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Tag Archives: investigate

Critiquing: Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues

Posted on November 21, 2013 by didymusjudasthomas
Reply

20131122-162057.jpg
GorskiGeek starts off his soapbox stump speech:
——————————————————————
“I was very pleased last Friday, very pleased indeed”
——————————————————————
Of course he was

After all, it was as if USA TODAY was quoting directly from “The Skeptics™” fave Fahrvergnügen pharyngula and GorskGeeks’s jacked July jabberwocky at “The Amazing Meeting” 2013 (TAM 2013 #TAM2013) Twitter Twaddle-fest

Given the normal subject matter of this blog, in which I face a seemingly unrelenting infiltration of pseudononsense pseudononscience and hackery into even the most hallowed halls of hacademic medicine, against which I seem to be fighting a mostly uphill battle, having an opportunity to see such an excellent non-deconstruction of science and medicine in a large bad mainstream news outlet like USA TODAY, GONE TOMORROW is rare and ungratifying

GorskGeek gambits:
——————————————————————
“As you might recall, USA TODAY reporter Liz Szabo capped off a months-long investigation of Dr. Stanislaw Burzynski and his Burzynski Clinic with an excellent (and surprisingly long and detailed) report, complete with sidebars explaining why cancer experts don’t think that Burzysnki’s anecdotes are compelling evidence that his treatment, antineoplastons, has significant anticancer activity and a human interest story about patients whom Burzynski took to the cleaners”
——————————————————————
My question ?

GorskGeek, how do you know it was a:

“months-long investigation” ?

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The article does NOT indicate HOW LONG the USA TODAY “investigation” took

From this, I can only conclude, as I did after 1st reading the article, that based on the comments of Dr. David H. Gorski “Orac”, that there must have been collusion between “The Skeptics™” and USA TODAY

Most of this, of course, is no news to my readers, as I’ve been writing about Dr. Burzynski on a fairly regular basis for over 8 months now
——————————————————————
GorskGeek goofs:
——————————————————————
“It’s just amazing to see it all boiled down into three articles and ten short videos in the way that Szabo and USA TODAY did, to be read by millions, instead of the thousands who read this blog“
——————————————————————
Thousands read his blog ?

Does he mean over the 2 year period he’s been writing about Burzynski ?

GorskGeek Inspector Gadgets:
——————————————————————
“Szabo also found out who the child was who died of hypernatremia due to antineoplastons in June 2012, a death that precipitated the partial clinical hold on Burzynski’s bogus clinical trials, about which both Liz Szabo and I have quoted Burzynski’s own lawyer, Richard Jaffe, from his memoir, first about Burzynski’s “wastebasket” trial, CAN-1“
——————————————————————
GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L

If GorskGeek actually knew how to do real “science-based medicine” research, and if Liz Szabo and Jerry Mosemak had really actually done a “months-long investigation”, maybe USA TODAY and “Orac” could have had enough time to have figured the above out, as well as the clinical trial Burzynski’s attorney, Rick Jaffe, was referring to, was the CAN-1, which even you did NOT display any knowledge of in the July
TAMmany Twaddle [3], and your 11/15/2013 article [4]
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Naturally, upon reading Liz Szabo’s “ story,” I wondered how long it would be before there would be a response from GorskGeek or his minions

Both responses contain the same sorts of tropes, misinformation, and pseudononscience that I’ve come to expect from GorskGeek [1-2+4]

USA TODAY is biased and in the pocket of “The Skeptics™”

It was a “Shite Muslim Militia” piece
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GorskGeek dreamsicles:
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“I’ve deconstructed these, and many more, of Merola’s nonsense over the last two years”

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“Odd how @BurzynskiMovie pretends I haven’t deconstructed his “evidence” in depth before”?

Really ?

GorskGeek is so much a monumental myopic Mythomaniac

GorskGeek all you did was “cherry-pick” what you wanted to blather about, and selectively ignored everything else
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What actually surprised me was the viscousness of the counterhackattack

For example, in counterhackattacking Eric Merola’s letter to Liz Szabo, GorskGeek tries unsuccessfully to claim that Merola actually hopes that her child will get cancer, so that Burzynski supporters can gloat about it and Szabo will have to apologize to her children for her “perfidy” (in GorskGeek’s eyes, at least):
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GorskGeek gesticulates:
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“He denies that he hopes Szabo’s children will develop brain cancer, but then gloats gleefully over the possibility that she would have to face them after having—again in his mind—”helped to destroy the only thing that could have helped” them”
——————————————————————
In the dictionary, under the definition of “spin bowel movement (SBM),” there should be a picture of “Dr.” (and I use that term very “loosely”) David Gorski

GorskGeek would have fit in holistically as the propagandist for Hitler, Lenin, Mussolini, Pol Pot, Stalin, etc.

Then, just when I thought GorskGeek couldn’t go any lower, he does, this time in his longer response on his blog
——————————————————————
“Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues”
——————————————————————
Obviously, to “Orac” asking GorskGeek to follow normal rules regulating medical ethics and human subject protections in critical trolls’ blog trials is exactly like murdering millions of people’s brain cells, carrying out horrible medical experimentation on common sense and sensibility, making untold numbers of Africans, slaves to his stupendousmess, and harassing, gratuitously, families of soldiers “killed” by his word salad battle

Didn’t anyone ever teach GorskGeek that you need to build up to that sort of climax ?

Of course, the big difference between Hitler’s propaganda chief Joseph Goebbels, unfortunately, is that compared to “Orac,” he had talent, and David GorskGeek does NOT

GorskGeek is a hack and is only funny by accident because he has no filters that tell him when he’s going way under the top

To him, Burzynski is an infidel

I do not share his belief, but, even worse, I have the temerity to criticize his god “Orac,” or, to mix metaphors shamelessly, to point out that GorskGeek has no clothes

Since I’ve dealt with so many of the tropes included in GorskGeek’s not-so-little rant, I hardly see the need to repeat myself

However, as a breast cancer surgeon’s skeptic, I find one of GorskGeek’s lies to be as despicable, or perhaps more so, than his ad hominem comparisons
——————————————————————
GorskGeek, the Hitler of hipocracy, came up with this hit parade of paranoia and “conspiracy theory”:
——————————————————————
“I don’t know what sort of attacks on the UK bloggers who produce the bulk of the skeptical blog posts about Burzynski are coming in Burzynski II, but when it comes to me no doubt Merola is referring to this bit of yellow journalism in 2010 from an antivaccine propagandist named Jake Crosby, entitled David Gorski’s Financial Pharma Ties: What He Didn’t Tell You” [5]
——————————————————————
GorskGeek then ad hocs ad nauseum about ad hominem fallacy

“In this fallacy, rather than addressing the actual evidence and science that demonstrate their favorite brand of woo to be nothing more than fairy dust, the idea is to preemptively attack and discredit the person“

“The ad hominem is not just insults or concluding that someone is ignorant because, well, they say ignorant things and make stupid arguments (in which case calling someone stupid or ignorant might just be drawing a valid, albeit impolitic, conclusion from observations of that person’s behavior), but rather arguing or insinuating that you shouldn’t accept someone’s arguments not because their arguments are weak but because they have this personal characteristic or that or belong to this group or that“ [6]
——————————————————————
GorskGeek, the huckster of hackery laments that “The Skeptics™” are subject to character assassination, NOT because of their “science-based medicine”, but, alas, for being biased, lying, cowards

So, he must justify that as to why he then ad hominems those who he harangues:
——————————————————————
“In Burzynski The Movie, Dr. Whitaker has his nose embedded so far up Dr. Burzynski’s rectum that Dr. Burzynski wouldn’t need a colonoscopy if Merola just strapped a light to Dr. Whitaker’s face“ [7]
——————————————————————

20131123-144212.jpg
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“In the meantime, I realized that seeing Josh Duhamel stick his proboscis firmly up Burzynski’s posterior was not enough to explain the disturbance that I was feeling“ [8]
——————————————————————

20131123-154326.jpg
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GorskiGeek seems to have an unhealthy infatuation with ASS

My suppositorsition is that GorskiGeek, the highfalutin’ He-Man of hypocrisy, does wax on, wax off, waxes phonetic about ASS, because he is the apex of ASSmuchness
——————————————————————
In essence, he denies the toxicity of water in terms I’ve never seen anyone try to downplay before:

Water… is toxic?

This was perhaps the most stunningly malicious use of emotion to manipulate the reader in any of the propaganda pieces against H2O in history
——————————————————————
GorskGeek claims:
——————————————————————
“Josia, as readers of Liz Szabo’s report will know, was the six year old boy with an inoperable brain tumor who died of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy“
——————————————————————
GorskGeek gassticulates:
——————————————————————
“As I pointed out last Friday and Szabo reported in her story, before his death Josia’s serum sodium was measured at 205 mEq/L, way above the normal range of 136-145 mEq/L and well into the lethal range”

“As I pointed out then, I’ve never seen a sodium level anywhere near that high“

“During my residency, the highest I recall ever seeing was maybe around 180 mEq/L”
——————————————————————
As I already pointed out previously in this article:

GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L

GorskGeek claims that Josia died of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy

GorskGeek does NOT provide ANY citation(s), reference(s), and / or link(s) in support of his claim, and does NOT provide a copy of the autopsy

GorskGeek’s brain cells must be “sleeping in excess”, hence the symptoms of lethargy progressing ignorance of adverse events which approach critical black hole levels

Of course, none of this is new information
——————————————————————
GorskGeek hacks:
——————————————————————
“I also note that one of Burzynski’s most famous patients, Hannah Bradley, who with her partner Pete Cohen proclaims herself cured of her brain cancer, thanks to Burzynski, suffered some pretty serious toxicities from antineoplastons herself, including high fevers to 103.9° F, shaking chills, and severe rashes“

“Pete even documented how badly Hannah reacted to antineoplastons in his YouTube documentary Hannah’s Anecdote”
——————————————————————
GorskGeek flummoxes in that he erred to elucidate that the “rash” which Hannah
experienced, even entailed epilepsy anti-seizure medication [4]

GorskGeek gambols the gabroni gambit by giving nothing but glib reasons for his genetically challenged gestation of Hannah’s vlogs after gears up for Great Britain

Yes, GorskGeek is gabless about Hannah’s progress in the G.B. as a germinating gerbil, as far as flu or fever, perhaps fearing his failure to feature any fact-checking facilitation a fanboy of Fanectdotes should fittingly fictionalize
——————————————————————
The rest of GorskGeek’s rant reads like a greatest hits compilation from cancer hacks

You get the picture

That’s the whack-n-hack counterhackfensive trying to shore up Liz Szabo’s sorry article
——————————————————————
GorskGeek blowshard and long about the FDA Form 483′s findings, but does NOT heed his massive failure to be persuaded that:

“In Burzynski’s defense, Jaffe notes that inspection reports represent preliminary findings“

“The FDA has not yet issued final conclusions”
——————————————————————
Who would doubt that if GorskGeek were to blog about Burzynski’s 1997 criminal trial, that he would NOT list each and every one of the 34 counts of mail fraud, 40 counts of violating Food and Drug Administration regulations, and the 1 contempt-of-court charge; all “allegations”, which netted the U.S. Gubment absolutely NOTHING ? [9]
——————————————————————
GorskGeek idolizes the Burzynski Research Institute (BRI) IRB, because of Burzynski’s scientific publications, which indicate:
——————————————————————
2003 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
3/2004 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
9/2004 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
2004 – Membership of Institutional Review Board (IRB) was in compliance with FDA guidelines [10]
——————————————————————
6/2005 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
GorskGeek then does a piss-poor “slight of hand job”, jerking the reader off about Pseudoprogression, pseudoresponse, so-called pseudoprogression, and “One phenomena, termed Pseudo-Progression (psPD)”

GorskGeek falls flat face first for failing to show this phenomenon has factually happened [11]

GorskiGeek, looks like back to the drawerin’ board for you !
======================================
REFERENCES:
======================================
[1] – 11/18/2013 – Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues:
——————————————————————
http://scienceblogs.com/insolence/2013/11/18/eric-merola-and-stanislaw-burzynski-respond-to-the-fda-findings-and-the-usa-today-story-hilarity-ensues/
======================================
[2] – 11/18/2013 – The Burzynski Empire strikes
——————————————————————
http://www.sciencebasedmedicine.org/the-burzynski-empire-strikes-back/
======================================
[3] – 11/11/2013 – “The Amazing Meeting” (I don’t think it means, what you think it says it means): 2 Intellectually and Ethically Challenged Individuals, Twaddle at TAM 2013:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/11/www-amazingmeeting-com-www-randi-org-lanyrd-com2013tam-forums-randi-orgforumdisplay-php/
======================================
[4] – 11/19/2013 – Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Hyperactivity versus Hypernatremia, and Hannah Bradley):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/19/httpscienceblogs-cominsolence20131115stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board-2/
======================================
[5] – 2/18/2013 – Dr. Stanislaw Burzynski’s cancer “success” stories:
——————————————————————
http://www.sciencebasedmedicine.org/stanislaw-burzynskis-cancer-success-stories/
======================================
[6] – 6/14/2010 – In which Dr. Gorski once again finds himself a target of the “pharma shill” gambit
——————————————————————
http://www.sciencebasedmedicine.org/in-which-i-am-once-again-in-the-crosshairs-of-age-of-autisms-pharma-shill-machine-gun/
======================================
[7] – 11/29/2011 – Burzynski The Movie: Is Stanislaw Burzynski a pioneering cancer researcher or a quack?:
——————————————————————
http://scienceblogs.com/insolence/2011/11/29/burzynski-the-movie-subtle-its-not/
======================================
[8] – 2/18/2013 – As Josh Duhamel shills for the Burzynski Clinic, Eric Merola prepares to carpet bomb the blogosphere with nonsense:
——————————————————————
http://scienceblogs.com/insolence/2013/02/18/as-josh-duhamel-shills-for-the-burzynski-clinic-eric-merola-prepares-to-carpet-bomb-the-blogosphere-with-nonsense/
======================================
[9] – 9/25/2013 – Critiquing: National Council Against Health Fraud, Inc. – NCAHF News: JURY NULLIFICATION THWARTS BURZYNSKI CONVICTION:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/09/25/critiquing-national-council-against-health-fraud-inc-ncahf-news-jury-nullification-thwarts-burzynski-conviction/
======================================
[10] – 7/2/2013 – Burzynski: Institutional Review Board (IRB):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/07/02/burzynski-institutional-review-board-irb/
======================================
[11] – 11/20/2013 – Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (swell inflammation phenomenon):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/20/httpscienceblogs-cominsolence20131115stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board-3/
======================================

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Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Josia Cotto)

Posted on November 20, 2013 by didymusjudasthomas
Reply

David H. Gorski, M.D., Ph.D., FACS “Check My Facts” Hack “Orac”, finally ends his 11/15/2013 diatribe of Dr. Burzynski by USA TODAY’s Liz Szabo, Michael Stravato, Jerry Mosemak, and Robert Hanashiro, with:
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“The concluding section of the story tells us why we need to try:”

“No one told Josia’s parents about any of this”

“Not Burzynski”

“Not the FDA”

“Jose and Niasia Cotto had no idea that their son’s death prompted an investigation by the FDA, until they were contacted by USA TODAY”

“The Cottos had long believed that Burzynski could have cured their son if only they had taken Josia to see him first, before giving him radiation and chemotherapy”

“They had even hoped to launch a non-profit, A Life for Josia Foundation, to help other children with cancer gain access to Burzynski’s treatment“

“Now, they don’t know what to think”
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So what good did Gorski do here, if any ?

1. He offers no opinion as to if he thinks Burzynski should have been responsible for advising Jose and Niasia Cotto that Josia Cotto’s death prompted an investigation by the FDA

2. He offers no opinion as to if he thinks the FDA should have been responsible for advising Jose and Niasia Cotto that Josia Cotto’s death prompted an investigation

3. He offers no opinion as to if he thinks Burzynski could have cured Jose and Niasia Cotto’s son, Josia Cotto’s if only they had been able to take Josia to Burzynski first

4. He offers no opinion as to what he thinks about the FDA requiring Josia Cotto to receive radiation and chemotherapy, and them failing Josia, before he was able to utilize antineoplaston therapy

Gorski might as well NOT even be here if all he’s going to do is repost the same thing USA TODAY published, yet “say” absolutely NOTHING

Personally, I think it’s has to do with what was said during the July TAM 2013 twaddle, when the female panelist made a comment about “people without BALLS”
——————————————————————
Since I have mine, here’s what I think:

1. If there was a moral or legal duty to advise Jose and Niasia Cotto that the passing of Josia prompted an investigation by the FDA, then it was the FDA’s responsibility

2. I think that if the FDA was NOT requiring patients like Josia Cotto to 1st be failed by conventional treatments like surgery, radiation, and / or chemotherapy, there is a chance that Burzynski’s antineoplaston therapy could be more effective because of:
======================================
What USA TODAY, Liz Szabo, Michael Stravato, Jerry Mosemak, and Robert Hanashiro DID NOT TELL YOU ABOUT:
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12/2002 Burzynski interview [3]
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INTRAVENOUS
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1. Treatment require strong commitment from patients as must be infused with Antineoplastons for many weeks or months ?
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2. Perhaps 15% of patients taking intravenous infusions of Antineoplastons
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3. Patients who have most advanced type of cancer will require heavy dosages
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4. When give large dosages intravenously, have to watch fluid balance…and electrolyte balance
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5. Intravenous infusion can deliver equivalent of 3,000 tablets a day
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ORAL – CAPSULES OR TABLETS
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1. Most patients taking oral formulations
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2. Capsules or tablets
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3. Limitation of how much medicine can take by mouth
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4. 50 or 60 tablets a day pretty much all you can take by mouth
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5. When give orally, see practically no side effects at all
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6. Patients may develop skin rash, which may last for day or two
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7. Don’t see any delayed toxicity once treatment stops
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8. Everything practically goes back to normal within day or two
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9. Doesn’t even come close to adverse reactions that experience with chemotherapy
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FDA requirements
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1. Most patients who come to us have received prior heavy radiation therapy, or chemotherapy
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2. Usually die from complications from these treatments
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3. Those who survive longest are patients who previously did not receive radiation therapy or chemotherapy
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4. Longest survivor in this category is now reaching 15 years from time of diagnosis; and she’s in perfect health
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12/10/1997 [4]
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1. In addition to original family of Antineoplaston compounds

(the “Parental Generation”)
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2. Development of 2nd generation of Antineoplastons

In cell culture experiments 2nd generation Antineoplastons developed have been shown to be at least

Thousand times more potent then
Parental Generation
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3. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to
Parental Generation

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12/2000 Egypt antineoplaston study [5]
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4 new piperidinedione A10 analogs synthesized and tested on human breast cancer cell line against prototype A10 and anti cancer drug tamoxifen and DNA binding capacity of compounds evaluated against A10
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“3B” and “3D” were several-fold more potent antiproliferative agents than A10 and tamoxifen and had significantly higher capacity to bind DNA than A10
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10/1/2001 Egypt antineoplaston study [5]
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Structural characterization of new antineoplaston (ANP) representatives
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Combination heat with pH modification had virtually no effect on obtained peaks, attesting to stability and purity of compounds
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One had superior affinity to DNA than
prototype ANP-A10

======================================
So, what do we know from this interview with Burzynski from over a decade ago, his 12/10/1997 Securities and Exchange Commission (SEC) filing and the antineoplaston research from Egypt ?
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1. Oral (capsule and tablets): PRACTICALLY NO SIDE EFFECTS at all
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2. Those who survive longest are patients who previously did NOT receive radiation therapy or chemotherapy
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3. 2nd generation of Antineoplastons have been shown to be at least a THOUSAND TIMES MORE POTENT then Parental Generation
——————————————————————
4. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to Parental Generation
——————————————————————
5. The research from Egypt shows promising results for binding to DNA
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I doubt Dr. Gorski will be blogging about the above, anytime soon, as it

DOES NOT FIT HIS NARRATIVE
======================================
2000 – Thomas Navarro [3]
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What happened to Donna and Jim Navarro when they chose Burzynski’s treatment over orthodox treatments ?
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4 year old Thomas Navarro diagnosed with medulloblastoma
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Operated on
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Tumor removed
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Scheduled for radiation therapy
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Parents knew he’d be damaged by radiation therapy
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Nobody his age survives this type of tumor anyway after radiation therapy
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Why they decided to go to Burzynski Clinic
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Could NOT treat him because FDA requires failure of radiation therapy for such patients
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Parents decided NOT to take any treatment
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Burzynski asked FDA several times to allow administration of Antineoplastons, because already had successful treatments for some other children without any prior radiation
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5/2001 – developed numerous tumors
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Burzynski suggested to parents they should go for at least chemotherapy
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Went for chemotherapy to one of best centers in the country, Beth Israel Hospital in New York
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Chemotherapy was successful, but he almost died from it
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Severly affected his bone marrow
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Phone call from Thomas’s father telling Burzynski doctors thinking they won’t do anything else for him and Thomas will die within a week because of severe suppression of bone marrow
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Burzynski encouraged father to do whatever possible because such patients may turn around
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He turned around
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About month or two later developed 15 tumors in brain and spinal cord
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When close to death, nothing available, FDA called and allowed Burzynski to treat Thomas
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Treated Thomas
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Survived 6 months
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Tumors had substantially decreased
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11/2001 – ultimately died from pneumonia
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Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the 15 tumors Thomas Navarro had in his brain and spinal cord, which had substantially decreased under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by
chemotherapy ?

Is this what they mean by:

“In reality, the tumor was just returning to its previous size” ?
======================================
Dustin Kunnari [3]
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At 2 ½ years old, Dustin Kunnari had brain surgery
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Surgery removed only 75% of tumor
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Dustin’s parents, Mariann and Jack, were told Dustin would only live 6 months
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Chemotherapy and radiation may extend life slightly, but at very high cost in quality of life with very serious side effects
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Mariann and Jack decided to look into alternatives
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Found out about Antineoplastons
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After only 6 weeks of intravenous treatment, MRI showed he was cancer free
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One year later another tumor appeared on MRI
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By this time Dr. Burzynski had developed more concentrated form of Antineoplastons
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After 5 months tumor was gone
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remained cancer free ever since
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Age 7 – taken off Antineoplastons
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To further complicate matters, oncologist kept threatening parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment
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This continued for a year, even after success with Antineoplastons
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Age 12 at time of 12/2002 interview
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Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the tumor David Kunnari had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by
surgery ?

Is this what they mean by:

“In reality, the tumor was just returning to its previous size” ?
======================================
Paul Leverett [3]
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5/1999 – diagnosed with glioblastoma multiforme grade 4 brain stem tumor
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Prognosis was would probably be dead before end of 1999
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Orthodox medicine gave him no hope of survival
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Given maximum amount of radiation was capable of receiving
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Slowed tumors growth slightly, but didn’t alter prospects for survival at all
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After research on Internet learned about Dr. Burzynski’s Antineoplastons
——————————————————————
9/1999 – began taking Antineoplastons intravenously, administered by wife Jennie
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After 6 weeks tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks
——————————————————————
12/2000 – PET scan confirmed complete remission
——————————————————————
Stayed on Antineoplastonsuntil 8/2001 to ensure tumor wouldn’t reoccur
——————————————————————
Just under 20% tumor necrosis remaining in brain stem, which is probably scar tissue
——————————————————————
Oncologist (at MD Anderson, Houston) initially wanted to show scan’s to his hospitals (MD Anderson) tumor review board
——————————————————————
for whaever reason, refused further contact and didn’t go ahead with it
——————————————————————
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the glioblastoma multiforme grade 4 brain stem tumor Paul Leverett had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by radiation ?

Is this what they mean by:

“In reality, the tumor was just returning to its previous size” ?
======================================
Crystin Schiff [3]
—————————————————————–
Ric and Paula Schiff about torture their daughter Crystin had to endure during chemotherapy/radiation treatment
—————————————————————–
Diagnosed with perhaps most malignant tumor known, rhabdoid tumor of the brain
—————————————————————–
Historically, there was no case of such a tumor ever having long response to chemotherapy or radiation therapy
—————————————————————–
Received extremely heavy doses of radiation therapy and chemotherapy, because nobody expected she would live longer than year or so
—————————————————————–
Was terribly damaged with this
—————————————————————–
Responded very well to Antineoplastons
—————————————————————–
Complete response
——————————————————————
Died from pneumonia
——————————————————————
Immune system was wiped out, so when she aspirated some food, she died from it
—————————————————————–
Autopsy revealed didn’t have any sign of malignancy
—————————————————————–
Particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s
brain tumor, Prados replied in the negative

But a few years before, he had sent you 14 letters documenting effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer

Is this true?

Yes, Jeff Keller had extremely malignant brain tumor

had high-grade glioma of the brain; failed radiation therapy and additional treatments

responded extremely well to our treatment

was one of patients whose case was presented to NCI

there was no doubt about his response

Dr. Prados knew about it

If he was dealing with hopeless tumor like Crystin Schiff, why didn’t he call us?

Do you know why Prados did not tell them about Keller’s success with your treatment?

It’s hard for me to tell

It happens that Dr. Prados and Dr. Friedman, who became boss of FDA, came from same medical school

they work closely together, and perhaps there is something to do with general action against us

It would be inconvenient for Dr. Prados to say that treatment works if FDA was trying to get rid of us and when his friend was Commissioner of FDA at that time

Perhaps that’s the connection….
—————————————————————–
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the rhabdoid tumor of the brain Crystin Schiff had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by chemo and radiation ?

Is this what they mean by:

“In reality, the tumor was just returning to its previous size” ?
======================================
REFERENCES:
======================================
[1] – 11/15/2013 – Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better):
——————————————————————
http://scienceblogs.com/insolence/2013/11/15/stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/
=====================================
[2] – 11/11/2013 – “The Amazing Meeting” (I don’t think it means, what you think it says it means): 2 Intellectually and Ethically Challenged Individuals, Twaddle at TAM 2013:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/11/www-amazingmeeting-com-www-randi-org-lanyrd-com2013tam-forums-randi-orgforumdisplay-php/
======================================
[3] – 12/2012 – Interview with Dr. Burzynski, M.D., Ph.D. Biochemistry (12/2002):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/12/httpwww-cancerinform-orgaburzinterview-html/
======================================
[4] – 8/29/2013 – Burzynski Securities and Exchange Commission (SEC) Links:
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https://stanislawrajmundburzynski.wordpress.com/2013/08/29/burzynski-securities-and-exchange-commission-sec-links/
======================================
[5] – 8/13/2013 – Does David H. “Orac” Gorski, M.D., Ph.D, really CARE about Breast Cancer patients?:
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https://stanislawrajmundburzynski.wordpress.com/2013/08/13/does-david-h-orac-gorski-m-d-ph-d-really-care-about-breast-cancer-patients/
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Posted in adverse effects, Antineoplastons (ANP), bias, biased, critique, critiques, critiqued, critiquing, FDA, United States Food and Drug Administration, Gorski ScienceBlogs.com/Insolence ScienceBasedMedicine, Stanislaw Rajmund Burzynski, The Skeptics, USA TODAY | Tagged "14 letters", "2nd generation Antineoplastons", "2nd generation of Antineoplastons have been shown to be at least a THOUSAND TIMES MORE POTENT then Parental Generation", "3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity", "3rd generation structurally altered antineoplaston", "50 or 60 tablets a day pretty much all you can take by mouth", "Alexander J. Walt Comprehensive Breast Center", "American College of Surgeons Committee on Cancer", "Ann Karmanos Cancer Center", "Ann Karmanos Cancer Institute", "antineoplaston research", "antineoplaston therapy", "Arthur Caplan professor and head of the division of bioethics at NYU Langone Medical Center", "Arthur Caplan", "Associate Professor of Surgery and Oncology at the Wayne State University School of Medicine, "Barbara Ann Karmanos Cancer Center / Institute", "Barbara Ann Karmanos Cancer Institute", "Beth Israel Hospital in New York", "bone marrow", "brain cancer", "brain cancers", "brain surgery", "Burzynski interview", "Burzynski Securities and Exchange Commission (SEC) Links", "Burzynski’s antineoplaston therapy", "cancer free", "Cancer Liaison Physician for the American College of Surgeons Committee on Cancer", "cell culture experiments", "chairman of oncology", "Chemotherapy and radiation", "Chemotherapy/Radiation treatment", "children without any prior radiation", "Children's Oncology Group", "conventional treatments", "Could NOT treat him because FDA requires failure of radiation therapy for such patients", "Critiquing: Doctor accused of selling false hope to families (USA TODAY NEWS, "Critiquing: Experts dismiss doctor’s cancer claims (USA TODAY NEWS, "Critiquing: Families run out of hope, "Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better)", "Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Josia Cotto)", "Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (swell inflammation phenomenon)", "Crystin Schiff", "D.H. Gorski", "damaged by radiation therapy", "David Kunnari", "developed 15 tumors in brain and spinal cord", "developed numerous tumors", "Development of 2nd generation of Antineoplastons", "DH Gorski", "DID NOT TELL YOU ABOUT", "DNA binding capacity", "Doctor accused of selling false hope to families", "Does David H. Orac Gorski, "DOES NOT FIT HIS NARRATIVE", "Doesn’t even come close to adverse reactions that experience with chemotherapy", "Don’t see any delayed toxicity once treatment stops", "Donna Navarro", "Dr. Adamson", "Dr. Buckner", "Dr. Burzynski", "Dr. Caplan", "Dr. David H. “Orac” Gorski", "Dr. David H. Gorski Orac”, "Dr. Friedman", "Dr. Gorski", "Dr. Prados", "Dustin Kunnari", "Egypt antineoplaston studies", "Egypt antineoplaston study", "evaluated against A10", "Everything practically goes back to normal within day or two", "exhibit markedly improved anticancer activity on human cancer cell lines resistant to Parental Generation", "Experts dismiss doctor’s cancer claims (USA TODAY NEWS, "Experts dismiss doctor’s cancer claims", "extremely heavy doses of radiation therapy", "Families run out of hope, "FDA requirements", "FINALLY, "glioblastoma multiforme grade 4 brain stem tumor", "glioblastoma multiforme grade IV brain stem tumor", "Glioblastoma’s normally double in size every 2 weeks", "head of neuro-oncology", "high grade", "human breast cancer cell line", "human cancer cell lines resistant to Parental Generation", "immune system", "In addition to original family of Antineoplaston compounds", "Institute for Science in Medicine", "Interview with Dr. Burzynski, "Intravenous infusion can deliver equivalent of 3, "intravenous treatment", "Jack Kunnari", "Jan Buckner professor and chairman of oncology at the Mayo Clinic in Minnesota", "Jan Buckner", "Jeff Keller", "Jennie Leverett", "Jerry Mosemak", "Jim Navarro", "Jose Cotto", "Josia Cotto", "July TAM 2013", "legal duty", "Limitation of how much medicine can take by mouth", "Longest survivor", "M.R.I.", "malignant brain tumor", "malignant tumor", "Mariann Kunnari", "maximum amount of radiation", "Mayo Clinic in Minnesota", "Mayo Clinic", "MD Anderson tumor review board", "MD Anderson", "Medical Director of the Alexander J. Walt Comprehensive Breast Center", "member of the faculty of the Graduate Program in Cancer Biology", "Michael Stravato", "Most patients taking oral formulations", "Most patients who come to us have received prior heavy radiation therapy, "N.C.I.", "National Geographic", "NCI-supported research network", "new piperidinedione A10 analogs", "Nobody his age survives this type of tumor anyway after radiation therapy", "non-profit", "NYU Langone Medical Center", "NYU Langone", "orthodox treatments", "Parental Generation", "Patients may develop skin rash, "Patients who have most advanced type of cancer will require heavy dosages", "Paul Leverett", "Paula Schiff", "Perhaps 15% of patients taking intravenous infusions of Antineoplastons", "PET scan confirmed complete remission", "Peter Adamson chair of the Children’s Oncology Group, "Peter Adamson pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia", "Peter Adamson", "phone call", "PRACTICALLY NO SIDE EFFECTS at all", "prototype A10", "prototype ANP-A10", "Pseudo-Progressions", "Pseudoprogression Pseudo-Progression (psPD) pseudoresponse", "quality of life", "radiation and/or chemotherapy", "radiation therapy", "receive radiation and chemotherapy", "rhabdoid tumor of the brain", "Ric Schiff", "Robert Hanashiro", "Scheduled for radiation therapy", "ScienceBasedMedicine . org", "Securities and Exchange Commission (SEC) filing", "severe suppression", "Severly affected his bone marrow", "spinal cord", "Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better) http://scienceblogs.com/insolen, "Structural characterization of new antineoplaston (ANP) representatives", "successful treatments", "superior affinity to DNA", "Surgery removed only 75% of tumor", "there was no case of such a tumor ever having long response to chemotherapy or radiation therapy", "Thomas Navarro", "Those who survive longest are patients who previously did not receive radiation therapy or chemotherapy", "Thousand times more potent then Parental Generation", "Treasurer for the Institute for Science in Medicine", "Treatment require strong commitment from patients as must be infused with Antineoplastons for many weeks or months", "tumor necrosis", "Tumor removed", "Tumors had substantially decreased", "turned around", "United States Food and Drug Administration", "University of California at San Francisco Medical Center (UCSF)", "University of Michigan" Gorski http://en.wikipedia.org/wiki/David_Gorski, "USA TODAY NEWS, "USA TODAY", "USA TODAY’s Liz Szabo, "usually die from complications from these treatments", "very high cost", "very serious side effects", "Wayne State University School of Medicine", "Wayne State University", "were several-fold more potent antiproliferative agents than A10", "When give large dosages intravenously, "When give orally, "wiped out", #FAILED, #FAILING, #sciencebasedmedicine, /http://www.usatoday.com/story/news/nation/2013/11/15/stanislaw-burzynski-cancer-controversy/2994561, 000 tablets a day", 15 tumors", 2%, 20%, 3B, 3D, @gorskon, @oracknows, @ScienceBasedMed, A Life for Josia Foundation, A10, about, above, absolutely, Academically, access, action, additional, administered, administration, adverse effects, advise, advises, advising, after, against, ahead, allow, allowed, alter, alternatives, an NCI-supported research network that conducts clinical trials in pediatric cancer", and Robert Hanashiro", another, ANP, anti cancer drug tamoxifen", antineoplaston, antineoplastons, anything, appeared, around, aspirated, attesting, autopsy, available, away, “brain stem”, “Check My Facts”, “Look, “Our only goal is to promote high standards of science in medicine”, “people without balls”, “Personally, “The Amazing Meeting (I don’t think it means, became, before giving him radiation and chemotherapy”, began, believe, believed, besides, bias, Biased, bind, binding to DNA", bioethics, blogging, boss, brain, Burzynski Clinic, called, Cancer, capable, capacity, CAPSULE, Capsules or tablets", case, category, caused, centers, chair, chairman, chance, Chemo, chemotherapies, CHEMOTHERAPY, chemotherapy/radiation", Chief of the Section of Breast Surgery", CHILDREN, Children’s Hospital of Philadelphia, Clinical, Clinical Trials, close, closely, combination, comment, commissioner, Complete Response, complicate, compound, compounds, concentrated, concluding, conduct, conducts, connection, contact, contacted, continued, country, court, cured, D.", D.H.", damaged, daughter, David Gorski, David H. Gorski, dead, dealing, death, decade, decided, despicable, Detroit, developed, DH", diagnosed, diagnoses, diagnosis, diatribe, die, died, dies, disappear, disappeared, division, DNA, doctors, documenting, doubt, Dr. Michael Prados, during, effect, effective, effectiveness, Egypt, else, encouraged, endure, ensure, ever, expected, extend, extremely, F.D.A., Facebook, FACS", father, FDA, Female, food, force, form, found, friend, further, gain, general, given, glioma, gone, GorskGeek, Gorski, grown, growth, HACK, happened, happens, have to watch fluid balance…and electrolyte balance", head, health, heat, higher, historically, hope, hoped, hopeless, hospitals, Houston, http//www.sciencebasedmedicine.org, http://cancerbiologyprogram.med.wayne.edu/, http://cancerbiologyprogram.med.wayne.edu/faculty/, http://cancerbiologyprogram.med.wayne.edu/faculty/gorski.php, http://karmanos.org/Physicians/Details.aspx?sid=1&physician=70, http://med.wayne.edu/, http://med.wayne.edu/surgery/, http://med.wayne.edu/surgery/faculty/DGorski.html, http://ncas.org/2013/02/mar-9-david-h-gorski-quackademic.html?m=1, http://prognosis.med.wayne.edu/article/dr-gorski-named-codirector-of-michigan-breast-oncology-quality-initiative, http://sciencebasedmedicine.org, http://sciencebasedmedicine.org/editorial-staff/, http://sciencebasedmedicine.org/editorial-staff/david-h-gorski-md-phd-managing-editor/, http://scienceblogs.com/, http://scienceblogs.com/Insolence, http://scienceblogs.com/insolence/2013/11/15/stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/, https://stanislawrajmundburzynski.wordpress.com/2013/08/29/burzynski-securities-and-exchange-commission-sec-links/, http://usatoday.com/, http://usatoday.com/story/, http://usatoday.com/story/news/, http://usatoday.com/story/news/nation/, http://usatoday.com/story/news/nation/2013/11/15/, http://usatoday.com/story/news/nation/2013/11/15/burzynski-cancer-science/, http://usatoday.com/story/news/nation/2013/11/15/burzynski-cancer-science/2994731/, http://usatoday.com/story/news/nation/2013/11/15/jeanine-graf-cancer-children/, http://usatoday.com/story/news/nation/2013/11/15/jeanine-graf-cancer-children/2994675/, http://usatoday.com/story/news/nation/2013/11/15/stanislaw-burzynski-cancer-controversy/, http://usatoday.com/story/news/nation/2013/11/15/stanislaw-burzynski-cancer-controversy/2994561/, http://whybiotech.com/?p=3808, http://wsusurgery.com/facultyc3/david-gorski/, http://wsusurgery.com/research-team-dr-gorski/, http://www.cancerbiologyprogram.med.wayne.edu/, http://www.cancerbiologyprogram.med.wayne.edu/faculty/, http://www.cancerbiologyprogram.med.wayne.edu/faculty/gorski.php, http://www.karmanos.org/Physicians/Details.aspx?sid=1&physician=70, http://www.med.wayne.edu/, http://www.med.wayne.edu/surgery/faculty/, http://www.med.wayne.edu/surgery/faculty/DGorski.html, http://www.ncas.org/2013/02/mar-9-david-h-gorski-quackademic.html?m=1, http://www.sciencebasedmedicine.org/editorial-staff/, http://www.sciencebasedmedicine.org/editorial-staff/david-h-gorski-md-phd-managing-editor/, http://www.sciencebasedmedicine.org/editorial-staff/david-h-gorski-md-phd-managing-editor/ “Our only goal is to promote high standards of science in medicine”, http://www.scienceblogs.com/, http://www.scienceblogs.com/Insolence, http://www.usatoday.com/, http://www.usatoday.com/story/, http://www.usatoday.com/story/news/, http://www.usatoday.com/story/news/nation/, http://www.usatoday.com/story/news/nation/2013/11/15/, http://www.usatoday.com/story/news/nation/2013/11/15/burzynski-cancer-science/, http://www.usatoday.com/story/news/nation/2013/11/15/burzynski-cancer-science/2994731/, http://www.usatoday.com/story/news/nation/2013/11/15/jeanine-graf-cancer-children/, http://www.usatoday.com/story/news/nation/2013/11/15/jeanine-graf-cancer-children/2994675/, http://www.usatoday.com/story/news/nation/2013/11/15/stanislaw-burzynski-cancer-controversy/, http://www.whybiotech.com/?p=3808, http://www.wsusurgery.com/facultyc3/david-gorski/, http://www.wsusurgery.com/research-team-dr-gorski/, https://mobile.twitter.com/, https://mobile.twitter.com/gorskon, https://mobile.twitter.com/oracknows, https://mobile.twitter.com/rjblaskiewicz, https://mobile.twitter.com/ScienceBasedMed, https://twitter.com/, https://twitter.com/gorskon, https://twitter.com/oracknows, https://twitter.com/ScienceBasedMed, https://www.twitter.com/gorskon, https://www.twitter.com/oracknows, https://www.twitter.com/ScienceBasedMed, idea, inconvenient, initially, Internet, interview, into, intravenous, intravenously, investigate, investigated, investigation, kept, knew, know, known, later, launch, learned, least, life, live, Liz Szabo, longer, M.D.", malignancy, matters, MD", medical, medicine, medulloblastoma, Michigan, modification, money after cancer treatments (USA TODAY NEWS, money after cancer treatments", moral, MRI, NatGeo, NATION, NCI, negative, network, networks, Niasia Cotto, Nobody, nothing, now, obtained, offers, oncologist, oncology, operated, opinion, or chemotherapy", Orac, Oracolyte, Oracolytes, ORAL, orthodox, panelist, parent, parents, Particularly, passing, patient, patients, peaks, pediatric, pediatrics, perfect, pH, Ph.D, Ph.D. Biochemistry (12/2002) https://stanislawrajmundburzynski.wordpress.com/2013/11/12/httpwww-cancerinform-orgaburzinterview-html/", pharmacology, PhD, pneumonia, possible", presented, proceeding, Professor", professors, promising, prompt, prompted, prompts, prospects, Pseudo-Progression (psPD)", Pseudoprogression, Pseudoprogressions, pseudoresponse, pseudoresponses, psPD, published, purity, RADIATION, radiotherapy, reaching, really CARE about Breast Cancer patients? https://stanislawrajmundburzynski.wordpress.com/2013/08/13/does-david-h-orac-gorski-m-d-ph-d-really-care-about-breast-cancer-patients/", Reason, receiving, refused, remained, remaining, reoccur, replied, repost, requiring, research, researched, researcher, responded, Response, responsibility, responsible, results", Revealed!, rhabdoid, rid, Scan, scar, school, scienceblogs, section, see practically no side effects at all", sent, several, show, showed, shown, sign, significantly, since, slightly, slowed, something, soon, stability, stayed, story, substantially, success, successful, suggested, support, supported, surgery, survival, survived, synthesized, tablet, tablets, take, taking, Tamoxifen, telling, terribly, tested, therapy, they don’t know what to think”, think, thinking, thinks, Thomas will die within a week", threatening, time, times, tissue, together, torture, treat, treated, treatment, treatments, treats, trials, tumor, tumors, turn, twaddle, Twaddle at TAM 2013 https://stanislawrajmundburzynski.wordpress.com/2013/11/11/www-amazingmeeting-com-www-randi-org-lanyrd-com2013tam-forums-randi-orgforumdisplay-php/", Twitter, USA TODAY", USA TODAY)", utilize, virtually, wanted, what you think it says it means): 2 Intellectually and Ethically Challenged Individuals, whatever, which may last for day or two", wife, work | Leave a reply

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