Pete Cohen films Pat and Steve Clarkson

Posted on January 15, 2014 by didymusjudasthomas

——————————————————————
Pat Clarkson, and I come from Danville, California, which is near San Francisco, and I have multiple myeloma; which is not a common cancer
About 20,000 people in the United States have the disease, and about 10,000 die every year, and 10,000 get the disease
So it’s a relatively small number of folks,that have it
So it’s not well
It’s not as well researched as some of the other cancers, um, but we’re hoping that the, um, Burzynski Clinic can help me

There’s not much hope for me
I, I have probably, a, uh, prognosis of a couple, couple years
Maybe a year or two to live, um, without, um, without I, I, an alternative method of treatment, and that’s why
——————————————————————
If I could say this a little differently
The conventional medicine, or what we would call conventional medicine, which is, you know, chemotherapy, radiation, uh, surgery; which is not possible with, uh, multiple myeloma because there is no, no large tumor that can be surgically removed, uh, the doctors have told us basically there is no cure, and that, and I, I say doctors; this is our local oncologist, um, and the head of oncology at, um, University of California, San Francisco; which is a very well respected school, uh, hospital, that there is no, uh, no reasonable possibility of a cure
Um, by contrast, uh, Dr. Burzynski, we have found out, has, uh, cured several people with myeloma, and he’s cured many other people with different kinds of cancer
The problem is, uh, that the FDA in its wisdom, will not allow us to, uh, be treated with the, uh, antineoplastons that are the backbone of the Burzynski therapy
——————————————————————
Well they’ve told us that they don’t have evidence that it’s, um, that it’s an effective treatment
Uh, that, they don’t have evidence that it’s not, non-toxic; which in fact, uh, is incorrect because the FDA does have evidence that it’s non-toxic
——————————————————————
Through the Senator’s office at the, the FDA is saying that they, they don’t know for sure that it’s not toxic; that’s not true, uh, and they don’t know that it will cure the disease, and therefor they can’t approve it
We’re willing
Pat’s willing to take the odds of a treatment, that is not 100% guaranteed, and let’s face it, most of the treatments that are approved by the FDA, are toxic, and are not guaranteed
So we don’t really understand, uh, why they have an issue with it, except that, uh, there’s an awful lot of money involved
Um, one of the peculiarities of the FDA, we understand they’re, by law, required to get much of their funding from the very companies that they’re supposed to be supervising

As, as I understand, uh, the Constitution, there is no basis in the Constitution for the Federal Government to be telling, an American, who they can use for a doctor or what drugs that they can use for, uh, their, their illness
Yet, over the years this, uh, this power has grown and been accepted at the FDA, and now it’s a, uh, uh, it’s, it’s out of control
——————————————————————
We have asked the FDA what is different about my case
Why I don’t get an exemption
We don’t have a response yet to that, to that question
——————————————————————
While doctors are generally very bright; they have to be to get through medical school, but they don’t have any training in critical, critical thinking, and most of them that I run into are not particularly good critical thinkers
The world they live in is to memorize a set of symptoms, then to look up or remember what those symptoms suggest in terms of a disease, and then remember or look up what the treatment is

So, here we have, um, uh, Dr. Burzynski, who is also a Ph.D biochemist, which is a, a interesting and, and very useful, uh, combination, who discovered that, um, in people who have cancer, they generally don’t have, or they have very reduced levels of what he now calls, uh, antineoplastons, and neoplaston is simply the medical jargon for cancer; so it’s anti-cancer, in effect, um, he discover the people who, uh, don’t have cancer, do have, high levels of this, and determined from research that these are controlled by, um, by the genes, and it’s part of the body’s immune system, in effect
We all produce cancer cells everyday of our lives
Like we produce bac, or have bacteria in our gi, digestive tract, that is controlled, by certain genes
In this case, um, he discovered that by, uh, by injecting, uh, or infusing, uh, these, they’re called peptides, peptide, that the patient could be helped
How, how innocuous, or how anti-toxic, can you have
It’s a, it’s a substance th, the body itself produces, unless the genes have shut down
Which is the case in, uh, some, in most, or at least half I guess, of multiple myeloma cases
——————————————————————
My, my message would be that they don’t have the right to tell me to hold a, a life or a death, um, decision
They, they don’t have the right to tell me that, um, I can’t have treatment that I seek, or I will die
I don’t think they have that right to do that
——————————————————————
Treatment is available
Uh, it is our choice
We are free Americans
We’re well informed
Uh, well educated
It should be our choice, and the Federal government in any, in any form should not have the authority to interfere with that
——————————————————————
Uh, nothing’s guaranteed in this world, um, but we’ve got, um, we’ve got some confidence in this clinic and in this treatment
======================================
Pat & Steve Clarkson
January 27, 2012
Houston, Texas
6:25
2/3/2012
——————————————————————

======================================

Pete Cohen talks to Steve and Mary Jo Siegel

Posted on January 14, 2014 by didymusjudasthomas

This is our the best and the dearest, uh, patient who came to our clinic 20
——————————————————————
2
——————————————————————
2 years ago
——————————————————————
22 years ago
——————————————————————
and she was in the, she came with Hodgkin lymphoma, and a stage 4, and she didn’t have good, uh, prognosis
How long, did they tell you
——————————————————————
They told me that I was gonna die, of non-Hodgkins lymphoma
That I had a fatal disease
They would treat me for awhile with, uh, chemotherapy and radiation, um, a bone marrow transplant, and, um, we, they, we would see what would happen, but no cure
Not a cure at all
——————————————————————
So
——————————————————————
That was 22 years ago
Um, I thank God everyday that I found Dr. Burzynski’s clinic, and Dr. Burzynski and his staff
Um, I was on his treatment for, um, 3 months when this huge tumor on the side of my neck started to reduce and finally disappeared
——————————————————————
So we adopted her as our, uh, family
——————————————————————
(laughs)
——————————————————————
Yeah
——————————————————————
and now, she is our family member, and many others
——————————————————————
So tell me, uh, how did you find out about Dr. Burzynski?
——————————————————————
I was in a cancer support group, and, uh, one of the ladies in there said, you know, you have non-Hodgkins lymphoma
There’s a doctor in Houston whose been treating it with very good results
You should go and check it out
Which I went back home to my husband and said: “There’s Dr. Burzynski in Houston, Texas, and he’s having good results,” and, ah, Steve said: “You know, I’ve heard of this doctor
You know, I wrote his name down”
He’d heard about him
Wrote his name down for future use, and I think about, uh, the next couple of days we were in Houston, and we got to the clinic and I just felt I was in the right place
Everybody there
It was
The feeling was so different than being at a UCLA or a USC or Dana Farber
It was just
I knew immediately I was in the right place, and I met Dr. Burzynski
Well first of all Dr. Barbara came out and hugged me, and, uh, it was, it was so wonderful and I’ll never forget the feeling of, of, uh, my first walk into the Burzynski Clinic
——————————————————————
So tell me, what did, uh, any, did, did you have an oncologist at home and tell them that you were coming here ?
——————————————————————
Yeah, we did
Um, uh, I had an oncologist at UCLA who was a lymphoma specialist, and he was the one that told me I would die of the disease
Um, when we told him that we were going to see Dr. Burzynski, he wasn’t, uh, overjoyed, to say the least, and he told us very negative things and, uh, but I thought, he wasn’t offering me anything, and, uh, when I did get to the Burzynski Clinic, Dr. Burzynski said to me: “I think I can help you,” he said
He didn’t
He didn’t tell me, he was going to cure me
He didn’t
He just said: “I think I can help you,” and, it was non-toxic, and the, um, conventional medicine was offering me high-dose chemotherapy, radiation, and in fact, in mu, as much radiation as people who were, uh, within one mile of ground zero at Hiroshima, and, and they were going to bring me as close to death as possible, and then, rescue me
Uh, and then Dr. Burzynski was going to do this and actually have, where actually I would have hope of a cure, non-toxically
My hair never fell out
I felt well
Um, I lead my normal life
I drove my kids to school
I cleaned the house
Whatever
You know
It was
It’s a wonderful treatment
——————————————————————
So, at what point did you realize, I’m free of cancer ?
Do you remember that point of ?
——————————————————————
Uh, well I remember the point
I remember it very well
Um, the, it
It’s so big
Um, I had, uh, several CAT scans
I had 2 CAT scans in a row
The first one that showed no cancer at all, and, um, I had them done at UCLA, and, um, and then I had a second one, 3 months later, and that one was, was absolutely clear
So, um, it was, it was an amazing feeling, and actually 48 hours was following me, because it was, it was a really a big story, um, you know
Cancer throughout my body
No, no cancer at all and, and my medical records show, um, you look at my X-rays, my CAT scans, from starting Dr. Burzynski’s treatment, um, to approximately 9 months later
Reduction, reduction, reduction, until there was no cancer
——————————————————————
So what did, what did your oncologist say ?
Did you, did you go back to your oncologist and say: “You said I was gonna die”
——————————————————————
Uh, yes, we did that
——————————————————————
And what did he say ?
——————————————————————
And, and actually people would call him and a, people who were interested in Dr. Burzynski, and he would say: “Oh, she’s a spontaneous remission”
He would never accept the fact that I was treated, and cured by Dr. Burzynski, but my medical records prove it, and of, you know I, There are so many patients like me
I’m not the only one
So
——————————————————————
So ok, tell me
Let me ask you a couple more questions
——————————————————————
Mhmm
——————————————————————
What sort of a person do you think Dr. Burzynski is?
——————————————————————
Well aside from being the most wonderful, gentle, sensitive, caring doctor, and you don’t find many of those
I went to many doctors, while, while we were trying to find the answer
Many, and Dr. Burzynski is so above them
He, because he really makes you feel like a person, and that he cares, and, he’s also a genius
He, I know that he speaks about 8 languages
He’s an expert on the Bible
He, he just knows so much about everything
Um, I love to be in the room with him
He’s a very special man
——————————————————————
So, you recovered, and then, ’cause you, when did you set up the patient support group, and why did you do that ?
——————————————————————
Uh, actually my husband and I did that together, and it was during, um, the trials, uh, the Texas State Board started, in fact, I became a patient, and 2 months later, ah, he was brought to a hearing in front of the Texas State Medical Board, and so Steve and I, um, organized the patients to, um, be at that hearing to support Dr. B, ’cause he’d been going through this long before I became a patient, but, um, we wanted to show support, because I was already starting to fe, I was feeling better already
I was already seeing some reduction, and now my, the medicine was in jeopardy
I, It could be taken away from me at any time
So we decided to organize the patients and to show support, and all the patients wanted to help, a, uh, obviously
So, um, we’d go to every hearing, every, uh, the trial, we were there every day, um, and we would, patients would march in front of the court building, um,
It was, it was really a sight
An unbelievable sight
——————————————————————
And why do you think that he was treated the way that he was treated ?
Why do you think they wanted to take him down ?
——————————————————————
I think it’s because
There’s many reasons
I think the main reason is because what Dr. Burzynski does is making what all other conventional doctors are doing wrong, because chemotherapy is not the answer
Chemotherapy makes people sick, and, uh, most of the time it does not cure people
Um, all that poison and radiation
There’s gotta be a better way, and there is a better way
Dr. Burzynski has found it
I was sick
I had cancer 22 years ago
Um, my hair never fell out, and, uh, it was a treatment that I was grateful to be on every day
——————————————————————
So how many patients have you come in contact with that Dr. Burzynski
——————————————————————
Hundreds
Hundreds, and as you say by my patient group web-site
Um, I think I have about 90 stories on there now, and there are many more, because, um, I haven’t been able to get in touch with everybody, but over the years, uh, people give me their stories
Sometimes people will call me, um, but we, we are a patient group because we, we’ve all been helped or cured by Dr. Burzynski, and we, we want everybody to have access to this treatment

Steve actually had the chance to ask one of, uh, one of the prosecutors, um, at the trial, that exact question: “What would you do,” and he was prosecuting Dr. Burzynski, and he actually said: “I’d be first in line”
So, once you know the whole story, and you know the science, and you, especially if you do the research, um, you, you can come to the truth, and the truth is, Dr. Burzynski, has cured cancer
He cured me
I’ve been in remission for, in remission, for, uh, 22 years, and that’s a cure, and, uh, he could help so many, many, many more people
The, he has breast cancer patients now that are, that are doing so well
He has many
I just talked to an ovarian cancer patient
He has, um, all, all different types of cancers
What he needs is funding from our government
Um, all other doctors and, and, um, institutions, they get ah, mu, get so much money from the government
Dr. Burzynski doesn’t get one penny
If we could just think
If, d, if the government would just fund Dr. Burzynski, he could have a cure for all cancers
I believe that with all my heart, and somehow, some day this has to happen
——————————————————————
The Sceptics (10:37)
——————————————————————
Yeah, just tell me what this whole kind of skeptic movement
You do any research on Dr. Burzynski there’s a few things
——————————————————————
Yes
——————————————————————
that always come up
This guy Saul
——————————————————————
Saul Green
——————————————————————
Yeah
——————————————————————
Mmm
——————————————————————
and some other stuff
——————————————————————
Yeah
——————————————————————
So just tell me
What’s that all about and where did that all come from ?
——————————————————————
It stems from, uh, a lawsuit that was filed against, uh, Dr. Burzynski
Actually it was, uh, an insurance company, that didn’t wanna pay for, uh, for the treatment
A particular patient had been treated here in Texas, uh, was put into remission
Was successfully treated and then it turns out the insurance company did not wanna pay for it, so they brought in these people
These quote unquote experts
Cancer experts of, you know, rather dubious backgrounds
This is all that they do, is they look for ways to demean people
They look for ways to blacken their reputation
They ultimately became a group known as Quack watch, and these were brought in as the expert witnesses to say that this is not an approved treatment, albeit, was not true
They said the treatment didn’t work and clearly it did, and, uh, they have since gotten funding from insurance companies, from the government, private funding, and they go around to debunk things that are against mainstream, um, medicine, and, uh, their, their support comes from the insurance company and from the pharmaceutical companies who benefit from, from their work, and, uh, it expanded
Expanded all over the world to, uh, they’re in the United States, they’re in the U.K., they’re in Australia, and, uh, they have a very big presence
When the internet came into being they, you know, they went viral with this kind of stuff
So when you type in Burzynski, uh, a lot of the negative comes up first
So that’s the first thing you see is all this negative stuff, and it’s all hearsay
None of it has any basis in fact
It’s all lies
Um, you know, he, Dr. Burzynski never did anything illegal ever, and it was all based on, on very questionable legal grounds that he was ever sued, that he was, that any case was ever brought against him by the FDA or the Texas Medical Board, and all of those cases failed
They never held up to scrutiny
They all failed, and here Dr. Burzynski is today, and he’s thriving, and people come here from all over the world to be treated
Many are cured of their cancers, and, uh, all of these people in the Quack watch are gone
Uh, Saul Green has passed away
Uh, I don’t wish him ill, but I’m glad he’s not here, thank you, and all of these other people are gone and they’re not thriving, and they’re just like, you know, they’re like bacteria or like fungus under rocks, and when you shine a light on them, they can’t hold up to the scrutiny
The real light is here
The real truth is here in Houston at the Burzynski Clinic
——————————————————————
Thoughts on Dr. Burzynski (13:46)
——————————————————————
What do you think of Dr. Burzynski, yourself ?
——————————————————————
I, I, I think Mary Jo’s pretty much summed it up
Uh, I, am of course
It, it, it’s not an unbiased opinion
It can’t be
He’s the man that saved my wife
Uh, she was cast off, um, as, as, as an incurable
She was told time and time again, not just by her on, oncologist at UCLA, Dr. Peter Rosen, but we went all over the country
We went to USC in, University of Southern California, UCLA, Stanford Medical, Dana-Farber; which is associated with Harvard, uh, in, uh, Boston, and everywhere we went, she was told: “There’s no hope”
“You’re gonna die”
“It’s just a matter of time”
“We have to see how long, how long it’s gonna take”
Um, against my better wishes, we came to the Burzynski Clinic, and she said: “I’m starting today,” and I said: “Don’t you think we should go back and discuss with Dr. Rosen at UCLA ?
She said: “No, they have nothing to offer me”
She was that brave, and we started that day, and we’ve never looked, we’ve never looked back
So to ask me about what I think about Dr. Burzynski, when my wife was told she was gonna die, and I was already making plans for how am I going to take care of my children without Mary Jo; my life partner, and he saved her life, I’m not gonna give you unbiased
——————————————————————
Mhmm
——————————————————————
an unbiased opinion of how I feel about the man
There’s probably nobody, that I have greater love and greater respect for, uh, in, in the whole world, and, uh, to add about how, how smart, how intelligent this man is, ah, expert on, on history as Barbara was saying
Expert on religion
He’s an expert on mushrooms
He knows more about mushrooms than any 10 mushroom experts in the world
Bees
He knows about bees
Who cares about bees, but he knows everything, because bees happen to be a rich production source of antineoplastons
Who knew ?
Dr. Burzynski knew, and that’s why we need to listen to him
We as a society
The world needs to listen to this man
——————————————————————
Conventional Cancer Treatment and The FDA (16:05)
——————————————————————
When you put some critical thought, critical analysis, you find that chemotherapy initially works
What it is, it’s a good, the first time around it’s a good tumor shrinking, they’re good tumor shrinking agents, but over the long run they create so many problems that eventually, the tumor becomes, the cells become resistant and the tumor takes over, or, if it is successful in shrinking the tumor to, to a, a size where the patient can survive, what happens after that is there’s a secondary cancer that’s created by the chemotherapy, with very few exceptions
Testicular cancer is one exception where it works
Some childhood leukemia’s they’ve had some great success with chemotherapy, but by in large it’s a failed modality, and the side effects are so bad as, as to be called horrific, uh, is how I would describe them from what I’ve seen in, in my family and in my friends, and my associates that’ve had to undergo it
So why do we allow that, when something like antineoplastons and Burzynski’s treatment, totally non-toxic, working with the body, allowing you to lead a normal life, and on it statistically for the number of people that have been treated, uh, compared to the number of people that have walked out of here in remission, or cured after 5 years; whatever definition you wanna use, we don’t allow that
We look at that as, uh, conventional medicine looks at like that as, looks at that as some sort of quackery
This is, this is, uh, critical thinking and science turned on its head, and it doesn’t make sense, and it goes back to what I was saying before
Why it doesn’t make sense, because there’s entrenched financial interests, and there’s a paradigm that says we do for cancer, we do chemotherapy, we do radiation, we do surgery, and that’s it
Anything else is not acceptable, because it goes against the paradigm

In the bureaucracy we know as the FDA
We’ve been fighting them for so long and they’ve been described as “The B Team”
“The B Team” is,that they be here when you come in and you start complaining, your problem starts, they be here, and when you decide to quit complaining because you’ve beat your head against the wall for so many years, they still be here (laugh)
So it’s “The B Team”
They’re bureaucrats
This is what they do
There, they have a certain set of tasks
Certain things that they’re tasked with
Protection of the food and drug supply of the United States, whatever that means
Whatever they deem it to mean
Whatever they decide it means
That’s what they’re gonna do, and it’s pretty hard to fight that
It’s pretty hard, unless you have a political, unless you have a, a, a, a political, ah, constituency, and you can put a lot of pressure on them
——————————————————————
So
——————————————————————
and that’s the only way
——————————————————————
So what’s the answer ?
What will, uh
How will Dr. Burzynski prevail ?
——————————————————————
Ultimately, in, in my, in my, in my view, the real tragedy is, is that he’s not going to prevail here in the United States
It’s going to be extremely difficult
It’s an uphill battle that, knowing Dr. Burzynski, he’s gonna keep fighting it, uh, and, and he’ll keep fighting that battle, but the real opportunity for him is to, uh, move this product and license it overseas, and, uh, other countries are interested
Other countries are more open, uh, to new modalities
They’re not entrenched, uh, and don’t have the financial, uh, interests, the, that are, the entrenched financial interests like we do here, like chemotherapy and, and, uh, radiation therapy, and I think that’s where ultimately we as Americans, as sad as it is, are going to have to go overseas to be treated and to get this medication

The FDA is so capricious in their decision-making, and in their exception granting, uh, that if Pat had AIDS, and this was anti-AIDS medication; proven or not or only with limited, uh, proven efficaciousness, uh, and proven limited proof that it was somewhat non-toxic, she would be able to get approval like that
The FDA has taken a drug approval process that generally takes anywhere from 10 to 15 years, and where there is political, successful political pressure applied, they have reduced that down to some cases 4 to 8 months as in the case of the anti-HIV drugs, and that’s because there is a very strong, very powerful political lobby in Washington, and throughout the country, and they have been able to apply pressure at key points in, uh, Congress
Congress puts that pressure on the FDA, says: “C’mon let’s get the ball forward
These are voting people
We have millions of people in this country with HIV who are compacted together and make a viable political force
Let’s move forward”
In the case of multiple-myeloma
In the case of these cancers or these people that wanna be treated, who have failed all conventional therapy, and wanna be treated by Dr. Burzynski with something that we know works
Something that is, is non-toxic, they, they don’t have
We’re not a viable political force
We’re not important to the Washington bureaucrats, to the Washington lawmakers
So nothing gets done, and these exceptions for the use of antineoplastons are not granted, and that’s, that’s the sad truth
======================================
Steve and Mary Jo Siegel
January 2012
22:01
11/9/2012
——————————————————————

======================================

Posted in Cohen, Pete, Stanislaw Rajmund Burzynski | Tagged "48 Hours", "8 languages", "anti-AIDS", "anti-HIV drugs", "big story", "bone marrow transplant", "breast cancer", "Burzynski’s treatment", "Cancer experts", "cast off", "CAT scans", "childhood leukemia’s", "conventional therapy", "conventional” medicine", "critical analysis", "critical thought", "Dana-Farber", "decision-making", "Dr. B", "Dr. Barbara", "Dr. Burzynski", "Dr. Burzynski’s clinic", "Dr. Burzynski’s treatment", "Dr. Peter Rosen", "Dr. Rosen", "entrenched financial interests", "expert witnesses", "failed modality", "fell out", "felt well", "FINALLY, "financial interests", "good, "ground zero", "high-dose chemotherapy", "Hodgkin lymphoma", "https://stanislawrajmundburzynski.wordpress.com/2014/01/14/pete-cohen-talks-to-steve-and-mary-jo-siegel/", "http://youtu.be/DoeWuDRTFjg", "huge, "insurance companies", "insurance company", "legal grounds", "life partner", "mainstream medicine", "Mary Jo Siegel", "medical record", "medical records", "Multiple myeloma", "non-Hodgkins lymphoma", "non-toxically", "normal life", "ovarian cancer", "patient group web-site", "Pete Cohen talks to Steve and Mary Jo Siegel https://stanislawrajmundburzynski.wordpress.com/2014/01/14/pete-cohen-talks-to-steve-and-mary-jo-siegel/", "Pete Cohen talks to Steve and Mary Jo Siegel", "Pete Cohen", "pharmaceutical companies", "political constituency", "political force", "political lobby", "political pressure", "private funding", "Quack watch", "radiation therapy", "Saul Green", "secondary cancer", "she’s", "side effects", "spontaneous remission", "stage 4", "Stanford Medical", "Steve and Mary Jo Siegel", "Steve Siegel", "Testicular cancer", "Texas State Board", "Texas State Medical Board", "University of Southern California", "Washington bureaucrats", "Washington lawmakers", "X-rays", #FAILED, above, absolutely, accept, acceptable, access, adopted, against, agents, AIDS, albeit, allow, Allowing, already, amazing feeling, Americans, answer, antineoplaston, antineoplastons, applied, apply, approved, Approximately, aside, ask, associated, associates, Australia, away, awhile, “bureaucrats”, “Conventional cancer treatment", “Look, “non-toxic”, “Thank you!”, “The B Team”, backgrounds, bacteria, bad, based, basis, beat, bee, Bees, being, believe, benefit, best, better, Bible, blacken, body, Boston, brave, bring, brought, building, bureaucracy, Burzynski Clinic, CALL, came, Cancer, cancerous, cancers, capricious, care, cares, caring, case, cases, cells, certain, chance, Chemo, CHEMOTHERAPY, CHILDREN, cleaned, clear, clearly, clinic, close, come, comes, coming, compacted, compared, complain, complaining, Congress, contact, conventional, countries, country, couple, court, created, CURE, cured, cures, dearest, death, debunk, decide, decided, deem, demean, describe, die, died, different, disappeared, discuss, disease, Doctor, doctors, doing, drove, drug, dubious, during, efficaciousness, entrenched, especially, eventually, ever, everybody, everyday, everything, everywhere, exact, exception, exceptions, expanded, expert, experts, F.D.A., fact, family, fatal, feel, feeling, fight, fighting, filed, find, first, following, food, force, forget, forward, found, free, friends, front, fund, funding, funds, fungus, Future, genius, gentle, glad, going, gone, gotten, government, granted, granting, grateful, greater, group, hair, happen, happens, hard, Harvard, head, heard, Hearing, hearsay, heart, held, help, helped, her, him, Hiroshima, history, HIV, hold, home, hope, horrific, house, Houston, hugged, hundreds, husband, ill, illegal, immediately, IMPORTANT, incurable, initially, institutions, intelligent, interested, Internet, jeopardy, key, kids, kind, knew, know, ladies, later, lawsuit, lead, least, license, Lies, life, light, like, limited, listen, long, looked, looks, love great, lymphoma, making, Many, march, mean, means, medicine, member, mile, millions, modalities, money, most, move, movement, mushroom, mushrooms, neck, needs, negative, never, Nobody, none, nothing, obviously, offer, offering, oncologist, oncologists, oncology, opinion, opportunity, organize, organized, others, over, overjoyed, overseas, paradigm, particular, passed, patient, patients, pay, penny, people, person, place, plans, poison, political, possible", powerful, presence, pressure, prevail, probably, problem, problems, product, production, prognosis, prosecuting, prosecutors, protection, prove, proven, quackery, Quackwatch, question, questionable, Questions, quit, quote, RADIATION, rather, realize, Reason, reasons, recovered, reduce, reduced, reduction, reductions, religion, remember, remission, reputation, rescue, research, resistant, respect, results", rich, rocks, Sad, said, saved, SAY, says, sceptics, school, science, scrutiny, second, sense, sensitive, several, she, shine, show, showed, shrink, shrinking, sick, side, sight, since, Skeptic, smart, society, someday, somehow, something, sometimes, sort, source, speaks, special, specialist, staff, start, started, starting, starts, statistically, stems, stories", story, strong, stuff, successful, successfully, sued, summed, supply, support, surgery, survive, taken, takes, talks, tasked, tasks, tell, Texas, thank, they, think, Thoughts, thriving, through, throughout, time, together, told, totally, touch, tragedy extremely, treat, treated, Treating, treatment, trials, true, TRUTH, trying, tumor, tumors, turned, type, types, U.K., UCLA, ultimately, unbelievable, unbiased, undergo, United States, unless, unquote, uphill, USC, viable, view, viral, voting, walk, walked, wall, wanted, whatever, while, whole, wife, wish, wishes, without, wonderful, work, working, works, world, wrong, wrote, yourself | Leave a reply

Pete Cohen chats with Richard A. Jaffe, Esq.

Posted on November 6, 2013 by didymusjudasthomas

Reply

======================================
4/2012 – Pete Cohen chats with Rick Jaffe
(33:59) 11/9/2012
Richard A. Jaffe, Esq.
======================================
How did you meet Dr. Burzynski?

A long time ago in 1988, um, he hired us to represent him in his Medical Board case, so, uh, started working for him then, and then there got to be more and more work, and, uh, at some point it was so much work, it was just easier for me to be down here
So I moved from New York to Texas, mostly just to, to represent him, and my wife was in the oil industry, so, it was a “no brainer” for her to move down here too

And how, were you intrigued by this whole case ?
I mean, did you work out straight away that this guy was genuine, and there was really something here ?

No (laugh)
How do you know, you know ?
At the time we represented, uh, a number of a alternative health practitioners around the country, and we heard a lot about Burzynski, but you don’t really know
I mean, um, um, there are a lot of stories out there
Every doctor seems to have a few patients, uh, that were helped
So initially, I mean, how do you know ?
His operation was larger than most of any, uh, health practitioners, alternative health practitioners in the country, and, uh, seemed a lot more sophisticated, but, uh, it’s not really until you dig in the medical records of the patients that you really see what’s going on
I mean, that’s what you really need
I mean,
It’s not really even, it’s
’cause this whole thing about anecdotal evidence, that everyone has testimony
so every doctor
You know what I mean ?
anybody
Even charlatans have testimony
people
one or two people
or 3 or 4 that’ll come, and say w
they were cured, and maybe, maybe the patients really believe that to be the case, but, um, oftentimes there’s other explanations
Prior treatment, um, the nature of the disease
Sometimes it’s such that their natural, the natural history is not straight linear, um, but after looking at some of the medical records, I mean, you know, I think
it’s just,
uh, anybody would become a believer, and indeed, I mean, government, government doctors have come down here and looked at

some of the records, and they were convinced that, that the treatment was causing remissions in some brain cancer patients

So, I mean, obviously lawyers, I imagine many lawyers all over the world would often take on a case, when they know, possibly the guy isn’t telling the truth, but they can see there’s still a story, and they, they, they, they, uh, represent that person, but for you, I suppose
that when you realized that there really was a story here, did you kind of get, emotionally caught up in this whole thing and think: “Right, th this guy’s got a cure for cancer, and I I need to bring this to, bring him to just, not bring him to justice, but, clear his name
Well, I think with Burzynski, more so than any client I’ve ever represented
He represents a unique constellation of medical services
He’s the only guy in the world doing what he’s doing with antineoplastons and now with this treatment, so, it’s really different
Uh, you know, with Burzynski, most of the patients, are in bad shape
They’re either dying, uh, they, or they have a disease for which there is no known cure, you know, like a lot of these brain tumors
So, even from the beginning, what’s different is their are many, many patients back then who were on the treatment, that uh, that felt that without this treatment they were going to die, and so that, that’s much different, than the average, any kind of lawsuit
Right ?
So th th these lawsuits, the Burzynski cases back then and now, uh, these cases matter, in a, in a deeper, and fundamental, and personal way than most anything, well I think that any lawyer does
I mean, any criminal defense lawyer, who defends an individual, is defending that person’s, uh, liberty
Alright ?
Versus incarceration
But here it, it wasn’t so much, or, it wasn’t exclusively about Burzynski, it was really about all these other patients, and they certainly believe they needed him, and, uh, uh, many of them, obviously did
So, so that, that, that’s a whole ‘nother dimension, which typically we lawyers don’t get involved in
So, I mean, it’s a responsibility but also a great privilege to be working on these kinds of cases

You’ve been representing him for how long ?

For a long time
Since 1988, continuously

And can you believe this is still going on ?

Well, you know, uh, it’s, you know, it’s, it’s just ongoing
I mean, until there’s a cure for cancer, for all cancer, either done by acknowledged

or, uh, uh, to be Burzynski’s cure or somebody else’s
I mean, this is ongoing
And I guess the problem is, you know, ultimately, there’s nobody yet
Not even Burzynski has the cure for every cancer or
even every stage, or even ev, every, ev, ev, every person that had cancer
So, because it’s such a tough battle, and because, it doesn’t work on everyone
So you have these open questions
Ah, so, so,
Yeah, I mean, I guess, I, I can’t believe he’s still messing around with these clinical trials
I mean, I think that if the drug didn’t have his name attached to it, it’d probably would have been approved by now
So, and I think, so that, that’s unfortunate, I think, that when you fight the FDA, and even if you win, you know, the F, the repercussions, you know, you know I, you know I
Hopefully the drug will be approved, sometime in the future, but, but who knows ?

So, um, why do you think, why was it, I mean, obviously I came over here as you know, for this case, which is now not going ahead at the moment
Why, why, why is that ?
Wha, what has the judge, said ?

Well, of course, you have to (under)stand, this case involves a different type of treatment
It doesn’t involve antineoplastons,the drug Dr. Burzynski invented, and your friend is receiving, and it involves a new approach to cancer, which is sort of like personalized medicine, where they take a bunch of FDA approved drugs, that have shown some promise, on a particular cancer, but are not, uh, approved for that indication, and based on these early clinical trials showing promising results for genetic testing they give these combinations of FDA approved drugs, off-label to patients, and that’s really what the, this case is about, and, uh, you know I think, I don’t think they, they never had a case
I mean, they never had a case
The, the main allegation, in each, of the 2 patients involved, is that they used this treatment, which wasn’t sufficiently tested, and was non-therapeutic, and whatnot, and we had a, what I would call a dry run
We presented the evidence to the Board, or 2 members of the Board, in both of these cases
In each, in each case, the Board members felt that the treatment, was within the standard of care, given the advanced condition of the patient, or one patient, and given how rare the other patient’s tumor was
So, we had our dry run in each case, and the Board found in our favor on the main charge
They had some technical issues with medical records or whatnot, and, uh, the Board basically said, they took the position, ok, agree to some kind of sanction on these little charges, or, or we’re going to go after you on everything
So, we refused the honor, and, uh, the Board then charged him with the same thing that they already cleared him with, or on, and, and so we had to do, you know, basically the same case again, and, uh, the irony in, is in these 2 cases Burzynski wasn’t even in the country
He was, he was, he was away for, uh, in both, for both cases, when the patientscame
So, uh, the question is how do you hold someone responsible
Even if you own the clinic, for treatment administered and prescribed, by other doctors, and that concept of vicarious liability does not, uh, exist in jurisprudence, and in the law governing professional re, responsibility, anywhere in this country
So, the Board’strying to start that
You know, I think they just got in over their heads, they
Most people just knuckle under
You know, most people don’t, are afraid to go to court, so they’ll sign anything just to, you know, not to go forward, but, you know, Burzynski faced serious stuff
I mean, he set, faced, 5, 10, 15 years in jail
So he wasn’t going to be intimidated, by the Medical Board, and he refused to give in
So when I told the Board at the time, and I told them all along, they have no case, and o on the merits they have no case
We already won, and they have no case now, and, and slowly I think, the Board is starting to understand that

And what sort of a person would you say Dr. Burzynski is ?

Well I think he’s a complicated person
I mean, I think, uh, uh, you know, he, I think like a lot of mavericks; I represent a lot of mavericks around the, uh, uh, country
One of the main characteristics of these guys, is that they have absolute and total certainty, in what they believe in, in what they do, um, and no doubt
Uh, they all think they’re right
They all think that history is going to vindicate them
Now, I’ve represented some people where I personally doubt (laugh) that, uh, uh, that belief, but not in Dr. Burzynski’s case
I mean, I think he’s all, he’s definitely helping people
He’s definitely, uh, uh, uh, making, extending people’s lives, and curing some people that otherwise would have died, and so I think he, and so I think he happens to be right
So, uh, you know, so, but, but he’s a human
He’s got a big ego
He thinks he’s, uh, he thinks he has made an important, contribute to medicine, and he’s not shy about sharing that sentiment
So, uh, I think, and I think that he’s, uh, not American
So he comes with a completely different mentality towards, say, the government
Alright, he grew up in communist Poland, where everyone, where everyone, has to work around, the government, and I think that’s much harder here, and, you know, I think he has expectations that, that he would have a lot more freedom, than it turned out he had, too, and he thought he would not have to deal with the kind of government, uh, rigamarole that you have to deal with in communist, Poland

And, and how do you think it might all pan out for him ?
I mean, I know you don’t have a crystal ball, but if you could look, 5 or 10 years down into the future, and, do you think that he will have got somewhere, to be accepted in the medical (?) of oncology ?

Well, I certainly hope so
I mean, 5, 10 years from now
I mean, I think, at a minimum, what’s going to happen, there will be many, many patients who will be alive, and continue to be alive because of him
Some, will have their lives extended
Some will be cured
Some wi, won’t be cured, and will die
So, I think that’s for sure, going to happen
You know, is there going to be an end to, uh, all this ?
We had a period of maybe 10 years where there was very little action with the Board, but, uh, you know, it’s hard, frankly, I mean, just in, and again my perspective, like I’m in a, like a, a sergeant in the trenches, in trench (laugh) warfare
So, it’s hard for me to see the big picture
I mean, I just keep fighting these battles, and there’s one, after another, after another
So this is really just the latest, and on there’s civil lawsuits, and then there are people on the Internet, and then, you know, there could be more Medical Board investigations
So, lo, look there are a lot of people who don’t like what he’s doing
They think what he’s doing is either unethical or wrong, or shouldn’t be giving drugs, these drugs to people, except under clinical trial conditions, and, you know, he has detractors, and he has a lot of supporters
I mean, uh, mostly amongst the patients he’s cured
So, I don’t know that, that, that is gonna resolve itself
I mean, ultimately, he’s one of the few people in the country, that, or maybe the only person in the country that does what he does, and, it’s not the way medicine is practiced, in this country, typically
Right, and, you know, I think what he does, is, is more, is more patient oriented, in a sense that, once you’ve been told you’re terminal, why should you just get the palliative care that a medical oncologist thinks, you know, they should be given
even though when, no one ever gets cured of chemotherapy, once it’s palliative, once you have stage 4, solid tumor

Mmm

I mean, they give chemotherapy for what they call palliative reasons, which means, not curative
So, this concept of giving, just conventional chemotherapy to make you feel better, extend your life 9 weeks, I mean, y, not everyone wants to do that
Some people want a shot for a real cure, and, you know, based on the evidence with antineoplastons
, I mean, he seems to be giving people that shot, and curing some of the people
So, you, you know, I don’t see how, this thing gets resolved
Up until the time that the
treatment, the
antineoplastons is approved by the FDA and, you know,
it’s, it’s hard to see a clear path, for that, for a lot of reasons, not the least of which is financial
I mean, it takes dozens of 10’s of millions of dollars

Mmm

or 10, 100’s of millions
So, I mean, someone has to finance the clinical trials
The drug companies aren’t interested right now
They’d just as soon, buy a drug that’s been fully tested
So, I mean, the drug company response has not been overwhelming, because, even though this phase 2 phase, have resolved, and, and, uh, they have excellent results, the drug companies want to wait and see
So, uh, it’s, it’s big money
I don’t think there’s any way in the world Dr. Burzynski, himself, can fund phase 3
I mean, he, he funded everything else now, but phase 3 are, is a much bigger stage involving dozens and 100’s of patients, and that’s just within the financial means of any individual

it seems like it’s unlikely that its going to happen right
I mean, even from the point of view of, what, with phase 3 trials, they’ll be with children

with brainstem gliomas, right
and the FDA’s saying they’ve got to have radiation

Yeah I, um,
I unfortunately, I haven’t been involved in that process
I just see the result, and I, I, I just don’t see how any parent agrees to that, you know

I don’t see how any parent agrees to it
I don’t see how clinical investigator, agrees to do it
Um, I don’t know
I got so, I got some questions of the FDA as to, why they forced him into this particular protocol
I mean, I don’t know
I don’t have any facts or evidence, but I, I, just doesn’t make any sense to me

what’s you’re about that ?

I don’t know
I mean, I, it just doesn’t seem to me, that it’s a, that it’s a fair clinical trial that

Mmm

either an investigator would find ethical, or a patient, or a family, would agree to have their patient treat, their, their kid treated under
I mean, it just doesn’t make any sense to me
I mean, it’s worse than
I mean, both phases, both phases, both arms of the study, you get radiation
It’s radiation alone versus radiation with his stuff
So, I mean, it just doesn’t make any sense to me, given, given the clinical, the phase 2 clinical trial results

So just a, so just a few things, like, you know I’m going to talk about big Pharma, and then talk about the FDA

Right

They talk about the many people as if they’re one person, but, you know, they’re obviously a collective group of individuals who work for an organization, right ?

Well, I mean, I think, the concern is, that the FDA now, by statute is, in no small part funded, by the pharmaceutical industry
It’s like “Pay as you go”
So the, the pharmaceutical ind, industry now, pays for, the processing of the clinical trials by the FDA
So, and then you have the whole concept of the revolving door
You have a lot of government officials going into the drink, uh, drug companies
So I think that’s another problem
So, I mean, you know, I think conspiracy is too strong of a word, m, but, you know, I will say, I don’t think the system’s set up, for an individual like Burzynski, to get a drug approved
I, I, I just don’t see
There’s no support for that
I mean, the days
I mean, it’s like, Einstein, you know ?
He sat in a patent office, and, and doodled, and had his little theory
He could never get his, stuff published today, you know ?
Where did he go to school
?
Where was he teaching, you know ?
So Burzynski has a lot of the same problems
They say he doesn’t publish, but, they won’t let him publish
So, uh, or they won’t let him publish , in, in the mainstream journals
So, I, I, I think though, I think the, I think the system, has a strong bias, against a guy with a discovery
So, that’s not quite saying, there’s a conspiracy, but it’s, it’s sort of along the same lines, and, you know, the conspiracy implies some kind of, um, intentionality on the part of one or two, or some small group or coterie of people, and I don’t know, I don’t think that’s really the case
I think what happens is, the institutions are such that, they allow certain things, and disallow certain things
Alright ?
I think that’s just
there’s no
I don’t think there’s any 2, 3, 4, or some, coterie of Rocka, they’re like a Rockefeller conspiracy
People are saying that there are 12 industrials
That they control the world
I mean, I don’t see that happening, but, the whole system is such that, you know, it’s, it’s
I guess what, uh
The, there’s a book by, uh, a, a, Thomas Kuhn, the Structure of Scientific Revolutions, and he talks about, normal science, and how science progresses, in terms of paradigm shifts
So, normal scientific medicine, works, uh, by big institutions doing, studies about combinations of drugs, after drug companies, invent mostly, modifications of existing drugs, and, less commonly, completely new drugs, and, uh, less commonly, different classes of drugs
So, you have a whole, you have a whole pipeline from a drug company, a whole, uh, uh, mechanism of testing, by the universities, funded by the pharmaceutical company, uh, all the pharmaceutical companies, and that, that just doesn’t lend itself, to one guy, sitting someplace in Houston, or wherever, and having a drug, put through that process
That just doesn’t happen
Burzynski is, so far as I can tell, the only person, to ever completed, a phase 2 trials on a drug he invented
I don’t think that’s ever happened, before, and I don’t think it’ll ever happen again

Ah, was it ’98, was it the chairman, uh

Kessler ?

Kessler
I saw, an interview he gave, press, a press conference where he was explaining about, being able to fast-track
The FDA trying to make it possible to fast-track, you know, drugs that have shown, you know, positive, rather than going through all of this sort of clinical trial, and there’s a guy in the, in the press conference who started asking questions about Burzynski

Right

and you could just see quite clearly he was very uncomfortable

Right

asking questions about, uh, about Dr. Burzynski
How do you think someone like him,
would view, someone like Dr. Burzynski ?

Not favorably
I think that, uh,

Do you think they must know ?
Do you think they must, even he, let’s just say, if he were on his own, he, he knows there’s something there
That he’s obviously got something

I,
I don’t know, uh
I think, that, the guys in conventional medicine, because Burzynski came from orthodox medicine
He was at Baylor
He was a researcher at Baylor
So, I think, they’re not going to Burzynski, is that, he didn’t go about it, the way, other physicians would have done it, other scientists would have done it
So normally what would happen, is, uh, uh, I mean, I think the critical, point in his story is that, when he was at Baylor, and his, uh, professor was supporting him, this Unger, left, you know, they had space for him
They wanted him to go in the Oncology, uh, Department, but, they wanted the patent, to his drug, and he wouldn’t do it
So, that would have been the more conventional approach
You give up the patent rights, you become part of the team, then some big institution, uh, uh, shepherds the drug through, and then they find some drug company support, who will split the patent with the university
So, had he done that, uh, you know, I think the drug woulda been approved by now, but, you know, it was his drug
He came to America with it, and he wasn’t going to give it all away
So, I mean, I just think that’s, you know, I mean and that’s, you know, I think he wasn’t expecting that kind of thing in America
Maybe in communist Poland, but not in America
So I think that really, you know, set him down the path of being a, a, an alternative health practitioner

And wha, wha, what was it like for you when, uh, winning, the case, in was it, 199, 3, 1998 ?

’97

1997

Well, you know, there wasn’t just one case
I mean, I mean, it was everyone
I mean, I analogize it to, like whack-a-mole, or whack-a-rat, you know
You have, like a rat come out of, of a hole, and you bang him, and one comes out of this hole, and all of a sudden you’ve got 2, and then 3, and, so, you know, during the early ’90’s, I mean, I mean, there were 3 grand juries, uh, we had the Medical Board action, which went to hearing in ’93
The Texas Department of Health sued him in ’92
Half a dozen insurance companies had sued, uh, uh, sued him for, for some, for Racketeering
Uh, Texas Air Quality Department went after him
I’m trying to think who else
So, all of this happened, over the course of 3, or 4, or 5 years, and it was just, continuous, and so, one agency would, would get active, and then, they get beaten down
Then somebody else would come, uh, come up, and surface, and indeed, I mean, you know, it, you know, some of them flat out said they were waiting to see what happened, with this oth, wha, what happened with this other agency, and they weren’t gonna do anything, and then when they got tired, they decided, that this new agency had to do something
So, I mean, that was flat out, what happened
So, yeah, I mean, it culminated in the criminal case, I suppose, but even there it was up and down
I mean, the judge ordered, uh, ordered, prohibited him from giving the treatment to anybody else, because the Texas Medical Board case, ultimately went against us, and then we had to go Congress, and Congress forced the FDA to put all his patients on clinical trials which made the Medical B, Board case moot, and then we won the criminal case
So, after we won the criminal case in, uh, ’97, things got quiet for a little bit
So that, that, that was good
I mean, it was quiet
I mean, relatively quiet, and then, uh, lately in the last couple years it’s been very active again

So the worst case scenario would have been
What would have been the worst case scenario ?

For when ?

And this, this
What could have happened this week if the case had gone ahead ?

Well, the worst case scenario would be, there would be a finding, that, that it’s a depart, it’s a departure from the standard of care to use, uh, off-label drugs, that haven’t been approved by the
FDA for an indicated use, and you can’t use the combination of the drugs until someone gives the stamp of approval saying that their safe and effective, which means, you know, you couldn’t, it couldn’t, you couldn’t give the treatment anymore to patients
So you have 100’s of patients that are on this multi-agent gene-targeted therapy, and ultimately that form of treatment is only available at the Burzynski Clinic
I mean, I don’t think that even clinical trials
Burzynski, depending on how you look at it, he’s a few years ahead of, of, uh, well, even the clinical trials
I mean, they’re some clinical trials now on different kinds of cancer where they’re doing 1, 2, or 3 agents
He’ll use 4 or 5, albeit, lesser dosages
So he’s treated 1,000’s of patients like that, but there’s no place else in the world where people can get, the treatment
So it’s kinda the same thing as back in the ’90’s
We have people on drugs, uh, which are unavailable, uh, and, only available through Burzynski
So, if he couldn’t give them, to people, then they wouldn’t get ’em, and, they’re terminal, and, they’re doing well
I mean, or they’re not going to do as well, or they’re going to die
So, it’s, I guess it, it’s sort of the same thing here, ah, uh, only, uh, the irony is all these drugs are, approved by the FDA, and most cancer patients get off-label, uh, drugs
Drugs off-label
So that’s, very common in cancer
It’s just that not common with the drug used on these patients, and in the combinations used

So, this finally
Whe, when you’ve, uh, won these cases, I mean, there must be, it must be good, right ?
It must be good feeling

I had a good feeling last week
I mean, I mean, you know, or I’ve been working non-stop, for months, every day
I mean, there’s no day off in this kind of stuff
It’s just constant
It’s just, his war
There’s always something to do, and then I’m a solo practitioner
So, when the judge cut the heart of the Board’s case out, I’ve been telling the Board, that they can’t, that they have no basis to, to, to bring charges against him, for several years, since 2010
, 2009, and they’re not listening, and, and, I was pretty sure that once you had a judge look at the case, they would, rule in our favor, you know, but the problem is the Board is, like a law unto themselves, and they think they can do anything, and, uh, they just changed the law, in September
So actually, the Board has no recourse
They, they used to be able to change findings of facts, and conclusions of law, but as of September, 2011, they can no longer do so
So, if the, judges’ ruling s, uh, stands, as I think they will, their only remedy is going to be to appeal to a State District Court, and they’re not used to that, because they, like exercising, uh, complete authority
So, they’re in a new position, and I’m sure this is the 1st case, that they’ve ever, not gotten what they want to, from, from a judge, administrative law judge, and not being able to correct it
So, I mean, that, this is a good ti, completely new experience for the Board, and I feel bad for them (both: laughing)

You, you, you do
As a Board they all sit down, and as a group of people, and talk about Dr. Burzynski, and, and, and work out how they’re gonna bring him down, and then ?

Well, that’s more the conspiracy
I, I, I, I think that, some of the Board members, may know of him
He, but, but, but like I say, he’s appeared in front of these informal settlement conferences, and basically, individually they, I mean, exonerate him, of, of the main charges, but I, I, I think that, you know, when we talk about the Board, the Board other than these a, acting informal settlement conferences, where you have one Board member, and one member of some district disciplinary review committee, we’re not really talking about the Board members, these doctors, and lay members of the Board, we’re talking about the Board staff, and that’s the lawyers and administrators of the Board, and I think, you know, I don’t know
I have some, uh, uh, they need to clean house
I mean, they’re getting some very, very bad legal advice, and I, I just think the legal advice at the top, is, is, is horrible, and, and they need to make some dramatic changes, and I think it would be better for the people of Texas if they, just did some house cleaning with the administrative staff there

And what do you think about the way that, uh, Dr. Burzynski’s been , what’s the word, in England, he’s got a very bad press there

(Alright ?)

and, um, why do you think that is ?

Uh, why, well, I mean, look
I mean, I think, people have opinions
They’re,
they have the right to express opinions
I mean, I think, uh, some of his agents did some things that I think, were not wise, in retrospect
I mean

Mhmm

Uh,

The stuff with the, this kid, this blogger

Yes

(?)

And I think that, uh
I think you have to be very careful, about what you tell people that are expressing opinions, and, you know, I mean, I, I, I think, you know, I think there’s a reason why, lawyers get involved in these cases, and should be involved, and I think what happens is, you know, I think there was a, you know, a well meaning, individual, who just went too far, and I think stirred things up unnecessarily so
You know, I mean, I think someone who had some legal training, acting on Burzynski’s behalf, might not have made some of the, you know, just faux pas that were made
So, I mean, that stirred, some things up, and I think

(?) stirred something up that was already there ?
You know, ’cause, I know, I’ve spoken to so many people in the U.K., and, uh, and you find very few people that have anything positive to say
In fact, a friend of mine who’s a famous doctor on television, when I was here, he was on British television with a little girl, and her father, who were trying to, uh, raise money to, um, come over here and, um, in fact, they couldn’t come anywhere, come, they couldn’t come anyway, because, the, uh, FDA said that this type of brain tumor, she couldn’t be treated anyway
But this doctor, who’s a friend of mine said, uh, Dr. Burzynski is, you know, he’s a medical pioneer
He’s, uh, uh, he said that and then literally, for 2 months, non-stop, I think especially on Twitter, they said that he never should have said this, and the guy is a quack, and he’s a, he’s a fraud, and

So your, your friend got in trouble for saying that he’s a pioneer ?

He didn’t get in trouble, but I mean he got a lot of bad press, for speaking on television with this child next to him, saying that, Dr. Burzynski was, you know, a pioneer, and pioneers often have a hard time, and

Right, right

And, you know, you look at Twitter, uh, you probably don’t
You could be (laugh) and you just see, it’s probably, probably the only, 30, hard, hard core people, who spend, all of their time, trying to

Yeah, I think that’s right
I think it’s a very small group, of people, that are making pretend it’s a big movement
I mean, we’ve looked, at some of the traffic
We’ve analyzed some of the traffic
I don’t even think it’s 30
I think it’s more like, 3, or 4, or 5, that are creating things, and then someone had some friend who’s an actor, who has, you know, 3 million followers, and all
So it’s really a very small group of people, but historically, medical doctors who have stood up for Burzynski, have had negative consequences
We had, someone from the National Cancer Institute, NIH testify, this Nick Patronas, and he got in a lot of trouble for doing that
So, you know, it’s not, it’s, unfortunately, you know, speaking up for Burzynski can have, uh, negative career consequences, or, or just some bad P.R., but that’s, part of being a pioneer
It doesn’t mean that, uh, Burz, I mean, if anything, I mean, it shows, it shows that’s like the medical mafia
Yeah
So, that’s what I call, the church of medical orthodoxy
So, that’s what I call
So

Well I, I think it’s gonna be so interesting when I get this film broadcasted, to see what kind of reaction we get
It, it’s just a story I felt I had to (?)

Where are, where are you going to try and get it ?

I’m going to try and get it
I know people at the BBC

Right

I’ve worked in television
So I’m going to try

Oh really, (?)

I’m gonna try those avenues, but you know what ?
Even if it doesn’t

You have cable
You have some kind of public access ?

Yeah
I’ve, I’ve worked in television for years
So I’ve, I have a very good stab at getting it out there, but if I don’t, I’ll get it broadcasted on the Internet

Oh sure
You do, do a YouTube or something, or do what Merola did as a documentary

(?)

That’s had an amazing impact

Yeah
He’s making a sequel
Eric was just over in England

Oh really ?

I looked after him when he came over

Yeah
He wanted to talk to some of the patients and doctors

Eric, I said, ah, you know, so, we’ll see
But listen, I really appreciate the opportunity to ah

Ok, no problem

really, to be able to talk to you
======================================

======================================
http://www.richardjaffe.com
======================================

Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html

Posted on October 25, 2013 by didymusjudasthomas

I will be doing some data clean-up and adding additional video transcripts
——————————————————————
What stood out to me in the first and last videos is that you could hear both sirens and birds

Unlike “The Skeptics™” (sirens) #whining, the birds were celebrating Hannah #winning
——————————————————————
Just as I did with the case of Burzynski patient Laura Hymas, so will I do with her friend, Hannah Bradley

Yes, unlike “Orac” I will let Hannah speak for herself instead of adding any bias as “Dr. Check my Facts” Hack does
——————————————————————
Team Hannah Blog

6/6/2013 – Posted by Hannah

(6:14)

Okay

Hello everyone

It’s uh Thursday the 6th of June

Yes

(laugh) And uh we’ve got some really good news

We’ve kind of been holding back a little but

we just wanted to be certain

so what were you going to say

Uh, I am finally off treatment

Finally off treatment which is great so as far as Dr. Burzynski is concerned, the treatment is now finished

Hannah is free

Free of the bag

Free of

Yes

How’s that feel

Yeah, it feels really kind of strange to be honest

Well you want to go back on it again

But I
I miss the bag, because I miss carrying around ohhh

Now you’re just being a little bit stupid

Um, but the great news is today, we went to go and see Hannah’s surgeon

Yes

Oncologist

A another surgeon another doctor um

Yeah

And that was a bit strange because the last time that we saw
surgeon he gave us
it was probably one of the worst days of our life

Yep

He gave us the results of

Your biopsy

Yep

Which was a grade 3 tumor uh I can remember that like that was yesterday

I don’t really remember

Well but I do

It was amazing uh seeing him today because he’s just basically just agreed with everything that uh that’s been said in America that Hannah’s doing really really well she as far as she’s concerned you don’t have to have any scan for another 6 months

Uh so you know really kind of cancer free and

Yep

Now, you know, it is incredible

It’s a bit of a miracle and

it both hasn’t hit home

really

How much

Yeah

How much is

Well we can start our life

We can start our lives, again

Again (laugh)

And um we just want to say

a massive thank you

the list is just

this isn’t the end for us

I’m sure we

boring you

(laughing)

had a very long day

We had to wait an hour and a half (laugh)

(laugh) Sorry I couldn’t help

Calm down

The the list of people that we have to thank

Need

Need to thank is so long, and obviously way up at the top of that list has to be uh Dr. Burzynski and all of the people at the Burzynski Clinic who have been just amazing, you know

Just so supportive um and I suppose really without that treatment I don’t
I don’t think

I don’t

I don’t think

You don’t think you’d what ?

It’s not worth thinking about

Yeah, it’s not worth thinking about

But um we have to thank every single person that contributed and helped us and supported us along the way

Everyone that helped us raise money

to thank

Here we go

Who else do we need to thank

I think

Come back up

Come on

(laugh)

We have to thank uh

like I said it’s been a long day today

Uh we have to thank Jamie Lowe

Yes

We have to thank Lindley Gooden

Who else do we have to thank ?

Uh all the people that were in Team Hannah

Yeah

All of your friends

My parents

Your parents

Mhmm

Um just everyone that’s been watching these blogs

We really, really couldn’t have done it without you

And um

We are really, really thankful

You don’t want to go do you ?

Hannah and I were thinking about doing our own comedy show because a lot of people
comments like we’re so funny

Yeah

And who’s the funniest

Uh oh you

Yeah you

Me
Me
Me

So, I don’t know what else to say really apart from, you know, this is really a bit of a fairy tale for us

We know how fortunate
we are and we know how
people
who we met along the way
who weren’t
haven’t been as fortunate as us

So we uh

So, are you alright down there ?

we’re talking about something serious

Very

Yeah, we know a lot of people who haven’t been as fortunate

As fortunate as we have people are forever in our hearts

You know, um, we know how lucky we are and um

We’re going to make the most of our lives the most of our lives together

Um, yeah

We really do think that

No don’t

You know, there was a time

Many, many times where I really didn’t think that Hannah would be here but, you know, we’re talking 2 1/2 years ago that she was diagnosed and she’s doing better than ever even though she is yawning

(laugh)

I don’t think there’s any words that really put into a sense of how so lucky we think we are, and I really think it’s how our legacy to live with that and try and inspire other people as much as we can as well

So, we’re not going to get go anywhere we’re still we’ll still let you know from time to time how we’re getting on

Uh um I also think we need to give a massive shout out to Ben and Laura Hymas as well who, who really, we went to see them the week before we went to, out to America, and it was there, was a, was a bit of a shock

Really

Realizing what we were about to take on but um she’s

I’m very sorry

She’s someone else who’s done well and we want to give a big shout out to them because we know that they’ve got their lives ahead of them as well as we do too

So, I think without any further ado we’ll give your famous wave

(wave)

It’s not really a wave, is it

Thank you very much everyone

Thank you

Big hug

Wanna hug ?

C’mon

C’mon hug us [10]
======================================
London [1]

4/2010 – first met Hannah and we fell in love and since then our relationship has gone from strength to strength [3]

Hannah (28) has great personality and fantastic sense of humour [3]

10/5/2012 – from Elstead [12]

4/4/2013 – Hannah Bradley (28) [11]

Hannah Bradley from London, UK [15]

======================================
MOOD
======================================
Looking back now, was quite naive [1]

2/2011 – world took dramatic turn [11]

Hannah Bradley from London, UK [15]

To my complete horror [11]

whole world was turned upside down [11]

confused [11]

scared of all the unanswered questions that lay before me
why was this happening to ME? [11]

What did the future hold? [11]

Will I be okay? [11]

absolutely terrified as realised something seriously wrong [15]

Everybody else went into panic, but shock calmed [15]

Inside, scared, could see how frightened Pete was [15]

wasn’t easy decision but really wasn’t another choice [15]

Fear pulsed through me as was wheeled to theatre for operation [15]

4/2011 – thought once surgery over, tumour would be gone [1]

“Hello,” I croaked [15]

“Have I still got all my hair?” [15]

beamed as Pete nodded [15]

long blonde locks were pride and joy, and surgeons managed to operate without having to shave any [15]

Waiting for results was one of most harrowing periods for me and my partner [11]

had to wait for results of biopsy for few weeks and remained positive [3]

while trying to remain positive throughout [11]

tried to keep busy so didn’t dwell on what doctors would say [15]

it was hard [15]

sensed before they even spoke [15]

faces were so serious it had to be bad news [15]

Obviously medical professionals have to be detached when deliver news, but we completely broke down [15]

tried to bite back sobs so could hear what they were saying [15]

blinked for moment, realising meant me [15]

left hospital, in daze [15]

went to sit in park for 2 or 3 hours, working out how to tell everyone [15]

rang dad, feeling ashamed he had to deal with news [15]

didn’t want to upset him [15]

Pete and I rang close friends and family and became easier each time [15]

got chain going to spread news so didn’t have to ring everybody, which was relief [15]

gave me space to come to terms with diagnosis [15]

Once able to get head around it, felt detached from it: [15]

needed to get through next stage now [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

Hannah’s bravery and resolve once again rose up as shortly after this she started 6 week course of radiotherapy [3]

news was not good and world was rocked once more as results showed Grade III tumour [11]

whole world suddenly fell apart again and that very moment I didn’t know how to go on [11]

knew had to carry on and from somewhere I didn’t know existed within me, found some bravery and started to have next course of treatment, 6-week course of radiotherapy [11]

hope you will understand this was REALLY difficult for me as I loved my hair and without it felt horrible and ugly [11]

coped well at first, until hair came out in clumps [15]

warned could be few patches of fall, but lost it all [15]

wore headscarves but mourned my hair [15]

work in skincare sales and used to having to look my best [15]

know it was vain, but hair was part of my femininity [15]

missed it [15]

awful but kept going, knowing had to [15]

Seeking alternatives [15]

full of hope [15]

know it’s long fight ahead but feel everyone is behind me and
get so much from that [15]

have a mantra, which like to think I made up but think I read somewhere: [15]

‘You never know how strong you are until being strong is the only choice you have.’ [15]

exactly how I feel [15]

there was some hope [12]

was truly an incredible time and once again I was filled with hope as so many people came to my aid to support me by raising money and donating what they had [11]

still so thankful for all that support [1]

absolutely overjoyed [1]

wouldn’t turn my back on conventional medicine, but would advise anyone in situation like mine to look into other options – there could always be another way [1]

“If this whole thing has taught me anything, it’s that.” [1]

Thankfully along with other treatment, strategy has worked for me and I’m now trying to help others who are fighting against this horrible disease [11]

======================================
HEALTH
======================================
was salesperson when diagnosed with cancer [1]

ate on the run [1]

smoked [1]

had no real symptoms or warning signs [1]

2/2011 – out of the blue, Hannah had major seizure in middle of the night [3]

2/2011 – one night Hannah’s life changed drastically without any prior health concerns suddenly had major seizure [12]

2/2011 – had grand seizure while asleep [1]

2/2011 – major seizure in middle of night [11]

arms up in the air, body shaking [1]

2/2011 – lost consciousness and was rushed to hospital [3 + 11]

woke in hospital, had no idea what had happened, tests revealed brain tumour size of golf ball in frontal lobe [15]

didn’t know anything wrong before had massive seizure in sleep [15]

boyfriend thought was having nightmare at first, but when couldn’t wake me, realised was unconscious and called ambulance [15]

came round in hospital few days later and didn’t remember anything [15]

underwent countless tests, absolutely terrified as realised something seriously wrong [15]

2/2011 – 4/2011 – don’t remember much about 2 months that followed apart from seeing many doctors, having constant headaches and a # of seizures [11]

had constant headaches and number of seizures [3]

Eventually CT scan showed brain tumour, turned out to be very aggressive, anaplastic astrocytoma [1]

week after CAT and MRI scans told had brain tumour size of golf ball [15]

in frontal lobe and probably growing there for years [15]

doctor gave 3 options: [15]

leave it and see what happened
have biopsy to discover what type of tumour it was and how aggressive
go for surgery to try to remove as much as possible [15]

diagnosed with very serious brain tumour [3]

diagnosed with very aggressive brain tumour [11-12]

2/2011 – 4/2011 – have no memories of that time, from the night of seizure to coming around from 8-hour operation to remove tumour 2 months later [1]

had about 4 more seizures – including one 2 nights before surgery last April – after discharged because tumour growing and putting so much pressure on brain [15]

Pain throbbed through inside of skull as peeled eyes open [15]

Groggy, focused and saw Pete smiling down at me [15]

was in hospital 5 days before going home to rest and getting biopsy results [15]

2 weeks later, went back to see consultant and specialist nurse [15]

news was not good and our world was rocked once more as results showed Grade III tumour [3]

tumour was cancerous and had scary name – anaplastic astrocytoma [15]

4 grades of brain tumours with 4th being worst [15]

Mine grade 3 [15]

statistics quoted said person with grade-3 tumour lives around 5 years [15]

life expectancy for people with tumours like this was 18 months [1]

2 weeks into treatment was hit by wave of tiredness [15]

so shattered had to go to bed for week [15]

went well for 1st few weeks but followed by hair falling out and bouts of tiredness and lethargy [3]

lost hair
started having seizures and didn’t know how long she had to live [12]

was still having seizures and lost independence with losing driving licence [11]

On top of all of this, dealing with losing driving licence as had number of seizures and now has epilepsy [3]

At end of July, had another MRI scan, revealed still residue left from tumour [15]

6 weeks after radiotherapy finished, had another MRI to see what was going on with tumour, Once again more bad news, as there were still remnants of aggressive tumour [3]

Although it was hard I remained hopeful that 6 weeks after radiotherapy would help and I could go on to live a normal life but again results of next MRI were not good [11]

There were still remnants of aggressive tumour [11]

At this point treatment options where very limited and life expectancy was not very long [11]

was told only options available on National Health Service were to operate or have radiotherapy again [15]

Chemotherapy also mentioned but not strong enough for that [15]

doctors said were really uncertain of expected life span if didn’t do anything and since treatment options in UK so limited, we want to try something else [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Just 8 months after starting treatment had some incredible news [12]

latest scans show she is cancer free [12]

desire to beat this disease led me to make number other lifestyle changes [11]

One of biggest changes has been dietary; specifically cutting out most sugars from my diet [11]

involved learning how to cook, which in itself was huge challenge because I hated cooking with a passion [11]

Over time I started experimenting with different foods and became more and more adventurous and dare I say it, I even started to enjoy coming up with new healthy recipes [11]

quickly learned that exclusive food of cancer is sugar, so quickly embraced this and cut out almost completely starchy carbohydrates and refined sugars by incorporating sugar free/starch free food plan [11]

idea being that diet would feed my body, mind and starve cancer into submission [11]

also learnt this type of diet is good for blood sugar regulation, body composition and is consistent with the way that our ancestors ate thousands of years ago [11]

After months of experimentation and with help of couple of great cooks, have learned to make delicious and nutritious healthy meals and this is why I decided to write my own book, The Team Hannah Cookbook [11]

It’s my contribution to helping and inspiring others to eat a better diet [11]

I would hope you can enjoy these recipes and make them part of your diet [11]

This book will show you how easy it is uto cut out the carbs and still eat “normally.” [11]

I now believe that dieting and counting calories doesn’t work [11]

Low carb is the way forward [11]

You will find in my book great low carbohydrate recipes for – Breakfasts, Breads & Pastries, Starters, Salads, Mains, Desserts, Treats [11]

======================================
TREATMENT
======================================
2/2011 – partner, Pete, called ambulance, was rushed to hospital, unconscious [1]

decided to have operation, hopeful would get rid of it [15]

in hospital 2 weeks following 1st seizure and put on strong medication to stop from having fits [15]

kept awake 2 1/2 hours of 6-hour surgery – medical team wanted to make sure weren’t damaging any part of brain, where tumour was, relating to speech and language [15]

made list of what to talk about with speech therapist during operation, such as meeting Pete at conference in Croatia year before; favourite American TV series, Friends, niece who’d been staying with family week before seizure [15]

remember having to touch fingers with thumbs to check movement still there, hand or my leg would involuntarily move when surgeon touched particular part of brain and asking anaesthetist to scratch itch on nose [15]

“It’s going fine, we’re putting you back to sleep now,” voice said and everything went black [15]

4/2011 – 8-hour operation to remove tumour [1]

4/1/2011 – decided to have surgery underwent 6 1/2 hour operation [3]

4/1/2011 – surgery and underwent grueling 6 1/2 hour operation [11]

awake for nearly 3 hours of this operation [3]

nearly 3 hours of operation was awake [11]
——————————————————————
Pete Cohen chats with Dr. Juan F. Martinez-Canca, Neurosurgeon (Consultant) about Hannah Bradley:
https://stanislawrajmundburzynski.wordpress.com/2013/11/08/pete-cohen-chats-with-dr-juan-f-martinez-canca-neurosurgeon-consultant-about-hannah-bradley/
——————————————————————
operation was success and they managed to remove nearly all of tumour [3]

To my relief
results of operation were fairly successful and surgeon managed to remove uhmost of tumour [11]

diagnosed with Anaplastic Astrocytoma brain tumour and over next few months endured 6-hour operation and 6 weeks of radiotherapy [12]

started radiotherapy 8 weeks after surgery [15]

full on – 6 weeks of treatment, Monday to Friday [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

radiotherapy went well for 1st few weeks but fears were confirmed when hair started to fall out [11]

was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour [1]

Pete started researching alternative treatments from beginning and was Dr Stanislaw Burzynski, biochemist and physician in US, who seemed right choice for me [15]

found pioneering treatment in America which could give her a chance [12]

One name kept cropping up [1]

Dr Burzynski [1]

treatment is controversial – claims to have identified peptides called antineoplastons, which act as molecular switch to turn off cancer cells without harming normal cells [15]

After reading everything we could, decided to try it [15]

At his clinic in Houston he’s developed a treatment using anti-cancer compounds he discovered and now manufactures – and is treating aggressive tumours, especially ones in the brain [1]

controversial [1]

medical community claims unscientific and unproven [1]

oncologist didn’t want me to go – he wanted to monitor tumour and maybe give more radiotherapy in future [1]

that was like containing it, not getting rid of it, and treatment hadn’t worked so far [1]

Dr Burzynski seemed to be only hope of getting rid of cancer for good [1]

In order to get it needed to raise £150,000 [12]

treatment wasn’t cheap (about £200,000) [1]

treatment very costly, and even using all savings didn’t have nearly enough [15]

£200,000 (Dh1.16 million) needed to go to US, plus ongoing shipping of drugs from States and private monthly scans will need for 12-18 months, was out of reach [15]

Family and friends offered to help, soon there was Team Hannah website [15]

Within few weeks had £35,000, enough to go to US for consultation and start treatment [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Treatment available in America [12]

Luckily was able to take part in phase 2 clinical trial in Texas, USA [11]

treatment isn’t available via NHS so had to raise considerable amount of money [11]

12/2011 – flew with Pete to Burzynski Clinic [1]
——————————————————————
12/10/2011 – Saturday – video blog
leaving tomorrow morning
——————————————————————
12/11/2011 – Day 1 – Sunday
flew to USA
massive headache
thought was going to faint
——————————————————————
12/12/2011 – Day 2 – Monday
Burzynski Clinic
temp check
vision test
meeting: Dr. Yi oncologist / Dr. Greg Burzynski
(Dr. Rowkowski)
——————————————————————
12/13/2011 – Day 3 – Tuesday
Burzynski Clinic
inject sugar syrup
PET scan
MRI scan review
?’s memory / spelling jumbled
fill out form
Valium
(as much local anesthetic as could give her w/o knocking her out)
catheter – Hickman line
(painful / really painful)
——————————————————————
12/14/2011 – Day 4 – Wednesday
Burzynski Clinic
(feeling wrecked / absolutely wrecked)
start treatment
6 doses of antineoplaston a day
4 hours apart
almost 24 hours continuously
(had chest x-ray)
(Dr. Barbera – talk pain medication)
lessons: clamps / hoses / pump
——————————————————————
12/15/2011 – Day 5 – Thursday
Burzynski Clinic
(Day 2 of treatment)
lessons: change pump
——————————————————————
12/20/2011 – Day 10 – Tuesday
Burzynski Clinic
Dr. Yi / Dr. SRB
enhancing – asked to stay month – next MRI to be done
——————————————————————
12/22/2011 – Day 12 – Thursday
Dr. Hilary Jones on Daybreak
(Pete’s colleague)
——————————————————————
12/24/2011 – Day 14 – Saturday
fever
bad breathing
shivering all night
——————————————————————
12/25/2011 – Day 15 – Sunday
Burzynski Clinic
flu symptoms
breathing
headache
uncontrollable chills couldn’t stop
Monica
off ANP
absolutely exhausted
in bed
little bit of swelling back of head
——————————————————————
12/27/2011 – Day 17 – Tuesday
back on ANP
temp 102
called Burzynski Clinic
off ANP
temp down / up
——————————————————————
12/28/2011 – Day 18 – Wednesday
Burzynski Clinic
on ANP much smaller dose
exhausted
close to breaking / cracking
——————————————————————
12/29/2011 – Day 19 – Thursday
hospital
“I’m at my wits end”
“I don’t feel I can take anymore”
——————————————————————
12/30/2011 – Day 20 – Friday
last week up & down
off on off on off
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R.
surreal
——————————————————————
12/31/2011 – Day 21 – Saturday
fever in middle of night
temp 102
Dr. SRB thinks flu-like symptoms or tumor actually breaking down ->
——————————————————————

1/2012 – started treatment [11]

——————————————————————
1/1/2012 – Day 22 – Sunday
Burzynski Clinic
feel drunky
prob w pump – not closing
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky

Gary – directions re pump equip
——————————————————————
1/17/2012 – Day 38 – Tuesday
Burzynski Clinic
temp 101.8
throat infection
If 102 take off ANP
BC 3x – blood – supplies
antibiotics 1 day

antibiotics 2 day – over 102 last night

fever
antibiotics been on 3 days
off ANP
disappointed
pointless
——————————————————————
1/20/2012 – Day 41 – Friday
fever
104 (103.9)
Friday night
——————————————————————
1/21/2012 – Day 42 – Saturday
Burzynski Clinic
temp up to 104
Dr. on-call – Ibuprofen
102.5
yesterday afternoon (blood) rash ?
off ANP
Dr. Popper
——————————————————————
1/23/2012 – Day 44 – Monday
Burzynski Clinic
Dr. SRB
gave name from pic
some itch
MRI – was to have Wed (12/29/2011 prev MRI)
less tumor
less enhancement
shrunk by at least 10%
call Dad

Been 1 month
Discharge
take Ashley
Rick
Fri – leave
——————————————————————
1/26/2012 – Day 47 – Thursday
Burzynski Clinic
Stable Disease
stabilization
——————————————————————
1/27/2012 – Friday – leave
——————————————————————
medication is administered directly into your body through Hickman line 24 hours a day [1]

not an easy option [1]

Pete and I learnt how to prepare and administer treatment ourselves and carried on in Britain for another 18 months (1 year 6 months) [1]

were there for 7 weeks, and scans showed in that time tumour reduced by 11% [1]

Thankfully has been successful in shrinking tumour [11]

blood was checked twice a week, was scanned every 6 weeks at private hospital [1]

Most importantly, seemed to be working [1]
——————————————————————
6/2012 – back 6 months
3 scans

6/13/2011
12/7/2011

3/21/2012 – 1
5/2/2012 – 2
7/29/2012 – 3

7 weeks at Burzynski Clinic

Complete Response
——————————————————————
tumour kept getting smaller, in January this year it was all gone [1]

started treatment and after 9 months had complete response and will continue on treatment until 4/2013 / 5/2013 [3]

now off treatment but still being monitored [1]

Dr Burzynski isn’t miracle worker [1]

There are well-publicised cases of families raising money for children to be treated at the clinic but children still tragically dying [1]

People have posted on our website that it doesn’t work, but I’m convinced that, if we hadn’t found him, I wouldn’t be here today [1]

======================================
SUPPORT
======================================
Pete Cohen: Team Hannah set up to save life of my partner, Hannah Bradley, who’s 28 years old and has brain cancer [3]

All this time, without knowing, Pete had been looking into things, searching, talking to anyone and everyone who could possibly help [1]

needed to raise around £200,000 to give her opportunity to have life-saving treatment at The Burzynski Clinic in Houston, Texas [3]

Pete launched campaign – friends and family gathered around, held events, our local radio station supported us – in 2 months already had £100,000, enough to start treatment [1]

You helped her to get it… [12]

Eagle Radio wanted to help give Hannah hope by raising money towards her fund [12]

you wanted to help too [12]

Hannah came in to Eagle Radio to meet Breakfast Show presenters PG and Bev [12]

Listen to interview here: [12]

Pete (Hannah’s boyfriend) met our reporter Anthony Zahra and starts by talking about how couple met: [12]

Jeremy (Hannah’s dad) spoke to our reporter Elizabeth Williams: [12]

photos on Hope for Hannah appeal [12]
——————————————————————
Fundraising events you told us about [12]
——————————————————————
7/21 – Matthew Cank from Farnham doing sponsored bike ride with friends riding from John O’Groats to Lands End [12]
http://2theend.co.uk
——————————————————————
**
2/24 (Friday) – Pure Dance at Backline, Guildford from 8pm to 2.30am House, electro & trance music with DJs on rotation Entry £10 with all proceeds going to the appeal [12]
——————————————————————
**
2/25 (Saturday) – Dinner, Dance and Auction at The Mandolay Hotel, Guildford (6.30pm to 12.30am) evening of fantastic food & excellent entertainment [12]
——————————————————————
**
3/3 (Saturday) – special night held at Godalming Naval Club by Hannah’s best friend
£7.50 a ticket All money to the appeal Includes – food, disco, raffles, auction and more [12]
——————————————————————
**
5/19 (Saturday) – Health, Beauty & Fitness Fair at Clock Barn Hall, Godalming Free admission, free talks on health, fitness and nutrition Includes – mini treatments, fitness drop in classes, taster sessions, new health products Raffle & bucket collection to raise money for Team Hannah [12]
——————————————————————
Your generosity was astounding and Hannah surpassed her target much earlier than she could have dreamed [12]

Hannah’s Annectdote

A film about Hannah’s journey to The Burzynski Clinic

film we made called Hannah’s Anecdote [3]

made to share with world Hannah’s journey to beat cancer and live normal life [3]

you can see Team Hannah blog we started October last year as well more information about Dr. Burzynski and treatment for cancer [3]

totally aware of controversy surrounding Dr. Burzynski but have seen with our own eyes he saved Hannah’s life [3]

share this with everyone you can, so together we can raise awareness of Hannah’s success and of Dr. Burzynski [3]

cookbook by Hannah available at teamhannah.com [1]

Any help you give will be most appreciated and will keep you updated with Hannah’s journey [3]
http://www.teamhannah.com/

Thank you for donating, raising awareness and simply helping to give Hannah hope [12]
——————————————————————
Hannah’s Annectdote: (40:42)
——————————————————————
A film about Hannah’s journey to The Burzynski Clinic
——————————————————————
Look

You’ve got a spirit level in the cam, in the front of the camera for a reason

I know

Ok
——————————————————————
Hannah’s Anectdote
——————————————————————
I’m Hanna Bradley and I’m 27 years old
I have
Well, I found out I had a brain tumor in February 2011
The way I found out is, I had a seizure in, during the middle of the night
I don’t remember anything, but my partner Pete tells me that I did
Rushed to hospital and about week later I was diagnosed with a, an aggressive brain tumor
And then I had to have an operation to remove the brain tumor and I went back for the results, which weren’t that good and I had to go for a radiotherapy

And I spoke to a friend of mine, an incredible man, he’s a doctor, he, he’s retired, he said, why don’t you just look and find people in the world who still have this condition and still alive
So, that’s what I did
And I found some people, and it, and they all led to this guy Burzynski, but you mention Burzynski to uh people who work in the world of cancer, and it’s just like, they, you know, the barriers come up immediately
Chemotherapy, radiotherapy, there’s no question about the fact that these things uh, are reflective and they are, save people’s lives, but that’s not what Hannah wants to do
(If I could go there, and take myself off there, I could)
Burzynski’s work is, some people wouldn’t say it is gene-targeted therapy
Basically it’s peptides
Peptides uh form amino acids in the body, and he’s found from his research that uh, certain people do not have these types of peptides, and uh especially people with certain types of cancer
What have you got to lose, and what’s the worst thing that can happen, if it doesn’t work ?
What’s the best thing that can happens ?
It saves her life
(laughter)
(I’ll give the ass a smack)
——————————————————————
video blog 13th of November 2011 (2:00)
——————————————————————
(Come sit down)
Good morning
Good morning
Good Morning

Why this week is such a big week is we go to see Hannah’s uh GP tomorrow, and we really need him on side with the treatment that Hannah’s going to have, and, and that could pose a bit of a challenge, because this treatment with Dr. Burzynski is not peer-reviewed, and what that means is that, with the NICE guidelines in this country, people are
very unlike to promote a uh treatment that isn’t peer-reviewed in the way that they would want it to be, but, we’re hoping that he will help and support is when we come back

Yeah

We will also go and see the oncologist this

Yes

which is gonna be a very interesting conversation because again, we want their support
It’s unlikely, very unlikely that they’ll give us the support that we need
because when Hannah comes back, she’s going to need MRI’s every month, and that’s just not gonna happen
We’re going to have to pay for that, but, we’ll let the pets do that of course
We’ll let you know next week, but this week is gone, but for now this is Team Hannah saying, Team Hannah, Team Hannah saying
Goodbye
Bye
Goodbye
That the wave that you do
(laugh)
I’m getting better at the wave
I don’t know about that, darling
——————————————————————
Royal Free Hospital
London – December 2011 (3:19)
——————————————————————
You know, maybe I’ve been led down a garden path if you like, going to work with Burzynski, because you speak to any oncologist; which we have, lots of (?) specialists in this field and they say:
“No don’t do it”
“The guy’s a charlatan”
“You’re wasting your time”
“You’re wasting your money”
“It’s not going to work”
“There’s no clinical research”
But I feel in my heart that we’ve gotta do this
Not just because, you know, what is there left to do, but I actually think it’s going to work
Is it going to be a placebo effect, or is it actually going to be that what this guy does works ?
I’ve spoken to people who he, who he’s treated uh and they all can’t speak highly enough of him and of the clinic that we’re going to
So I’m going to film as much as I can of her journey, and she’s happy for me to film
And the clinic in Houston are happy for me to film whatever I want
So I’m going to
——————————————————————
video blog 10th of December 2011 (4:10)
——————————————————————
I don’t know how many blog videos we’ve done but we’ve done quite, quite a few and I think it’s amazing that we’ve got to this point
It doesn’t seem very long ago that we were sitting and talking about doing this, and within a few months we’ve raised all this money and we’re, my bags are packed
Your bags is almost packed

My bag is packed

And your bag is packed and we’re leaving tomorrow morning
I know there’s been a little bit of controversy

Yeah

about what we’re doing, but please, whatever you hear about it, we have done a lot of research into this
and we feel very confident about what we’re doing, were going to get very well looked after and we’ll be able to share all of that with you
So, next time you see us we’re going to be in

Houston

Texas
——————————————————————
Day One (4:52)
——————————————————————
Good morning Hannah

Good morning

And where are we ?

At the airport

So, you ready for this ?

I’m ready

Ready to start this next phase of our journey ?

Yeah

I’m really ready
I hurt, like I’ve got a massive headache

Yeah
That was pretty traumatic for you, wasn’t it ?

Yep
Pressure
Um, and getting through customs and everything like that
I felt like I was going to faint
Um, yeah, apart from that all good

Yeah ?

Yeah

And how’s it feel to be in Texas

It doesn’t feel any different at the moment

(laughing) (?) that’s a (?) Avis rent-a-car thing-a-ma-bob
——————————————————————
Day Two (5:37)
——————————————————————
(?) there you go
Right-o

Hello everyone

I’ve

I’ve got less hair than Pete

Are you looking in the camera or are you looking in here ?

I’m looking in here

Uh what are you looking there ?

(laughing)

Hello
Everyone
Today is going to be a very interesting day
We’re going to film, all that we can
We’re not going to meet Dr. Burzynski
We won’t be meeting him until the 19th, but we feel more than happy to be meeting his fellow doctors
What’d you reckon ?

You’re going to kill me in the car before you, we get there ?

Why

Because you’re trying to film and drive, and you don’t know where we’re going

Well spotted
Look
There it is
We’ve finally made it

So how’d you feel, that we’re finally here ?

Yeah
I feel good

Do you ?

Yeah

You ready ?

What are your expectations ?

I have no idea

Well, lets go and find out

Don’t have any expectations although I sure don’t want to be disappointed
——————————————————————
[Temperature]
(Close your lips please)
——————————————————————
[Eyesight]
(Ok
How about this one ?)

(Ok. We’ll have to go )

(laughing)

(I’m sorry)

Should I actually be able to ?

(#5)

Ok
P E C F D

(Ok. Good)
——————————————————————
So, was that bad ?

Uh, can’t see any of them

Oh, ok
——————————————————————
Meeting with Dr. Yi and Dr. Greg Burzynski (7:14)
——————————————————————
(?) we’ve reviewed your scans, your MRI, and we’re very aware of your case

Yes

We have permission to start you on the antineoplastons

Mhmm

which as you know are in the final stages of drug approval

Yeah

Dr. Yi is the oncologist on this case

Yeah

Likewise Dr. Rowkowski will be involved
Likewise I’ve an I’ll, I’ll be on the case

Ok. Great

And my father as you know is aware of what we’re doing here

Yeah

So as early as Wednesday we’ll be starting treatment

Mhmm

Tomorrow we can put in the catheter, and this is an external
——————————————————————
Day Three (7:44)
——————————————————————
What else is happening today ?
Look

Don’t want to think about it right now
Gonna have some sugar syrup put into me

(?) PET scan

Yeah
Which they inject sugar
I’d rather eat some

Yeah
Inject sugar and then you’re also having a, this Hickman line fitted

Yeah

Hopefully they’re gonna let me put on a white coat and come and be by your side

You can’t put on a white coat
You’re not a doctor

Well hopefully they’ll let me film

Well I don’t care about filming
I just care about you being there
——————————————————————
Hannah’s MRI scan review (8:15)
——————————————————————
So this is the one that was done in December, right ?

Yeah
This is the one that was done in December, and it has increased

‘Cause if I look at the, it’s more intense

Yeah

There’s more weight

Yeah

upon the image
Ok

Seen change in a month, right ?

Yeah
It’s in a month
That’s why

Less than a month

Yeah
That’s why kind of it’s a little scary
’cause it has
I mean it looks like it’s more prominent now

Yeah
——————————————————————
(8:46)
——————————————————————
after (?) this MRI scan, and you can see that the tumor is enhancing
She doesn’t know that
How will I tell her ?
Probably not, but she’s probably going to ask, and if the tumor grows like it’s, then you just saw in the scan, then how long does Hannah have left
——————————————————————
(9:06)
——————————————————————
Yeah
That would mean very

That’s pretty good
Ok
That’s good
That’s good enough
So any memory problems ?
Any speaking proc, speaking problems

No
No, not really

Spelling
Spelling, yes

Ever since surgery

So, what kind of problem ?
Like when you spell you miss letters ?

Yeah
Her spelling

Why, yeah
It’s just I’m jumbled

Yeah
——————————————————————
(9:28)
——————————————————————
Right
So uh were just getting ready now for Hannah to go in and have her PET scan and uh catheter Hickman line fitted and she’s just filling in the form
I’m not even going to ask her how she’s feeling or anything like that ’cause she’s feeling a little emotional
——————————————————————
(9:48)
——————————————————————
(?)

(laughing) You’ve just taken some , some Valium as well, have you ?

Not helping

This is like your biggest con, fear, isn’t it ?
I just show everyone what you’ve just done to my hand as well
——————————————————————
(10:04)
——————————————————————
What I’m doing is I’m creating a little tunnel under the skin
So I have to use just a little bit of pressure
So if I hurt you, you tell me
Ok ?

How are you feeling ?

Shhh

(laugh)
Well, you’ve done so well darling

I’m feeling really cold

Hungry ?

Yep

Alright
——————————————————————
(10:30)
——————————————————————
You look like you’re some sort of Holy Woman
People are going to come in here and bow to you
Did, did, did you feel that when it was going in and stuff ?

Not really

Little bit
It’s a little bit painful now ?

Yeah
It’s quite really painful now
Yeah

Well, it’s a massive tic, of something we have to get done

Yeah, I know
——————————————————————
Day Four (10:52)
——————————————————————
I’m feeling wrecked, absolutely wrecked

(laugh)
Well you had, bit of Valium yesterday

Yeah

And you had as much um local anesthetic

Yep

as he could give you he said, without knocking you out,

Yeah

but you were very, very brave yesterday, do you not think ?

I don’t think so

Why not ?

I wasn’t brave about the (canada ?) they put in here
——————————————————————
(11:23)
——————————————————————
Yes

What’d you think of
What, now what did you think of Judith Curran ?
Talk to

Oh, she’s great

( Skype on at the same time)

She’s like a mother

Yeah

Yeah
Is she ?

Yeah

(Yeah that’s fine. Whatever)

Yeah, she really does love you

( I’ve got something)

More than most

(?) all mom’s girlfriends

Mum uh Hannah just, I said, I just asked what she thought of you and she said she thought you’re like a mother

(Pete’s Mum)

Ohhh

I really do need you here

Oh dear
Well you have to have a partner mother at the moment

Yeah

But you need cuddles you mean ?

Yeah

Ohhh lots of cuddles
Oh no, no, no don’t

I asked
I’ll go

I need something dressed there

She needs help getting dressed
——————————————————————
(12:16)
——————————————————————
It’s, it’s, you know, it’s basically it’s uh, it’s a little roadway right into your bloodstream, so yeah, it has to stay very clean, and our thing is that we have to teach you

Yeah

how to do this

Yeah
——————————————————————
(12:32)
——————————————————————
You get 6 doses of antineoplaston a day,

Mhmm

they’re 4 hours apart
So, yeah, it’s almost 24 hours continuously

Mhmm
——————————————————————
(12:41)
——————————————————————
These are your bags

Ok. Thank you

and I’m going to wait until Dr. Barbera comes and talks to you about the pain medicine

Yeah

Then we will go ahead and hook up

Yes

because she did get the chest x-ray and everything’s a go
——————————————————————
(12:51)
——————————————————————
And everything goes in with a push and a twist

Ok
Quite simple

Alright

Yep

So obviously we’re gonna, when the fluid, we need to open up the clamp

Mhmm

And I always double, triple-check, make sure all the clamps are open

Yep
——————————————————————
(13:10)
——————————————————————
I’ve been on the treatment, I don’t know
It, it’s about
I don’t know
Half day ?

How are you feeling ?

It doesn’t hurt

Yeah
And this is what you’ve got to carry around with you

Yep

Now it’s like

It’s (?) my new bike

a baby
Something you have to have with you all of the time, and me with you all of the time

Oh (laugh) Oh god
I can cope with that

Ever since this all happened it seems like it’s just been one thing after another

Yeah

of obstacles

Yep

But we’ve got this far
Who woulda believed that we’d raise the money to get out here

Mhmm

which we have done, and now we’ve started on the treatment and I am pretty impressed with them there I must admit

Yeah
They’re really nice
——————————————————————
Day Five (13:52)
——————————————————————
Yeah
This is day, it’s day 4 yeah ?
Day 2 on the job
Day 5
Day 2 on the treatment
Mmmm I need a bit of a shave
um and um yep

You need a bit of a shave
So do I

Yeah, yeah, yeah, yeah, yeah
——————————————————————
(14:08)
——————————————————————
Hi
So, can I get ya

You need a pen ?

Uh, yes please
So pull this back ?

Pull it back to undo the lock
Ok, pump is off, so your next step is to disconnect it
So push in and twist, clockwise
——————————————————————
(14:26)
——————————————————————
How’s your new friend ?

Yeah, she’s good

Yeah ?

Mmm

What have we done today ?

We’ve learnt more lessons

I’ve learnt more lessons about changing the, changing the pump
How did I do ?

Honey you did well

You think so ?

considering

Considering what ? (laughing) How challenged I am

No, considering how hard it actually is
That you did well
——————————————————————
Day Ten (14:54) Meeting with Dr. Yi and Dr. Stanislaw Burzynski and
——————————————————————
Yeah, I think so far where we are we have been very impressed with all we’ve seen

Thank you very much
It looks like (?) we should not (?)

a pretty traumatic day because uh we met with Dr. Burzynskibut he didn’t give us the sort of news that we wanted uh because he’s concerned that the treatment may be enhancing uh and he wants us to stay here until at least um Hannah’s had one month on the treatment and to do MRI and see what’s going on
We can stay here
That’s the most important thing
Just imagine if we had to go home
You know ?
I know you’re tired of all this, you know, and its hard work, and it’s, you know ?
——————————————————————
Day Twelve (15:46)
——————————————————————
So the last time we kind of filmed was when we were with Dr. Burzynski and him saying do we want to stay and that

Yep

And how, how do you feel about that now ?

Yeah, i’ve got my head ’round it

Do you have faith in him and ?

Yeah, again I know that I’m in the best hands
——————————————————————
Pete’s colleague Dr. Hilary Jones appears on ‘Daybreak’ morning TV show in the UK (16:04)
——————————————————————
Are there question marks for you with regards to going over there to this particular clinic ?

I think what we have to bare in mind is that uh the treatment that, that Dr. Burzynski is offering is, is very uh experimental
It’s pioneering research, and pioneers in medicine tend to get a rough ride to begin with, and uh he hasn’t uh uh published the numbers of people in trials that convince the established authorities that his treatment uh works
It’s very interesting treatment
We’ve known about these peptides which can switch uh tumor genes on or off, and this is a different approach to these kind of tumors, that’s uh over and above oncology, chemotherapy, radiotherapy
Um, his results um, if you look at them um, sometimes appear extraordinary in some cases um but of course not in all cases
So it’s very difficult to evaluate, how effective it is
I I researched it pretty carefully myself because I have a friend there at the moment with his partner and the reports I’m getting back are they’re getting excellent treatment, excellent support, very impressed
This is somebody who, who knows a lot about medicine
Very impressed with what’s going on there
Um, we need to keep an open mind

Yes

Um it’s unfortunate it costs so much money but pioneering treatment does, and I really hope, that if you go that route that it works out for you
I really hope

Thank you

Indeed
——————————————————————
(17:20)
——————————————————————
So, that was uh, I didn’t know uh he was doing that, and actually the weird thing was that the day before I had actually contacted him just to say that we were doing really well

Yeah

But poor old Hilary was so caught up in that yesterday
On Twitter, I mean it was just nonstop
People just saying
“Burzynski’s a fraud”
Um, but we certainly don’t feel that he’s a fraud, do we ?

No
I get the impression that he’s 100% genuine
——————————————————————
12/25/2011 – Christmas Day (17:50)
——————————————————————
Hello there

Hi. How are you today ?

We’re doing ok

Documenting that ?

Um yeah I’m documenting

(laughing)

everything

That’s against the rules

Really ? Oh dear

(? again)

Collecting evidence ?

Yeah, I am

We’re gonna sue
We’re gonna, we’re gonna sue a few people

(laughing)

That’s what you love to do in America, right ?
——————————————————————
(18:10)
——————————————————————
So same symptoms ?

Yeah

The flu symptoms

Mhmm

Yeah. Ok. How’s your breathing ?

The same

That was, really bad yesterday, wasn’t it ?

Yeah

Ok. Um, any headache ?

Yep

Ok. And you said you had, are they tremors or are they like shakes, like chills ?

Yeah, chills

Chills, ok

But, you know, like I couldn’t stop

Ok.

myself

It was just

Yeah

Ok. So it was un, uncontrollable ?

Yeah

Ok
——————————————————————
(18:41)
——————————————————————
This is how we spent Christmas Day, in the Burzynski Clinic

With the lovely Monica

Of course

And

How (?) would you have it any other way

And the Christmas songs

Hey (mouthing words to song)
——————————————————————
(19:04)
——————————————————————
We went to the clinic this morning, and she was shivering all night, fever
So she’s off the antineoplastons for the day, and she’s just basically in bed now, just absolutely exhausted, and now she’s got a little bit of swelling on the back of her head, which obviously is a ca, cause for concern when you’ve got a uh, a brain tumor
——————————————————————
Day Eighteen (19:04)
——————————————————————
Hannah was back on treatment yesterday, and last night her temperature went up to 102
So I phoned uh the clinic, and they said take her off the medication, the anti, antineoplastons
So I took her off
Her temperature came down
Then it went up again, and then we went back to the hospital today, back to the clinic, and they’re giving her a much smaller dose um and she’s on much smaller dose and she’s just come back, and she’s just exhausted

And she, I can see she’s just so close to breaking, which is cracking completely
(Christmas tree)
——————————————————————
(20:07)
——————————————————————
um and I’m just, got to the point where I can’t, I’m just, don’t know what to do
——————————————————————
Day Twenty (20:22)
——————————————————————
Well the last week has been very up and down
Um I have come off the dose
Gone back on it
Come

Come off it

back on
Yeah, and then come back off it again um, for several reasons: Fever, um shaking, chills, fever, and bacterial infection, um viral infection, every infection, um and then ended up with me having to go to E.R., the Emergency Room

Well at that point I was really fearing the worst

Mhmm

Because you’d a scan when we got out of here, right ?

Mhmm

and the scan definitely showed some tumor growth

Mhmm

um and I was thinking, what 2 and 1/2 weeks later from that

Yeah

That we were going back in the hospital

Mhmm

Because the tumor had gotten bigger

Yep

What has this whole experience like for you at the moment

Oh it’s just surreal
I just, I can’t explain it
It’s just surreal, to me

What, like its not happening to you ?

Yeah

You did actually said to me yesterday in the hospital, you said:
“I’m at my wits end”
“I don’t feel I can take anymore”

Yep

And what about today ? (laugh)

Well, I reckon I’ve been, I’ve just realized I’ve got to get on with it again
——————————————————————
Day Twenty-Two (21:53)
——————————————————————
So it’s, January the 1st, 2012, and we haven’t really got the,
We haven’t got off to a great start, have we ?

Why ?

Because I’ve had a fever

Uh you, when did you start, feeling feverish ?
In the middle of the night ?

Yeah. Yeah

And your temperature went up to 102

Yeah

What Dr. Burzynski thinks you, why you’re having a fever
you’ve either still got some flu-like symptoms or it could be the, the tumor actually breaking down

Yeah

which hopefully, that’s what it is, right ?

Yeah
——————————————————————
(22:34)
——————————————————————
Yeah, feel drunky

You know you haven’t had a drink for a year so

I haven’t had a drink for a year

(laughing)

(But I think this)

Yeah

We’ve also got some problems with our pump this morning

(So what do you think ?)

Yeah, it’s not closing again

(And then you can also see the)

Uh, there it goes

(?)

But

It ain’t gonna stay that way

I don’t think it’s going to stay closed

Huh, what’d you think about that ?

(unintelligible)
(? get it fixed)

(and this looks like it’s ?)

(? fix ?)
Love you
——————————————————————
(23:09)
——————————————————————
The last time we saw you, you felt like you were completely drunk

Yeah

And you had double vision

Mhmm

So,then what, ended up, happening ?

Well, one of the nurses, kindly, pointed out
She said: “What have you taken ?”
That is where we recognized it was an anti-seizure drug, that I hadn’t taken before

And how do you feel now ?

I feel ok
I feel a but shaky

Yeah

I just have to (?) something to eat
Um, I’m just so tired
——————————————————————
(23:50)
——————————————————————
Hi, I’m Pete Cohen
Uh you might recognize me

Oh god

from morning television in the

Yeah

U.K.

Nobody recognizes you anymore
——————————————————————
(23:58)
——————————————————————
You should keep your fingers above the little

guard thing, yeah, and try to hold this

I’ve done it

as straight as you can

Ok. I’ve done it there Gary

and put some support

Yeah

on it

In there

and then you twist them down

Easier said than done (?)

I know

You can give it much more of a whack and you can u, use the other end as well

No, like this

(laughing)

Got no chance

Use the other end
(?) better

Ok. Thank you

(laughing)

You’re welcome

There you go
There you go (?)
There you go
——————————————————————
Day Thirty-Eight (24:33)
——————————————————————
I’ve never had to take care of anyone, the way I’m kind of having to take care of Hannah, and its just constant, and I get stressed around her, which isn’t fair, you know
She’s now got another temperature
She’s got a throat infection
Her temperatures up, uh and uh if it goes up over 102, it’s 101.8
If it goes up over 102 she’s got to come off of the treatment again um, oh, just, just feels like non-stop, you know
Cooking, and changing the bags
I’ve been into this, the clinic 3 times today
Taking her blood
Taking her back, get supplies
Take her back there
——————————————————————
(25:24)
——————————————————————
I’ve got a fever
It was over 102 last night

Yep. And

I’ve got antibiotics

Which you’ve been on for how many days ?

3 days

And we’re off the treatment
So, all in all
But you feel bad because you just want to be on the treatment, and just keep coming off
It’s just
How does that make you feel ?

Just, I don’t know, angry
Disappointed
Pointless

What you mean like
The while things pointless

Yeah

because you can’t stand

I just hope one day we can look back at this and laugh

Yeah

and just think: “We beat that”
because you couldn’t be doing anymore than what you’re doing
You know ?
You really couldn’t
Should really get a few of your friends to come over

Yeah

’cause you must be a bit bored of me

(laughing). No

C’mon, I’ve been really annoying
How grumpy was I yesterday ?

(laughing)

on a scale of 1 to 10 ?

(laughing)

I don’t know

C’mon

Really ?

Yeah
——————————————————————
Day Forty-Two (26:54)
——————————————————————
It’s 6 o’clock in the morning, and Hannah is lying here
Her temperature went up to the highest I’ve ever seen a temperature, on the thermometer
Where is the thermometer ?
Up to 104
I’m gonna just, I’m just trying to cool her down
I just phoned the doctor on-call and she said take some ibuprofen which Hannah has, and the result is ?
It’s come down a bit
Where is it ?
There it is
102.5
Well you’d think it’d come down
My god you’re so hot
I can’t believe how hot that is, thats got
Unbelievable
——————————————————————
(27:50)
——————————————————————
Hannah
Show me what’s going on
This all came up
When did you notice this ?

Yesterday afternoon, but its got worse since then

Yeah, lift up a bit higher if you can
Just zoom in on that
Yep
So it’s just one thing after another at the moment, isn’t it ?
Aye ?

Yes

Open your hands a little bit

Yeah (?)

And obviously we’re off, treatment at the moment

Mhmm

And we’re just waiting for who ?

Dr. Popper

What do you think he’s going to have to say ?

Mmm I don’t know

Ok, bye
——————————————————————
Day Forty-Four (28:35)
——————————————————————
Who um gave it a name ?

I sent a picture of it to Dr. B and he came back and said I think that’s what it is, and I looked into it and could see that that’s exactly what it is

Well does it bother you or does it just ?

No, it does

Yeah

And itch ?

In some cases

Oh I’m sorry

Especially under the dressing

(?) Hannah had a fever
104 on Friday night

104 ?

103.9 I should, if I’m being absolutely, precise
So I think it’s brought this out

I think you can, you can say 104
——————————————————————
(28:50)
——————————————————————
So, we’re now going to have the MRI that we were going to have on Wednesday
We’re going to have it today

Mhmm

so we can see what is going on

Mhmm
——————————————————————
(29:17)
——————————————————————
(?)

Why are you filming me ?

Why not ?

Please stop filming me now (laughing)

That didn’t work
I’m still filming you

(laughing)
——————————————————————
1/23/2012 MRI (29:29)
——————————————————————
This is one that was just done today ?

2012 Jan 23
Acq Tim: 12:13:09
955000
320 x 230

Today

2011 Dec 29
Acq Tim: 14:50:12
497500
256 x 192

Today
So the difference is that you can see there
How would you describe the differences between
and what you see here ?

Well 1st of all the size of the tumor is less, and um, if you see the actual, the solid enhancing part of the tumor
This is how it looks now

So from that you can see that it’s definitely, something definitely is going on
It’s changing

Yes

There’s no question about that

The size is less
The intensity of the enhancement is less

So wha, whe, whe, when you see something like this, wha, what does that show you ?

Well, certainly the, we see that the tumor’s most likely working, as the tumor is showing less enhancement, meaning less activity

Yeah

And the tumor’s by effect smaller

Yeah

So, ideally the next scan should be better
So we, we’re definitely going in the right direction

That’s, great

That’s for sure, and it’s brilliant that uh we’re going home on, on

On a high note

On a high note
Especially after our trials and tribulations
So

Certainly
——————————————————————
(30:47)
——————————————————————
Hannah’s tumor has started to shrink, and she doesn’t know
She doesn’t know that
So I’m going to go in the house
I think she’s still asleep, and give her the good news

(?)

Hannah

Can we go home ?
Can we go home ?

Guess what ?

We can go home ?

Yeah

Yea !

And guess what ?

Guess what

Your tumor started shrinking

Yea !

It shrunk by at least 10%

Let me just give you a kiss

Thank you

It’s ok
It’s ok
——————————————————————
(31:30)
——————————————————————
Hi Daddy

Hello, how are you ?

Yeah, I’m sorry for ringing so late

That’s alright

Um but I’m ringing with really, really good news

Good, that’s what I wanna hear

Go on you tell

No, you tell him

I don’t think I can

(Go on ?)

(? tell me ?)

C’mon

my tumor

Yeah

has already shrunk by 10%

You’re f’n ‘ell man

F’

(?)

That is absolute, amazing

And considering I haven’t been on the treatment for

You’ve been on the dose, off the dose, and on it
F’n ‘ell
What
When you get started on the
F’n ‘ell man

(laughing)

I’m glad you phoned me

Yeah, you’re the 1st person I called, obviously
——————————————————————
(32:22)
——————————————————————
So what can you believe we’ve now been here for one month

Yes

And we’re going now
What are we going in to have done ?

Hopefully, be discharged

And are you pleased with the progress you’ve made ?

Yeah

It’s been up and down

Yeah it’s been up and down

(Trip, trip ?)

You look like a Hollywood star

(laughing)
Not many Hollywood stars have a backpack like this though

Yeah but it was also a week ago
I don’t know how long ago that was where you couldn’t even

What ?

What ?
In you go

In I go

We can’t stay away

(laugh)

We’re getting discharged now

Oh really ?

I think so

Well that’s wonderful

Yeah

Well yeah, oh we, we don’t wanna go
Right turn mate
Which floor ?
2nd floor

Oh, you’re still filming

Yeah, I just, you know, I mean, you know, why not ?
I haven’t filmed all of this
We’re going up

This was great when I was feeling really sick, ’cause it

Seems like we’ve spent a lifetime together, we used to go to the 4th floor

(laugh)

(Ok)

Ohhh

Hello

Hi everyone

Hello

Um Hannah and I are leaving on Friday
What’s going to be your overriding memory of us ?

What are we gonna do ?

Hey

Are you going to miss us ?

What are we gonna do ?

Of course

Peace and love

(Remind me, is Hannah ?)

Why don’t you stay

(?) who’s your favorite, because you remember we said we were gonna say

(laughing)

‘Cause, ’cause we can o, we can only take one of ’em home, and who’s it gonna be ?

(? the rash (?) dude)

(laughing)

Well you can only take one attribute from each person, what would it be ?

I’m going to take Ashley home

(laughing)

Really ? Why ?

Yes, I like that

Because she’s, because she has the same condition ?

Yep

(laughing)

Because she can look after

Very good

(laughing)

So Rick you were told I was a big shot

Yes, going to film everything so

(Who knows ?)

you have to watch out

So, c’mon, what, what point in your head did you think: “My god this guy’s an absolute idiot”

(laughing)
——————————————————————
Day Forty-Seven (34:55)
——————————————————————
This, this December 29
This is January 27
Here we have the tumor, visible previously
And we have now
Certainly, outside diameters have decreased

Mhmm

So to some extent, but also the, the intensity of the enhancement, has decreased

Mhmm

As you can see this was much brighter before, now is less
Which means that the tumor is decreasing and it’s uh losing its activity at the same time

Mhmm

Which is a good news

But, again, we are not at the remission
This is called Stable Disease
Stabilization

Mhmm

Probably next time we see this is shrinking more and this wide band is getting thinner, and thinner, and finally

Mhmm

it should disappear
So that’s what you should be looking for

Ok
——————————————————————
(35:43)
——————————————————————
There’s some hair on the camera

Well it’s not mine

It’s definitely not mine

Hmmm

No
I’m gonna start

(laughing)

Go on then

Ok
So it’s June 2012, and we have been back for approximately 6 months from the, America, and generally it’s all going well

I’ve had about 3 scans since I have been back, and they’ve all looked fairly positive

I think they’ve looked more than positive but yeah, go on
Carry on

(laughing)

Um, yeah, so the tumor, well the enhancing part of the tumor is getting smaller

Basically there’s such a small little part left that I’m sure when you watch this you’ll be able to see some images so people can see your scans

December 7th 2011 scan

Yeah, mhmm

March 21st 2012 scan

and we know that if Hannah hadn’t had this treatment, with the type of tumor that she had

May 2nd 2012 scan

she might already be dead, or she probably wouldn’t be here

June 13th 2011 scan

Yeah

much longer

July 29 2012 scan

She is very much alive at this point in time

Yeah

And what’d you think about all this controversy, because the controversy around what we’re doing, and it’s just, just
I can’t believe it personally
I find it very, very hard the, the hatred and the skepticism, of, um, what Hannah’s doing
What, what, what’s that like for you ?

Well, as I, as I’ve always said along the way, you know, any of the skeptics, what would they do, if they were in my position ?
Would they want to die in 3 to 5 years or ?

Probably less than that

Uh (both)

And that’s a horrible thought

Yeah, uh everyone has a, has a right to be sceptic and everyone has a right to their own opinion

Yeah, they do

Um, and, but the funny thing about people’s opinions is, opinions are often based on, what they’ve heard

Yeah

or what someone hasn’t done, whereas uh, we spent 7 weeks at the Burzynski Clinic uh

And we saw everything

We saw everything
We spent time with this man um, and I tell you from my, from, from, I think from both, I can maybe speak for you hey ?, but uh

(laughing)

he’s one of the most honest, kindest people

Yeah, he is

‘Cause I, I said to you, the other day, about making this film, and you said: “Even if I was going to die tomorrow, I would still want this to be made”

Yeah

You remember saying that ?

Yeah

What, what, why did you say that ?
Why ?

Because, it might give other people a shake up

Mhmm

Yeah

Yeah, because uh, yeah
Why did we make this ?
Well I made this because I thought it was a journey that was well worth documenting

(?)

and maybe could help other people, and maybe help people realize there are other options, apart from the conventional treatment for cancer, and to inspire people
I hope you’re inspired by Hannah’s story because she’s an amazing, she’s a, honestly she’s annoying sometimes

(laugh)

but not very often

So are you. Yep

She has such a desire to live, uh and to enjoy her life, and I think
I don’t know, if there’s anything else that we

Ok, that’s enough for now

Hannah’s most recent scan confirmed she has now had a complete response to the treatment
——————————————————————
(39:35)
——————————————————————
Special thanks to

Bacon, Lesley
Bradley, Jeremy and Irene
Cank, Elizabeth
Cohen, Judith and David
Gooden, Lindley
Jones, Dr. Hilary
Levitt, Chris and Gina
Martinez, Dr. Juan
Merola, Eric
Newman, Ofir
Norouzi, Minou
Ramsey, Anna
Rowkowski, Dr. Bob
White, Gemma

Hannah Bradley’s GP
The Eagle radio station
——————————————————————
(39:40)
——————————————————————
Dr. Stanislaw Burzynski
and all the staff at the Burzynski Clinic
——————————————————————
(39:48)
——————————————————————
camera
Pete Cohen

additional camera
Lindley Gooden

editor
Jamie Lowe
——————————————————————
(39:54)
——————————————————————
A film by
Jamie Lowe & Pete Cohen
——————————————————————
(40:00)
——————————————————————
This film is dedicated to all the people who donated their time and energy to raise funds to save Hannah’s life
——————————————————————
(40:08)
——————————————————————
To follow the progress of Hannah’s recovery and find out more about the treatment she received please visit:
http://www.teamhannah.com/blog

======================================
Extra clips from Hannah and Pete’s trip to Texas
======================================
Pete Cohen chats with Dr. Stanislaw Burzynski:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/
======================================
======================================
REFERENCES:
======================================
[1] – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies
——————————————————————
http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html
======================================
[2] –

——————————————————————
http://www.teamhannah.com/the-film/
======================================
[3] – Team Hannah: Hannah’s Annectdote:
——————————————————————
http://www.teamhannah.com/
======================================
[4] –

——————————————————————
http://www.teamhannah.com/blog/page/5/
======================================
[5] –

——————————————————————

======================================
[6] –

——————————————————————
http://www.teamhannah.com/blog/page/4/
======================================
[7] –

——————————————————————

======================================
[8] –

——————————————————————
http://www.teamhannah.com/blog/page/3/
======================================
[9] –

——————————————————————
http://www.teamhannah.com/blog/page/2/
======================================
[10] –

——————————————————————
http://www.teamhannah.com/blog/
======================================
[11] –

——————————————————————
http://m.huffpost.com/uk/entry/3012836
======================================
[12] – Last Updated (Friday, 10/5/2012 03:32)

——————————————————————
http://www.964eagle.co.uk/hopeforhannah/
======================================
[13] –

——————————————————————
http://scienceblogs.com/insolence/2013/10/22/four-misleading-cancer-testimonials-and-reverse-balance/
======================================
[14] –

——————————————————————

======================================
[15] – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
——————————————————————
http://m.gulfnews.com/i-ll-try-anything-to-beat-brain-cancer-1.981203
======================================
Team Hannah Blog (2:46)
4/1/2013 – Posted by Hannah
======================================
(laughing) Don’t
‘Cause you’ll put this bit in
Promise ?

Yeah

(laugh) Ok, so, it’s April the 1st and it’s 2 years on since I had my operation and but ? obviously is out

So, I just wanted to (laugh)

Start again
Start again
Start again
Start again

Ok
Ok

I don’t believe you

I have
Start today again

(laugh) I don’t believe you
It didn’t go “beep beep”

Because it’s on silent

(laugh) Do you think that I’m an idiot ?

(laugh)

Ok
3 2 1 go

Hi there um it’s (laugh) the, the 1st of April and it’s 2 years on since I had my operation and I’m pleased to tell you that I’m obviously still here, and um that’s thanks to you guys and thanks to me I suppose from, for fighting so hard for my life

And what, and what have you been up to then ?

I have been up to um just resting a lot and uh making up new recipes uh

Your next book

Yeah, for my next book and
Yeah, that’s pretty much it

And when are you thinking you might be able to come off the treatment ?

June
End of May
June

I have a scan in a couple of weeks and we’ll update you after that

And what will that be like, coming off the treatment ?

Oh, it’ll be amazing
Yeah, amazing

So you won’t be walking around with

this fellow here ?

Ok
Is there anything else you’d like to say ?

Um, just love to you all

Oh
The wave
——————————————————————
Team Hannah Blog (3:34)
3/2/2013 – Posted by Hannah
======================================
Hi
This is the Team Hannah blog and it is the 3rd of March and Peter is actually filming me today

He’s not there, where he normally is

Yeah
Exactly
So I’m on my own
Flying solo

Um I’d just like to say how well I’m doing and my last
Ohhh went a bit northern then
My last scan um was mid-February and it showed no enhancing tumor

So that’s really good

Um I’ve just got um a really cystic area in my head

So it looks like they’ve predicted June me me to be off the treatment
So, fingers crossed for June

What will that be like to, to come off the treatment ?

Um, yeah, it will be
The treatment is so uh, restricting I would say
Yeah, it would be good to come off

And what else have you been up to ?

I have been (holding up Team Hannah Cookbook) selling lots of copies,

Yeah

and, and,

the other book a little bit
I know that you mentioned in the last blog, but just
What, what’s the book about ?

Well it’s low-carb recipes and I’ve
Been on the radio
I did a radio
promoting it and um it’s great for anyone who wants to cut out sugar
to lose weight and decrease their, and what, decrease their

Risk

Yeah, risk of getting disease

Yeah, ’cause we saw a doctor in America, Dr. Rowkowski
and he, and one of the things he said to you was you really need to cut sugar out of your diet
to
sugar is what he said

Yeah

Um, and you’ve been getting a lot of people that
trying your recipes and taking photos

Yeah
picking up
on Facebook on Pete’s favorite page
to cook something from the book

put them up on the
page as well

And um where can people find out about your book

Um just slide over to, to Hannah Cookbook and you will find it there

And your blog as well, yeah ?

Yeah

So, I think we’re done

I just want to say there’s an airplane going overhead
Thank you to everyone whose supported us
it seems a lot of, a lot of film

And why are you laughing

Pajamas

pajamas

I didn’t quite
yep

What are those

(laughing)

This bench has seen a lot of action

Yeah, it has
Video action, that is

(laughing)

And we’re very thankful to everyone

Yeah
Thank you, yeah, again

Yeah

We try and do one after next scan

Big wave, please

Bye bye

Bye
======================================
Sapphire Sings For Team Hannah
1/3/2012 – Posted (3:00)
======================================
(Last) Christmas, I gave you my heart
The very next day, you gave it away
This year, to save me from tears
I’ll give it to someone special
Once bitten, and twice shy
I keep my distance, but you catch my eye
Tell me baby, do you recognize me ?
Well, it’s been a year, it does not surprise me
Happy Christmas, I wrapped it up and sent it
With a note saying, “I love you”, I meant it
Now I know, what a fool I’ve been
But if you kiss me now, I know you’d fool me again
Last Christmas, I gave you my heart
The very next day, you
——————————————————————
(1:04)
——————————————————————
Ok
Sapphire, all I have to say is
“Thank you, thank you, thank you
You have compiled a CD, um, in aid of Help for Hannah, and you have had quite a lot of sales so far, and you have got a beautiful voice, and I’m sure you’ll go very, very, very far, but “Thank you”, and this is just a little “Thank you” for you, but obviously other people are going to hear it
Thank you
Love you
Bye

Did you
Sorry
Did she also, sing this yesterday, uh, somewhere?

Yeah, she sung it at Aldershot uh Football Club

Again, so Aldershot was playing football against another team

Plymouth, yeah

Plymouth
And she sang it for everyone ?

Yeah

And they raised some money for you ?

Yep

Yes, so this has been a big “Thank you” from both of us (laughing)
Let’s, let’s play out a bit more of that song

Ok
‘Cause we love this song
It’s off

Uh yep, it’s my favorite Christmas song
It’s the only Christmas song
(gave it away)
we can hear when it’s not Christmas
This year, to save me from tears
I’ll give it to someone special
A crowded room, friends with tired eyes
I’m hiding from you, and your soul of ice
My god I thought you were someone to rely on
Me ? I guess I was a shoulder to cry on
A face on a lover with a fire in his heart
A man undercover but you tore me apart
Now I’ve found a real

Thank you so much
——————————————————————
An Update For You

10/21/2011 – Posted

A Message From Pete About Team Hannah (3:07)

A MESSAGE FROM PETE

Hi it’s Pete Cohen and I just wanted to share something with you

Uh in February this year my girlfriend was diagnosed with a, with a brain tumor and when this happened it really obviously rocked our world

You know, everything seemed to be ok

Everything was great in life

And then something happened, and everything changed

And I don’t know whether anything like that has ever happened to you

But these things happen don’t they

And when they happen they really test you

They really challenge you

They, it’s very easy

It made me question lots of things

It made me think to myself, well, you know, what, is life, really fair ?

You know, should this happen to such a young person ?

These things do happen

And it really puts us in a position where it questions what we have

What we have to deal with such difficult circumstances

And I’ve definitely found things in myself that I didn’t know wa was there, you know, resolve, compassion, determination just to, to keep going

And this is the thing human beings we all have this kind of, we all have something else don’t we

All, we all have something more than our stress, and our worry, and our anxiety

We have a our true nature I think can overcome so much, of what life throws at us

You know, obviously we can’t overcome, everything

But what I really wanted to share with you is something that I’ve been so taken aback with, and that’s the beautiful nature of human beings, because we’re trying to take my girlfriend over to America to be treated over there, and we’re having to raise a considerable sum of money, and we’ve actually had to ask people, for help

Now that’s something that’s a bit alien to me, is to ask people and say, you know, can you help me, can you help us

Maybe that’s an insecurity that I have

Bur we’ve asked for help and it’s been amazing to see people all over the world spread the world, donate some money

And I’ve been so touched by that

It’s so life affirming

It so, it gives us such great strength

Any my girlfriend and I have been
so touched by that

So what’s my point here ?

Recognize how important it is for all of us to support each other

Recognize how important it is to affirm each other

You know, that’s one of the most important human needs we all have;
affirmation, it’s the fact that, to take the time to recognize each other

Hello

How are you

I care for you

So, thank you so much for watching this, and if you want to help us out please just uh visit the web-site we’ve put together for Hannah

It’s just called Team Hannah . com, and on there you can see a little more about Hannah and what’s happened to her, and the treatment we’re looking for her to have, in America

So, I hope you all have a great day and please, take the time to be there for other people, to care for other people, because that’s what makes this world great

Thanks for watching

Bye, bye
======================================
v=p5tAeYsNOZQ?rel=0
======================================
——————————————————————
Hannah’s message [3]
——————————————————————
(3:02)
——————————————————————
Ok
So what’s your name ?

I’m Hannah Bradley, and I’m 27 years old, and I come from North Hampton

And what happened to you ?

I had a seizure in middle of the night and my partner tells me I was rushed to hospital

That was in February 2011

And from there I had lots and lots of tests, and they decided that I had a brain tumor, and they were going to operate, and they successfully operated on the 1st of April, 2011, and they, the biopsy went off to be um checked

I found out that I had a grade 3 tumor

I then, under, underwent a, I had a 6 week course of radiotherapy, and that left me with no hair, and can’t remember what else (laugh)
And um that I went under another MRI scan 6 weeks after radiotherapy and we, that again wasn’t particularly good news, and we found out that there was still remnants of the tumor, and the future for me is very uncertain

So what, what are you looking for ?
What are you looking to do ?

Um, I, sorry

What do you want Hannah ?
What is it you’re looking for ?

Um, mainly I, um, I can’t

You just want to live, right ?

Yeah

So what are you asking for ?
What, what, what do you need ?

I um, I need people to raise money, for, uh, my treatment
I’m looking to going to America because there are things that they can offer me here on the NHS or locally (?) is very, very limited, and there’s a doctor in Houston, and he’s able to help

So you want some help in raising some money, yeah ?

Yeah, it’s completely out of our reach to raise that much money, and it’s, I’d like help to raise the money
——————————————————————
9/17/2012
Monday, 17 September 2012 07:23 | Written by Administrator

Hannah Bradley

Hannah’s amazing story, fighting and winning over her Brain tumor (Anaplastic Astrocytoma) is available on her support site

Team Hannah

There are more videos by Pete and Hannah, documenting her fight and the Burzynski Clinic
======================================

What to do when a Burzynski Skeptic suggests you not do it

Posted on October 1, 2013 by didymusjudasthomas

When I mentioned Ben and Laura Hymas to Bob Blaskiewicz during the Saturday Google+ Hangout, and suggested that I should compare it to the patient stories he “embellishes”, he suggested I review his patient stories instead

So what am I doing ?

I’m reviewing the patient story of Laura Hymas

However, my goal is to provide a perspective of her mood, health, treatment, and support network, so that readers can get an idea of what someone with cancer; who does not yet know that they have cancer, may be experiencing, so if they note similar experiences or symptoms in themselves or others, they will know that they most likely should seek professional medical assistance, and also be able to use it to compare to other “patient stories”

Laura Hymas: Kent, United Kingdom
Ben: fiancée
Jacob: son
——————————————————————
(I will be doing a little data clean-up)

Note how I do NOT “embellish” Laura’s story by adding extemporaneous commentary like Bob Blaskiewicz
——————————————————————
2005 – Laura met Ben: knew instantly wanted to start family with him []

When first met Laura 3 years ago beautiful, bright and energetic girl [2]

loyal, kind hearted and has a smile so infectious that it can light up any room [2]
——————————————————————
started planning to marry and grow family [2]
======================================
======================================
MOOD
======================================
======================================
1/2009 – Laura pregnant []

a) delighted to be having a baby but pregnancy wasn’t easy []

b) suffered terrible morning sickness so severe had to be admitted to hospital []
——————————————————————
4/2009 – morning sickness stopped at 16 weeks, from then on felt exhausted []
——————————————————————
9/2009 – Jacob born [] [2] []

9/2009 – []

a) felt like happiest woman in the world

b) began planning to marry and grow family

c) adored being a mum []

d) knew wasn’t depression because felt so happy being a mum []
——————————————————————
9/2009 – 12/2010 – []

a) felt never fully recovered after the birth and over 15 month period

b) certain wasn’t depressed

c) was so happy but exhausted all the time

d) convinced there was something wrong and so frustrating not knowing what

e) so tired even good nights sleep couldn’t get up in the morning to take care of Jacob when Ben went to work; stay in pajamas all day

f) at wits end

g) causing a lot of stress at home
——————————————————————
5/27/2010 – []

a) felt like luckiest woman alive []

b) son Jacob just celebrated 1st birthday and she and fiance Ben were busy planning wedding []
——————————————————————
10/2010 – frustrating as kept wondering if was imagining it [[
——————————————————————
12/24/2010 – []

a) no one expected anything serious so I just popped along with Jacob []

b) totally unprepared for what doctor said []

c) When doctors dropped their bombshell, just broke down []

d) happiness was shattered

e) thought of Jacob not having me here is heartbreaking []

f) will do anything to see him grow up and determined to beat this []

g) can’t accept going to die []

h) was in pieces []

i) immediately rang mum, Vanessa, who hurried to hospital to comfort her []

j) strange relief to know hadn’t imagined all symptoms, never expected something so terrible []

k) reassured when read stories saying people did live normal lives with this sort of tumour []

l) huge relief []
——————————————————————
12/2010

a) felt couldn’t accept there were no other options []

b) felt confident []

c) so angry but had no choice []
——————————————————————
2/2011 – []

a) Being unable to care for son made feel so depressed

b) felt like life was slipping away

c) No words can describe how much this news and period of time affected us as a family
——————————————————————
4/2011 – []

a) had devastating effect on her as young mum, and affected every part of lives because at moment cannot enjoy time and plan future like any other normal young family []

b) everyone was in for further shock []

c) left reeling when doctors said tumour had grown rapidly []

d) couldn’t believe it []
——————————————————————
5/27/2011 – confident will get there and beat this [9]
——————————————————————
6/2011

a) felt very confident, almost empowered []

b) Given situation felt had nothing to lose []

c) astounded by generosity and kindness of general public []
——————————————————————
LAURAS TUMOUR [1]
——————————————————————
news hit very hard and also devastated her family and friends [1]

Until something like this happens, you dont realise how much of an effect it has [1]

fun loving girl who’s taken to motherhood like a duck to water, son is so lucky to have her because she always puts him first [1]

illness crept up slowly and was affecting long before diagnosis because it was eating away at health and energy which was so frustrating for when wanted to be energetic mum doing loads of things with Jacob [1]

awful diagnosis had positive and negative effect, fact now knows what was wrong is huge relief because knew deep down something was wrong, but its awful news at same time [1]
——————————————————————
6/27/2011 – Anyone who has been or is going through a life threatening illness will understand power of positivity and support network of friends and family [15]
——————————————————————
faces race against time to travel to US for treatment she hopes will save her life []
——————————————————————
7/8/2011 – [18]

helped stay positive and strong as a family even in difficult times [18]

worried how long it would take before could start treatment [18]

has been so strong and positive throughout journey, im so proud of her for being such an amazing fiancee and an amazing mum to Jacob – not a day goes by where she doesnt make us smile and keep our home life normal for Jacob at this important time in our little mans life…a really special person [18]
——————————————————————
7/28/2011 – had agonising wait for results on Thursday
——————————————————————
8/3/2011 – [21]

MIXTURE OF FEELINGS THIS MORNING [21]

never happy with just sitting around [21]

spent months researching all kinds of brain tumour treatment protocols looking for most successful, non harmful type of treatment currently available in the world and even speaking to past patients about their experiences, led us to front door of controversial Dr. Burzynski’s clinic in Houston this morning…somewhere that gives us all a bit of Hope [21]

Driving to clinic we were nervous about how today would be but as soon as we walked through the door we were met with friendly faces and felt instantly at ease [21]

left clinic feeling relaxed, like were in right place and the day had gone great, been prescribed treatment she wanted and with any luck will be having 1st dose this Friday [21]
——————————————————————
8/8/2011 – [3]

a) tiredness

b) like having another baby!

c) it’s really worth it [3]
——————————————————————
8/8/2011 – future was still very uncertain [55]

at times a whirlwind, extremely stressful [55]
——————————————————————
10/2011 – [10]

a) times when feel like giving up [10]

b) only have to look at Ben and Jacob to know life’s worth fighting for [10]

c) determined to give treatment my best shot [10]
——————————————————————
1/10/2012

bit of a difficult week this week, hadn’t been sleeping well due to MRI scan booked [40]

After such good result last time where tumour shrank so much were feeling so positive for few weeks after, as next scan gets closer start to worry about silly things, every time has bad day where feels exhausted, worry tumour suddenly started to grow again [40]

next day have really good day…. might have epileptic seizure, though has a LOT less of them now and aren’t as strong still worry means tumour growth [40]

get to few days before next scan even sillier things start to cross mind like “I’ve eaten lots of chocolate and had a few KFC’s since last scan was my diet really bad and hasthat made it grow!?!” [40]

all sorts of worries will go through mind at this point, like anyone else in this situation will understand [40]

trying to describe just other day what its like being told has malignant brain cancer [40]

(still hate those words) [40]

its impossible to describe but so awful makes you feel like you’re character in film “Saw” [40]

Like someone has put time bomb inside your head, it will grow fast and more it grows you will slowly become more disabled, doctors tell us that current available medicines can only slow it down..there are never any survivors 12-14 months (1 year – 1 year 2 months) from diagnosis is prognosis [40]

Eventually it will win, and you will lose the fight [40]

Sometimes in morning wake up and for few seconds forget have one, everything is normal, then reality hits again [40]

so anxious at this point, think they could tell [40]

WOW [40]

burst into tears [40]

so shocked, amazing start to 2012 [40]
——————————————————————
1/13/2012

Every time has bad day where feels exhausted, worry tumour suddenly started to grow again [43]

fret before a scan [43]
eat bad food [43]
made stay up late some nights watching TV instead of resting [43]

all sorts of worries will go through mind at this point [43]

diagnosed with tumour just over year ago, describes what it’s like living with malignant brain tumour [43]

it’s so awful it makes you feel like a character in the film ‘Saw’ [43]

like someone has put time bomb inside head, it will grow fast and more it grows you will slowly become more disabled [43]

Eventually it will win and you will lose the fight [43]

feel fortunate given chance to at least try treatment [43]

About improvement, burst into tears [43]

so shocked, what an amazing start to 2012 [43]
——————————————————————
2/8/2012 – [47]

big milestone of a day [47]

just wanted to wear something to cover the site where tumour is, area has biopsy scar and hair is much thinner from radiation [47]
——————————————————————
2/21/2012 – had 6 weekly MRI scan tuesday – scary time as always [48]
——————————————————————
3/25/2012 – taking small steps but feeling more like old self all the time [49]
——————————————————————
4/5/2012 – “scan week” always stressful time [50]
——————————————————————
5/19/2012 – diagnosed 17 months ago now and even on hardest days never given up hope [52]
——————————————————————
6/22/2012 – [53]

Everything takes toll eventually [53]

feel fine now and have caught up on sleep, for 6 days while off treatment awaiting blood culture results was almost as if nothing was wrong, in perfect health so breath of fresh air to have no IV bag to carry around [53]

fleeting moment of “normality” for our family again [53]
——————————————————————
7/4/2012 – [54]

been emotional rollercoaster, when look back over past year and a half [54]

has certainly been a life changing experience for us and all of our family [54]

extreme stress of situation is starting to wear off and starting to feel able to relax a little now and do “normal” things most families probably take for granted like planning ahead into future rather than living day to day [54]

don’t think its possible to describe personal experience like this, much like amazing feeling of becoming a parent you have to experience it first hand to really know what its like [54]
——————————————————————
8/8/2012 – When look back feel like looking at someone else’s life [55]
——————————————————————
8/29/2012 – [55]

its been well worth all the hard work and effort [55]

Mentally stayed so strong despite over past 12 months (1 year) having not slept full night due to infusions – calculated has had at least 2150 ninety minute infusions to date [55]

These days, life is much more hopeful and slightly less stressful [55]
——————————————————————
11/27/2012 – [56]

fight this every day for almost 2 years without ever once faltering or giving up [56]

Jacob has been here to give a reason to be strong and his unconditional love has been a huge part of healing process [56]

couldn’t be happier [56]
——————————————————————
1/2013 – Dr Burzynski has given me and my family the future back and I am eternally grateful [3]

appreciate every minute of every day [3]

I’ll finish treatment but have my life back [3]

Who knows what tomorrow holds ? [3]
======================================
======================================
HEALTH
======================================
======================================
6/2011 – [47]

whilst having radiotherapy lost all hair which fell out very quickly – in a matter of hours – too quickly to really have any time to get used to the idea [47]

(if thats possible) [47]

for woman it can be a really big part of their identity, especially if you’re just 25 years old [47]
——————————————————————
1/12/2012 – [40]

When has scan every 6 weeks to find out how treatment is going go through different emotional stages [40]

next day have really good day…. might have epileptic seizure, though has a LOT less of them now and aren’t as strong still worry means tumour growth [40]

eat bad food, stay up late some nights watching TV instead of resting, dragged round country parks for walks [40]

(probably in hind sight exercise is very good right now) [40]
——————————————————————
1/13/2012

has good days and bad days [43]

Every time has bad day where feels exhausted, worry tumour suddenly started to grow again [43]

next day have really good day … then might have epileptic seizure, even though has a LOT less of them now [43]

4/5/2012 – feeling really good apart from sinus infection unrelated to tumour or medication [50]
——————————————————————
6/15/2012 – suspected Hickman Line infection, really exhausted and had cold shivers [53]
——————————————————————
======================================
======================================
TREATMENT
======================================
======================================
1/2009 – suffered terrible morning sickness so severe had to be admitted to hospital [10]
——————————————————————
5/2009 – morning sickness stopped at 16 weeks [10]
——————————————————————
9/2009 – Jacob born [2] + [10]

visited GP dozens of times [10]

At 1st doctor thought was baby blues but months after Jacob born, still felt tired, diagnosed postnatal depression [10]

came home with anti-depressants [10]

knew wasn’t depression because felt so happy being a mum [10]

didn’t even take the pills [10]
——————————————————————
5/27/2010 – [10]
——————————————————————
10/2010 – while family, from Rochester, Kent, were in Lanzarote, developed weakness in right arm [10]

At first thought might have slept awkwardly or pulled a muscle [10]

Some days it was there, some days it wasn’t [10]

Other times felt tingling in fingers [10]
——————————————————————
11/2010 – [2]

started to lose feeling and co-ordination in right arm which prompted an MRI scan at hospital [2]

health slowly declined over past year, never fully recovered after having Jacob and mis-diagnosed with range of things including exhaustion [2]

breakthrough diagnosis came after another visit to GP’s [10]

had a cold couldn’t shake off and went to see if needed antibiotics [10]

saw different doctor and he could see from notes sometimes been at surgery every week [10]

kept list of symptoms on iPhone [10]

handed it to him and he looked concerned [10]

been visiting surgery with different symptom every time [10]

When he saw them together, warning bells rang [10]

Although he didn’t say he suspected a brain tumour, he sent for tests [10]
——————————————————————
12/24/2010 – results arrived [2] + [10]

few days later called back for results [10]

had brain scan but also had blood tests and thought was going to get those results [10]

had found something on scan [10]

huge tumour [10]

doctors broke news has rare, inoperable brain tumour [10]

told there’s no cure and it’s growing [10]

bad news was tumour, known as an oligodendroglioma, was inoperable – deep in the brain and removing it would be too dangerous, so all doctors could do was monitor it [10]

diagnosed with rare Brain Cancer and biopsy revealed is most aggressive type of brain cancer, not only is it inoperable because of size and location but also deemed incurable using available cancer therapies in UK, which can only at best slow down growth [2]

Tests showed was low-grade, slow-growing tumour [10]

explained could have had it for 20 years [10]

reassured when read stories saying people did live normal lives with this sort of tumour [10]

average life expectancy poor, fewer than 1 in 100 people diagnosed live for 5 years, this cancer is common in people over 50 [2]

(approx 5,000 diagnosed annualy in UK) [2]

very rare in Laura’s age group, less than 50 cases reported every year in UK and no known cause [2]

told by doctors in UK that brain tumour was inoperable [43]

set out to find an alternative cure [43]

find clinic in Houston, Texas, run by Dr. Burzynski, that pioneers new treatment for malignant brain cancer Laura has [43]

clinic in America has pioneering treatment proven very effective against this type of cancer without harming the body [2]

clinic has been running for over 30 years and has been able to not only stabilise, but potentially cure this awful disease in some cases [2]

treatment not available via NHS [2]

most patients require anything from 2 to 4 years treatment [2]

diagnosed with type of brain cancer for which there is no cure in Britain and wasn’t expected to live more than 12 months (1 year) [37]

Since diagnosed has developed epilepsy and has multiple seizures a day [37]

right arm almost paralysed so has been unable to pick up Jacob or bathe him [37]
——————————————————————
2/2011 – right arm virtually paralysed [10]

also developed epilepsy and having seizures every day [10]
——————————————————————
4/2011

biopsy [50]

tumor turned agressive [53]

next batch of test results arrived [10]

results of scan and biopsy [10]

doctors said tumour had grown rapidly [10]

turned into worst form of brain cancer – fast-growing, high-grade glioblastoma multiforme [10]

while they could give chemo and radiotherapy to try to shrink it and prolong life, was nothing more they could do [10]

didn’t have time to lose [10]

No one knows how long has left to live – do know has most aggressive form of brain cancer [10]

If did nothing could be 6 months to a year [10]

after painstaking research found clinic in Houston, US, which offers treatment still under trial and NHS will not fund [10]

In States, critics believe it’s expensive, with no proven results [10]

read stories claiming it worked for some [10]

sent the clinic notes [10]

treatment based on clinic’s 25 years of research showing people with the cancer are lacking tumour suppressor [10]

In people without cancer substance kills growing cancers [10]

clinic doctor believes replacing it with drug will trigger body’s immune system to rid itself of tumour [10]

having therapy to help shrink tumour [10]
——————————————————————
5/2011 – prescribed 6 weeks radiotherapy coupled with Temozolomide chemotherapy [10]

potential life saving treatment in America [2]

travel to US for treatment hopes will save her life [10]
——————————————————————
6/2011

1) completed radiotherapy course

2) had to stop chemo after few days because allergic reaction

3) doctors very honest – couldn’t continue TMZ cycles because was allergic to it

4) original oncologist against decision to go to America for treatment because controversial and not yet approved by NICE, or any medical body

5) transferred to another oncologist willing to take me on in London

made fully aware early on that cancer treatment and long term prognosis has improved for most common types of cancers over the years [23]

has been no real improvement in outcomes for Brain Tumours – especially Glioma which although being one of most common cancers, especially in children, are most under funded types of cancer in research arena [23]

spoke to past patients in US and UK, some who were cured many years ago from ‘terminal’ brain cancers using “antineoplastons” at Burzynski Clinic in Houston, Texas [23]

clinic treats many types of cancer with other therapies but for antineoplastons primarily focus on brain cancer because it is one of hardest to treat [23]

Prior to visit to US sent sample of Laura’s brain tumour tissue from biopsy procedure to Pheonix, Arizona [23]

At lab number of tests carried out including gene expression tests, genetic tests used to identify which treatments would be most effective for Laura as an individual – backup plan if antineoplastons had no effect [23]

“FDA approved” Phase II clinical trial – specifically “Antineoplaston A10 & AS2-1” which are treatments pioneered by Dr Burzynski in mid 1970’s [23]
——————————————————————
7/1/2011

friday finished 6 week radiotherapy course [18]

treatment supposed to be given alongside chemotherapy but 10 days into 33 day course of chemotherapy developed allergic reaction and had to stop particular drug [18]

chemotherapy isnt very effective for everyone with Brain cancer and missing out on this drug also means Laura is so much stronger physically than she would have been otherwise, that coupled with great advice from our nutritionalist Jo Gamble has meant Laura is in amazing shape and able to travel to America safely to start treatment [18]
——————————————————————
7/2011 – travelled to Burzynski Clinic in Houston end of July to start Antineoplaston treatment and for Ben to be trained on administering medicine by doctors at Clinic
——————————————————————
7/2011

since starting treatment in America in July, has begun to show signs of improvement [37]

started to get use of paralysed right arm and hand back [37]

has got a lot more energy and is able to go on short walks with Jacob [37]

receive gene therapy at clinic in Texas [37]

treatment involves having daily doses of drugs and scans every 6 weeks [37]
——————————————————————
7/2011 – 8/2011 – 3 weeks there and came home and continuing treatment

(administered by Ben with very close direction from clinic)
——————————————————————
7/25/2011 – MRI scan Monday
——————————————————————
7/28/2011

had agonising wait for results on Thursday

got results “Increase in size of tumour left frontal lobe” and sent straight off to clinic, took few hours to get green light (because of time difference) and by 6:30pm got call we were waiting for from clinic FDA should give special exception without aproblem – Houston here we come [21]
——————————————————————
7/29/2011 – [21]

Ben bought Friday.morning flights “just incase” [21]

arrived in Houston, Texas Friday.afternoon after trouble free flight [21]
——————————————————————
7/29/2011 – 8/2011 – [21]

here for next 3 weeks [21]

Thanks to amazing fund raising and generosity from everyone raised enough money to start treatment now rather than 10/2011, this gives a huge head start [21]

would originally been having another cycle of chemo until 10/2011 but allergic to it so means NHS don’t have any more options available at this stage [21]

Chemo isn’t very effective for a lot of brain tumours so isn’t big loss, much better to get onto next step earlier than planned [21]

FDA law prevents clinic treating at this point unless tumour has grown since last scan [21]

(if it had shrunk from radiotherapy would’ve had to wait until end of August) [21]

in catch 22 situation, didn’t want tumour to have grown since April but also wanted to get America ASAP, UK doctors did say not to panic because even if there was growth it could just be post radiotherapy swelling, this put our minds slightly at rest [21]

decided to take additional option on top of standard treatment has come here for, option has only been available here a few months and – huge advancement in world of cancer treatment [21]

sample of tumour tissue sent over from Kings Hospital to Lab in Phoenix, Arizona [21]

Lab running number of different tests on tissue sample and also mapping DNA profile to get “molecular fingerprint” of individual tumour [21]

Everyone’s cancer is unique to them and therefore will respond best to “unique treatment plan” [21]

Lab results will be sent to clinic next week and will tell them exactly what drugs will be effective for unique cancer, and what specific genes are involved in causing cancer [21]

Gene target therapies will also be used to “switch off” genes causing cancer and “turn on” tumour suppressor genes to help stop cancer in its tracks [21]

rather than having “one size fits all” treatment be recommended treatments based on what clinic knows will be effective for individual case [21]
——————————————————————
8/2/2011 – 1st appointment Tuesday where will finally meet Dr Burzynski in person [21]
——————————————————————
8/2011

appointment booked at clinic in America for start of August so will be flying out at end of month to start treatment [18]

travel to clinic and began treatment [43]
——————————————————————
8/3/2011 – [21]

11:30AM CONSULTATION AT CLINIC [21]

journey began 8 months ago (12/24/2010) when diagnosed, found out over following weeks how generally un-successful brain tumour treatment was in UK [21]

day consisted of consultation with Dr Acelar who will be primary consultant [21]

She interviewed in more detail about condition then went off and reviewed MRI scan images with Dr Burzynski as he would have final say over treatment plan to be prescribed [21]

After agonising wait for what seemed like 10 hours but was only 10 minutes Dr Acelar came back into room with Dr Burzynski [21]

this is a guy we’ve been researching about 6 months, has been completely curing what were previously considered to be 100% fatal brain tumours, and by curing I mean for a lot of patients tumours completely disappear [21]

wasted no time explaining exactly how treatment works, basically brain cancer is being caused by up to 600 defective genes, treatment will “switch off” cancer causing genes which will make cancer cells go into “apoptosis” [21]

Apoptosis is natural cycle where cell dies and is broken down by body, in other words tumour will start to break down and dissolve away [21]

know within 4-8 weeks if working and if not then they can add in other gene targeted therapies – based on results of some genetic testing having done at the moment [21]

had bloods and physical examination done [21]

(by another doctor) [21]

and done for the day [21]

due back at clinic once they get approval from FDA to treat – which will take 1-4 days [21]
——————————————————————
8/4/2011 – [22]

just got call from clinic and now approved for treatment by FDA much quicker than thought [22]

didn’t think there would be any problems because fits criteria, having had previous Radiotherapy which is required before you can have any private treatment from Dr Burzynski [22]

waiting on appointment from doctor who’ll be fitting Hickman Line, which is IV line fitted in chest just below collar bone [22]

Having IV line fitted is more convenient that in arm long term, and allows delivery of higher doses of medicine from IV pump that will become friend for about next 12 months (year) [22]

should be getting fitted in morning (Friday), enabling 1st test dose of Antineoplastons in afternoon [22]
——————————————————————
8/8/2011 – Burzynski Clinic Houston Texas [55]

11.am connected and switched on pump for 1st ever Antineoplaston infusion, from that moment on would have to have 90 minute infusion every 4 hours – EVERY DAY .24/7 [55]

grade four cancer diagnosis let alone NHS treatment options, alternative medical research and decisions, fundraising, flying to america for a month [55]
——————————————————————
8/8/2011 – 9/2011 – doctors completely honest, said won’t know IF or how quickly will respond until on treatment for at least 8 weeks
——————————————————————
8/8/2011 – on antineoplaston therapy since

medicine rich in sodium and have to infuse 2 litres daily

(dose lasts 90 minutes every 4 hours 24/7)

drink approx 5 litres of water daily

while pump running

carrying around infusion pump all day connected to Hickman line in chest

medicine pump

MRI scan at private hospital every 6 weeks

8/2011 – came home
——————————————————————
08/12/2011

25-year-old Laura Hymas, of High Street, Rochester, has seen tumour shrink by more than a third in just 6 weeks after pioneering therapy in America [37]

already improving since treatment in USA [37]
——————————————————————
9/2011 – came home and continued antineoplaston treatment, treatment literally takes over and consumes every day of your life [55]

Not specifically side effects because been lucky enough to have minimal short term side effects, but impact on daily life – the infusions, preparing medicine bags, blood tests, etc.. [55]
——————————————————————
10/2011

hopes to have new treatment in US [4]

took until middle of October to slowly increase antineoplaston dose up to “maintenance dose” Dr Burzynski deems most effective for body weight

hard to see Laura suffer [4]

know in next few weeks going to lose hair [4]

Some people say should accept condition is terminal [4]
——————————————————————
11/29/2011 -_6 weeks later scan tumour started shrinking by 36% [59]
——————————————————————
11/2011 – 36% (Nov 2011) [48]

decreased in size EVERY 6 weekly scan [48]

bulk of tumour reduced in size by 77% since reaching maximum tolerated dose of Antineoplastons [52]

(growth stabilised before hitting this dose) [52]
——————————————————————
1/2012 – 56% (Jan 2012) [48]
decreased in size EVERY 6 weekly scan [48]
——————————————————————
1/10/2012 – [40]

scan every 6 weeks to find out how treatment is going [40]

such good result last time where tumour shrank so much [40]

there’s amazing doctor in Houston, Texas [40]

friendly, happy and kind man who is always polite and making jokes [40]

sees so many patients but makes real effort to know you as a person, who you are, where you come from, what your story is..how you got to his front door [40]

doesnt promise you anything, cannot help everyone [40]

(1st to admit that) [40]

costs are completely transparent from day one, you even get breakdown of why treatment costs what it does [40]

has many many patients who had inoperable malignant brain cancers that failed chemo and radiotherapy who are not only still alive 20 years later… are now cancer free [40]

Some patients have never had any other treatment for their brain cancer apart from Antineoplaston therapy [40]

(which is what on) [40]

family who live in Kent just 5 miles from us got in touch just before Christmas as they read about us in the local paper [40]

son had been diagnosed with brain tumour [40]

They knew radiotherapy and chemo would only be palliative and having these therapies alone at young age would shorten life let alone brain tumour problem [40]

searched and searched … Eventually like us found Dr Burzynski too [40]

sons tumour decreased in size 72.5% from 1 year just on antineoplaston treatment, then put on low dose of medicine for further 3 years [40]

tumour is still there but hasn’t grown or changed since [40]

NHS oncologist can’t understand how he’a still here [40]

was 8 years old when diagnosed, in 1998 [40]

now 21 [40]

happy healthy young man and just passed university degree, looking forward to future [40]

a lot of criticism about Dr Burzynski, people saying Antineoplastons “unproven” and Dr Burzynski is scam artist taking money from dying cancer patients, that terminally ill cancer patients should be discouraged from “False Hope” he gives people [40]

any celebrities that try to help fund raise or appeal for people to donate are bombarded on twitter and internet with messages saying they are helping someone see scam artist and quack [40]

We have been focus of some of these groups, they have been trying to discourage people from donating to us “With Laura’s best interests at heart” [40]

already tried and exhausted currently available “conventional” medicine [40]

countless websites discussing Laura, other current patients with fund raising campagins and Dr Burzynski that contain false information about us all [40]

isn’t new thing to Dr Burzynski, he’s used to it by now but for us it’s distressing [40]

They try to find holes in Laura’s scan results when she reports good news, one person even told Laura on twitter to “F*** off” then he called her a “Burzynski Troll” and justified actions by saying Laura fake patient designed to encourage more people to give money to “Burzynski scam” [40]

REAL Stories about REAL people like the one above from family who live near us are ones that give us strength to carry on [40]

one day critics might decide there’s enough evidence to show treatment works? [40]

Just because they haven’t seen scientific data doesn’t mean something doesn’t work [40]

It’s worked for many [40]

having great response [40]

Tuesday when had scan at private hospital were walking past office afterwards where radiologist would be examining new scan and comparing it to last one taken 11/29/2011 [40]

stood outside to catch attention of secretary so could arrange next scan, at that point I saw through crack in door someone had brain scans on computer screen [40]

radiologist rolled back in his chair and popped his head round the door, our hearts were pumping as we were told we could have the result straight away [40]

radiologist had huge smile on his face [40]

Its looking good, definitely smaller [40]

walked in office, and had new scans from that day on screen with Laura’s scans from 11/29/2011 below [40]

To naked eye obvious to see tumour MUCH smaller and enhancing much less [40]

(less cancerous) [40]

pointed out some things and said haven’t finished measuring but estimate AT LEAST 25% SMALLER than last scan 6 weeks ago 11/2011 [40]

said if hang around in hospital cafe for 15 minutes he’ll finish up report and can have copy [40]

had some lunch and nurse came in short while later with report [40]

better than even initially thought [40]

TUMOUR DECREASED 56% in size since beginning American treatment 8/2011 [40]

most recent scan revealed tumour decreased massive 56% in size since beginning of treatment [43]

scan – 56% tumour decrease! [59]

latest scan shows tumour at least 25% smaller than last scan 11/2011 [43]

decreased 56% in size since beginning American treatment 8/2011 [43]

sent scan CD off straight away by Fedex to America so doctors could do independent report too [40]
——————————————————————
1/11/2012 – [40]

Yesterday night spoke to doctor at Burzynski Clinic, they’ve reviewed scans and concluded in their opinion tumour has decreased same amount [40]

need to keep on medicine into 2013 [40]

If one day lucky enough for cancer to completely disappear still need to keep on medicine up to 12 months (1 year) after, “maintenance program” designed to make sure kill every single cancerous cell because Glioblastoma Multiforme are very nasty and has “roots” that even an MRI wouldn’t necessarily pick up [40]

If stopped treatment too quickly cancer could return [40]
——————————————————————
1/13/2012 – [43]

Dr. Burzynski and clinic have been under constant heavy criticism from people believing he’s a ‘quack’ that gives ‘false hope’ to terminally ill people [43]

a lot of criticism out there about Dr Burzynski, people saying Antineoplastons “unproven” and Dr Burzynski a scam artist taking money from dying cancer patients and terminally ill cancer patients should be discouraged from “False Hope” he gives people [43]

already tried and exhausted currently available “conventional” medicine.” [43]

diagnosed with tumour just over year ago [43]

Doctors tell us current available medicines can only slow it down – there are never any survivors 12 – 14 months (1 year – 1 year 2 months) from diagnosis is prognosis [43]

keep on medicine into 2013 [43]
——————————————————————
2/2/2012 – [44]

treatment is working so well [44]

every 6 weeks for MRI scan [44]
——————————————————————
2/9/2012 – [47]

really huge milestone [47]

Day to day been continuing with medicine [47]

attached to IV pump using hickman line in chest and has dose every 4 hours 24/7 [47]

Each dose lasts 90 minutes so really interrupts sleep patterns and makes tired – effectively infuses 2 litres of medicine directly into blood stream every day involves a lot of trips to toilet [47]

medicine high in sodium so on top of this drinks 5 litres of water a day [47]

aren’t any side effects other than toilet trips, extreme thirst while infusing and tiredness [47]

Next MRI scan in few weeks so nerves and worries setting in [47]
——————————————————————
2/21/2012 – had 6 weekly MRI scan tuesday [48]

77% (Feb 2012) 77% in just 18 WEEKS [48]
decreased in size EVERY 6 weekly scan [48]

scan was even better news – 77% tumour decrease! [59]

just got results and tumour has continued shrinking [48]

now 77% smaller than when started treatment 8/2011 [48]

amazing news, was stable few months while increasing Antineoplaston dose, then hit maintenance dose 10/17/2011 [48]

decreased in size EVERY 6 weekly scan [48]

Glioblastoma Mutliforme is most agressive cancer out there so Laura will need to keep going on treatment for at least another year to kill every single cancer cell [48]

keep treatment going [48]
——————————————————————
3/25/2012 – [49]

celebrating recent scan showed 77% tumour reduction [49]

been fighting this cancer for over year now, almost approaching April [49]

This time last year told awful news that brain tumour had changed and was now much more aggressive, had turned very cancerous and future was very uncertain because it was one of worse cancers anyone could get, on top of that it was in worst location too [49]
——————————————————————
4/5/2012 – [50]

6 weekly MRI scan went well again [50]

tumour now reduced to what doctors believe is small cavity there because biopsy 4/2011 [50]

small edge of cavity is still enhancing on scan [50]

(which means cancerous cells) [50]

enhancing less than last scan, so everything moving in right direction [50]

plan for now is to just keep going and continue daily doses of antineoplaston medication [50]

treatment working so well [50]
——————————————————————
5/15/2012 – scan Tuesday shows what remains of tumour is now at stage where hardly enhancing at all on MRI scan, enhancement now barely visible without magnifying scan images heavily [52]

“active” (growing/spreading) malignant tumour shows up on MRI scan as bright white area [52]

bright area represents cancerous cells and tumour used to light up like light bulb which was bad news [52]

aim of any successful treatment is to get rid of everything that enhances so no longer have active tumour [52]

bulk of tumour reduced in size by 77% since reaching maximum tolerated dose of Antineoplastons (11/2011) [52]

(growth stabilised before hitting this dose) [52]

reduction in tumour size meant able to stop taking steroids [52]

(designed to reduce brain swelling but have nasty side effects) [52]

epilepsy has got much better, especially in last month [52]

seizures much less frequent [52]

What’s left of tumour – is cystic fluid filled cavity* [52]

*cavity there from surgery (Biopsy) 4/2011 [52]

cavity may never dissapear, might just stay there because brain tissue has been removed [52]

Alternatively cavity may break down very slowly and hopefully dissapear over time [52]

Either way isn’t major problem [52]
——————————————————————
5/18/2012 – [52]

had chat with doctor over phone last night, as last scan showed very very little enhancement they have now decided to put on “finishing program” of antineoplastons [52]

If patient lucky enough to have tumour stop enhancing then they’re asked to carry on treatment for 8 months, then finish [52]

8 month schedule allows medicine to have time to kill last cancerous cells that aren’t showing up on MRI scan [52]

told once people finish schedule – in most cases – unlikely tumour will return, most people can go on to live normal tumour free life [52]

diganosed 17 months ago (1 year 5 months) [52]

“In the field of Brain Tumours there are no ‘proven’ treatments, only treatments ‘accepted’ by a group of clinicians who practise in that field” [52]

treatment isn’t guaranteed to work for everyone, but there are many long term (10, 20yr) survivors [52]

Using traditional chemo and radiation on inoperable GBM has no long term survivors [52]
——————————————————————
6/15/2012 – [53]

suspected Hickman Line infection, really exhausted and had cold shivers [53]

Burzynski Clinic very on the ball and didn’t want to take any chances, said had to take off antineoplaston treatment and go straight to hospital so doctor could take blood cultures from hickman line and arm, local doctor arranged for us at very short notice [53]

told by clinic that if infection in line it would have to be taken out and would have to have probably 7-10 day course of antibiotics…then there would be headache of how to get another hickman line surgically fitted because only GP supporting in england [53]

havent seen or had any contact with NHS oncologist since ealier this year, despite good progress so they probably wouldn’t be able or willing to help in this situation [53]

Worst case looking at about 3 weeks without treatment – huge worry because hasn’t missed single day of treatment since 8/2011 [53]
——————————————————————
6/21/2012 – blood cultures were taken and results were clear, no infection present [53]

started back on antineoplaston treatment again and could forget all problems and what if’s [53]

While off treatment had good chance to rest and relax, something long overdue [53]

hadn’t had full nights sleep for nearly 11 months [53]

medicine is very high in sodium so wake up during doses about 5 times a night for toilet trips and drinks [53]

totally burnt out last week so suspect cold shivers and exhaustion were just where needed a break and also past year catching up emotionally [53]

been rollercoaster, on autopilot so don’t think taken 5 minutes to stop and think about whats happened to family, extreme stress of situation, fundraising and worries about raising enough money, trip to america, treatment and all the controversy it attracts [53]
——————————————————————
7/4/2012 – [54]

had MRI scan last week and despite being off treatment for 6 days prior to scan [54]

(due to suspected IV line infection) [54]

NO CHANGES [54]

back on antineoplaston treatment again and still scheduled to finish treatment at end of year [54]

really lucky to catch tumour early [54]

last year only initially had 3 options which were surgery, radiation and chemo [54]

did enormous amount of research and even got MP involved with discussions with head of PCT, they confirmed all standard approaches were palliative, designed to buy time – not something we were told by oncologists, who refer to these 3 modalities as “a radical treatment approach” and give little information apart from “we’ll see what happens” [54]

they are same options that’ve been used for decades – where is the progress? [54]

Being an inoperable tumour our only options left were radiation and chemo [54]

Knowing that best radiation can do is slow down growth [54]

(in some cases) [54]

If it worked that would only be small window of time [54]

was unable to take more than few days of chemo due to allergic reaction [54]

(which in fact, looking back was actually a normal body reaction to taking a highly toxic substance) [54]

Would American treatment work or would Dr Burzynski be a crook just like all the sceptics were saying? [54]
——————————————————————
8/2012 – no trace of Tumor at all [59]

always get 2nd opinion from UK radiologist who confirms just cavity left which should resolve over time [59]

last update just after MRI scan, at which time both Dr Burzynski’s radiologist and private UK radiologist both confirmed there was no trace of residual or recurrent brain tumour on MRI scans [56]
——————————————————————
8/29/2012 – [55]

Scan: one year on treatment! on Wednesday [55]

Burzynski Clinic advised all they can see on MRI scans is scar tissue, cavity present from where tumour used to be [55]

UK radiologist was more cautious initially [55]

(probably because he has never seen a Glioblastoma dissapear before!?) [55]

he reported on scan and came to same conclusion as Burzynski Clinic [55]

reported today he beleives all he can see is small cavity/scar tissue too [55]

fact that 2 parties don’t have any contact gives us great confidence in the 2 mirroring reports [55]
——————————————————————
9/2012 – had scan [56]
——————————————————————
11/1/2012 – Laura Hymas’s MRI assessment from Dr. Burzynski 11-01-2012

So this is uh a girl who came to see you uh this year, last year

Yes
I think this is after approximately uh 4 months of treatment
4, maybe 5 months

So she’s, been on treatment 4 months, and this is when she came to see you here
This was in Ju

I’m sorry, this was in July so this must be 6 months

6 months (both)

Yeah 6 months, yes

So this was July, and this was the next one that she had

That’s right
This is November, and uh, here is now, January
That’s a substantial difference, certainly

And this is with no chemotherapy

No chemotherapy

Just the uh

Just antineoplastons only
Yes

And, and what type of tumor did she have

Only, oh one, this is glioblastoma
This is the highest malignancy tumor
Yes

So you must be pretty happy with this

Well, she did very well
I’m very glad
Yeah
Sure

So maybe next one

Especially, since it was not necessary to use any other treatment
And actually, the response was somewhat slow and we thought that perhaps it would be necessary to add additional treatment, but since she got such a nice decrease we hope we can avoid any further treatment

Yeah

But this looks great because in addition to decrease in the tumor, we see also shrinkage of uh the cavity after, the operation

You mean the cavity around

That’s right
That’s right
The cavity here
Okay
So, this also, this is also the case which means that there is certain degree of repair, from the damage that was done by the procedure
Yes
That’s correct

She had a biopsy, didn’t she

That’s right
That’s tight
Yes
Yeah
So lets hope that perhaps another 2 months or 4 months it will disappear completely
——————————————————————
11/27/2012 – scan this morning, confirm again nothing present, which is amazing news we all couldnt be happier [56]
——————————————————————
12/25/2012 – scheduled to finish treatment just after Christmas [52]
——————————————————————
1/2013 – It’s GONE

continuing antineoplaston treatment until end of treatment course in 1/2013 and will then have regular MRI scans to ensure tumour doesn’t re-occur

just taking time to relax and see out end of Antineoplaston treatment, which all being well will finish 1/2013 after next scheduled MRI scan [56]

finish treatment [59]
======================================
======================================
THOSE WHO MADE IT POSSIBLE:
======================================
======================================
5/12/2011 – Fundraising Launch! Thursday

such an amazing response and so many emails

Thank you so much to everyone, friends, family, friends of friends and even the people who have donated and dont even know us, we are really touched by your kindness
——————————————————————
7/8/2011 – family and freinds – parents, especially Laura’s mum and dad [18]
======================================
======================================
THE PEOPLE:
======================================
======================================
Alice – heard about us because her brother plays football with Laura’s nephew Joe [49]
——————————————————————
6/26/2011 – Bergin, James – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
——————————————————————
Catlin (Alice friend Catlin) [49]
——————————————————————
8/3/2011 – Dan – Anglo-Texan friends [21]
——————————————————————
Danielle (Their friends) – run Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425
——————————————————————
Elaine (Laura’s sister) [49]
——————————————————————
Figg, Keri – live locally and heard about Laura recently through a friend: Since then have been relentlessly selling wristbands, arranging fundraisers, and running all over Kent trying to get raffle prizes!
——————————————————————
Hills, Kirsten – Journalist from BBC
18:00! re-run at 22:30 [7]
——————————————————————
5/19/2011 – Hound, Rufus sent Twitter video to his 236,293 followers Thursday [8]

7/8/2011 – received almost £20,000 in 12 hours then more donations over following weeks as people continued to spread the word about the video [18]

7/8/2011 – Broken the £50,000 Barrier! – Update on Laura Friday: only started fund raising around 6 weeks ago! [18]
——————————————————————
6/26/2011 – Ben and 2 friends – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
——————————————————————
5/31/2011 – Hymas, Eve (Evie) (Bens sister) – 12hr golf marathon Tuesday 7am [11]

5/31/2011 – friends at their schools who have donated to the fund [11]

5/31/2011 – Hymas, Theo (Brother) – [11]
——————————————————————
7/8/2011 – Les (Laura’s father in law) and his good friend [17]
——————————————————————
5/31/2011 – Jackson, Jemma – 12hr golf marathon Tuesday 7am [11]
——————————————————————
7/8/2011 – Jeffries, Terry …Local artist who gave a print of a beautiful painting of Venice, DeBeers diamond company donated a gold and diamond pen along with a box of 5 tickets to the Proms at the Royal Albert Hall! [17]
——————————————————————
Joe (Laura’s nephew) up north [49]
——————————————————————
Jones, Sandra – live locally and heard about Laura recently through a friend: Since then have been relentlessly selling wristbands, arranging fundraisers, and running all over Kent trying to get raffle prizes!
——————————————————————
7/10/2011 – Local Man Donates £5,000 ! Sunday [19]

Lee – local man donated £5,000 after reading her story on leaflet in shop near Jacobs nursery [19]

Ben and Laura’s dad Fred arranged to meet Lee in a coffee shop in Rochester yesterday [19]
——————————————————————
4/19/2012 – Les (Laura’s friend) [51]
——————————————————————
8/3/2011 – Louise – Anglo-Texan friends [21]
——————————————————————
6/26/2011 – Marks, Richard – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
——————————————————————
7/8/2011 – Meaking, Len (Les’ good friend) [17]

7/8/2011 – Auction and raffle [17]
——————————————————————
6/17/2011 – Morden, Emily – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday [12]
——————————————————————
McKenzie, Leon (ex Crystal Palace) [7]
——————————————————————
time to meet Russ – English guy who lives in Texas who heard about us on twitter – he’s offered to let us have a car for free while we’re here saving about £1000 [21]
——————————————————————
Snowdon, Lisa [7]
——————————————————————
Stanley Family [7]

auction off their dad’s signed Manchester City football shirt
——————————————————————
STANLEY, KAYLIE (Kayley) [7]
one of Laura’s oldest school friends, sadly lost her father to Brain Cancer when they were growing up [7]

sell her wedding dress and donate proceeds to the fund
——————————————————————
Steve (Their friends) – run Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425
——————————————————————
6/17/2011 – Stevenson, Robyn – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday [12]
——————————————————————
6/17/2011 – Stevenson, Sam – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday [12]
——————————————————————
6/27/2011 – Taylor, Jessica L E – founder of “Share a Star” charity, Kent [15]
http://www.shareastar.org.uk
——————————————————————
6/19/2011 – Willis, Brett – on Sunday completed 60 mile London to Brighton bike ride aim to complete ride in under 5 hours and managed it in 4hrs 51 minutes! [13]

6/19/2011 – raising £619 [13]

6/19/2011 – everyone who sponsored Brett and played a part in helping us raise money for the treatment fund [13]
——————————————————————
5/31/2011 – generously hosted by Roy, Sarah and Woodage, Charlie [11]

5/31/2011 – Woodage, Charlie – 12hr golf marathon Tuesday 7am [11]
——————————————————————
08/12/2011 – funded by £75,000 raised by family, friends and strangers [37]

10/2011 – if does save her life, we can carry on raising money for others in a similar situation [4]
======================================
======================================
BUSINESSES:
======================================
======================================
4/19/2012 – Night Out event Friday that Laura’s friend Les has been busy arranging [51]
——————————————————————
4/27/2012 – Fundraising event is Sponsored Assult Course for kids Friday [49]

All children will be involved and Lofty The Lion, Bolton Wanderers mascot

children are being educated about Laura and her condition, as school feel is very important that children realise these events can occur in people’s lives

Elaine said there will be Barbeque, ice creams etc [49]
——————————————————————
6/27/2011 – London 52 Mile Bikeathon Completed! Monday
——————————————————————
5/31/2011 – public par 65 Bramford Golf Center [11]

5/31/2011 – Tuesday at 7am, 12hr golf marathon (golfathon)

5/31/2011 – 124 holes and almost £500 in sponsorship [11]
——————————————————————
6/12/2011 – Golf Marathon! Sunday
——————————————————————
6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday girls are friends of Laura and all wore grey to represent their support of “Wear Grey For Laura Day” as grey represents the colour for Brain Cancer support [12]

6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday They all baked and brought cakes in and sold them to customers in exchange for a small donation [12]

6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday The branch was dressed up in silver balloons and banners to help raise awareness and set the scene! [12]

6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday raising £573.08 !! [12]
——————————————————————
6/20/2011 – Barclays Branch Fund Raiser Monday [12]
——————————————————————
Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425 – Steve and Danielle (their friends) run
——————————————————————
08/12/2011 – enjoyed family trip to Dickensian Christmas Festival in Rochester at the weekend [37]
——————————————————————
7/8/2011 – Golf Tournament Raises £4,040! Friday
Len had charity BBQ at his house last weekend and raised £500 bringing total raised to £4,040 ! [17]

7/8/2011 – arranged golf tournament wednesday Hintlesham Hallf Golf Club in Suffolk, followed by hog roast, raffle some generous auction items, some nice cake [17]
——————————————————————
7/8/2011 – anonymous golfer donated holiday to La Manga with flights, accomodation and 2 rounds of golf included! [17]
——————————————————————
7/4/2011 – Prima Montessori Family Fun Day! Monday [16]

7/3/2011 – Jacobs nursery held fun day on sunday to help raise money for Laura’s fund! [16]

7/3/2011 – nursery staff got together and produced amazing day BBQ, cakes, Tombola, Raffle prizes, Painting and messy play, a Magician/entertainer for the kids, bouncy castle and loads more …including throwing wet sponges
(and later full water buckets!)
at the staff for a few quid!
Mums and Dads even benefited – they got their car washed
(for a small fee) [16]

The family run nursery have been a great support to us and are arranging more events over the next month, we cant thank them enough for their support and the amazing job they’re doing looking after Jacob – he loves his days at the nursery! [16]

6/26/2011 – raise amazing £7,650 in total sponsorship for this event from colleagues at RWE Trading where Ben and James work and RBS where Richard works!
——————————————————————
6/27/2011 – “Share a Star” Supports Monday [15]
http://www.shareastar.org.uk
——————————————————————
4/5/2012 – relaxing spa break courtesy of The Willow Foundation [50]
http://www.willowfoundation.org.uk
======================================
======================================
NEWS MEDIA:
======================================
======================================
3/25/2012 – in local paper last week article celebrating recent scan showed 77% tumour reduction [49]
——————————————————————
5/15/2011 – BBC SOUTH EAST NEWS [7]
——————————————————————
2011 – BELLA magazine
——————————————————————
5/27/2011 – Daily Mirror Covers My Story Friday [9]
IPC magazines journalist [7]
——————————————————————
‘Pick Me Up’ magazine – has circulation of 400,000 copies sold every week [7]

£500 to Lauras Hope fund for her story! [7]
——————————————————————
5/27/2011 – NewsUK News,Real life: I’ll do anything I can to stay alive for my baby 12:01 AM By Mirror.co.uk [10]
——————————————————————
Sky channel 983 – family and friends not in Kent/Sussex & Surrey area [7]
======================================
======================================
REFERENCES:
======================================
======================================
[1] – 12/24/2009 – Laura’s Tumour
——————————————————————
http://www.hopeforlaurafund.co.uk/lauras-tumour
======================================
[2] – 5/8/2011 – Our Original Appeal – 8th May 2011: Welcome to the Hope for Laura Fund
——————————————————————
http://www.hopeforlaurafund.co.uk
======================================
[3] – Hope for Laura Fund blog
——————————————————————
http://www.hopeforlaurafund.co.uk/blog
======================================
[4]
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/frontpage/4
======================================
[5] – 5/12/2011 – Fundraising Launch! on Thursday, 12 May 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/our-second-blog-post
======================================
[6]
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/frontpage/3
======================================
[7] – 5/14/2011 – Press Coverage! on Saturday, 14 May 2011. BBC SOUTH EAST NEWS & PICK ME UP MAGAZINE
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/press-coverage
======================================
[8] – 5/19/2011 – Twitter Has Gone Mad!! on Thursday, 19 May 2011. RUFUS HOUND GOES THE EXTRA MILE FOR LAURA
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/twitter-has-gone-mad
======================================
[9] – 5/27/2011 – Daily Mirror Covers My Story on Friday, 27 May 2011. COVERAGE AVAILABLE ONLINE AND IN TODAYS HARDCOPY PAPER
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/daily-mirror
======================================
[10] – 5/27/2011 – NewsUK News, Real life: I’ll do anything I can to stay alive for my baby 27 May 2011 12:01 AM By
Mirror.co.uk
——————————————————————
http://www.mirror.co.uk/news/uk-news/real-life-ill-do-anything-i-can-130745
======================================
[11] – 5/31/2011 (6/12/2011) – Golf Marathon! on Sunday, 12 June 2011. On Tuesday 31st May at 7am, Charlie Woodage, Jemma Jackson and Bens sister Eve Hymas teed off for a 12hr golf marathon in aid of the ‘hope for laura fund’
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/golf-marathon
======================================
[12] – 6/20/2011 – Barclays Branch Fund Raiser on Monday, 20 June 2011. Barclays staff members Emily Morden, Robyn Stevenson & Sam Stevenson arranged for the branch in Rayleigh, Essex to have a fund raising day for Laura on Friday 17th June
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/barclays-branch-fund-raiser
======================================
[13] – 6/20/2011 – London to Brighton Ride on Monday, 20 June 2011. A huge thank you from us to Brett Willis who on Sunday completed the 60 mile London to Brighton bike ride in aid of Laura
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/london-to-brighton-ride
======================================
[14] – 6/27/2011 – London 52 Mile Bikeathon Completed! on Monday, 27 June 2011. Laura’s fiancee Ben and two friends (James Bergin and Richard Marks) completed the London Bikeathon yesterday to raise money for Laura’s fund!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/london-52-mile-bikeathon-completed
======================================
[15] – 6/27/2011 – “Share a Star” Supports Laura on Monday, 27 June 2011. Jessica L E Taylor, the founder of the “Share a Star” charity gave Laura a personalised gift of a Star to hold with her when visiting the hospital having treatment and to take to America with us when we visit the clinic
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/share-a-star-supports-laura
======================================
[16] – 7/4/2011 – Prima Montessori Family Fun Day! on Monday, 04 July 2011. Jacobs nursery held a fun day on sunday to help raise money for Laura’s fund!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/prima-montessori-family-fun-day
======================================
[17] – 7/8/2011 – Golf Tournament Raises £4,040! on Friday, 08 July 2011. Laura’s father in law Les and his good friend Len Meaking arranged a golf tournament on wednesday to raise money for Laura
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/golf-tournament-raises-4040
======================================
[18] – 7/8/2011 – Broken the £50,000 Barrier! – Update on Laura on Friday, 08 July 2011. Following on from the golf tournament we have now broken the £50,000 barrier!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/broken-the-50000-barrier-update-on-laura
======================================
[19] – 7/10/2011 – Local Man Donates £5,000 ! on Sunday, 10 July 2011. Lee, a local man has donated £5,000 to Laura’s fund after reading about her story on a leaflet in a shop near Jacobs nursery
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/local-man-donates-5000
======================================
[20] – 7/30/2011 – Welcome to Houston! on Saturday, 30 July 2011. NOW THAT’S A SIGN WE DIDN’T THINK WE WOULD SEE UNTIL AT LEAST OCTOBER!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/welcome-to-houston
======================================
[21] – 8/3/2011 – Consultation Day on Wednesday, 03 August 2011. WE HAD A MIXTURE OF FEELINGS THIS MORNING. TODAY AT 11:30AM WAS CONSULTATION DAY AT THE CLINIC…
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/consultation-day
======================================
[22] – 8/4/2011 – FDA Approval! on Thursday, 04 August 2011. We just got a call from the clinic and Laura has now been approved for treatment by the FDA much quicker than we thought!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/fda-approval
======================================
[23] – LAURA’S TREATMENT IN AMERICA
——————————————————————
http://www.hopeforlaurafund.co.uk/us-treatment
======================================
[24]
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/frontpage/2
======================================
[25] – 8/6/2011 – IV fitted all set for Monday on Saturday, 06 August 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/iv-fitted-all-set-for-monday
======================================
[26] – 8/8/2011 – Kent is near Wales?? on Monday, 08 August 2011. ….i’ll explain the title in a minute :o) Today was first day of antineoplaston medicine at the Burzynski Clinic!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/kent-is-near-wales
======================================
[27] – 8/18/2011 – Treatment Progress Update on Thursday, 18 August 2011. Has it really been 10 days since i’ve written the last Blog update?!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/treatment-progress-update
======================================
[28] – 8/24/2011 – Our american journey comes to an end.. on Wednesday, 24 August 2011. After what seems like months, but is only three weeks we have come to the end of this part of our journey.
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/our-american-journey-comes-to-an-end
======================================
[29] – 9/7/2011 – Update since we got back home on Wednesday, 07 September 2011. Sorry for the Radio silence over the past few weeks!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/update-since-we-got-home
======================================
[30] – 9/9/2011 – Stable Tumour! on Friday, 09 September 2011. Laura had an MRI scan on monday and we got a call from the clinic last night to go over the results
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/stable-tumour
======================================
[31] – 9/15/2011 – Music Festival – Chatham, Kent! on Thursday, 15 September 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/music-festival-chatham-kent
======================================
[32] – 10/3/2011 – Remembering brave friends on Monday, 03 October 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/remembering-brave-friends
======================================
[33] – 10/21/2011 – MRI results day on Friday, 21 October 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/mri-results-day
======================================
[34] – 11/21/2011 – Update for November 2011 on Monday, 21 November 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/update-for-november-2011
======================================
[35] – 11/30/2011 – MRI Scan Day! on Wednesday, 30 November 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/mri-scan-day
======================================
[36] – 12/6/2011 – MRI 2nd Opinion on Tuesday, 06 December 2011.
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/mri-2nd-opinion
======================================
[37] – 12/9/2011 – Cancer sufferer Laura Hymas has miracle ‘cure’
——————————————————————
http://www.kentonline.co.uk/kentonline/home/2011/december/9/cancer_sufferer_laura_hymas.aspx
======================================
[38] – 12/21/2011 – Visit to the NHS Oncologist on Wednesday, 21 December 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/visit-to-the-nhs-oncologist
======================================
[39] – 12/31/2011 – Happy New Year! on Saturday, 31 December 2011
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/happy-new-year
======================================
[40] – 1/12/2012 – What a start to 2012! Amazing News! on Thursday, 12 January 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/what-a-start-to-2012-amazing-news
======================================
[41] – 1/12/2012 – Video Interview with Dr Burzynski about Laura! on Thursday, 12 January 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/interview-with-dr-burzynski-about-laura
======================================
[42] – 1/12/2012 – Video Interview with Dr Burzynski about Laura! on Thursday, 12 January 2012. Click Here if the video doesn’t load –
——————————————————————

——————————————————————
This is an interview with Dr Burzynski discussing Laura’s case and latest scan results!

Please take a look at the video – you’ll be probably as shocked as we were at what Dr Burzynski says at the end of the interview!
======================================
======================================
[43] – 1/13/2012 – Cancer patient’s husband hits back at critics… Jan 13th, 2012 @ 12:54 am › Jonathan Smith-Squire
——————————————————————
http://sellyourstoryuk.com/2012/01/13/burzynski-critics/
======================================
[44] – 2/2/2012 – JustGiving Page & Text Donation on Thursday, 02 February 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/justgiving-page-text-donation
======================================
[45] – 2/4/2012 – Laura & Hannah Video on Saturday, 04 February 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/laura-hannah
======================================
[46] – If youre not able to view the video of Laura and Hannah click here
——————————————————————

======================================
[47] – 2/9/2012 – Goodbye Headscarf! on Thursday, 09 February 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/goodbye-headscarf
======================================
[48] – 2/22/2012 – 77 PERCENT! on Wednesday, 22 February 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/77-percent
======================================
[49] – 3/25/2012 – Whats Happening Now? on Sunday, 25 March 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/whats-happening-now
======================================
[50] – 4/5/2012 – April 2012 Scan Results on Thursday, 05 April 2012.
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/april-scan-results
======================================
[51] – 4/19/2012 – Night Out In Aid Of Laura! on Thursday, 19 April 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/night-out-in-aid-of-laura
======================================
[52] – 5/19/2012 – May 2012 MRI scan on Saturday, 19 May 2012. THIS MONTH IS ONE YEAR SINCE OUR FUNDRAISING LAUNCH!
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/may-2012-mri-scan
======================================
[53] – 6/22/2012 – Hickman Line Troubles on Friday, 22 June 2012. Just thought i’d post a quick update about Laura as its been a while
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/hickman-line-troubles
======================================
[54] – 7/4/2012 – July 2012 Scan on Wednesday, 04 July 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/july-2012-scan
======================================
[55] – 8/29/2012 – August 2012 Scan – one year on treatment! on Wednesday, 29 August 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/august-2012-scan
======================================
[56] – 11/27/2012 – November 2012 MRI Scan on Tuesday, 27 November 2012
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/november-2012-mri-scan
======================================
[57] – 2/12/2013 – Ending a long journey.. on Tuesday, 12 February 2013
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/ending-a-long-journey
======================================
[58] – 3/12/2013 – Another milestone in my journey on Tuesday, 12 March 2013
——————————————————————
http://www.hopeforlaurafund.co.uk/blog/item/another-milestone-in-my-journey
======================================
[59] – Hope for Laura Fund
——————————————————————
https://www.justgiving.com/hopeforlaurafund
======================================
●

[
]
======================================

Posted in Antineoplastons (ANP), Burzynski II, Burzynski Phase II Clinical Trials, Debate ?, FDA, United States Food and Drug Administration, Glioblastoma Multiforme (GBM), Hymas (Laura, Ben, and Jacob), JosephineJones (@_JosephineJones), Stanislaw Rajmund Burzynski, The Skeptics | Tagged " Kirsten Hills", " robin Stevenson", " Update on Laura", "12hr golf marathon", "20 years", "2150 ninety minute infusions to date", "5 litres of water daily", "6 weekly MRI scan", "6 weeks radiotherapy coupled with Temozolomide chemotherapy", "60 mile London to Brighton bike ride", "600 defective genes", "77 PERCENT", "90 minute infusion", "90 minutes every 4 hours 24/7", "allergic reaction", "alternative cure", "Anglo-Texan", "Another milestone in my journey", "anti-depressants", "antineoplaston therapy", "at wits end", "average life expectancy poor", "‘Pick Me Up’ magazine", "baby blues", "bad day", "Barclays branch in Rayleigh, "Barclays branch Rayleigh, "BELLA magazine", "Ben Hymas", "Bens sister", "biopsy scar", "blood culture results", "blood stream", "blood tests", "brain cavity", "brain scan", "brain tumour treatment protocols", "brain tumour", "brain tumours", "Brett Willis", "broke down", "Broken the £50, "bulk of tumour reduced in size by 77% since reaching maximum tolerated dose of Antineoplastons", "burst into tears", "Burzynski Troll”, "can’t accept going to die", "cancer causing genes", "cancer cells", "Cancer patient’s husband hits back at critics", "Cancer sufferer Laura Hymas has miracle ‘cure’", "catch 22", "causing a lot of stress at home", "cavity there from surgery", "Charlie Woodage", "cold shivers", "Consultation Day", "conventional” medicine", "convinced there was something wrong", "Cricketers Pub in Gillingham", "cystic fluid filled cavity", "Daily Mirror", "DeBeers diamond company", "decreased in size EVERY 6 weekly scan", "deep in the brain", "determined to beat this", "Dickensian Christmas Festival in Rochester", "dose lasts 90 minutes", "Dr Acelar primary consultant", "Dr Acelar", "Dr. Burzynski", "dragged round country parks for walks", "East London", "eat bad food", "eating away at health and energy", "Elaine Laura’s sister", "Emily Morden", "Ending a long journey", "epileptic seizure", "Eve (Evie) Hymas", "exhausted all the time", "extreme stress", "extreme thirst", "extremely stressful", "F*** off”, "fake patient", "false information", "fast-growing, "FDA Approval", "FDA approved Phase II clinical trial", "feel like giving up", "felt like life was slipping away", "felt never fully recovered after the birth and over 15 month period", "fund raising campagins", "Fundraising Launch", "gene expression tests", "Gene target therapies", "gene targeted therapies", "gene therapy", "General Practitioner", "genetic tests", "glioblastoma multiforme", "Glioblastoma Mutliforme is most agressive cancer", "Golf Tournament Raises £4, "golf tournament", "Goodbye Headscarf", "got a lot more energy", "grade four cancer diagnosis", "green light", "growth stabilised before hitting this dose", "hadn’t been sleeping well", "Happy New Year", "Has it really been 10 days since i’ve written the last Blog update?", "healing process", "Hickman Line Troubles", "Hickman Line", "High Street, "Hope for Laura Fund blog", "Hope for Laura fund", "huge tumour", "I’ve eaten lots of chocolate", "immune system", "Increase in size of tumour left frontal lobe”, "infuse 2 litres daily", "infusion pump all day connected to Hickman line in chest", "inoperable malignant brain cancers", "inoperable tumour", "IPC magazines journalist", "IV bag", "IV fitted all set", "IV line", "IV pump", "Jacob hymas", "James Bergin", "Jemma Jackson", "Jessica L E Taylor", "Joe (Laura’s nephew)", "Jonathan Smith-Squire", "JustGiving Page & Text Donation", "KAYLIE (Kayley) STANLEY", "Kent is near Wales??", "Kent United Kingdom", "Keri Figg", "Kings Hospital", "La Manga", "Laura & Hannah Video" http://www.hopeforlaurafund.co.uk/blog/item/laura-hannah/, "Laura Hymas", "Laura’s dad Fred", "Laura’s father in law Les", "Laura’s fiancee Ben", "Laura’s fund", "Laura’s mum and dad", "Laura’s nephew Joe", "LAURA’S TREATMENT IN AMERICA", "Lauras Hope fund", "Lee – local man donated £5, "Len Meaking (Les’ good friend)", "Len Meaking", "Leon McKenzie (ex Crystal Palace)", "Les (Laura’s father in law)", "Les (Laura’s friend)", "life’s worth fighting for", "Lisa Snowdon", "Local Man Donates £5, "Lofty The Lion, "London 52 Mile Bikeathon Completed", "London Bikeathon", "London to Brighton Ride", "lose feeling and co-ordination in right arm", "lost all hair which fell out very quickly – in a matter of hours", "low dose", "low-grade, "malignant brain cancer", "malignant brain tumor", "Manchester City football shirt", "maximum tolerated dose", "medicine bags", "medicine pump", "medicine rich in sodium", "might have slept awkwardly or pulled a muscle", "minimal short term side effects", "mis-diagnosed", "most aggressive form of brain cancer", "MRI 2nd Opinion", "MRI scan at private hospital every 6 weeks", "MRI Scan Day", "MRI Scan", "multiple seizures", "Music Festival – Chatham, "National Health Service", "NHS oncologist", "Night Out In Aid Of Laura", "no trace of residual or recurrent brain tumour", "nutritionalist Jo Gamble", "one size fits all", "one year on treatment", "Our american journey comes to an end", "Our Original Appeal", "paralysed right arm and hand back", "patient stories", "patient story", "Pheonix Arizona", "post radiotherapy swelling", "postnatal depression", "Press coverage", "Prima Montessori Family Fun Day", "professional medical assistance", "Proms at the Royal Albert Hall!", "public par 65 Bramford Golf Center", "rare, "rare Brain Cancer", "Remembering brave friends", "Richard Marks", "right arm almost paralysed", "right arm virtually paralysed", "Rochester Kent", "Roy Woodage", "RUFUS HOUND GOES THE EXTRA MILE FOR LAURA", "Rufus Hound", "RWE Trading", "Sam Stevenson", "Sandra Jones", "Sarah Woodage", "Saturday Google+ Hangout", "scam artist", "scan every 6 weeks", "Scan Results", "scans every 6 weeks", "scar tissue", "scientific data", "Share a Star Supports Laura", "Share a Star”, "shrink tumour", "side effects", "sinus infection unrelated to tumour or medication", "Sky channel 983", "so frustrating not knowing what", "so tired even good nights sleep couldn’t get up in the morning", "South West London", "Sponsored Assult Course", "Stable Tumour", "Stanley Family", "stay up late some nights watching TV instead of resting", "suffered terrible morning sickness so severe", "support network" cancer, "suspected Hickman Line infection", "suspected IV line infection", "switch off”, "Terry Jeffries", "Thames Barrier", "Theo Hymas", "time bomb inside your head", "tingling in fingers", "treatment literally takes over and consumes every day of your life", "Treatment Progress Update", "tumor shrank", "tumour shrank", "tumour suppressor genes", "tumour tissue", "Twitter Has Gone Mad", "Twitter video", "un-successful", "unconditional love", "Update since we got back home", "Video Interview with Dr Burzynski about Laura", "video of Laura and Hannah", "Visit to the NHS Oncologist", "warning bells rang", "was in pieces", "weakness in right arm", "Wear Grey For Laura Day”, "Welcome to Houston", "Welcome to the Hope for Laura Fund", "What a start to 2012", "What to do when a Burzynski Skeptic suggests you not do it", "Whats Happening Now?", "worse cancers", "worst location", 000 Barrier", 000", 040", @Hintlesham Hallf Golf Club in Suffolk", aggressive, agonising, agonizing, Alice, allergic, America, antibiotics, antineoplaston, antineoplastons, anxious, apoptosis, “Antineoplaston A10 & AS2-1″, “Burzynski scam”, “False Hope”, “finishing program”, “In the field of Brain Tumours there are no ‘proven’ treatments, “maintenance dose”, “maintenance program”, “molecular fingerprint”, “radical treatment approach”, “scan week”, “turn on”, “unique treatment plan”, inoperable brain tumour", baby, BBC, Bikeathon, biopsy, bloods, Bob Blaskiewicz, Bolton Wanderers mascot", bombshell, breakdown, Britain, Burzynski Clinic, cancerous, cancerous cell", cancers, Catlin, cautious, cavity, CD, celebrities, Chemo, CHEMOTHERAPY, CHILDREN, cold, confident, CONSULTATION, controversial, controversy, criticism, Dan, dangerous, Danielle, depressed, depression, devastated, devastating, diagnosed, diagnosis, difficult, disabled, disappear, dissapear, distressing, DNA, Doctor, doctors, drugs, Elaine, emotional, empowered, england, enhancement, enhances, enhancing, epilepsy, Essex fund", Essex", examination, exercise, exhaustion, faltering, family, FDA, Fedex, flight, football, fret, friends, frustrating, GBM, Genes, glioma, GP, health, heartbreaking, high-grade glioblastoma multiforme", hospital, http://sellyourstoryuk.com/2012/01/13/burzynski-critics/, http://www.hopeforlaurafund.co.uk/, http://www.hopeforlaurafund.co.uk/blog/, http://www.hopeforlaurafund.co.uk/blog/frontpage/2/, http://www.hopeforlaurafund.co.uk/blog/frontpage/3/, http://www.hopeforlaurafund.co.uk/blog/frontpage/4/, http://www.hopeforlaurafund.co.uk/blog/item/77-percent/, http://www.hopeforlaurafund.co.uk/blog/item/another-milestone-in-my-journey/, http://www.hopeforlaurafund.co.uk/blog/item/april-scan-results/, http://www.hopeforlaurafund.co.uk/blog/item/august-2012-scan/, http://www.hopeforlaurafund.co.uk/blog/item/barclays-branch-fund-raiser/, http://www.hopeforlaurafund.co.uk/blog/item/broken-the-50000-barrier-update-on-laura/, http://www.hopeforlaurafund.co.uk/blog/item/consultation-day/, http://www.hopeforlaurafund.co.uk/blog/item/daily-mirror/, http://www.hopeforlaurafund.co.uk/blog/item/ending-a-long-journey/, http://www.hopeforlaurafund.co.uk/blog/item/fda-approval/, http://www.hopeforlaurafund.co.uk/blog/item/golf-marathon/, http://www.hopeforlaurafund.co.uk/blog/item/golf-tournament-raises-4040/, http://www.hopeforlaurafund.co.uk/blog/item/goodbye-headscarf/, http://www.hopeforlaurafund.co.uk/blog/item/happy-new-year/, http://www.hopeforlaurafund.co.uk/blog/item/hickman-line-troubles/, http://www.hopeforlaurafund.co.uk/blog/item/interview-with-dr-burzynski-about-laura/, http://www.hopeforlaurafund.co.uk/blog/item/iv-fitted-all-set-for-monday/, http://www.hopeforlaurafund.co.uk/blog/item/july-2012-scan/, http://www.hopeforlaurafund.co.uk/blog/item/justgiving-page-text-donation/, http://www.hopeforlaurafund.co.uk/blog/item/kent-is-near-wales/, http://www.hopeforlaurafund.co.uk/blog/item/local-man-donates-5000/, http://www.hopeforlaurafund.co.uk/blog/item/london-52-mile-bikeathon-completed/, http://www.hopeforlaurafund.co.uk/blog/item/london-to-brighton-ride/, http://www.hopeforlaurafund.co.uk/blog/item/may-2012-mri-scan/, http://www.hopeforlaurafund.co.uk/blog/item/mri-2nd-opinion/, http://www.hopeforlaurafund.co.uk/blog/item/mri-results-day/, http://www.hopeforlaurafund.co.uk/blog/item/mri-scan-day/, http://www.hopeforlaurafund.co.uk/blog/item/music-festival-chatham-kent/, http://www.hopeforlaurafund.co.uk/blog/item/night-out-in-aid-of-laura/, http://www.hopeforlaurafund.co.uk/blog/item/november-2012-mri-scan/, http://www.hopeforlaurafund.co.uk/blog/item/our-american-journey-comes-to-an-end/, http://www.hopeforlaurafund.co.uk/blog/item/our-second-blog-post/, http://www.hopeforlaurafund.co.uk/blog/item/press-coverage/, http://www.hopeforlaurafund.co.uk/blog/item/prima-montessori-family-fun-day/, http://www.hopeforlaurafund.co.uk/blog/item/remembering-brave-friends/, http://www.hopeforlaurafund.co.uk/blog/item/share-a-star-supports-laura/, http://www.hopeforlaurafund.co.uk/blog/item/stable-tumour, http://www.hopeforlaurafund.co.uk/blog/item/treatment-progress-update/, http://www.hopeforlaurafund.co.uk/blog/item/twitter-has-gone-mad, http://www.hopeforlaurafund.co.uk/blog/item/update-for-november-2011/, http://www.hopeforlaurafund.co.uk/blog/item/update-since-we-got-home/, http://www.hopeforlaurafund.co.uk/blog/item/visit-to-the-nhs-oncologist/, http://www.hopeforlaurafund.co.uk/blog/item/welcome-to-houston/, http://www.hopeforlaurafund.co.uk/blog/item/what-a-start-to-2012-amazing-news/, http://www.hopeforlaurafund.co.uk/blog/item/whats-happening-now/, http://www.hopeforlaurafund.co.uk/lauras-tumour/, http://www.hopeforlaurafund.co.uk/us-treatment/, http://www.kentonline.co.uk/kentonline/home/2011/december/9/cancer_sufferer_laura_hymas.aspx/, http://www.mirror.co.uk/news/uk-news/real-life-ill-do-anything-i-can-130745/, http://www.shareastar.org.uk, http://www.shareastar.org.uk "BBC SOUTH EAST NEWS", https://www.justgiving.com/hopeforlaurafund/, illness, independent, infection, infuses 2 litres", infusing, infusions, inoperable, Internet, interrupts sleep patterns", iPhone, Jacobs nursery", James, Kent", Kent/Sussex, KFC, lab, Lanzarote, Lee, Len, London, Louise, medicines, milestone, Mirror.co.uk, modalities, mood, MP, NewsUK News, NHS, NICE, normality, oligodendroglioma, oncologist, only treatments ‘accepted’ by a group of clinicians who practise in that field”, palliative, parents, patients, PCT, physical, pills, pioneered, pioneering, pregnancy, prognosis, quack, RADIATION, radiologist, radiotherapy, RBS, Real life", reeling, Richard, Richmond Park", Rochester", rollercoaster, Russ, Saw, Scan, scary, sceptics, shattered, shivers, shock, shocked, slow-growing tumour", stabilise, Stable, steroids, Steve, stressful, suppressor, surgery, Surrey, survivors, swelling, symptoms, terminal, tired, tiredness, TMZ, toilet trips", transparent, treatment, tumor, tumour, Twitter, UK, US, Vanessa, Venice, websites, whirlwind, worries | Leave a reply

Search

Search

Recent posts

Pete Cohen films Pat and Steve Clarkson January 15, 2014

Pete Cohen talks to Steve and Mary Jo Siegel January 14, 2014

Pete Cohen talks with Doug Olson January 10, 2014

Pete Cohen talks with Burzynski Patient January 8, 2014

Dr. Li-Chuan Chin, PhD, National Cancer Institute Scientist (1991-1997) talks about Dr. Burzynski and Antineoplastons January 6, 2014

Archives
Archives
Categories
Categories

Meta

Register

Log in

Entries feed

Comments feed

WordPress.com

Didymus Judas Thomas' Hipocritical Oath Blog

Stanislaw Rajmund Burzynski, Stanislaw R. Burzynski, Stanislaw Burzynski, Stan R. Burzynski, Stan Burzynski, S. R. BURZYNSKI, S. Burzynski, Arthur Burzynski, Hippocrates Hypocrite Hypocrites Critic Critics Critical HipoCritical

Tag Archives: “conventional” medicine”

Pete Cohen films Pat and Steve Clarkson

Pete Cohen chats with Richard A. Jaffe, Esq.

Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html