Pete Cohen films Pat and Steve Clarkson

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Pat Clarkson, and I come from Danville, California, which is near San Francisco, and I have multiple myeloma; which is not a common cancer
About 20,000 people in the United States have the disease, and about 10,000 die every year, and 10,000 get the disease
So it’s a relatively small number of folks,that have it
So it’s not well
It’s not as well researched as some of the other cancers, um, but we’re hoping that the, um, Burzynski Clinic can help me

There’s not much hope for me
I, I have probably, a, uh, prognosis of a couple, couple years
Maybe a year or two to live, um, without, um, without I, I, an alternative method of treatment, and that’s why
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If I could say this a little differently
The conventional medicine, or what we would call conventional medicine, which is, you know, chemotherapy, radiation, uh, surgery; which is not possible with, uh, multiple myeloma because there is no, no large tumor that can be surgically removed, uh, the doctors have told us basically there is no cure, and that, and I, I say doctors; this is our local oncologist, um, and the head of oncology at, um, University of California, San Francisco; which is a very well respected school, uh, hospital, that there is no, uh, no reasonable possibility of a cure
Um, by contrast, uh, Dr. Burzynski, we have found out, has, uh, cured several people with myeloma, and he’s cured many other people with different kinds of cancer
The problem is, uh, that the FDA in its wisdom, will not allow us to, uh, be treated with the, uh, antineoplastons that are the backbone of the Burzynski therapy
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Well they’ve told us that they don’t have evidence that it’s, um, that it’s an effective treatment
Uh, that, they don’t have evidence that it’s not, non-toxic; which in fact, uh, is incorrect because the FDA does have evidence that it’s non-toxic
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Through the Senator’s office at the, the FDA is saying that they, they don’t know for sure that it’s not toxic; that’s not true, uh, and they don’t know that it will cure the disease, and therefor they can’t approve it
We’re willing
Pat’s willing to take the odds of a treatment, that is not 100% guaranteed, and let’s face it, most of the treatments that are approved by the FDA, are toxic, and are not guaranteed
So we don’t really understand, uh, why they have an issue with it, except that, uh, there’s an awful lot of money involved
Um, one of the peculiarities of the FDA, we understand they’re, by law, required to get much of their funding from the very companies that they’re supposed to be supervising

As, as I understand, uh, the Constitution, there is no basis in the Constitution for the Federal Government to be telling, an American, who they can use for a doctor or what drugs that they can use for, uh, their, their illness
Yet, over the years this, uh, this power has grown and been accepted at the FDA, and now it’s a, uh, uh, it’s, it’s out of control
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We have asked the FDA what is different about my case
Why I don’t get an exemption
We don’t have a response yet to that, to that question
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While doctors are generally very bright; they have to be to get through medical school, but they don’t have any training in critical, critical thinking, and most of them that I run into are not particularly good critical thinkers
The world they live in is to memorize a set of symptoms, then to look up or remember what those symptoms suggest in terms of a disease, and then remember or look up what the treatment is

So, here we have, um, uh, Dr. Burzynski, who is also a Ph.D biochemist, which is a, a interesting and, and very useful, uh, combination, who discovered that, um, in people who have cancer, they generally don’t have, or they have very reduced levels of what he now calls, uh, antineoplastons, and neoplaston is simply the medical jargon for cancer; so it’s anti-cancer, in effect, um, he discover the people who, uh, don’t have cancer, do have, high levels of this, and determined from research that these are controlled by, um, by the genes, and it’s part of the body’s immune system, in effect
We all produce cancer cells everyday of our lives
Like we produce bac, or have bacteria in our gi, digestive tract, that is controlled, by certain genes
In this case, um, he discovered that by, uh, by injecting, uh, or infusing, uh, these, they’re called peptides, peptide, that the patient could be helped
How, how innocuous, or how anti-toxic, can you have
It’s a, it’s a substance th, the body itself produces, unless the genes have shut down
Which is the case in, uh, some, in most, or at least half I guess, of multiple myeloma cases
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My, my message would be that they don’t have the right to tell me to hold a, a life or a death, um, decision
They, they don’t have the right to tell me that, um, I can’t have treatment that I seek, or I will die
I don’t think they have that right to do that
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Treatment is available
Uh, it is our choice
We are free Americans
We’re well informed
Uh, well educated
It should be our choice, and the Federal government in any, in any form should not have the authority to interfere with that
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Uh, nothing’s guaranteed in this world, um, but we’ve got, um, we’ve got some confidence in this clinic and in this treatment
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Pat & Steve Clarkson
January 27, 2012
Houston, Texas
6:25
2/3/2012
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Pete Cohen talks with Doug Olson

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My name is Doug Olson
I’m from Nebraska
Western Nebraska
And, uh, my mother has been diagnosed with pancreatic cancer
So, we, uh, middle of November, now this is first of, first of the year, eh, but in the middle of November her weight, she was losing weight, you know
She was suffering from indigestion and, and stomach pain, and so we started to have her checked, uh, for problems with her stomach for ulcers and that kind of thing, and all that proved negative, and they put her on an ulcer medicine anyway, thinking that maybe that would solve the inflammation in her stomach, and, uh, then we decided that we (?) better see another physician, and so we did that, and they then ultra sounded and then CAT scanned and found that she had tumors in her pancreas and in her liver
Uh, many years ago, back in, in the late 70’s, my parents had been involved with, with the cancer, uh, subject in regards to my father’s sister, and then his cousin
He started researching cancer and cancer treatments when his sister passed away, and then, uh, they got in contact with a doctor in Orden, Nebraska, that treated cancer patients with Laetrile, and he also did other, not so ordinary things
He did duculation therapy
Uh, a number of things that were really treatments for the disease rather than just treatments for the symptoms, and, uh, during that time, dad testified at the state legislature; they were trying to work against Dr. Miller’s license
This was the Dr. Miller in Orden, and, uh, so dad testified on, on his behalf
Uh, dad’s cousin was, uh, a patient of his, and she had a brain tumor the size of a lemon, and Dr. Miller put her on, uh, Laetrile treatments on a, on a special diet and some things, uh
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And this was what, in the 70’s ?
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This was back in the, probably the late 70’s, and, so, when they
Well they cured her
She had been sent home from the Mayo Clinic
Given 3 to 6 months to live, and, uh, they had, uh, burned with radiation and cobalt I believe is what they were treating her with at that time
Uh, they burned the, uh, nerves in her eyes so that her eyes crossed
Uh, they sent her home to die
They, uh
She was in a wheelchair
She was a young woman and she had a young child
Wasn’t able to hold that child, and so when my dad saw her, met her, she was in that condition
She was it, in the last 6 months of her life
Gave her a book about, uh, the subject, and told her about Dr. Miller, and her family
She then went to Dr. Miller to see if there was any help for her, and he, and he immediately put her on Laetrile treatment then and, and, uh, the interesting thing about it, looking at his doctor’s protocol; because I’ve come across his protocol, uh, Dr. Miller was also giving his patients antineoplastons, and
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Yeah, because we’ve got this thing here that you gave me
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Mhmm
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Just explain to me what this is
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This was his physician’s protocol, to list, uh, the different medicines a person should, should be on
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If they had cancer
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Uh, if they had cancer, and so, uh, this was given to another friend of ours, a friend of the family, uh, the folks that rented one of our properties, uh, the woman got a, a tumor as well, and this was given to her as part of the regimen she should follow, and she was given Laetrile injections, and then as soon as the injections, uh, were over they went then to pills as the size of the dosage went down, and when you got to pills you got to go home
So, uh, I remember speaking to her at the time
I had a
I was in high school, and I had a summer job with her husband, who was the county engineer
So, uh, we saw them all the time, and she told us, uh, the circumstances when, when she was allowed to come home
She was feeling strong
She said: “I haven’t felt better”
As a part of the diet and the things that, that they had her doing
She said she felt better than she had in many years
So she and her daughter, started a business in town in order to pay for the treatments, and, uh, she recovered
The tumor continued to shrink and shrink until it was nothing
Uh, what had been listed as inoperable, uh, after it shrunk halfway they decided, well maybe we can operate on you
Uh, we think it’s operable now
She said: “Why would I let you operate when what I’m doing is working” ?
But, uh, she is alive yet today and in her mid-80’s and, uh, so, uh, when it came to my mother’s illness, we contacted her, and asked her how she’s doing, and she’s sent this protocol she’s been keeping all these years
Uh, as a result of my parents knowing Dr. Miller back when he was alive
He is, he has passed away, uh, 7 maybe years ago, and, uh, many years ago when they were taking chelation therapy from him, he had given my mother, uh, a flyer on Dr. Burzynski, and, uh, said if anything ever happens to you after I’m gone, this is the man to contact, and so we’ve had that flyer in a file for many years at my parents house, and so when mom got sick she immediately began digging that out and found
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So your mom immediately started thinking, well I need to find that leaflet
That’s what we were told to do
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Yes
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And did, and did she go and speak to an oncologist ?
Did she say that she wanted to come here, or ?
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We had a local physician, who was not an oncologist, that had, that was the 2nd physician we, we consulted, that did the ultrasound and the CAT scan for her and, and they knew that she had tumors, and no we did not go to an on, oncologist from there
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Why ?
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because we knew that we did not want to take their treatments, uh, so we immediately contacted the clinic here in, in Houston, Texas, and, uh, we had to wait on, uh, certain things to be completed
CAT scans
Different things had to be done, and, and information had to be sent down here and examined, and then, uh, after a period of maybe 2 weeks, hassling with information, we were told that, yes, uh, we, they would accept her as a patient, and we were getting in towards the holidays at that time
Would we like to wait until the holidays were over, because Christmas
You know, there would be 5 days off for Christmas, uh, over a weekend and 5 days off for New Years over a weekend, and we would be down here in Houston over those times, but we elected to come anyway because we could get the treatment started right away
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Mhmm
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rather than to wait another month before starting treatments, and, uh, so they, uh, immediately put, put her on antineoplastons and, uh, they sent away the tissue samples to Arizona to have a CARIS test done, and determine what medications would be
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So did you have those results come back ?
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Yes, those results came back quicker than what we expected
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And wh, what did they show ?
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Well they, they show a, a list of treatments that are effective, and against it, and then a list of treatments actually that encourage it’s growth
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Yeah
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So you end up with a list of, uh, approximately 7 on each side
7 good
7 bad
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And these are all different cancer drugs
So what they’re looking at is all
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Yes
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is all the different cancer drugs, and which ones
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And whether we’ve got a, a thousand or 2 thousand different drugs that person might try, and, uh, so
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So the (?) for how to, to try a few of these chemotherapies, but in very small doses
Is that right ?
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There’s 2, 2 chemotherapies
One is an, is an oral chemotherapy that is, uh, quite mild in its side effects, and then, uh, there’s another much stronger one that was, uh, also one of th, the top 2, and, uh, the side effects for it are more varied and more violent, uh, if you will, and, uh, my mother’s had one treatment of that so far, and the treat, the side effects
She did, is suffering from side effects from that particular
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Yeah
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It’s Oxaliplatin, and, uh, some people have very violent side effects but she’s thankfully not had any violent side effects
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So why didn’t you go down the conventional road of having high-dose chemotherapy ?
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Well, when you research the, uh, success rate, with pancreatic cancer, going the normal way, uh, or the normal, uh, road, the success rate is very, very small, and so you’re just guaranteeing, in my opinion, if, if the success rate is 5% or under, uh, you’re introducing yourself to a, a road to death, that’s very unpleasant
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Yeah
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You know, you just want to go home and make yourself very comfortable on painkillers and, and enjoy the rest of your life, uh, if that’s the, if that’s the road you’re planning to take
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Yeah
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Uh, that was our opinion, and so
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What do you think about all the resistance then of, of Dr. Burzynski and all of the kind of, uh, ?
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We have
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(?) people just calling him a
What’s the word ?
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Charlatan
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Charlatan
Yeah
Fraud
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Yes, we, uh, we have seen course, of course these things through our, our life
Dr. Miller
The whole Laetrile treatment thing was something that was, uh, thrown out
You know, it’s pretty well suppressed now
You can go to Mexico and get those treatments
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Why do you think they were, pushed aside ?
This Laetrile
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It’s
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What is Laetrile ?
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Well Laetrile is a naturally occurring, uh, substance that you find in some of our foods
It’s, they call it B17 although, vitamin B17, although there’s some discussion as to whether it’s really a vitamin
Another name for it is Amygdalin
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Amygdalin
Yeah
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Uh, it’s found in peach pits and apricot pits in high levels but there’s a number of other foods that you find it in
Uh, it, it,
I’m not sure, whether this is 100% accurate, but my understanding of it is it’s associated with, with cyanide, and it would be, uh, like an encapsulated cyanide, that as it travels through your body, the cyanide portion, um, does not become available to your body until it becomes in, uh, associated with a cancer cell
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Yeah
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and the cancer cells attack the outer shell of that molecule, and the cyanide becomes, uh, uh, available then, and it kills the cancer cell that’s right there
So it was apparently a very nontoxic substance
Uh, you have regulated dosages
I mean, it seems to me interesting, uh, when a doctor prescribes a dose of chemotherapy, uh, there’s nothing that I can think of much more toxic than a, than a chemotherapy drug, and certainly they’ll kill you if they don’t, uh, give you the right dosage, but it was not seemed, deemed accessible that a byproduct of food; which a doctor could regulate the dosage of as well, could be used as a transfer, cancer treatment
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Yeah
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Uh, and we’ve seen things in the past, as well
When I was a, a very young child, I had a great aunt, that, uh, I was not even aware; at the time I was very young, she was traveling to Texas and getting treatments
Uh, one of them was called the Hoxsey treatment and, uh, she was living a very comfortable life on treatments that she got there
There were 2 treatments in Texas at that time, that, uh, were available
The FDA would come in and raid the clinics, and make just life miserable for them
They got one of them closed down, and that was the one that my great aunt was on, and that treatment was, was pills that she could take, uh, and live quite comfortably, in Nebraska
Once they closed that clinic down, then she had to go down, uh, to the other clinic in Texas, which was a supplement that was a liquid that tasted bad, and she had to make frequent trips, at that point, but still, as long as she could get that treatment she was comfortable and, and lived a normal life
A productive life
Uh, we knew her as our great aunt and, and didn’t even know her, uh, uh, that there was a health problem and, uh, but then the FDA got that clinic closed down
So, as soon as she lost access to those, her treatments, then her cancer which, uh, was no longer able to be controlled, came back strong and, and she died
So, uh, the family had been, had access to this knowledge and this, the FDA’s games with cancer treatments for many years
Um, I’m also married to, a, a gal whose father did blood research as a, he was a Ph.D and worked in university hospitals, in blood research all of his life
He, he discovered a blood protein that was associated with cancer
Uh, it was actually associated more with good health, maybe than you could say with cancer, but he discovered a, a blood coagulation protein, uh, or associated with blood coagulation that would, that could be used as a flag or a test, to see whether a person was healthy or not
Uh, as they applied it to patients in these hospitals, during their research trials, they found that this protein was an indicator whether a person had cancer or thrombosis
Uh, 2 of the very largest killers, and this protein, if present in high enough amounts in our blood, uh, was an indicator that you were healthy, and as the protein’s amount, uh, declined, then it was an indicator that something was wrong, and below a certain amount you knew something was wrong
You better be taking further testing
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Mhmm
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to find out what your problem was
Uh, that has run into resistance
Uh, that (?) has not been approved by the FDA, and, uh, th, our family’s experiences with cancer treatments, cancer drugs, as they’re affected by the FDA, we have determined by our opinion that, uh, it’s, un, unless there’s something that’s going to generate a, a lot of capital, and then a lot of tax money for the Federal Government, the FDA’s not very interested in it
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Yeah
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Uh, so, cynical attitude, but evidence bears it out
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Yeah
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and so we remain cynical until so, until something proves
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Yeah, absolutely
So this is this doctor in, uh, in the 70’s
This is information that he provided
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Yes
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and you can see here that he is obviously, antineoplastic enzymes
See, here obviously
Do you think he meant Dr. Burzynski ?
He just knew of him ?
You have no idea ?
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I have no idea
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He was obviously a fan, if he was someone that eventually said
He said it to you
Did you say he said it to your mum or to your dad?
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To my mom
Probably to mom and dad
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Yeah
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Uh, my mom was the record keeper, and so, she kept the flyer
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Yeah
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but they both took, uh, the, uh, the therapy from, uh, well, the blood therapy
I mentioned it earlier
Suddenly the name’s gone away
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Yeah
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but, uh
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That’s ok
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So
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So what about, um
You know, one of the barriers that we had is, when we spoke to oncologists, they just said, no, you mustn’t come to see this guy
His work isn’t peer-reviewed
He’s a charlatan
Why, why do you think they would say that ?
What
I mean I’m surprised, that these oncologists don’t actually come here, to actually see what, what’s going on
So your opinion about that ?
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My opinion is, that physicians are, very much, tied up, with large pharmaceutical corporations
Uh, I spoke with my father-in-law
My father-in-law had to have research done in, in his Ph.D work, and he had to get cooperation from hospitals, from doctors, and, uh, all of these organizations in order to have the research done that he needed done, ’cause past his lab, when he wants to introduce research, onto a patients, uh, live blood, and he needs to collect specimens from patients, then a whole ‘nother group of, uh, set of authorizations have to be signed and, and he being a Ph.D working with the medical profession all his life, he knew how tied up the medical profession is, by, generally by M.D.’s, that control the money flow, uh, in the medical profession
Ph.D’s do the research, but they have to apply for grants, and typically the grants are controlled by M.D.’s, and so if an M.D. Decides that your, your particular research is either applicable to, uh, something they think will make a lot of money, or it’s the, the quote, uh, popular, popular item of the day
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Yeah
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Politically correct, you name it, then you’re going to get funded
Otherwise, uh, my father-in-law noticed at different times, his research had to be funded out of his own pocket, and at other times, it looked like, it was something that doctors would like, and so they would, he would get funding, but I think that, ah, as he commented, any doctor, coming out of med school, has been contacted by a pharmaceutical company, and has probably signed a contract, that when that pharmaceutical company wants to test a drug, or test an item, that that medical, uh, doctor, will be accessible to them, to test their products
So, with the number of pharmaceutical companies that you have, and all of them recruiting M.D.’s as they come out of med school, and saying, you know, would you be part of our group, you end up under contract with the large pharmaceutical companies
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Mhmm
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and if, if 90% of the doctors are under contract with pharmaceutical companies, to, uh, to cooperate with their drug testing, then large Pharma, has control of virtually all doctors, and so, uh, uh, if you have large Pharma saying, we don’t want to see a cancer cure, that we’re not in control of, we don’t want to see something that makes curing disease cheap, and easy, and food related, then you’re not gonna
They’re going to put the word out to all their doctors: Don’t have any wo, don’t have anything to do with this
Uh, they can come up with, some written material for their, their doctors to read
They send them the evidence
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Mmm
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It may be accurate
It may not be very accurate, and, uh, but it’s just a smear campaign to destroy reputations so that they don’t get hurt financially
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Mhmm
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and, uh, so, uh, that’s the reason I believe
You know, most of these doctors, they don’t have the time, or the expertise to do the research themselves
They can’t read everything, and so when someone they trust, or someone that they’re financially, uh, obligated to, comes down and says: Here’s the stand that we want you to take, and it’s against this particular treatment, or against this doctor, they do what they’re told
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Yeah
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They do what they know best
Uh, my father-in-law, for instance, was, uh, also involved as a professor in these med centers
He taught nutrition, and he said it’s always a, been amazing to me that you can get through med school, and never take a class on, on nutrition
So you can become an M.D., and not understand the value, of nutrition, to a person’s health
That’s a problem
Uh, he recognized it as a problem
I recognize it as a problem because I particularly believe that most of our ill health is because how we treat our bodies
What we eat
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Mhmm
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Whether we exercise or don’t
Whether we provide our body with a way to flush the poisons or not
Uh, healthy living, and if you don’t teach our medical profession, healthy living, how can they teach their patients
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Mhmm
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So this, this whole system is, is just flawed in some ways, and weak in other ways, and, uh, controlled, for the purposes of commerce, instead of the public
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Yeah
So you, you think it’s a good idea treating people as an individual and finding out what they need as opposed to like carpet bombing them ?
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Absolutely
When we understood the, the individualized approach, here at the Burzynski Clinic, that they would take where they would test the cancer cells, uh, against all of these treatments and all of these chemotherapy treatments and, and anything else that might be out there that would, would treat cancer, and come back with a, a individualized care approach to the individualized cells of cancer that my mother has, that’s when we knew that we had to come here
We wondered, and I’ve told my friends, and everybody wonders, that oughta be the standard approach everywhere
Why wouldn’t you test, every cancer, and see what it is that’s gonna treat it best ?
You, you tell me
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Doug Olson chats with Pete Cohen
January 2011
25:00
11/9/2012
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Pete Cohen talks with Burzynski Patient

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2010 I was laying in on my couch; and I had been treated for cancer in the past, but evidentially reoccurrence, and I, I was so sick on my bed
Actually on the couch
I couldn’t get up
My neighbor called me, uh, and, uh, I couldn’t even, I had the phone next to me and I could answer it, but I think I was laying on the couch for about 2 days
Finally got a nurse over there to check my temperature, at 105.8
They rushed me to the hospital
Didn’t even give me but a few days to live (laugh), and, uh, they wanted to treat me and do so forth, but my, uh, sister-in-law had been reading a little about the Burzynski Clinic
She gave me some information on it
There was a few other places that I was looking at, but I was felt lead to come here, and, uh, actually the doctors wouldn’t even allow me out of the hospital to come here
They said I would never make it, and so, uh, my brother who insisted upon getting me out there
So I came out
Took a, a van
Took it
Came out here, and, uh, I couldn’t walk
Couldn’t hold a pencil in my hand
I could hardly sit up in a chair (laugh), much less anything else
And, uh, within, with just within a few weeks of, of some treatment I could actually get up and walk and so forth
Then as time went, I was able to walk a little more, and then I was able to drive, and now I’m being able to read and write and the whole thing, so, and as of today I just got my final report, and that final report, (?) the last report that I’ve actually, looked like there’s no active cancer at all
There’s some tumors left and some little shades here
Scar tissue
So, I’m continuing on, on the treatment, but so far, I thank God, and I’m still here, and, uh, gave me some extra time here
So I’m thankful
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Wow
So when were you first diagnosed with ?
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2003
I was diagnosed with, uh, lymphoma
Uh, we were going in for heart repla, my 6th hernia operation (laugh) and the found it in my abdomen, and so they immediately took me to the, get a port and get me on the chemo and so forth, and, uh, the 1st chemo treatment I, I almost didn’t, I almost didn’t survive
I was rushed to the hospital
They, they didn’t expect me to make it the night
However, I did make it, and a couple times there were a couple problems there
Then I went through radiation and some, uh, some other treatment for about 2 or 3 years here
Some remission, uh
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And what was your health like during that time ?
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Uh, it was, my immune system was quite down
I was catching colds
I was getting pneumonia and things
Uh, not pneumonia but almost on the edge of it but always weak, and, uh, coming here, you know, it, it’s a lot different
It, its reach a little more compassionately
There’s a little bit more, uh, with not as much side effects and hardly as much side effects as, as, as the other treatments
Still been able to drive, fly, and everything else and, and, uh, so, uh, with the, I, I just find with the multi-approach that they have here, uh, you know, all the different ways they attack it, not just one or two different ways that should become standard, that doctors actually looked outside the box, and discovered things that, uh, uh, are, are just fantastic, and that’s one of the things
I like to do a lot of research, and I just found, what I found here just clicked, and thank God I’m here today
So (laughing)
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Wow
So the 1st time you had, when you were diagnosed
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2000
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2000 you had chemotherapy
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Yes
Radiation treatment, and I had some Zebulon radiation treatment and so forth
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And then, how long were you kinda, well you can’t (?)
——————————————————————
Well (?), 2007 and then, uh, they wanted to do a bone marrow transplant, and they had to give me more dose of chemo which would have been stronger than the 1st, and I almost didn’t make it the 1st time
So I just
——————————————————————
You said “No”
——————————————————————
I said I just, I just won’t
I can’t do that
——————————————————————
And what did your oncologist say ?
——————————————————————
Uh, well, he didn’t have much of a choice
I didn’t really wanna take that route
He says “Well, there’s no other choice,” basically
——————————————————————
There’s nothing more we can do for you
——————————————————————
Well, no
That’s, that’s, that’s
——————————————————————
(?) go home and die
——————————————————————
Well, no
That was their
That was their next line of treatment, that, and that was it
Bone marrow transplants, so forth, uh, which, you know, that’s within their perimeter, but here he treats it a little but more outside, with the different, different methods that he has, with the DNA and the, and the, uh, uh, treating the vascular part of the cell, uh, and the tumor, to choke off the supply of the nutrients, and so forth
Uh, just the whole multi-faceted approach, which actually, uh, which, which I, when I read it I said “Wow, here’s one that’s really on top of this thing,” and, and I know there’s been some, uh, uh, uh, envy sometimes from the (laughing) medical field, and that’s just natural of anything
I mean, I’ve been in real estate for years, and worked, uh, different ways that, you know, when you come up with a different method, a lot of people don’t want to change so easy
So I’m pretty familiar with that
Uh, so I just, I just have found that, uh, uh, just the overall way I’ve been treated here
It’s just, it’s just really refreshing
——————————————————————
So you, you, you came down here when, which, in?
——————————————————————
November 2010
——————————————————————
You came down (?)
——————————————————————
From Miami
From actually Fort Lauderdale
——————————————————————
Right
And, um, how soon, you said it was in a couple of weeks you were
——————————————————————
Yeah, within, within a few weeks I was actually starting to feel a bit better
I was starting to walk a bit more
I couldn’t even walk 10 feet without, you know, being so exhausted
Then I’d walk up to 50 feet
Then I’d walk up to 100 feet
Then I’d, by the time Christmas came around I flew back to Orlando to visit my sister and, uh, I was actually able to walk about 5 or 6 blocks to go to the grocery store and back
Got, got lost somewhere
——————————————————————
What was that like ?
You know, the realization that you were alive and you were well again ?
——————————————————————
Well, you know, uh, uh, again, uh, I was at the point before, and I have my, I have peace with my maker so I don’t know, one way, way I’d have gone if have been happy (?) but I,
——————————————————————
You were prepared to go
——————————————————————
but I’m prepared to go, but I have a young daughter and, uh, and a lot of family still here
So I didn’t wanna, I didn’t wanna go just yet (laughing)
So I’m thankful, with the treatment and by the grace of God I’m still here, and so, I look at, uh, uh, uh, you know, where I was at
Uh, I just, uh, realized the direction I was given to come out here, uh, and, uh, uh, uh, uh, uh, took advantage of it, and you see what, what took place
So I’m thankful
——————————————————————
And, and what, what treatment were you on when you 1st came here ?
——————————————————————
I wasn’t really on any treatment at the time
I, I, I, I wasn’t going to go back and do the bone marrow although it’s still an option and some people might wanna use it
I just wanted to do it different, way
——————————————————————
And what treatment did they put on, on, put you on when you came here ?
——————————————————————
Uh, well they gave me, I did take some infusions to get my health back into shape
I was, uh, uh, a little malnourished here and there, uh, they uh, uh, uh
I’m not really coherent really what was going on back then
——————————————————————
Yeah, right
——————————————————————
My brother, and sister-in-law, and my sister were all here with me
They were kinda keeping on top of things
I was kinda trying to just keep breathing
——————————————————————
Yeah
——————————————————————
(laughing)
——————————————————————
So, uh, and what about
——————————————————————
I vaguely remember some of the things I went through
I couldn’t even get out of bed in some instances, and my folks had to help me here and there
So
——————————————————————
What about now ?
——————————————————————
Uh, in, in regarding ?
——————————————————————
Your health now
What, what
——————————————————————
Well, uh, I, I, I feel, uh, I feel good
I mean, there, there’s still, uh
I mean I
I’m, uh
I used to play football years ago
I still have a lot of injuries from that and I’m still (laughing)
——————————————————————
Yeah
——————————————————————
I’m walking around with, but other than that I feel pretty good
I mean I, you know, I’m very thankful, I’m
I’ve been able to go out and do a number of things I hadn’t been able to do before
I spend time with my daughter as much as I can, and I’m very grateful for that
It makes a big difference
Uh
——————————————————————
Yeah, I bet
——————————————————————
Um, I just, uh, uh, I’m grateful for, for, you know, the way the doctors treat and the staff here
Uh, the I.V. nurses have just, I mean, uh, have just been phenomenal for me and I’m just, I’m very grateful for what they’ve done here
The staff
The welcoming committee
Everybody else
They keep on top of what’s going on
They know where you’re at
——————————————————————
So why do you think more people aren’t treated the way you’re treated as far as cancer’s concerned ?
——————————————————————
Well I, well I think there’s, uh, you know, uh
Anytime there’s anything new, there’s always a hesitation, uh, which in a way is reasonable, but when you begin to see it documented and coming forth to be true, then you pretty much know it’s more established, and so you, uh, are more willing to go in that direction and, uh, I, uh, what I went through before I didn’t really want to go through again, uh, with the chemo and the radiation and so forth
Uh, I just, uh, uh, you know, I almost didn’t last through it
So I, I was just looking for something different and this, this is where I came
So I’m, I’m thankful for it, uh, and I’ve mentioned it to a number of people, that have asked me, uh, over the course of the year, and I’ve, been able to talk to a number of people that have been here
I mean, I’ve met people from, uh, South Africa, Turkey, uh, Japan, ah, Australia
They’d all come over here for treatment
So, I mean, I’ve kept in contact with a number of them
So it’s really a joy to meet some of the other people treated successfully here
So, uh, yeah, uh, uh, I just,
Maybe, uh, you know, with the, with the set way that the medical field is, resistant in change, plus there’s a big, you know there’s, uh, big monetary issue about, you know, something comes in, it’s a little bit more efficient
You know, I don’t want to get into a lot of the motives, but I’m just grateful for what
——————————————————————
Mmm
——————————————————————
uh, they’ve done here for me, so, and it’s been successful so far, so I’m thankful

I know how the resistance is, when there’s something new that comes along, and what happens, uh, there may be a monetary motive to prevent, uh, you know, the, the, I hate to say that but we’re human, and so, you know, if, if, if, somebody comes up with something that’s a better way to treat, there’s all kinds of things that the person goes through their mind and their heart to what they’re thinking about, uh, you know, it’s kind of a threatening thing to the industry because they, they’re going to lose out on it
——————————————————————
Yeah
——————————————————————
if they’re not on top of that
So, it becomes a threat in a sense, and it shouldn’t be, but that’s human nature
A lot of times human nature comes out that way and you see it in anything
You see it in the medical field
You see it in, in the real estate field
You see it in the legal field
You see it in all kinds of things to where it can get into a self-fulfilling type of thing, when something comes along, that’s very profitable
It’s not necessarily always going to get in the forefront because it’s, there’s a lot of, uh, blocks and blockades in the way to prevent that from happening
Some, some of it good and some of it bad, and that’s just because of human motives, uh, of competition, so forth
So
======================================
Burzynski Patient Interview #1
January 2011
11:57
11/9/2012
——————————————————————

======================================

Critiquing: Families run out of hope, money after cancer treatments (USA TODAY NEWS, NATION, Liz Szabo, USA TODAY)

USA TODAY
Liz Szabo
Michael Stravato
Jerry Mosemak
Robert Hanashiro

Before you write a Hack Piece
Check Your Facts Please

——————————————————————

20131118-084404.jpg
——————————————————————
The 3rd, and thankfully final segment of USA TODAY’s “hit-piece” of irresponsible yellow journalism about Dr. Stanislaw R. Burzynski [1], contains the following:
——————————————————————
“Patients stay in hotels while visiting him”
——————————————————————
Pete Cohen made this movie about his and
Hannah Bradley’s trip to the Burzynski Clinic

It does NOT look like they stayed in a hotel [2]
——————————————————————
The article continues:
——————————————————————
“If children deteriorate, they often end up in the closest emergency room, said physician Jeanine Graf, director of the pediatric intensive care unit at Texas Children’s Hospital in Houston, who says she has treated at least a dozen of Burzynski’s patients
——————————————————————
In the 2nd segment of USA TODAY’s yellow journalism “hit-piece,” the reader was advised that Burzynski had treated [3]:
——————————————————————
“ . . . more than 8,000 patients since 1977.”
——————————————————————
Physician Jeanine Graf, “says she has treated at least a dozen of Burzynski’smore than 8,000 patients,”

This means that Dr. Graf has treated LESS THAN 0.15% of Burzynski’s patients
——————————————————————
The article indicates that:
——————————————————————
“Typically, Graf sees Burzynski’s patients after they have become unresponsive, unable to open their eyes or breathe on their own”

“Graf says she’s never seen Burzynski attending to them”
——————————————————————
Why would she ?

Does she ride in the ambulance to and from the clinic ?

As the article makes clear:

“While Burzynski often meets patients on their first trip to the clinic, Jaffe said he is

“not the treating physician of the clinic’s patients”

“The doctors on Burzynski’s staff have admitting privileges at local hospitals and “attend to patients as needed,” Jaffe said”
——————————————————————
And she continues:
——————————————————————
“And describing her personal experience with Burzynski’s patients, Graf says,”

“I’ve never seen one survive long-term.”
——————————————————————
Are we supposed to believe that pediatric physician Jeanine Graf keeps track of the “more than 8,000 patients” that the article claims Burzynski has treated ?
——————————————————————
Continuing on, the article also claims:
——————————————————————
“The unlucky ones end up broke, spending everything on medicine, airfare, hotel rooms and meals while in Houston, Graf says

“Burzynski’s attorney, Richard Jaffe, notes that all cancer care is expensive”

“I think the clinic’s policies are a lot more charitable than the big institutions,” Jaffe says”
——————————————————————
6/25/2013 – Medical Bills Are the Biggest Cause of US Bankruptcies [4]

“Bankruptcies resulting from unpaid medical bills will affect nearly 2 million people this year—making health care the No. 1 cause of such filings . . . according to new data”

“. . . estimates that households containing 1.7 million people will file for bankruptcy protection this year

“Even outside of bankruptcy, about 56 million adultsmore than 20 percent of the population between the ages of 19 and 64—will still struggle with health-care-related bills this year . . .”

“Despite the anticipated 2013 dip, such bankruptcies represent about three out of every five filings
——————————————————————
2007 – How Many Americans Go Bankrupt Due to Medical Purposes Each Year? [5]

“2007, a Harvard study shows that at least 60% of bankruptcies are related to medical bills

“Even people with health insurance are filing bankruptcy”

“Insurance premiums, deductibles, co-pay, and out of pocket expenses cause medical bills to drown individuals and families in medical debt”

“Harvard also discovered that 75% of those filing bankruptcy for medical reasons had health insurance

“It is clear that having health insurance is no guarantee against carrying debt related to health care”
——————————————————————
Burzynski has treated more than 8,000 patients since 1977

8,000 divided by 36 years equals an average of:

222 patients per year

Burzynski is obviously NOT the problem
——————————————————————
Liz Szabo, Michael Stravato, Jerry Mosemak, and Robert Hanashiro

Don’t quit your day jobs

USA TODAY needs to generate readership somehow !!!
——————————————————————
Sarcasm . . . deal with it
======================================
REFERENCES:
======================================
[1] – 11/15/2013
——————————————————————
http://www.usatoday.com/story/news/nation/2013/11/15/jeanine-graf-cancer-children/2994675/
======================================
[2]Hannah’s Anectdote:
——————————————————————

======================================
[3] – 11/16/2013 – Critiquing: Doctor accused of selling false hope to families (USA TODAY NEWS, NATION, Liz Szabo, USA TODAY):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/16/httpwww-usatoday-comstorynewsnation20131115stanislaw-burzynski-cancer-controversy2994561/
======================================
[4] – 06/25/13 2:29 PM ET—By CNBC’s Dan Mangan @danpostman
——————————————————————
http://www.cnbc.com/id/100840148
======================================
[5] – 2007 – Written by James Hirby | Fact checked by The Law Dictionary staff
——————————————————————
http://thelawdictionary.org/article/how-many-americans-go-bankrupt-due-to-medical-purposes-each-year/
======================================

20131116-002818.jpg

Pete Cohen chats with Dr. Stanislaw Burzynski

======================================
Pete talks with Dr. Stanislaw Burzynski
——————————————————————
December 2011 (1:02:30)
======================================
How did you kind of get into this, into this field in the 1st place ?

Uh well, it was a coincidence, ’cause obviously I made discovery of new chemicals, peptides which is in blood, and I noticed that they were deficient in patients with cancer, and there was a curiosity, why there was such deficiency, and I was interested what these peptides that I discovered, are doing in the body
So the connection with cancer was quite obvious
He, healthy people have abundance of these chemicals in blood
Cancer patients have varied to none
So could be that cancer is another deficiency disease
So

So when you found this out

Yes. Mhmm ?

how did you feel ?
I mean, did you not just want to shout from the rooftops, and could you believe that you’d actually discovered something ?

Not yet
Of course I was skeptical, and I found something that was interesting, but obviously, it was just the very beginning and when I shared this news uh with some other guys, who are obviously much older than me, who, other guys who were professors, who ever, so (laugh) they began to laugh so much they almost died from laughing
Ok ?
That (laughing)
Wow, this guy would like to kill cancer
Forget it
Ok ?

That’s just not going to happen

What are you doing ?
Yes sir (laugh)

Well how did that affect you ?

Well it didn’t affect me too much because I knew that uh the science uh requires uh some successes and uh setbacks and I felt, well I still would like to know, what these peptides can do, and I would like to know what they can do, not only regarding cancer but in various aspects of body function
For instance, the activity of the heart, the activity of the uh uh G.I. tract
Whatever
Ok
I needed to expand this knowledge
Suddenly I found some like 119 new peptide fractions
Nobody ever heard of them
So I wanted to know
What do they do ?
And when I was in Poland I couldn’t have really do any further testing, because I didn’t have such possibility to require different group of people who would do the testing, and simply by working in the biochemistry laboratory I did not have such capacity, and obviously the budget for doing uh research was extremely small
Besides, I was continuously harassed by the communists and they were sending me to, eh, the military, so I couldn’t do much
I still did whatever I could
Then I came to U.S.

Oh so you came to U.S.
What, what year was that ?

It was 1970

I heard you came with not very much money in your pocket

Uh well it was better than where I came first to the U.K., because when I came first to U.K., I came practically with nothing, and uh, when I went to British uh Medical Student Association, they were going to give me 7 pounds for one month stay in U.K. (laughing)
You were supposed to get this money in Poland

Yeah

(laughing) Sorry about that
So ultimately they decided to give me 7 pounds, and obviously at that time it was a lot of money, so with 7 pounds I was able to survive a month
(laughing) Good luck (laughing)
But in U.S., I was allowed by the communist government to $15, which again, was equivalent probably to 7 pounds, whatever (laughing)

So you came here with $15

I smuggled another 10

Yeah

So the proper balance was like

So what
So what did you do when you got here ?

Well, ehhh, when I arrived I was uh, uh, uh, trying to get ahold of my relatives
My uncle that lived in Bronx

Yeah

And uh I officially came to visit him and uh I was expecting him to see me at the airport, and surely enough he came to the airport but uh at the time he was an elderly man
He was close to 80, and eh, he probably went to a different part of Kennedy airport, so he couldn’t find me
So I was stuck in the airport
This was Holiday
This was 4th of uh September, which was a Labor Day, and so I couldn’t get uh uh to his apartment
So finally I spent most of this money for the cab, the taxi rides to his apartment
Some, like $13 worth

You had $2 left

Ye, Yeah

Plus the $10

Sure
Well, so then I stay uh I, I was obviously in the family’s, I couldn’t

Yeah

I, I don’t need to worry about it
So obviously I had a food and lodging, and uh, still I was trying to get hold of some of the people whom I knew were doing the research in the area, whi, which I was interested

Mhmm

which was peptide research, and uh trying to see if I can advance my research
And then I thought, well, if I go back to Poland, I didn’t expect to stay
And in the meantime uh my job at the university in Poland was terminated, and I wondered they needed my position for the woman who was the wife of the 3rd Secretary of the communist party
Finally when I was terminated from my job, uh, there was no need for me to go back, because I would not be able to find job anywhere in Poland, because obviously everything was controlled by communist
So that I decided to stay and to look for the possible, possibility for me to find a job in the U.S.

And wha, what job did you find ?

Um

So you were in New York ?

Yes, I was very active, of course since I was involved in the research
I knew the key people who were involved in peptide research
There were not many of them, but at least there was one good team in New York and Columbia
Um, there was another one at, uh, Cleveland Clinic, and there was another one in Houston, and so, uh, I check with all of them and, uh, the place in New York was unavailable because they hired, um, somebody, um, about a week before I came
Uh but uh, uh, I was invited to the interview to Houston
I was surprised but uh, prepared for my trip and I arrived to Houston and had interview with a professor at Baylor College of Medicine and he gave me the employment, and so it was relatively simple

And then what were you doing on like a day-to-day basis ?

Uh, well, uh, when I arrived to Houston I uh, obviously received a job
I received the job as “Research Associate,” and um, obviously this was associated with a reasonable salary, but the salary was paid once a month, so I had to think, what do I do for the 1st half of the month, because I came in the middle of the month, and didn’t have any money (laughing: both), but some good people loaned me some money so I, I have enough money to rent the apartment, and finally after I got my pay, I was able to do quite well, and I was able to advance, uh, in peptide research

So were you able to do your own research or

Absolutely. Absolutely

that they wanted you to do ?

Absolutely, and uh, I was quite lucky to join the team of the famous professor
Professor George H
er, uh, who was initially professor of Sorbonne in Paris
Then in World War II he emigrated to U.K. and he was professor at Oxford, and so finally he came to U.S., and, uh, he put together the peptide research team
He needed people who know how to do analysis of peptides, so that’s why he hired me
And uh I uh told him that I have my own project, which is peptides, and if you wouldn’t mind that I do some research of mind, and he agreed
So basically this was gentleman agreement that I will spend 50% of my time working for him, and spend 50% time, working in my area
Uh, the equipment and the instruments were the same, so it wasn’t too difficult

And then you, and then when you had something to show then, when. when you had even more of something to show them, how was that received, because you see, I’ve really got something here ?

Ah

I think I’ve got something here

Absolutely, it was received with great curiosity, and, um, and obviously he needed people who could use, the cutting edge, uh, methods for peptide analysis, and that’s what I knew about, but I couldn’t use this for him because I didn’t have funds to do it, but I knew exactly what needs to be done, and on the other hand, uh, this was great surrounding because just across the corridor, another team receive a Nobel Prize for working on peptides
The only problem is, uh, one of these researchers uh was of Polish origin who received Nobel Prize for peptides (laughing)

Yeah

began, uh, fighting with the other one and finally his job was terminated because he punched (laughing)

Punched him ?

the other guy in the nose (laughing)

Yeah
Huh

So, but the good thing about it is that ultimately I inherited uh, their equipment

Yeah

for peptide research, so

Wow. So that must have been like a, like, a, a child in a sweet shop

Absolutely, so was a great coincidence so

So then you were really able to, to, to, to look at it in more detail, and ?

Absolutely, so then of course I was really out of work uh, and the team of Dr. Unger, and also, uh, I was spending a lot of time, uh, progressing in my research, which was very important uh, of course it means long hours uh, ’cause of, uh, 8 hours I would spending working for Dr. Unger and probably not 8 hours until midnight working on my uh, project, but uh, I enjoy it
In the meantime I need to prepare for exams because I wanted to have a license
So I was lucky because uh, within 3 months I was able to pass exams to uh, to naturalize my diploma, and then uh, just, uh, the day, on the eve of my birthday, on January 22nd, President Nixon had a speech in which he promised American people that by 200th anniversary of America, they would have a cancer cure, and no limits would be set on the funding
So then I thought, well, if that’s the case, perhaps I should apply for the grant also, and I did
It was crazy idea because I could barely understand when the people were talking to me (laughing: both)
Well I decided to put together grant application, in to the National Cancer Institute, and include the project on the peptides which I discovered, and I was surprised when this was approved
So then in uh 1971 I get approved as Principle Investigator, to do the project, which included eh, the top people from M.D. Anderson Cancer Center, and from Baylor College of Medicine, um, and I was supervising this
I was at that time 28 years old, but I was supervising the guys who were famous, and who were some like 60 years old (laughing)

Wow

and so the money was coming to me from the National Cancer Institute, and I was uh daily uh, running the project, sharing, obviously with the guys from M.D. Anderson, so, and going ahead with the research, so
and of course at that time I was disappointed to have to (work ?) with M.D. Anderson and Baylor, and then I could move independently what I was doing

So at what point were you actually, able to start testing on people

Mmm
It took a long time because

I mean you couldn’t wait, right ?

Yeah it took a long time because obviously um, initially you have to go through a lot of pre-clinical testing
The 1st time it was uh, around the beginning of ’77, yeah
So then we began phase I clinical trials, and this phase I clinical trials were approved by one of the very good hospitals in Houston, which is part of the hospital chain American Medical International, and they interviewed my project and their Institutional Review Board approved it for clinical trials
Well then I did my 1st clinical trials, phase I clinical trial, with a medication that I am not using at this moment because we made further progress of course, at a hospital, and this hospital at that time was called Twelve Oaks Hospital
At this time it’s called River Oak Hospital

Yep

Yes

And then, at what, at what, was there a time where you realized: This is actually working ?

Well, now this was in 1977, and (laughing) surprisingly, uh, uh, perhaps one of the 1st successful case where you can really, document a clear-cut improvement by doing the scan before and after
It shows tremendous decrease of uh, uh, tumors which corresponded to colon cancer which spread to the liver
(This guy was ?)
(laughing)

(?)

(laughing)
And uh, his case was so interesting, that when I sent it for press, the editors decided to put us on the cover, of the journal, the scan

Yeah

They decided to put on the cover of Science, showing the tumor before, and, after the treatment
Eh, so this was uh , obviously

And then what happened ?
Didn’t that m kinda, didn’t word spread like wildfire and people, more and more people want to come and see you ?

Ah, Absolutely, well the 1st excitement occurred, basically what the President Nixon promised ok

That he would deliver

Yeah

cancer cure uh, by ’70, uh 6, 1976, and we did, ok, and we did deliver cancer cure

Yeah

by 1976, 1977 ok, and um, the um, main uh event was the presentation of uh our theory on our research, on perhaps one of the largest uh scientific (congress ? conference ?) in America, involved 19,000 uh, researchers attended
Eh this was annual meeting of the Federation of the Societies of Experimental Medicine and Biology
It happened that at that time it was in Anaheim, California
Uh, I sent uh, uh, the abstract of my presentation, and I was simply, patiently waiting until this would be shown, which was in ’76
In June ’76 right before 4th of July, and uh, I was surprised when they notified me that um, my abstract was selected out of one of few, which was in great interest of the news media, like Associated Press, for instance, and then when I did my presentation, then Associated Press decided to make a release of this, and then you can read about it in newspapers all over the world
In uh, (laughing) distant places like Buenos Aries, receiving CBS newspaper clips from all corners of the world

And what was that like for you ?
I mean, how did that feel, just to see that your name was, all over the world ?

This was the 2nd time, what (?) this happened to me, because 1st time it made such news, by working on brain peptides with Professor Unger; this was around ’72, and suddenly, this wasn’t so much of my

Yeah, but still it was your (interest ?)

involvement, but I was working together with Professor Unger, and we made a great news, by discovery of, certain peptide in the brain, and then it spread all over the world, and then again, uh, uh, CBS

What was that like ?
I mean, how did you feel when you saw ?

Well, uh, it was surprising because uh suddenly we got uh news people coming, and the TVs from various countries, especially from Europe, for instance, from variety of corners, like from Europe, from New Zealand, from Brazil
You name it ok ?
Eh, so there was a great excitement about it, but 1st time that this excitement happened was, is around ’72, uh, really, eh, is typically what happened after such excitement, is the ? iation ?)
ok

Yeah (laugh)

Well, uh, (laughing) the uh, establishment is and this um will attack you and will try to destroy you

Did you know that was going to happen before ?

I knew it would because in Poland, uh, my father’s, uh, gave me the book of um MIT Professor, uh, Thomas Kuhn
(here’s a guy ? try to translate to (?)
(laughing)

(?) yeah
Yeah, probably

(laughing) sure
and then uh, this was uh, the book which was titled eh, Structures of Scientific Revolutions
It happens that this book was translated to Polish language as couple of years after it was printed, in U.S.; which was around uh, I think 19 uh, 64 probably, ok
So then I read the book, and the book shows uh, how, eh, the paradigm shift occurs, ok, and the, it never fails
It always goes through the same stages
1st it’s short period of excitement, and the a long time of harassment and persecution, and then finally the brief period when uh, uh, if you survive, then uh, the other people say
well it’s obvious
We always knew (laughing) that this

Yeah

was going to happen, ok ?
So I knew what was going to happen, uh, but uh, it was hard for me to believe it uh that, uh, in the 20th century, 21st century it could happen, ok, but then uh, when uh, I began going through this, it was like going to some uh, unpleasant disease
You read about it in the books and

Yeah (?)

then uh, you finding one symptom after another, and it affects you

Yeah

and you know that it could be deadly,
(?) survive

Well you could have ended up in prison, right ?

Yeah

(?)

You may die before uh, you be able to do anything

Mhmm

So the advice of the author of the book, was that you have to start early to make some medical discovery, because you probably have years of harassment in front of you, and probably the best chance that uh, you get accepted if you live longer than your opponent, because some guys will never accept you (laughing)

Yeah

until they die
So that’s what happened
Well then, of course, I witnessed what happened with Professor Unger
Yeah, he made the great news, and obviously I contributed to what he had, but he was uh, my boss, and then obviously I did not much, suffer much from retaliation, but he did, ok
So there was retaliation, and uh, they accused him of everything possible, uh, finally causing for him to move from Houston to Memphis, Tennessee, eh, zzz, about year later he died
So unfortunately his research was never brought to the time when it was accepted, ok
It was great research, ok, and if had really to more resource and time I can bring this to be accepted, because this isn’t a completely different field
This is brain function, memory, and peptides working in the brain
But at that time unfortunately the project was killed, which is great loss for humanity, eh, ’cause the discoverer passed away, and the product was gone together with him
It can be still resurrected, and I think it will be
Eh, so then, for me, eh, it meant only advancement, unfortunately, because, uh, when uh, uh, he was stripped from the funds, I received funding from the National Cancer agency funding from the university, and I was able to support him, because he was stripped of his grants and funds
So he was able to move forward with his research, but finally when he moved, I inherited very large laboratories
My laboratory was located in 3 buildings
So the lab space and uh, uh, some prime location, in the medical school
So then I did very well, then, of course, the publicity occurred, and this publicity was centered around me, not around both of us

Yeah

at that time, in ’76, and then again there was about 1/2 a year when there was a great enthusiasm, uh, good wishes, whatever, and after that, a retaliation occurred, ok
So then obviously

Mhmm
And what was, what, what was at the heart of the retaliation ?

Uh, well,

The fact that their people didn’t want this to come to the fore ?

Initially there was some overtures to take away the discovery from me, and uh, for instance, uh, uh, uh, Baylor College congratulated me
I received diploma, so suddenly became superstar, ok (laughing)

Yeah

and then, of course, uh, the wise people, the business people from the university said: “Look, probably we should talk now about patents, we should talk about pharmaceutical companies, we should try to, somehow, put this to motion,” ok, and that’s what we did
So then uh, we talked to some of the best lawyers in the country
Of course, uh, the university uh, are in control of this
There were visits of uh, pharmaceutical companies
I remember one of them came from the research center in U.K., from High uh, Wycombe , and this was so (encouraging that ?) was very interested, what we do
But then uh, the intention was just to take uh, my, uh, in, invention away from me, and obviously

Mhmm

I would have very little to, to, do to promote this, to develop this any further
So I thought about it and I felt that I’m not going to do it
There then uh, I was offered to join the mainstream cancer research at Baylor cancer medicine, and obviously uh, I would receive much better title, of professor

Yeah

and obviously there would be much better equipped laboratory, but again eh, they wanted me to, completely quit private practice of medicine, ’cause at the same time I was practicing medicine, which many researchers were doing
I was working at Baylor College and then I was practicing medicine uh, outside Baylor College, in the group of the other doctors
So in this way I had some independence, because obviously, I could always practice medicine (laughing)

And did you always want to keep your independence,

Yes

and did you know that was always a good thing ?

That’s right, that’s right
Because I, I did not want to be uh, at the mercy of the university or the government
Uh, but I still wanted to stay in academic surrounding, because obviously I came from a family which has great tradition of academic careers
So that’s something which obviously my father was always telling me that I should be really staying in the university, ok
Eh, uh, uh, but finally I decided that I was not going to accept this offer because uh, why should I resign from my private practice

Mmm

It didn’t hurt my research in any way
So I decided to continue, and uh, then that’s when the retaliation occurred, and uh, I was (crazy ?), harassed, and attacked, and finally

And how were you harassed ?
I mean, letters or (peop ?)

Mmm, well, as I could do the research for such a long time, because really, this was some like 7 years at the university, because uh, very few people in the university knew what I was doing, because I was only responding to the National Cancer Institute, and uh, I was not part of the mainstream cancer research center
What happened is that uh, (laugh) I was employed by the Department of Anesthesiology, which obviously, on the surface has nothing to do with cancer, but, who cares ?
I was receiving grants from the National Cancer Institute, and so Anethesiology was a very wealthy department, and they had a lot of space, but they were doing very little research
So they wanted to do some type of research, and uh, the chairman of the department was supportive of my doing cancer research
So basically I conducted uh, Anethesiology
laboratory into cancer, into cancer research laboratory, and very few people knew about it
They learn about it
when uh, the Associated Press (laughing) broke the news
So then uh, the retaliation happened

Mhmm

and then they wanted me to join the mainstream, but obviously I was enjoying very much (laughing) working, in peace and tranquility, and responding only to the National Cancer Institute
So then uh, what happened at that time was that uh, obviously Dr. Unger, moved to another university, and um, uh, the chairman of the department uh, his uh, uh, employment was terminated, because it uh, he was involved in uh, the war between 2 superstars of (the ?)
One of Dr. DeBakey
and the other one was Dr. Cooley
They were 2 famous, eh, eh, cardiovascular surgeons, who were competing with each other
Ehhh, Dr., eh, the chairman of the department, was on the side of Dr. Cooley, but the boss of, uh, Baylor College was Dr. DeBakey
So after Dr., Dr. DeBakey
learned that, uh, the sympathy of Chairman of the Department; which was Dr. Cooley, his job was terminated
So then they, took another man; very old, professor, who was already retired, to be the chairman of the department
They, he knew nothing about, any type of research (laugh), especially cancer research, and, uh, once I decided to not join the mainstream, Baylor Research Center, eh, the people who are in charge of Baylor Research Center, they put a pressure, on the new chairman of the department, and they frightened him, saying look, you are, uh, in a charge of anesthesiology, but here’s a guy doing cancer research, eh, and see this was a great, uh, like liability to you, and pretty soon he may be sued, uh, without knowing what he’s doing
Ok
So then, uh, they, they, um, brainwashed the old man, and he decided to strip me, slowly from my laboratories, eh, and, and, harass me
Ok, uh, ultimately, he sent me the letter that, uh, in which he informed me that he does not see any connection between, uh, my research and anesthesiology; which was obvious, eh, but obviously I was doing the research which made the university famous, more or less

Yeah

So then one thing to another, and I decided, no, I am not going to work with, in this environment anymore, and I decided to do, try to do on my own, to start my own laboratory
So that’s what happened
Ok

And then you did that ?
You had your own, laboratory ?

Yes, and then I decided, this was just the beginning of 1977, and, uh, e, we put together a laboratory; of course I already had private practice, and, uh, I was still working

In your private practice

Yes

you were still seeing patients ?

Absolutely, absolutely

Seeing any results ?

Yeah, seeing patients, getting results
I began phase I clinical trials

Mhmm

in the hospital where I was seeing patients
I had patients at that time, in about 2 or 3 different hospitals, uh, but the hospital, where I get permission to do clinical trials, was a most supportive, and that’s why I did it this way, and, uh, obviously it was necessary for me to build from scratch, the laboratory, the research laboratory
I decided that I just, uh, I just, uh, make some funds in, our private practice, and at that time, of course, this was just, um, general (?) private practice, internal medicine private practice, em, and, uh, the funds which I produced in private practice I can use to, put together the laboratory, and that’s what we did
Ok
Step by step we build the laboratory, and we expanded our private practice
So basically, I switch from the government and then I found it best to fund the research, just privately funded research, which nothing unusual, thhh, some like 50 years before everyone was doing it

Everyone is doing this

Yes, and there’s still some people, especially in the U.K., who are doing this
Ok

Yeah

Um, the most of the discoveries were made through the, sss, through the research that was funded, by the researchers

Mhmm

There are also some, wealthy people who donated the money to do it
So only after World War II, this was, um, the system was created where, the researchers became, um, really became the slaves so, the government

Mhmm

and pharmaceutical companies, and new companies, and if they do not receive the money, they couldn’t do anything
This way I could have independence, and, uh, do whatever I want
Yes

So at what point did it get to where, action was taken against you, and you knew that you were going to have to go to court ?

The action, um, um, started very soon, and the, and began at the lowest level, which is like, county level, and then you go obviously

Mhmm

higher as you move along, and when, uh, I was leaving, uh, the university, the chairman promised me that (laugh) when I leave, uh, the obviously, quote, unquote, “They will bust my ass”
Ok ?

Yeah

(laughing)

When leaving the university

When I was leaving the university ?

Yeah

Yes
And, uh, he promised me that, uh, they will trigger the action from Harris County’s Medical Society; which is probably the lowest level of harassment and just, the somewhat prestigious society if you are are a good doctor practicing medicine, in Harris County, where Houston is, then you should be a member of the Harris County Medical Society
Uh, if you are not a member of Harris County Medical Socity they won’t grant you privileges to see patients in hospital
So this was important to be a member of the Harris County Medical Society because I was practicing medicine

Why do you think
Why do you think they wanted to stop you ?

Why did’d they wanted me to stop ?

Yeah

Well, probably just for the heck of it
I don’t know

(Laughing: both)

Ok

Well do you think they were threatened by you ?

Well, I doubt it
Their probably some type of revenge
Ehhh, since I didn’t yield to their harassment, and I decided to do whatever I was doing, and decide to do it on my own

Mhmm

and they felt, well, let’s try to kick his behind if we can
Ok

Yeah

Well I don’t think I was, uh, causing any threat to them at all, because this was really, large institution

So it escalated ?

Yes
Just starting at the lowest level
It was, eh, unpleasant because they were dragging me to like, holy inquisition proceeding, explain what I was doing, and basically they’re trying to force me to stop what I was doing by using various ways
Obviously they didn’t have any, uh, reason to do it because, uh, my clinical research; which I was doing in the most, done under the supervision of, Institutional Review Board, and before I started anything I asked, uh, I retained medical lawyers, and I asked them to check, if I can, uh, for instance, do the research to use medicine, and use it, in a patient, and they
checked with this, State authorities, Federal authorities, and at that time it was perfectly alright
So I was doing, everything, legally
So, they really couldn’t do much, but, they were harassing me, asking for me to give them a lot of documents, whatever, and suddenly, all of it stopped
It stopped because they were exposed by news media

Yeah

So, when the article was written about it, they disappeared from, the horizon, and then they never, harass me since then (laugh)

Yeah

I think it’s, lasted probably for, 2 or 3 years, and then it was gone, so

And then, and then how did that end up ?
How did you end up going to court for the 1st time then ?

Oh well, so obviously there was no, uh, issue of going to court at that time, it was only the issue that, I might not be a member of, uh

But you might not have been able to practice medicine

the medical society, and then I would not be able to see patients in the hospital
Ok
So this was deliberate, ok, and at that time, m, most of my patients were treated in the hospital, because I didn’t have yet the system to use treatment outside the hospital, like for instance the pumps that we are using now
They did not exist at that time
So it was necessary to use I.V. posts

Mhmm

and, uh, and heavy pump, heavy treatment
So then, uh, so this was, uh, it started around ’78, it continued for a couple of years, and then nothing happened after that
I was visited by, um, FDA people, but we have pretty constructive meeting
They didn’t bother me, and, uh, the next attack occurred in a 1983, and this was by, uh, Food and Drug Administration
So, suddenly I was sued, and, um, they really wanted to put me out of business
Ok

They didn’t just want to put you out of business
I mean, they wanted you, they wanted you to go to prison

No, in ni, 1983, they wanted me out of business

Right, just out of business

Yeah

Don’t want you practicing

Shut down, what I am doing, and they did it, secretly (laugh)
Most of this actions occurred around, uh, just before say Passover, and Easter
Ok

Yeah

Every year
It never failed
Ok (laughing), a, and a usually they were attacking, uh, uh

Someone

No, no
For instance it happened for instance I was away, and, uh, they were filing papers in court, like, um, around 5 p.m. on Thursday, ok, and Friday was day off, because was big Friday, Good Friday
Ok
So then, obviously, um, they then
realized I’d be away because I participated in some T.V. program, and they want to do it while I was away, but, uh, it so happens that
a one of the friendly lawyers was in court at the time, and he overheard whatever they were doing, ok (laughing),they were going for injunction, ok, and so then, uh, I would be stopped immediately
I wouldn’t be able to do much, ok, until the judge would reverse it, but, uh, he read about it and he prepared immediately temporary restraining order, and filed at the same time (laughs)

Yeah

So then, uh, I could practice without any interruptions, but, uh, then, of course,

So do you think of all the people that were trying to stop you

Yeah

Do you think any of those people actually, really, genuinely believed that you were causing harm to people

Hmmm

or do you think that they were just stopping you because ?

I think some stupid people,was at the lower level, like, uh, uh, some lower level FDA agents, they didn’t know what they were doing
They were manipulated, ok, but the guys who above, they knew very well (laughs) that, I was right

They knew what they were doing

Absolutely

They knew you were doing something

Absolutely, yes

groundbreaking

They knew very well, and that’s the reason why they attack me
Ok
Yeah
It’s obvious
So this 1st encounter, was relatively brief
Uh, we went to court, which was Federal court, and the judge, uh, would rule in our favor, and the judge, uh, uh, in the verdict, uh, cleared me from any, of the charges, and, uh, I found that I could, uh, I could treat anybody, by using my methods, but I cannot really, uh, sell medications outside the State of Texas, and that’s what I was not doing anyway
So really,
the judge
affirmed what I was doing

Right

That I’m free to use my invention, and treat people in the State of Texas, which made, of course, the government, uh, people furious, and they threatened the judge
They send the judge a letter saying that, if the judge will not rule their way, then they will go after me with criminal investigation, uh, with seizures, uh, eh, grand jury investigation
That’s what they did as the next step

When was the next step ?
How many years later was that ?

Well again, there was some like couple of years when it was relative quiet
Of course, in order to be, eh, in, eh, in order to do what I was doing, it was necessary for me to have inspection, by the inspectors, approved by the FDA, who
check our manufacturing facility, and, ah, certify that what ever we do, we do right, and there are no discrepancies
So this was obviously something, very difficult, because obviously we knew that the FDA inspectors
will always find something wrong, you know

Yeah

So these agents are trained to always find something wrong, but anyway, at inspection, uh, found we are doing everything perfect
Ok (laughs)
So we were able to pass the inspection
Uh, we are in full compliance with what is called good manufacturing practices, and then everything was quite until about 3 years later when, uh, there was a raid on our clinic by the FDA, and seizure of, ah, medical records, and then there was another, uh, obviously, ah, another, uh, part of the war began, and then, uh, we file a lawsuit against FDA, and, uh, as a result the judge forced the FDA to give back some, of the documents, and permit us to, uh, be able to copy the rest of the documents, and so then, uh, FDA began a grand jury process, and, uh, there was some, like 4 different grand juries, uh, ah, which did not find me, guilty of anything, and then finally 5th grand jury was able to indict me, which was in ’95
Ok

So when you were, when you were going to court; because I remember seeing in the

Yeah

Burzynski, the movie

Yes

I remember seeing in the photographs

Yeah

around here

Sure

there were lots and lots of people outside there (?)

Yeah

What was that like to see that ?

Oh well, ah, this was, uh, going for ever, going to court, and obviously I was going before this grand jury investigation, whatever, but ultimately, their lawsuit, uh, the trial began, in, ah, January of ’96, and, uh, it took a number of months
Ok
So I was going to court almost every day, and the people realized what was going on, and they were giving us a lot of support
So then you can see people outside the court

What was that like to see your patients ?

Well it was, ah, it was, ah, very good, uh, uh, show of (laughs)

Yeah

patient solidarity
They wanted obviously, to help us, and they knew that, uh, they have the power, and, uh, they knew that they were fighting for their lives
Ok ?
So they, uh, were dedicated people
It wasn’t easy because this was winter, and it was raining, and so it was cold weather, but obviously

Were you prepared to, to face what you could have faced, you know, that you actually could have gone to prison ?

Sure, yes
I, I knew, but I was, convinced that I am going to win
So, should I, obviously, statistically it was, uh, highly unlikely, but, uh (laugh)

Do you think that this will stop one day ?

That people will just get off your back, and (laugh)

(laughs)

you know

(?)

and can see what you’ve done

(?)

and, and see that there’s really something there

Absolutely

This is just the (?)

Absolutely, absolutely
I
That’s what I was convinced was going, to happen, and, uh, I was convinced that we are going to win, with FDA

Good, ’cause I mean, anyone does any research

Yeah

you know
I had this on here

Yeah, sure

which I’m sure you’ve seen, like on Wikipedia

Yeah

and what it says
That there’s no convincing evidence

Yeah, sure

that a randomized controlled trial has, you know
That your work, that, that there’s nothing there

Yeah

What’s that like when you come across that stuff
Do you just not read it, and just

So (laughs)
Simply don’t pay attention to it, because it, it’s not true
Ok

Yeah

You won’t be able to, do any, clinical research which we do, without convincing evidence, especially when you have the most powerful agency in the government which is against you

They’re against you, but you’ve been working with them for, for

Yes, so since 1997
Yes, but you see

Yeah

Obviously they didn’t have any sympathy to us because they lost
So they would love to find something which is wrong with what we are doing
They would love to prove that the treatment doesn’t

Yeah

So this is, very difficult
Ah, so the fact that they’ve, um, agreed that what we have has value, and they allow us to do phase 3 clinical trials, it means that we are right
Ok ?

Yeah

Because, uh, uh, nobody who didn’t have any, concrete evidence that it works, would be able to go as far
Ok

Yeah

So whatever Wikipedia says, well, I don’t care for them (laughing)

Ok, so, we, we talked a little bit about, what you, where you’ve come from, and what you’ve been through
As far as your treatment, um, to cancer, and this I’m very interested in, and why you don’t think high doses of chemotherapy is, is particularly helpful for the body, and what

Well it is generally wrong approach
It can help, some patients, wi, with a rare form of cancer, but only, eh, in limited capacity
Those who, are quote, unquote “cured”, usually die later on from adverse reactions, of chronic adverse reactions from chemotherapy or radiation, or they develop secondary cancer
So certainly, there is, this is not such a cure which you have in mind, that, use the treatment, patient recovers and lives normal life
Such cure does not exist for patients who are taking chemotherapy or radiation
They will always suffer, some problems
Either from cancer, or radiation, chemotherapy, and there is only small minority of patients who have advanced cancer who can, have long term responses
So obviously, this is unacceptable treatment
Of course, it was important at certain stage of development, but now, of course, uh, when we know more about cancer, it’s becoming, uh, unacceptable, and I think it will disappear, from the surface of the earth, in another 10 years, or 15 years, and, uh, in the medical textbook, this will be described as strange period of time, when people were using some barbaric treatment
Ok

Mmm
You have a number of different ways of treating cancer
So, one of them is the antineoplastons

Yes

This, this, this is the peptides

Mhmm

The, the this is the thing that my partner is on at the moment

Sure

in the clinical trial, and, uh, you’ve had some real great success

Mhmm

using that
Right ?

Yes

But you also have

Mhmm

another way, of, of, of treating, which is, using, it’s using some sort of chemotherapy, but in low doses

Well, um, um, whatever we are using we are using treatment which works on the genes

Antineoplastonswork on the genes, and they work on about 100 different genes

So what are they doing to the genes ?

Well, they work as molecular switches
They turn off the genes which are causing cancer, and turn on the genes which are fighting cancer
So, that’s what they do, and they produce this in about 100 different genes
It’s not enough, to control all cancer
Actually you can control some cancers, but not all of them, because you may have, numerous genes involved, in cancer
Well, for instance, in average case of breast cancer may have 50 abnormal genes involved
Uh, in, uh, like grade 3 brain tumors, for instance, anaplastic astrocytoma you might 80, or might be 100, but if, uh, you go to highly malignant tumors like, glioblastoma, you have, probably about 550
Eh, if you don’t cover such a spectrum of genes, you won’t, you’re not going to have good results
So that’s why, we know from the very beginning that we have some limitations
We can help some patients but not all of them, because, they have involvement of different genes which are causing, their cancer
So then you can still have these patients who are combining the treatmentof antineoplastons,with different medications which are in existence, which work on different genes, and this includes also some chemotherapy drugs, which are available
Eh, so this means that, um, for the patients for whom we, cannot use antineoplastons, because they are not in clinical trials, then we are using combination treatment, which consists of medication which already, approved as prescription medications, and, uh, by using the right combination by knowing which genes we need to attack, we get much better results
Now this also includes chemotherapy, but we never use, high-dose chemotherapy
If necessary, we use low-dose chemotherapy, and when you use low-dose chemotherapy you don’t have, uh, toxicity, which is, bad
We use this for
patients continuously, without much problem

So, so one of the main reasons of using low-dose chemotherapy is to try and keep your immune system strong, as well ?

No, to try to quickly decrease the size of the tumor, in combination with the other medications
We can use, for instance, low-dose chemotherapy and another medication which will increase activity,of chemotherapy, and as a result, you can have, as good, uh, uh, decrease of the tumor, with the low-doses

when you use heavy-dose
Well, there’s nothing unusual about it
For instance, uh, many doctors are using medications which are quite toxic

Mmm

And they, if they use the dosages, it’s helpful to the patient
The question is, what dosage will you use ?
If you use the dosages which are not toxic, it may still help the results, for instance, eh, the medication which was introduced, in mid, uh, 18th century for a particle for heart failure, in U.K. by
Dr. Withering, which was digitalis extract
Obviously it was highly toxic medication
It can kill people, in dosages much smaller than chemotherapy, but if you use the right dosage, it can help people
It was helping people for over 200 years
So those are the question
What kind of dosage do you use, and what combination do you use, and then, it can be useful

How did work that out then ?
I mean, how did you work out

Mhmm

that using small dosages of chemotherapy, could be effective ?

Uh, well, uh, it’s not only based on, uh, our research, it’s based on the research of the other, doctors
There are numerous publications on the subject, and in many cases the low-dosages can be used more effective than high-dosages, and, uh, on the other hand, by doing genetic testing, we can identify, which, uh, medications are the best for the patient

‘Cause you use

(?)

’cause you use a lab, in Phoenix
Right ?

Correct, yes

And, and how did you find out about them ?
Um, how did you ?
Yeah

Well, uh, uh, frankly speaking (laughs), 1st time I find about it by, treating patients who’s referred to us by one of the best oncologists in the country
He was usually treating some movie stars (laughs)

Yeah

and I found that this patient had, uh, genetic testing done, and I got interested in this, and I found about this laboratory
It was some time ago, but anyway, while we were doing genetic testing before, but, uh, we didn’t use this laboratory yet, we did it, through some other laboratories, and such testing was much, much simpler
So, we are using such testing, for a number of years, but in the capacity we are using now, this is really the last 2 to 3 years

So what happens is someone’s, bit of their tissue gets sent off to this lab ?

Yeah, the tissue is sent to the laboratory, and, uh, they do, testing on the entire genome of 24,000 genes
They identify the abnormal genes, and they go in-depth, by studying what happened to these genes?
Are they mutated ?
Are they amplified ?
And then from this, we have, a lot of information, and ultimately we like to know, which medications we can use to treat genes
What we are doing, we are treating genes, rather than, the tumor, as such

Mhmm

And, uh, if you identify all the genes that are involved, and find out which medications we can use, we can have very good results

And that’s what you found ?

That’s right

So in some case you’re treating people that might have a certain type of cancer

Yes, mhmm

with a drug that was designed for a different type of cancer

Uh, that’s right, because we are treating the genes, and, uh, if you find out that, this particular patient has, uh, an abnormal gene, which is not typical for this cancer but we have medication

Hmmm

that works on this gene, that’s what we use

So I would imagine that to treat, uh, that to treat people, this way, is obviously the future
Everyone’s different
Everyone’s genetics are d, d, different

That’s right

genetic markers, but to treat them that way, would require a bit more work

That’s, uh, obviously (laughs) (a life’s ?) work
Uh, uh, we’ll, like, uh, not just simply for, eh, uh, 4 different types of lung cancer

Yeah

Maybe 100,000 different types of lung cancer, each with, different, uh, genetic signature, ok, and once you identify this, then you can treat, such patients logically, and have good results, and if you do it on the scale of, uh, the entire country, this would, uh, give you much better results, and, uh, great savings, because

Mmm

you won’t use expensive medications for everybody, but perhaps for 10% of the population, and then for this 10% of population is going to work

Yeah

Which means that these people will avoid disability
They won’t spend time in the hospital
Uh, they will have short course of treatment, and then they go back to work
So the government would understand, uh, that’s something that can give them a lot of savings
I think they will go for it
Eh, gene testing, eh, at this time is still, uh, relatively expensive
It’s covered by, uh, the insurance of the United States, but for people outside, may cost 5500 euros, for instance, but I think it will be substantially less expensive in the near future
I think it will be below $1,000 for complete testing
So for running the test, uh, uh, eh, and, uh, finding out which treatment, has the best chance, you can save, 100’s of 1,000’s of dollars for individual patients

Yeah, but obviously pharmaceutical companies probably wouldn’t be too happy about that

No, no

People aren’t going to be taking their medications anymore

Well obviously be mostly happy that they can sell a lot of medications, but some of them are beginning to pay the attention, because they have to, because if they don’t, their competitors, will pay the attention

Mmm

Obviously, they would like to have, possibly, the best possible results, in clinical trials, so now they begin to screen population of patients for clinical trials, and do some limited, genetic testing, but, so, of course, they do it, uh, for the better of clinical trials so have best results

Yeah

Doesn’t mean that they’ll do, do it when they sell medicine, to millions of people commercially
They may forget about mentioning this medicine works the best for

Yes

this population of patient (laughs)

So what’s your, your vision ?
Wha, wha, what do you, striving to achieve ?

Well what I am trying to achieve is to introduce the way we treat patients, in, in various countries in the world, and, uh, what this would accomplish is, 1st of all, much better results of the treatment, much simpler treatment where perhaps only 1% of patient would need hospitalization, which would, uh, result in great savings
Uh, the treatment, uh, will be done for shorter period of time
For instance, few months to get rid of the tumors, then, uh, perhaps a year, to stabilize the results, and then go back, working and living, ok, without cancer
This, uh, genetic, genomic testing would be absolutely done for every patient who will come for treatment, to identify, what is the best treatment combination indication
So that’s what I would like to foresee, and then, of course, um, immediately, you substantially reduce, the expenditures for medical
For instance, if, you assume that in the mid, medium-sized country, will spend, for instance, a billion dollar, for, socialized medical treatment which will coincide with hospitalization
Ok
Uh, then, uh, most of the cost is for hospitalization, and services necessary for keeping the patient in hospital, then treating adverse reactions, which are, occurring because of the poor selection of medications
Eh, then if you switch to the outpatient treatment because you use medications which are not going to give such bad, side-effects, because you select this medication based on genomic testing, ok, and then immediately instead of a billion dollars a year, you cut down your expenditures to about $100,000

Yeah

100 million dollars
Ok ?
Probably slash it 10 times
Ok ?
And then people will be happy because, ah, the don’t need to stay in the hospital for a long time
They have less adverse reactions
They can go to back to work, much sooner
Ok
So that’s what I, can foresee as, the treatmentin the future
Not really hospital-based treatment

Mhmm

for patients, and most hospitalization is required because of adverse reactions from chemotherapy, radiation, but outpatient treatment, much easier treatment, also
medication given in tablet forms, for instince

And that’s what you’re doing here, right ?
I mean

Correct, yes correct
Usually in hospital, only, perhaps, for, one or two percent of patients, and, we would like to avoid it because when the patient goes to the hospital, he can pick up, some in-opportunistic infection, and then we are talking about more problem
Of course, I believe detection of cancer will be very important, because you don’t want to, uh, have a patient who is so advanced that he is fighting for, life, and he needs to be in the hospital
Ok

Yeah

If you had diagnosis in the early stages, then the patient does not need hospitalization
He can be treated very easily, then go back to work
So that’s the issue
And of course prevention is another important issue to us
To identify, changes in the body, which may indicate that the patient has already, early stages of cancer, also based on genetic tests, and get rid of this by using, behavior modification, by using proper diet, by using supplements, whatever, even without any medications

So, you’re obviously very passionate about what you do
Right ?
That, that’s my question about that

Well, I think it can help s, people in a great way, and, uh,

Well it can, I mean

Yeah

You have had so many su

Yes

I mean, I was talking to my girlfriend

Yeah

the other day,

Yeah

I mean, people, you know, you hear people say, this is a scam, and I was thinking, well the, if it is a scam

Yeah

it has to be one of the biggest scams ever

(laughing)

because all you’ve gotta do, is look on the walls

Yeah

and you look at those photographs

Yeah

Perhaps, this won’t surprise you
I’ve spoken to some oncologists just in the U.K., and they say, all of these people that you have helped, they either ever had cancer in the 1st place

Mhmm

or they were misdiagnosed

Yeah

or, uh, they went into spontaneous remission

Yeah, well

or they, it was the chemotherapy or radiation

These people, they don’t know what they do
They never, have never seen our results, and obviously they can’t believe that something like this could happen, but suddenly (laughs), in this room we are in now, we have some of
the top experts in the country, like people from FDA, who are expert oncologists, specialists

They’re working with you

Oh, they came here to inspect what we have

Yeah

They look at every scan of the people who are in clinical trials, and they decided that we have very good results

And is that stuff going to be published at some point ?

Ah, yes, we are publi, we are preparing this for publication, but, uh, obviously, in order to have the right results, you need, time, and most of our clinical trials began, approximately 10 years ago
So then we, if you would like to know what happen after, 10 years with these people

Mhmm

then you need to have a little time
So now we are preparing a number of, uh, publications, uh, and so this year we should have a number of publications, which will show final results
So far we didn’t have, final results, so were only interim reports, during the course of clinical trials

And with, uh, with brain tumors; because obviously, that’s an area that you’ve had

Yeah

huge suc, success rate

Yeah

What, why has that, do you think, as opposed to the other, types ?

Because that’s where we selected

Mhmm

We wanted to have something difficult
Ok (laughs)

Yeah

Because, uh, for the same reason that you mentioned
If you’d had something easier then, the doctors could say: “Well, this cancer usually disappears in its own”
And they are right
Some cancers may disappear on its own, in some higher percent than the others

Mhmm

But you know, brain tumors, you read, they never disappear on their own

Yeah

So that’s why we, decided to select such type of malignancies which are the most difficult

So what’s that been like when you’ve seen, I mean, I’ve seen obviously Jodi Fenton’s story

Yeah

Whe, whe, when you see these people’s

Yes

uh, scans

Yeah

and you see that that tumor has shrunk

Yeah

or broken down

Yeah

wha, what does that feel like ? (laughing)

Well, we see this all the time
(?) it just happens almost every day
Even today that we saw the patient, uh, who has pancreatic cancer, and after a few months of treatment it’s practically gone, and she is the wife of a doctor (laughs)
They came together, and that’s, that’s what we see practically every day
Ok

That must give you great strength to

Absolutely

continue

Absolutely, yes
So that’s something which is gratifying (laughs)

Yeah
What do you think the future is as far as drugs for cancer are concerned ?

I believe that, we are still at a very early stages of development in this area, but the future will be, with medications which are, highly specific, they will work on the genes that are involved in cancer
So, they will not harm normal part of the body, and, du, du, how to combine this medications will be established by, the special software, which will guide the doctors how to use proper medication for individual patient
I think this will be the, um, treatment that will be designed for, individual patient, and such design, it is not necessary to be done by the doctor
I think it should be, uh, certain computerized system which will put together, the best possible treatment plan, for a patient; which obviously needs to be checked and approved by the doctor
So I believe that this will be the future of medicine for the next, say, 40, and 50 years, coming up with better and better medications, which will be genomic switches, which will turn off, the cancerous process by regulating the genes which are involved; they simply will bring, the activity of these genes to normal levels, and finally, the new generation of medication which should work on cancerous stem cells, and, the medications which can kill cancerous stem cells without, uh, producing any harm to normal stem cells
So this will be the clue for, long-term control of cancer, because if you don’t eliminate, cancerous stem cells then the cancer will come back

Yeah

And that’s why chemotherapy, usually is unable to control cancer for a long time because, it’s pretty much powerless, ah, uh, regarding action on cancerous stem cells
But then after that, I think that we will make another, jump, and there will be, uh, procedures that will based on biophysics

Mmm

and by trying to get rid of, uh, the cancer and some of the diseases by effecting the body by using various, uh, wipes, which will be like magnetic wipes, it will be some other types of wipes, but using proper frequencies to, normalize all the cells in the body to normalize the activity of the genes
I think this will be a

Mmm

probably the next, uh, say 50 years of, uh, the end of this century when such (?)

So no one’s getting funding really, unless they’re doing it privately to,
being able to, isn’t that being able to research these areas, because funding really comes from pharmaceutical companies ?

Ah, well, most of this funding is from pharmaceutical companies, and also it is coming from the National Cancer Institute but, I think it’s regulated behind the scenes by the pharmaceutical companies
Eh, but they are still some researchers who are trying to do it on their own
Very few of them
I think there’s articles, in the Science magazine, some time ago which was talking about, uh, few of these researchers who are still trying to do, research on their own, and, I think, uh, I think there were probably some 4 or 5 of them in U.K. (laugh)

Yeah

still involved in research on their own

So what ah, what about the role of the mind ?
Do you think that, if someone has cancer and they wanna be well, do you think the way that someone thinks is important ?

Absolutely, that’s very important because, this, uh, can be translated, ah, to various biochemicals which can influence cancer
So obviously this is very important but, the question is how to, ah, direct this in the proper way
Ok
How to quantify this
So that’s something that should be done in the future

And nutrition as well

Yes, absolutely, yes
Why all have a lot of important chemicals in nutrition which can effectuate cancer, but regarding the mind you have to translate, uh, for instance, biophysical factors, in the brain, into biochemical factors, and certainly, that’s what the body’s doing all the time, but how to mobilize it, that’s a different story
Yeah

So if someone wants, if someone came to the Burzynski Clinic, wh, wh, what could they expect, to happen here?

Well 1st of all, we would like to give a selection, and we don’t want the people who we cannot treat to come
Uh, at this time we rather avoid, uh, patients in early stages of cancer, because with such patients, uh, what is used is standard of care treatment, and we prefer to refer them to, ah, different doctors
So we prefer to treat it once cancer patient, because, uh, they cannot be helped by the other doctors, and, uh, when they come to our clinic, we try to find out 1st, see if we can really help them or not, and, uh, once they come to the clinic, in most of the cases we can try to, help them, of course, and, uh, we put together, the personalized treatment plan, which is (?)

But all of those go through you
You look at every single one of those

Yes
I’m seeing every patient, who’s coming, if I’m

Yeah

if I’m around here, but, after that all the patients are really assigned to different senior physician and they’re responsible for daily care of patient here

How many people do you have, working here now ?

About 150 people here, yes

And you started with, well, just one (?)

Eh, I think really when we moved from Baylor College I had about 7 people at that time

Yeah

Yes, because, some of these doctors who are working together at Baylor College decided to leave together with me, including my wife, because she was also working at Baylor College

Yeah

Ok

Thank you

You’re welcome
My pleasure

Thank you so much

Thank you very much
Ok
======================================

======================================

Pete Cohen chats with Sonali Patil, Ph.D., Research Scientist at The Burzynski Clinic

======================================
1/2012Sonali Patil, Ph.D., Research Scientist at The Burzynski Clinic
(18:22) 9/18/2012
======================================
So you, you, you’re a scientist here ?

I’m a scientist here

And, and you work, just with antineoplastons ?

Not necessarily
This is our cell biology lab, and in molecular biology we do basic research on the antineoplastons
Sometimes we also study it in combination with the other, uh, medicines that Dr. Burzynski is interested in
So, but mostly antineoplaston
This is looking at mechanism for action
Trying to understand how it treats the cancer cells, is able to kill the cancer cells without damaging the other cells of the body
So mostly antineoplaston is the target here

And what do you think about
antineoplastons ?

We have found, uh, very interesting, uh, molecular pathways targets that antineoplaston is targeting, working very effectively to kill the cells, um, probably better than many other drugs, because, um, it has multiple targets, and so attacks the cells from many different angles, and is able to kill the cancer cells, more effectively

So, can I ask you, how did you come to work in, th, the Burzynski
the institution ?

Through an advertisement, it was
My position was advertised
I started 8 years ago, and

So ok
So it was advertised

Mhmm

So when you applied for the job, were you aware of the controversy of, (comments to self: learn to talk)
So when, when did you find out ?

Uh, eh, as soon as I joined (laughing)

Oh yeah ?

Few months later
I thought, it’s easy to find
It’s not hard

Of course

It’s not even, uh

Wha, what about any of you other colleagues, that prior to coming here ?
I mean, did they say anything to you, like, you know ?

Well they brought something up
(?) in, uh, uh, being there for him during this trial, my boss, my previous boss was here before me
Uh, so I have a very open picture of it, and it doesn’t bother me
He came up against it and won

Yeah

So that’s a good thing

An, and why do you think, it kinda hasn’t been, kinda lost the word, hasn’t taken off, you know ?
Has the scientific community hasn’t really embraced ?

Well anything that is non-traditional always, you know, takes its own time to get to people
Besides, the traditionalists don’t want it coming out because, uh, it affects, a lot of other things, um, finance, in, in the big Pharma

Right

that is affected by this
So, um, if it, if it were, um, a medicine already with another big company, it probably would already be out in the market by now, but, uh, it’s because it’s one man’s show
He’s fighting against, uh, traditional medicine, big, big centers like M.D. Anderson right here in Houston
So, most people want to believe, uh, what the other doctors, the oncologists, are telling them, because that’s what everybody does
So very few filter out of that and come looking for him, because they’ve lost hope there, and they’ve tried everything else, and they come because; which I wish they wouldn’t, come here as a last resort, you know

Mmm

and, by then, sometimes, uh, enough damage has been done that is sometimes even he cannot cure
It’s not magic
It’s
There’s a logic to the way the medicine works
The science behind it is not, it’s not just a magic bullet
So, and you have to target it at the right time
Catch cancer at the right time

So I have a, friend of my mother’s at home, whose spent, her whole, academic career, 20, 30 years, researching, astrocytomas

Mhmm

And, uh, you know, I did my research, and, I was no doubt that we were coming here
No question
My, my research was more based on people

Excuse me

On people
Talking to people who had been treated, and seeing the results, and then looking at the research afterwards, and she was just saying that “I’ve spent all my years, research, and research, and research, I can’t find anything, that validates, this, this treatment
Now I’m not asking you to comment on what she said, but,

No, validation, validation basically means, uh, proof in scientific community
If you’re not accepted into the scientific community, you’re not going to be able to present that truth, and we go and present at conferences all the time, eh, when it comes to publishing papers, uh, we haven’t been very successful
Dr. Burzynski has published, uh, a lot of data of his patients
So it’s out there

Yeah

If you, if you want to believe it, and you’re looking for it, you’ll find it

Yeah

It’s just, um, it’s not in the mainstream places, because it gets rejected out of there
Um, it’ll probably take some time to get into those spots where everybody else is publishing, and everybody else is talking about it, but it doesn’t mean that it’s not true

So obviously you’re here on a daily basis
So when was the 1st

Last 8years

So the last 8 years
When was the 1st time you actually saw, was it in the dish where you actually saw it ?

Well we see it, we’ve seen it for years before I came here

Yeah, but when was the 1st time you saw it, when you came here yourself and you saw ?

Well we see it every day
Um, we have cancer cells in the lab, that we treat, with the medicine
We see them dying
We see them undergoing a necrosis, which is the cancer deaths, pathway, that most people study and talk about

So

So, it’s happening, it’s happening in front of our eyes everyday
So, we have proof for it
you know (?)
We just have to get it out there, and there’s a, there’s a system to all that

Um

and were trying to, get it through the system, and get it out there

So what, when you 1st realized there is something here, did you not just feel like just shouting from the rooftops and telling everybody?

Well I wasn’t the one who discovered
He did, in the ’80’s

Yeah

and since then he’s been shouting from the rooftop
It’s just, nobody would listen to him

Yeah, yeah

So, you know, we’re just doing the, uh, actually it’s backwards
People usually do, uh, pre-clinical research 1st, because the medicine

Mhmm

goes out and to the patients, and we, we are kind of doing it, the other way around
He already has patient data
He’s been treating people
on this
People, survivors walking around, to tell the story, and now we are being made to understand how it works in the cells
So, it’s, it’s kinda doing, the research, after the trials

Just tell me
One more question
What’s it like
How would you describe Dr. Burzynski ?

I admire his, uh, passion, for what he does
He truly believes in what he does, and to me that’s, that’s a big thing
If you don’t believe in yourself, then nobody else will, and, his memory
He, he has tremendous memory, and, uh, uh, quick thinking
He’s able to piece together stuff, uh, research articles, papers, put together puzzle, come up with a theory
He does that every day, every time I meet him it’s, it’s interesting to me to see how his brain works

you say, in, in the purest sense, he’s a scientist

I think he’s a doctor 1st, but a doctor who’s very, very interested in science, and that’s an important thing, because a lot of, uh, doctors don’t care about the research, and he does
I think, I think his primary aim is to treat patients, mostly

So if there were any type of skeptic, research scientist out there, what would you say to them about what goes on here?

We do, we do, everything that happens in any other lab, anywhere else
I went to school at Houston, ah, so, I know exactly how the labs work
We do exactly what they do

Yeah

Um, we try to write up our papers, and send them to the journals, just like everybody else does
Uh, present at conferences
We try to get our data out there
Um, we’re trying to do our best, just the way everyone else is

I, I suppise trying to do your best it, it, it’s fascinating because you actually have something

Yeah

that really, really does work

Mhmm

I mean, it’s a cure, right ?

We believe it is

It’s a cure for cancer
Not for all cancers
I actually asked Dr. Burzynski

Mhmm

I filmed him the other day and said to him, why do you, specialize in brain tumors ?

Mhmm

Do you know what his answer was ?

What was it ?

He said it’s because it’s the most difficult type of cancer

Well it is if, if you think about it
I don’t think there are many doctors who claim to have survivors, eh, at least in the numbers that he has, to present

Yeah

and, um, I hear that at conferences too when we, were standing around, they will look at the slides, eh, eh, which is a tumor, and they will say: “Well that’s not a tumor,” ye, “it’s just necrosis
It’s just a patch on the skin, and you just cured nothing, and”, uh, all the, “the patient was probably cured from, the therapy that he took elsewhere, you know, the radiation he got 10 years ago”
“That’s probably what cured him,” but, you know, th, those kind of patients will be rejected from other, hospitals, don’t survive, that far enough to, to tell a story

So what is it ?
Just people living in denial ?
Is it fear ?
Is it ?

Fear or denial
I’m going to do what everybody else does
Why, why should I go out and do something different, here ?
Yeah (?)

And, and lastly, you know the, the power the pharmaceutical companies have

Well of course
I mean, but I’m nobody to, comment about that

Yeah, yeah

You know
There’s, there’s a lot going on behind the scenes that we are not even aware of, but this is just what, um, my experience is, when I talk to other doctors at meetings and conferences, and they, you’re immediately dismissed as, oh, you know: “What you’re going to say doesn’t really make any sense because you work for, Dr.

His name has been tarnished
——————————————————————
There’s a lot more, to that, than just, people playing politics, this, this, a whole lot of stuff going on behind there
So, I don’t think it’s, it’s (supression ?) as much, it’s just trying to tell your story, uh, so that somebody would listen and accept it, uh, maybe using, the right channels, going, presenting it in a different way, make it more convincing
All that, would help

So if it, if it was you, in his position, would you not have just given up ?
Or would you

Oh, definitely
We all talk about it all the time, that the amount of determination that he has, most people, would back off and leave, but like I said, he believes in what he does, and that’s what keeps him going

Yeah
As far as publishing is concerned, ’cause a lot of scientist want to see

We’ve tried
We, we, don’t get past the initial screening
We repeatedly send it back to other journals and that’s the process I keep doing all the time
Comes back, I send it back to another journal
Hopefully, one day it will get it

So, let, let, let, let me get this straight, ok ?
You write articles, right ?

Papers

Papers

Mhmm

and you submit them to, medical journals

Mhmm

and then what happens ?

They come back

Why do they come back ?

Sometimes, um, if they get to reviewers, uh, it’s not enough data, or, which I understand
We can work on changing, modifying papers, but, many times they come back, without any reason
They just get rejected, at the 1st, screen itself
So they come back without any reason

And why do you feel that is, in your own humble opinion ?

Wha ? (laughing) not humble opinion
It’s, it’s hard, um, publishing is a tricky game, you know ?
You have to publish once, to get your name in there, and then, they might publish you again, but, uh, with the negative publicity that we already had, and most of the community would look at the name and say: “Oh we, we just don’t want to, want to even read it”
So, it, it doesn’t even get past the 1st screen, because they don’t turn, flip the 1st page even

Ok, so, what you’re saying is that you see things that are published in these journals

Oh yes

And, you see ?

very similar stuff
We try to, we try to do research that is on par, uh, with what everybody else is doing, as far as the techniques, the ana, the data analysis
We, we try to do everything which is the standard for, uh, the research community, but, doesn’t get past

Um, how frustrating must that be for you ?

Mmm, it is (laughing), it is

So do you feel like you’re a party, or you’re trying to get into a party, and knocking on the door, and no one’s letting you in ?

I feel like that at the conferences too because, um, sometimes they come up to your, poster presentations, and, um, they’ll ridicule you right there, while you’re standing there by your presentation

Ok, just last thing, because one of the things I heard

Mhmm

recently, which were, that, uh, there’s some evidence that Dr. Burzynski has from, from the phase 2 clinical trials, showing people who have, uh, glioblastomas who’ve been alive for 10 years

Mhmm

and there’s something there that they want to try and get published

Mhmm

What you’re saying is, that might never get published ?

Well, Dr. Burzynski’s case is different
He has published some of his patient data
I’m talking about the research, uh, the pre-clinical research, the cell culture data, the molecular data
Um, we haven’t had success getting that out, but, he has, he also faces rejection a lot, but he doe, he has managed to get ta, a few publications in

So how does it work ?
If, if you submit something they can
What’s the process ?
They can submit it back ?

That’s not, there’s a review
There’s a whole review board
Um, you can select your reviewers
It goes through couple of cycles of review before it’s, agreed that they will publish it
So,

And in case they say no to publishing it

You can

do you, can you take it somewhere else ?

Yeah, you can take it somewhere else, but, um, but it’s, the peer-reviewed journals that are the ones that you want to get into, you can publish whatever you want, ah, that doesn’t count
That’s why when, somebody who’s of, uh, any significance in science would not even look at those articles if they’re not in a peer-review journal
So, they have to get into a decent place to make a mark

Do you think that will happen ?
What do you think has to happen in order for ?

It’ll happen, in, in time
They can’t keep refusing you
We, we try again and again
——————————————————————
But in time they just want to, not focus on it, and just have’m, bring in more numbers, and keep doing this, and in the meantime keep treating, some number of patients
On, on, top of everything, my personal belief is, uh, brain tumors are not, uh, a money-raising factor, because it’s a, it’s a minority cancer
If this were treating, uh, mainstream cancers as they’re called, as, uh, breast cancer, maybe they would look at it more seriously, but the numbers, with the brain tumors, which is a good thing
I mean it’s a deadly cancer
You don’t want more people to have it, but, that puts it in the category of, um, you know, not so feasible, as far as the money-making
And so, the priority; even though, it’s the most vicious, and it should be looked at more seriously, but, it’s not the one that brings the big bucks

So

So, put it aside

So why would the FDA, haven’t closed him down then ?

Because they, they, uh, believe the data that he’s sending them so far, and they don’t have a valid point to, just say no, it doesn’t work, and put it away
They see effect, and so they want, more numbers, more data

Is it, it the phase 2 trial is finished ?

Mhmm

but they’re still accepting people ?

Yeah

on more like a special ?

Special basis, and, um, sometimes compassionate grounds

(compassion exception)

Uh, exceptions

That’s normal ?

Yes
So

(Yes I guess it is a funding issue ?)

Right

(Like FDA, during the 2nd phase of clinical trials they found the data to be, real, real one, and they gave him the ok to go for 3rd phase of clinical trials, but just to go through this process you would probably need $100,000)

(?) and that’s stalling

(even more, millions dol, millions of dollars, to go through the 3rd phase of clinical trials, and)

(?)

(he’s a single doctor
It’s a 1st case)

Yeah

(probably in American history)

It is

(that single doctor is trying, to get a his job)

Self-funded

(approval
Self-funded
Whatever you’ve seen on that plant, everything came out of his practice
So he was the one who funded, literally the, the, research and development phase, but those installation, operation, all this big plant was built ?)

Yes, ’cause, uh,

(private)

one of the things I hear a lot, I’ve heard slot in the U.K. is that: “Why is he charging people for clinical trials ?

Well, uh, how else would you run this place ?

Exactly
How will you run this place, and how else will people be on the trial, because

Right

you know, there’s no pharmaceutical company involved here, right ?

There’s nothing
Nothing
It’s all out of his pocket
Every single bit
So
And what is stalling (?) is (?) again is, is funds
Money

Yeah, I also heard that the phase 3 they wanna do radiotherapy with, with it

Mmm

Hopefully, that will not be the case, but

we’re trying to
I think, uh, he is trying to fight against that, but, the FDA is the FDA, so

And what do you think about this case, he’s now got coming up in April ?
You know, he’s got this court case

Well there’s always something

Yeah (laughing)

He, he’s won before, so

Yeah

Do you think he needs the support, do you think he feels the support from, from all of you ?

I think so, for sure

(Oh, absolutely)

Yeah

Nobody forced us to work here

(Ah-hah)

Yeah

We get paid, but, you know
I could always look for another job if I needed to (laugh)

Yeah
So would you stay here because you really believe in what’s going on here ?

(?)

(Yes, that’s one thing that’s unique about our operation, and I’m talking about this location is, uh, whoever joined the company; and we have a guys who joined the company in the 80’s, 90’s
They stay with the company
Turnover is zero)

Yeah

(Joined the company
Stays with the company
It’s a challenge)

Yeah

(It’s a (?) challenge for us)
======================================

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Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html

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I will be doing some data clean-up and adding additional video transcripts
——————————————————————
What stood out to me in the first and last videos is that you could hear both sirens and birds

Unlike “The Skeptics™” (sirens) #whining, the birds were celebrating Hannah #winning
——————————————————————
Just as I did with the case of Burzynski patient Laura Hymas, so will I do with her friend, Hannah Bradley

Yes, unlike “Orac” I will let Hannah speak for herself instead of adding any bias as “Dr. Check my Facts” Hack does
——————————————————————
Team Hannah Blog

6/6/2013 – Posted by Hannah

(6:14)

Okay

Hello everyone

Hi

It’s uh Thursday the 6th of June

Yes

(laugh) And uh we’ve got some really good news

We’ve kind of been holding back a little but

we just wanted to be certain

so what were you going to say

Uh, I am finally off treatment

Finally off treatment which is great so as far as Dr. Burzynski is concerned, the treatment is now finished

Hannah is free

Free of the bag

Free of

Yes

Yes

How’s that feel

Yeah, it feels really kind of strange to be honest

Well you want to go back on it again

No

No

But I
I miss the bag, because I miss carrying around ohhh

Now you’re just being a little bit stupid

Um, but the great news is today, we went to go and see Hannah’s surgeon

Yes

Oncologist

A another surgeon another doctor um

Yeah

And that was a bit strange because the last time that we saw
surgeon he gave us
it was probably one of the worst days of our life

Yep

He gave us the results of

Your biopsy

Yep

Which was a grade 3 tumor uh I can remember that like that was yesterday

I don’t really remember

Well but I do

It was amazing uh seeing him today because he’s just basically just agreed with everything that uh that’s been said in America that Hannah’s doing really really well she as far as she’s concerned you don’t have to have any scan for another 6 months

No

Uh so you know really kind of cancer free and

Yep

Now, you know, it is incredible

It’s a bit of a miracle and

it both hasn’t hit home

really

How much

Yeah

How much is

Well we can start our life

We can start our lives, again

Again (laugh)

And um we just want to say

a massive thank you

the list is just

this isn’t the end for us

I’m sure we

boring you

(laughing)

had a very long day

We had to wait an hour and a half (laugh)

(laugh) Sorry I couldn’t help

Calm down

The the list of people that we have to thank

Need

Need to thank is so long, and obviously way up at the top of that list has to be uh Dr. Burzynski and all of the people at the Burzynski Clinic who have been just amazing, you know

Just so supportive um and I suppose really without that treatment I don’t
I don’t think

I don’t

No

I don’t think

You don’t think you’d what ?

It’s not worth thinking about

Yeah, it’s not worth thinking about

But um we have to thank every single person that contributed and helped us and supported us along the way

Everyone that helped us raise money

Um

to thank

Here we go

Who else do we need to thank

I think

Come back up

Come on

(laugh)

We have to thank uh

like I said it’s been a long day today

Uh we have to thank Jamie Lowe

Yes

We have to thank Lindley Gooden

Who else do we have to thank ?

Uh all the people that were in Team Hannah

Yeah

All of your friends

My parents

Your parents

Mhmm

Um just everyone that’s been watching these blogs

We really, really couldn’t have done it without you

And um

We are really, really thankful

You don’t want to go do you ?

Hannah and I were thinking about doing our own comedy show because a lot of people
comments like we’re so funny

Yeah

And who’s the funniest

Uh oh you

Yeah you

Me
Me
Me

Um

So, I don’t know what else to say really apart from, you know, this is really a bit of a fairy tale for us

We know how fortunate
we are and we know how
people
who we met along the way
who weren’t
haven’t been as fortunate as us

So we uh

So, are you alright down there ?

we’re talking about something serious

Very

Yeah, we know a lot of people who haven’t been as fortunate

As fortunate as we have people are forever in our hearts

You know, um, we know how lucky we are and um

We’re going to make the most of our lives the most of our lives together

Um, yeah

We really do think that

No don’t

You know, there was a time

Many, many times where I really didn’t think that Hannah would be here but, you know, we’re talking 2 1/2 years ago that she was diagnosed and she’s doing better than ever even though she is yawning

(laugh)

Um

I don’t think there’s any words that really put into a sense of how so lucky we think we are, and I really think it’s how our legacy to live with that and try and inspire other people as much as we can as well

Ok

So, we’re not going to get go anywhere we’re still we’ll still let you know from time to time how we’re getting on

Uh um I also think we need to give a massive shout out to Ben and Laura Hymas as well who, who really, we went to see them the week before we went to, out to America, and it was there, was a, was a bit of a shock

Really

Realizing what we were about to take on but um she’s

I’m very sorry

She’s someone else who’s done well and we want to give a big shout out to them because we know that they’ve got their lives ahead of them as well as we do too

So, I think without any further ado we’ll give your famous wave

(wave)

It’s not really a wave, is it

Thank you very much everyone

Thank you

Big hug

Wanna hug ?

C’mon

C’mon hug us [10]
======================================
London [1]

4/2010 – first met Hannah and we fell in love and since then our relationship has gone from strength to strength [3]

Hannah (28) has great personality and fantastic sense of humour [3]

10/5/2012 – from Elstead [12]

4/4/2013 – Hannah Bradley (28) [11]

Hannah Bradley from London, UK [15]

======================================
MOOD
======================================
Looking back now, was quite naive [1]

2/2011 – world took dramatic turn [11]

Hannah Bradley from London, UK [15]

To my complete horror [11]

whole world was turned upside down [11]

confused [11]

scared of all the unanswered questions that lay before me
why was this happening to ME? [11]

What did the future hold? [11]

Will I be okay? [11]

absolutely terrified as realised something seriously wrong [15]

Everybody else went into panic, but shock calmed [15]

Inside, scared, could see how frightened Pete was [15]

wasn’t easy decision but really wasn’t another choice [15]

Fear pulsed through me as was wheeled to theatre for operation [15]

4/2011 – thought once surgery over, tumour would be gone [1]

“Hello,” I croaked [15]

“Have I still got all my hair?” [15]

beamed as Pete nodded [15]

long blonde locks were pride and joy, and surgeons managed to operate without having to shave any [15]

Waiting for results was one of most harrowing periods for me and my partner [11]

had to wait for results of biopsy for few weeks and remained positive [3]

while trying to remain positive throughout [11]

tried to keep busy so didn’t dwell on what doctors would say [15]

it was hard [15]

sensed before they even spoke [15]

faces were so serious it had to be bad news [15]

Obviously medical professionals have to be detached when deliver news, but we completely broke down [15]

tried to bite back sobs so could hear what they were saying [15]

blinked for moment, realising meant me [15]

left hospital, in daze [15]

went to sit in park for 2 or 3 hours, working out how to tell everyone [15]

rang dad, feeling ashamed he had to deal with news [15]

didn’t want to upset him [15]

Pete and I rang close friends and family and became easier each time [15]

got chain going to spread news so didn’t have to ring everybody, which was relief [15]

gave me space to come to terms with diagnosis [15]

Once able to get head around it, felt detached from it: [15]

needed to get through next stage now [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

Hannah’s bravery and resolve once again rose up as shortly after this she started 6 week course of radiotherapy [3]

news was not good and world was rocked once more as results showed Grade III tumour [11]

whole world suddenly fell apart again and that very moment I didn’t know how to go on [11]

knew had to carry on and from somewhere I didn’t know existed within me, found some bravery and started to have next course of treatment, 6-week course of radiotherapy [11]

hope you will understand this was REALLY difficult for me as I loved my hair and without it felt horrible and ugly [11]

coped well at first, until hair came out in clumps [15]

warned could be few patches of fall, but lost it all [15]

wore headscarves but mourned my hair [15]

work in skincare sales and used to having to look my best [15]

know it was vain, but hair was part of my femininity [15]

missed it [15]

awful but kept going, knowing had to [15]

Seeking alternatives [15]

full of hope [15]

know it’s long fight ahead but feel everyone is behind me and
get so much from that [15]

have a mantra, which like to think I made up but think I read somewhere: [15]

‘You never know how strong you are until being strong is the only choice you have.’ [15]

exactly how I feel [15]

there was some hope [12]

was truly an incredible time and once again I was filled with hope as so many people came to my aid to support me by raising money and donating what they had [11]

still so thankful for all that support [1]

absolutely overjoyed [1]

wouldn’t turn my back on conventional medicine, but would advise anyone in situation like mine to look into other options – there could always be another way [1]

“If this whole thing has taught me anything, it’s that.” [1]

Thankfully along with other treatment, strategy has worked for me and I’m now trying to help others who are fighting against this horrible disease [11]

======================================
HEALTH
======================================
was salesperson when diagnosed with cancer [1]

ate on the run [1]

smoked [1]

had no real symptoms or warning signs [1]

2/2011 – out of the blue, Hannah had major seizure in middle of the night [3]

2/2011 – one night Hannah’s life changed drastically without any prior health concerns suddenly had major seizure [12]

2/2011 – had grand seizure while asleep [1]

2/2011major seizure in middle of night [11]

arms up in the air, body shaking [1]

2/2011lost consciousness and was rushed to hospital [3 + 11]

woke in hospital, had no idea what had happened, tests revealed brain tumour size of golf ball in frontal lobe [15]

didn’t know anything wrong before had massive seizure in sleep [15]

boyfriend thought was having nightmare at first, but when couldn’t wake me, realised was unconscious and called ambulance [15]

came round in hospital few days later and didn’t remember anything [15]

underwent countless tests, absolutely terrified as realised something seriously wrong [15]

2/2011 – 4/2011 – don’t remember much about 2 months that followed apart from seeing many doctors, having constant headaches and a # of seizures [11]

had constant headaches and number of seizures [3]

Eventually CT scan showed brain tumour, turned out to be very aggressive, anaplastic astrocytoma [1]

week after CAT and MRI scans told had brain tumour size of golf ball [15]

in frontal lobe and probably growing there for years [15]

doctor gave 3 options: [15]

leave it and see what happened
have biopsy to discover what type of tumour it was and how aggressive
go for surgery to try to remove as much as possible [15]

diagnosed with very serious brain tumour [3]

diagnosed with very aggressive brain tumour [11-12]

2/2011 – 4/2011 – have no memories of that time, from the night of seizure to coming around from 8-hour operation to remove tumour 2 months later [1]

had about 4 more seizures – including one 2 nights before surgery last April – after discharged because tumour growing and putting so much pressure on brain [15]

Pain throbbed through inside of skull as peeled eyes open [15]

Groggy, focused and saw Pete smiling down at me [15]

was in hospital 5 days before going home to rest and getting biopsy results [15]

2 weeks later, went back to see consultant and specialist nurse [15]

news was not good and our world was rocked once more as results showed Grade III tumour [3]

tumour was cancerous and had scary name – anaplastic astrocytoma [15]

4 grades of brain tumours with 4th being worst [15]

Mine grade 3 [15]

statistics quoted said person with grade-3 tumour lives around 5 years [15]

life expectancy for people with tumours like this was 18 months [1]

2 weeks into treatment was hit by wave of tiredness [15]

so shattered had to go to bed for week [15]

went well for 1st few weeks but followed by hair falling out and bouts of tiredness and lethargy [3]

lost hair
started having seizures and didn’t know how long she had to live [12]

was still having seizures and lost independence with losing driving licence [11]

On top of all of this, dealing with losing driving licence as had number of seizures and now has epilepsy [3]

At end of July, had another MRI scan, revealed still residue left from tumour [15]

6 weeks after radiotherapy finished, had another MRI to see what was going on with tumour, Once again more bad news, as there were still remnants of aggressive tumour [3]

Although it was hard I remained hopeful that 6 weeks after radiotherapy would help and I could go on to live a normal life but again results of next MRI were not good [11]

There were still remnants of aggressive tumour [11]

At this point treatment options where very limited and life expectancy was not very long [11]

was told only options available on National Health Service were to operate or have radiotherapy again [15]

Chemotherapy also mentioned but not strong enough for that [15]

doctors said were really uncertain of expected life span if didn’t do anything and since treatment options in UK so limited, we want to try something else [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Just 8 months after starting treatment had some incredible news [12]

latest scans show she is cancer free [12]

desire to beat this disease led me to make number other lifestyle changes [11]

One of biggest changes has been dietary; specifically cutting out most sugars from my diet [11]

involved learning how to cook, which in itself was huge challenge because I hated cooking with a passion [11]

Over time I started experimenting with different foods and became more and more adventurous and dare I say it, I even started to enjoy coming up with new healthy recipes [11]

quickly learned that exclusive food of cancer is sugar, so quickly embraced this and cut out almost completely starchy carbohydrates and refined sugars by incorporating sugar free/starch free food plan [11]

idea being that diet would feed my body, mind and starve cancer into submission [11]

also learnt this type of diet is good for blood sugar regulation, body composition and is consistent with the way that our ancestors ate thousands of years ago [11]

After months of experimentation and with help of couple of great cooks, have learned to make delicious and nutritious healthy meals and this is why I decided to write my own book, The Team Hannah Cookbook [11]

It’s my contribution to helping and inspiring others to eat a better diet [11]

I would hope you can enjoy these recipes and make them part of your diet [11]

This book will show you how easy it is uto cut out the carbs and still eat “normally.” [11]

I now believe that dieting and counting calories doesn’t work [11]

Low carb is the way forward [11]

You will find in my book great low carbohydrate recipes for – Breakfasts, Breads & Pastries, Starters, Salads, Mains, Desserts, Treats [11]

======================================
TREATMENT
======================================
2/2011 – partner, Pete, called ambulance, was rushed to hospital, unconscious [1]

decided to have operation, hopeful would get rid of it [15]

in hospital 2 weeks following 1st seizure and put on strong medication to stop from having fits [15]

kept awake 2 1/2 hours of 6-hour surgery – medical team wanted to make sure weren’t damaging any part of brain, where tumour was, relating to speech and language [15]

made list of what to talk about with speech therapist during operation, such as meeting Pete at conference in Croatia year before; favourite American TV series, Friends, niece who’d been staying with family week before seizure [15]

remember having to touch fingers with thumbs to check movement still there, hand or my leg would involuntarily move when surgeon touched particular part of brain and asking anaesthetist to scratch itch on nose [15]

“It’s going fine, we’re putting you back to sleep now,” voice said and everything went black [15]

4/2011 – 8-hour operation to remove tumour [1]

4/1/2011 – decided to have surgery underwent 6 1/2 hour operation [3]

4/1/2011surgery and underwent grueling 6 1/2 hour operation [11]

awake for nearly 3 hours of this operation [3]

nearly 3 hours of operation was awake [11]
——————————————————————
Pete Cohen chats with Dr. Juan F. Martinez-Canca, Neurosurgeon (Consultant) about Hannah Bradley:
https://stanislawrajmundburzynski.wordpress.com/2013/11/08/pete-cohen-chats-with-dr-juan-f-martinez-canca-neurosurgeon-consultant-about-hannah-bradley/
——————————————————————
operation was success and they managed to remove nearly all of tumour [3]

To my relief
results of operation were fairly successful and surgeon managed to remove uhmost of tumour [11]

diagnosed with Anaplastic Astrocytoma brain tumour and over next few months endured 6-hour operation and 6 weeks of radiotherapy [12]

started radiotherapy 8 weeks after surgery [15]

full on – 6 weeks of treatment, Monday to Friday [15]

needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]

radiotherapy went well for 1st few weeks but fears were confirmed when hair started to fall out [11]

was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour [1]

Pete started researching alternative treatments from beginning and was Dr Stanislaw Burzynski, biochemist and physician in US, who seemed right choice for me [15]

found pioneering treatment in America which could give her a chance [12]

One name kept cropping up [1]

Dr Burzynski [1]

treatment is controversial – claims to have identified peptides called antineoplastons, which act as molecular switch to turn off cancer cells without harming normal cells [15]

After reading everything we could, decided to try it [15]

At his clinic in Houston he’s developed a treatment using anti-cancer compounds he discovered and now manufactures – and is treating aggressive tumours, especially ones in the brain [1]

controversial [1]

medical community claims unscientific and unproven [1]

oncologist didn’t want me to go – he wanted to monitor tumour and maybe give more radiotherapy in future [1]

that was like containing it, not getting rid of it, and treatment hadn’t worked so far [1]

Dr Burzynski seemed to be only hope of getting rid of cancer for good [1]

In order to get it needed to raise £150,000 [12]

treatment wasn’t cheap (about £200,000) [1]

treatment very costly, and even using all savings didn’t have nearly enough [15]

£200,000 (Dh1.16 million) needed to go to US, plus ongoing shipping of drugs from States and private monthly scans will need for 12-18 months, was out of reach [15]

Family and friends offered to help, soon there was Team Hannah website [15]

Within few weeks had £35,000, enough to go to US for consultation and start treatment [15]

didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]

Treatment available in America [12]

Luckily was able to take part in phase 2 clinical trial in Texas, USA [11]

treatment isn’t available via NHS so had to raise considerable amount of money [11]

12/2011 – flew with Pete to Burzynski Clinic [1]
——————————————————————
12/10/2011Saturday – video blog
leaving tomorrow morning
——————————————————————
12/11/2011 – Day 1 – Sunday
flew to USA
massive headache
thought was going to faint

——————————————————————
12/12/2011 – Day 2 – Monday
Burzynski Clinic
temp check
vision test
meeting: Dr. Yi oncologist / Dr. Greg Burzynski
(Dr. Rowkowski)

——————————————————————
12/13/2011 – Day 3 – Tuesday
Burzynski Clinic
inject sugar syrup
PET scan
MRI scan review

?’s memory / spelling jumbled
fill out form
Valium
(as much local anesthetic as could give her w/o knocking her out)
catheter – Hickman line
(painful / really painful)
——————————————————————
12/14/2011 – Day 4 – Wednesday
Burzynski Clinic
(feeling wrecked / absolutely wrecked)
start treatment
6 doses of antineoplaston a day
4 hours apart
almost 24 hours continuously
(had chest x-ray)
(Dr. Barbera – talk pain medication)
lessons: clamps / hoses / pump
——————————————————————
12/15/2011 – Day 5 – Thursday
Burzynski Clinic
(Day 2 of treatment)
lessons: change pump
——————————————————————
12/20/2011 – Day 10 – Tuesday
Burzynski Clinic
Dr. Yi / Dr. SRB
enhancing – asked to stay month – next MRI to be done
——————————————————————
12/22/2011 – Day 12 – Thursday
Dr. Hilary Jones on Daybreak
(Pete’s colleague)
——————————————————————
12/24/2011 – Day 14 – Saturday
fever
bad breathing
shivering all night
——————————————————————
12/25/2011 – Day 15 – Sunday
Burzynski Clinic
flu symptoms
breathing
headache
uncontrollable chills couldn’t stop
Monica
off ANP
absolutely exhausted
in bed
little bit of swelling back of head
——————————————————————
12/27/2011 – Day 17 – Tuesday
back on ANP
temp 102
called Burzynski Clinic
off ANP
temp down / up
——————————————————————
12/28/2011 – Day 18 – Wednesday
Burzynski Clinic
on ANP much smaller dose
exhausted
close to breaking / cracking
——————————————————————
12/29/2011 – Day 19 – Thursday
hospital
“I’m at my wits end”
“I don’t feel I can take anymore”
——————————————————————
12/30/2011 – Day 20 – Friday
last week up & down
off on off on off
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R.
surreal
——————————————————————
12/31/2011 – Day 21 – Saturday
fever in middle of night
temp 102
Dr. SRB thinks flu-like symptoms or tumor actually breaking down ->
——————————————————————

1/2012 – started treatment [11]

——————————————————————
1/1/2012 – Day 22 – Sunday
Burzynski Clinic
feel drunky
prob w pump – not closing
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky

Gary – directions re pump equip
——————————————————————
1/17/2012 – Day 38 – Tuesday
Burzynski Clinic
temp 101.8
throat infection
If 102 take off ANP
BC 3x – blood – supplies
antibiotics 1 day

antibiotics 2 day – over 102 last night

fever
antibiotics been on 3 days
off ANP
disappointed
pointless
——————————————————————
1/20/2012 – Day 41 – Friday
fever
104 (103.9)
Friday night
——————————————————————
1/21/2012 – Day 42 – Saturday
Burzynski Clinic
temp up to 104
Dr. on-call – Ibuprofen
102.5
yesterday afternoon (blood) rash ?
off ANP
Dr. Popper
——————————————————————
1/23/2012 – Day 44 – Monday
Burzynski Clinic
Dr. SRB
gave name from pic
some itch
MRI – was to have Wed (12/29/2011 prev MRI)
less tumor
less enhancement
shrunk by at least 10%
call Dad

Been 1 month
Discharge
take Ashley
Rick
Fri – leave
——————————————————————
1/26/2012 – Day 47 – Thursday
Burzynski Clinic
Stable Disease
stabilization
——————————————————————
1/27/2012 – Friday – leave
——————————————————————
medication is administered directly into your body through Hickman line 24 hours a day [1]

not an easy option [1]

Pete and I learnt how to prepare and administer treatment ourselves and carried on in Britain for another 18 months (1 year 6 months) [1]

were there for 7 weeks, and scans showed in that time tumour reduced by 11% [1]

Thankfully has been successful in shrinking tumour [11]

blood was checked twice a week, was scanned every 6 weeks at private hospital [1]

Most importantly, seemed to be working [1]
——————————————————————
6/2012 – back 6 months
3 scans

6/13/2011
12/7/2011

3/21/2012 – 1
5/2/2012 – 2
7/29/2012 – 3

7 weeks at Burzynski Clinic

Complete Response
——————————————————————
tumour kept getting smaller, in January this year it was all gone [1]

started treatment and after 9 months had complete response and will continue on treatment until 4/2013 / 5/2013 [3]

now off treatment but still being monitored [1]

Dr Burzynski isn’t miracle worker [1]

There are well-publicised cases of families raising money for children to be treated at the clinic but children still tragically dying [1]

People have posted on our website that it doesn’t work, but I’m convinced that, if we hadn’t found him, I wouldn’t be here today [1]

======================================
SUPPORT
======================================
Pete Cohen: Team Hannah set up to save life of my partner, Hannah Bradley, who’s 28 years old and has brain cancer [3]

All this time, without knowing, Pete had been looking into things, searching, talking to anyone and everyone who could possibly help [1]

needed to raise around £200,000 to give her opportunity to have life-saving treatment at The Burzynski Clinic in Houston, Texas [3]

Pete launched campaign – friends and family gathered around, held events, our local radio station supported us – in 2 months already had £100,000, enough to start treatment [1]

You helped her to get it… [12]

Eagle Radio wanted to help give Hannah hope by raising money towards her fund [12]

you wanted to help too [12]

Hannah came in to Eagle Radio to meet Breakfast Show presenters PG and Bev [12]

Listen to interview here: [12]

Pete (Hannah’s boyfriend) met our reporter Anthony Zahra and starts by talking about how couple met: [12]

Jeremy (Hannah’s dad) spoke to our reporter Elizabeth Williams: [12]

photos on Hope for Hannah appeal [12]
——————————————————————
Fundraising events you told us about [12]
——————————————————————
7/21 – Matthew Cank from Farnham doing sponsored bike ride with friends riding from John O’Groats to Lands End [12]
http://2theend.co.uk
——————————————————————
**
2/24 (Friday) – Pure Dance at Backline, Guildford from 8pm to 2.30am House, electro & trance music with DJs on rotation Entry £10 with all proceeds going to the appeal [12]
——————————————————————
**
2/25 (Saturday) – Dinner, Dance and Auction at The Mandolay Hotel, Guildford (6.30pm to 12.30am) evening of fantastic food & excellent entertainment [12]
——————————————————————
**
3/3 (Saturday) – special night held at Godalming Naval Club by Hannah’s best friend
£7.50 a ticket All money to the appeal Includes – food, disco, raffles, auction and more [12]
——————————————————————
**
5/19 (Saturday) – Health, Beauty & Fitness Fair at Clock Barn Hall, Godalming Free admission, free talks on health, fitness and nutrition Includes – mini treatments, fitness drop in classes, taster sessions, new health products Raffle & bucket collection to raise money for Team Hannah [12]
——————————————————————
Your generosity was astounding and Hannah surpassed her target much earlier than she could have dreamed [12]

Hannah’s Annectdote

A film about Hannah’s journey to The Burzynski Clinic

film we made called Hannah’s Anecdote [3]

made to share with world Hannah’s journey to beat cancer and live normal life [3]

you can see Team Hannah blog we started October last year as well more information about Dr. Burzynski and treatment for cancer [3]

totally aware of controversy surrounding Dr. Burzynski but have seen with our own eyes he saved Hannah’s life [3]

share this with everyone you can, so together we can raise awareness of Hannah’s success and of Dr. Burzynski [3]

cookbook by Hannah available at teamhannah.com [1]

Any help you give will be most appreciated and will keep you updated with Hannah’s journey [3]
http://www.teamhannah.com/

Thank you for donating, raising awareness and simply helping to give Hannah hope [12]
——————————————————————
Hannah’s Annectdote: (40:42)
——————————————————————
A film about Hannah’s journey to The Burzynski Clinic
——————————————————————
Look

You’ve got a spirit level in the cam, in the front of the camera for a reason

I know

Ok
——————————————————————
Hannah’s Anectdote
——————————————————————
I’m Hanna Bradley and I’m 27 years old
I have
Well, I found out I had a brain tumor in February 2011
The way I found out is, I had a seizure in, during the middle of the night
I don’t remember anything, but my partner Pete tells me that I did
Rushed to hospital and about week later I was diagnosed with a, an aggressive brain tumor
And then I had to have an operation to remove the brain tumor and I went back for the results, which weren’t that good and I had to go for a radiotherapy

And I spoke to a friend of mine, an incredible man, he’s a doctor, he, he’s retired, he said, why don’t you just look and find people in the world who still have this condition and still alive
So, that’s what I did
And I found some people, and it, and they all led to this guy Burzynski, but you mention Burzynski to uh people who work in the world of cancer, and it’s just like, they, you know, the barriers come up immediately
Chemotherapy, radiotherapy, there’s no question about the fact that these things uh, are reflective and they are, save people’s lives, but that’s not what Hannah wants to do
(If I could go there, and take myself off there, I could)
Burzynski’s work is, some people wouldn’t say it is gene-targeted therapy
Basically it’s peptides
Peptides uh form amino acids in the body, and he’s found from his research that uh, certain people do not have these types of peptides, and uh especially people with certain types of cancer
What have you got to lose, and what’s the worst thing that can happen, if it doesn’t work ?
What’s the best thing that can happens ?
It saves her life
(laughter)
(I’ll give the ass a smack)
——————————————————————
video blog 13th of November 2011 (2:00)
——————————————————————
(Come sit down)
Good morning
Good morning
Good Morning

Why this week is such a big week is we go to see Hannah’s uh GP tomorrow, and we really need him on side with the treatment that Hannah’s going to have, and, and that could pose a bit of a challenge, because this treatment with Dr. Burzynski is not peer-reviewed, and what that means is that, with the NICE guidelines in this country, people are
very unlike to promote a uh treatment that isn’t peer-reviewed in the way that they would want it to be, but, we’re hoping that he will help and support is when we come back

Yeah

We will also go and see the oncologist this

Yes

which is gonna be a very interesting conversation because again, we want their support
It’s unlikely, very unlikely that they’ll give us the support that we need
because when Hannah comes back, she’s going to need MRI’s every month, and that’s just not gonna happen
We’re going to have to pay for that, but, we’ll let the pets do that of course
We’ll let you know next week, but this week is gone, but for now this is Team Hannah saying, Team Hannah, Team Hannah saying
Goodbye
Bye
Goodbye
That the wave that you do
(laugh)
I’m getting better at the wave
I don’t know about that, darling
——————————————————————
Royal Free Hospital
London – December 2011 (3:19)
——————————————————————
You know, maybe I’ve been led down a garden path if you like, going to work with Burzynski, because you speak to any oncologist; which we have, lots of (?) specialists in this field and they say:
“No don’t do it”
“The guy’s a charlatan”
“You’re wasting your time”
“You’re wasting your money”
“It’s not going to work”
“There’s no clinical research”
But I feel in my heart that we’ve gotta do this
Not just because, you know, what is there left to do, but I actually think it’s going to work
Is it going to be a placebo effect, or is it actually going to be that what this guy does works ?
I’ve spoken to people who he, who he’s treated uh and they all can’t speak highly enough of him and of the clinic that we’re going to
So I’m going to film as much as I can of her journey, and she’s happy for me to film
And the clinic in Houston are happy for me to film whatever I want
So I’m going to
——————————————————————
video blog 10th of December 2011 (4:10)
——————————————————————
I don’t know how many blog videos we’ve done but we’ve done quite, quite a few and I think it’s amazing that we’ve got to this point
It doesn’t seem very long ago that we were sitting and talking about doing this, and within a few months we’ve raised all this money and we’re, my bags are packed
Your bags is almost packed

My bag is packed

And your bag is packed and we’re leaving tomorrow morning
I know there’s been a little bit of controversy

Yeah

about what we’re doing, but please, whatever you hear about it, we have done a lot of research into this
and we feel very confident about what we’re doing, were going to get very well looked after and we’ll be able to share all of that with you
So, next time you see us we’re going to be in

Houston

Texas
——————————————————————
Day One (4:52)
——————————————————————
Good morning Hannah

Good morning

And where are we ?

At the airport

So, you ready for this ?

I’m ready

Ready to start this next phase of our journey ?

Yeah

Ok

I’m really ready
I hurt, like I’ve got a massive headache

Yeah
That was pretty traumatic for you, wasn’t it ?

Yep
Pressure
Um, and getting through customs and everything like that
I felt like I was going to faint
Um, yeah, apart from that all good

Yeah ?

Yeah

And how’s it feel to be in Texas

It doesn’t feel any different at the moment

(laughing) (?) that’s a (?) Avis rent-a-car thing-a-ma-bob
——————————————————————
Day Two (5:37)
——————————————————————
(?) there you go
Right-o

Hello everyone

Hi

I’ve

Ok

I’ve got less hair than Pete

Are you looking in the camera or are you looking in here ?

I’m looking in here

Uh what are you looking there ?

(laughing)

Hello
Everyone
Today is going to be a very interesting day
We’re going to film, all that we can
We’re not going to meet Dr. Burzynski
We won’t be meeting him until the 19th, but we feel more than happy to be meeting his fellow doctors
What’d you reckon ?

You’re going to kill me in the car before you, we get there ?

Why

Because you’re trying to film and drive, and you don’t know where we’re going

Well spotted
Look
There it is
We’ve finally made it

So how’d you feel, that we’re finally here ?

Yeah
I feel good

Do you ?

Yeah

You ready ?

What are your expectations ?

I have no idea

Well, lets go and find out

Don’t have any expectations although I sure don’t want to be disappointed
——————————————————————
[Temperature]
(Close your lips please)
——————————————————————
[Eyesight]
(Ok
How about this one ?)

D

(Ok. We’ll have to go )

(laughing)

(I’m sorry)

Should I actually be able to ?

(#5)

Ok
P E C F D

(Ok. Good)
——————————————————————
So, was that bad ?

Uh, can’t see any of them

Oh, ok
——————————————————————
Meeting with Dr. Yi and Dr. Greg Burzynski (7:14)
——————————————————————
(?) we’ve reviewed your scans, your MRI, and we’re very aware of your case

Yes

We have permission to start you on the antineoplastons

Mhmm

which as you know are in the final stages of drug approval

Yeah

Dr. Yi is the oncologist on this case

Yeah

Likewise Dr. Rowkowski will be involved
Likewise I’ve an I’ll, I’ll be on the case

Ok. Great

And my father as you know is aware of what we’re doing here

Yeah

So as early as Wednesday we’ll be starting treatment

Mhmm

Tomorrow we can put in the catheter, and this is an external
——————————————————————
Day Three (7:44)
——————————————————————
What else is happening today ?
Look

Don’t want to think about it right now
Gonna have some sugar syrup put into me

(?) PET scan

Yeah
Which they inject sugar
I’d rather eat some

Yeah
Inject sugar and then you’re also having a, this Hickman line fitted

Yeah

Hopefully they’re gonna let me put on a white coat and come and be by your side

You can’t put on a white coat
You’re not a doctor

Well hopefully they’ll let me film

Well I don’t care about filming
I just care about you being there
——————————————————————
Hannah’s MRI scan review (8:15)
——————————————————————
So this is the one that was done in December, right ?

Yeah
This is the one that was done in December, and it has increased

‘Cause if I look at the, it’s more intense

Yeah

There’s more weight

Yeah

upon the image
Ok

Seen change in a month, right ?

Yeah
It’s in a month
That’s why

Less than a month

Yeah
That’s why kind of it’s a little scary
’cause it has
I mean it looks like it’s more prominent now

Yeah
——————————————————————
(8:46)
——————————————————————
after (?) this MRI scan, and you can see that the tumor is enhancing
She doesn’t know that
How will I tell her ?
Probably not, but she’s probably going to ask, and if the tumor grows like it’s, then you just saw in the scan, then how long does Hannah have left
——————————————————————
(9:06)
——————————————————————
Yeah
That would mean very

That’s pretty good
Ok
That’s good
That’s good enough
So any memory problems ?
Any speaking proc, speaking problems

No
No, not really

Ok

Spelling
Spelling, yes

Ever since surgery

So, what kind of problem ?
Like when you spell you miss letters ?

Yeah
Her spelling

Why, yeah
It’s just I’m jumbled

Ok

Yeah
——————————————————————
(9:28)
——————————————————————
Right
So uh were just getting ready now for Hannah to go in and have her PET scan and uh catheter Hickman line fitted and she’s just filling in the form
I’m not even going to ask her how she’s feeling or anything like that ’cause she’s feeling a little emotional
——————————————————————
(9:48)
——————————————————————
(?)

(laughing) You’ve just taken some , some Valium as well, have you ?

Not helping

This is like your biggest con, fear, isn’t it ?
I just show everyone what you’ve just done to my hand as well
——————————————————————
(10:04)
——————————————————————
What I’m doing is I’m creating a little tunnel under the skin
So I have to use just a little bit of pressure
So if I hurt you, you tell me
Ok ?

How are you feeling ?

Shhh

(laugh)
Well, you’ve done so well darling

I’m feeling really cold

Hungry ?

Yep

Alright
——————————————————————
(10:30)
——————————————————————
You look like you’re some sort of Holy Woman
People are going to come in here and bow to you
Did, did, did you feel that when it was going in and stuff ?

Not really

Little bit
It’s a little bit painful now ?

Yeah
It’s quite really painful now
Yeah

Well, it’s a massive tic, of something we have to get done

Yeah, I know
——————————————————————
Day Four (10:52)
——————————————————————
I’m feeling wrecked, absolutely wrecked

(laugh)
Well you had, bit of Valium yesterday

Yeah

And you had as much um local anesthetic

Yep

as he could give you he said, without knocking you out,

Yeah

but you were very, very brave yesterday, do you not think ?

I don’t think so

Why not ?

I wasn’t brave about the (canada ?) they put in here
——————————————————————
(11:23)
——————————————————————
Yes

What’d you think of
What, now what did you think of Judith Curran ?
Talk to

Oh, she’s great

( Skype on at the same time)

She’s like a mother

Yeah

Yeah
Is she ?

Yeah

(Yeah that’s fine. Whatever)

Yeah, she really does love you

( I’ve got something)

More than most

(?) all mom’s girlfriends

Mum uh Hannah just, I said, I just asked what she thought of you and she said she thought you’re like a mother

(Pete’s Mum)

Ohhh

I really do need you here

Oh dear
Well you have to have a partner mother at the moment

Yeah

But you need cuddles you mean ?

Yeah

Ohhh lots of cuddles
Oh no, no, no don’t

I asked
I’ll go

I need something dressed there

She needs help getting dressed
——————————————————————
(12:16)
——————————————————————
It’s, it’s, you know, it’s basically it’s uh, it’s a little roadway right into your bloodstream, so yeah, it has to stay very clean, and our thing is that we have to teach you

Yeah

how to do this

Yeah
——————————————————————
(12:32)
——————————————————————
You get 6 doses of antineoplaston a day,

Mhmm

they’re 4 hours apart
So, yeah, it’s almost 24 hours continuously

Mhmm
——————————————————————
(12:41)
——————————————————————
These are your bags

Ok. Thank you

and I’m going to wait until Dr. Barbera comes and talks to you about the pain medicine

Yeah

Then we will go ahead and hook up

Yes

because she did get the chest x-ray and everything’s a go
——————————————————————
(12:51)
——————————————————————
And everything goes in with a push and a twist

Ok
Quite simple

Alright

Yep

So obviously we’re gonna, when the fluid, we need to open up the clamp

Mhmm

And I always double, triple-check, make sure all the clamps are open

Yep
——————————————————————
(13:10)
——————————————————————
I’ve been on the treatment, I don’t know
It, it’s about
I don’t know
Half day ?

How are you feeling ?

It doesn’t hurt

Yeah
And this is what you’ve got to carry around with you

Yep

Now it’s like

It’s (?) my new bike

a baby
Something you have to have with you all of the time, and me with you all of the time

Oh (laugh) Oh god
I can cope with that

Ever since this all happened it seems like it’s just been one thing after another

Yeah

of obstacles

Yep

But we’ve got this far
Who woulda believed that we’d raise the money to get out here

Mhmm

which we have done, and now we’ve started on the treatment and I am pretty impressed with them there I must admit

Yeah
They’re really nice
——————————————————————
Day Five (13:52)
——————————————————————
Yeah
This is day, it’s day 4 yeah ?
Day 2 on the job
Day 5
Day 2 on the treatment
Mmmm I need a bit of a shave
um and um yep

You need a bit of a shave
So do I

Yeah, yeah, yeah, yeah, yeah
——————————————————————
(14:08)
——————————————————————
Hi
So, can I get ya

You need a pen ?

Uh, yes please
So pull this back ?

Pull it back to undo the lock
Ok, pump is off, so your next step is to disconnect it
So push in and twist, clockwise
——————————————————————
(14:26)
——————————————————————
How’s your new friend ?

Yeah, she’s good

Yeah ?

Mmm

What have we done today ?

We’ve learnt more lessons

I’ve learnt more lessons about changing the, changing the pump
How did I do ?

Honey you did well

You think so ?

considering

Considering what ? (laughing) How challenged I am

No, considering how hard it actually is
That you did well
——————————————————————
Day Ten (14:54) Meeting with Dr. Yi and Dr. Stanislaw Burzynski and
——————————————————————
Yeah, I think so far where we are we have been very impressed with all we’ve seen

Thank you very much
It looks like (?) we should not (?)

a pretty traumatic day because uh we met with Dr. Burzynskibut he didn’t give us the sort of news that we wanted uh because he’s concerned that the treatment may be enhancing uh and he wants us to stay here until at least um Hannah’s had one month on the treatment and to do MRI and see what’s going on
We can stay here
That’s the most important thing
Just imagine if we had to go home
You know ?
I know you’re tired of all this, you know, and its hard work, and it’s, you know ?
——————————————————————
Day Twelve (15:46)
——————————————————————
So the last time we kind of filmed was when we were with Dr. Burzynski and him saying do we want to stay and that

Yep

And how, how do you feel about that now ?

Yeah, i’ve got my head ’round it

Do you have faith in him and ?

Yeah, again I know that I’m in the best hands
——————————————————————
Pete’s colleague Dr. Hilary Jones appears on ‘Daybreak’ morning TV show in the UK (16:04)
——————————————————————
Are there question marks for you with regards to going over there to this particular clinic ?

I think what we have to bare in mind is that uh the treatment that, that Dr. Burzynski is offering is, is very uh experimental
It’s pioneering research, and pioneers in medicine tend to get a rough ride to begin with, and uh he hasn’t uh uh published the numbers of people in trials that convince the established authorities that his treatment uh works
It’s very interesting treatment
We’ve known about these peptides which can switch uh tumor genes on or off, and this is a different approach to these kind of tumors, that’s uh over and above oncology, chemotherapy, radiotherapy
Um, his results um, if you look at them um, sometimes appear extraordinary in some cases um but of course not in all cases
So it’s very difficult to evaluate, how effective it is
I I researched it pretty carefully myself because I have a friend there at the moment with his partner and the reports I’m getting back are they’re getting excellent treatment, excellent support, very impressed
This is somebody who, who knows a lot about medicine
Very impressed with what’s going on there
Um, we need to keep an open mind

Yes

Um it’s unfortunate it costs so much money but pioneering treatment does, and I really hope, that if you go that route that it works out for you
I really hope

Thank you

Indeed
——————————————————————
(17:20)
——————————————————————
So, that was uh, I didn’t know uh he was doing that, and actually the weird thing was that the day before I had actually contacted him just to say that we were doing really well

Yeah

But poor old Hilary was so caught up in that yesterday
On Twitter, I mean it was just nonstop
People just saying
Burzynski’s a fraud”
Um, but we certainly don’t feel that he’s a fraud, do we ?

No

No
I get the impression that he’s 100% genuine
——————————————————————
12/25/2011 – Christmas Day (17:50)
——————————————————————
Hello there

Hi. How are you today ?

We’re doing ok

Documenting that ?

Um yeah I’m documenting

(laughing)

everything

That’s against the rules

Really ? Oh dear

(? again)

Collecting evidence ?

Yeah, I am

We’re gonna sue
We’re gonna, we’re gonna sue a few people

(laughing)

That’s what you love to do in America, right ?
——————————————————————
(18:10)
——————————————————————
So same symptoms ?

Yeah

The flu symptoms

Mhmm

Yeah. Ok. How’s your breathing ?

The same

That was, really bad yesterday, wasn’t it ?

Yeah

Ok. Um, any headache ?

Yep

Ok. And you said you had, are they tremors or are they like shakes, like chills ?

Yeah, chills

Chills, ok

But, you know, like I couldn’t stop

Ok.

myself

It was just

Yeah

Ok. So it was un, uncontrollable ?

Yeah

Ok
——————————————————————
(18:41)
——————————————————————
This is how we spent Christmas Day, in the Burzynski Clinic

With the lovely Monica

Of course

And

How (?) would you have it any other way

And the Christmas songs

Hey (mouthing words to song)
——————————————————————
(19:04)
——————————————————————
We went to the clinic this morning, and she was shivering all night, fever
So she’s off the antineoplastons for the day, and she’s just basically in bed now, just absolutely exhausted, and now she’s got a little bit of swelling on the back of her head, which obviously is a ca, cause for concern when you’ve got a uh, a brain tumor
——————————————————————
Day Eighteen (19:04)
——————————————————————
Hannah was back on treatment yesterday, and last night her temperature went up to 102
So I phoned uh the clinic, and they said take her off the medication, the anti, antineoplastons
So I took her off
Her temperature came down
Then it went up again, and then we went back to the hospital today, back to the clinic, and they’re giving her a much smaller dose um and she’s on much smaller dose and she’s just come back, and she’s just exhausted

And she, I can see she’s just so close to breaking, which is cracking completely
(Christmas tree)
——————————————————————
(20:07)
——————————————————————
um and I’m just, got to the point where I can’t, I’m just, don’t know what to do
——————————————————————
Day Twenty (20:22)
——————————————————————
Well the last week has been very up and down
Um I have come off the dose
Gone back on it
Come

Come off it

back on
Yeah, and then come back off it again um, for several reasons: Fever, um shaking, chills, fever, and bacterial infection, um viral infection, every infection, um and then ended up with me having to go to E.R., the Emergency Room

Well at that point I was really fearing the worst

Mhmm

Because you’d a scan when we got out of here, right ?

Mhmm

and the scan definitely showed some tumor growth

Mhmm

um and I was thinking, what 2 and 1/2 weeks later from that

Yeah

That we were going back in the hospital

Mhmm

Because the tumor had gotten bigger

Yep

What has this whole experience like for you at the moment

Oh it’s just surreal
I just, I can’t explain it
It’s just surreal, to me

What, like its not happening to you ?

Yeah

You did actually said to me yesterday in the hospital, you said:
“I’m at my wits end”
“I don’t feel I can take anymore”

Yep

And what about today ? (laugh)

Well, I reckon I’ve been, I’ve just realized I’ve got to get on with it again
——————————————————————
Day Twenty-Two (21:53)
——————————————————————
So it’s, January the 1st, 2012, and we haven’t really got the,
We haven’t got off to a great start, have we ?

No

Why ?

Because I’ve had a fever

Uh you, when did you start, feeling feverish ?
In the middle of the night ?

Yeah. Yeah

And your temperature went up to 102

Yeah

What Dr. Burzynski thinks you, why you’re having a fever
you’ve either still got some flu-like symptoms or it could be the, the tumor actually breaking down

Yeah

which hopefully, that’s what it is, right ?

Yeah
——————————————————————
(22:34)
——————————————————————
Yeah, feel drunky

You know you haven’t had a drink for a year so

I haven’t had a drink for a year

(laughing)

(But I think this)

Yeah

We’ve also got some problems with our pump this morning

(So what do you think ?)

Yeah, it’s not closing again

(And then you can also see the)

Uh, there it goes

(?)

But

It ain’t gonna stay that way

I don’t think it’s going to stay closed

Huh, what’d you think about that ?

(unintelligible)
(? get it fixed)

(and this looks like it’s ?)

(? fix ?)
Love you
——————————————————————
(23:09)
——————————————————————
The last time we saw you, you felt like you were completely drunk

Yeah

And you had double vision

Mhmm

So,then what, ended up, happening ?

Well, one of the nurses, kindly, pointed out
She said: “What have you taken ?”
That is where we recognized it was an anti-seizure drug, that I hadn’t taken before

And how do you feel now ?

I feel ok
I feel a but shaky

Yeah

I just have to (?) something to eat
Um, I’m just so tired
——————————————————————
(23:50)
——————————————————————
Hi, I’m Pete Cohen
Uh you might recognize me

Oh god

from morning television in the

Yeah

U.K.

Nobody recognizes you anymore
——————————————————————
(23:58)
——————————————————————
You should keep your fingers above the little

Ok

guard thing, yeah, and try to hold this

I’ve done it

as straight as you can

Ok. I’ve done it there Gary

and put some support

Yeah

on it

In there

and then you twist them down

Easier said than done (?)

I know

You can give it much more of a whack and you can u, use the other end as well

Ok

No, like this

(laughing)

Got no chance

Use the other end
(?) better

Ok. Thank you

(laughing)

You’re welcome

There you go
There you go (?)
There you go
——————————————————————
Day Thirty-Eight (24:33)
——————————————————————
I’ve never had to take care of anyone, the way I’m kind of having to take care of Hannah, and its just constant, and I get stressed around her, which isn’t fair, you know
She’s now got another temperature
She’s got a throat infection
Her temperatures up, uh and uh if it goes up over 102, it’s 101.8
If it goes up over 102 she’s got to come off of the treatment again um, oh, just, just feels like non-stop, you know
Cooking, and changing the bags
I’ve been into this, the clinic 3 times today
Taking her blood
Taking her back, get supplies
Take her back there
——————————————————————
(25:24)
——————————————————————
I’ve got a fever
It was over 102 last night

Yep. And

I’ve got antibiotics

Which you’ve been on for how many days ?

3 days

And we’re off the treatment
So, all in all
But you feel bad because you just want to be on the treatment, and just keep coming off
It’s just
How does that make you feel ?

Just, I don’t know, angry
Disappointed
Pointless

What you mean like
The while things pointless

Yeah

because you can’t stand

I just hope one day we can look back at this and laugh

Yeah

and just think: “We beat that”
because you couldn’t be doing anymore than what you’re doing
You know ?
You really couldn’t
Should really get a few of your friends to come over

Yeah

’cause you must be a bit bored of me

(laughing). No

C’mon, I’ve been really annoying
How grumpy was I yesterday ?

(laughing)

on a scale of 1 to 10 ?

(laughing)

I don’t know

C’mon

6

Really ?

Yeah
——————————————————————
Day Forty-Two (26:54)
——————————————————————
It’s 6 o’clock in the morning, and Hannah is lying here
Her temperature went up to the highest I’ve ever seen a temperature, on the thermometer
Where is the thermometer ?
Up to 104
I’m gonna just, I’m just trying to cool her down
I just phoned the doctor on-call and she said take some ibuprofen which Hannah has, and the result is ?
It’s come down a bit
Where is it ?
There it is
102.5
Well you’d think it’d come down
My god you’re so hot
I can’t believe how hot that is, thats got
Unbelievable
——————————————————————
(27:50)
——————————————————————
Hannah
Show me what’s going on
This all came up
When did you notice this ?

Yesterday afternoon, but its got worse since then

Yeah, lift up a bit higher if you can
Just zoom in on that
Yep
So it’s just one thing after another at the moment, isn’t it ?
Aye ?

Yes

Open your hands a little bit

Yeah (?)

And obviously we’re off, treatment at the moment

Mhmm

And we’re just waiting for who ?

Dr. Popper

What do you think he’s going to have to say ?

Mmm I don’t know

Ok

Ok, bye
——————————————————————
Day Forty-Four (28:35)
——————————————————————
Who um gave it a name ?

I sent a picture of it to Dr. B and he came back and said I think that’s what it is, and I looked into it and could see that that’s exactly what it is

Well does it bother you or does it just ?

No, it does

Like

Yeah

And itch ?

In some cases

Oh I’m sorry

Especially under the dressing

(?) Hannah had a fever
104 on Friday night

104 ?

103.9 I should, if I’m being absolutely, precise
So I think it’s brought this out

I think you can, you can say 104
——————————————————————
(28:50)
——————————————————————
So, we’re now going to have the MRI that we were going to have on Wednesday
We’re going to have it today

Mhmm

so we can see what is going on

Mhmm
——————————————————————
(29:17)
——————————————————————
(?)

Why are you filming me ?

Why not ?

Please stop filming me now (laughing)

That didn’t work
I’m still filming you

(laughing)
——————————————————————
1/23/2012 MRI (29:29)
——————————————————————
This is one that was just done today ?

2012 Jan 23
Acq Tim: 12:13:09
955000
320 x 230

Today

2011 Dec 29
Acq Tim: 14:50:12
497500
256 x 192

Today
So the difference is that you can see there
How would you describe the differences between
and what you see here ?

Well 1st of all the size of the tumor is less, and um, if you see the actual, the solid enhancing part of the tumor
This is how it looks now

So from that you can see that it’s definitely, something definitely is going on
It’s changing

Yes

There’s no question about that

The size is less
The intensity of the enhancement is less

So wha, whe, whe, when you see something like this, wha, what does that show you ?

Well, certainly the, we see that the tumor’s most likely working, as the tumor is showing less enhancement, meaning less activity

Yeah

And the tumor’s by effect smaller

Yeah

So, ideally the next scan should be better
So we, we’re definitely going in the right direction

That’s, great

That’s for sure, and it’s brilliant that uh we’re going home on, on

On a high note

On a high note
Especially after our trials and tribulations
So

Certainly
——————————————————————
(30:47)
——————————————————————
Hannah’s tumor has started to shrink, and she doesn’t know
She doesn’t know that
So I’m going to go in the house
I think she’s still asleep, and give her the good news

(?)

Hannah

Can we go home ?
Can we go home ?

Guess what ?

We can go home ?

Yeah

Yea !

And guess what ?

Guess what

Your tumor started shrinking

Yea !

It shrunk by at least 10%

Let me just give you a kiss

Thank you

It’s ok
It’s ok
——————————————————————
(31:30)
——————————————————————
Hi Daddy

Hello, how are you ?

Yeah, I’m sorry for ringing so late

That’s alright

Um but I’m ringing with really, really good news

Good, that’s what I wanna hear

Go on you tell

No, you tell him

I don’t think I can

(Go on ?)

(? tell me ?)

Um

C’mon

my tumor

Yeah

has already shrunk by 10%

You’re f’n ‘ell man

F’

(?)

That is absolute, amazing

And considering I haven’t been on the treatment for

You’ve been on the dose, off the dose, and on it
F’n ‘ell
What
When you get started on the
F’n ‘ell man

(laughing)

I’m glad you phoned me

Yeah, you’re the 1st person I called, obviously
——————————————————————
(32:22)
——————————————————————
So what can you believe we’ve now been here for one month

Yes

And we’re going now
What are we going in to have done ?

Hopefully, be discharged

And are you pleased with the progress you’ve made ?

Yeah

It’s been up and down

Yeah it’s been up and down

(Trip, trip ?)

You look like a Hollywood star

(laughing)
Not many Hollywood stars have a backpack like this though

Yeah but it was also a week ago
I don’t know how long ago that was where you couldn’t even

What ?

What ?
In you go

In I go

Hi

We can’t stay away

(laugh)

We’re getting discharged now

Oh really ?

I think so

Well that’s wonderful

Yeah

Well yeah, oh we, we don’t wanna go
Right turn mate
Which floor ?
2nd floor

Oh, you’re still filming

Yeah, I just, you know, I mean, you know, why not ?
I haven’t filmed all of this
We’re going up

This was great when I was feeling really sick, ’cause it

Seems like we’ve spent a lifetime together, we used to go to the 4th floor

(laugh)

(Ok)

Hi

Ohhh

Hello

Hello

Hi

Hi

Hi everyone

Hello

Hello

Um Hannah and I are leaving on Friday
What’s going to be your overriding memory of us ?

No

What are we gonna do ?

Hey

Are you going to miss us ?

What are we gonna do ?

Of course

Peace and love

(Remind me, is Hannah ?)

Why don’t you stay

(?) who’s your favorite, because you remember we said we were gonna say

(laughing)

‘Cause, ’cause we can o, we can only take one of ’em home, and who’s it gonna be ?

(? the rash (?) dude)

(laughing)

Well you can only take one attribute from each person, what would it be ?

I’m going to take Ashley home

(laughing)

Really ? Why ?

Yes, I like that

Because she’s, because she has the same condition ?

Yep

(laughing)

Because she can look after

Very good

(laughing)

So Rick you were told I was a big shot

Yes, going to film everything so

(Who knows ?)

you have to watch out

So, c’mon, what, what point in your head did you think: “My god this guy’s an absolute idiot”

(laughing)
——————————————————————
Day Forty-Seven (34:55)
——————————————————————
This, this December 29
This is January 27
Here we have the tumor, visible previously
And we have now
Certainly, outside diameters have decreased

Mhmm

So to some extent, but also the, the intensity of the enhancement, has decreased

Mhmm

As you can see this was much brighter before, now is less
Which means that the tumor is decreasing and it’s uh losing its activity at the same time

Mhmm

Which is a good news

But, again, we are not at the remission
This is called Stable Disease
Stabilization

Mhmm

Probably next time we see this is shrinking more and this wide band is getting thinner, and thinner, and finally

Mhmm

it should disappear
So that’s what you should be looking for

Ok
——————————————————————
(35:43)
——————————————————————
There’s some hair on the camera

Well it’s not mine

It’s definitely not mine

Hmmm

Um

No
I’m gonna start

Ok

(laughing)

Go on then

Ok
So it’s June 2012, and we have been back for approximately 6 months from the, America, and generally it’s all going well

I’ve had about 3 scans since I have been back, and they’ve all looked fairly positive

I think they’ve looked more than positive but yeah, go on
Carry on

(laughing)

Um, yeah, so the tumor, well the enhancing part of the tumor is getting smaller

Basically there’s such a small little part left that I’m sure when you watch this you’ll be able to see some images so people can see your scans

December 7th 2011 scan

Yeah, mhmm

March 21st 2012 scan

and we know that if Hannah hadn’t had this treatment, with the type of tumor that she had

May 2nd 2012 scan

she might already be dead, or she probably wouldn’t be here

June 13th 2011 scan

Yeah

much longer

July 29 2012 scan

She is very much alive at this point in time

Yeah

And what’d you think about all this controversy, because the controversy around what we’re doing, and it’s just, just
I can’t believe it personally
I find it very, very hard the, the hatred and the skepticism, of, um, what Hannah’s doing
What, what, what’s that like for you ?

Well, as I, as I’ve always said along the way, you know, any of the skeptics, what would they do, if they were in my position ?
Would they want to die in 3 to 5 years or ?

Probably less than that

Uh (both)

And that’s a horrible thought

Um

Yeah, uh everyone has a, has a right to be sceptic and everyone has a right to their own opinion

Yeah, they do

Um, and, but the funny thing about people’s opinions is, opinions are often based on, what they’ve heard

Yeah

or what someone hasn’t done, whereas uh, we spent 7 weeks at the Burzynski Clinic uh

And we saw everything

We saw everything
We spent time with this man um, and I tell you from my, from, from, I think from both, I can maybe speak for you hey ?, but uh

(laughing)

he’s one of the most honest, kindest people

Yeah, he is

‘Cause I, I said to you, the other day, about making this film, and you said: “Even if I was going to die tomorrow, I would still want this to be made”

Yeah

You remember saying that ?

Yeah

What, what, why did you say that ?
Why ?

Because, it might give other people a shake up

Mhmm

Yeah

Yeah, because uh, yeah
Why did we make this ?
Well I made this because I thought it was a journey that was well worth documenting

(?)

and maybe could help other people, and maybe help people realize there are other options, apart from the conventional treatment for cancer, and to inspire people
I hope you’re inspired by Hannah’s story because she’s an amazing, she’s a, honestly she’s annoying sometimes

(laugh)

but not very often

So are you. Yep

She has such a desire to live, uh and to enjoy her life, and I think
I don’t know, if there’s anything else that we

Ok, that’s enough for now

Hannah’s most recent scan confirmed she has now had a complete response to the treatment
——————————————————————
(39:35)
——————————————————————
Special thanks to

Bacon, Lesley
Bradley, Jeremy and Irene
Cank, Elizabeth
Cohen, Judith and David
Gooden, Lindley
Jones, Dr. Hilary
Levitt, Chris and Gina
Martinez, Dr. Juan
Merola, Eric
Newman, Ofir
Norouzi, Minou
Ramsey, Anna
Rowkowski, Dr. Bob
White, Gemma

Hannah Bradley’s GP
The Eagle radio station
——————————————————————
(39:40)
——————————————————————
Dr. Stanislaw Burzynski
and all the staff at the Burzynski Clinic
——————————————————————
(39:48)
——————————————————————
camera
Pete Cohen

additional camera
Lindley Gooden

editor
Jamie Lowe
——————————————————————
(39:54)
——————————————————————
A film by
Jamie Lowe & Pete Cohen
——————————————————————
(40:00)
——————————————————————
This film is dedicated to all the people who donated their time and energy to raise funds to save Hannah’s life
——————————————————————
(40:08)
——————————————————————
To follow the progress of Hannah’s recovery and find out more about the treatment she received please visit:
http://www.teamhannah.com/blog


======================================
Extra clips from Hannah and Pete’s trip to Texas
======================================
Pete Cohen chats with Dr. Stanislaw Burzynski:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/
======================================
======================================
REFERENCES:
======================================
[1] – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies
——————————————————————
http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html
======================================
[2] –

——————————————————————
http://www.teamhannah.com/the-film/
======================================
[3] – Team Hannah: Hannah’s Annectdote:
——————————————————————
http://www.teamhannah.com/
======================================
[4] –

——————————————————————
http://www.teamhannah.com/blog/page/5/
======================================
[5] –

——————————————————————

======================================
[6] –

——————————————————————
http://www.teamhannah.com/blog/page/4/
======================================
[7] –

——————————————————————

======================================
[8] –

——————————————————————
http://www.teamhannah.com/blog/page/3/
======================================
[9] –

——————————————————————
http://www.teamhannah.com/blog/page/2/
======================================
[10] –

——————————————————————
http://www.teamhannah.com/blog/
======================================
[11] –

——————————————————————
http://m.huffpost.com/uk/entry/3012836
======================================
[12] – Last Updated (Friday, 10/5/2012 03:32)

——————————————————————
http://www.964eagle.co.uk/hopeforhannah/
======================================
[13] –

——————————————————————
http://scienceblogs.com/insolence/2013/10/22/four-misleading-cancer-testimonials-and-reverse-balance/
======================================
[14] –

——————————————————————

======================================
[15] – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
——————————————————————
http://m.gulfnews.com/i-ll-try-anything-to-beat-brain-cancer-1.981203
======================================
Team Hannah Blog (2:46)
4/1/2013 – Posted by Hannah
======================================
(laughing) Don’t
‘Cause you’ll put this bit in
Promise ?

Yeah

Ok

(laugh) Ok, so, it’s April the 1st and it’s 2 years on since I had my operation and but ? obviously is out

So, I just wanted to (laugh)

Start again
Start again
Start again
Start again

Ok
Ok

I don’t believe you

I have
Start today again

(laugh) I don’t believe you
It didn’t go “beep beep”

Because it’s on silent

(laugh) Do you think that I’m an idiot ?

No

(laugh)

Ok
3 2 1 go

Hi there um it’s (laugh) the, the 1st of April and it’s 2 years on since I had my operation and I’m pleased to tell you that I’m obviously still here, and um that’s thanks to you guys and thanks to me I suppose from, for fighting so hard for my life

And what, and what have you been up to then ?

I have been up to um just resting a lot and uh making up new recipes uh

Your next book

Yeah, for my next book and
Yeah, that’s pretty much it

And when are you thinking you might be able to come off the treatment ?

June
End of May
June

I have a scan in a couple of weeks and we’ll update you after that

And what will that be like, coming off the treatment ?

Oh, it’ll be amazing
Yeah, amazing

So you won’t be walking around with

No

this fellow here ?

No

Ok
Is there anything else you’d like to say ?

Um, just love to you all

Oh
The wave
——————————————————————
Team Hannah Blog (3:34)
3/2/2013 – Posted by Hannah
======================================
Hi
This is the Team Hannah blog and it is the 3rd of March and Peter is actually filming me today

He’s not there, where he normally is

Yeah
Exactly
So I’m on my own
Flying solo

Um I’d just like to say how well I’m doing and my last
Ohhh went a bit northern then
My last scan um was mid-February and it showed no enhancing tumor

So that’s really good

Um I’ve just got um a really cystic area in my head

So it looks like they’ve predicted June me me to be off the treatment
So, fingers crossed for June

What will that be like to, to come off the treatment ?

Um, yeah, it will be
The treatment is so uh, restricting I would say
Yeah, it would be good to come off

And what else have you been up to ?

I have been (holding up Team Hannah Cookbook) selling lots of copies,

Yeah

and, and,

the other book a little bit
I know that you mentioned in the last blog, but just
What, what’s the book about ?

Well it’s low-carb recipes and I’ve
Been on the radio
I did a radio
promoting it and um it’s great for anyone who wants to cut out sugar
to lose weight and decrease their, and what, decrease their

Risk

Yeah, risk of getting disease

Yeah, ’cause we saw a doctor in America, Dr. Rowkowski
and he, and one of the things he said to you was you really need to cut sugar out of your diet
to
sugar is what he said

Yeah

Um, and you’ve been getting a lot of people that
trying your recipes and taking photos

Yeah
picking up
on Facebook on Pete’s favorite page
to cook something from the book

put them up on the
page as well

And um where can people find out about your book

Um just slide over to, to Hannah Cookbook and you will find it there

And your blog as well, yeah ?

Yeah

So, I think we’re done

I just want to say there’s an airplane going overhead
Thank you to everyone whose supported us
it seems a lot of, a lot of film

And why are you laughing

Pajamas

pajamas

I didn’t quite
yep

What are those

(laughing)

This bench has seen a lot of action

Yeah, it has
Video action, that is

(laughing)

And we’re very thankful to everyone

Yeah
Thank you, yeah, again

Yeah

We try and do one after next scan

Big wave, please

Bye bye

Bye
======================================
Sapphire Sings For Team Hannah
1/3/2012 – Posted (3:00)

======================================
(Last) Christmas, I gave you my heart
The very next day, you gave it away
This year, to save me from tears
I’ll give it to someone special
Once bitten, and twice shy
I keep my distance, but you catch my eye
Tell me baby, do you recognize me ?
Well, it’s been a year, it does not surprise me
Happy Christmas, I wrapped it up and sent it
With a note saying, “I love you”, I meant it
Now I know, what a fool I’ve been
But if you kiss me now, I know you’d fool me again
Last Christmas, I gave you my heart
The very next day, you

——————————————————————
(1:04)
——————————————————————
Ok
Sapphire, all I have to say is
“Thank you, thank you, thank you
You have compiled a CD, um, in aid of Help for Hannah, and you have had quite a lot of sales so far, and you have got a beautiful voice, and I’m sure you’ll go very, very, very far, but “Thank you”, and this is just a little “Thank you” for you, but obviously other people are going to hear it
Thank you
Love you
Bye

Did you
Sorry
Did she also, sing this yesterday, uh, somewhere?

Yeah, she sung it at Aldershot uh Football Club

Again, so Aldershot was playing football against another team

Plymouth, yeah

Plymouth
And she sang it for everyone ?

Yeah

And they raised some money for you ?

Yep

Yes, so this has been a big “Thank you” from both of us (laughing)
Let’s, let’s play out a bit more of that song

Ok
‘Cause we love this song
It’s off

Uh yep, it’s my favorite Christmas song
It’s the only Christmas song
(gave it away)
we can hear when it’s not Christmas
This year, to save me from tears
I’ll give it to someone special
A crowded room, friends with tired eyes
I’m hiding from you, and your soul of ice
My god I thought you were someone to rely on
Me ? I guess I was a shoulder to cry on
A face on a lover with a fire in his heart
A man undercover but you tore me apart
Now I’ve found a real

Thank you so much
——————————————————————
An Update For You

10/21/2011 – Posted

A Message From Pete About Team Hannah (3:07)

A MESSAGE FROM PETE

Hi it’s Pete Cohen and I just wanted to share something with you

Uh in February this year my girlfriend was diagnosed with a, with a brain tumor and when this happened it really obviously rocked our world

You know, everything seemed to be ok

Everything was great in life

And then something happened, and everything changed

And I don’t know whether anything like that has ever happened to you

But these things happen don’t they

And when they happen they really test you

They really challenge you

They, it’s very easy

It made me question lots of things

It made me think to myself, well, you know, what, is life, really fair ?

You know, should this happen to such a young person ?

These things do happen

And it really puts us in a position where it questions what we have

What we have to deal with such difficult circumstances

And I’ve definitely found things in myself that I didn’t know wa was there, you know, resolve, compassion, determination just to, to keep going

And this is the thing human beings we all have this kind of, we all have something else don’t we

All, we all have something more than our stress, and our worry, and our anxiety

We have a our true nature I think can overcome so much, of what life throws at us

You know, obviously we can’t overcome, everything

But what I really wanted to share with you is something that I’ve been so taken aback with, and that’s the beautiful nature of human beings, because we’re trying to take my girlfriend over to America to be treated over there, and we’re having to raise a considerable sum of money, and we’ve actually had to ask people, for help

Now that’s something that’s a bit alien to me, is to ask people and say, you know, can you help me, can you help us

Maybe that’s an insecurity that I have

Bur we’ve asked for help and it’s been amazing to see people all over the world spread the world, donate some money

And I’ve been so touched by that

It’s so life affirming

It so, it gives us such great strength

Any my girlfriend and I have been
so touched by that

So what’s my point here ?

Recognize how important it is for all of us to support each other

Recognize how important it is to affirm each other

You know, that’s one of the most important human needs we all have;
affirmation, it’s the fact that, to take the time to recognize each other

Hello

How are you

I care for you

So, thank you so much for watching this, and if you want to help us out please just uh visit the web-site we’ve put together for Hannah

It’s just called Team Hannah . com, and on there you can see a little more about Hannah and what’s happened to her, and the treatment we’re looking for her to have, in America

So, I hope you all have a great day and please, take the time to be there for other people, to care for other people, because that’s what makes this world great

Thanks for watching

Bye, bye
======================================
v=p5tAeYsNOZQ?rel=0
======================================
——————————————————————
Hannah’s message [3]
——————————————————————
(3:02)
——————————————————————
Ok
So what’s your name ?

I’m Hannah Bradley, and I’m 27 years old, and I come from North Hampton

And what happened to you ?

I had a seizure in middle of the night and my partner tells me I was rushed to hospital

That was in February 2011

And from there I had lots and lots of tests, and they decided that I had a brain tumor, and they were going to operate, and they successfully operated on the 1st of April, 2011, and they, the biopsy went off to be um checked

I found out that I had a grade 3 tumor

I then, under, underwent a, I had a 6 week course of radiotherapy, and that left me with no hair, and can’t remember what else (laugh)
And um that I went under another MRI scan 6 weeks after radiotherapy and we, that again wasn’t particularly good news, and we found out that there was still remnants of the tumor, and the future for me is very uncertain

So what, what are you looking for ?
What are you looking to do ?

Um, I, sorry

What do you want Hannah ?
What is it you’re looking for ?

Um, mainly I, um, I can’t

You just want to live, right ?

Yeah

So what are you asking for ?
What, what, what do you need ?

I um, I need people to raise money, for, uh, my treatment
I’m looking to going to America because there are things that they can offer me here on the NHS or locally (?) is very, very limited, and there’s a doctor in Houston, and he’s able to help

So you want some help in raising some money, yeah ?

Yeah, it’s completely out of our reach to raise that much money, and it’s, I’d like help to raise the money
——————————————————————
9/17/2012
Monday, 17 September 2012 07:23 | Written by Administrator

Hannah Bradley

Hannah’s amazing story, fighting and winning over her Brain tumor (Anaplastic Astrocytoma) is available on her support site

Team Hannah

There are more videos by Pete and Hannah, documenting her fight and the Burzynski Clinic
======================================