Critiquing Wikipedia: Burzynski Clinic, Colorado Public Television (CPT12), and Public Broadcasting System (PBS)

[1] – Wikipedia, which is behind on updating the “propaganda” on their Burzynski article, posted:

Legal issues

2010 film, Burzynski – Cancer is Serious Business

[2] – “A showing of Burzynski by CPT12 only generated a handful of complaints to the PBS Ombudsman

“These mostly concurred with earlier reviewers of the film that the movie displays a serious lack of objectivity”

[3] – “Some CPT staffers were also criticized for failing to ask Eric Merola any of the hard questions”[65]

[4] – What Wikipedia fails to advise the reader is how many times “The Skeptics™” lied, misinformed, disinformed, and / or did NOT provide any citation(s), reference(s), and / or link(s) to support their claims, did NOT respond to questions, used adolescent excuses and / or instead of addressing one issue per comment, posted numerous multiple issues in each comment which required research to address each issue, and thus #FAILED on the CPT12 Facebook page

[5] – [6] – Here is a list of “The Skeptics™” who participated in this questionable behavior

Darren Woodward (Sebastian Armstrong @spikesandspokes on Twitter)
Val Perry Rendel
Amber Sherwood K
Amy Hochberg Beaton
Robert Blaskiewicz (@rjblaskiewicz)
Adam Jacobs @DianthusMed)
Paul Morgan (@DrPaulMorgan)
William M. London
Scott Myers
David James (@StortSkeptic)
Guy Chapman (@SkepticGuy)
Karl Mamer
David H. Gorski (@gorskon @oracknows @ScienceBasedMed)
Adam Levenstein
Rene F. Najera
Tsu Dho Nimh
Jen Keane
Vicky Forster
Scott Hurst
Susan Scotvold Goodstein
Catherina Becker
Footy Stuff

Oh, wait

That would take too much time since it was about all of “The Skeptics™”
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[1] – Burzynski Clinic – Wikipedia, the free encyclopedia
——————————————————————
en.wikipedia.org/wiki/Burzynski_Clinic
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http://en.wikipedia.org/wiki/Burzynski_Clinic
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http://en.m.wikipedia.org/wiki/Burzynski_Clinic
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[2] – 3/23/2013 – My review of “Burzynski: A note to the PBS ombudsman”:
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https://stanislawrajmundburzynski.wordpress.com/2013/03/23/my-review-of-burzynski-a-note-to-the-pbs-ombudsman/
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[3] – [65] – 3/22/2013 – PBS Ombudsman Michael Getler – Cancer Is ‘Serious Business.’ Is the ‘Documentary’?
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http://www.pbs.org/ombudsman/2013/03/cancer_is_serious_business_is_the_documentary_1.html
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[4] – 3/7/2013 – Colorado Public Television 12 – PBS (broadcasted a version of “Burzynski: Cancer Is Serious Business”(Part I)
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http://www.cpt12.org
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#CPT12 @ColoPublicTV
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https://www.facebook.com/questions/488444654552853
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[5] – 3/9/2013 – Colorado Public Television – PBS:
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https://stanislawrajmundburzynski.wordpress.com/2013/03/09/colorado-public-television-pbs/
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[6] – 3/26/2013 – My Critique of Bob Blaskiewicz (Colorado Public Television – PBS CPT12):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/03/26/my-critique-of-bob-blaskiewicz-colorado-public-television-pbs-cpt12/
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FACTS Burzynski critics do NOT like

FACTS the Burzynski critics don’t like

1. the Declaration of Helsinki;
http://www.wma.net/en/30publications/10policies/b3

30. addresses publishing human clinical trial data

It does NOT indicate WHEN the data should be published, leaving it open to interpretation as to if it should be done piecemeal, or when all trials re a specific drug or drugs are completed after Phase I, II, or III, for example

2. The Clinical Trials . gov web-site data re Burzynski is different than the National Cancer Institute (NCI) at the National Institutes of Health (NIH) web-site
http://cancer.gov/clinicaltrials/search/results?protocolsearchid=11475951

http://cancer.gov/clinicaltrials/search/results?protocolsearchid=11476036

3. Burzynski critics descended on the Colorado Public Television – PBS (#CPT12) Facebook page, but they sure did NOT stick around to address their unsubstantiated posts
https://www.facebook.com/questions/488444654552853

4. Some critics resorted to adolescent-like name-calling and attempted “misdirection” by their use of words like:

“trolls,” “spammers,” “disingenuous,” “dishonest,” “profoundly dishonest,” “sheer stubborn stupid,” “stupid,” “spambot,” “fools,” “shills, “conman”

5. Critics continued their actions on the CPTV comments page
@ColoPublicTV
http://www.cpt12.org

http://www.cpt12.org/tv_schedule/program_details.cfm?id=120130307213000

http://www.cpt12.org/tv_schedule/program_details.cfm?series_id=74310349&CFID=46213349&CFTOKEN=f0980e2edbf49b85-2EBB2FDA-B115-D901-CDBDFE30350A3E5C&jsessionid=f030e129d744a53e2886395f607745657223

6. Critics who rant about scientific peer-reviewed journals and their “Impact Factors” did NOT know what to do about this:

National Cancer Institute
at the National Institutes of Health

Cancer Clinical Trials

15. “The results of clinical trials are OFTEN published in peer-reviewed scientific journals”

” … whether or NOT the results are published in a peer-reviewed scientific journal … ”
http://m.cancer.gov/topics/factsheets/clinical-trials

7. Critics didn’t know what to make of this:

Orac and the Cult of “Misinformation” (Part III)

David H. Gorski

” Nonsense! You’re using the film to raise money for your pledge drive, and you’re featuring a discussion with the producer and a representative from the Burzynski Clinic with no countering opinion from real experts in oncology. What you are doing is, in essence, a big infomercial for the Burzynski Clinic, without a hint of critical analysis. So what if you lob Eric Merola the occasional softball question. Is anyone going to ask him why Burzynski is promoting his work through a guy who makes corporate promotional videos for a living, instead of through the scientific literature?”
March 5 at 10:40am

FAIL – You were offered the opportunity to appear in:

Burzynski: Cancer Is Serious Business (Part II)

1. Lead,
2. follow, or
3. get out of the way

3. is what you chose

If you were really, truly concerned, you failed to Carpe Diem
https://www.facebook.com/questions/488444654552853

David H. Gorski and the Cult of “MISINFORMATION”

Colorado Public Television 12 – PBS: Part II
https://www.facebook.com/questions/488444654552853/?refid=17
Review of “disinformation,” “misinformation,” and “misdirection” posted by #Burzynski critics

Guy Chapman

“I think non-toxic treatments for cancer would definitely merit investigation if anybody ever came up with one. Burzynski hasn’t, that’s for sure”
March 5 at 5:52am

FAIL – provides no citation(s), reference(s), or link(s) to support statement

Karl Mamer

“Please, leave the interpretation of the evidence to the appropriate medical bodies. Your 4 years in J school do not make you qualified to interpret scientific research or the standard of care”
March 5 at 5:55am

FAIL – provides no citation(s), reference(s), or link(s) to support “interpretation” and / or ”
interpret” statements, since no where was it stated that they would be interpretating anything; at least that this critic bothered to NOT point out

David H. Gorski

“Nontoxic treatments are being researched and discussed Antineoplastons, however, are neither nontoxic nor an effective treatment. In fact, they’re definitely toxic. People have developed a dangeros condition called hypernatremia (too high a sodium level) as a result of antineoplaston treatment”
March 5 at 5:56am

FAIL – provides no citation(s), reference(s), or link(s) to support “Nontoxic treatments are being researched and discussed,” “Antineoplastons, however, are neither nontoxic nor an effective treatment,” and “In fact, they’re definitely toxic” statements

Re the “hypernatremia”statement, I posted a question to the critic, which he did NOT respond to:

David H. Gorski

Is hypernatremia common ?

The frequency, cost, and clinical outcomes of hypernatremia in patients hospitalized to a comprehensive cancer center
http://www.ncbi.nlm.nih.gov/m/pubmed/23404230
Support Care Cancer. 2013 Feb 13. [Epub ahead of print]
Division of Internal Medicine, UT MD Anderson Cancer Center, Houston, TX, USA

hypernatremia in the U.S.:
http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm
The frequency, cost, and clinical outcom… [Support Care Cancer. 2013] – PubMed – NCBI
http://www.ncbi.nlm.nih.gov
March 6 at 3:15am

Keir Liddle and the Cult of MISINFORMATION

#Burzynski critic blogs:

The Anti Burzynski Movement?

Posted by Skeptic News

By Keir Liddle

“As Edzard Ernst puts it”

“Ad hominem attacks are signs of victories of reason over unreason“:

“Ersnt treats this tactic as a sign skeptics and critics are winning the argument

That those who resort to these tactics aren’t in fact insulting us but rather they are complementing the strength and rigour of our arguments

They can find no reasoned argument or rational rebuttal to the points or criticisms raised so they resort to insults or fantastical conspiracy theories to dismiss and defame their critics”

“As for the accusation that I have been involved in spreading MISINFORMATION?

Well all the articles I have written on Burzynski link to the sources they base their arguments on

To those who would believe that I am spreading MISINFORMATION I invite you to go back to the sources and read through them, don’t rely simply on the cherry picked and neatly presented resources available from Eric Merola on the Burzynski Movie site

See what everyone has to say and then make up your mind”
http://www.thetwentyfirstfloor.com/?p=7998

Burzynski clinic responds to criticism! (Sort of)

Posted by Endless Psych

By Keir Liddle

“Problematically for Burzynskis publishing ambitions the STABLE DISEASE category is not recognized by FDA as a measure of response”
http://www.thetwentyfirstfloor.com/?p=8001

Is this Burzynski critic “spreading MISINFORMATION” ?

Guidance for Industry – Food and Drug Administration

Guidance for Industry

Clinical Trial Endpoints for the Approval of Cancer Drugs and Biologics

U.S. Department of Health and Human Services Food and Drug Administration

Center for Drug Evaluation and Research (CDER)

Center for Biologics Evaluation and Research (CBER)

May 2007 Clinical/Medical

“STABLE DISEASE should not be a component of ORR

STABLE DISEASE can reflect the natural history of disease”
(Pg. 10 of 22 = actual pg. 7 of PDF)

“Also, STABLE DISEASE can be more accurately assessed by TTP or PFS analysis (see below)”
(Pg. 11 of 22 = actual pg. 8 of PDF)

http://www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/ucm071590.pdf
Burzynski: STABLE DISEASE
https://stanislawrajmundburzynski.wordpress.com/2013/04/25/burzynski-stable-disease/
Oh where, oh where, has The 21st Floor gone? Oh where, oh where, can it be?
https://stanislawrajmundburzynski.wordpress.com/2013/04/03/oh-where-oh-where-has-the-21st-floor-gone-oh-where-oh-where-can-it-be
TUMBLR:
http://the21stfloor.tumblr.com
MIRROR:
http://twentyfirstfloormirror.wordpress.com

Colorado Public Television – PBS

On 3/7/2013, Colorado Public Television 12 – PBS (broadcasted a version of “Burzynski: Cancer Is Serious Business” (Part I)
http://www.cpt12.org
@ColoPublicTV
https://www.facebook.com/questions/488444654552853
#CPT12

Before showing the Documentary; which won the Documentary Channel’s “Best Of” Award,” people were encouraged to engage on their Facebook page

Let’s review some of the “disinformation,” “misinformation,” and “misdirection” posted by #Burzynski critics, shall we ?

Darren Woodward

by what measure are antineoplastines non-toxic, certainly medically they are toxic, much as the proponents pretend that they aren’t
March 4 at 6:14pm

FAIL – provides no citation(s), reference(s), or link(s) to support “toxic” statement

Robert Blaskiewicz

ANP is toxic as anything! It gives people insanely high sodium, and Burzynski is currently not allowed to be dispensed by Burzynski because, according to a patient, it killed someone. This is not harmless stuff. This is not non-toxic. And most of Burzynski’s patients never qualify for his trials. That’s the lure. They all end up taking tons of chemo used off label
March 4 at 7:58pm

FAIL – provides no citation(s), reference(s), or link(s) to support “toxic” and “tons of chemo” statements

Robert Blaskiewicz

One of the people who voted in this poll was threatened by someone who was hired by Burzynski. It was covered in the international press. That’s not in the infomercial, is it?
March 4 at 8:05pm

FAIL – provides no citation(s), reference(s), or link(s) to support statement

Val Perry Rendel

Do I think magic voodoo bullshit should be used to profiteer from human suffering and desperation? Hang on, let me see if anything else good is on TV that night…….uh, no
March 4 at 8:17pm

FAIL – provides no citation(s), reference(s), or link(s) to support “magic voodoo bullshit,” and “profiteer from human suffering and desperation” statements

R.d. Walker

He’s a fraud
March 4 at 8:21pm

FAIL – provides no citation(s), reference(s), or link(s) to support statement

Val Perry Rendel

You’re not going to get much of a “debate” by presenting only one very, very slanted side
March 4 at 8:30pm

FAIL – provides no citation(s), reference(s), or link(s) to support statement

Amber Sherwood K

If they were non-toxic and actually treated cancer, maybe. Presenting a propaganda film that only shows one very distorted side of the story isn’t discussion
March 4 at 9:43pm

FAIL – provides no citation(s), reference(s), or link(s) to support “propaganda film” and “one very distorted side” statements

Amy Hochberg Beaton

I think Burzynski has proved multiple times over that his $*&% doesn’t work and he is not running a legitimate trial
March 4 at 9:45pm

FAIL – provides no citation(s), reference(s), or link(s) to support statement

Adam Jacobs

Your question is completely unrelated to the infomercial you are going to broadcast. Burzynski absolutely does not research “non-toxic” treatments. Mostly, he uses conventional chemotherapy, but in a rather amateurish way, using unproven combinations of drugs. The treatment that has made him famous, antineoplastons, is highly toxic and has been known to kill people. BTW, did you know that he’s recently removed all mention of antineoplastons from his website, and that there are rumours that he has stopped using antineoplastons for any new patients?
March 5 at 1:58am

FAIL – provides no citation(s), reference(s), or link(s) to support “infomercial,” “he uses conventional chemotherapy, but in a rather amateurish way,” “antineoplastons, is highly toxic and has been known to kill people,” and “there are rumours that he has stopped using antineoplastons for any new patients” statements

Paul Morgan

Antineoplaston chemotherapy – despite the claims of Burzynski and his shills – are far from being non-toxic. They contain vast quantities of sodium, which results in patients having to ingest vast quantities of water to counteract the overpowering thirst generated by taking in so much sodium. Some patients have become grossly hypernatraemic (high serum sodium), others profoundly hypokalaemic (low serum potassium). Others have developed renal failure. All these TOXIC SIDE EFFECTS are extremely hazardous and life-threatening. If you consider antineoplastons to be non-toxic, you are seriously deluded. If you think antineoplastons are not chemotherapy, you are also wrong. Burzynski even referred to antineoplastons as chemotherapy in the 1994 trial that resulted in him being convicted of fraud. As for his “gene-targeted” therapy, firstly Burzynski is simply using a cocktail of chemotherapy drugs in a random and haphazard manner with no thoughts as to the potential interactions and unpredictable toxicity of his mix of chemotherapy drugs. As for being “gene-targeted”, his approach could be described as “gene-targeted” in the same way as the military regard carpet bombing as being a precision strike
March 5 at 2:20am

FAIL – provides no citation(s), reference(s), or link(s) to support numerous statements

William M. London

Colorado Public Television plans to “present in order to evoke conversation.” But presenting Burzynski’s anti-cancer fantasies (especially without sufficient opportunity for experts to offer rebuttals) in order to evoke conversation is about as warranted as presenting a flat-earth promoter in order to evoke conversation about the cosmos. Colorado Public Television functions as an infomercial broadcast service for false medical prophets (who profit from Colorado Public Television’s irresponsibility). Is any health scheme too sensational, too preposterous, and too reckless to be featured on Colorado Public Television? Apparently not. Defunding is deserved
March 5 at 3:23am

FAIL – provides no citation(s), reference(s), or link(s) to support numerous statements

Scott Myers

It’s irresponsible to air an infomercial when an investigative expose is warranted.
March 5 at 4:18am via mobile

FAIL – provides no citation(s), reference(s), or link(s) to support “infomercial” statement

David James

do I feel that you should just promote the Burzyński clinic with no actual evidence of effectiveness for the treatments offered, then no! Why you haven’t even got an independent oncologist on the show is completely beyond me. You run the risk of genuinely endangering people’s lives by exposing them to unproven and ridiculously expensive treatment modalities
March 5 at 5:40am

FAIL – provides no citation(s), reference(s), or link(s) to support “You run the risk of genuinely endangering people’s lives by exposing them to unproven and ridiculously expensive treatment modalities” statement

Obviously believes that individuals are not capable of making decisions for themselves

I refer to:

legislation called the “Access to Medical Treatment Act”

The proposed bill specifies that an individual can be treated with any medical treatment the individual desires, if:

1) the practitioner agrees to treat that individual; and

2) the administration of such treatment does not violate state licensing laws

In response to consumer protection concerns raised by opponents of the bill, proponents, such as Widener University Law Professor Michael Cohen, argue that,

“[T]he bill permits only treatments provided by legally authorized providers and that do not unreasonably and significantly alter patient health

It incorporates informed consent requirements…and also prohibits false or misleading labeling and forbids commercial advertising” [43]

The hearings held in the Senate involving the bill involved many of the major players in the Burzynski case

Among those testifying were Shawn and Desiree McConnell, of Fountain Hills, AZ, the parents of 7-year-old Zachary McConnell, a patient who was given permission by the FDA to intially use antineoplastons, only to find the drug “yanked away” months later [44]

[44] Zachary originally qualified for a “compassionate exemption” due to the seriousness of his brain tumor, but the FDA rescinded the exemption shortly thereafter

In a prepared statement, Mr. McConnell made a passionate and compelling case for the bill:

“I realize that my son’s treatment is “controversial” because of things that have nothing to do with the medicine’s abilities, but with lawyers and rules which govern the WAY a drug is approved

That is irrelevant, because to seek curative measures on their own should be encouraged

But current FDA law looks upon us all as desperate minions too stupid or confused to think for ourselves…”

[45]
Access to Medical Treatment Act, Hearings on S#1035 before the Senate Labor and Human Resources Committee , 7/30/1996 (testimony of Shawn McConnell)

1997 – The Criminalization of Innovation:

FDA Misdirection in the Najarian and Burzynski Cases
http://dash.harvard.edu/handle/1/9453691?show=full
HTML:
http://dash.harvard.edu/bitstream/handle/1/9453691/mstennes.html?sequence=2
RTF (Rich Text File):
http://dash.harvard.edu/bitstream/handle/1/9453691/mstennes.rtf?sequence=3
PDF:
http://dash.harvard.edu/bitstream/handle/1/9453691/mstennes.pdf?sequence=1