——————————————————————
My name is Doug Olson
I’m from Nebraska
Western Nebraska
And, uh, my mother has been diagnosed with pancreatic cancer
So, we, uh, middle of November, now this is first of, first of the year, eh, but in the middle of November her weight, she was losing weight, you know
She was suffering from indigestion and, and stomach pain, and so we started to have her checked, uh, for problems with her stomach for ulcers and that kind of thing, and all that proved negative, and they put her on an ulcer medicine anyway, thinking that maybe that would solve the inflammation in her stomach, and, uh, then we decided that we (?) better see another physician, and so we did that, and they then ultra sounded and then CAT scanned and found that she had tumors in her pancreas and in her liver
Uh, many years ago, back in, in the late 70’s, my parents had been involved with, with the cancer, uh, subject in regards to my father’s sister, and then his cousin
He started researching cancer and cancer treatments when his sister passed away, and then, uh, they got in contact with a doctor in Orden, Nebraska, that treated cancer patients with Laetrile, and he also did other, not so ordinary things
He did duculation therapy
Uh, a number of things that were really treatments for the disease rather than just treatments for the symptoms, and, uh, during that time, dad testified at the state legislature; they were trying to work against Dr. Miller’s license
This was the Dr. Miller in Orden, and, uh, so dad testified on, on his behalf
Uh, dad’s cousin was, uh, a patient of his, and she had a brain tumor the size of a lemon, and Dr. Miller put her on, uh, Laetrile treatments on a, on a special diet and some things, uh
——————————————————————
And this was what, in the 70’s ?
——————————————————————
This was back in the, probably the late 70’s, and, so, when they
Well they cured her
She had been sent home from the Mayo Clinic
Given 3 to 6 months to live, and, uh, they had, uh, burned with radiation and cobalt I believe is what they were treating her with at that time
Uh, they burned the, uh, nerves in her eyes so that her eyes crossed
Uh, they sent her home to die
They, uh
She was in a wheelchair
She was a young woman and she had a young child
Wasn’t able to hold that child, and so when my dad saw her, met her, she was in that condition
She was it, in the last 6 months of her life
Gave her a book about, uh, the subject, and told her about Dr. Miller, and her family
She then went to Dr. Miller to see if there was any help for her, and he, and he immediately put her on Laetrile treatment then and, and, uh, the interesting thing about it, looking at his doctor’s protocol; because I’ve come across his protocol, uh, Dr. Miller was also giving his patients antineoplastons, and
——————————————————————
Yeah, because we’ve got this thing here that you gave me
——————————————————————
Mhmm
——————————————————————
Just explain to me what this is
——————————————————————
This was his physician’s protocol, to list, uh, the different medicines a person should, should be on
——————————————————————
If they had cancer
——————————————————————
Uh, if they had cancer, and so, uh, this was given to another friend of ours, a friend of the family, uh, the folks that rented one of our properties, uh, the woman got a, a tumor as well, and this was given to her as part of the regimen she should follow, and she was given Laetrile injections, and then as soon as the injections, uh, were over they went then to pills as the size of the dosage went down, and when you got to pills you got to go home
So, uh, I remember speaking to her at the time
I had a
I was in high school, and I had a summer job with her husband, who was the county engineer
So, uh, we saw them all the time, and she told us, uh, the circumstances when, when she was allowed to come home
She was feeling strong
She said: “I haven’t felt better”
As a part of the diet and the things that, that they had her doing
She said she felt better than she had in many years
So she and her daughter, started a business in town in order to pay for the treatments, and, uh, she recovered
The tumor continued to shrink and shrink until it was nothing
Uh, what had been listed as inoperable, uh, after it shrunk halfway they decided, well maybe we can operate on you
Uh, we think it’s operable now
She said: “Why would I let you operate when what I’m doing is working” ?
But, uh, she is alive yet today and in her mid-80’s and, uh, so, uh, when it came to my mother’s illness, we contacted her, and asked her how she’s doing, and she’s sent this protocol she’s been keeping all these years
Uh, as a result of my parents knowing Dr. Miller back when he was alive
He is, he has passed away, uh, 7 maybe years ago, and, uh, many years ago when they were taking chelation therapy from him, he had given my mother, uh, a flyer on Dr. Burzynski, and, uh, said if anything ever happens to you after I’m gone, this is the man to contact, and so we’ve had that flyer in a file for many years at my parents house, and so when mom got sick she immediately began digging that out and found
——————————————————————
So your mom immediately started thinking, well I need to find that leaflet
That’s what we were told to do
——————————————————————
Yes
——————————————————————
And did, and did she go and speak to an oncologist ?
Did she say that she wanted to come here, or ?
——————————————————————
We had a local physician, who was not an oncologist, that had, that was the 2nd physician we, we consulted, that did the ultrasound and the CAT scan for her and, and they knew that she had tumors, and no we did not go to an on, oncologist from there
——————————————————————
Why ?
——————————————————————
because we knew that we did not want to take their treatments, uh, so we immediately contacted the clinic here in, in Houston, Texas, and, uh, we had to wait on, uh, certain things to be completed
CAT scans
Different things had to be done, and, and information had to be sent down here and examined, and then, uh, after a period of maybe 2 weeks, hassling with information, we were told that, yes, uh, we, they would accept her as a patient, and we were getting in towards the holidays at that time
Would we like to wait until the holidays were over, because Christmas
You know, there would be 5 days off for Christmas, uh, over a weekend and 5 days off for New Years over a weekend, and we would be down here in Houston over those times, but we elected to come anyway because we could get the treatment started right away
——————————————————————
Mhmm
——————————————————————
rather than to wait another month before starting treatments, and, uh, so they, uh, immediately put, put her on antineoplastons and, uh, they sent away the tissue samples to Arizona to have a CARIS test done, and determine what medications would be
——————————————————————
So did you have those results come back ?
——————————————————————
Yes, those results came back quicker than what we expected
——————————————————————
And wh, what did they show ?
——————————————————————
Well they, they show a, a list of treatments that are effective, and against it, and then a list of treatments actually that encourage it’s growth
——————————————————————
Yeah
——————————————————————
So you end up with a list of, uh, approximately 7 on each side
7 good
7 bad
——————————————————————
And these are all different cancer drugs
So what they’re looking at is all
——————————————————————
Yes
——————————————————————
is all the different cancer drugs, and which ones
——————————————————————
And whether we’ve got a, a thousand or 2 thousand different drugs that person might try, and, uh, so
——————————————————————
So the (?) for how to, to try a few of these chemotherapies, but in very small doses
Is that right ?
——————————————————————
There’s 2, 2 chemotherapies
One is an, is an oral chemotherapy that is, uh, quite mild in its side effects, and then, uh, there’s another much stronger one that was, uh, also one of th, the top 2, and, uh, the side effects for it are more varied and more violent, uh, if you will, and, uh, my mother’s had one treatment of that so far, and the treat, the side effects
She did, is suffering from side effects from that particular
——————————————————————
Yeah
——————————————————————
It’s Oxaliplatin, and, uh, some people have very violent side effects but she’s thankfully not had any violent side effects
——————————————————————
So why didn’t you go down the conventional road of having high-dose chemotherapy ?
——————————————————————
Well, when you research the, uh, success rate, with pancreatic cancer, going the normal way, uh, or the normal, uh, road, the success rate is very, very small, and so you’re just guaranteeing, in my opinion, if, if the success rate is 5% or under, uh, you’re introducing yourself to a, a road to death, that’s very unpleasant
——————————————————————
Yeah
——————————————————————
You know, you just want to go home and make yourself very comfortable on painkillers and, and enjoy the rest of your life, uh, if that’s the, if that’s the road you’re planning to take
——————————————————————
Yeah
——————————————————————
Uh, that was our opinion, and so
——————————————————————
What do you think about all the resistance then of, of Dr. Burzynski and all of the kind of, uh, ?
——————————————————————
We have
——————————————————————
(?) people just calling him a
What’s the word ?
——————————————————————
Charlatan
——————————————————————
Charlatan
Yeah
Fraud
——————————————————————
Yes, we, uh, we have seen course, of course these things through our, our life
Dr. Miller
The whole Laetrile treatment thing was something that was, uh, thrown out
You know, it’s pretty well suppressed now
You can go to Mexico and get those treatments
——————————————————————
Why do you think they were, pushed aside ?
This Laetrile
——————————————————————
It’s
——————————————————————
What is Laetrile ?
——————————————————————
Well Laetrile is a naturally occurring, uh, substance that you find in some of our foods
It’s, they call it B17 although, vitamin B17, although there’s some discussion as to whether it’s really a vitamin
Another name for it is Amygdalin
——————————————————————
Amygdalin
Yeah
——————————————————————
Uh, it’s found in peach pits and apricot pits in high levels but there’s a number of other foods that you find it in
Uh, it, it,
I’m not sure, whether this is 100% accurate, but my understanding of it is it’s associated with, with cyanide, and it would be, uh, like an encapsulated cyanide, that as it travels through your body, the cyanide portion, um, does not become available to your body until it becomes in, uh, associated with a cancer cell
——————————————————————
Yeah
——————————————————————
and the cancer cells attack the outer shell of that molecule, and the cyanide becomes, uh, uh, available then, and it kills the cancer cell that’s right there
So it was apparently a very nontoxic substance
Uh, you have regulated dosages
I mean, it seems to me interesting, uh, when a doctor prescribes a dose of chemotherapy, uh, there’s nothing that I can think of much more toxic than a, than a chemotherapy drug, and certainly they’ll kill you if they don’t, uh, give you the right dosage, but it was not seemed, deemed accessible that a byproduct of food; which a doctor could regulate the dosage of as well, could be used as a transfer, cancer treatment
——————————————————————
Yeah
——————————————————————
Uh, and we’ve seen things in the past, as well
When I was a, a very young child, I had a great aunt, that, uh, I was not even aware; at the time I was very young, she was traveling to Texas and getting treatments
Uh, one of them was called the Hoxsey treatment and, uh, she was living a very comfortable life on treatments that she got there
There were 2 treatments in Texas at that time, that, uh, were available
The FDA would come in and raid the clinics, and make just life miserable for them
They got one of them closed down, and that was the one that my great aunt was on, and that treatment was, was pills that she could take, uh, and live quite comfortably, in Nebraska
Once they closed that clinic down, then she had to go down, uh, to the other clinic in Texas, which was a supplement that was a liquid that tasted bad, and she had to make frequent trips, at that point, but still, as long as she could get that treatment she was comfortable and, and lived a normal life
A productive life
Uh, we knew her as our great aunt and, and didn’t even know her, uh, uh, that there was a health problem and, uh, but then the FDA got that clinic closed down
So, as soon as she lost access to those, her treatments, then her cancer which, uh, was no longer able to be controlled, came back strong and, and she died
So, uh, the family had been, had access to this knowledge and this, the FDA’s games with cancer treatments for many years
Um, I’m also married to, a, a gal whose father did blood research as a, he was a Ph.D and worked in university hospitals, in blood research all of his life
He, he discovered a blood protein that was associated with cancer
Uh, it was actually associated more with good health, maybe than you could say with cancer, but he discovered a, a blood coagulation protein, uh, or associated with blood coagulation that would, that could be used as a flag or a test, to see whether a person was healthy or not
Uh, as they applied it to patients in these hospitals, during their research trials, they found that this protein was an indicator whether a person had cancer or thrombosis
Uh, 2 of the very largest killers, and this protein, if present in high enough amounts in our blood, uh, was an indicator that you were healthy, and as the protein’s amount, uh, declined, then it was an indicator that something was wrong, and below a certain amount you knew something was wrong
You better be taking further testing
——————————————————————
Mhmm
——————————————————————
to find out what your problem was
Uh, that has run into resistance
Uh, that (?) has not been approved by the FDA, and, uh, th, our family’s experiences with cancer treatments, cancer drugs, as they’re affected by the FDA, we have determined by our opinion that, uh, it’s, un, unless there’s something that’s going to generate a, a lot of capital, and then a lot of tax money for the Federal Government, the FDA’s not very interested in it
——————————————————————
Yeah
——————————————————————
Uh, so, cynical attitude, but evidence bears it out
——————————————————————
Yeah
——————————————————————
and so we remain cynical until so, until something proves
——————————————————————
Yeah, absolutely
So this is this doctor in, uh, in the 70’s
This is information that he provided
——————————————————————
Yes
——————————————————————
and you can see here that he is obviously, antineoplastic enzymes
See, here obviously
Do you think he meant Dr. Burzynski ?
He just knew of him ?
You have no idea ?
——————————————————————
I have no idea
——————————————————————
He was obviously a fan, if he was someone that eventually said
He said it to you
Did you say he said it to your mum or to your dad?
——————————————————————
To my mom
Probably to mom and dad
——————————————————————
Yeah
——————————————————————
Uh, my mom was the record keeper, and so, she kept the flyer
——————————————————————
Yeah
——————————————————————
but they both took, uh, the, uh, the therapy from, uh, well, the blood therapy
I mentioned it earlier
Suddenly the name’s gone away
——————————————————————
Yeah
——————————————————————
but, uh
——————————————————————
That’s ok
——————————————————————
So
——————————————————————
So what about, um
You know, one of the barriers that we had is, when we spoke to oncologists, they just said, no, you mustn’t come to see this guy
His work isn’t peer-reviewed
He’s a charlatan
Why, why do you think they would say that ?
What
I mean I’m surprised, that these oncologists don’t actually come here, to actually see what, what’s going on
So your opinion about that ?
——————————————————————
My opinion is, that physicians are, very much, tied up, with large pharmaceutical corporations
Uh, I spoke with my father-in-law
My father-in-law had to have research done in, in his Ph.D work, and he had to get cooperation from hospitals, from doctors, and, uh, all of these organizations in order to have the research done that he needed done, ’cause past his lab, when he wants to introduce research, onto a patients, uh, live blood, and he needs to collect specimens from patients, then a whole ‘nother group of, uh, set of authorizations have to be signed and, and he being a Ph.D working with the medical profession all his life, he knew how tied up the medical profession is, by, generally by M.D.’s, that control the money flow, uh, in the medical profession
Ph.D’s do the research, but they have to apply for grants, and typically the grants are controlled by M.D.’s, and so if an M.D. Decides that your, your particular research is either applicable to, uh, something they think will make a lot of money, or it’s the, the quote, uh, popular, popular item of the day
——————————————————————
Yeah
——————————————————————
Politically correct, you name it, then you’re going to get funded
Otherwise, uh, my father-in-law noticed at different times, his research had to be funded out of his own pocket, and at other times, it looked like, it was something that doctors would like, and so they would, he would get funding, but I think that, ah, as he commented, any doctor, coming out of med school, has been contacted by a pharmaceutical company, and has probably signed a contract, that when that pharmaceutical company wants to test a drug, or test an item, that that medical, uh, doctor, will be accessible to them, to test their products
So, with the number of pharmaceutical companies that you have, and all of them recruiting M.D.’s as they come out of med school, and saying, you know, would you be part of our group, you end up under contract with the large pharmaceutical companies
——————————————————————
Mhmm
——————————————————————
and if, if 90% of the doctors are under contract with pharmaceutical companies, to, uh, to cooperate with their drug testing, then large Pharma, has control of virtually all doctors, and so, uh, uh, if you have large Pharma saying, we don’t want to see a cancer cure, that we’re not in control of, we don’t want to see something that makes curing disease cheap, and easy, and food related, then you’re not gonna
They’re going to put the word out to all their doctors: Don’t have any wo, don’t have anything to do with this
Uh, they can come up with, some written material for their, their doctors to read
They send them the evidence
——————————————————————
Mmm
——————————————————————
It may be accurate
It may not be very accurate, and, uh, but it’s just a smear campaign to destroy reputations so that they don’t get hurt financially
——————————————————————
Mhmm
——————————————————————
and, uh, so, uh, that’s the reason I believe
You know, most of these doctors, they don’t have the time, or the expertise to do the research themselves
They can’t read everything, and so when someone they trust, or someone that they’re financially, uh, obligated to, comes down and says: Here’s the stand that we want you to take, and it’s against this particular treatment, or against this doctor, they do what they’re told
——————————————————————
Yeah
——————————————————————
They do what they know best
Uh, my father-in-law, for instance, was, uh, also involved as a professor in these med centers
He taught nutrition, and he said it’s always a, been amazing to me that you can get through med school, and never take a class on, on nutrition
So you can become an M.D., and not understand the value, of nutrition, to a person’s health
That’s a problem
Uh, he recognized it as a problem
I recognize it as a problem because I particularly believe that most of our ill health is because how we treat our bodies
What we eat
——————————————————————
Mhmm
——————————————————————
Whether we exercise or don’t
Whether we provide our body with a way to flush the poisons or not
Uh, healthy living, and if you don’t teach our medical profession, healthy living, how can they teach their patients
——————————————————————
Mhmm
——————————————————————
So this, this whole system is, is just flawed in some ways, and weak in other ways, and, uh, controlled, for the purposes of commerce, instead of the public
——————————————————————
Yeah
So you, you think it’s a good idea treating people as an individual and finding out what they need as opposed to like carpet bombing them ?
——————————————————————
Absolutely
When we understood the, the individualized approach, here at the Burzynski Clinic, that they would take where they would test the cancer cells, uh, against all of these treatments and all of these chemotherapy treatments and, and anything else that might be out there that would, would treat cancer, and come back with a, a individualized care approach to the individualized cells of cancer that my mother has, that’s when we knew that we had to come here
We wondered, and I’ve told my friends, and everybody wonders, that oughta be the standard approach everywhere
Why wouldn’t you test, every cancer, and see what it is that’s gonna treat it best ?
You, you tell me
======================================
Doug Olson chats with Pete Cohen
January 2011
25:00
11/9/2012
——————————————————————
======================================
Tag Archives: provide
Wikipedia or Wikipediantic ? – wants your 3 pounds of flesh (WikiPEEdia, UR all INe)
[WP:SOP] “Statement of principles from Wikipedia founder Jimbo Wales, as updated by the community since then. 7.”)
Due & undue weight: [3]
“The relative prominence of each viewpoint among Wikipedia editors or the general public is not relevant & should not be considered,”
[WP:NPOV] “History of NPOV:” (Content # 6, Note 3)
(Neutral Point of View)
——————————————————————
TRANSLATION: Wikipedia editors, YOUR OPINION IS NOT RELEVANT
——————————————————————
MEANING: It is meaningless to attempt to slather your biased OPINION all over Wikipedia like butter on Texas toast, since supposedly, we only care about verifiable FACTS
======================================
Wikipedia, what the problem is ?
Jimmy Donal Wales
Who ?
No, “The Who” is actually really British !
(as opposed to some “furreigner” who plops across the pond, wants to pound one of your pelts after a celebrity hunt, pops it in his bonnet, pip-pips about, and mounts it up on his rented wall along with what’s left of his balls)
I’m writing, of course, about “Jimbo,” the one who got away . . . Thankfully
The recipient of the write-up earlier this year in The New York Times [1] (Oh, pithy !!)
——————————————————————
Wales, who no longer runs the day-to-day operations of Wikipedia
“He applies his libertarian worldview to the Internet and has taken on institutions like the United States government“
——————————————————————
You must be bloody well right joking me
(joking me ? Quit jokin’ me !)
JimCrow’s ’bout as “libertarian” as Fidel Castro with a gun in his hand and (f)lies between his teeth; from traveling with the windows down
Stephen Colbert shoulda seen that comin’ from a 8 mile away
Hey Stephen, Report’ THAT !!!
——————————————————————
“He grew up in Huntsville, Ala., the son of a teacher and a retail man“
——————————————————————
And obviously, he didn’t “learnt” well
I think a refund’s in order
And here’s your free school Insolence to go with it
Happy eat in’
It is claimed that “HE” spends time:
——————————————————————
“traveling the world giving talks on free speech and Internet freedom“
——————————————————————
seriously ?
Seriously ??
SERIOUSLY ???
Welcome to MizFitTV
What would “Jymboree” know about “free speech” and “Internet freedom,“ anyway ?
How many days did you serve your country in the United States military ?
Oh, you did NOT realize that while you were in San Diego, you could have signed that contract ?
After all, he’s no Vincent Kennedy McMahon”
(“HE” knows where “HIS” GRAPEFRUITS are)
======================================
“B.D.F.L., or the Benevolent Dictator for Life”
——————————————————————
How ’bout:
Big
Disappointing
Fascist
Loser ?
——————————————————————
“Argumentum ad Jimbonem” means dutifully following what Wales says, but there are even arguments about that”
——————————————————————
WP:NICETRY, but that’s “SHEEPLE”
——————————————————————
“One Wikipedia editor said, for instance, that Wales was no longer comfortable with the B.D.F.L. description”
——————————————————————
Jiminy Cricket !
Whazzamatta Jiminy?
Did “FASCIST” hit a bit too close to home ?
——————————————————————
“(There is, among some, a debate over what to call him)”
“Some users have also disputed the Latinized version of “Jimbo.”“
“(Should it be “Jimboni” or “Jimbini”?)”
——————————————————————
Can you smell what “The Rock” is cookin’ ?
La-La-La-La-Laaaaaaawwww, JIMBRONI !!!!!!!
Get ready, and bend over, ’cause I’m gonna shine this thing up, turn it sideways, and shove it straight up your Candy AstroTurf hatch
——————————————————————
Introduction (statement of principles) [WP:SOP]
“This is a statement of principles from Wikipedia founder Jimbo Wales, as updated by the community since then”
——————————————————————
(Or if you go by The New York Times article, [1] Jimbroni is the “co-founder” who tries to re-write history to make it appear that “HE” is the one-and-only Fascist Founder ?)
——————————————————————
“I should point out that these are my principles, such that I am the final judge of them”
“This does not mean that I will not listen to you, but it does mean that at some ultimate, fundamental level, this is how Wikipedia will be run”
——————————————————————
No, actually, it DOES mean that he will NOT listen to you, as was the case when he ignored my 2/7/2013 appeal
In his defense, perhaps Kate Garvey has his balls
——————————————————————
Principles
1. “Wikipedia’s success to date is entirely a function of our open community”
“This community will continue to live and breathe and grow only so long as those of us who participate in it continue to Do The Right Thing”
“Doing The Right Thing takes many forms, but perhaps most central is the preservation of our shared vision for the neutral point of view policy and for a culture of thoughtful, diplomatic honesty”
——————————————————————
The problem with this Wacky Tobacky “We are the (Wiki) World” WikiWhOReD Wonderland Jimbroni’s living in, is that “HE” has NOT been Doing The Right Thing since “HE” abdicated “his” “neutral point of view policy” and “culture of thoughtful, diplomatic honesty,” to “The Skeptics”
“The Skeptics,” who serve as gatekeepers of the Burzynski Clinic article, and who cite Dr. David H. Gorski a/k/a “Orac” aka GorskGeek as if he were a “reliable source”
“The Skeptics,” who bring new meaning to the term “Wikipedia Zero”
“The Skeptics,” who are Intellectual Cowards like their false god Gorski, the Closet Communist of Science-Based Medicine a/k/a Science-Basted Medicine aka Science-Based Mudicine (Spinning Bowel Movement), Wiki Wordsmith Wannabes, nut-jobbers, stale from their failure at the National Peanut Festival in Dothan, Alabama
——————————————————————
3. ““You can edit this page right now” is a core guiding check on everything that we do”
“We must respect this principle as sacred”
——————————————————————
Do the lies just dribble off your chin like phlegm?
You canNOT just go in and “edit” the Burzynski Clinic article “page right now”
That statement is pure, unadulterated Alabama B.S.
That’s NOT a “sacred principle,” it’s sacré “bull”
——————————————————————
7. “Anyone with a complaint should be treated with the utmost respect and dignity”
——————————————————————
Unfortunately, you do NOT practice what you preach, do you, HYPOCRITE ?
——————————————————————
“They should be encouraged constantly to present their problems in a constructive way”
——————————————————————
So that you can ignore the problem(s), right, Jimbroni ?
——————————————————————
“Anyone who just complains without foundation, refusing to join the discussion, should simply be rejected and ignored”
——————————————————————
THAT would automatically exclude all of “The Skeptics” now, wouldn’t it ?
——————————————————————
“We must not let the “squeaky wheel” be greased just for being a jerk”
——————————————————————
Jimbroni, why have you allowed “The Skeptics” to choose from their “squeaky” wheel-house bag o’ tricks, get all “greased” up and jerk” so many people around in such a big CIRCLE-JERK, for so long?
——————————————————————
8. “Diplomacy consists of combining honesty and politeness”
“Both are objectively valuable moral principles”
“Be honest with me, but don’t be mean to me”
“Don’t misrepresent my views for your own political ends, and I’ll treat you the same way”
——————————————————————
“Honesty” and “politeness” are really great “buzzwords,” Jimbroni, but they are as foreign to your “Skeptics,” as “moral principles”
——————————————————————
A great example of the questionable “honesty” and “moral principles” of one of your apparatchiks, was demonstrated 2/3/2013, 6:56, when I sent an arbitration appeal e-mail to Wikipedia, advising, in part, that the e-mail listed on Wikipedia; as the one that blocked users should use, did NOT work, because there was NO “@” sign in it
There was a . (period) where the “@” sign belonged
——————————————————————
——————————————————————
2/3/2013, 8:11 AM, Anthony (AGK) BASC
wikiagk@gmail.com advised:
“Everything you have said in that e-mail demonstrates a misunderstanding or misreading of Wikipedia policy”
——————————————————————
——————————————————————
Check the “time” and “place” where you are, so that you, too, can advise, that according to Wikipedia, pointing out to them that the e-mail they advise people to use, DOES NOT WORK; because there is no “@” sign in it (instead, there’s a . (period)), translates into meaning:
——————————————————————
“Everything you have said in that e-mail demonstrates a misunderstanding or misreading of Wikipedia policy”
======================================
Core principles
Wikipedia:Simplified ruleset [WP:SR]
Wikipedia does not have its own views, or determine what is “correct”
——————————————————————
I wish I could LIE like that, but I have a conscience
======================================
12/24/2012, Monday – 3:52 pm – 21:52 (UTC) –
“We are told that 2013 will be a big year, but apparently his plan is to release another bullshit movie not to publish useful research”
[User Talk:JzG|Guy] ([User JzG/help|Help!]) [2]
——————————————————————
“Bullshit movie” ?
——————————————————————
——————————————————————
Does anyone other than me NOT think it a “coinkydink” that some “Guy” on Wikipedia, going by the name “Guy”, using the same 2 words (“Bullshit movie”) as a “Guy” on Twitter ?
======================================
2. Founding principles:
“Neutrality is mandatory . . . “
——————————————————————
I call B.S.
“Neutrality is mandatory,” EXCEPT on the Burzynski Clinic article, controlled by “The Skeptics”
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4. “Ignore all rules (IAR):”
“Rules on Wikipedia are not fixed in stone”
——————————————————————
Especially when Jimbroni allows “The Skeptics”
to “dictator” the “rules”
——————————————————————
“The spirit of the rule trumps the letter of the rule”
“The common purpose of building an encyclopedia trumps both”
“This means that any rule can be broken for a very good reason, if it ultimately helps to improve the encyclopedia”
——————————————————————
And “The Skeptics” are NOT required to provide ANY reason for having broken “any rule”
——————————————————————
“It doesn’t mean that anything can be done just by claiming IAR, or that discussion is not necessary to explain one’s decision”
——————————————————————
But do NOT expect Wikipedia to require anything from The Skeptics”
——————————————————————
Founding principles
1. “Neutral point of view (NPOV) as a mandatory editorial principle”
—————————————————————–
EXCEPT when it comes to the Burzynski Clinic article
——————————————————————
12/26/2012 – I attempted to get Wikipedia to reference the interview which Burzynski’s attorney, Richard (Rick) A. Jaffe, and Lola Quinlan’s attorney; who posted it on his web-site, had given: [4]
Please add re WP:NPOV that Burzynski’s attorney, Richard Jaffe has disputed Lola Quinlan’s claims:
“On February 1, 2012, Dr. Burzynski’s attorney, Richard Jaffe, disputed Lola Quinlan’s allegations on Houston’s KPRC News.”
Thank you very much.[[User: Didymus Judas Thomas 15:03, 12/26/2012 (UTC)
——————————————————————
So? [OR] Disputing it in the media probably means he doesn’t have a case. [/OR] In any case, a lawyer disputing the allegations against his client is not even news. — [[User: Arthur Rubin 15:24, 12/26/2012 (UTC)
Arthur Rubin, I’m not sure what relevance your above post has re WP:NPOV since the article includes statements from attorneys representing both sides
17:51, 12/27/2012 (UTC) Didymus Judas Thomas
======================================
12/24/2012, Monday – 3:54 pm (21:54.UTC) – “What they mean is that nobody else is doing any meaningful work on it, which necessarily means that it’s not considered in the least promising.”
[[User Talk:JzG|Guy]] ([User JzG/help|Help!])
“Nobody else is doing meaningful work on it” ?
Ignores independent research done in Poland, Russia, Korea, Egypt, Japan, & China which specifically reference SRB’s publications in their publications re antineoplastons & phenylacetylglutamine (PG); which is AS2-5, & includes phase III trials published in China & continued research being published in China 12/17/2012?
FACTS:
1. I pointed out to Wikipedia, a 12/17/2012 scientific publication re antineoplastons, which referenced Burzynski @ 22. (antineoplaston AS21)
2. 7 days after this scientific journal was published, Wikipedia’a “Guy (Help!’s) ”response, Monday, 12/24/2012 @ 3:54 pm, is to advise me:
“What they mean is that nobody else is doing any meaningful work on it, which necessarily means that it’s not considered in the least promising.”
Guy (Help!) 3:54 pm, 12/24/2012, Monday
3. So, Wikipedia’s, Guy (Help!), defines an event having been published 7 days ago (12/17/2012 to 12/24/2012) as:
“…nobody else is doing any meaningful work on it…”
12/17/2012
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3524164
CDA-2 (cell differentiation agent 2), a URINARY preparation
http://po.st/g71N8P
CDA-2 and its main component PHENYLACETYLGLUTAMINE (PG or PAG)
Antineoplaston AS2-5 is PHENYLACETYLGLUTAMINE (PAG or PG)
http://redd.it/1dk974
Antineoplaston AS2-1 is a 4:1 mixture of phenylacetic acid (PA) and PHENYLACETYLGLUTAMINE (PAG or PG)
Antineoplastons AS2-5 and AS2-1 are derived from Antineoplaston A10
BURZYNSKI Reference: 22.
antineoplaston AS21
http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0052117
======================================
12/26/2012, Wednesday – 12:43 – “There is unlikely to be any dispassionate debate over ANPs while Burzynski continues with his unethical practices.”
JzG|Guy User:JzG/help|Help!
Wikipedia: Judge, Jury, Executioner
======================================
“The world, right now, considers Burzynski to be at best unethical and at worst a quack…”?
Since when did Wikipedia conduct a world-wide “opinion poll” re Burzynski ?
And if Wikipedia is correct, how did this happen ?
Burzynski referenced by other Cancer researchers:
2011 – Phase II trial of tipifarnib and radiation in children with newly diagnosed diffuse intrinsic pontine gliomas
http://neuro-oncology.oxfordjournals.org/content/13/3/298.full
University of California—San Francisco
Children’s Hospital Boston, Massachusetts
St Jude Children’s Research Hospital, Memphis, Tennessee
Seattle Children’s Hospital, Seattle, Washington
Children’s Hospital of Philadelphia, Pennsylvania
Children’s Hospital of Pittsburgh, Pennsylvania
Children’s National Medical Center, Washington, DC
Cincinnati Children’s Hospital Medical Center, Ohio
Neuro Oncol (2011) 13 (3): 298-306
doi: 10.1093/neuonc/noq202
5.723 Impact Factor
25. ↵ Burzynski SR
Treatments for astrocytic tumors in children: current and emerging strategies
Paediatr Drugs. 2006;8:167-178
http://link.springer.com/article/10.2165%2F00148581-200608030-00003
Pediatric Drugs
May 2006, Volume 8, Issue 3, pp 167-178
======================================
——————————————————————
Rhode Island Red attempts to get away with misquoting me:
——————————————————————
——————————————————————
“The other argument is that the secondary sources (i.e., respected cancer organizations, FDA, etc.) are not reliable because they are Burzynski’s “competitors”
[[User: Rhode Island Red]] 4:18 pm, Yesterday (UTC−6)
======================================
——————————————————————
What a Wipocrite (Wiki + Hypocrite)
Steve Pereira (SilkTork) is such a “WIPOCRITE,” that he claims:
——————————————————————
“the community were united that your contributions were biased”
——————————————————————
He conveniently; like a good little mini-Jimbroni would, ignores ALL of his fellow WIPOCRITES comments, which completely ignored:
——————————————————————
([WP:SOP] “Statement of principles from Wikipedia founder Jimbo Wales, as updated by the community since then. 7.”)
Due & undue weight: [3]
“The relative prominence of each viewpoint among Wikipedia editors or the general public is not relevant & should not be considered,”
[WP:NPOV] “History of NPOV:” (Content # 6, Note 3)
(Neutral Point of View)
——————————————————————
1. 12/24/2012, Monday – 3:52 pm – 21:52 (UTC) – “We are told that 2013 will be a big year, but apparently his plan is to release another bullshit movie not to publish useful research”
——————————————————————
2. 12/24/2012, Monday – 3:54 pm (21:54.UTC) – “What they mean is that nobody else is doing any meaningful work on it, which necessarily means that it’s not considered in the least promising.”
——————————————————————
3. 12/26/2012, Wednesday – 12:43 – “There is unlikely to be any dispassionate debate over ANPs while Burzynski continues with his unethical practices.”
——————————————————————
4. 12/30/2012 8:58 “The world, right now, considers Burzynski to be at best unethical and at worst a quack…”?
——————————————————————
Am I NOT the only one convinced that “the community” was also “united” in something more than just their “goose-stepping ?
——————————————————————
Pereira, the imperfect ‘pedia Pimp tries to Wow his readers by waxing WikiWhOReD, by ignoring that ALL the previous BIASED opinion B.S. that his fellow-Facist forged ahead with, and which Wikipediantic history says means ABSOLUTELY NOTHING (say it again) because it is their BIASED OPINION and is ABSOLUTELY WORTHLESS, and it was as so much WikiLitter, well, he’s just facist-free speechless about that, as any Jimbroni AstroTurf Twerk should be
======================================
To show exactly what zealots these WikiPimps are, just absorb this exchange:
——————————————————————
“The Burzynski Clinic Article has:
“…a Mayo Clinic study found no benefit….”
But that was not what the study concluded
See below:
——————————————————————
“CONCLUSION:
Although we could not confirm any tumor regression in patients in this study, the small sample size precludes definitive conclusions about treatment efficacy.”
——————————————————————
In the interest of Neutrality, please remove the reference to Mayo entirely or change to;
——————————————————————
“…a Mayo Clinic study found that “the small sample size precludes definitive conclusions about treatment efficacy.”
——————————————————————
Thank you very much
Didymus Judas Thomas 21:12, 12/10/2012
——————————————————————
“How is “found no benefit” not a a fair and pithy description of the Mayo Clinic study’s summary?”
Alexbrn 21:24, 12/10/2012
——————————————————————
“I feel this should be changed under WP:NPOV because not every reader is going to understand the “Fair & Pithy” reason I was provided
I feel that the average reader reading this will read it as meaning a study was done & completed with the necessary # of people for an effective study, when that was not the conclusion as pointed out in my above post
Thank you very much.”
Didymus Judas Thomas 11:02, 12/18/2012
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NO RESPONSE
That’s right !
“NO RESPONSE” from the “mini-b” (a/k/a “mini-brain”), wannabe Fascists who are so zealous about using their alleged “Fair and Pithy” “found no benefit” WikiWhOReD; which they utilize in an effort to deceive those who are NOT smarter than a fifth-grader
These WikiPimps are so certain of the righteousness of their evangelical cause, that they do NOT even have the “GRAPEFRUITS” to use what the study’s conclusions actually said, and let the chips fall where they may
There are a lot of “chips” falling at Wikipedia
“BULL CHIPS”
JIMBRONI, you’re no Maggie Thatcher
You can’t even wear her pants
——————————————————————
Margaret Thatcher: “The Iron Lady”
Jimbroni: “No iron in the pants”
——————————————————————
Jimbroni’s list of Facist, mini-Hitler, Monty Pythonesque Women’s underwear wearing Wannabes on Wikipediantic:
1. Alexbrn
2. fluffernutter
3. NE Ent
4. Choyoołʼįįhí:Seb az86556 (Seb az86556)
5. Tom Morris
6. Guerillero
7. Dave Dial
8. John
9. Nstrauss
10. Yobol
11. Drmies
12. foxj
13. Ironholds
14. Rhode Island Red
15. Anthony (AGK) BASC wikiagk@gmail.com
16. Steve Pereira (Silk Tork) silktork@gmail.com
——————————————————————
WikiWhOReD (Wiki + Word + Whore): Pimping a word. Attempting to deceive someone by means of misdirection with words
——————————————————————
The South will rise again, just not in Jimbroni’s pants
——————————————————————
Happy Friday the 13th, Wikipediantic
======================================
REFERENCES:
======================================
[1] – 6/27/2013 – Jimmy Wales Is Not an Internet Billionaire (By AMY CHOZICK):
——————————————————————
http://mobile.nytimes.com/2013/06/30/magazine/jimmy-wales-is-not-an-internet-billionaire.html
======================================
[2] – 12/24/2012, Monday – 3:52 pm – 21:52 (UTC) – [User Talk:JzG|Guy] ([User:JzG/help|Help!])
——————————————————————
http://en.wikipedia.org/w/index.php?title=Talk:Burzynski_Clinic&diff=next&oldid=529537854
======================================
[3] – 12/26/2012 – Lola A. Quinlan:
——————————————————————
http://en.wikipedia.org/w/index.php?title=Talk:Burzynski_Clinic&diff=prev&oldid=529836971
——————————————————————
http://en.wikipedia.org/w/index.php?title=Talk:Burzynski_Clinic&diff=next&oldid=529836971
——————————————————————
Houston’s KPRC News:
——————————————————————
http://m.click2houston.com/news/Houston-cancer-doctor-draws-new-complaints-from-patients/-/16714936/8581480/-/hmrbjk/-/index.html
——————————————————————
Lola A. Quinlan’s attorney’s web-site:
——————————————————————
http://www.jag-lawfirm.com/burzynski-suit-kprc-02012012.html
======================================
[4] – –
——————————————————————
http://en.wikipedia.org/w/index.php?title=User_talk:Didymus_Judas_Thomas&diff=next&oldid=528610760
======================================
These mini-b’s went so far as to allege all sorts of sockpuppetry
Wikipediantic, why don’t you list all the dates and times I was supposedly doing all of these activities; and don’t forget to include all the time I spent blogging, on Twitter, making comments on articles, etc., and once you have all that data compiled, explain how one individual could do all that in a 24-hour day
That’s right Wikipediantic
I’m challenging you to put up or shut up your cornholio
How to Crank your Congressperson (according to “The Skeptics”: USA TODAY vs. Dr. Stanislaw Burzynski)
Let’s say you’re one of “The Skeptics,” (“The Burzynski Skeptics,”) don’t have a life (but doesn’t that go without saying ?), enjoy associating yourself with known liars, cowards, ethically and intellectually challenged individuals, so you grab a newspaper (It’s doubtful that USA TODAY would qualify), and if you do NOT know what a “Newsie” is, go online and select an article which has a plethora of innuendo and allegations, compose a missive to your member in Congress assembled about the nothingness you just reviewed, just don’t piss yourself silly when you shoot that zinger off, because you’ve just sent something to your Congressperson, exhibiting what a whacky weed tobacco day tripper you are, and a prime example of what “Rocky Mountain High” really will mean, starting January 1st, 2014
Congratulations, Colorado
My only suggestion is that you add something like:
“Dear Congressperson Y,
I know your time is valuable, but please allow me to waste some of you and your staff’s, as well as provide you with “fodder” you can hang up on the bathroom wall and laugh about for days!
In the next weeks I will be contacting you about all of the “conspiracy theories” in Jesse Ventura’s book, including; but not limited to:
Area 51
Aliens
The Denver International Airport
…
Smoke ’em if ya got ’em !
======================================
Dear CONGRESSPERSON’S NAME:
My name is _______ and I am one of your constituents
I am writing to you to request your urgent attention to a matter that involves the abuse of cancer patients, their families, and their communities
A few weeks ago, I wrote to you concerning the Houston cancer doctor Stanislaw Burzynski, and requested that you take action and look into how he was able to continue treating cancer patients for decades under the auspices of clinical trials with an unproven treatment he claims to have discovered, patented, manufactures, prescribes, and sells (at his in house pharmacy) at exorbitant prices
On Friday November 15, Dr. Burzynski was the subject of a front-page exposé in the USA Today
Additionally, since I last contacted your office, the FDA has released site inspection notes into the electronic FOIA reading room about Stanislaw Burzynski in his role as Principal Investigator (also included)
The findings were horrifying
Burzynski (as investigator, the subject of the inspection) “failed to comply with protocol requirements related to the primary outcome, therapeutic response […] for 67% of study subjects reviewed during the inspection.”
This means that several patients who were reported as “complete responses” did not meet the criteria defined in the investigational plan, as were patients who were reported as having a “partial response” and “stable disease.”
This means that his outcomes figures for these studies are inaccurate
Some patients admitted failed to meet the inclusion criteria for the study
Even though patients needed to have a physician back home to monitor their progress prior to enrolling in a trial, the FDA found a patient who began receiving treatment before a doctor had been found
The FDA told Burzynski:
“You failed to protect the rights, safety, and welfare of subjects under your care
Forty-eight (48) subjects experienced 102 investigational overdoses between January 1, 2005 and February 22, 2013, according to the [trial number redacted] List of Hospitalizations/SAE (serious adverse events) [redacted] Overdose [redacted]/Catheter Infection report
Overdose incidents have been reported to you [….]
There is no documentation to show that you have implemented corrective actions during this time period to ensure the safety and welfare of subjects.” [emphasis added]
It seems that these overdoses are related to the protocol, which requires family members to administer the drugs via programmable pump on their own
Further, patient records show that there were many more overdoses that were not included in the Hospitalization/SAE/Overdose list
The FDA reported:
“Your […] tumor measurements initially recorded on worksheets at baseline and on-study treatment […] studies for all study subjects were destroyed and are not available for FDA inspectional review.”
This is one of the most damning statements, as without any…not a single baseline measurement…there is no way to determine any actual effect of the antineoplaston treatment
This means that Burzynski’s studies–which by last account cost $30,000 to begin and $7000 a month to maintain–are unpublishable
It will be stunning if this finding alone were not investigated by legal authorities
Patients who had Grade 3 or 4 toxic effects were supposed to be removed from treatment
One patient had 3 Grade 3 events followed by 3 Grade 4 events
Another patient had 7 disqualifying toxic events before he was removed from the study
Burzynski did not report all adverse events as required by his study protocols
One patient had 12 events of hypernatremia (high sodium), none of which was reported
There are several similar patients
Some adverse events were not reported to the Burzynski Clinic IRB for years
For instance one patient had an adverse event in 1998 and the oversight board did not hear about it until 2005.)
The FDA observed that the informed consent document did not include a statement of extra costs that might be incurred
Specifically, some informed consent documents were signed days to weeks before billing agreements, and in a couple of cases no consent form could be found
The clinic was unable to account for its stock of the investigational drug, an act that would get any other research lab shut down
Sadly, a child, Josia Cotto, had to die from apparent sodium overload before this investigation could be carried out
Despite these findings, when interviewed by USA Today, Burzynski actually said of his former cancer patients:
“As for criticism from former patients, Burzynski says, ‘We see patients from various walks of life
We see great people
We see crooks
We have prostitutes
We have thieves
We have mafia bosses
We have Secret Service agents
Many people are coming to us, OK?
Not all of them are the greatest people in the world
And many of them would like to get money from us
They pretend they got sick and they would like to extort money from us.’”
I am asking you to help me understand what happened at the FDA to allow this man to conduct clinical trials and bankrupt patients in the process despite 10 years of alarming reviews by the FDA
I also ask you to support an investigation into this betrayal of over 8,000 patients and to push for legislation to prevent the most desperate patients from such unthinkable exploitation
I will be calling your office next week to touch base with you and I look forward to your response
Sincerely,
======================================
REFERENCE:
======================================
Letter to Congress:
——————————————————————
https://docs.google.com/document/d/1Hx3KJ6mmCd8MTdlbdXb2r2qrN9l3JjrzdJrHh0VIJXo/mobilebasic?pli=1
======================================
Burzynski: court cases
—————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/04/26/burzynski-court-cases/
—————————————————————
Main Page – Stanislawrajmundburzynski
——————————————————————
http://stanislawrajmundburzynski.wiki-site.com/index.php/Main_Page
======================================
Critiquing: Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues
GorskiGeek starts off his soapbox stump speech:
——————————————————————
“I was very pleased last Friday, very pleased indeed”
——————————————————————
Of course he was
After all, it was as if USA TODAY was quoting directly from “The Skeptics™” fave Fahrvergnügen pharyngula and GorskGeeks’s jacked July jabberwocky at “The Amazing Meeting” 2013 (TAM 2013 #TAM2013) Twitter Twaddle-fest
Given the normal subject matter of this blog, in which I face a seemingly unrelenting infiltration of pseudononsense pseudononscience and hackery into even the most hallowed halls of hacademic medicine, against which I seem to be fighting a mostly uphill battle, having an opportunity to see such an excellent non-deconstruction of science and medicine in a large bad mainstream news outlet like USA TODAY, GONE TOMORROW is rare and ungratifying
GorskGeek gambits:
——————————————————————
“As you might recall, USA TODAY reporter Liz Szabo capped off a months-long investigation of Dr. Stanislaw Burzynski and his Burzynski Clinic with an excellent (and surprisingly long and detailed) report, complete with sidebars explaining why cancer experts don’t think that Burzysnki’s anecdotes are compelling evidence that his treatment, antineoplastons, has significant anticancer activity and a human interest story about patients whom Burzynski took to the cleaners”
——————————————————————
My question ?
GorskGeek, how do you know it was a:
“months-long investigation” ?
The article does NOT indicate HOW LONG the USA TODAY “investigation” took
From this, I can only conclude, as I did after 1st reading the article, that based on the comments of Dr. David H. Gorski “Orac”, that there must have been collusion between “The Skeptics™” and USA TODAY
Most of this, of course, is no news to my readers, as I’ve been writing about Dr. Burzynski on a fairly regular basis for over 8 months now
——————————————————————
GorskGeek goofs:
——————————————————————
“It’s just amazing to see it all boiled down into three articles and ten short videos in the way that Szabo and USA TODAY did, to be read by millions, instead of the thousands who read this blog“
——————————————————————
Thousands read his blog ?
Does he mean over the 2 year period he’s been writing about Burzynski ?
GorskGeek Inspector Gadgets:
——————————————————————
“Szabo also found out who the child was who died of hypernatremia due to antineoplastons in June 2012, a death that precipitated the partial clinical hold on Burzynski’s bogus clinical trials, about which both Liz Szabo and I have quoted Burzynski’s own lawyer, Richard Jaffe, from his memoir, first about Burzynski’s “wastebasket” trial, CAN-1“
——————————————————————
GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L
If GorskGeek actually knew how to do real “science-based medicine” research, and if Liz Szabo and Jerry Mosemak had really actually done a “months-long investigation”, maybe USA TODAY and “Orac” could have had enough time to have figured the above out, as well as the clinical trial Burzynski’s attorney, Rick Jaffe, was referring to, was the CAN-1, which even you did NOT display any knowledge of in the July
TAMmany Twaddle [3], and your 11/15/2013 article [4]
——————————————————————
Naturally, upon reading Liz Szabo’s “ story,” I wondered how long it would be before there would be a response from GorskGeek or his minions
Both responses contain the same sorts of tropes, misinformation, and pseudononscience that I’ve come to expect from GorskGeek [1-2+4]
USA TODAY is biased and in the pocket of “The Skeptics™”
It was a “Shite Muslim Militia” piece
——————————————————————
GorskGeek dreamsicles:
——————————————————————
“I’ve deconstructed these, and many more, of Merola’s nonsense over the last two years”
“Odd how @BurzynskiMovie pretends I haven’t deconstructed his “evidence” in depth before”?
Really ?
GorskGeek is so much a monumental myopic Mythomaniac
GorskGeek all you did was “cherry-pick” what you wanted to blather about, and selectively ignored everything else
——————————————————————
What actually surprised me was the viscousness of the counterhackattack
For example, in counterhackattacking Eric Merola’s letter to Liz Szabo, GorskGeek tries unsuccessfully to claim that Merola actually hopes that her child will get cancer, so that Burzynski supporters can gloat about it and Szabo will have to apologize to her children for her “perfidy” (in GorskGeek’s eyes, at least):
——————————————————————
GorskGeek gesticulates:
——————————————————————
“He denies that he hopes Szabo’s children will develop brain cancer, but then gloats gleefully over the possibility that she would have to face them after having—again in his mind—”helped to destroy the only thing that could have helped” them”
——————————————————————
In the dictionary, under the definition of “spin bowel movement (SBM),” there should be a picture of “Dr.” (and I use that term very “loosely”) David Gorski
GorskGeek would have fit in holistically as the propagandist for Hitler, Lenin, Mussolini, Pol Pot, Stalin, etc.
Then, just when I thought GorskGeek couldn’t go any lower, he does, this time in his longer response on his blog
——————————————————————
“Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues”
——————————————————————
Obviously, to “Orac” asking GorskGeek to follow normal rules regulating medical ethics and human subject protections in critical trolls’ blog trials is exactly like murdering millions of people’s brain cells, carrying out horrible medical experimentation on common sense and sensibility, making untold numbers of Africans, slaves to his stupendousmess, and harassing, gratuitously, families of soldiers “killed” by his word salad battle
Didn’t anyone ever teach GorskGeek that you need to build up to that sort of climax ?
Of course, the big difference between Hitler’s propaganda chief Joseph Goebbels, unfortunately, is that compared to “Orac,” he had talent, and David GorskGeek does NOT
GorskGeek is a hack and is only funny by accident because he has no filters that tell him when he’s going way under the top
To him, Burzynski is an infidel
I do not share his belief, but, even worse, I have the temerity to criticize his god “Orac,” or, to mix metaphors shamelessly, to point out that GorskGeek has no clothes
Since I’ve dealt with so many of the tropes included in GorskGeek’s not-so-little rant, I hardly see the need to repeat myself
However, as a breast cancer surgeon’s skeptic, I find one of GorskGeek’s lies to be as despicable, or perhaps more so, than his ad hominem comparisons
——————————————————————
GorskGeek, the Hitler of hipocracy, came up with this hit parade of paranoia and “conspiracy theory”:
——————————————————————
“I don’t know what sort of attacks on the UK bloggers who produce the bulk of the skeptical blog posts about Burzynski are coming in Burzynski II, but when it comes to me no doubt Merola is referring to this bit of yellow journalism in 2010 from an antivaccine propagandist named Jake Crosby, entitled David Gorski’s Financial Pharma Ties: What He Didn’t Tell You” [5]
——————————————————————
GorskGeek then ad hocs ad nauseum about ad hominem fallacy
“In this fallacy, rather than addressing the actual evidence and science that demonstrate their favorite brand of woo to be nothing more than fairy dust, the idea is to preemptively attack and discredit the person“
“The ad hominem is not just insults or concluding that someone is ignorant because, well, they say ignorant things and make stupid arguments (in which case calling someone stupid or ignorant might just be drawing a valid, albeit impolitic, conclusion from observations of that person’s behavior), but rather arguing or insinuating that you shouldn’t accept someone’s arguments not because their arguments are weak but because they have this personal characteristic or that or belong to this group or that“ [6]
——————————————————————
GorskGeek, the huckster of hackery laments that “The Skeptics™” are subject to character assassination, NOT because of their “science-based medicine”, but, alas, for being biased, lying, cowards
So, he must justify that as to why he then ad hominems those who he harangues:
——————————————————————
“In Burzynski The Movie, Dr. Whitaker has his nose embedded so far up Dr. Burzynski’s rectum that Dr. Burzynski wouldn’t need a colonoscopy if Merola just strapped a light to Dr. Whitaker’s face“ [7]
——————————————————————
——————————————————————
“In the meantime, I realized that seeing Josh Duhamel stick his proboscis firmly up Burzynski’s posterior was not enough to explain the disturbance that I was feeling“ [8]
——————————————————————
——————————————————————
GorskiGeek seems to have an unhealthy infatuation with ASS
My suppositorsition is that GorskiGeek, the highfalutin’ He-Man of hypocrisy, does wax on, wax off, waxes phonetic about ASS, because he is the apex of ASSmuchness
——————————————————————
In essence, he denies the toxicity of water in terms I’ve never seen anyone try to downplay before:
Water… is toxic?
This was perhaps the most stunningly malicious use of emotion to manipulate the reader in any of the propaganda pieces against H2O in history
——————————————————————
GorskGeek claims:
——————————————————————
“Josia, as readers of Liz Szabo’s report will know, was the six year old boy with an inoperable brain tumor who died of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy“
——————————————————————
GorskGeek gassticulates:
——————————————————————
“As I pointed out last Friday and Szabo reported in her story, before his death Josia’s serum sodium was measured at 205 mEq/L, way above the normal range of 136-145 mEq/L and well into the lethal range”
“As I pointed out then, I’ve never seen a sodium level anywhere near that high“
“During my residency, the highest I recall ever seeing was maybe around 180 mEq/L”
——————————————————————
As I already pointed out previously in this article:
GorskGeek and USA TODAY both hashtag Failed to point out that a boy, the same age as Josia Cotto, survived a serum sodium (Na+) level of 234 mEq/L
GorskGeek claims that Josia died of hypernatremia (elevated sodium levels in the blood) as a result of Burzynski’s therapy
GorskGeek does NOT provide ANY citation(s), reference(s), and / or link(s) in support of his claim, and does NOT provide a copy of the autopsy
GorskGeek’s brain cells must be “sleeping in excess”, hence the symptoms of lethargy progressing ignorance of adverse events which approach critical black hole levels
Of course, none of this is new information
——————————————————————
GorskGeek hacks:
——————————————————————
“I also note that one of Burzynski’s most famous patients, Hannah Bradley, who with her partner Pete Cohen proclaims herself cured of her brain cancer, thanks to Burzynski, suffered some pretty serious toxicities from antineoplastons herself, including high fevers to 103.9° F, shaking chills, and severe rashes“
“Pete even documented how badly Hannah reacted to antineoplastons in his YouTube documentary Hannah’s Anecdote”
——————————————————————
GorskGeek flummoxes in that he erred to elucidate that the “rash” which Hannah
experienced, even entailed epilepsy anti-seizure medication [4]
GorskGeek gambols the gabroni gambit by giving nothing but glib reasons for his genetically challenged gestation of Hannah’s vlogs after gears up for Great Britain
Yes, GorskGeek is gabless about Hannah’s progress in the G.B. as a germinating gerbil, as far as flu or fever, perhaps fearing his failure to feature any fact-checking facilitation a fanboy of Fanectdotes should fittingly fictionalize
——————————————————————
The rest of GorskGeek’s rant reads like a greatest hits compilation from cancer hacks
You get the picture
That’s the whack-n-hack counterhackfensive trying to shore up Liz Szabo’s sorry article
——————————————————————
GorskGeek blowshard and long about the FDA Form 483′s findings, but does NOT heed his massive failure to be persuaded that:
“In Burzynski’s defense, Jaffe notes that inspection reports represent preliminary findings“
“The FDA has not yet issued final conclusions”
——————————————————————
Who would doubt that if GorskGeek were to blog about Burzynski’s 1997 criminal trial, that he would NOT list each and every one of the 34 counts of mail fraud, 40 counts of violating Food and Drug Administration regulations, and the 1 contempt-of-court charge; all “allegations”, which netted the U.S. Gubment absolutely NOTHING ? [9]
——————————————————————
GorskGeek idolizes the Burzynski Research Institute (BRI) IRB, because of Burzynski’s scientific publications, which indicate:
——————————————————————
2003 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
3/2004 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
9/2004 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
2004 – Membership of Institutional Review Board (IRB) was in compliance with FDA guidelines [10]
——————————————————————
6/2005 – Membership of the Institutional Review Board (IRB) was in agreement with the Food and Drug Administration (FDA) [10]
——————————————————————
GorskGeek then does a piss-poor “slight of hand job”, jerking the reader off about Pseudoprogression, pseudoresponse, so-called pseudoprogression, and “One phenomena, termed Pseudo-Progression (psPD)”
GorskGeek falls flat face first for failing to show this phenomenon has factually happened [11]
GorskiGeek, looks like back to the drawerin’ board for you !
======================================
REFERENCES:
======================================
[1] – 11/18/2013 – Eric Merola and Stanislaw Burzynski respond to the FDA findings and the USA TODAY story. Hilarity ensues:
——————————————————————
http://scienceblogs.com/insolence/2013/11/18/eric-merola-and-stanislaw-burzynski-respond-to-the-fda-findings-and-the-usa-today-story-hilarity-ensues/
======================================
[2] – 11/18/2013 – The Burzynski Empire strikes
——————————————————————
http://www.sciencebasedmedicine.org/the-burzynski-empire-strikes-back/
======================================
[3] – 11/11/2013 – “The Amazing Meeting” (I don’t think it means, what you think it says it means): 2 Intellectually and Ethically Challenged Individuals, Twaddle at TAM 2013:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/11/www-amazingmeeting-com-www-randi-org-lanyrd-com2013tam-forums-randi-orgforumdisplay-php/
======================================
[4] – 11/19/2013 – Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Hyperactivity versus Hypernatremia, and Hannah Bradley):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/19/httpscienceblogs-cominsolence20131115stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board-2/
======================================
[5] – 2/18/2013 – Dr. Stanislaw Burzynski’s cancer “success” stories:
——————————————————————
http://www.sciencebasedmedicine.org/stanislaw-burzynskis-cancer-success-stories/
======================================
[6] – 6/14/2010 – In which Dr. Gorski once again finds himself a target of the “pharma shill” gambit
——————————————————————
http://www.sciencebasedmedicine.org/in-which-i-am-once-again-in-the-crosshairs-of-age-of-autisms-pharma-shill-machine-gun/
======================================
[7] – 11/29/2011 – Burzynski The Movie: Is Stanislaw Burzynski a pioneering cancer researcher or a quack?:
——————————————————————
http://scienceblogs.com/insolence/2011/11/29/burzynski-the-movie-subtle-its-not/
======================================
[8] – 2/18/2013 – As Josh Duhamel shills for the Burzynski Clinic, Eric Merola prepares to carpet bomb the blogosphere with nonsense:
——————————————————————
http://scienceblogs.com/insolence/2013/02/18/as-josh-duhamel-shills-for-the-burzynski-clinic-eric-merola-prepares-to-carpet-bomb-the-blogosphere-with-nonsense/
======================================
[9] – 9/25/2013 – Critiquing: National Council Against Health Fraud, Inc. – NCAHF News: JURY NULLIFICATION THWARTS BURZYNSKI CONVICTION:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/09/25/critiquing-national-council-against-health-fraud-inc-ncahf-news-jury-nullification-thwarts-burzynski-conviction/
======================================
[10] – 7/2/2013 – Burzynski: Institutional Review Board (IRB):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/07/02/burzynski-institutional-review-board-irb/
======================================
[11] – 11/20/2013 – Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (swell inflammation phenomenon):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/20/httpscienceblogs-cominsolence20131115stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board-3/
======================================
Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (swell inflammation phenomenon)
Liz Szabo’s USA TODAY “killer cancer” article as interpreted by “Orac” made 3 claims [0]:
——————————————————————
“Conventional cancer treatment can also cause tumors to swell temporarily,” [1]
“due to”
“inflammation,” [2]
“A patient who isn’t familiar with this”
“phenomenon” [3]
“may assume her tumor is growing”
——————————————————————
The issue with citing these 3 studies is that each then needs to be reviewed to determine if they have any relevance to the patients Burzynski has treated in the phase II clinical trials:
——————————————————————
[1] – 12/2009 – Pseudoprogression and pseudoresponse in the treatment of gliomas
——————————————————————
1. Has Burzynski treated patients with gliomas, brain tumours, or recurrent glioblastoma ?
——————————————————————
2. Has Burzynski’s patients been treated with combined chemo-irradiation with temozolomide which may induce in 20-30% ?
——————————————————————
[2] – 5/2008 – Clinical features, mechanisms, and management of pseudoprogression in malignant gliomas
——————————————————————
1. Has Burzynski treated patients with glioblastoma ?
——————————————————————
2. Have any of Burzynski’s patients been treated with temozolomide chemoradiotherapy ?
——————————————————————
3. so-called pseudoprogression
can occur in up to 20% of patients
——————————————————————
4. can explain about 1/2 of 20%
——————————————————————
[3] – In support of this “phenomenon”, the article provides a link to a Canadian web-site which
posits:
——————————————————————
“RT/TMZ is now widely practiced and the standard of care for appropriately selected patients, we are learning more about the consequences of RT/TMZ”
“One phenomena, termed Pseudo-Progression (psPD)…”
——————————————————————
The problem is that this only applies to “Glioblastoma Multiforme (GBM)”, and the article provides NO proof whatsoever, that any of Burzynski’s “Glioblastoma Multiforme (GBM)” patients have taken “RT/TMZ”
——————————————————————
Additionally, the site cites the reference as:
Sanghera, Perry, Sahgal, et al., “Sunnybrook Health Sciences Odette Cancer Centre” (in press, Canadian Journal of Neuroscience)
(“In press” refers to journal articles which have been accepted for publication, but have not yet been published)
However, the journal article in question was published 1/2010, so it has NOT been “in press” for over 3 years and 7 months [4]
——————————————————————
GorskGeek stupidly suppositories:
——————————————————————
“It’s very heartening to see a story like this in a major news outlet, and I must congratulate Ms. Szabo for her thorough deconstruction of the phenomenon that is Stanislaw Burzynski“
——————————————————————
GorskGeek, just because a great portion of Liz Szabo’s USA TODAY article quoted verbatim from The Skeptics™ play book, does
NOT mean she was anymore successful at “deconstructing” Burzynski [5], anymore than you have NOT
——————————————————————
GorskGeek then regurgitates:
——————————————————————
“Remember how I said that Bob Blaskiewicz will want your help?”
“Now’s the time to contact him, if you haven’t already”
——————————————————————
GorskGeek, Bob Blaskiewicz needs “HELP” in the same manner as you need “HELP”, because, as I have proved, you both act like compulsive liars
======================================
REFERENCES:
======================================
[0] – 11/15/2013 – Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board
——————————————————————
http://scienceblogs.com/insolence/2013/11/15/stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/
======================================
[1] – 12/2009 – Pseudoprogression and pseudoresponse in the treatment of gliomas
pseudo-phenomenona
——————————————————————
http://www.ncbi.nlm.nih.gov/pubmed/19770760/
——————————————————————
Curr Opin Neurol. 2009 Dec;22(6):633-8. doi: 10.1097/WCO.0b013e328332363e
——————————————————————
http://www.ncbi.nlm.nih.gov/m/pubmed/19770760/
——————————————————————
Department of Neuro-Oncology, Antoni van Leeuwenhoek Hospital/Netherlands Cancer Institute, Amsterdam, The Netherlands
======================================
[2] – 5/2008 – Clinical features, mechanisms, and management of pseudoprogression in malignant gliomas
——————————————————————
http://www.ncbi.nlm.nih.gov/pubmed/18452856/
——————————————————————
Lancet Oncol. 2008 May;9(5):453-61. doi: 10.1016/S1470-2045(08)70125-6
——————————————————————
http://www.ncbi.nlm.nih.gov/m/pubmed/18452856/
——————————————————————
Department of Neuro-oncology, Daniel den Hoed Cancer Centre, Erasmus Medical Centre, Rotterdam, Netherlands
——————————————————————
http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(08)70125-6/fulltext
——————————————————————
occurs more frequently and earlier after temozolomide chemotherapy than after radiotherapy alone
chemoradiotherapy
recurrent malignant glioma progression within 1st 3 months
======================================
[3] – What is Pseudo-Progression Following Treatment for Glioblastoma Multiforme?
——————————————————————
Phenomenon – Psuedo-progression (GBM), Brain Tumour Foundation of Canada
——————————————————————
http://www.braintumour.ca/1649/ask-the-expert-psuedo-progression-gbm
======================================
[4] – 1/2010 – Pseudoprogression following chemoradiotherapy for glioblastoma multiforme
——————————————————————
http://www.ncbi.nlm.nih.gov/pubmed/20169771/
——————————————————————
Can J Neurol Sci. 2010 Jan;37(1):36-42
——————————————————————
http://www.ncbi.nlm.nih.gov/m/pubmed/20169771/
======================================
[5] – 11/17/2013 – Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/17/httpscienceblogs-cominsolence20131115stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/
======================================
Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Hyperactivity versus Hypernatremia, and Hannah Bradley)
I’ve made no secret of how much I dispute David H. Gorski, a la “Orac”, the “self-proclaimed” brain cancer doctor and brain cancer researcher who has been treating readers with an unproven, unapproved, NOT ordinary chemotherapeutic agent since Jesus just left Chicago, bound for Nawlins, seemingly Elaphe longissima slithering around, under, over, and past all attempts to intestate him and shut him up
Along the way, GorskGeek has become a hero to the cancer hackery industry, touted as the man who can cure incurable insomnia that science-based medicine can’t, even though his treatment, insolence, allegedly pop tarts isolated from bloopers and Uranus that normally keep insomnia in check in healthy people, are by any reasonable definition NOT ordinary chemotherapy
Indeed, they are toxic, with a number of side effects reported, the most common and dangerous of which being life-threatening hyperactivity (elevated sugar levels in the blood)
All you have to do is to type GorsGeek’s name into the search box of this blog, and you’ll find copious documentation of the abuses of patience, science, and critical trials perpetrated by “Orac” and the cult of impersonality that has evolved around him
He’s even acquired his very own film perpougendist, a credulous fellow named Bob Blaskiewicz, who has made 2 astoundingly bad hackumentaries that are nothing more than unabashed hagiographies of the brave maverick doctor curing insolence where no one else can
They’re chock full of misinformation, pseudononsense, spin, and obvious emotional manipulation, and the 2nd one, at least, was very popular
For the longest time, I’ve been hoping that major mainstream news organizations would take this story on
——————————————————————
GorskGeek claims:
“Now, thanks to Liz Szabo at USA Today, we know from her article Doctor accused of selling false hope to families [1]:
“Yet hypernatremia is one of antineoplastons’ most common side effects, known to doctors for two decades”
——————————————————————
GorskGeek, of course, does NOT care to mention the 2 hypernatremia studies that I listed in the 2nd of my 3 critiques on USA TODAY’s “hatchet job” of Burzynski [2], because, as he accuses others:
THEY DO NOT FIT HIS NARRATIVE
——————————————————————
GorskGeek continues:
——————————————————————
“showed a blood sodium level of 205 millimoles per liter, a level that is typically fatal“
“I was astounded to see that number“
“I’ve never, ever seen a sodium level that high“
“Typically, normal is typically between 135 and 145 mEq/L, with slight variations of that range depending on the lab”
“Burzynski’s excuse, which I’ve heard at various times as being due to an “improper blood draw” or as described above, is purest nonsense”
“Unless the technician spiked Josia’s sample with 3% saline or something like that, there’s no way to get the leve that high”
“Josia almost certainly died because of hypernatremia from antineoplaston therapy“
“To me, this is the biggest revelation of the story:”
“The story and identity of the child who was killed by Burzynski’s treatments“
——————————————————————
I did NOT know that GorskGeek was the
Medical Examiner for the United States Food and Drug Administration
——————————————————————
GorskGeek is mistaken, as the “purest nonsense” is his nonsensical claim:
“I’ve never, ever seen a sodium level that high“
The reason GorskGeek has:
“never, ever seen a sodium level that high”
is because he’s a “hack”, who’s more interested in churning out as many blogsplats as he can, rather than doing real “science-based medicine” research
As evidence of MY claim, I submit:
——————————————————————
9/2004 – A Non-Fatal Case of Sodium Toxicity (Hypernatremia)
——————————————————————
“6 year old boy who was taken to the hospital following a seizure attack, and lab analyses revealed a serum sodium (Na+) levels of 234 mEq/L”
“A search of the boy’s house led to the discovery of rock salt in the cabinet and a container of table salt”
“Extrapolating from the serum sodium (Na+) level, it was estimated that the child had ingested approximately 4 tablespoons of rock salt, leading to the acute toxicity“
“A literature search revealed that the serum sodium (Na+) concentration in the present report was the highest documented level of sodium in a living person“
Non-Fatal 193-209 mEq/L have been reported previously [3]
——————————————————————
We also learn that—surprise! surprise!—GorskGeek is an enormous tool
(as opposed to having “an enormous tool” His cranium is too small to have “enormous tool”)
——————————————————————
GorskGeek then hacks:
——————————————————————
“Look at him dismiss his critics, particularly former patients, many of whom, let’s recall, have terminal cancer, many of whom are dead:”
“Burzynski dismisses criticism of his work, referring to his detractors as “hooligans” and “hired assassins.””
——————————————————————
GorskGeek, you are a “hooligan”, liar, lame, loser, et al.
——————————————————————
GorskGeek proceeds:
——————————————————————
“You know, whenever I hear Burzynski fans like Eric Merola accuse skeptics of attacking cancer patients, of accusing them of horrible things”
“I think I will throw this quote right back in their faces”
“Here’s Burzynski calling his patients prostitutes, thieves, and mafia bosses, and “not the greatest people in the world,” while accusing them of wanting to “extort money from us.””
——————————————————————
GorskGeek, LAME attempt at another LIE
Burzynski did NOT CALL his patients what YOU claim he called them
Let me repeat it for YOU, because I have the sneaking suspicion that YOU are “intellectually challenged”
Burzynski SAID:
“We see patients from various walks of life”
“We see great people”
“We see crooks”
“We have prostitutes”
“We have thieves”
“We have mafia bosses”
“We have Secret Service agents”
“Many people are coming to us, OK?”
“Not all of them are the greatest people in the world”
——————————————————————
GorskGeek, just in case you did NOT learn this at the University of Michigan, there is a difference between SAYING “WE SEE” and / or “WE HAVE”, and CALLING someone something
Allow me to provide you with a great example
If I SAY that YOU are the BIGGEST POMPOUS ASS I’ve ever seen, and YOU are NOT a BIG POMPOUS ASS, then THAT is derogatory
However, if I CALL YOU the BIGGEST POMPOUS ASS that I have ever seen, because you really and truly are a BIG POMPOUS ASS; as you are, then THAT is NOT derogatory
——————————————————————
GorskGeek tries again:
——————————————————————
“Not surprisingly, he also liberally uses the Galileo gambit, but that’s not surprising, as he’s repeatedly made the hilariously arrogant and scientifically ignorant claim that he is a pioneer in genomic and personalized cancer therapy and that M.D. Anderson Cancer Center and other world-class cancer centers are “following his lead.””
“Indeed, he claimed to have invented the field 20 years ago”
“Sadly, his publication record does not support such grandiose claims“
——————————————————————
GorskGeek, how would you know ?
You proved that you weren’t smarter than a 5th grader when you could NOT find Burzynski’s 1997 Antineoplastons, oncogenes and cancer [4]
——————————————————————
“Curious as to just what the heck Burzynski was talking about here, I searched PubMed for this alleged review article”
“I couldn’t find it on PubMed“
“Perhaps Burzynski proposed this “revolutionary” new idea in a peer-reviewed article that’s not indexed in PubMed, but if he did I couldn’t find it using Google and Google Scholar“ [5]
So why should ANYONE believe that you were able to locate the rest of his publications
and review all of them?
Now THAT would be a “grandiose claim”
——————————————————————
GorskGeek was also the village “idiot savant” (minus the “savant”) who face planted:
“how Burzynski never explains which genes are targeted by antineoplastons … “ [6]
GorskGeek must have fumed for days when he found I “fact-checked” his fluff and found it false: [7-8]
——————————————————————
GorskGeek hopes to wreak havoc when he harrumphs:
——————————————————————
“For instance, experts are saying the same things I’ve been saying for a couple of years now about Burzynski’s anecdotes of “miracle cures,” such as Hannah Bradley and Laura Hymas”
“The reasons for these anecdotes include:”
“Burzynski often relies on anecdotes, which don’t tell the full story”
“Burzynski’s therapies are unproven“
“Burzynski’s patients may have been misdiagnosed“
“Burzynski’s patients may have been cured by previous therapy“
“There’s a reason why I’ve spent so much time deconstructing Burzynski anecdotes, and it’s for all of those reasons plus that anecdotes are often interpreted incorrectly by patients without medical training”
“Even doctors who are not oncologists sometimes interpret such anecdotes incorrectly to indicate that the cancer therapy chosen is the therapy that cured the patient“
“It’s not just Burzynski patient anecdotes, but it’s any cancer cure anecdote“
“That’s why clinical trials are necessary to differentiate all these confounding effects from actual effects due to the treatment”
——————————————————————
GorskiGeek displays what an abject #FAIL he is, as the question he should be asking is:
Why is the Food and Drug Administration FORCING patients to #FAIL conventional treatments; such as surgery, chemotherapy, and radiation therapy, before being allowed to utilize antineoplaston therapy ?
If the FDA was NOT doing this, then GorskGeek and the “so-called experts” would NOT have this crutch to fall back on
GorskGeek, please list all the other phase II clinical trials where the F.D.A. has done this, and please also explain what would you do if the FDA did this to YOUR clinical trials ?
I know this might require some “Grapefruits” on your part, but do try and see if you can find yours in order to pull this off, if you’re NOT the coward I think you are
And when you’re done with that, please try to explain away the case of Jessica Ressel-Doeden
GorskGeek winds up for the pitch of bullshit
He ratchets back his right arm and rockets it right into his rectum, reaches ’round and pulls out this righteousness:
——————————————————————
“Not coincidentally, Hannah Bradley had surgery, chemotherapy, and radiation, and Laura Hymas had radiation and chemotherapy”
GorskGeek, Hannah Bradley NEVER had chemotherapy, unless you are now going to claim that by “chemotherapy” you meant antineoplastons [9]
Hannah specifically mentioned:
“Chemotherapy also mentioned but not strong enough for that” [10]
——————————————————————
GorskGeek:
“Even doctors who are not oncologists sometimes interpret such anecdotes incorrectly” ?
I think you meant, even breast cancer oncologist specialists who are NOT brain cancer oncology specialists interpret incorrectly, you JackASS
In insolence
DJT
======================================
REFERENCES:
======================================
[1] – 11/15/2013 – Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board
——————————————————————
http://scienceblogs.com/insolence/2013/11/15/stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/
======================================
[2] – 11/16/2013 – Critiquing: Doctor accused of selling false hope to families (USA TODAY NEWS, NATION, Liz Szabo, USA TODAY):
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/11/16/httpwww-usatoday-comstorynewsnation20131115stanislaw-burzynski-cancer-controversy2994561/
======================================
[3] – 9/2004 – A Non-Fatal Case of Sodium Toxicity
J Anal Toxicol. 2004 Sep;28(6):526-8
——————————————————————
http://www.ncbi.nlm.nih.gov/pubmed/15516309/
——————————————————————
http://www.ncbi.nlm.nih.gov/m/pubmed/15516309/
——————————————————————
======================================
[4] – 1997 – Burzynski. S.R. Antineoplastons. oncogenes and cancer. Anti-Aging Medical Therapeutics, Vol.1. Klatz RM.
Goldman R. (Ed). Health Quest Publication 1997; Marina del Rey, CA. USA
Pg. 24
——————————————————————
Click to access burzynski_fdauntitled_promo_2012.pdf
======================================
[5] – 12/5/2012 – Stanislaw Burzynski: On the arrogance of ignorance about cancer and targeted therapies:
——————————————————————
http://scienceblogs.com/insolence/2012/12/05/arrogance-of-ignorance-about-cancer/
======================================
[6] – 6/4/2013 – Stanislaw Burzynski versus the BBC:
——————————————————————
http://scienceblogs.com/insolence/2013/06/04/stanislaw-burzynski-versus-the-bbc/
======================================
[7] – 8/7/2013 – Critiquing: Dr. David H. “Orac” Gorski, M.D., Ph.D, L.I.A.R.:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/08/07/critiquing-dr-david-h-orac-gorski-m-d-ph-d-l-i-a-r/
======================================
[8] – 9/21/2013 – Critiquing: The Institute of Medicine report on cancer care: Is the system “in crisis”?:
——————————————————————
https://stanislawrajmundburzynski.wordpress.com/2013/09/21/critiquing-the-institute-of-medicine-report-on-cancer-care-is-the-system-in-crisis/
======================================
[9] – 10/25/2013 – Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies:
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http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html
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https://stanislawrajmundburzynski.wordpress.com/2013/10/25/hannah-bradley-i-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies-httpwww-telegraph-co-ukhealth10383724i-feel-empowered-in-control-of-my-body-fo/
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[10] – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
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http://m.gulfnews.com/i-ll-try-anything-to-beat-brain-cancer-1.981203
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Interview with Dr. Burzynski, M.D., Ph.D. Biochemistry (12/2002)
Interview with Dr. Burzynski (M.D., Ph.D. Biochemistry)
Interviewer: Gavin Phillips ©
Distributed 12.05.03
Anyone may post this interview to their website, as long as it remains
unaltered and freely available. Please place a link back to this webpage.
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This telephone interview with Dr. Burzynski was held in December 2002. The purpose of the interview is to inform people about Dr. Burzynski’s cancer treatment, Antineoplastons. It will be circulated for free on the Internet. I have no affiliations with Dr. Burzynski either personally or professionally.
Hello Dr. Burzynski. I would like to thank you for taking the time to inform people about your cancer treatment Antineoplastons, and your experiences in the area of cancer over the last 25 years.
Is it true that you were the youngest person in Poland in the 20th century to earn two advanced degrees, an M.D. (Medical Doctor) and Ph.D. in biochemistry at only 24?
I’m not sure if I was the youngest, I was among the youngest. In Poland, its 15 years average (Gavin. For a Ph.D.) after you receive an M.D.
What motivated you to come to the United States? When did you arrive here?
Well basically freedom. You see, I could easily stay in Poland. I was a prominent student, one of the best they ever had in medical school and certainly if I would become a member of the Communist Party I would accomplish a lot in Poland. But I didn’t want to be a Communist and after I declared, “forget it, I’m not going to be a Communist”, they persecuted me. So, practically, it would not be possible for me to do any research in Poland. I arrived in the United States on the 4th of September 1970.
You began working at Baylor College of Medicine in Houston?
I was not employed for 6 weeks, then I got the appointment at Baylor in the position of research assistant. A couple of years later I became Assistant Professor.
I have read that your cancer research was motivated by your observation of a cancer patient in Poland that was missing a particular peptide in their blood, is this correct?
Well Yes. First I discovered some peptide fractions in blood and then I was trying to determine their significance. This means that I was screening the blood samples from people who suffer from various illnesses, among them cancer patients. I found some remarkable changes in concentration of these Peptides in cancer patients. Basically there was a great deficiency of these Peptide fractions in the blood of cancer patients.
What are peptides and how did your research develop from there to developing Antineoplastons?
Peptides are chains of Amino Acids, so if you put together 2 Amino Acids, you have a Peptide.
You have said, “Cancer is really a disease of cells that are not programmed correctly. Antineoplastons simply reprogram them so that they behave normally again.”
They do, but we are not really interested in making normal cells out of cancer cells. What we are interested in is correcting one basic difference between cancer cells and normal cells, and this is the mortality of normal cells and the immortality of cancer cells. Cancer cells are immortal. And if you change them into mortal cells again they will die and the tumor will disappear.
I read a humorous part in Daniel Haley’s chapter about you in his book, “Politics in Medicine.” He says that initially you derived Antineoplastons from your friends blood, but had to change because your friends stopped coming around, is that correct?
Certainly it was difficult to obtain a lot of blood for the research. It was a necessity to look for a source that is widely available. I realized from the very beginning that once I use urine, my critics will use this against me; try to just smear me, “That’s the doctor who is using urine to treat cancer.” But there was no other way to do it.
There are plenty of ignorant remarks about your treatment because it used to be derived from human urine. The process you use now does not involve collecting human urine. Please describe the complete process you use.
Ever since 1980, we are using synthetic analogues of Antineoplastons, made in a state-of-the art biomedical manufacturing facility. These have nothing to do with urine or blood.
Would you describe Antineoplastons as natural?
They are natural of course, they exist in our body.
Your treatment does require a strong commitment from your patients as they must be infused with Antineoplastons for many weeks or months, is that correct?
But most of our patients are taking oral formulations. I would say that perhaps 15% of our patients are taking intravenous infusions of Antineoplastons; the rest take capsules or tablets.
The patients who have the most advanced type of cancer will require heavy dosages. There is a limitation of how much medicine you can take by mouth. Fifty or sixty tablets a day, that’s pretty much all you can take by mouth. But if you give intravenous infusion you can deliver the equivalent of 3,000 tablets a day.
You went into private practice in 1977. How was this funded?
Well, I started private practice in 1973. It was not necessary for me to have any funding, because I joined with other physicians.
Is it true that Dr. Mask at a hospital in Jacksboro, Texas ran your first human clinical trial? What types of cancers did you treat? What were the results of these trials?
I would not call it a clinical trial, because only two patients received initial treatment. They were very advanced, close to death and unfortunately, both of them died. But these cases were not lost because we found we can administer Antineoplastons without having bad side effects.
What is the general side effect experienced by your patients when using Antineoplastons? Does it damage the immune system as chemotherapy does?
We are not talking about one medicine; we tried 12 different pharmaceutical formulations. Basically it depends what formulation we use, but when we give them orally, we see practically no side effects at all. Patients may develop skin rash, which may last for a day or two.
But, when we give large dosages intravenously, we have to watch fluid balance…and electrolyte balance. We don’t see any delayed toxicity once the treatment stops. Everything practically goes back to normal within say a day or two. It does not even come close to the adverse reactions that you experience with chemotherapy.
What is the cost today for a patient using your treatment in a pill form and do insurance companies pay for it? *
Well basically, we do not charge patients for medicines, Antineoplastons are given free of charge. What we are charging for are supplies, and we are charging for standard services such as office visits, nursing services, Lab tests, consultation, evaluation etc. And these services are priced the same way as the average medical services, and they are covered by the insurance.
*(Gavin. Insurance companies will rarely pay for Antineoplastons, which is considered an experimental treatment. It also depends on the type of insurance plan someone may be on.)
So if a patient were using the pills, what would it normally cost per month.
About $2,000 a month.
Antineoplastons is most effective against brain cancer, is that correct?
Well, it’s not really correct. Because brain tumors are very difficult to treat, we concentrate our efforts on the toughest type of cancers. Out of our clinical trials, we have eight that came to the final point, which means they proved that there is some efficacy, and six of these are in various types of brain tumors. But there is another clinical trial, which deals with advanced colon cancer, which also proved efficacy and another one with liver cancer. But we still need to wait a little longer to have a larger number of patients treated and then statistically find out if this is going to work.
Basically the treatment works when we have involvement of the gene, which can be activated by Antineoplastons, and such genes, like gene p 53, are involved in 50% of all cancers. The treatment turns on gene p 53. So it has more to do with what kind of gene the patient has in his cancer cell, rather than the type of cancer.
Is there a special diet to follow when using your treatment?
Yes, since we are expecting there may be some changes in minerals, we usually emphasize a diet that is relatively low in sodium. We treat every patient individually. Every patient has a consultation with a dietary expert who tries to individualize his diet
Is your treatment being used in any other countries?
Yes, we have people coming to us from all over the world. I think we can probably count easily 70 to a 100 countries from which people are coming. But the main effort is now in Japan, outside the US. In Japan there are 2 clinical trials being conducted by Japanese doctors. Also, a group of doctors in Mexico obtained approval from the FDA and Mexican government to do clinical trials.
Now I have several related questions about brain cancer in children.
Dustin Kunnari and Dr. Burzynski. Dustin is one of Dr. Burzynski’s great success stories.
Dustin had brain surgery at 2 ½ years old. The surgery removed only 75% of the tumor.
Dustin’s parents, Mariann and Jack, were told that Dustin would only live for 6 months. Chemotherapy and radiation may extend Dustin’s life slightly, but at a very high cost in quality of life with very serious side effects.
Mariann and Jack decided to look into alternatives. They found out about Antineoplastons and after only 6 weeks of intravenous treatment, Dustin’s MRI showed he was cancer free.
One year later another tumor appeared on the MRI. By this time Dr. Burzynski had developed a more concentrated form of Antineoplastons. After 5 months the tumor was gone. Dustin has remained cancer free ever since and was taken off Antineoplastons when he was 7. Dustin is 12 today.
About how many children suffer from brain cancer in the US each year?
The statistics are available for 1999. The new cases of brain tumors in children were counted as 2,200. Now around 3,000, I would say.
Approximately what percentage of children is still alive after 5 years using orthodox treatments for brain cancer?
It depends on the type of tumor and it’s location, some of the toughest are those that are located in the brain stem. Up to 5 years, you have practically no survival when you use the best treatment available, which is radiation therapy. Chemotherapy usually doesn’t work for such patients. After 2 years, 7 % survival. After 5 years, practically none.
Dustin, after brain surgery.
To further complicate matters, Dustin’s oncologist kept threatening his parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment.
This continued for a year, even after Dustin’s success with Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Is it correct to say you have had very good results when treating brain cancer in children?
Yes we have. I gave you the example of the toughest, which is located in the brain stem. We get about 40% survival rates after two years. After 5 years at the moment we have about 20% survival rate. The reason is that most of the patients who come to us, have received prior heavy radiation therapy, or chemotherapy. They usually die from complications from these treatments. Those who survive the longest are patients who previously did not receive radiation therapy or chemotherapy. The longest survivor in this category is now reaching 15 years from the time of diagnosis; and she’s in perfect health.
With the more common variety, which is aciotoma located outside the brain stem, we get much, much better. We have 75% of patients who are objectively responding to the treatment. This means that the tumor will disappear completely or will be reduced by more than 50%.
This is another strong point. It’s extremely important. Children are usually damaged for life after radiation therapy, when we can avoid it and bring them back to life.
What criteria must parents of children with brain cancer meet before being able to have their children treated by you?
Well, practically all of these brain tumors must be inoperable. This means that it’s not possible to remove them with surgery. Except for one category, they should have advanced disease. The tumor should have the size of more than 5 mm in diameter and be located in a place that cannot be operated upon.
There is one category of these tumors, medulloblastoma, where the FDA requires that the patients would receive prior standard treatment and fail before we can accept them. In the rest of these children we can accept them without failure of prior treatment.
Roy , a more recent patient of Dr. Burzynski’s.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Let us talk a little about some of your most successful stories using Antineoplastons with children. Probably the most remarkable case is that of Tori Moreno . In August 1998 Tori was diagnosed with a stage 4 brainstem glioma that was inoperable. Her parents were told she would die in a few days or at the most, a few weeks. When did you start treating her?
Tori had Stage 4 brain stem glioma. The tumor was too risky for surgery. She was diagnosed shortly after her birth. The tumor was very large, about 3 inches in the largest diameter and located in the brain stem. Her parents consulted the best centers in the country and they were told there was nothing to be done. So finally she was brought to us, when she was about 3 ½ months old. This was in October 5 years ago. She was in such condition that we were afraid that she might die at any time. Fortunately she responded, and about 5 months later we determined that she obtained a complete response, which means complete disappearance of active tumor by
MRI criteria. She is a perfectly healthy child and tumor free. She still takes small dosages of capsules of Antineoplastons, but we will discontinue this shortly.
Tori Moreno 9.28.98. Temporarily enlarged due to taking Decadron.
Tori’s parents were told there was nothing that could be done for her and she would be dead in a few weeks.
Tori is alive and well today thanks to Antineoplastons. See photo below.
At the end of this interview, there is a short interview with Kim Moreno, Tori’s mother.
Kim Moreno has set-up a Yahoo e-mail account to answer peoples cancer related questions.
kimmoreno5@yahoo.com
And today she is over 5 years old?
Yes, she’s 5 years old and living a pretty much normal life.
Tori 22.10.02. A perfectly healthy child. Orthodox treatment consists of high does of radiation therapy and possibly toxic chemotherapy as well. Most of the children are dead in a few years. The ones that survive suffer from permanent retardation, along with other serious side effects from the radiation.
Please do not forget about the interview with Kim Moreno, Tori’s mother, at the end of this interview.
But mainstream medicine has been trying to kill the cancer cell using chemotherapy and radiation, is that correct?
That’s right, yes.
Chemotherapy and radiation cannot differentiate between healthy and cancerous cells?
They can differentiate to some point, but basically, this difference is very small, so ultimately, the normal cells will be killed.
Is that why they have such a terrible effect on the immune system?
That’s right, not only the immune system, but also many other systems in the body. Practically, the treatment is destroying healthy parts of the body.
Chemotherapy and radiation also cause cancer, don’t they?
Yes. For instance right now we see a lot of patients who in childhood were successfully treated for leukemia or for Hodgkin’s disease. Then they develop cancer that is practically incurable, like lung cancer, breast cancers; I even encountered a patient in my practice that developed three different types of cancers, and was only 28 years of age. First she was treated for Hodgkin’s Disease, then she developed bone cancer in the places which were radiated for Hodgkin’s Disease, and then she developed breast cancer after that; it’s really horrible. So there is increased incidence of secondary cancers in patients who were treated previously with chemotherapy and radiation.
Shontelle Huron. In remission for several years after using Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons. maryjo@siegel.net
Ric and Paula Schiff write about the torture their daughter Crystin had to endure during chemotherapy/radiation treatment.
Crystin was diagnosed with perhaps the most malignant tumor known, which is a rhabdoid tumor of the brain. Of course, historically, there was no case of such a tumor ever having a long response to chemotherapy or radiation therapy. She received extremely heavy does of radiation therapy and chemotherapy, because nobody expected that she would live longer than a year or so. So unfortunately she was terribly damaged with this. She responded very well to Antineoplastons. We put her in complete response. But unfortunately she died from pneumonia. Her immune system was wiped out, so when she aspirated some food, she died from it. The autopsy revealed that she didn’t have any sign of malignancy.
But there are also likely permanent severe health concerns related to taking chemotherapy and radiation.
In young children there is permanent damage to the brain. Unfortunately some oncologists who are dealing with such cases are really cruel to the parents, because they are saying, “well, your child will survive, but you are going to have a jolly idiot for the rest of your life.”
Is it true that if parents refuse chemotherapy/radiation treatment for their children the hospital, via the courts, could have the child removed from the parents care and forced to take chemotherapy/radiation treatment?
Yes, unfortunately in some States, the law may require taking children away from the custody of the parents to send them to such treatments.
Jared Wadman. In remission for several years after using Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Isn’t this what happened to Donna and Jim Navarro when they chose your treatment over orthodox treatments?
That is correct. Thomas Navarro was diagnosed with medulloblastoma. He was operated on and the tumor was removed. Then he was scheduled for radiation therapy. Since he was only 4 years old, the parents knew that he’d be damaged by radiation therapy. Nobody at his age survives this type of tumor anyway after radiation therapy. So that’s why they decided to come to our clinic. Unfortunately I could not treat him because FDA requires failure of radiation therapy for such patients.
And tragically he died in November 2001.
What happened was, the parents decided not to take any treatment. We asked the FDA several times to allow administration of Antineoplastons, because we have already had successful treatments for some other children without any prior radiation. Then ultimately he developed numerous tumors in May the following year. Then we suggested to the parents of Thomas, that if they are not going to take our treatment, they should go for at least chemotherapy. They went for chemotherapy to one of the best centers in the country, to Beth Israel Hospital in New York. The chemotherapy was successful, but he almost died from it. It severely affected his bone marrow. I remember a phone call from Thomas’s father telling me that the doctors are thinking that they won’t do anything else for him and that Thomas will die within a week because of severe suppression of bone marrow.
But I encouraged his father to do whatever is possible because such patients may turn around. Fortunately he turned around, but about a month or two later he developed 15 tumors in the brain and the spinal cord. Then, when he was close to death, when nothing was available for him, the FDA called us and told us now we can treat Thomas. When we treated Thomas he survived 6 months, and the tumors had substantially decreased, but ultimately he died from pneumonia.
Is it accurate to say that the initial orthodox treatment for brain cancer is surgery to remove the tumor?
If the tumor is located in the proper part of the brain. For some locations it is out of the question. But, you are right, that is the first step.
Does surgery alone ever cure a patient with brain cancer?
Well, some cases, with benign brain tumors, when the tumor can be completely dissected, yes, it’s possible. But in most cases it’s not possible.
How much of a risk does surgery present regarding spreading the cancer more quickly and other complications?
Well, not so much regarding spreading the cancer more quickly in the case of brain tumors. Such a spread may happen only with a small percentage of brain tumors that have the highest aggressiveness. But for most of the patients the tumor is not going to spread just because of surgery. Certainly surgery may damage the brain and patients may even die during the surgery. It’s not the ideal thing to do of course because you are removing the tumor and you are removing a healthy part of the brain at the same time. The patient may be permanently damaged by such procedures.
Would you warn against rushing into surgery in light of how effective your treatment is? Would you most times recommend trying your treatment first?
We really would like to know what we are dealing with. This means that we would like to have at least a biopsy; if by chance it’s not going to create sufficient risk for the patient. If the tumor was located in such a place in the brain where surgery is possible, then certainly we could try to remove the tumor. But I think it would be best if we can treat the patient with brain intact and get rid of the tumor completely, because then we risk the least damage possible.
Now I will turn my attention to your legal battles with the FDA. They began in 1983 when they sued you in civil court, is this correct?
In 1983, that was the first court battle with the FDA. The FDA sued us. It took about 6 weeks in court and again, we won.
Then there was an enormous raid by the FDA at your offices on July 17, 1985. What was the reason for this raid?
We were never given a reason. I think there was a concentrated action against a few alternative medicine centers because at the same time there were similar actions in the Bahamas and in some other places.
In the four court cases the FDA has brought against you, have any of your patients testified against you?
Well, on their own will, nobody testified against us. But the FDA encouraged some of our patients, and threatened them in various ways. They forced them to come to the witness stand. But really, once they were on the witness stand they behaved more like our witnesses, not FDA witnesses.
According to Daniel Haley, after the FDA lost its last court case against you in 1997, Congressman Richard Burr said it was “one of the worst abuses of the criminal justice system”. Did Burr ever speak to you about it?
Yes, we talk with Congressman Burr. I believe he is right, because certainly there was no reason for such massive action on the part of the FDA. They knew that the treatment works; that the treatment helps patients, that the patients will die if they win, so they should not do it. All of this was with the taxpayer’s money.
So the FDA has wasted many millions of taxpayer dollars trying to convict you on false charges of transporting Antineoplastons across State lines. What was the motivation for this vendetta?
Well, it’s hard to tell, because it was never properly investigated; why they did it. But, we have some leads. For instance, on one side you have a large pharmaceutical company, which was very interested in getting hold of our patents; this is Elan Pharmaceutical. It happened that I treated successfully a close relative to the CEO of Elan. Elan became very interested in what we have. They came close to signing a final license agreement. But after they learned what we have, they decided to withdraw and then suddenly the FDA and NCI gave their full support to Elan, to do clinical trials with one of the ingredients of Antineoplastons, phenylacetate.
This was a large pharmaceutical company that was trying to appropriate my invention. On the other hand, within the FDA and NCI you have had people who were working closely with this company. For instance Mary Pendergast, who was responsible for the legal action against us, became Vice President of Elan. Also Doctor Michael Friedman, who was initially in charge of NCI cancer research, and who knew that our treatment works, later became commissioner of FDA and he did whatever he could to put us out of business. Not only that, but to simply destroy me.
On the other hand, suddenly the government decided to file for the patents, which claimed the same thing that our patents did. Never in the history of the United States do you have the issuance of two patents for the same invention. It was really a breach of patent procedure. The patent office allowed them to patent something I invented, and which I patented. And dishonest scientist Dr. Dvorit Samid, who initially worked for us, was receiving funds from us and finally went for the higher bidder (Elan).
So you have a lot of leads, which indicate that there was something between the government, dishonest scientists like Dvorit Samid and the large pharmaceutical company, Elan. And it was in best interests for them to get rid of me, destroy me, so they could appropriate my discoveries and benefit from that.
When did you initially apply for your Investigational New Drug (IND)?
We applied in May 1983.
When did you receive it?
Well, it took an extremely long time. Ultimately most of our clinical trials began in 1996, a long time after that. FDA did not allow us to proceed with clinical trials for an extremely long time. Please click here to read the
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Tony Tondelli. In remission for several years after using Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
It is important for everyone to understand the economics of the drug industry. I have heard that the cost today for bringing a drug to market is upwards of 500 million and takes about 12 years, is that true?
Yes, you’re right.
The drug company is then given a 17-year patent so that it can make a profit on the drug. It is little wonder the drug companies fight against natural treatments such as Laetrile, because they are unable to patent them and they pose a serious threat to their profit margins. But you are able to patent your treatment, so why was there no interest in it from the drug companies?
Basically you have 17 years from the time when you have approval of the patent and this is independent from FDA’s approval process. You file the patent, once you make a discovery, and then you go through FDA procedure. You spend say 12 years or 15 years for the approval process, then you have only 2 years license from the FDA, because license is going to expire in another 2 years. Certainly the pharmaceutical companies are spending a lot of money in this process.
In our case I decided to develop this on my own, to generate money from my private practice and use the money to support the research of Antineoplastons. Again we were approached by many different pharmaceutical companies, which were interested in working with us. Certainly after the bad experience (with Elan) we are very cautious with whom to deal. On the other hand pharmaceutical companies were afraid of action from the FDA.
The NCI put off testing Antineoplastons using the fact that it failed their standard P388 leukemia mouse test, is that correct?
Yes
What is the P388 leukemia mouse test and why did Antineoplastons fail it?
Well we had informed the NCI that this was a bad type of test for antineoplastons. Antineoplastons seems to be specific for species. Different animals have different antineoplastons; mice have a different composition of antineoplastons than humans. Practically, human antineoplastons may work well in humans, but they may not have much activity in mice. We knew this, even before the NCI began testing. On the other hand we didn’t have good results at all in the acute form of leukemia and we didn’t even accept such patients. It was known that if they only do this type of test, it was not going to work. They still tested and used this to say that Antineoplastons don’t work against cancer. Certainly the fact that something works or doesn’t work against mice leukemia is irrelevant.
I’d like the reader to bear with me in the next few questions, as the point will become clear. One of the chemicals you identified in the peptides was phenylacetate. But it was far inferior to the others and you chose not to patent it, is that correct?
This is not a peptide, this is a metabolite of our antineoplastons and it’s an organic acid. So this is a final metabolite of antineoplastons. It has some anti-cancer activity, but the weakest of all antineoplastons. We knew about it and that’s why after some preliminary experience in the treatment of phenylacetate back in 1980, we decided that it’s not worth pursuing this and then we used antineoplastons that have higher activity.
But didn’t you later find out that the NCI actually holds the patent for phenylacetate?
You’re right. NCI is the owner of the patent, Dr. Samid is the author but Elan has the license to use these patents. All of these three work together.
Why did the NCI patent something that was far inferior to your other Antineoplastons?
Because they knew that this was the only chance that they can get hold of something which has to do with antineoplastons.
The NCI ran clinical trials on phenylacetate in 1992 and found it to be worthless, is that correct?
Well, the clinical trials began in 1992 but it took a few years to have the results. It shows some effectiveness in brain tumors and in prostate cancer. But of course it was far away from the results that we can get with antineoplastons.
When did the NCI eventually start clinical trials of Antineoplastons?
In 1994.
I assume you gave the doctors running the trials all the information about correct dosages, is that true?
Yes, well, basically they used dosages that were 50 times lower than what we feel are effective dosages. We have some patient’s relatives who were present when the treatment was administered. Formulations of antineoplastons were badly diluted. This means that the patient was receiving very little antineoplastons and some of these patients were removed from the treatment after a short period of time because they were overloaded with fluid. Well normally we see fluid overload in perhaps less than 2% of our patients. So it makes sense that perhaps the formulations of antineoplastons were diluted and when the Mayo Clinic (1999) determined the concentration of antineoplastons in blood, we realize that it was something like 50 times lower than what it should be.
Do you think the NCI purposely sabotaged your trials?
I have no doubt about it. They sabotaged the trial; they accepted patients who were too advanced. Their main effort was to give a low dose of the medicine for a short period of time and to stop treatment just for some minor problem, like if a patient developed a skin rash. They were trying to give the treatment only for a very short period of time, like for instance a couple of weeks or a month. And then of course the patient was dying after that. It was completely unethical, it was horrible. As you probably heard recently, the pharmacist who was diluting an anti-cancer drug, was sentenced to 10 years in prison. I think the same should happen to these guys who really were trying to use this for their political manipulations.
Jessica Kerfoot. In remission for several years after using Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
How much influence do the pharmaceutical companies wield in medicine in the US?
Extreme influence. Most of the oncologists, I’m talking about reputable oncologists, they work for pharmaceutical companies, they work in clinical trials, they receive various type of incentives from pharmaceutical companies. And basically these doctors are approving medicine, FDA may approve the medicine, but finally this advisory board may advise FDA to go ahead with this or do not approve that medicine. So really the doctors who are deciding if the medicine should be approved or not, practically all of them have some type of relation with large pharmaceutical companies.
Is there a conspiracy to suppress other treatments or is it just a case of avaricious businesses, the pharmaceutical and hospital industry’s, doing everything in their power to protect their bottom line?
Well certainly they have a lot of power. When I filed my application for IND, the standard FDA policy was such that they would never approve a new drug for an individual owner, only for the large pharmaceutical companies. And that’s why I believe we waited for such a long time to receive the go-ahead for our clinical trial. So certainly there were obstruction tactics. Whether this is a conspiracy or not is hard for me to tell. As you can see, the leads which I presented, like for instance a researcher who worked for me initially and then decided to go to the higher bidder, which was a pharmaceutical company; then the relationship between the pharmaceutical company and governmental agencies. All of this indicates that there is some type of conspiracy. I think a Congressional committee should study this.
Turning our attention to the doctor/oncology profession. When reading Thomas Elias’s excellent book, “The Burzynski Breakthrough”, I was struck by how many times patients said that their oncologists were aggressively opposed to them taking your treatment.
Even after a patient’s success with your treatment, very few doctors give you the credit. Is this due to jealousy, arrogance, plain old denial or something else?
Probably a lot of arrogance. We have some prominent specialists, the best specialists in the world who really acknowledge our results and would like to work with us. On the other hand you have some doctors who hate to see a patient with success on our treatment. The fact that the patient is coming to their office, years after the patient should be dead, is something like a slap in the face. They hate it.
They will do everything they can to lie, to obstruct the information about this patient. We have a lot of evidence that oncologists were lying about the patient’s condition. For instance the patient recovered completely from highly malignant cancer and the oncologist was telling us the patient died from cancer. So certainly, we have a lot of evidence about some of these doctors who are dishonest, who are liars, who cheat. But on the other hand you can’t really put the same label on the entire profession. There are many other doctors who are honest and who like to know about what we have. Of course our clinic has board certified oncologists who are taking care of our patients.
I found an interesting quote by David Stewart, a philanthropist who helped fund Gaston Naessens cancer research in the 70’s. He says,
“I can say categorically that most scientific researchers with whom I have had to deal are highly opinionated, arrogant, condescending, and have built-in, insurmountable prejudices.”
Would you agree with these sentiments? What have your experiences been?
Well certainly, I think he’s right; unfortunately that’s the truth.
We spoke about Crystin Schiff briefly before. This is a particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s brain tumor, Prados replied in the negative. But a few years before, he had sent you 14 letters documenting the effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer. Is this story true?
Yes, it’s true; of course Jeff Keller had an extremely malignant brain tumor. He had a high-grade glioma of the brain; he failed radiation therapy and additional treatments. He responded extremely well to our treatment. He was one of the patients whose case was presented to the NCI. So there was no doubt about his response. Dr. Prados knew about it. If he was dealing with a hopeless tumor like Crystin Schiff, why didn’t he call us?
Ryan and mother Cindy. Ryan is in remission for several years after using Antineoplastons.
Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Do you know why Prados did not tell them about Keller’s success with your treatment?
It’s hard for me to tell. It happens that Dr. Prados and Dr, Friedman, who became the boss of the FDA, came from the same medical school. So they work closely together, and perhaps there is something to do with the general action against us. It would be inconvenient for Dr. Prados to say that the treatment works if FDA was trying to get rid of us and when his friend was Commissioner of the FDA at that time. Perhaps that’s the connection….
One of your greatest critics is Saul Green (Ph.D. Biochemistry), a retired biochemist from Memorial Sloan Kettering. In 1992 the Journal of the American Medical Association (JAMA), published Green’s article, “Antineoplastons: An Unproved Cancer Therapy.” What were his conclusions about Antineoplastons?
Well, Green is not a medical doctor, he’s a retired biochemist; he never reviewed our results. He got hold of some of our patents and that’s what he based his opinion on.
He was hired by another insurance company (Aetna) that was in litigation with us. He’s like a hired assassin. Not telling the truth. So really to argue with him is good for nothing. Even if something were completely clear he would negate it. He is simply a guy who was hired by our adversaries. He would do whatever they paid him to do.
Paul Leverett was diagnosed with a glioblastoma multiforme grade 4 brain stem tumor in May 1999. The prognosis was that he would probably be dead before the end of 1999. Orthodox medicine gave him no hope of survival.
Paul was given the maximum amount of radiation he was capable of receiving. It slowed the tumors growth slightly, but this did not alter Paul’s prospects for survival at all.
After completing some research on the Internet Paul learned about Dr. Burzynski’s Antineoplastons. Paul began taking Antineoplastons intravenously, administered by his wife, in September 1999. After 6 weeks Paul’s tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks.
A PET scan in December 2000 confirmed that Paul was in complete remission. He stayed on Antineoplastons until August 2001 to ensure the tumor would not reoccur. There is just under 20% tumor necrosis remaining in his brain stem, which is probably scar tissue.
Paul’s oncologist (at MD Anderson, Houston) initially wanted to show his scan’s to his hospitals (MD Anderson) tumor review board. But then, for whaever reason, he refused further contact with Paul and did not go ahead with it.
The photo was taken with his wife Jennie. Paul had a web site created in order to inform people about his cancer experiences.
http://www.dontevergiveup.com
E-mail: pjleverett@ev1.net
Did Green ask to look at your patients’ files or even talk to any of your patients themselves?
No.
You responded with an article with 137 references, did JAMA publish even part of it?
JAMA refused to publish the article. They decided that they would publish a short letter to the editors. And obviously this is another dirty thing, because letters to the editors are not in the reference books. If you look in the computer and try to find letters to the editor from JAMA, you’ll never find it. So people who are interested will always find Green’s article, but they will never find our reply to Green’s article, unless they go to the library. Then they can look in the JAMA volume in which the letter was published, and then they will find it. So many doctors were asking me why I did not respond to Saul Green’s article because they never found my letter to the editors.
Are they obligated to publish your rebuttal?
Certainly they are, because they put Green’s article in JAMA in the first place, they accepted it without any peer review and then they did not allow me to honestly respond to it. I should be allowed to publish my response to the article in JAMA.
At the time of the publication Green was working as a consultant to Grace Powers Monaco, Esq., a Washington attorney who was assisting Aetna insurance agency in its lawsuit against you. What was the Aetna lawsuit about?
One of our patients sued Aetna because Aetna refused to pay for my treatment. Then Aetna got involved and Aetna sued us. Aetna really became involved in what you can call racketeering tactics because they contacted practically every insurance company in the US. They smeared us, they advised insurance companies to not pay for our services. So based on all of this, our lawyer decided to file a racketeering suit against Aetna. This was a 190 million dollar lawsuit against Aetna. So certainly Aetna was trying to discredit us by using people like Saul Green. And they hired him to work on their behalf.
So there was an obvious conflict of interest for Green because he worked for Monaco who was assisting Aetna. Was this information published in the JAMA article?
No.
Green also questions the fact that you have a Ph.D.. At the American Association for Clinical Chemistry Symposium, July 1997, Atlanta, GA., he says in part
“Burzynski’s claim to a Ph.D. is questionable. Letters from the Ministry of Health,
Warsaw, Poland, and from faculty at the Medical Academy at Lublin, Poland, say,
respectively:
1. At the time Burzynski was in school, medical schools did not give a Ph.D.
2. Burzynski received the D.Msc. in 1968 after completing a one-year laboratory
project and passing an exam. (3) Burzynski did no independent research while in medical school.”
He cites the people below as giving him some of this information.
1. Nizanskowski, R. ,Personal communication. Jan 15, 1992.
3. Bielinski, S., Personal communication, Nov. 22, 1987
First of all, do you have a Ph.D.?
Well, the program in Poland is somewhat different than the US. What I have is equivalent to a US Ph.D. When a medical doctor in the US graduates from medical school, he receives a medical doctor diploma. In Poland it’s a similar diploma, but it’s called a physician diploma, which is equal to medical doctor. And after that, if you would like to obtain a Ph.D., you have to do independent research, both in the US and in Poland. So you have to work on an independent project, you have to write a doctorate thesis and, in addition, to that in Poland, you have to take exams in medicine, in philosophy and also you have to take exams in the subjects on which you have written your thesis, in my case this was biochemistry.
As you can see from the letter from the President of the medical school from which I graduated, this is a Ph.D..
Saul Green got information from the guys who were key communist figures in my medical school. The second secretary of the communist party in my school, hated my guts, because I didn’t want to be a communist. So, somehow, Green got hold of “reputable” communist sources (laugh) to give him that information. It is exactly the President of the medical school who certified that I have a Ph.D..
So you are saying that theses people he received his personal communication from, Nizanskowski R, and Bielinski S, are both Communists, is that correct, or they were?
Not only communists, but Bielinski was one of the key players in the communist party in my medical school. So certainly he was extremely active as a communist. And, you know that communists, they usually don’t tell the truth.
So there is absolutely no question about it, you have a Ph.D. and Green’s doubts are totally without foundation. Has he ever acknowledged publicly the fact that you have a Ph.D.?
He’s never got in touch with me regarding this.
There are some mainstream oncologists who have stated publicly that your treatment works such as Dr. Robert Burdick, oncologist and professor at the University of Washington Medical School.
He is one of the top experts in this field.
Dr. Burzynski, there are undoubtedly many people alive today solely because of your treatments, but there could be many hundreds or thousands more alive if the public was given free access to your treatment. Do you see this ever happening?
I see this happening within a few years. We already have 8 clinical trials that prove efficacy of the treatment. However, we still need to treat more patients, because in each of our clinical trials it is required that we treat 40 patients. If we are talking about 78 clinical trials, then the number of patients that need to be treated is about 3,000. We are moving forward, probably in another 2 to 3 years we will have final approval.
A group shot of some of Dr. Burzynski’s patients. Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
You have fought the government on behalf of your patients’ rights for over 25 years. There must have been a few times when you considered calling it quits. What has sustained you over the years and kept you fighting?
Well you see, basically the principle. Certainly I could practice just regular medicine and not
spend millions of dollars for the research, which I did. And I could go to some other country and practice. But I feel that this is my obligation because what I am doing is right. I’m saving peoples lives. So why should I give in to some mediocre characters, to liars, to people who really misrepresent what I do. And if I fail, then America will fail also. Because really America is the bastion of Democracy in the world. If America is rotten, then the whole world will go down to hell. So if something is rotten in the Patent office, in the NCI and FDA, it is the duty of the citizen to show that this is rotten and should be corrected.
There are a number of good people who can make it work, so why should bad people erode and destroy the entire system. I felt that this was my obligation; I felt that I was right and even if I had to go to prison, I would fight for it, because this is the right thing to do. Otherwise I could not look at myself in the mirror. I would despise myself.
Do you think we will we ever have medical freedom of choice in the US, where we can choose whatever treatment we want for cancer?
I am not sure if this will ever happen. But at least I am hoping that the movement, which we pioneered, like this alternative medicine movement, will bring a lot of good to the American people. After all, now you have official recognition of alternative treatment, more or less, and this is because of our fight. If we wouldn’t fight at that time, then perhaps it would not happen, but maybe it would happen another ten years from now.
Standard medical practices and the observations of physicians who are outside the medical establishment are extremely important, because anybody can make a discovery and improve the health of people. This I think is an important movement, but whether the people of America will ever have a chance to select whatever treatment they want, is another story.
Finally Dr. Burzynski, a hearty thanks to you for keeping your treatment available to cancer patients, for keeping your oath as a doctor and putting the patient ahead of financial gain, and of course, for saving lives. Please keep up the great work. Thank you for giving me the time to conduct this interview and inform people about your work and treatment.
Thank you.
End of interview.
Gavin.
Please be aware. Orthodox medicine often states that people who have recovered from cancer by unapproved methods did so due to a “spontaneous remission”. This means that the cancer just disappears for no apparent reason. First of all, I do not know of any documented cases of spontaneous remissions in brain cancer. In other serious cancers it is so rare as to be unworthy of discussion.
But here is the most crucial point. A true spontaneous remission is when the cancer goes away without any treatment, either approved or unapproved. It’s absurd to suggest that someone who received large amounts of Antineoplastons, and is then cancer free, had a spontaneous remission. If someone has surgery to remove a tumor and they are cancer free for years, we know it was because of the surgery.
Also remember that in many cases cancer patients turn to Antineoplastons (and other so-called alternatives) after chemotherapy and/or radiation have failed. If the patient goes into remission, oncologists often state that it was a delayed response to their treatment. This is a very convenient situation for oncologists. When their treatments fail, they still claim the credit for the patient’s recovery, even after the patient has been on Antineoplastons (or other treatments) for months/years.
Read about Dr. Burzynski’s treatment from the most important sources, the patients who had cancer and who are alive today because of Antineoplastons. The Burzynski Patients Web Site
http:// http://www.burzynskipatientgroup.org
Dr. Burzynski’s clinic can be reached at 713-335-5697.
His web site is http://www.cancermed.com
Kim Moreno’s short interview is below.
Kim also has an e-mail account she specifically set-up for people to contact her about her experiences with Dr. Burzynski, oncologists, Antineoplastons and cancer treatments in general. Any e-mail unrelated to these subjects will be deleted.
kimmoreno5@yahoo.com
Gavin Phillips non-profit web site
http://www.cancerinform.org
Some other Internet links that may be of use to you in your research.
While searching the Internet for links related to Koch’s glyoxylide, I found a recent article on Dr. Mercola’s web site related to a drug called Methylglyoxal (the lead ingredient, which is a metabolite in our body) that has been tested in India for over ten years. Please see,
http://www.mercola.com/2001/jun/13/methylglyoxal.htm
Interview with Kim Moreno
Thank you for taking the time to inform people about your family’s experiences while your daughter Tori was taking Antineoplastons.
Tori was first diagnosed with a Stage 4 brain stem glioma in August 1998, is that correct?
Yes
What was the prognosis?
The doctor’s basically told us to take her home and prepare for her to die.
Were there any records of anyone surviving with this type of cancer, using orthodox treatments?
None that they could provide us with.
How many cancer centers did you visit?
We originally were at Miller’s Children at Long Beach Memorial and then went to City of Hope. We also sent her MRI’s to Dr. Fred Epstein in New York to be looked at.
And they all said the same thing, Tori’s brain cancer was fatal and nothing could be done? How long was she expected to live?
Yes, they all said there was nothing we could do. She was given 2-6 weeks to live.
How did you find out about Dr. Burzynski and Antineoplastons?
On the Internet on a brain tumor support group. We read a letter from a father whose daughter was on the treatment.
Did you ask your doctors about Burzynski? Had they heard of him or researched his treatment?
Yes, we asked all of them about it. Most frowned at the idea, the oncologist refused to see her if we took her to see Dr. Burzynski. The only one who told us that he thought Dr. B might have a good chance with helping us was Dr. Fred Epstein.
When did you first visit him?
In October 1998
Did he tell you he could cure Tori?
No. He said he thought Antineoplastons would help her, but he wasn’t sure he had enough time. He was very upfront and honest with the statistics he had with her type of cancer but offered no promises.
How much Antineoplastons was Tori taking?
I can’t even remember what dose she ended up on when she was taking it intravenously.
What were the side effects? In the photos you sent me, Tori is greatly enlarged, I assume due to fluid retention. Is that what it was? How was that alleviated? Were there any other side effects due to the Antineoplastons?
We always had to monitor her potassium and sodium. So, she had to drink a lot of water and therefore we went through a lot of diapers. Those were the worst of the side effects. In the picture, she was so large due to being on Decadron, which we were able to wean her off of in January 1999.
Were you surprised when Tori started responding?
Yes, I have to say I was. It is hard to believe something great is going to come out of something so painful. I guess she taught me not to lose faith in life.
How soon was it before Tori’s brain tumor started reducing in size?
Immediately. It had shrunk in size by 20% after the very first MRI, which I believe was in 6-8 weeks…it’s been a long time and a lot of MRI’s later.
For how long did Tori continue to take Antineoplastons intravenously? Did you administer this yourself at home?
She took them through IV for 2 years and yes; we did this all at home.
Does your insurance company pay for the treatment? Did they try to avoid paying for it?
No, they do not pay for the treatment.
I understand Tori is 5 today. Is she still taking Antineoplastons? Has the tumor completely gone?
Yes, she just turned five in June. She still takes Antineoplastons orally…. she takes 40 capsules a day. Her tumor has decreased in size by 86% and they believe what is left may be scar tissue.
Has Tori suffered any permanent side-side effects from Antineoplastons?
Not one. In fact, it decreased her symptoms dramatically and never caused her any harm.
So Tori is cancer free and side effect free today?
Absolutely….
This is an incredible story Kim. Your child was diagnosed with a fatal brain cancer and the best oncologists and surgeons in America told you it was hopeless. Yet you found a cure for your child, without the billions, and so-called cancer specialists, that the NCI has at its disposal. Have any oncologists or doctors asked you about Dr. Burzynski’s treatment?
They tend to ask very quietly, but never really respond to what I have to tell them. There is curiosity there, just no one is really willing to step up to the plate and believe that the antineoplastons had something to do with her survival.
What do they say now that Tori is alive and well?
The neurologists told us that sometimes it happens and they called it “spontaneous remission”. Again, I asked them to provide some statistics and there were none to be seen.
That is of course the height of absurdity. To my knowledge, there has never been a documented case of any brain cancer going into spontaneous remission. Have you ever mentioned that to them?
Yes, again with no intelligent response.
So they are quite content to administer the same cancer causing, toxic treatments, when they know about your daughter’s success with Antineoplastons?
Absolutely. It amazes me that some of them can sleep at night.
Has your opinion about the medical profession, specifically cancer specialists, changed since Tori’s recovery? If it has, in what manner?
Yes, it has changed a lot. I guess the biggest change would be that I no longer sit back and believe anything a doctor tells m e and that we have to take our healthcare into our hands by searching for legitimate options. I believe we have the right to choose.
What do you think about the fact that some 3,000 children in the US (untold thousands worldwide) this year will be diagnosed with some form of brain cancer, and their families will have to face the same horror you did, the horror of losing a child. But virtually all of them will not be told about Antineoplastons, the treatment that cured Tori?
It really makes me sick to my stomach. That is why I want to talk to anyone who wants to listen about Tori’s Story
Finally, I commend you and your husband for finding a way to cure your daughter, when all the “experts” said it was hopeless. You gave her life when she was born, and then you saved her life by finding Antineoplastons.
I thank you once again Kim for answering my questions and sending me the photos of Tori. Give my best to your family.
Gavin Phillips opinion
Dr. Burzynski is a great rarity these days. He is a courageous man who risked everything battling the FDA for over 15 years so as to allow cancer patients access to his treatment. A doctor who puts his patients well being before financial gains. But how many people diagnosed with cancer this year will ever find out about Antineoplastons? A tiny percentage, because very few mainstream oncologists will inform their patients about a treatment that has yet to be approved. And why is that? The NCI and ACS have supposedly been searching for decades for any and all treatments that are effective against cancer. For over 15 years Dr. Burzynski’s treatment has shown that it is effective. Many cancer patients, including some very young children with supposedly hopeless brain cancers, are alive today because of Antineoplastons.
Here we come to the most crucial questions of all. Why did the FDA try their utmost to ruin Dr. Burzynski by involving him in 4 court cases? Why did the NCI make certain Burzynski’s clinical trials failed by diluting his treatment and enrolling patients who were the least likely to respond to Antineoplastons? If this was a one-time only event, we could dismiss it as an aberration; on overzealous government agencies. But the persecution of Dr. Burzynski is not an aberration, but the norm. There have been many well-documented cases in the last 70 some years of doctors/healers who discovered an effective cancer treatment, only to find the full force of the cancer agencies trying to destroy them and their discoveries. I have learned about several during my research. Dr. William Koch/Glyoxylide, Dr. Andrew Ivy/Krebiozen, Harry Hoxsey method/herbs, Royal Rife/radio waves, Ernst Krebs/ Laetrile/Amygdalin, Gaston Naessens/714 X, Dr. Lawrence Burton/Immuno-Augmentative Therapy, Dr. Max Gerson method/diet.
What, if anything, does Dr. Burzynski’s Antineoplastons have in common with these other treatments? Most of them are natural; all of them are inexpensive to produce, especially when compared to the enormous costs of conventional treatments. If cheap cancer treatments with virtually no side effects were allowed to freely compete with the cancer causing offerings of the pharmaceutical companies, the outcome is obvious. The pharmaceutical companies, and the hospitals that administer their drugs, will lose tens of billions in profits. And this I believe is the reason Dr. Burzynski, and the people who have gone before him, have been publicly vilified as “quacks” and their treatments discredited. The fact is that the pharmaceutical companies control American medicine, and they are only interested in treatments from which they can derive a profit.
Every cancer patient in America, and the world, should have free access to Antineoplastons. It is intolerable, not to mention totally un-American, to give a profit obsessed industry a monopoly over Americans healthcare. Nobody should have the right to force toxic chemicals down our family’s throat, especially when Dr. Burzynski’s treatment has proven effective (for some cancers) and does not have appalling side effects.
One point, in which I disagree with Burzynski about, is the possibility of medical freedom of choice happening in America. It would happen in a year or two if enough Americans demanded it. You can help make that a reality. Please forward this interview to as many people as you know, as well as media outlets. Around ten thousand Americans die every week from cancer; we simply must have medical freedom of choice. Thank you for your time.
Sincerely,
Gavin Phillips.
http://www.cancerinform.org
E-mail this sites address to someone and help spread the word
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E-mail me: cancerinfo11@yahoo.com
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REFERENCES:
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Critiquing: Dr. Stanislaw Burzynski’s cancer “success” stories
Gorski wants to play in the kitchen, but he can’t take the heat
2/18/2013, Gorski posted his 1st book report on Hannah Bradley
Dr. Stanislaw Burzynski’s cancer “success” stories [1]
The year 2012 was rung out and the year 2013 was rung in by news that “Orac” Check-My-Facts-Hack, propagandist for “brave maverick doctor” Dr. David H. Gorski, who claims that sugar doesn’t feed cancer [2], is releasing a sequel to his wildly successful hackumentary (in “The Skeptics™” underground, that is) “How Stanislaw Burzynski became Burzynski the Brave Maverick Doctor, part 1” [3] 😃
In fact, the sequel is coming out on BFD (Blogs For Dummies) on …, well …, just any day now ! 😳
I somehow doubt that GorsKon will send me a screener BFD to review, but I did review the 4 blogettes he posted on Science Based Medicine; home of: “Our only goal is to promote high standards of science in medicine” [4], and National Geographic’s (#NatGeo) Science blogs, because it easily falls into a genre that I like to refer to as medical propaganda posts, which are almost always made in support of dubious blogs re medical treatments 😊
Gorhac’s mostly lame jokes about proposed titles aside (e.g., Burzynski II:” “Pathetic Googleloo, Burzynski II:” This Time It’s Pee-Reviewed, or even Burzynski II: FAQ Harder), it’s very clear that in the wake of his decision to drop his “[I]f I had screwed up, I would have admitted it” [5] claim re Burzynski on a technicality, and his very own spin doctor named “BOrac, are planning on a huge publicity blitz, in which @gorskon will be portrayed as, yes, a “brave maverick doctor” whom “They” (as in the BPG (Burzynski Patient Group), 3’s company, and the Don’t Mess with Texas Board of Education, a.k.a “DJT”) tried to keep down but failed because he has The Natural Cure For Rancor “Two Turntables and a Mr. Microphone” 😝
I come back to this again because Gorac’s strategy for Burzynski II, as I pointed out, is going to involve “conversion stories” of “The Skeptics™” who didn’t believe in @oracknows magic “[I]f I had screwed up, I would have admitted it”, but do now, after Bob ‘n Weave Blaskiewicz proclaimed during the 9/28/2013 “Burzynski Discussion” Google+ Hangout: “I think that professionally he would make, he he he would follow-up on these things” (2:01:00) [6], claims that he’s 75% sure of the identity of someone who has been critical of his work (like me) [7], and, of course, sucky stories 😜
“DOHrac’s” 4 posts consists of four elements:
Bias, MisDisInformation, (anecdotes), including “EOrac’s” “sucky stories”, contrasted with a rehash of “conspiracy theories” from his “review” of the first movie about the “cancer destablishment” trying to suppress common sense with pseudononsense 😄
Never mind that, even if he were FDA-approved, he would be in the same class as “The Skeptics™” that are disdained on social media as being more for hyper-“bull” than anything else because they have been giving B.S. for a long time ☺
He states: “One notes that Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
no
“mOResmACk” reminds me of Pink
That would be the Pink in Pink Floyd, singing: “We don’t need no edumacation”, because he’s like the churlish schoolboy so intent on getting on to make his 2nd mud pie, that he pulls a wanker on the 1st one
Maybe he should learn how to do real “cancer research” like I posted 8/21/2013 [8]
——————————————————————
10/2004 (Pg. 384)
4.3 months – median duration of administration
——————————————————————
11/2010 (Pg. iv72)
4.4 months – median duration of treatment
——————————————————————
10/2006 (Pg. 466)
4 1/2 months – median duration of i.v. ANP
——————————————————————
3/2006 (Pg. 40)
5 months – median duration of antineoplaston administration
——————————————————————
10/2004 (Pg. 428)
5.2 months – administered median
——————————————————————
12/2009 (Pg. 951)
5.4 months – median duration of treatment (ST)
——————————————————————
12/2009 (Pg. 951)
5.6 months – median duration of treatment (SE)
——————————————————————
10/2004 (Pg. 427)
5.7 months – average duration of ANP
——————————————————————
10/2008 (Pg. 821)
5.7 months – median duration of treatment
——————————————————————
2003 (Pgs. 91 + 96)
6 months – median duration of treatment
——————————————————————
12/2008 (Pg. 1067)
6.5 months – median duration of treatment
——————————————————————
10/2003 (Pg. 358)
9.5 months – median duration of IV ANP
——————————————————————
7/2005 (Pg. 300)
9 1/2 months – median duration of administration
——————————————————————
2004 (Pgs. 315 + 320)
16 months (1 year 4 months) average duration of intravenous ANP
——————————————————————
6/2008 (Pg. 450)
16.5 months (1 year 4.5 months) – median
——————————————————————
2004 (Pg. 320)
19 months – average duration of oral ANP
——————————————————————
6/2005 (Pgs. 168 + 170)
20 months (1 year 8 months) administered average duration
——————————————————————
10/2003 (Pg. 358)
28.6 months (2 years 4.6 months) – median duration of po ANP
After obtaining at least minor response (SD), the treatment continued with po ANP
——————————————————————
9/2004 (Pg. 257)
655 consecutive days – administration of antineoplastons A10 and AS2-1 with the exception of a few short interruptions
——————————————————————
Gorski continues:
“Attacks on skeptics and critics of Burzynski“
“If you don’t believe me, just read question #12 in Merola’s FAQ, in which he states,
“You will notice the ‘anti-Burzynski’ bloggers refuse to do that or adhere to reputable sources”
——————————————————————
Gorski, you did NOT even provide any “source” for your “claim” that:
” … Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
——————————————————————
Gorski adds:
“You might say, they are preying on desperate cancer patients and families of cancer patients by carelessly misleading their readers about Burzynski and his invention.””
——————————————————————
Gorski, let’s check and see where else YOU are “carelessly misleading” your “readers”
One marvels at your amazing level of protestation ッ
However, every movie needs a villain, and it doesn’t take “sidekick” abilities to guess why
“The Skeptics™” are portrayed as villains
——————————————————————
Gorski gratuitously gabs on:
“Merola also direly accuses and threatens,
“In the worst case scenarios, some bloggers intentionally publish fabricated information to their readers in an attempt to curb new patients from going to the Burzynski Clinic“
“I can hardly wait”
——————————————————————
Gorski, did you mean to “intentionally publish fabricated information” ? 😮
——————————————————————
“Neither can, I bet, a fair number of lawyers“
——————————————————————
Gorski, who’s your lawyer ?
——————————————————————
Gorski plods onward:
“An attempt to reframe Burzynski’s enormous bills for his antineoplaston therapy and criticism that he’s making clinical trial subjects pay to be in his clinical trials”
——————————————————————
Gorski, BITE ME 🙂
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
No
——————————————————————
hospital wanted $30,000 deposit
http://articles.cnn.com/2009-06-16/politics/health.care.hearing_1_health-insurance-post-claims-underwriting-individual-health?_s=PM:POLITICS
——————————————————————
2008 – Avastin – advanced lung, colon or breast cancer
can reach $100,000 year
$50,000 year – adds 4 months of life
“There is a shocking disparity between value and price,” he said, “and it’s not sustainable.”
http://www.nytimes.com/2008/07/06/health/06avastin.html?_r=0
——————————————————————
Cost cancer chemo up-front: $45,000 to Come In
http://online.wsj.com/public/article/SB120934207044648511.html?mod=2_1566_topbox#articleTabs%3Darticle
——————————————————————
3/2012 – Total Cost of Cancer Care by Site of Service: Physician Office vs Outpatient Hospital (22 pages)
Click to access Cost_of_Care.pdf
——————————————————————
CHEMOTHERAPY: 9/24/2012 – hospitals routinely marking up prices on cancer drugs 2 to 10 times over cost
Some markups far higher
nearly $4,500 for 240-milligram dose of irinotecan to treat colon or rectal cancer
average sales price: less than $60
about $19,000 1-gram dose of rituximab to treat lymphoma and leukemia
roughly 3 times average sales price
about $680 50 milligrams of cisplatin
markup: more than 50 times average sales price
Avastin, about $90,000 a year
http://www.charlotteobserver.com/2012/09/24/3549634/prices-soar-as-hospitals-dominate.html
——————————————————————
5/14/2012 – Oral anti-cancer medications generally considered pharmacy benefit
Instead of co-payment plan members often pay % of cost — up to 50% in some cases — with no annual out-of-pocket limit
drugs expensive often costing 10s of 1,000s of $s a year
http://articles.washingtonpost.com/2012-05-14/national/35457286_1_lung-cancer-drug-drugs-work-multiple-myeloma-patients
——————————————————————
RADIATION: 1/4/2013 – new study most comprehensive cost analysis ever, compared costs and outcomes associated with various types of treatment for all forms of disease, ranged from $19,901 for robot-assisted prostatectomy to treat low-risk disease, $50,276 for combined radiation therapy for high-risk disease
http://www.ucsf.edu/news/2013/01/13370/how-prostate-cancer-therapies-compare-cost-and-effectiveness
——————————————————————
3/15/2012 – Using Surveillance, Epidemiology and End Results (SEER)-Medicare data, 26,163 women with localized breast cancer had undergone surgery and radiation 2001 to 2005
found Medicare billing for IMRT increased 0.9% diagnosed 2001 to 11.2% diagnosed 2005
average cost radiation treatment during 1st year $7,179 for non-IMRT
$15,230 with IMRT
billing for IMRT more than 5 times higher in regions across nation where local Medicare coverage determinations favorable to IMRT compared to regions where unfavorable
NICE evaluated sorafenib (Nexavar) for kidney cancer, determined had value, but not $80,000 per year’s worth
agency said would reimburse 1/3rd total cost, and if co wants to market product to 60 million British citizens, need to be price flexible,”
http://www.ascopost.com/issues/march-15-2012/rising-costs-in-radiation-oncology-linked-to-medicare-coverage.aspx
——————————————————————
Gorski raves on:
“The new claim is that Burzynski isn’t making patients pay for his antineoplastons (see question #13 in Merola’s FAQ), just for “clinical management” (as if that weren’t incredibly transparent) Vindication”
——————————————————————
Gorski, “NEW CLAIM” ?
2/4/2013 my post #180 on YOUR blog addressed this “new claim” by referencing a 3/12/1996 note before you posted your article 2/18/2013 [9]
——————————————————————
3/12/1996: 2nd – 4th paragraphs (2/4/2013 post #180)
——————————————————————
——————————————————————
Gorski, makes an excuse:
“The last time I discussed Merola’s forthcoming movie, I mentioned that he had contacted me in December and asked me to appear as a Burzynski critic“
“After consultation with skeptics with more media savvy than I, not to mention the PR department at the Barbara Ann Karmanos Cancer Institute (whom I thought it wise to give fair warning that one of their faculty might be featured as evil incarnate in a new documentary and to give the background on what it’s all about, in case there were press inquiries), I politely declined“
——————————————————————
Gorski is like fetid HOT AIR, all words and NO action
——————————————————————
Gorski fumes:
“While going on and on about how he thinks most of us have “good motives” and how we want to be the white knight riding in to save patients from quackery (a desire he somehow manages to convey with clear dismissiveness and contempt), Merola turns immediately around to claim that we don’t know what we’re talking about and we don’t read the literature“
——————————————————————
Gorski, YOU really “don’t know what” you’re “talking about” and I’m just getting warmed up 🙂
——————————————————————
Gorski has smoke coming out his ears:
“This, of course, is complete nonsense, as I’ve read many of Burzynski’s papers (such as they are), delved into ClinicalTrials.gov to look at his clinical trials, examined the plausibility of his claims from a scientific standpoint, and examined the literature from others, both on antineoplastons and related topics”
“I’ve dissected Burzynski’s claims for antineoplastons based on science, assessed his “personalized, gene-targeted cancer therapy” claims and found them wanting, and pointed out how what he is peddling isn’t really anything new at all (more on that later), all based on my knowledge, skills, and understanding of cancer as a breast cancer surgeon and researcher”
“No doubt that’s why Merola needs to discredit me“
——————————————————————
Gorski, Eric Merola does NOT need “to discredit” you
YOU have already done a yeoman’s job of discrediting yourself [10] 🙂
——————————————————————
Gorski posits:
“Other bloggers who have been critical of Burzynski might or might not have my scientific background, but they’ve delved just as deeply into his claims and the evidence for them, and, as I have, they’ve found them highly overinflated and largely not based in science”
——————————————————————
Gorski, unfortunately, is NOT able to name these “[o]ther bloggers”
——————————————————————
Gorski deposits:
“They’ve also taken on aspects of the Burzynski phenomenon, such what I consider to be his questionable ethics and finding out what happened to a lot of patients who trusted Burzynski, far better than I have”
“Merola’s dismissal of Burzynski’s critics is, quite frankly, insulting to them and to me.”
——————————————————————
Gorski fails to mention the very “questionable ethics” of his intrepid research bud Bob [11]
——————————————————————
Gorski rants:
“I don’t know what sort of attacks on the UK bloggers who produce the bulk of the skeptical blog posts about Burzynski are coming in Burzynski II, but when it comes to me no doubt Merola is referring to this bit of yellow journalism in 2010 from an antivaccine propagandist named Jake Crosby, entitled David Gorski’s Financial Pharma Ties:”
“What He Didn’t Tell You”
——————————————————————
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim that it’s:
“UK bloggers who produce the bulk of the skeptical blog posts about Burzynski” ?
“What He Didn’t Tell You” ?
NO
——————————————————————
Gorski blots:
“Predictable and tiresome attacks aside, Pete and Hannah’s video made me curious about the specific success stories that Merola will focus on as “proof” that Burzynski is on to something; so I decided I should look into their stories”
“On the surface to those not familiar with cancer they do look like success stories”
“If one digs deeper, the true story is a lot murkier”
——————————————————————
Doctor “G” omits, that once “one digs deeper”, HIS “story is a lot murkier”
——————————————————————
Gorski A.D.D.s:
“More importantly, as I will show, even if they really are success stories—which is not at all clear—they do not constitute convincing evidence of the general efficacy of Burzynski’s antineoplastons, nor do they justify what I consider to be Burzynski’s highly unethical behavior.”
——————————————————————
More importantly, as I will show, is what I consider to be Gorski’s highly unethical behavior
——————————————————————
Gorski flails away:
“I will start with Hannah Bradley’s story because I’ve watched the entire 40 minute video Hannah’s Anecdote (whose title is even more appropriate than perhaps Pete Cohen imagined when he made it)”
“The documentary ends triumphantly several months after the events portrayed during the bulk of the film with Hannah apparently having had a complete response to Burzynski’s antineoplaston therapy:”
——————————————————————
Let me just first say something before I begin my usual analysis
I love these reviews 😘
I really do
Yes, it’s true that GorsGeek can be a bit annoying with his seeming desire to validate everything he flogs about some perceived “offender,”as being applicable to him, but I want GorskGeek and “HOrac” to be able to live a long and full life together, growing old in each other’s company
I really do
In fact, I’d love to hang with these two and maybe buy them a pint or two at their local pub (except that it’s pointed out multiple times that GOrackGeek should no longer drink alcohol)
Maybe that’s part of his problem
“Drunky Blogging”
——————————————————————
Gorski pontificates:
“Such is not my intent, but what are skeptics supposed to do?”
“Shy away from undertaking a dispassionate analysis of patient anecdotes used to promote dubious cancer therapies for fear of what patients will say?”
——————————————————————
Gorski, it might actually help IF you knew how to do a proper “dispassionate analysis” 😐
——————————————————————
Gorski cites from the Team Hannah blog
“Hannah’s treatment options are very limited and her life expectancy is for this type of tumour is normally around 18 months and this is why I started a mission to find people who had the same condition and are still alive today”
“I managed to track down a number of these people to speak to them.”
“In his movie, Pete points out that these people all led back to Burzynski“
Gorski interjects:
“Of course, as I’ve said before, dead patients don’t produce testimonials for alternative cancer cures“
——————————————————————
One wonders why Gorski even makes this comment as the number of patients Pete contacted re Burzynski’s “alternative cancer” cure, were obviously NOT dead 😮
——————————————————————
Gorski segues on to:
“Not long after they appear at the Burzynski Clinic, they meet with doctors there who tell them that Hannah’s most recent MRI scan showed progression of her tumor (around 8:30 in the movie)”
“Now, I’m not a radiologist, much less a neuroradiologist, but I wondered at all the enhancement on the superficial area of the brain, just under where her neurosurgeon must have raised the bone flap to remove what he could of the tumor“
“One wonders if much of the remaining enhancement could be still post-surgical and post-radiation change“
“Certainly, the tumor is cystic-appearing, and after surgery such cysts would likely shrink and be reabsorbed even if the tumor were to keep growing”
——————————————————————
Gorski, if you were NOT in a such a rush to post your blog article “ad homineming” Josh Duhamel, you could have taken the time to do proper “cancer research” and maybe listen to the 9/24/2012 @YouTube video of Pete Cohen talking with Neurosurgeon (Consultant) Juan F. Martinez-Canca (20:31)
After all, HE is an actual NEUROSURGEON
——————————————————————
——————————————————————
Or you could read the transcript I made of the video [12]
——————————————————————
Or you could have contacted him and asked questions
http://www.neurokonsilia.com/About-Us.html
——————————————————————
Gorski tangents:
“Be that as it may, there were a number of things I found very interesting in this video”
“First, I notice that nowhere was there anything mentioned about enrolling Hannah on a clinical trial“
——————————————————————
Gorski, if you had let Hannah know you were going to do your article about her, she might have churned her 4/4/2013 article out faster
just for you, where she advises:
“Luckily I was able to take part in a phase 2 clinical trial in Texas, USA” [13]
——————————————————————
Gorski stupefies:
“Given what a thorough videographer Pete obviously is, I find this omission very curious”
“Certainly, given how much detail he’s used in this video and in his vlogs I’d expect that if the subject of clinical trials was mentioned he would have included it”
——————————————————————
Gorski, if you were NOT so busy “getting the popcorn” as you “watched the entire 40 minute video Hannah’s Anecdote”, you might have actually noticed at (7:14):
——————————————————————
12/12/2011 – Day 2 – Monday
Meeting with Dr. Yi and Dr. Greg Burzynski at Burzynski Clinic
——————————————————————
Dr. Greg Burzynski – “We have permission to start you on the antineoplastons”
“Mhmm”
Dr. Greg Burzynski – “which as you know are in the final stages of drug approval”
“Yeah”
Dr. Greg Burzynski – “Dr. Yi is the oncologist on this case”
——————————————————————
Gorski, did you SEE THAT ?
An ONCOLOGIST at the Burzynski Clinic, working with Burzynski
(No wonder you left that out !)
——————————————————————
Gorski ejects:
“The other thing that struck me was just how much Burzynski is full of it when he advertises antineoplastons as not being chemotherapy and, more importantly, as being nontoxic“
“At least a third of the video consisted of the difficulties that Hannah had with her treatment, including high fevers, a trip to the emergency room, and multiple times when the antineoplaston treatment was stopped“
“She routinely developed fevers to 102° F, and in one scene her fever reached 103.9° F“
“She felt miserable, nauseated and weak“
“I’ve seen chemotherapy patients suffer less”
——————————————————————
Gorski whines:
“I’ve seen chemotherapy patients suffer less”, but this is purely “anecdotal”
“At least a third of the video consisted of the difficulties that Hannah had with her treatment”
Let’s do the math, shall we ?
——————————————————————
In America (48 days)
12/11/2011 (Sunday) – 1/27/2012 (Friday)
[4:52 – 35:43]
——————————————————————
Burzynski Clinic 47 days – (7 weeks)
12/12/2011 (Monday) – 1/26/2012 (Thursday)
[5:37 – 35:43]
——————————————————————
12/13/2011 (Tuesday) Day 3
after catheter – Hickman line surgery
(painful / really painful)
[10:30]
——————————————————————
12/14/2011 (Wednesday) Day 4
(feeling wrecked / absolutely wrecked)
[10:52]
——————————————————————
12/24/2011 (Saturday) Day 14
fever
bad breathing
uncontrollable chills couldn’t stop shivering all Saturday night
[18:10]
——————————————————————
12/25/2011 (Sunday) Day 15
fever
flu symptoms
bad breathing
headache
in bed
absolutely exhausted
little bit of swelling back of head
[18:10]
——————————————————————
12/27/2011 (Tuesday) Day 17
temp 102
temp down / up
[19:04]
——————————————————————
12/28/2011 (Wednesday) Day 18
exhausted
close to breaking / cracking
[19:04]
——————————————————————
12/29/2011 (Thursday) Day 19
hospital – E.R.
“I’m at my wits end”
“I don’t feel I can take anymore”
[20:07]
——————————————————————
12/30/2011 (Friday) Day 20
last week up & down
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R.
[20:22]
——————————————————————
12/31/2011 (Saturday) Day 21
fever in middle of night
flu-like symptoms
temp 102
[21:53]
——————————————————————
1/1/2012 (Sunday) Day 22
feel drunky
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky
[22:34]
——————————————————————
1/15/2012 (Sunday) Day 36
antibiotics 1st day
[24:33]
——————————————————————
1/16/2012 (Monday) Day 37
over 102 Monday night
antibiotics 2nd day
[25:24]
——————————————————————
1/17/2012 (Tuesday) Day 38
fever
temp 101.8
throat infection
antibiotics been on 3 days
[25:24]
——————————————————————
1/20/2012 (Friday) Day 41
fever 104 (103.9) Friday night
[26:54]
——————————————————————
1/21/2012 (Saturday) Day 42
temp up to 104 (103.9)
Dr. on-call – Ibuprofen
102.5
yesterday afternoon (blood) rash ?
[27:50]
——————————————————————
1/23/2012 (Monday) Day 44
some itch
[28:35]
======================================
47 days – Burzynski Clinic
31 days – treatment NOT mentioned
16 days – treatment mentioned
======================================
12/25/2011 (Sunday) Day 15
off ANP
[18:10]
——————————————————————
12/27/2011 (Tuesday) Day 17
back on ANP
off ANP – temp 102
temp down / up
[19:04]
——————————————————————
12/28/2011 (Wednesday) Day 18
on ANP much smaller dose
[19:04]
——————————————————————
12/29/2011 (Thursday) Day 19
hospital – E.R.
[20:07]
——————————————————————
12/30/2011 (Friday) Day 20
last week up & down
off on off on off ANP
[20:22]
——————————————————————
12/31/2011 (Saturday) Day 21
temp 102
[21:53]
——————————————————————
1/15/2012 (Sunday) Day 36
antibiotics 1st day
[24:33]
——————————————————————
1/16/2012 (Monday) Day 37
over 102 Monday night
antibiotics 2nd day
[25:24]
——————————————————————
1/17/2012 (Tuesday) Day 38
temp 101.8
off ANP (If 102 take off ANP)
antibiotics been on 3 days
[25:24]
——————————————————————
1/20/2012 (Friday) Day 41
fever 104 (103.9) Friday night
[26:54]
——————————————————————
1/21/2012 (Saturday) Day 42
off ANP – temp up to 104 (103.9)
102.5
[27:50]
======================================
5 – off ANP
May have been off ANP 5 to 6 days out of 47 ?
======================================
12/27/2011 (Tuesday) Day 17
temp 102
temp down / up
[19:04]
——————————————————————
12/29/2011 (Thursday) Day 19
hospital – E.R.
[20:07]
——————————————————————
12/31/2011 (Saturday) Day 21
temp 102 – in middle of night
[21:53]
——————————————————————
1/16/2012 (Monday) Day 37
temp over 102 Monday night
antibiotics 2nd day
[25:24]
——————————————————————
1/17/2012 (Tuesday) Day 38
temp 101.8
antibiotics been on 3 days
[25:24]
——————————————————————
1/20/2012 (Friday) Day 41
temp 104 (103.9) Friday night
[26:54]
——————————————————————
1/21/2012 (Saturday) Day 42
102.5
[27:50]
======================================
6 days – temperature mentioned
temp 102 – temp down / up – 12/27/2011
102 in middle of night – 12/31/2011
102+ Monday night – 1/16/2012
temp 101.8 – 1/17/2012
104 (103.9) Friday night – 1/20/2012
102.5 – 1/21/2012
======================================
Gorski scatterbrains on:
“I was also very puzzled at how the Burzynski Clinic could allow a cancer patient to linger with a fever of 102° F and sometimes higher, accompanied by shaking chills, in a temporary lodging without admitting her to the hospital“
——————————————————————
Does Gorski provide any citation(s), reference(s), and / or link(s) to support his claim ?
no !
——————————————————————
http://my.clevelandclinic.org/symptoms/fever/hic_fever.aspx
——————————————————————
Gorski complains:
“It’s not clear what sort of workup was done to evaluate Hannah either, what her white blood cell count was, or what her other labs were“
“Did they draw blood cultures?”
“Did they get urinalyses and cultures?”
“Did they do chest X-rays to rule out pneumonia?”
——————————————————————
Gorski, maybe you should have asked Wayne Dolcefino
Or maybe you should have gone to the Burzynski Clinic
Oh, wait
You think you know everything and could NOT learn anything by going there 😅
——————————————————————
Gorski at least gets one thing correct:
“It’s all very unclear, other than that she apparently was given some antibiotics at some point”
——————————————————————
1/15/2012 Monday Day 36
antibiotics 1st day
——————————————————————
1/16/2012 Tuesday Day 37
antibiotics 2nd day
——————————————————————
1/17/2012 (Tuesday) Day 38
antibiotics been on 3 days
——————————————————————
Gorski wonders:
“Did she have the flu, given her flu-like symptoms, or was this due to her antineoplaston therapy?“
——————————————————————
Gorski, why not “speculate” like “The Skeptics™” usually do ?
——————————————————————
12/24/2011 (Saturday) Day 14
fever
bad breathing
shivering all night
——————————————————————
12/25/2011 (Sunday) Day 15
flu symptoms
breathing
headache
uncontrollable chills couldn’t stop
off ANP
absolutely exhausted
in bed
little bit of swelling back of head
——————————————————————
12/27/2011 (Tuesday) Day 17
back on ANP
temp 102 – off ANP
temp down / up
——————————————————————
12/28/2011 (Wednesday) Day 18
on ANP much smaller dose
exhausted – close to breaking / cracking
——————————————————————
12/29/2011 (Thursday) Day 19
hospital – E.R.
——————————————————————
12/30/2011 (Friday) Day 20
last week up & down
off on off on off
fever
chills
shaking
viral infection
bacterial infection
——————————————————————
12/31/2011 (Saturday) Day 21
temp 102 – fever in middle of night
Dr. SRB thinks flu-like symptoms or tumor actually breaking down
——————————————————————
1/16/2012 (Monday) Day 37
temp 102+ Monday night
——————————————————————
1/17/2012 (Tuesday) Day 38
throat infection
temp 101.8 – fever – off ANP
antibiotics been on 3 days
——————————————————————
1/20/2012 (Friday) Day 41
104 (103.9) – fever – Friday night
——————————————————————
1/21/2012 (Saturday) Day 42
temp up to 104
Dr. on-call – Ibuprofen
102.5 – off ANP
yesterday afternoon rash
——————————————————————
Gorski ponders:
“The reaction of the clinic staff (i.e., rather blasé, even though at one point Hannah clearly demonstrates a change in mental status, appearing “drunk” and complaining of double-vision) made me wonder if this sort of problem was a common occurrence”
——————————————————————
Gorski, what’s the matter ?
Did you grab another handful of popcorn ?
——————————————————————
1/1/2012 (Sunday) Day 22 Burzynski Clinic
feel drunky
felt like completely drunk
double vision
bit shaky
Nurse said anti-seizure drug she hadn’t taken before
[22:34]
——————————————————————
Gorski, what are some of the side-effects of “anti-seizure” medications ?
dizziness
double-vision
drowsiness
imbalance
loss of coordination
Problems with motor skills
Problems with tasks requiring sustained performance
nausea
slurred speech
staggering
mental disturbances
serious mood changes
——————————————————————
http://umm.edu/health/medical/reports/articles/epilepsy
——————————————————————
Gorski continues his assault on the popcorn:
“At another point, Pete and Hannah come to believe that the fevers might have been due to the tumor breaking down, which strikes me as implausible”
——————————————————————
Gorski, if it “strikes” you “as implausible”, then why did you ask, above ?
“Did she have the flu, given her flu-like symptoms, or was this due to her antineoplaston therapy?“
——————————————————————
12/31/2011 (Saturday) Day 21
temp 102 – fever in middle of night
Dr. SRB thinks flu-like symptoms OR tumor actually breaking down
[21:53]
——————————————————————
Gorski blunders along:
“Later, she develops an extensive rash“
——————————————————————
1/23/2012 (Monday) Day 44
Pete sent pic to Dr. SRB who gave name from pic and Pete verified
[28:35]
——————————————————————
Gorski bumbles onward:
“It’s difficult to tell for sure what it is at the resolution of the video, but it looks like erythema multiforme, which is generally an allergic rash”
“What’s the most likely cause of such a rash?”
“Guess”
“Erythema multiforme is usually a drug reaction”
——————————————————————
Gorski, what can cause “Erythema multiforme” ?
Anti-seizure medication
——————————————————————
http://umm.edu/health/medical/altmed/condition/erythema
——————————————————————
Gorski speculates:
“The question, of course, is:”
“Does this mean that Burzynski’s antineoplaston treatment worked for Hannah?“
“Sadly, the answer is:”
“Not necessarily”
“It might have”
“It might not have”
“Why do I say this?”
“First, she didn’t have much residual disease after surgery and radiotherapy, and in fact it’s hard to tell how much is tumor and how much is postop and radiation effect“
——————————————————————
Gorski, I think it’s safe to say that neurosurgeon Dr. Martinez knows much better than you and your speculation
——————————————————————
Gorski
“Second, the median survival for anaplastic astrocytoma (which is a form of glioma) is around 2 to 3 years, and with different types of radiation therapy five year survival is around 15% or even higher”
——————————————————————
Gorski provides a link to a site which advises [14]:
High-grade tumors grow rapidly and can easily spread through the brain“
High-grade tumors are much more aggressive and require very intensive therapy
All patients with high-grade astrocytomas receive both radiation therapy and chemotherapy regardless of age
Prognosis is poor in this group of patients
——————————————————————
Gorski’s 2nd linked source advises [15]:
These highly aggressive tumors often occur in young adults and typically recur or progress to a grade 4 glioblastoma within several years of diagnosis, despite treatment with surgery, radiotherapy, and chemotherapy
Tumor more resistant to therapy and patients have shorter median survival of only 2 to 3 years
——————————————————————
Gorski’s 3rd link [16] showcases his lame research as one has to read through almost the entire article to find the reference, which directs the reader to yet another publication [17]:
Gorski FAILS to advise the reader that the 2002 study is titled:
“Intraoperative radiation therapy (IORT) for previously untreated malignant gliomas“
Hannah Bradley’s WAS previously treated
Gorski also FAILS to advise the reader if this study included patients with grade 3 or 4 tumors
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Gorski claims:
“Thus, long term survival for patients with astrocytomas is not so rare that Hannah’s survival is so unlikely that the most reasonable assumption has to be that it was Burzynski’s treatment that saved her”
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Gorski, nice claim, but you did NOT really prove it
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Gorski suspects:
“More likely, Hannah is a fortunate outlier, although it’s hard for me to say even that because, at only two years out from her initial diagnosis, she’s only just reached the lower end of the range of reported median survival times for her disease”
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Gorski, the operative word is “outLIER”
Gorski then goes all “conspiracy theory” about a supposed “cryptic Facebook post”, a “vlog entry no longer exists”, “Hannah and Pete supposedly being “evasive”, “using vague terms”, a “little blip”, and “lack of new scans”
Next, little green “popcorn munchin'” men 👽
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3/4/2013 Gorski drops “conspiracy theory, part II” on an unsuspecting audience [19]:
Dr. Stanislaw Burzynski’s cancer “success” stories update: Why is the release of the Burzynski sequel being delayed?
It’s no secret that I happen to NOT be on several mailing lists of “The Skeptics™”whose dedication to science is—shall we say?—questionable
As I delved deeper, I learned that Gorski’s evidence for the “questioning” of the anticancer efficacy of “antineoplaston therapy” doesn’t hold up; that his “questioning” of “personalized gene-targeted cancer therapy” is anything but; and that he’s an orphan now in what appears to me to be a strategy to bypass restrictions on his use of proper “cancer research “
The CliffsNotes version for those who don’t want to read Gorsack’s previous lengthy post is that he claims Hannah’s tumor, an astrocytoma (which is a form of glioma) did indeed appear to regress, but that regression can likely be explained by the surgery and radiation therapy that she had
Even then, however, he claims it would not be evidence that the antineoplastons saved her because there are occasional complete remissions in this tumor type, and long term survivors, although uncommon, are not so uncommon that Hannah must be evidence that antineoplastons are so miraculously effective that they saved her when conventional medicine could not
Gorski’s claims are anecdotal, as he failed miserably to provide the necessary citation(s), reference(s), and / or link(s) to support his claims
Gorski claims:
“I try very hard not to cross that line, and I think I’ve been successful, for instance, here”
But I proved again, above, how he fails and fails again with his “amateurish” attempts at proper “cancer research”
Similarly, Gorski realizes that it is very effective to appeal to emotions and cast Burzynski’s as heartless
Gorski inserts other Burzynski patients into his posts about Pete and Hannah
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GORSKI FAIL #1 – “One notes that Burzynski’s protocol requires at least 18 months of near-continuous infusion of high doses of his antineoplastons“
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GORSKI FAIL #2 – “The new claim is that Burzynski isn’t making patients pay for his antineoplastons (see question #13 in Merola’s FAQ), just for “clinical management” (as if that weren’t incredibly transparent) Vindication”
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GORSKI FAIL #3 – “First, I notice that nowhere was there anything mentioned about enrolling Hannah on a clinical trial“
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GORSKI FAIL #4 – “Certainly, given how much detail he’s used in this video and in his vlogs I’d expect that if the subject of clinical trials was mentioned he would have included it“
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GORSKI FAIL #5 – “The reaction of the clinic staff (i.e., rather blasé, even though at one point Hannah clearly demonstrates a change in mental status, appearing “drunk”and complaining of double-vision) made me wonder if this sort of problem was a common occurrence”
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GORSKI FAIL #6 – Well, I could add more … 🙂
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My apologies to the following co-authors if you ever had to check the “cancer research” of one: Gorski D., Gorski DH, D H Gorski,
Alsina J, Banda M, Beckett MA, Bigelow K, Branellec D, Burtch GD, Calvin DP, Campbell DA Jr., Chen Y, Colletti LM, Copeland NG, N G Copeland, Coyne JC, Dedieu JF, Denèfle P, DeVries JA, Dhanabal M, Gabriel EM, Gately S, Germino FJ, Goydos JS, Guo K, Halpern A, Hanna NN, Hari DM, Heimann R, Hellman S, Isner JM, Jaskowiak NT, Jenkins NA, N A Jenkins, Johansen C, Kaur H, Kim HJ, Koons A, Krawetz SA, Kufe DW, Leal AD, Leal AJ., LePage DF, D F LePage, Lincecum J, Mahfoudi A, Mann B, Mao S, Mattingly RR., Mauceri HJ, Mekani T, Merion RM, Pastore C, Patel CV, C V Patel, Patel S, Perlman H, Posner MC, Rabson AB, Salloum RM, Saunders MP, Seetharam S, Shah S, Shih W, Sloane BF, Smith JS, Smith RC, Soff GA, Speyer CL, Staba MJ, Stellato KA, Stratford IJ, Sukhatme VP, Turcotte JG, Walsh K., K Walsh, Weichselbaum RR.
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REFERENCES:
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[1] – 2/18/2013 – Dr. Stanislaw Burzynski’s cancer “success” stories
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http://www.sciencebasedmedicine.org/stanislaw-burzynskis-cancer-success-stories/
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[2] – 4/2/2013 – Critiquing David H. Gorski – Quackademic Medicine:
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https://stanislawrajmundburzynski.wordpress.com/2013/04/02/critiquing-david-h-gorski-quackademic-medicine/
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[3] – Critiquing: How Stanislaw Burzynski became Burzynski the Brave Maverick Doctor, part 1:
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https://stanislawrajmundburzynski.wordpress.com/2013/07/22/critiquing-how-stanislaw-burzynski-became-burzynski-the-brave-maverick-doctor-part-1/
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[4] – #ScienceBasedMedicine
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http://www.sciencebasedmedicine.org/editorial-staff/
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[5] – 10/18/2013 – Deconstructing Dr. David H. (Orac) Gorski – September 28, 2013 “The Skeptics™” Burzynski discussion: By Bob Blaskiewicz – 2:19:51
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https://stanislawrajmundburzynski.wordpress.com/2013/10/18/deconstructing-dr-david-h-orac-gorski-september-28-2013-the-skeptics-burzynski-discussion-by-bob-blaskiewicz-21951/
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[6] – September 28, 2013 “The Skeptics™” Burzynski discussion: By Bob Blaskiewicz – 2:19:51
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https://stanislawrajmundburzynski.wordpress.com/2013/10/04/september-28-2013-the-skeptics-burzynski-discussion-by-bob-blaskiewicz-21951/
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[7] – 5/7/2013 – Critiquing: Is Eric Merola issuing bogus DMCA takedown notices against critics of Stanislaw Burzynski?:
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https://stanislawrajmundburzynski.wordpress.com/2013/05/07/critiquing-is-eric-merola-issuing-bogus-dmca-takedown-notices-against-critics-of-stanislaw-burzynski/
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[8] – 8/21/2013 – Critiquing David H. Gorski, MD, PhD, FACS http://www.sciencebasedmedicine.org/editorial-staff/david-h-gorski-md-phd-managing-editor/
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https://stanislawrajmundburzynski.wordpress.com/2013/08/21/critiquing-david-h-gorski-md-phd-facs-www-sciencebasedmedicine-orgeditorial-staffdavid-h-gorski-md-phd-managing-editor/
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[9] – 2/4/2013 – Post #180
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http://scienceblogs.com/insolence/2013/01/21/quoth-joe-mercola-i-love-me-some-burzynski-antineoplastons
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[10] – Gorski articles:
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https://stanislawrajmundburzynski.wordpress.com/2013/09/11/burzynski-timeline-3/
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[11] – 10/27/2013 – “The Skeptics™” Burzynski Bias, Censorship, Lies, and Alibi’s: September 28, 2013 “The Skeptics™” Burzynski discussion: By Bob Blaskiewicz – 2:19:51
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https://stanislawrajmundburzynski.wordpress.com/2013/10/27/the-skeptics-lie-lied-lies-liars-lying-burzynski-bias-censorship-lies-and-alibis-september-28-2013-the-skeptics-burzynski-discussion-by-bob-blaskiewic/
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[12] – Hannah Bradley – I Feel Empowered, In Control Of My Body: Four Women On Fighting Cancer With Alternative Therapies: http://www.telegraph.co.uk/health/10383724/I-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies.html
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https://stanislawrajmundburzynski.wordpress.com/2013/10/25/hannah-bradley-i-feel-empowered-in-control-of-my-body-four-women-on-fighting-cancer-with-alternative-therapies-httpwww-telegraph-co-ukhealth10383724i-feel-empowered-in-control-of-my-body-fo/
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[13] – “My Brain Tumour Made me Shake to the Core and Look at Life in a Completely Different Light:”
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http://m.huffpost.com/uk/entry/3012836
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[14] – Disease Information
Brain Tumor: Astrocytoma / Glioma
Alternate Names: Anaplastic astrocytoma:
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http://www.stjude.org/stjude/v/index.jsp?vgnextoid=6f2b061585f70110VgnVCM1000001e0215acRCRD
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[15] – 2009 – Anaplastic Glioma: How to Prognosticate Outcome and Choose a Treatment Strategy:
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http://m.jco.ascopubs.org/content/27/35/5861.full
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[16] – Radiation Therapy for Brain Tumors:
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http://www.texasoncology.com/types-of-cancer/brain-cancer/radiation-therapy-for-brain-tumors/
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[17] – 2002 – [16] Nemoto K, Ogawa Y, Matsushita, H, et al. Intraoperative radiation therapy (IORT) for previously untreated malignant gliomas. BMC Cancer. 2002;2:1
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http://www.biomedcentral.com/1471-2407/2/1
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[18] – Team Hannah blog:
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http://www.teamhannah.com/2012/11/01/team-hannah-blog-011112/
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[19] – 3/4/2013 – Dr. Stanislaw Burzynski’s cancer “success” stories update: Why is the release of the Burzynski sequel being delayed?”
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http://www.sciencebasedmedicine.org/burzynski-success-stories-update-movie-sequel/
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[20] – 3/11/2013 – Two Stanislaw Burzynski’s “success stories”
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http://scienceblogs.com/insolence/2013/03/11/two-stanislaw-burzynskis-success-stories/
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[21] – 10/22/2013 – Four misleading cancer testimonials and “reverse balance”
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http://scienceblogs.com/insolence/2013/10/22/four-misleading-cancer-testimonials-and-reverse-balance/
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http://www.bbc.co.uk/programmes/b021480r
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