzynski talks about
I mean that’s just funny as heck to me that he would say that
Well I’ve, I’ve got it on my blog
Uhm
I mean I can forward it to you at some point
But I agree with you about I don’t remember seeing anything about antineoplastons cutting off the blood flow to the, you know the blood brain barrier for sure either
Well I think I know the point that you’re getting at uhhh about the IRB’s and all that good stuff
All I can say is that, you know the FDA can come in with any amount of investigators and say that you did this or that but you have the opportunity to respond, and so they can pretty much say anything, it’s only when the final report comes out that you can take that to the bank
And so all this speculation about what a investigative team may say about the clinic is, to me just like someone going into a lawsuit and saying so-and-so did this, you know, can you prove that, you know, did so-and-so do that
So it’s the same thing with the FDA, these um little reports, the final report is what counts, and so, also what I find interesting is some of Burzynski’s publications specifically said, you know this particular uh clinical trial, the IRB was agreed upon by the FDA
Well if if the FDA agreed upon it, you know, then some questions should arise about exactly what did the FDA agree upon
What would we find out from a Freedom of Information Act request on that ?
And, and what I also found interesting is when I did research on other clinical trials for brainstem glioma I found, you know, all these other science based medicine studies where 374 children had died in their studies
And what I found interesting is back in 1999, they reported on a clinical trial, they had better results then all these clinical trials afterwards
Well, I would have to find you one, there were like 3
There were like 3 major ones that Burzynski has mentioned in his publications to cross-reference his trials versus their trials as far as the results
And so, I, there was one back in 1999 that had better results than a lot of these clinical trials that come afterwards
So when we talk about, you know, what’s really right for the patients well we can see that the drug companies want to test their drugs through clinical trials and, you know, and if your kid dies, well, unfortunately the kid dies
Even though we showed better results in 1999 with a different type of treatment, you would have thought that maybe they would have poured more investment into that particular treatment but that’s not necessarily how the clinical trial system works
Well here’s my point, I mean, y’all probably get a better sense from, ummm, Hymas, about what’s going on with that
From her uh fiancé, or husband, whatever his status happens to be right now
And uh also from Ric, uh they’re more closer to Burzynski than I am, because I have never met Burzynski, I have never e-mailed Burzynski, uhmmm never talked to Burzynski, never met him, blah blah blah
Uh, my sense is that since 1996 when the FDA talked about antineoplastons, that specific FDA Commissioner that was in charge at the time, he set out 7 major points about how there was going to be less people required and there was going to be less paperwork, there was going to be less stringent things about Partial Response
And so, to me, the FDA is the final source to go to when people want to complain about how long their trials have lasted uh because the FDA is bottom line, you know, in charge of that
And
And my other point is that, uhmmm, when these trials finish, as I’ve pointed out on my blog, M.D. Anderson finished a trial in 2006 and didn’t publish the results electronically until January of this year
So, just think
Burzynski’s 1st trial we know that finished in 2009
So we would still have more years to go before he caught up to M.D. Anderson as far as publishing
So for him to actually be trying to publish stuff now and The Lancet not publishing because they have other stuff to do, put in there, that’s understandable
So, we know that he’s trying to publish, uh but they’re going to keep it close to the vest obviously, from, from how they do their things, and where they’re trying to publish
And plus, like I’ve said before
We’ve still got the accelerated approval thing that’s out there, you know, like the FDA’s given Temodar and, and Avastin, and another drug, whereas they’re not doing the same thing for antineoplastons, eve even though for all intents and purposes from what we know, antineoplastons have had better success rates than Temodar and Avastin when they were approved
Well from the information that’s been published in certain um publications
And in, and in not only Burzynski’s but elsewhere in, in newspapers or articles, or such like that
Well what I found interesting is when the FDA approved these other 1 or 2 drugs, some of them specifically said that, uhhh, some of these drugs had, you know, better survivability or they showed no better rate than any previous treatment but we’re approving it anyway
Basically that’s what the publication said and I published this on my blog in an article specifically about, you know, those 2 or 3 drugs that the FDA approved for brainstem or brain related cancers
And so, you know, I’m not going to buy that argument about that, about that specific thing
Well one of these newspaper articles specifically said, you know, Avastin would maybe keep you alive for maybe 4 more months
So, you know, take that
Well, we can wonder if some of Burzynski’s results are the same, otherwise why would the FDA say, you know, give the ODD, why would the FDA give the phase 3 approval
Plus I don’t buy some of these doctors coming out and saying stuff, they have the opportunity just like the other doctors in Egypt, in Russia, in Germany, in, in Poland in China in Taiwan that have done antineoplaston studies, I’m like, these people can do antineoplaston studies so what’s the excuse for all these other doctors who say that they supposedly can’t do them
You know, the information’s out there and
and like these other doctors can do it
Well, we kind of know that that’s a fact
Well what we know from 1996 from Burzynski’s own information that he’s published, is that not only does he have the original parent antineoplastons, but he’s developed 2nd and 3rd generations, but he can’t just stop in the middle of his clinical trial and use the 2nd and 3rd generations which may be better
He can’t uh use these other types of um antineoplastons that other researchers, researchers like Egypt, or Japan have found um that may be better because he can’t just switch in the middle of the clinical trial
Now if he, if the FDA approves his product, well then, maybe he can roll out the 2nd and 3rd generation and these other types of antineoplastons that may be less harsh, but that’s all he’s got to work on and that takes us back to the FDA, having control over the entire process, as far as the paperwork, how many people are in the trials, etcetera
Right
Well I find it interesting that you talk about the cost, because I’ve done a lot of research about the cost, and I was just looking at the cost again this morning, and put it into that particular blog article I was talking about, that I did for this particular program
And, um
The thing that’s funny is that people can say, ohhh Burzynski charges a lot, but the fact is, so does chemo, radiation, and some of these newspaper articles that have been published, and specifically in the movie, Burzynski 2, one of the people mentioned how much someone was paying for standard treatment
And I noticed our
favorite oncologist didn’t comment about that in his movie review
Well what I find interesting, you know, I’m not sure how people think he’s supposed to pay for the clinical trials, you know, if he’s supposed to go into debt, millions of dollars
I find that funny considering the FDA approved phase 3, has given him ODD for brainstem glioma and also also all gliomas
You know, that’s kind of ridiculous
And the people
gettin’ off about his house, well who cares ?
They don’t know where his money came for that particular source
Well, you know, when you have good tax lawyers your tax lawyers will tell you how to structure things, and everybody in America has the right to structure their taxes in a manner that effectively serves them according to our Supreme Court
So, if you have a tax lawyer who tells you, hey this is the best way to do it, to save money, well, you may do that uh based upon your lawyer’s advice
So, maybe Burzynski has taken his tax lawyers advice, just like I’m sure he’s taken Richard Jaffe’s ad advice (laugh), which has proved well, for him
You know, you know
That’s another thing
Well I guess we could ask, you know, Ben and Laura Hymas
What was their experience, you know ?
Did they have, did she have to drink uh a lot of water because she was thirsty ?
You know, did she have to drink a lot of water due to the high sodium ?
So I would ask her about her personal experience instead of saying, you know, instead of quoting some of these other people
Well we all know the FDA is in charge of this, and so hopefully they know what’s going on
No, I’m sure the FDA can look at the records because Burzynski sent them 2.5 million pages according to our friend Fabio
And uh, you know just something the doctors who came in and did the little ol’ one day, 6 patient records, where they reviewed all the records and slides, and MRI’s, etcetera, you know they can do the same thing, the FDA can do the same thing with all these patients
And see the same MRI’s and scans, etcetera
I mean, we, we know that with all these 374 children I mentioned dying in other science-based medicine clinical trials
I mean, they, FDA probably went through all their records
And, so, all these people didn’t look good either but, you know, the FDA still gave approval to Avastin and Te Temodar even though a lot of people died in their clinical trials
I mean, we could agree that since
Burzynski’s publication says that it’s going to take a month to get up to required dosage, and so we know, the tumor can still grow, like he said, up to 50%, he specifically acknowledges that in his publication, so, we know that can happen
Well we know from his own publications, he says he can’t just go in and start giving the maximum dose, or recommended dose right off the bat because a particular condition will occur, and he specifically mentions, in the publications what that condition is, I don’t remember it right off the top of my head
But then again, his 2nd generation, his 3rd generation, his other form of antineoplastons that may work in the future, if approved, well those could possibly have the same uh adverse effects that the current parent generation have
But we don’t know, and like I said the FDA I’m sure knows because they have all the records, we don’t have them, and so unlike our favorite oncologist I’m not going to speculate, about what the FDA knows and I do not know
Well we know they stopped this particular trial, supposedly because a patient died
So what’s the hold-up ?
I mean, hopefully they’ve done an autopsy
What was found
No
And we don’t have a final report from the FDA on what the findings wer
I don’t remember specifically
Possibly not
Well he’s using the same 1st generation drug
Well I’m sure a lot of people leave the doctors office not knowing things, for decades
Well we know the contin, the tumors can uh continue to grow for awhile, at least, and certain effects that they probably would
Well I’m sure, I mean, it’s going to continue to grow, in any other clinical trial too, for a certain awhile
I mean like
Well we know that all these other kids died in these science-based medicine trials, and, you know, we can assume that that was the case there too
The FDA not giving him phase 3 approval, the FDA not giving him ODD designation
And showing that, and showing the FDA that there’s evidence of effectiveness
Not until the FDA says it doesn’t work
Well they seem to be doing a good job at it
Well I’m sure, I’m sure they wouldn’t have done things if they didn’t see some evidence that it was working
No I haven’t read it
I know what it’s called
Right
Well I’m just gonna say, you know, the F, the FDA doing what they’ve done, since they approved those 72 initial trials, pretty much speaks for itself
I mean they’ve had every opportunity to shut this down, since then
No, I’m just concentrating on what we’re doing
Well #1 I don’t think the one with brainstem glioma where they wanted to use radiation with ANP was really the right way to go, I mean he’s already proven that uh he seems to have better results without
first starting radiation
Yeah but the thing is radi, I, the FDA was not saying, ok, one study, one side of the study we’re only going to use ANP, in the other side of the study we’re going to use radiation and and ANP like like they would normally do
No, they wanted to make him use radiation in both sides of the study
They don’t do that with other drugs
Well I don’t buy anything Guy Chapman sells, considering his past record
Well his theories are suspect, anything he hands out, let me tell ya
But the question may be bogus, because of where the messenger has been bogus a lot of times before
Well I’m just gonna say what I think about Chapman because he’s proven himself, many times to be questionable
I don’t see him on my blog responding to my criticism
That’s like, that’s like saying that Gorski’s web-site is disorganized, his blog is like anti vaccine one day, Burzynski the next, blah blah blah
Well how would I know ?
I don’t have
Well you didn’t when I tried to get you to do stuff the 1st time, did ya ?
Well I, the most, the mostly, excuse me, the most recent article I posted on there is the one about this particular conversation, where I went through all your comments that you had posted, and my response to them
And so I tried to consolidate everything into one, particular article
And that’s the newest article
Well I thought that was pretty funny because doing biblical research, you come upon, Didymus Judas Thomas, or he’s all, also known by other names
He’s basically The Skeptic
And so, like I said, I consider myself to be Skeptic of The Skeptics
I thought it was apropos
Of course
I’m doubting The Skeptics
Exactly
Exactly
Well I like how The Skeptics say, you know, all of Burzynski’s successes over the years are anecdotal and uh I consider on the same way that everything negative about Burzynski is anecdotal
Well my point is he’s proven them to the FDA because they’re the ones
Could be, but I would have to read, read the
Well when it comes to Guy Chapman, yeah
You still there ?
Yeah, something cut off there for awhile
Well I would certainly look at that, but then again I would also look at the FDA granting him Orphan Drug Designation
Orphan Drug for brainstem glioma and all gliomas
Right, it’s both AS10 AS2-1 and AS
Well not really, since you mentioned that you’d go in and look at my most recent article, anything you show in there or any reply you give is going to cover, what we’ve gone over
And so we can re debate it there
Well I’ve specifically stated on my blog that Marc Stephens uh obviously didn’t know what he was doing and went about it the wrong way
My position was he should of bou, got around it, gone about it the way I did, which is, I blog, and show where Rhys is wrong, I blog and show where Gorski is wrong, I blog and show where you are wrong, or Josephine Jones, or Guy Chapman, etcetera
And, eh, y’all have every opportunity to come on my blog, and I’ve had very few takers, uh, one claiming to be from Wikipedia, who I shot down
And hasn’t come back
So, you know, I am welcome to anybody trying to come on my blog, and prove what I posted is wrong, and debate anything
Unlike some of The Skeptics I don’t block people on my blog
I don’t give lame reasons for blocking people on my blog because I’m an American and I actually believe in “Free Speech”
Well to me it is when Forbes removes all my comments, in response to Skeptics some, and I showed this from screen-shots
You know, stuff like that
Oh no
It wasn’t down-voted
They, I mean I’ve got screen-shots of where my comments were there, between other people’s comments, and uh, and they just decided to remove all my comments, and I blogged specifically about, you know, what they did and, uh, Gorski’s good friend and pal who authored that particular article
So I, I like how The Skeptics run things, you know
Well I think that people who really believe in “Free Speech,” and when it’s done rationally, I mean, Gorski would never, really respond to any of my questions, so I
Well I know that he specifically removed a review I did uh of his review of Burzynski I on his web, on his blog
But he’s pretty much left a lot of my comments up that I’ve seen
Uh, but he never really responded to my questions about, what he based his beliefs upon
Well I would think, if you’re going to base your position on a certain thing, and then you can’t back it up with scientific literature, uh, you should answer, maybe not specifically to me, but answer the question
Answer to your readers
You know, I can tell his readers come on my blog because it shows that they come on my blog
Well the reason I have so many Twitter things is because, obviously, some of The Skeptics will be on there lying about some tweet I sent, and so Wikipedia, excuse me Twitter will do a little ol’, do their little, hey we’re going to block your account while we do blah blah blah, and I’m not gonna waste my time, going through their little review process, I’ll just create another uh Twitter address because, like, you know, if you read the Twitter information you can have a ridiculous amount of uh Twitter I.D.’s, and I’ll just use another Twitter I.D. and continue on
And so Wikipedia can say what they want, because I’ve only ever used one I.P., I’ve only got on there during one time, and when they finally said hey, you know, we’re not gonna uh grant your appeal, I completely left their web-site alone, so all that stuff
that they post
Yep
So all that garbage that they posted about me, about how I supposedly got on-line, on these other articles is just entirely B.S.
And if they can prove otherwise, I’d sure like to see it
But that’s what y’all always say
That’s what y’all like to say, about everything
Yeah I’m sure that’s what they like to say
I mean, you can report an e-mail, or report a twit, and they’ll block it
But um they’ll never come back and say, and this is why we blocked you, for this particular twit, for this particular reason
Wikipedia is a joke
Oh sure, I’m sure, that’s no problem
I don’t have any problem with them locking that
You know, I could tell when I was on there, and when Merola was on there, because he had a different I.P. address than me, I could tell they were his questions because of the way they were formed
So I said, well they’re not answering his questions, I’ll just take on that role, and uh ask his questions and ask further questions, and they didn’t wanna deal with it, you know
Expose them for what ?
For doing what they do, which is basically provide false information and one-sided information ?
Oh, please
They get on there and they say hey, Lola Quinlan filed a lawsuit, but they don’t tell you anything else
They don’t tell you, you know, Jaffe’s side of the story, and her lawyer’s side of the story
Oh Jaffe’s on there but on that specific article about Lola, they didn’t say, here’s the article that was posted on uh Lola’s attorney’s web-site that, that mentions both his responses and Jaffe’s responses, to the uh lawsuit
Uh, trust me, I tried to add that and they wouldn’t add it
You know, The Skeptics like to be nasty, and so, I’ve been like Josephine Jones
If she wants to play anonymous, I’ll play anonymous
Well, I don’t threaten people
I don’t threaten Gorski
I don’t send letters to people’s employers
I deal with them directly, and, you know, if if they won’t answer questions, then, you know, I’ll just post them on my blog for other people to see, and question uh themselves
Like I said, I’m going to be like Josephine Jones
Because I’ve said so
I’m not even in Texas
I was born in Texas, but I don’t live in Texas
I don’t even, didn’t even, uh live in Houston
Wasn’t even close to Houston
Oh, of course, I, I’ve seen a lot of stuff goes on Twitter
I’ve see y’all saying “Oh, we’re “The Skeptics” and y’all know are names,” but, there’s a lot of Skeptics that post on there with pseudonyms, also
Well, I’m just not sure how some of these uh Skeptics will react considering their past behavior
I mean, when Skeptics refuse to, I mean they block you on your blogs
They block your comments
You know, they decide, “Well, I’m maybe going to accept one comment from you, but I won’t accept anymore
You know, to me that’s just ridiculous
Uh, the action on Forbes that happened, the action on The Guardian that happened, where, you know, you had someone on Gorski’s blog basically lie to the Gua, to The Guardian to get them to get them to uh block my comment
So, you know, I’m Skeptical of The Skeptics and their uh and what they would do
Not really
I like my anonymity just like Josephine Jones likes hers
I mean, I will read her stuff and reply to it and treat it seriously jus, just like any other blogger
Well the thing is, some of these Skeptics use names, and they’re not necessarily their real names
So, you know, I’ve seen
Well I think that some people just have bad manners
I mean see, I’ve seen Skeptics on Twitter basically harass someone pro-Burzynski and keep sending them tweets, and that person specifically send them a tweet saying please keep, stop sending me tweets
You know, they didn’t go in and ask Twitter to block the, that particular person
That person just kept sending them tweets
So, you know, I’ve seen that stuff before
Yeah, I’ll look at it, and if you notice, I don’t uh, I usually don’t reply to Skeptics individually because I pretty much figure that y’all are gonna try and get my next account blocked whenever I do that kind of junk, so, well, you know, I just post what I want to post, under the Hashtag
Well I’ll just keep reviewing the, any inaccurate statements I see posted
You know, it depends on if it’s Gorski, you know
Gorski’s gone on there and posted inaccurate stuff, and I call him out, you know he’s basically said on his blog, you know, if I do something inaccurate, you know, I’ll ‘fess up to it
Well, I’ve pointed out where he’s done that and said “Hey, you said you were gonna ‘fess up to it”
If I said on my blog that I was going to ‘fess up to doing something wrong, and you caught me, well, then I should, come out and say, “Okay, you got me”
But Gorski won’t even do that, you know, he just continues to go on down the road, as if
I mean one of the
excuse
I find, I find
You know, I’m just going to let the FDA do their job, and let y’all speculate all y’all want
Uh, I mean
See, I’m here for full discussion
And y’all don’t seem to want to discuss, after y’all just go out there and spam the Internet with garbage, that you don’t back-up with citations and references and links
But some of your other stuff that you tweeted that you haven’t backed up with links, and some of the stuff on thehoustoncancerquack isn’t backed-up with links, and Gorski’s stuff
Well, that and the anp4all one
isn’t backed up
When the FDA says he’s wrong
I mean, I’m not, I’m not just gonna accept your story
Burzynski provides the FDA with the evidence, and the FDA makes the
the FDA doesn’t approve a drug
if something’s not proved
Well you know that he’s trying
I mean, y’all can sit there and jump up and down all you want
Well, I’m gonna go with what the FDA is gonna do still because they’re running the show
What I find funny is that y’all complain, “Well, he hasn’t published, uh a final report”
Well his 1st final, was completed in 2009, and like I said, the M.D. Anderson 2006 study wasn’t published until 2, 2013
I mean, so y’all can jump up and down all you want
Y’all want a final report
Well, the final report will be done when the clinical trial is over
Well, unless you’re The Lancet, I guess
Well, I’m not gonna get into speculation, I’m just going to wait and see
Well how have I been speculating ?
what the journals keep saying, in response
You know, are they going to give The Lancet response, like they did in 2 hours and such, saying, “Well, we think your message would be best heard elsewhere,” or they gonna gonna give The Lancet response of, “Well, we don’t have room in our publication this time, well, because we’re full up, so, try and pick another place
Well, you like to jump up and down with the 15 year quote, but then again I always get back to, Hey, it’s when, when the report, when the clinical trial is done
Not that he’s been practicing medicine medicine for 36 years, or whatever, it’s when the clin, clinical trial was done
The FDA A believes there is evidence of efficacy
Well, we don’t know that
We don’t have the Freedom of Information Act information
Well, we know what happened in the movie because Eric particularly covered that when they tried to get what, what, was it 200 or 300 something institutions to take on a phase 3, and they refused
Well, Eric gave the reasons that they said they would not take a particular uh phase 3
And so using that excuse that you you just gave there, I’m not even gonna buy that one, because that’s not one of the reasons
Eric said they gave
Well I’m
Well, I’m, I’m sure that they’re going to keep you appraised just like they have in the past, just like Eric has done in the past
So
I mean, we’ll see what happens with the Japanese publication
Well that’s like me asking “How long is it going to take for y’all’s, y’all’s Skeptics to respond to my questions ?”
Because y’all haven’t been forthcoming
Well, he gave you The Lancet information and he posted the e-mail in the movie, and Josephine Jones posted a copy of it
Well, y’all are free to, you know, claim that all you want, because I don’t always agree with Eric, and uh, he’s free to express his opinion
Well I don’t necessarily believe, what Eric would say about, you know, The Lancet that refused to publish the 2nd one, for the reasons he stated, and which y’all have commented on, including Gorski
You know, I don’t necessarily agree with that
I am more agreeable to y’all, saying that, you know, they’re busy, they’ve got other things to do, but I’m kind of still laughing at their 1st response which he showed in the movie about how they felt about, you know his results would be better in some other publication
I thought that was kind of a ridiculous response to give someone
Well you would think that if its a form letter they would use the same form that they used the 2nd time
You know, they didn’t use the same wording that they used the 1st time
I would have think that, you know, their 2nd comment
Nah, I’m not saying that they did that all
I’m just sayin’, you know, that they gave, 2 different responses, and I would think that the 2nd one they gave
Well I find it funny, something along the lines of, you know, “We believe your message would be received better elsewhere,” you know
I don’t see that as a normal response, a scientific publication would send to someone trying to publish something
I mean, to me that sounds, like, if you’re doing that, and you’re The Lancet Oncology, maybe you need to set some different procedures in place, ‘cuz you would think that with such a great scientific peer-reviewed magazine, that they would have structured things in as far as how they do their operations
Well, I’m sure, I’m sure Gorski would have a comment about that, as he’s commented previously about how he thinks uh Burzynski should publish
Like I said before
Like I said before on my blog, you know, even if Burzynski publishes his phase 2 information, Gorski can just jump up and down and say, “Well, that just shows evidence of efficacy, you know, it’s not phase 3, so it doesn’t really prove it”
So then he can go on, you know, for however many years he wants to
Well,
This is, this is a guy who must phone it in because, he went in there and posted the old Josephine Jones response that, you know, no drugs had been approved by the FDA without their final phase 2 publication 1st being published, which was not a factual statement, and you’ve made the same statement
So I, I’m thinking that Gorski just bought her statement and took it and ran with it, and before he fact-checked it, and what, what happened, it was wrong
I mean, Gorski needs to stop phoning stuff in, and check his sources before he posts stuff, because I’ve found many cases where, he hasn’t seemed to do that, and that’s why I question him
Well, I found it interesting that uh the one on the, Burzynski 2, you know he gave his ex excuses for not, working with uh, that patient, and, but yet, he was the same doctor that treated a another Burzynski patient, according to the movie
I mean, so what does he do ?
Pick and choose ?
Or do doctors pick and choose over there in Britain ?
Well, the movie didn’t say anything
Well, I fail to see these doctors on there, providing any factual information, anywhere on the Internet about, uh their disagreements, in a serious way, instead of just making these over-broad statements, you know, “He hasn’t published anything in the blah blah blah,” and
Well, he’s provided some data, and specifically 4 publications
He’s given more than the case studies
He’s done more than the case studies
He’s specifically given uh, almost all the information om an oncologist would want
And Gorski, and Gorski
I mean, I love Gorski, but he comes up with these stupid excuses like, “Well, Burzynski is not an oncologist”
Well, Gorski doesn’t go go in there and look at his other, his phase 2 clinical trial publications, as far as the preliminary reports, and look at the co-authors, and see if any of those guys are oncologists, and that they’re working with Gorski, I mean they’re working with Burzynski
I find that ridiculous
Well y’all, y’all can call things what y’all want
I mean, y’all can give these, fallacy arguments and all that garbage that y’all like, because that’s what y’all like to talk about instead of dealing with the issues
I mean, Gorski doesn’t want to deal with the issues
Hey, I’ve said it to Gorski
He liked to back his stuff up on the Mayo study, yet he wouldn’t, he wouldn’t uh debate about the Mayo study
He likes to say, “Well, Burzynski is not an oncologist,” but he won’t, say Hey, look at the publications, are any of the guys on the publications oncologists ?
We know that Gorski, we know that Burzynski works with oncologists in his practice
So, just because Burzynski himself is not an an oncologist, does not necessarily mean anything
Do we need to go out, onto PubMed, and, and review every particular person that’s published something about cancer and see if they’re all oncologists ?
Seriously
I mean, Gorski will just
post a lot of stuff without backing it up
Well, I, you know, that’s up to someone’s opinion, considering some of the information that’s that the FDA has accepted, as far as giving these guys approval
How did I say I, I didn’t trust them ?
Well, I didn’t say that they weren’t trustworthy, I just raised questions that no one wants to answer about ‘em
No, I’m just sayin’ that I’ve raised questions and none of The Skeptics wanna to uh talk about ‘em
Well, to me the FDA owes Burzynski for a lot of the garbage they pulled off against him (laugh), not to say, you know, they owe him in that way, but they owed him
Well, we know a lot stuff they did, but that still doesn’t impress me that they pulled out of the prosecution
I mean
Right
Well I find it interesting a lot of this uh, a lot of these letters that were provided between, you know, the government and Burzynski, when the uh phase 2 study was going on, at the behest of the NCI
You know, anybody who reads that stuff knows, that when just ignore the person that’s been doing, do treating their patients for 20 something years, or close to 20 years, and you change the protocol without his approval, and you don’t use the drugs in the manner that he knows works
Well, he says they work together and they’re not going to work if you don’t use them that way
Why would he leave the country ?
I think he’s made it clear
Well, I think The Skeptics, Skeptics are falling short because, you know, they don’t own up to
So I can say that since the Mayo Clinic finished their study in 2006, and it took them until 2013, to actually publish it, then I can say, well, Burzynski finished his in 2009, which was 3 years later, which would give Burzynski until 2016
for me to make up my mind
Well I can say, well I’m going to have to wait, the same amount of time I had to wait for Mayo to publish their study; which was from 2006 to 2013
How do you know it was delayed ?
I mean, has anybody
done a review of when a clinical trial is studied, and completed, and how long it took the people to publish it ?
You know
If they could point to me a study that’s done that, and say, well here’s the high end, here’s the low end of the spectrum, here’s the middle
Sure
Sure, but that’s not gonna, you know like, answer an overall question of, you know, somebody did a comparative study of all clinical trials, and, when they were finished, and at, and when the study was actually published afterwards
You know, that’s only gonna be one, particular clinical study
Well, we know that the Declaration of Helsinki doesn’t even give a standard saying, “You must publish within x amount of years,” you know ?
So, I’ve yet to find a Skeptic who posted something that said, “Here are the standards, published here”
Again, we get back to, when the clinical trial is finished, not when Burzynski started
I mean, you would expect to find a results to be published after, the final results are in
You would expect some people would want to have confidentiality, and maybe not want to be included
Why am I unsure ?
I just gave you an example
Oh, who said I was unsure ?
I just gave you an example
I mean, I’m just, I believe in free and open debate
I mean, I believe, if y’all are gonna spam the Internet, the Internet with garbage that y’all do not back-up, with specific
references
Like your tweet that said uh, “antineoplastons is uron, is Unicorn pee,” right ?
“Burzynski is a vampire”
Good one
He sucks their blood out of ‘em right ?
Yeah
Humor
Okay, I understand humor
Well, that’s because he’s Polish
What I defend, is that, y’all post stuff, a lot of Skeptics post stuff, including Gorski, and they do not back it up, with references, citations, or links
Gorski will just post stuff, like he did about saying, you know, the FDA would not approve, uh, accelerated approval, without a final phase 2 clinical trial being published, which was an incorrect statement, he did not provide any link
We know it’s false
Well, I’m just
I’m just
Not
That’s
Well, that is just lame
Y’all, Skeptics, like to sh spam Twitter, and social media, with all this negative stuff about Burzynski, but then when I ask you to back it up, you can’t back it up, and then, and then on this conversation you want to come down and pinhole it, to a specific subject, you know, the nitty-gritty
Well, if y’all were only debating the nitty-gritty, we would only be d debating the nitty-gritty, but that’s not what y’all do
Well, we know the FDA’s said there is
And I’ll give you those links that I told you I would give you
Yeah, that’s fine
Well, I thought it was productive too
You know, I don’t see why Gorski is afraid of debating issues
on the Internet, on his blog
Hey, he has time to post about, “Hey, uh, Burzynski got a Catholic award from somebody,” which, has nothing to do with antineoplastons, whatsoever
So, you know, he’s not focusing just in on, “Do antineoplastons work, yes or no?,” “When will Burzynski publish ?,” yes or no ?
You know, he’s putting all this ridiculous side junk, you know
So, I am not going to take that seriously
Exactly
You bet
Thank you
You too