Stanislaw Rajmund Burzynski, Stanislaw R. Burzynski, Stanislaw Burzynski, Stan R. Burzynski, Stan Burzynski, S. R. BURZYNSKI, S. Burzynski, Arthur Burzynski, Hippocrates Hypocrite Hypocrites Critic Critics Critical HipoCritical
This is our the best and the dearest, uh, patient who came to our clinic 20
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2
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2 years ago
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22 years ago
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and she was in the, she came with Hodgkin lymphoma, and a stage 4, and she didn’t have good, uh, prognosis
How long, did they tell you
—————————————————————— They told me that I was gonna die, of non-Hodgkins lymphoma
That I had a fatal disease
They would treat me for awhile with, uh, chemotherapy and radiation, um, a bone marrow transplant, and, um, we, they, we would see what would happen, but no cure Not a cure at all
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So
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That was 22 years ago
Um, I thank God everyday that I found Dr. Burzynski’s clinic, and Dr. Burzynski and his staff
Um, I was on his treatment for, um, 3 months when this huge tumor on the side of my neck started to reduce and finally disappeared
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So we adopted her as our, uh, family
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(laughs)
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Yeah
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and now, she is our family member, and many others
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So tell me, uh, how did you find out about Dr. Burzynski?
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I was in a cancer support group, and, uh, one of the ladies in there said, you know, you have non-Hodgkins lymphoma
There’s a doctor in Houston whose been treating it with very good results
You should go and check it out
Which I went back home to my husband and said: “There’s Dr. Burzynski in Houston, Texas, and he’s having good results,” and, ah, Steve said: “You know, I’ve heard of this doctor
You know, I wrote his name down”
He’d heard about him
Wrote his name down for future use, and I think about, uh, the next couple of days we were in Houston, and we got to the clinic and I just felt I was in the right place
Everybody there
It was
The feeling was so different than being at a UCLA or a USC or Dana Farber
It was just
I knew immediately I was in the right place, and I met Dr. Burzynski
Well first of all Dr. Barbara came out and hugged me, and, uh, it was, it was so wonderful and I’ll never forget the feeling of, of, uh, my first walk into the Burzynski Clinic
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So tell me, what did, uh, any, did, did you have an oncologist at home and tell them that you were coming here ?
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Yeah, we did
Um, uh, I had an oncologist at UCLA who was a lymphoma specialist, and he was the one that told me I would die of the disease
Um, when we told him that we were going to see Dr. Burzynski, he wasn’t, uh, overjoyed, to say the least, and he told us very negative things and, uh, but I thought, he wasn’t offering me anything, and, uh, when I did get to the Burzynski Clinic, Dr. Burzynski said to me: “I think I can help you,” he said
He didn’t
He didn’t tell me, he was going to cure me
He didn’t
He just said: “I think I can help you,” and, it was non-toxic, and the, um, conventional medicine was offering me high-dose chemotherapy, radiation, and in fact, in mu, as much radiation as people who were, uh, within one mile of ground zero at Hiroshima, and, and they were going to bring me as close to death as possible, and then, rescue me
Uh, and then Dr. Burzynski was going to do this and actually have, where actually I would have hope of a cure, non-toxically
My hair never fell out
I felt well
Um, I lead my normal life
I drove my kids to school
I cleaned the house
Whatever
You know
It was
It’s a wonderful treatment
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So, at what point did you realize, I’m free of cancer ?
Do you remember that point of ?
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Uh, well I remember the point
I remember it very well
Um, the, it
It’s so big
Um, I had, uh, several CAT scans
I had 2 CAT scans in a row
The first one that showed no cancer at all, and, um, I had them done at UCLA, and, um, and then I had a second one, 3 months later, and that one was, was absolutely clear
So, um, it was, it was an amazing feeling, and actually 48 hours was following me, because it was, it was a really a big story, um, you know Cancer throughout my body
No, no cancer at all and, and my medical records show, um, you look at my X-rays, my CAT scans, from starting Dr. Burzynski’s treatment, um, to approximately 9 months later
Reduction, reduction, reduction, until there was no cancer
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So what did, what did your oncologist say ?
Did you, did you go back to your oncologist and say: “You said I was gonna die”
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Uh, yes, we did that
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And what did he say ?
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And, and actually people would call him and a, people who were interested in Dr. Burzynski, and he would say: “Oh, she’s a spontaneous remission”
He would never accept the fact that I was treated, and cured by Dr. Burzynski, but my medical records prove it, and of, you know I, There are so many patients like me
I’m not the only one
So
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So ok, tell me
Let me ask you a couple more questions
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Mhmm
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What sort of a person do you think Dr. Burzynski is?
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Well aside from being the most wonderful, gentle, sensitive, caring doctor, and you don’t find many of those
I went to many doctors, while, while we were trying to find the answer
Many, and Dr. Burzynski is so above them
He, because he really makes you feel like a person, and that he cares, and, he’s also a genius
He, I know that he speaks about 8 languages
He’s an expert on the Bible
He, he just knows so much about everything
Um, I love to be in the room with him
He’s a very special man
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So, you recovered, and then, ’cause you, when did you set up the patient support group, and why did you do that ?
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Uh, actually my husband and I did that together, and it was during, um, the trials, uh, the Texas State Board started, in fact, I became a patient, and 2 months later, ah, he was brought to a hearing in front of the Texas State Medical Board, and so Steve and I, um, organized the patients to, um, be at that hearing to support Dr. B, ’cause he’d been going through this long before I became a patient, but, um, we wanted to show support, because I was already starting to fe, I was feeling better already
I was already seeing some reduction, and now my, the medicine was in jeopardy
I, It could be taken away from me at any time
So we decided to organize the patients and to show support, and all the patients wanted to help, a, uh, obviously
So, um, we’d go to every hearing, every, uh, the trial, we were there every day, um, and we would, patients would march in front of the court building, um,
It was, it was really a sight
An unbelievable sight
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And why do you think that he was treated the way that he was treated ?
Why do you think they wanted to take him down ?
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I think it’s because
There’s many reasons
I think the main reason is because what Dr. Burzynski does is making what all other conventional doctors are doing wrong, because chemotherapy is not the answer Chemotherapy makes people sick, and, uh, most of the time it does not cure people
Um, all that poison and radiation
There’s gotta be a better way, and there is a better way Dr. Burzynski has found it
I was sick
I had cancer 22 years ago
Um, my hair never fell out, and, uh, it was a treatment that I was grateful to be on every day
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So how many patients have you come in contact with that Dr. Burzynski
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Hundreds
Hundreds, and as you say by my patient group web-site
Um, I think I have about 90 stories on there now, and there are many more, because, um, I haven’t been able to get in touch with everybody, but over the years, uh, people give me their stories
Sometimes people will call me, um, but we, we are a patient group because we, we’ve all been helped or cured by Dr. Burzynski, and we, we want everybody to have access to this treatment
Steve actually had the chance to ask one of, uh, one of the prosecutors, um, at the trial, that exact question: “What would you do,” and he was prosecuting Dr. Burzynski, and he actually said: “I’d be first in line”
So, once you know the whole story, and you know the science, and you, especially if you do the research, um, you, you can come to the truth, and the truth is, Dr. Burzynski, has cured cancer
He cured me
I’ve been in remission for, in remission, for, uh, 22 years, and that’s a cure, and, uh, he could help so many, many, many more people
The, he has breast cancer patients now that are, that are doing so well
He has many
I just talked to an ovarian cancer patient
He has, um, all, all different types of cancers
What he needs is funding from our government
Um, all other doctors and, and, um, institutions, they get ah, mu, get so much money from the government Dr. Burzynski doesn’t get one penny
If we could just think
If, d, if the government would just fund Dr. Burzynski, he could have a cure for all cancers
I believe that with all my heart, and somehow, some day this has to happen
—————————————————————— The Sceptics (10:37)
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Yeah, just tell me what this whole kind of skeptic movement
You do any research on Dr. Burzynski there’s a few things
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Yes
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that always come up
This guy Saul
—————————————————————— Saul Green
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Yeah
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Mmm
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and some other stuff
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Yeah
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So just tell me
What’s that all about and where did that all come from ?
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It stems from, uh, a lawsuit that was filed against, uh, Dr. Burzynski
Actually it was, uh, an insurance company, that didn’t wanna pay for, uh, for the treatment
A particular patient had been treated here in Texas, uh, was put into remission
Was successfully treated and then it turns out the insurance company did not wanna pay for it, so they brought in these people
These quote unquote experts Cancer experts of, you know, rather dubious backgrounds
This is all that they do, is they look for ways to demean people
They look for ways to blacken their reputation
They ultimately became a group known as Quack watch, and these were brought in as the expert witnesses to say that this is not an approved treatment, albeit, was not true
They said the treatment didn’t work and clearly it did, and, uh, they have since gotten funding from insurance companies, from the government, private funding, and they go around to debunk things that are against mainstream, um, medicine, and, uh, their, their support comes from the insurance company and from the pharmaceutical companies who benefit from, from their work, and, uh, it expanded
Expanded all over the world to, uh, they’re in the United States, they’re in the U.K., they’re in Australia, and, uh, they have a very big presence
When the internet came into being they, you know, they went viral with this kind of stuff
So when you type in Burzynski, uh, a lot of the negative comes up first
So that’s the first thing you see is all this negative stuff, and it’s all hearsay
None of it has any basis in fact
It’s all lies
Um, you know, he, Dr. Burzynski never did anything illegal ever, and it was all based on, on very questionable legal grounds that he was ever sued, that he was, that any case was ever brought against him by the FDA or the Texas Medical Board, and all of those cases failed
They never held up to scrutiny
They all failed, and here Dr. Burzynski is today, and he’s thriving, and people come here from all over the world to be treated
Many are cured of their cancers, and, uh, all of these people in the Quack watch are gone
Uh, Saul Green has passed away
Uh, I don’t wish him ill, but I’m glad he’s not here, thank you, and all of these other people are gone and they’re not thriving, and they’re just like, you know, they’re like bacteria or like fungus under rocks, and when you shine a light on them, they can’t hold up to the scrutiny
The real light is here
The real truth is here in Houston at the Burzynski Clinic
—————————————————————— Thoughts onDr. Burzynski(13:46)
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What do you think of Dr. Burzynski, yourself ?
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I, I, I think Mary Jo’s pretty much summed it up
Uh, I, am of course
It, it, it’s not an unbiased opinion
It can’t be
He’s the man that saved my wife
Uh, she was cast off, um, as, as, as an incurable
She was told time and time again, not just by her on, oncologist at UCLA, Dr. Peter Rosen, but we went all over the country
We went to USC in, University of Southern California, UCLA, Stanford Medical, Dana-Farber; which is associated with Harvard, uh, in, uh, Boston, and everywhere we went, she was told: “There’s no hope”
“You’re gonna die”
“It’s just a matter of time”
“We have to see how long, how long it’s gonna take”
Um, against my better wishes, we came to the Burzynski Clinic, and she said: “I’m starting today,” and I said: “Don’t you think we should go back and discuss with Dr. Rosen at UCLA ?
She said: “No, they have nothing to offer me”
She was that brave, and we started that day, and we’ve never looked, we’ve never looked back
So to ask me about what I think about Dr. Burzynski, when my wife was told she was gonna die, and I was already making plans for how am I going to take care of my children without Mary Jo; my life partner, and he saved her life, I’m not gonna give you unbiased
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Mhmm
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an unbiased opinion of how I feel about the man
There’s probably nobody, that I have greater love and greater respect for, uh, in, in the whole world, and, uh, to add about how, how smart, how intelligent this man is, ah, expert on, on history as Barbara was saying
Expert on religion
He’s an expert on mushrooms
He knows more about mushrooms than any 10 mushroom experts in the world
Bees
He knows about bees
Who cares about bees, but he knows everything, because bees happen to be a rich production source of antineoplastons
Who knew ? Dr. Burzynski knew, and that’s why we need to listen to him
We as a society
The world needs to listen to this man
—————————————————————— Conventional Cancer Treatment and The FDA (16:05)
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When you put some critical thought, critical analysis, you find that chemotherapy initially works
What it is, it’s a good, the first time around it’s a good tumor shrinking, they’re good tumor shrinking agents, but over the long run they create so many problems that eventually, the tumor becomes, the cells become resistant and the tumor takes over, or, if it is successful in shrinking the tumor to, to a, a size where the patient can survive, what happens after that is there’s a secondary cancer that’s created by the chemotherapy, with very few exceptions Testicular cancer is one exception where it works
Some childhood leukemia’s they’ve had some great success with chemotherapy, but by in large it’s a failed modality, and the side effects are so bad as, as to be called horrific, uh, is how I would describe them from what I’ve seen in, in my family and in my friends, and my associates that’ve had to undergo it
So why do we allow that, when something like antineoplastons and Burzynski’s treatment, totally non-toxic, working with the body, allowing you to lead a normal life, and on it statistically for the number of people that have been treated, uh, compared to the number of people that have walked out of here in remission, or cured after 5 years; whatever definition you wanna use, we don’t allow that
We look at that as, uh, conventional medicine looks at like that as, looks at that as some sort of quackery
This is, this is, uh, critical thinking and science turned on its head, and it doesn’t make sense, and it goes back to what I was saying before
Why it doesn’t make sense, because there’s entrenched financial interests, and there’s a paradigm that says we do for cancer, we do chemotherapy, we do radiation, we do surgery, and that’s it
Anything else is not acceptable, because it goes against the paradigm
In the bureaucracy we know as the FDA
We’ve been fighting them for so long and they’ve been described as “The B Team” “The B Team” is,that they be here when you come in and you start complaining, your problem starts, they be here, and when you decide to quit complaining because you’ve beat your head against the wall for so many years, they still be here (laugh)
So it’s “The B Team”
They’re bureaucrats
This is what they do
There, they have a certain set of tasks
Certain things that they’re tasked with
Protection of the food and drug supply of the United States, whatever that means
Whatever they deem it to mean
Whatever they decide it means
That’s what they’re gonna do, and it’s pretty hard to fight that
It’s pretty hard, unless you have a political, unless you have a, a, a, a political, ah, constituency, and you can put a lot of pressure on them
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So
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and that’s the only way
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So what’s the answer ?
What will, uh
How will Dr. Burzynski prevail ?
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Ultimately, in, in my, in my, in my view, the real tragedy is, is that he’s not going to prevail here in the United States
It’s going to be extremely difficult
It’s an uphill battle that, knowing Dr. Burzynski, he’s gonna keep fighting it, uh, and, and he’ll keep fighting that battle, but the real opportunity for him is to, uh, move this product and license it overseas, and, uh, other countries are interested
Other countries are more open, uh, to new modalities
They’re not entrenched, uh, and don’t have the financial, uh, interests, the, that are, the entrenched financial interests like we do here, like chemotherapy and, and, uh, radiation therapy, and I think that’s where ultimately we as Americans, as sad as it is, are going to have to go overseas to be treated and to get this medication
The FDA is so capricious in their decision-making, and in their exception granting, uh, that if Pat had AIDS, and this was anti-AIDS medication; proven or not or only with limited, uh, proven efficaciousness, uh, and proven limited proof that it was somewhat non-toxic, she would be able to get approval like that
The FDA has taken a drug approval process that generally takes anywhere from 10 to 15 years, and where there is political, successful political pressure applied, they have reduced that down to some cases 4 to 8 months as in the case of the anti-HIV drugs, and that’s because there is a very strong, very powerful political lobby in Washington, and throughout the country, and they have been able to apply pressure at key points in, uh, Congress Congress puts that pressure on the FDA, says: “C’mon let’s get the ball forward
These are voting people
We have millions of people in this country with HIV who are compacted together and make a viable political force
Let’s move forward”
In the case of multiple-myeloma
In the case of these cancers or these people that wanna be treated, who have failed all conventional therapy, and wanna be treated by Dr. Burzynski with something that we know works
Something that is, is non-toxic, they, they don’t have
We’re not a viable political force
We’re not important to the Washington bureaucrats, to the Washington lawmakers
So nothing gets done, and these exceptions for the use of antineoplastons are not granted, and that’s, that’s the sad truth
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Steve and Mary Jo Siegel
January 2012
22:01
11/9/2012
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Traditionally, Thanksgiving is best known as the Holiday that the Detroit Lions get the “stuffing” knocked out of them
However, this year, it’s time to tender the tainted twisted trophy of ThanksgivingTurkey-Lurkey to Detroit’s toasted triumvirate treat of two-faced twerk-salad troll turpitude, and I have the temerity to tinker and tamper until I pay tribute with therapeutic levels of Thoreauness in response to GorskGeek’smisinformation, disinformation, and MisDisInformation (Missed ‘Dis Information)
Wednesday, 12/21/2005, Indianapolis, Indiana-based Eli Lilly and Company was treated to truthification, in connection with their illegal promotion (misbranding) of pharmaceutical drug EVISTA; (FDA approved for prevention and treatment of osteoporosis in post-menopausal women), in the:
a. prevention in risk of breast cancer
b. reduction in risk of breast cancer
Alleged in information, promoted drug as effective for reducing risk of breast cancerEVEN AFTER PROPOSED LABELING FOR THIS USE SPECIFICALLY REJECTED by FDA [1]
GorskGeek, being the breast cancer oncology specialist he claims to be, and so concerned about breast cancer patients that he is that “guy” who speaks out passionately about issues like the 10-yearAmerican Cancer Society Cancer Facts & Figures, “Estimated Breast Cancer Deaths for Women”, which reflect that in 2002, 39,600 (15%) women were estimated to die from breast cancer, and this year, 2013, the estimate is 39,620 (14%), which is 20 women MORE than 10-years ago, and who rails tirelessly about the ACS’s“Estimated New Breast Cancer cases in Women”, which 10-years ago was 203,500 (31%) in 2002, and now, in 2013 is 232,340 (29%), which is ONLY
28,840 MORE than 10-years ago [2]
Now THAT’s progress !
GorskGeek, of course, must accomplish all this under his breath
But I’m sure you’re wondering, dear reader, what was GorskGeek’soutraged blog about this American pharmaceutical manufacturer coughing up $36 MILLION ?
Well, let me tell you … just as soon as I find it
Wait for it
Wait for it
Wait for it
GorskGeek was unable to bring himself to blog about Evista until exactly one year later, on 12/21/2006, and even then, he was “mum’s the word” about the breast cancer claims [3]
Perhaps GorskGeek just “knew” that eventually Evista would finally be approved by the FDA for Eli Lilly’spreventing or reducing risk of breast cancer claims on 9/13/2007, and who were those paper-pushing FDA apparatchiks to prevent Lilly from implementing their “Internal business plan” ? [4-9]
GorskGeek wouldn’t want to damage his slim and non-existent chance of getting some Eli Lilly money for research, by blogging anything that might in any way be possibly construed as him saying anything negatory about the BIG Pharma teat he longs to suck off of
After all, Bob ‘n’ Weave Blaskiewicz (who sees every molehill as a mountain), did say about GorskGeek, 9/28/2013 [10]:
—————————————————————— 1:58:04
—————————————————————— “But he is a, the thing is, the thing is, you thing you have to understand is Gorski, Gorski is a genuine expert, in matters re re regarding on oncology studies“
“I mean, he has a”
“He, He’s able to convince people, he’s able to convince people, on the strength of his record, to give him money to carry out research”
“People who know what they’re talking about”
“To give him money to carry out his research”
“Right ?”
—————————————————————— 1:59:00
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Yeah, right
Bobby 🙂
GorskGeek is hoping for a Happy Thanksgiving Golden Parachute; which is where he helps whistleblow about illegal BIG Pharma activity regarding some drug(s), which leaves him as the beneficiary of some funds like Mr. H. Dean Steinke, former Merck employee and his $68,190,000 MILLION from the federal government and states share of settlement amounts:
—————————————————————— $44,690,000 MILLION – Mr. H. Dean Steinke, former Merck employee from federal share of settlement amount(1997 – 2001)
—————————————————————— $23.5 MILLION – Mr. H. Dean Steinke, former Merck employee from the states share of settlement amount(1997 – 2001) ——————————————————————
Next, GorskGeek goes off on his fave autism prescription antipsychotic drug Risperdal, and the 11/4/2013, Monday, allegations concerning Global health care giantJohnson & Johnson (J&J) and its subsidiaries, $2.2 BILLION + fine regarding J&J Subsidiary Janssen(1999 – 2005) actions [11]
====================================== REFERENCES:
====================================== [1] – 12/21/2005
—————————————————————— EVISTA (FDA approved for prevention and treatment of osteoporosis in post-menopausal women)
—————————————————————— Eli Lilly and Company, Indianapolis, Indiana-based company
—————————————————————— 12/21/2005, Wednesday
—————————————————————— $36 MILLION
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In connection with illegal promotion of pharmaceutical drug
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Pleading guilty to criminal count of violating Food, Drug, and Cosmetic Act by misbranding drug
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In addition to criminal plea
agreed to settle civil Food, Drug, and Cosmetic Act liabilities by entering into consent decree of permanent injunction
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Charged in criminal information filed with violation of Food, Drug, and Cosmetic Act, following investigation by Food and Drug Administration’s (FDA) Office of Criminal Investigations
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Plea agreement signed by Lilly and United States
Complaint for permanent injunction
Consent decree of permanent injunction signed by company and United States
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Information alleges 1st year’s sales of drug in U.S. were disappointing compared to original forecast
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According to information 10/1998 – company reduced forecast of drug’s 1st year’s sales in U.S. from $401 million to $120 million
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Internal business plan noted:
“Disappointing year versus original forecast.”
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Information alleges in order to expand sales of drug, Lilly sought to broaden market for drug by promoting it for unapproved uses
——————————————————————
Information alleges strategic marketing plans and promotion touted drug as effective in preventing and reducing risk of diseases for which drug’s labeling lacked adequate directions for use
——————————————————————
According to information: Evista
1. brand team
2. sales representatives
promoted drug for: a.prevention in risk of breast cancer b.reduction in risk of breast cancer
c. reduction in risk of cardiovascular disease
——————————————————————
Under provisions of Food, Drug, and Cosmetic Act, drug misbranded when labeling didn’t bear adequate directions for each of intended uses
——————————————————————
Alleged in information, promoted drug as effective for reducing risk of breast cancer even after proposed labeling for this use specifically rejected by FDA
——————————————————————
Information alleges executed illegal conduct using number of tactics, including:
1. One-on-one sales pitches by sales representatives promoting drug to physicians about off-label uses of drug
2. Sales representatives trained to prompt or bait questions by doctors in order to promote drug for unapproved uses
3. Encouraging sales representatives promoting drug to send unsolicited medical letters to promote drug for unapproved use to doctors on their sales routes
4. Organizing “market research summit’ during which drug was discussed with physicians for unapproved uses, including reducing risk of breast cancer
5.
a. Creating
b. distributing
to sales representatives “Evista Best Practices” videotape, in which sales representative states “Evista truly is the best drug for the prevention of all these diseases” referring to:
1). osteoporosis 2). breast cancer
3). cardiovascular disease
——————————————————————
Complaint for permanent injunction alleges executed illegal conduct using number of tactics, including:
1. Training sales representatives to promote drug for prevention and reduction in risk of breast cancer by use of medical reprint in way that highlighted key results of drug and thereby promoted drug to doctors for unapproved use
2. Some sales representatives were instructed to hide disclosure page of reprint which noted:
a. “All of the authors were either employees or paid consultants of Eli Lilly at the time this article was written,”
b. “The prescribing information provides that “The effectiveness of [Evista] in reducing the risk of breast cancer has not yet been established.””
3. Organizing “consultant meetings” for physicians who prescribed drug during which unapproved uses of drug discussed
4. Calculating incremental new prescriptions for doctors who attended Evista advisory board meetings in 1998
5. advisory board meetings included discussion of unapproved uses for drug
6. By measuring and analyzing incremental new prescriptions for doctors who attended advisory board meetings, Lilly was using this intervention as tool to promote and sell drug
——————————————————————
In addition to agreeing to plead guilty to criminal information and plea agreement signed by Lilly, settlement with United States includes following components:
(a) agreed to settle civil Food, Drug, and Cosmetic Act liabilities by entering into consent decree of permanent injunction
(1). As part of consent decree, agreed to comply with terms of permanent injunction, which will require company to implement effective training and supervision of marketing and sales staff for drug, and ensure any future off-label marketing conduct is detected and corrected
(2). agreed to be permanently enjoined from directly or indirectly promoting drug for use in:
a.preventing or reducing risk of breast cancer
b. reducing risk of cardiovascular disease
c. or for any other unapproved use in manner that violates Food, Drug, and Cosmetic Act unless and until FDA approves drug for additional use or uses
——————————————————————
(b) as part of consent decree, agreed to hire and utilize independent organization to conduct reviews to assist Lilly in assessing and evaluating Lilly’s
1. systems
2. processes
3. policies
4. procedures
relating to promotion of drug and company’s compliance with consent decree
—————————————————————— FDA made following announcement to postmenopausal women who have taken drug for prevention or treatment of osteoporosis:
—————————————————————— “No postmenopausal woman who has taken Evista for the prevention or treatment of osteoporosis is affected by this action, as this matter today relates only to unapproved uses of Evista.”
——————————————————————
Defendant agreed to plead guilty to charge in information
——————————————————————
Defendant agreed to resolve complaint for permanent injunction by agreeing to consent decree of permanent injunction
—————————————————————— http://www.justice.gov/opa/pr/2005/December/05_civ_685.html
====================================== [2] – 11/13/2013 – The War on Cancer (I don’t think it means, what you think it says it means) #Winning?:
—————————————————————— https://stanislawrajmundburzynski.wordpress.com/2013/11/13/httpcancer-orgacsgroupscontentepidemiologysurveilancedocumentsdocumentacspc-036845-pdf/
====================================== [3] – 12/21/2006 – On the messiness of evidence-based medicine
—————————————————————— http://scienceblogs.com/insolence/2006/12/21/the-messiness-of-evidencebased-medicine/
====================================== [4] – 9/13/2007 – FDA Approval for Raloxifene Hydrochloride (Brand name(s): Evista®): Approved for breast cancer risk reduction:
—————————————————————— http://www.cancer.gov/cancertopics/druginfo/fda-raloxifene-hydrochloride
====================================== [5] – 9/14/2007 – FDA Approves New Uses for Evista: Drug Reduces Risk of Invasive Breast Cancer in Postmenopausal Women:
—————————————————————— http://www.fda.gov/newsevents/newsroom/pressannouncements/2007/ucm108981.htm
====================================== [6] – 9/17/2007 – EvistaApproved for Reducing Breast Cancer Risk:
—————————————————————— http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm048474.htm
====================================== [7] – 2007
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This telephone interview with Dr. Burzynski was held in December 2002. The purpose of the interview is to inform people about Dr. Burzynski’s cancer treatment, Antineoplastons. It will be circulated for free on the Internet. I have no affiliations with Dr. Burzynski either personally or professionally.
Hello Dr. Burzynski. I would like to thank you for taking the time to inform people about your cancer treatment Antineoplastons, and your experiences in the area of cancer over the last 25 years.
Is it true that you were the youngest person in Poland in the 20th century to earn two advanced degrees, an M.D. (Medical Doctor) and Ph.D. in biochemistry at only 24?
I’m not sure if I was the youngest, I was among the youngest. In Poland, its 15 years average (Gavin. For a Ph.D.) after you receive an M.D.
What motivated you to come to the United States? When did you arrive here?
Well basically freedom. You see, I could easily stay in Poland. I was a prominent student, one of the best they ever had in medical school and certainly if I would become a member of the Communist Party I would accomplish a lot in Poland. But I didn’t want to be a Communist and after I declared, “forget it, I’m not going to be a Communist”, they persecuted me. So, practically, it would not be possible for me to do any research in Poland. I arrived in the United States on the 4th of September 1970.
You began working at Baylor College of Medicine in Houston?
I was not employed for 6 weeks, then I got the appointment at Baylor in the position of research assistant. A couple of years later I became Assistant Professor.
I have read that your cancer research was motivated by your observation of a cancer patient in Poland that was missing a particular peptide in their blood, is this correct?
Well Yes. First I discovered some peptide fractions in blood and then I was trying to determine their significance. This means that I was screening the blood samples from people who suffer from various illnesses, among them cancer patients. I found some remarkable changes in concentration of these Peptides in cancer patients. Basically there was a great deficiency of these Peptide fractions in the blood of cancer patients.
What are peptides and how did your research develop from there to developing Antineoplastons?
Peptides are chains of Amino Acids, so if you put together 2 Amino Acids, you have a Peptide.
You have said, “Cancer is really a disease of cells that are not programmed correctly. Antineoplastons simply reprogram them so that they behave normally again.”
They do, but we are not really interested in making normal cells out of cancer cells. What we are interested in is correcting one basic difference between cancer cells and normal cells, and this is the mortality of normal cells and the immortality of cancer cells. Cancer cells are immortal. And if you change them into mortal cells again they will die and the tumor will disappear.
I read a humorous part in Daniel Haley’s chapter about you in his book, “Politics in Medicine.” He says that initially you derived Antineoplastons from your friends blood, but had to change because your friends stopped coming around, is that correct?
Certainly it was difficult to obtain a lot of blood for the research. It was a necessity to look for a source that is widely available. I realized from the very beginning that once I use urine, my critics will use this against me; try to just smear me, “That’s the doctor who is using urine to treat cancer.” But there was no other way to do it.
There are plenty of ignorant remarks about your treatment because it used to be derived from human urine. The process you use now does not involve collecting human urine. Please describe the complete process you use.
Ever since 1980, we are using synthetic analogues of Antineoplastons, made in a state-of-the art biomedical manufacturing facility. These have nothing to do with urine or blood.
Would you describe Antineoplastons as natural?
They are natural of course, they exist in our body.
Your treatment does require a strong commitment from your patients as they must be infused with Antineoplastons for many weeks or months, is that correct?
But most of our patients are taking oral formulations. I would say that perhaps 15% of our patients are taking intravenous infusions of Antineoplastons; the rest take capsules or tablets.
The patients who have the most advanced type of cancer will require heavy dosages. There is a limitation of how much medicine you can take by mouth. Fifty or sixty tablets a day, that’s pretty much all you can take by mouth. But if you give intravenous infusion you can deliver the equivalent of 3,000 tablets a day.
You went into private practice in 1977. How was this funded?
Well, I started private practice in 1973. It was not necessary for me to have any funding, because I joined with other physicians.
Is it true that Dr. Mask at a hospital in Jacksboro, Texas ran your first human clinical trial? What types of cancers did you treat? What were the results of these trials?
I would not call it a clinical trial, because only two patients received initial treatment. They were very advanced, close to death and unfortunately, both of them died. But these cases were not lost because we found we can administer Antineoplastons without having bad side effects.
What is the general side effect experienced by your patients when using Antineoplastons? Does it damage the immune system as chemotherapy does?
We are not talking about one medicine; we tried 12 different pharmaceutical formulations. Basically it depends what formulation we use, but when we give them orally, we see practically no side effects at all. Patients may develop skin rash, which may last for a day or two.
But, when we give large dosages intravenously, we have to watch fluid balance…and electrolyte balance. We don’t see any delayed toxicity once the treatment stops. Everything practically goes back to normal within say a day or two. It does not even come close to the adverse reactions that you experience with chemotherapy.
What is the cost today for a patient using your treatment in a pill form and do insurance companies pay for it? *
Well basically, we do not charge patients for medicines, Antineoplastons are given free of charge. What we are charging for are supplies, and we are charging for standard services such as office visits, nursing services, Lab tests, consultation, evaluation etc. And these services are priced the same way as the average medical services, and they are covered by the insurance.
*(Gavin. Insurance companies will rarely pay for Antineoplastons, which is considered an experimental treatment. It also depends on the type of insurance plan someone may be on.)
So if a patient were using the pills, what would it normally cost per month.
About $2,000 a month.
Antineoplastons is most effective against brain cancer, is that correct?
Well, it’s not really correct. Because brain tumors are very difficult to treat, we concentrate our efforts on the toughest type of cancers. Out of our clinical trials, we have eight that came to the final point, which means they proved that there is some efficacy, and six of these are in various types of brain tumors. But there is another clinical trial, which deals with advanced colon cancer, which also proved efficacy and another one with liver cancer. But we still need to wait a little longer to have a larger number of patients treated and then statistically find out if this is going to work.
Basically the treatment works when we have involvement of the gene, which can be activated by Antineoplastons, and such genes, like gene p 53, are involved in 50% of all cancers. The treatment turns on gene p 53. So it has more to do with what kind of gene the patient has in his cancer cell, rather than the type of cancer.
Is there a special diet to follow when using your treatment?
Yes, since we are expecting there may be some changes in minerals, we usually emphasize a diet that is relatively low in sodium. We treat every patient individually. Every patient has a consultation with a dietary expert who tries to individualize his diet
Is your treatment being used in any other countries?
Yes, we have people coming to us from all over the world. I think we can probably count easily 70 to a 100 countries from which people are coming. But the main effort is now in Japan, outside the US. In Japan there are 2 clinical trials being conducted by Japanese doctors. Also, a group of doctors in Mexico obtained approval from the FDA and Mexican government to do clinical trials.
Now I have several related questions about brain cancer in children.
Dustin Kunnari and Dr. Burzynski. Dustin is one of Dr. Burzynski’s great success stories.
Dustin had brain surgery at 2 ½ years old. The surgery removed only 75% of the tumor.
Dustin’s parents, Mariann and Jack, were told that Dustin would only live for 6 months. Chemotherapy and radiation may extend Dustin’s life slightly, but at a very high cost in quality of life with very serious side effects.
Mariann and Jack decided to look into alternatives. They found out about Antineoplastons and after only 6 weeks of intravenous treatment, Dustin’s MRI showed he was cancer free.
One year later another tumor appeared on the MRI. By this time Dr. Burzynski had developed a more concentrated form of Antineoplastons. After 5 months the tumor was gone. Dustin has remained cancer free ever since and was taken off Antineoplastons when he was 7. Dustin is 12 today.
About how many children suffer from brain cancer in the US each year?
The statistics are available for 1999. The new cases of brain tumors in children were counted as 2,200. Now around 3,000, I would say.
Approximately what percentage of children is still alive after 5 years using orthodox treatments for brain cancer?
It depends on the type of tumor and it’s location, some of the toughest are those that are located in the brain stem. Up to 5 years, you have practically no survival when you use the best treatment available, which is radiation therapy. Chemotherapy usually doesn’t work for such patients. After 2 years, 7 % survival. After 5 years, practically none.
Dustin, after brain surgery.
To further complicate matters, Dustin’s oncologist kept threatening his parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment.
This continued for a year, even after Dustin’s success with Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Is it correct to say you have had very good results when treating brain cancer in children?
Yes we have. I gave you the example of the toughest, which is located in the brain stem. We get about 40% survival rates after two years. After 5 years at the moment we have about 20% survival rate. The reason is that most of the patients who come to us, have received prior heavy radiation therapy, or chemotherapy. They usually die from complications from these treatments. Those who survive the longest are patients who previously did not receive radiation therapy or chemotherapy. The longest survivor in this category is now reaching 15 years from the time of diagnosis; and she’s in perfect health.
With the more common variety, which is aciotoma located outside the brain stem, we get much, much better. We have 75% of patients who are objectively responding to the treatment. This means that the tumor will disappear completely or will be reduced by more than 50%.
This is another strong point. It’s extremely important. Children are usually damaged for life after radiation therapy, when we can avoid it and bring them back to life.
What criteria must parents of children with brain cancer meet before being able to have their children treated by you?
Well, practically all of these brain tumors must be inoperable. This means that it’s not possible to remove them with surgery. Except for one category, they should have advanced disease. The tumor should have the size of more than 5 mm in diameter and be located in a place that cannot be operated upon.
There is one category of these tumors, medulloblastoma, where the FDA requires that the patients would receive prior standard treatment and fail before we can accept them. In the rest of these children we can accept them without failure of prior treatment.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Let us talk a little about some of your most successful stories using Antineoplastons with children. Probably the most remarkable case is that of Tori Moreno . In August 1998 Tori was diagnosed with a stage 4 brainstem glioma that was inoperable. Her parents were told she would die in a few days or at the most, a few weeks. When did you start treating her?
Tori had Stage 4 brain stem glioma. The tumor was too risky for surgery. She was diagnosed shortly after her birth. The tumor was very large, about 3 inches in the largest diameter and located in the brain stem. Her parents consulted the best centers in the country and they were told there was nothing to be done. So finally she was brought to us, when she was about 3 ½ months old. This was in October 5 years ago. She was in such condition that we were afraid that she might die at any time. Fortunately she responded, and about 5 months later we determined that she obtained a complete response, which means complete disappearance of active tumor by
MRI criteria. She is a perfectly healthy child and tumor free. She still takes small dosages of capsules of Antineoplastons, but we will discontinue this shortly.
Tori Moreno 9.28.98. Temporarily enlarged due to taking Decadron.
Tori’s parents were told there was nothing that could be done for her and she would be dead in a few weeks.
Tori is alive and well today thanks to Antineoplastons. See photo below.
At the end of this interview, there is a short interview with Kim Moreno, Tori’s mother.
Kim Moreno has set-up a Yahoo e-mail account to answer peoples cancer related questions.
kimmoreno5@yahoo.com
And today she is over 5 years old?
Yes, she’s 5 years old and living a pretty much normal life.
Tori 22.10.02. A perfectly healthy child. Orthodox treatment consists of high does of radiation therapy and possibly toxic chemotherapy as well. Most of the children are dead in a few years. The ones that survive suffer from permanent retardation, along with other serious side effects from the radiation.
Please do not forget about the interview with Kim Moreno, Tori’s mother, at the end of this interview.
But mainstream medicine has been trying to kill the cancer cell using chemotherapy and radiation, is that correct?
That’s right, yes.
Chemotherapy and radiation cannot differentiate between healthy and cancerous cells?
They can differentiate to some point, but basically, this difference is very small, so ultimately, the normal cells will be killed.
Is that why they have such a terrible effect on the immune system?
That’s right, not only the immune system, but also many other systems in the body. Practically, the treatment is destroying healthy parts of the body.
Chemotherapy and radiation also cause cancer, don’t they?
Yes. For instance right now we see a lot of patients who in childhood were successfully treated for leukemia or for Hodgkin’s disease. Then they develop cancer that is practically incurable, like lung cancer, breast cancers; I even encountered a patient in my practice that developed three different types of cancers, and was only 28 years of age. First she was treated for Hodgkin’s Disease, then she developed bone cancer in the places which were radiated for Hodgkin’s Disease, and then she developed breast cancer after that; it’s really horrible. So there is increased incidence of secondary cancers in patients who were treated previously with chemotherapy and radiation.
Shontelle Huron. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons. maryjo@siegel.net
Ric and Paula Schiff write about the torture their daughter Crystin had to endure during chemotherapy/radiation treatment.
Crystin was diagnosed with perhaps the most malignant tumor known, which is a rhabdoid tumor of the brain. Of course, historically, there was no case of such a tumor ever having a long response to chemotherapy or radiation therapy. She received extremely heavy does of radiation therapy and chemotherapy, because nobody expected that she would live longer than a year or so. So unfortunately she was terribly damaged with this. She responded very well to Antineoplastons. We put her in complete response. But unfortunately she died from pneumonia. Her immune system was wiped out, so when she aspirated some food, she died from it. The autopsy revealed that she didn’t have any sign of malignancy.
But there are also likely permanent severe health concerns related to taking chemotherapy and radiation.
In young children there is permanent damage to the brain. Unfortunately some oncologists who are dealing with such cases are really cruel to the parents, because they are saying, “well, your child will survive, but you are going to have a jolly idiot for the rest of your life.”
Is it true that if parents refuse chemotherapy/radiation treatment for their children the hospital, via the courts, could have the child removed from the parents care and forced to take chemotherapy/radiation treatment?
Yes, unfortunately in some States, the law may require taking children away from the custody of the parents to send them to such treatments.
Jared Wadman. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Isn’t this what happened to Donna and Jim Navarro when they chose your treatment over orthodox treatments?
That is correct. Thomas Navarro was diagnosed with medulloblastoma. He was operated on and the tumor was removed. Then he was scheduled for radiation therapy. Since he was only 4 years old, the parents knew that he’d be damaged by radiation therapy. Nobody at his age survives this type of tumor anyway after radiation therapy. So that’s why they decided to come to our clinic. Unfortunately I could not treat him because FDA requires failure of radiation therapy for such patients.
And tragically he died in November 2001.
What happened was, the parents decided not to take any treatment. We asked the FDA several times to allow administration of Antineoplastons, because we have already had successful treatments for some other children without any prior radiation. Then ultimately he developed numerous tumors in May the following year. Then we suggested to the parents of Thomas, that if they are not going to take our treatment, they should go for at least chemotherapy. They went for chemotherapy to one of the best centers in the country, to Beth Israel Hospital in New York. The chemotherapy was successful, but he almost died from it. It severely affected his bone marrow. I remember a phone call from Thomas’s father telling me that the doctors are thinking that they won’t do anything else for him and that Thomas will die within a week because of severe suppression of bone marrow.
But I encouraged his father to do whatever is possible because such patients may turn around. Fortunately he turned around, but about a month or two later he developed 15 tumors in the brain and the spinal cord. Then, when he was close to death, when nothing was available for him, the FDA called us and told us now we can treat Thomas. When we treated Thomas he survived 6 months, and the tumors had substantially decreased, but ultimately he died from pneumonia.
Is it accurate to say that the initial orthodox treatment for brain cancer is surgery to remove the tumor?
If the tumor is located in the proper part of the brain. For some locations it is out of the question. But, you are right, that is the first step.
Does surgery alone ever cure a patient with brain cancer?
Well, some cases, with benign brain tumors, when the tumor can be completely dissected, yes, it’s possible. But in most cases it’s not possible.
How much of a risk does surgery present regarding spreading the cancer more quickly and other complications?
Well, not so much regarding spreading the cancer more quickly in the case of brain tumors. Such a spread may happen only with a small percentage of brain tumors that have the highest aggressiveness. But for most of the patients the tumor is not going to spread just because of surgery. Certainly surgery may damage the brain and patients may even die during the surgery. It’s not the ideal thing to do of course because you are removing the tumor and you are removing a healthy part of the brain at the same time. The patient may be permanently damaged by such procedures.
Would you warn against rushing into surgery in light of how effective your treatment is? Would you most times recommend trying your treatment first?
We really would like to know what we are dealing with. This means that we would like to have at least a biopsy; if by chance it’s not going to create sufficient risk for the patient. If the tumor was located in such a place in the brain where surgery is possible, then certainly we could try to remove the tumor. But I think it would be best if we can treat the patient with brain intact and get rid of the tumor completely, because then we risk the least damage possible.
Now I will turn my attention to your legal battles with the FDA. They began in 1983 when they sued you in civil court, is this correct?
In 1983, that was the first court battle with the FDA. The FDA sued us. It took about 6 weeks in court and again, we won.
Then there was an enormous raid by the FDA at your offices on July 17, 1985. What was the reason for this raid?
We were never given a reason. I think there was a concentrated action against a few alternative medicine centers because at the same time there were similar actions in the Bahamas and in some other places.
In the four court cases the FDA has brought against you, have any of your patients testified against you?
Well, on their own will, nobody testified against us. But the FDA encouraged some of our patients, and threatened them in various ways. They forced them to come to the witness stand. But really, once they were on the witness stand they behaved more like our witnesses, not FDA witnesses.
According to Daniel Haley, after the FDA lost its last court case against you in 1997, Congressman Richard Burr said it was “one of the worst abuses of the criminal justice system”. Did Burr ever speak to you about it?
Yes, we talk with Congressman Burr. I believe he is right, because certainly there was no reason for such massive action on the part of the FDA. They knew that the treatment works; that the treatment helps patients, that the patients will die if they win, so they should not do it. All of this was with the taxpayer’s money.
So the FDA has wasted many millions of taxpayer dollars trying to convict you on false charges of transporting Antineoplastons across State lines. What was the motivation for this vendetta?
Well, it’s hard to tell, because it was never properly investigated; why they did it. But, we have some leads. For instance, on one side you have a large pharmaceutical company, which was very interested in getting hold of our patents; this is Elan Pharmaceutical. It happened that I treated successfully a close relative to the CEO of Elan. Elan became very interested in what we have. They came close to signing a final license agreement. But after they learned what we have, they decided to withdraw and then suddenly the FDA and NCI gave their full support to Elan, to do clinical trials with one of the ingredients of Antineoplastons, phenylacetate.
This was a large pharmaceutical company that was trying to appropriate my invention. On the other hand, within the FDA and NCI you have had people who were working closely with this company. For instance Mary Pendergast, who was responsible for the legal action against us, became Vice President of Elan. Also Doctor Michael Friedman, who was initially in charge of NCI cancer research, and who knew that our treatment works, later became commissioner of FDA and he did whatever he could to put us out of business. Not only that, but to simply destroy me.
On the other hand, suddenly the government decided to file for the patents, which claimed the same thing that our patents did. Never in the history of the United States do you have the issuance of two patents for the same invention. It was really a breach of patent procedure. The patent office allowed them to patent something I invented, and which I patented. And dishonest scientist Dr. Dvorit Samid, who initially worked for us, was receiving funds from us and finally went for the higher bidder (Elan).
So you have a lot of leads, which indicate that there was something between the government, dishonest scientists like Dvorit Samid and the large pharmaceutical company, Elan. And it was in best interests for them to get rid of me, destroy me, so they could appropriate my discoveries and benefit from that.
When did you initially apply for your Investigational New Drug (IND)?
We applied in May 1983.
When did you receive it?
Well, it took an extremely long time. Ultimately most of our clinical trials began in 1996, a long time after that. FDA did not allow us to proceed with clinical trials for an extremely long time. Please click here to read the
conclusion of this interview
E-mail this sites address to someone and help spread the word
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
It is important for everyone to understand the economics of the drug industry. I have heard that the cost today for bringing a drug to market is upwards of 500 million and takes about 12 years, is that true?
Yes, you’re right.
The drug company is then given a 17-year patent so that it can make a profit on the drug. It is little wonder the drug companies fight against natural treatments such as Laetrile, because they are unable to patent them and they pose a serious threat to their profit margins. But you are able to patent your treatment, so why was there no interest in it from the drug companies?
Basically you have 17 years from the time when you have approval of the patent and this is independent from FDA’s approval process. You file the patent, once you make a discovery, and then you go through FDA procedure. You spend say 12 years or 15 years for the approval process, then you have only 2 years license from the FDA, because license is going to expire in another 2 years. Certainly the pharmaceutical companies are spending a lot of money in this process.
In our case I decided to develop this on my own, to generate money from my private practice and use the money to support the research of Antineoplastons. Again we were approached by many different pharmaceutical companies, which were interested in working with us. Certainly after the bad experience (with Elan) we are very cautious with whom to deal. On the other hand pharmaceutical companies were afraid of action from the FDA.
The NCI put off testing Antineoplastons using the fact that it failed their standard P388 leukemia mouse test, is that correct?
Yes
What is the P388 leukemia mouse test and why did Antineoplastons fail it?
Well we had informed the NCI that this was a bad type of test for antineoplastons. Antineoplastons seems to be specific for species. Different animals have different antineoplastons; mice have a different composition of antineoplastons than humans. Practically, human antineoplastons may work well in humans, but they may not have much activity in mice. We knew this, even before the NCI began testing. On the other hand we didn’t have good results at all in the acute form of leukemia and we didn’t even accept such patients. It was known that if they only do this type of test, it was not going to work. They still tested and used this to say that Antineoplastons don’t work against cancer. Certainly the fact that something works or doesn’t work against mice leukemia is irrelevant.
I’d like the reader to bear with me in the next few questions, as the point will become clear. One of the chemicals you identified in the peptides was phenylacetate. But it was far inferior to the others and you chose not to patent it, is that correct?
This is not a peptide, this is a metabolite of our antineoplastons and it’s an organic acid. So this is a final metabolite of antineoplastons. It has some anti-cancer activity, but the weakest of all antineoplastons. We knew about it and that’s why after some preliminary experience in the treatment of phenylacetate back in 1980, we decided that it’s not worth pursuing this and then we used antineoplastons that have higher activity.
But didn’t you later find out that the NCI actually holds the patent for phenylacetate?
You’re right. NCI is the owner of the patent, Dr. Samid is the author but Elan has the license to use these patents. All of these three work together.
Why did the NCI patent something that was far inferior to your other Antineoplastons?
Because they knew that this was the only chance that they can get hold of something which has to do with antineoplastons.
The NCI ran clinical trials on phenylacetate in 1992 and found it to be worthless, is that correct?
Well, the clinical trials began in 1992 but it took a few years to have the results. It shows some effectiveness in brain tumors and in prostate cancer. But of course it was far away from the results that we can get with antineoplastons.
When did the NCI eventually start clinical trials of Antineoplastons?
In 1994.
I assume you gave the doctors running the trials all the information about correct dosages, is that true?
Yes, well, basically they used dosages that were 50 times lower than what we feel are effective dosages. We have some patient’s relatives who were present when the treatment was administered. Formulations of antineoplastons were badly diluted. This means that the patient was receiving very little antineoplastons and some of these patients were removed from the treatment after a short period of time because they were overloaded with fluid. Well normally we see fluid overload in perhaps less than 2% of our patients. So it makes sense that perhaps the formulations of antineoplastons were diluted and when the Mayo Clinic (1999) determined the concentration of antineoplastons in blood, we realize that it was something like 50 times lower than what it should be.
Do you think the NCI purposely sabotaged your trials?
I have no doubt about it. They sabotaged the trial; they accepted patients who were too advanced. Their main effort was to give a low dose of the medicine for a short period of time and to stop treatment just for some minor problem, like if a patient developed a skin rash. They were trying to give the treatment only for a very short period of time, like for instance a couple of weeks or a month. And then of course the patient was dying after that. It was completely unethical, it was horrible. As you probably heard recently, the pharmacist who was diluting an anti-cancer drug, was sentenced to 10 years in prison. I think the same should happen to these guys who really were trying to use this for their political manipulations.
Jessica Kerfoot. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
How much influence do the pharmaceutical companies wield in medicine in the US?
Extreme influence. Most of the oncologists, I’m talking about reputable oncologists, they work for pharmaceutical companies, they work in clinical trials, they receive various type of incentives from pharmaceutical companies. And basically these doctors are approving medicine, FDA may approve the medicine, but finally this advisory board may advise FDA to go ahead with this or do not approve that medicine. So really the doctors who are deciding if the medicine should be approved or not, practically all of them have some type of relation with large pharmaceutical companies.
Is there a conspiracy to suppress other treatments or is it just a case of avaricious businesses, the pharmaceutical and hospital industry’s, doing everything in their power to protect their bottom line?
Well certainly they have a lot of power. When I filed my application for IND, the standard FDA policy was such that they would never approve a new drug for an individual owner, only for the large pharmaceutical companies. And that’s why I believe we waited for such a long time to receive the go-ahead for our clinical trial. So certainly there were obstruction tactics. Whether this is a conspiracy or not is hard for me to tell. As you can see, the leads which I presented, like for instance a researcher who worked for me initially and then decided to go to the higher bidder, which was a pharmaceutical company; then the relationship between the pharmaceutical company and governmental agencies. All of this indicates that there is some type of conspiracy. I think a Congressional committee should study this.
Turning our attention to the doctor/oncology profession. When reading Thomas Elias’s excellent book, “The Burzynski Breakthrough”, I was struck by how many times patients said that their oncologists were aggressively opposed to them taking your treatment.
Even after a patient’s success with your treatment, very few doctors give you the credit. Is this due to jealousy, arrogance, plain old denial or something else?
Probably a lot of arrogance. We have some prominent specialists, the best specialists in the world who really acknowledge our results and would like to work with us. On the other hand you have some doctors who hate to see a patient with success on our treatment. The fact that the patient is coming to their office, years after the patient should be dead, is something like a slap in the face. They hate it.
They will do everything they can to lie, to obstruct the information about this patient. We have a lot of evidence that oncologists were lying about the patient’s condition. For instance the patient recovered completely from highly malignant cancer and the oncologist was telling us the patient died from cancer. So certainly, we have a lot of evidence about some of these doctors who are dishonest, who are liars, who cheat. But on the other hand you can’t really put the same label on the entire profession. There are many other doctors who are honest and who like to know about what we have. Of course our clinic has board certified oncologists who are taking care of our patients.
I found an interesting quote by David Stewart, a philanthropist who helped fund Gaston Naessens cancer research in the 70’s. He says,
“I can say categorically that most scientific researchers with whom I have had to deal are highly opinionated, arrogant, condescending, and have built-in, insurmountable prejudices.”
Would you agree with these sentiments? What have your experiences been?
Well certainly, I think he’s right; unfortunately that’s the truth.
We spoke about Crystin Schiff briefly before. This is a particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s brain tumor, Prados replied in the negative. But a few years before, he had sent you 14 letters documenting the effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer. Is this story true?
Yes, it’s true; of course Jeff Keller had an extremely malignant brain tumor. He had a high-grade glioma of the brain; he failed radiation therapy and additional treatments. He responded extremely well to our treatment. He was one of the patients whose case was presented to the NCI. So there was no doubt about his response. Dr. Prados knew about it. If he was dealing with a hopeless tumor like Crystin Schiff, why didn’t he call us?
Ryan and mother Cindy. Ryan is in remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
Do you know why Prados did not tell them about Keller’s success with your treatment?
It’s hard for me to tell. It happens that Dr. Prados and Dr, Friedman, who became the boss of the FDA, came from the same medical school. So they work closely together, and perhaps there is something to do with the general action against us. It would be inconvenient for Dr. Prados to say that the treatment works if FDA was trying to get rid of us and when his friend was Commissioner of the FDA at that time. Perhaps that’s the connection….
One of your greatest critics is Saul Green (Ph.D. Biochemistry), a retired biochemist from Memorial Sloan Kettering. In 1992 the Journal of the American Medical Association (JAMA), published Green’s article, “Antineoplastons: An Unproved Cancer Therapy.” What were his conclusions about Antineoplastons?
Well, Green is not a medical doctor, he’s a retired biochemist; he never reviewed our results. He got hold of some of our patents and that’s what he based his opinion on.
He was hired by another insurance company (Aetna) that was in litigation with us. He’s like a hired assassin. Not telling the truth. So really to argue with him is good for nothing. Even if something were completely clear he would negate it. He is simply a guy who was hired by our adversaries. He would do whatever they paid him to do.
Paul Leverett was diagnosed with a glioblastoma multiforme grade 4 brain stem tumor in May 1999. The prognosis was that he would probably be dead before the end of 1999. Orthodox medicine gave him no hope of survival.
Paul was given the maximum amount of radiation he was capable of receiving. It slowed the tumors growth slightly, but this did not alter Paul’s prospects for survival at all.
After completing some research on the Internet Paul learned about Dr. Burzynski’s Antineoplastons. Paul began taking Antineoplastons intravenously, administered by his wife, in September 1999. After 6 weeks Paul’s tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks.
A PET scan in December 2000 confirmed that Paul was in complete remission. He stayed on Antineoplastons until August 2001 to ensure the tumor would not reoccur. There is just under 20% tumor necrosis remaining in his brain stem, which is probably scar tissue.
Paul’s oncologist (at MD Anderson, Houston) initially wanted to show his scan’s to his hospitals (MD Anderson) tumor review board. But then, for whaever reason, he refused further contact with Paul and did not go ahead with it.
The photo was taken with his wife Jennie. Paul had a web site created in order to inform people about his cancer experiences. http://www.dontevergiveup.com
E-mail: pjleverett@ev1.net
Did Green ask to look at your patients’ files or even talk to any of your patients themselves?
No.
You responded with an article with 137 references, did JAMA publish even part of it?
JAMA refused to publish the article. They decided that they would publish a short letter to the editors. And obviously this is another dirty thing, because letters to the editors are not in the reference books. If you look in the computer and try to find letters to the editor from JAMA, you’ll never find it. So people who are interested will always find Green’s article, but they will never find our reply to Green’s article, unless they go to the library. Then they can look in the JAMA volume in which the letter was published, and then they will find it. So many doctors were asking me why I did not respond to Saul Green’s article because they never found my letter to the editors.
Are they obligated to publish your rebuttal?
Certainly they are, because they put Green’s article in JAMA in the first place, they accepted it without any peer review and then they did not allow me to honestly respond to it. I should be allowed to publish my response to the article in JAMA.
At the time of the publication Green was working as a consultant to Grace Powers Monaco, Esq., a Washington attorney who was assisting Aetna insurance agency in its lawsuit against you. What was the Aetna lawsuit about?
One of our patients sued Aetna because Aetna refused to pay for my treatment. Then Aetna got involved and Aetna sued us. Aetna really became involved in what you can call racketeering tactics because they contacted practically every insurance company in the US. They smeared us, they advised insurance companies to not pay for our services. So based on all of this, our lawyer decided to file a racketeering suit against Aetna. This was a 190 million dollar lawsuit against Aetna. So certainly Aetna was trying to discredit us by using people like Saul Green. And they hired him to work on their behalf.
So there was an obvious conflict of interest for Green because he worked for Monaco who was assisting Aetna. Was this information published in the JAMA article?
No.
Green also questions the fact that you have a Ph.D.. At the American Association for Clinical Chemistry Symposium, July 1997, Atlanta, GA., he says in part
“Burzynski’s claim to a Ph.D. is questionable. Letters from the Ministry of Health,
Warsaw, Poland, and from faculty at the Medical Academy at Lublin, Poland, say,
respectively:
1. At the time Burzynski was in school, medical schools did not give a Ph.D.
2. Burzynski received the D.Msc. in 1968 after completing a one-year laboratory
project and passing an exam. (3) Burzynski did no independent research while in medical school.”
He cites the people below as giving him some of this information.
1. Nizanskowski, R. ,Personal communication. Jan 15, 1992.
3. Bielinski, S., Personal communication, Nov. 22, 1987
First of all, do you have a Ph.D.?
Well, the program in Poland is somewhat different than the US. What I have is equivalent to a US Ph.D. When a medical doctor in the US graduates from medical school, he receives a medical doctor diploma. In Poland it’s a similar diploma, but it’s called a physician diploma, which is equal to medical doctor. And after that, if you would like to obtain a Ph.D., you have to do independent research, both in the US and in Poland. So you have to work on an independent project, you have to write a doctorate thesis and, in addition, to that in Poland, you have to take exams in medicine, in philosophy and also you have to take exams in the subjects on which you have written your thesis, in my case this was biochemistry.
As you can see from the letter from the President of the medical school from which I graduated, this is a Ph.D..
Saul Green got information from the guys who were key communist figures in my medical school. The second secretary of the communist party in my school, hated my guts, because I didn’t want to be a communist. So, somehow, Green got hold of “reputable” communist sources (laugh) to give him that information. It is exactly the President of the medical school who certified that I have a Ph.D..
So you are saying that theses people he received his personal communication from, Nizanskowski R, and Bielinski S, are both Communists, is that correct, or they were?
Not only communists, but Bielinski was one of the key players in the communist party in my medical school. So certainly he was extremely active as a communist. And, you know that communists, they usually don’t tell the truth.
So there is absolutely no question about it, you have a Ph.D. and Green’s doubts are totally without foundation. Has he ever acknowledged publicly the fact that you have a Ph.D.?
He’s never got in touch with me regarding this.
There are some mainstream oncologists who have stated publicly that your treatment works such as Dr. Robert Burdick, oncologist and professor at the University of Washington Medical School.
He is one of the top experts in this field.
Dr. Burzynski, there are undoubtedly many people alive today solely because of your treatments, but there could be many hundreds or thousands more alive if the public was given free access to your treatment. Do you see this ever happening?
I see this happening within a few years. We already have 8 clinical trials that prove efficacy of the treatment. However, we still need to treat more patients, because in each of our clinical trials it is required that we treat 40 patients. If we are talking about 78 clinical trials, then the number of patients that need to be treated is about 3,000. We are moving forward, probably in another 2 to 3 years we will have final approval.
A group shot of some of Dr. Burzynski’s patients. Please see the Burzynski Patients web site for more information,
http:// http://www.burzynskipatientgroup.org
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
maryjo@siegel.net
You have fought the government on behalf of your patients’ rights for over 25 years. There must have been a few times when you considered calling it quits. What has sustained you over the years and kept you fighting?
Well you see, basically the principle. Certainly I could practice just regular medicine and not
spend millions of dollars for the research, which I did. And I could go to some other country and practice. But I feel that this is my obligation because what I am doing is right. I’m saving peoples lives. So why should I give in to some mediocre characters, to liars, to people who really misrepresent what I do. And if I fail, then America will fail also. Because really America is the bastion of Democracy in the world. If America is rotten, then the whole world will go down to hell. So if something is rotten in the Patent office, in the NCI and FDA, it is the duty of the citizen to show that this is rotten and should be corrected.
There are a number of good people who can make it work, so why should bad people erode and destroy the entire system. I felt that this was my obligation; I felt that I was right and even if I had to go to prison, I would fight for it, because this is the right thing to do. Otherwise I could not look at myself in the mirror. I would despise myself.
Do you think we will we ever have medical freedom of choice in the US, where we can choose whatever treatment we want for cancer?
I am not sure if this will ever happen. But at least I am hoping that the movement, which we pioneered, like this alternative medicine movement, will bring a lot of good to the American people. After all, now you have official recognition of alternative treatment, more or less, and this is because of our fight. If we wouldn’t fight at that time, then perhaps it would not happen, but maybe it would happen another ten years from now.
Standard medical practices and the observations of physicians who are outside the medical establishment are extremely important, because anybody can make a discovery and improve the health of people. This I think is an important movement, but whether the people of America will ever have a chance to select whatever treatment they want, is another story.
Finally Dr. Burzynski, a hearty thanks to you for keeping your treatment available to cancer patients, for keeping your oath as a doctor and putting the patient ahead of financial gain, and of course, for saving lives. Please keep up the great work. Thank you for giving me the time to conduct this interview and inform people about your work and treatment.
Thank you.
End of interview.
Gavin.
Please be aware. Orthodox medicine often states that people who have recovered from cancer by unapproved methods did so due to a “spontaneous remission”. This means that the cancer just disappears for no apparent reason. First of all, I do not know of any documented cases of spontaneous remissions in brain cancer. In other serious cancers it is so rare as to be unworthy of discussion.
But here is the most crucial point. A true spontaneous remission is when the cancer goes away without any treatment, either approved or unapproved. It’s absurd to suggest that someone who received large amounts of Antineoplastons, and is then cancer free, had a spontaneous remission. If someone has surgery to remove a tumor and they are cancer free for years, we know it was because of the surgery.
Also remember that in many cases cancer patients turn to Antineoplastons (and other so-called alternatives) after chemotherapy and/or radiation have failed. If the patient goes into remission, oncologists often state that it was a delayed response to their treatment. This is a very convenient situation for oncologists. When their treatments fail, they still claim the credit for the patient’s recovery, even after the patient has been on Antineoplastons (or other treatments) for months/years.
Read about Dr. Burzynski’s treatment from the most important sources, the patients who had cancer and who are alive today because of Antineoplastons. The Burzynski Patients Web Site
http:// http://www.burzynskipatientgroup.org
Kim also has an e-mail account she specifically set-up for people to contact her about her experiences with Dr. Burzynski, oncologists, Antineoplastons and cancer treatments in general. Any e-mail unrelated to these subjects will be deleted.
kimmoreno5@yahoo.com
While searching the Internet for links related to Koch’s glyoxylide, I found a recent article on Dr. Mercola’s web site related to a drug called Methylglyoxal (the lead ingredient, which is a metabolite in our body) that has been tested in India for over ten years. Please see, http://www.mercola.com/2001/jun/13/methylglyoxal.htm
Thank you for taking the time to inform people about your family’s experiences while your daughter Tori was taking Antineoplastons.
Tori was first diagnosed with a Stage 4 brain stem glioma in August 1998, is that correct?
Yes
What was the prognosis?
The doctor’s basically told us to take her home and prepare for her to die.
Were there any records of anyone surviving with this type of cancer, using orthodox treatments?
None that they could provide us with.
How many cancer centers did you visit?
We originally were at Miller’s Children at Long Beach Memorial and then went to City of Hope. We also sent her MRI’s to Dr. Fred Epstein in New York to be looked at.
And they all said the same thing, Tori’s brain cancer was fatal and nothing could be done? How long was she expected to live?
Yes, they all said there was nothing we could do. She was given 2-6 weeks to live.
How did you find out about Dr. Burzynski and Antineoplastons?
On the Internet on a brain tumor support group. We read a letter from a father whose daughter was on the treatment.
Did you ask your doctors about Burzynski? Had they heard of him or researched his treatment?
Yes, we asked all of them about it. Most frowned at the idea, the oncologist refused to see her if we took her to see Dr. Burzynski. The only one who told us that he thought Dr. B might have a good chance with helping us was Dr. Fred Epstein.
When did you first visit him?
In October 1998
Did he tell you he could cure Tori?
No. He said he thought Antineoplastons would help her, but he wasn’t sure he had enough time. He was very upfront and honest with the statistics he had with her type of cancer but offered no promises.
How much Antineoplastons was Tori taking?
I can’t even remember what dose she ended up on when she was taking it intravenously.
What were the side effects? In the photos you sent me, Tori is greatly enlarged, I assume due to fluid retention. Is that what it was? How was that alleviated? Were there any other side effects due to the Antineoplastons?
We always had to monitor her potassium and sodium. So, she had to drink a lot of water and therefore we went through a lot of diapers. Those were the worst of the side effects. In the picture, she was so large due to being on Decadron, which we were able to wean her off of in January 1999.
Were you surprised when Tori started responding?
Yes, I have to say I was. It is hard to believe something great is going to come out of something so painful. I guess she taught me not to lose faith in life.
How soon was it before Tori’s brain tumor started reducing in size?
Immediately. It had shrunk in size by 20% after the very first MRI, which I believe was in 6-8 weeks…it’s been a long time and a lot of MRI’s later.
For how long did Tori continue to take Antineoplastons intravenously? Did you administer this yourself at home?
She took them through IV for 2 years and yes; we did this all at home.
Does your insurance company pay for the treatment? Did they try to avoid paying for it?
No, they do not pay for the treatment.
I understand Tori is 5 today. Is she still taking Antineoplastons? Has the tumor completely gone?
Yes, she just turned five in June. She still takes Antineoplastons orally…. she takes 40 capsules a day. Her tumor has decreased in size by 86% and they believe what is left may be scar tissue.
Has Tori suffered any permanent side-side effects from Antineoplastons?
Not one. In fact, it decreased her symptoms dramatically and never caused her any harm.
So Tori is cancer free and side effect free today?
Absolutely….
This is an incredible story Kim. Your child was diagnosed with a fatal brain cancer and the best oncologists and surgeons in America told you it was hopeless. Yet you found a cure for your child, without the billions, and so-called cancer specialists, that the NCI has at its disposal. Have any oncologists or doctors asked you about Dr. Burzynski’s treatment?
They tend to ask very quietly, but never really respond to what I have to tell them. There is curiosity there, just no one is really willing to step up to the plate and believe that the antineoplastons had something to do with her survival.
What do they say now that Tori is alive and well?
The neurologists told us that sometimes it happens and they called it “spontaneous remission”. Again, I asked them to provide some statistics and there were none to be seen.
That is of course the height of absurdity. To my knowledge, there has never been a documented case of any brain cancer going into spontaneous remission. Have you ever mentioned that to them?
Yes, again with no intelligent response.
So they are quite content to administer the same cancer causing, toxic treatments, when they know about your daughter’s success with Antineoplastons?
Absolutely. It amazes me that some of them can sleep at night.
Has your opinion about the medical profession, specifically cancer specialists, changed since Tori’s recovery? If it has, in what manner?
Yes, it has changed a lot. I guess the biggest change would be that I no longer sit back and believe anything a doctor tells m e and that we have to take our healthcare into our hands by searching for legitimate options. I believe we have the right to choose.
What do you think about the fact that some 3,000 children in the US (untold thousands worldwide) this year will be diagnosed with some form of brain cancer, and their families will have to face the same horror you did, the horror of losing a child. But virtually all of them will not be told about Antineoplastons, the treatment that cured Tori?
It really makes me sick to my stomach. That is why I want to talk to anyone who wants to listen about Tori’s Story
Finally, I commend you and your husband for finding a way to cure your daughter, when all the “experts” said it was hopeless. You gave her life when she was born, and then you saved her life by finding Antineoplastons.
I thank you once again Kim for answering my questions and sending me the photos of Tori. Give my best to your family.
Gavin Phillips opinion
Dr. Burzynski is a great rarity these days. He is a courageous man who risked everything battling the FDA for over 15 years so as to allow cancer patients access to his treatment. A doctor who puts his patients well being before financial gains. But how many people diagnosed with cancer this year will ever find out about Antineoplastons? A tiny percentage, because very few mainstream oncologists will inform their patients about a treatment that has yet to be approved. And why is that? The NCI and ACS have supposedly been searching for decades for any and all treatments that are effective against cancer. For over 15 years Dr. Burzynski’s treatment has shown that it is effective. Many cancer patients, including some very young children with supposedly hopeless brain cancers, are alive today because of Antineoplastons.
Here we come to the most crucial questions of all. Why did the FDA try their utmost to ruin Dr. Burzynski by involving him in 4 court cases? Why did the NCI make certain Burzynski’s clinical trials failed by diluting his treatment and enrolling patients who were the least likely to respond to Antineoplastons? If this was a one-time only event, we could dismiss it as an aberration; on overzealous government agencies. But the persecution of Dr. Burzynski is not an aberration, but the norm. There have been many well-documented cases in the last 70 some years of doctors/healers who discovered an effective cancer treatment, only to find the full force of the cancer agencies trying to destroy them and their discoveries. I have learned about several during my research. Dr. William Koch/Glyoxylide, Dr. Andrew Ivy/Krebiozen, Harry Hoxsey method/herbs, Royal Rife/radio waves, Ernst Krebs/ Laetrile/Amygdalin, Gaston Naessens/714 X, Dr. Lawrence Burton/Immuno-Augmentative Therapy, Dr. Max Gerson method/diet.
What, if anything, does Dr. Burzynski’s Antineoplastons have in common with these other treatments? Most of them are natural; all of them are inexpensive to produce, especially when compared to the enormous costs of conventional treatments. If cheap cancer treatments with virtually no side effects were allowed to freely compete with the cancer causing offerings of the pharmaceutical companies, the outcome is obvious. The pharmaceutical companies, and the hospitals that administer their drugs, will lose tens of billions in profits. And this I believe is the reason Dr. Burzynski, and the people who have gone before him, have been publicly vilified as “quacks” and their treatments discredited. The fact is that the pharmaceutical companies control American medicine, and they are only interested in treatments from which they can derive a profit.
Every cancer patient in America, and the world, should have free access to Antineoplastons. It is intolerable, not to mention totally un-American, to give a profit obsessed industry a monopoly over Americans healthcare. Nobody should have the right to force toxic chemicals down our family’s throat, especially when Dr. Burzynski’s treatment has proven effective (for some cancers) and does not have appalling side effects.
One point, in which I disagree with Burzynski about, is the possibility of medical freedom of choice happening in America. It would happen in a year or two if enough Americans demanded it. You can help make that a reality. Please forward this interview to as many people as you know, as well as media outlets. Around ten thousand Americans die every week from cancer; we simply must have medical freedom of choice. Thank you for your time.
Sincerely,
Gavin Phillips. http://www.cancerinform.org
E-mail this sites address to someone and help spread the word
====================================== Juan F. Martinez-Canca – Consultant – Neurosurgeon (20:31)
======================================
So tell me a little about brain tumors
When did you kind of first come across your first brain tumor ?
My very first brain tumor was in high school, unknown entity, fascinating, enigmatic
Unknown, is the word
Uh yes, I hoped
I must say the uh vocation initially in my case came at an early stage in my life
I remember very well, 3 years old saying I will be a doctor, a doctor, a doctor, and gradually I became aware of this vocation from neurosurgery but really I didn’t know what from because of vocations like see it
I put in my soul, so what ?
Here we are
vocation
realize that in the following years
My first professional brain tumor was impressed in 1996, something called glioblastoma multiforme, and I was uh, uh, shocked, and thrilled, and excited by seeing a nasty glioma as my register described it
And I was uh in as you can see my poor English
I just wrote in my notebook nasty glioma must be nasty in the history of classification
That person died, unfortunately after a few months, it was a very bad disease, at that stage, was really advanced and uh that was my first ? with reality
The glioblastoma, or nasty gliomas kill people
And that was the starting point of a, of a very complex process that I am still never looking (?)
—————————————————————— Hannah’s Operation (1:35)
——————————————————————
In the case of Hannah we wanted to wake her up to make sure that we could remove the whole entire ter (?) as much as we can see, or feel it, without damaging, basic structures
Language, relation with outside world, movement, etcetera, etcetera
That requires a very specific and very expert high expertise from the, from the surgeon, because normally everyone is not awake during this
It’s a very specific operation
Mr ? we were lucky, was there to do it, and I was lucky enough to be the co-pilot
So we performed this procedure
I can’t remember the date now
April, the 1st
April
Correct
Good date
So
April Fools Day
On April the 1st we awakened ?
and I remember very well, that huge feeling of satisfaction, at the end of the procedure
I have, I still have my pictures, do you remember ?
We were taking some pictures during the operation
and that is ? like a trophy, because some people are not very good, some of the people are not very well, but in this case we had fantastic surgeon, a fantastic patient, and a great environment, and it worked very well
And the end of the operation, I remember seeing Hannah’s brain without physical tumor, microscopic means with the eyes
Of course, millions and millions of cells still widespread in the brain
A tumor is never a circumscribed entity
It goes all over the place
Nevertheless, it was a very satisfactory physical procedure
We send the samples for histological purposes
and unfortunately we were wrong, because it was not a grade 2, not a grade 1, it was a grade 3 tumor
? the next step
The grading of the tumors
When grade 1’s and 2’s, usually consider the good guys in the field
But not a good thing to have a brain tumor, but you have to choose, choose a grade 1, or a grade 2
Grades 3 and 4 featured by malignancy
By aggressiveness
They are far more active tumors than the 1’s and 2’s
Maybe the grow much bigger, and they are far more aggressive than the other 2
Specially grade 4
—————————————————————— (3:42)
——————————————————————
So you got out most of it, yeah ?
Yeah, it was fun but got a good job here because you’ve got most of the tumor out, and we have Hannah talking, moving, and uh conversing normally
She was no percentage (?) deficit
At some point during the operation she had some stuff, a fitting, some sort of vagueness and she couldn’t talk very well, so we had to stop right away, and change the level of, of oxygenation, but other the operation, microscopically speaking, the whole tumor was taken away
So the tumor was taken away, so it was a success, but in the back of your mind did you know that, did, the job was not complete ?
We always know
We always know that
Except when we are talking with a benign meningeal (?) grade 1 that we can take physically lump away
Except in those cases of rare, rare success and joy
Most of the tumors we know, have millions of cells that remain in the brain, and they can be very, very aggressive
So, did you know in the back of your mind that what you were really doing, in this case, was probably just prolonging her life ?
Uh, in a way we are providing a setting, for a 2nd stage therapy to take place
Certainly, if we do nothing about it in the large (?), which is a (?) part of her brain, Hannah had little chance to survive, many weeks from now
Once the whole thing developed, we knew it was a count down
We need to do 2 things, to establish a way to help her to prolong her life with best programs
That’s, is a universally accepted
Removing a tumor is no longer an option
Again, I believe that (camcorder ?)
Yeah
So Hannah had radiotherapy, and you saw the scans after the radiotherapy, and, and what did you see ?
Ok
We decided, no Hannah decided to go through conventional pathways of treating of tumors, which is oncology medicine (?)
She had radiotherapy, which aim is to kill the remaining cells we have not been able to remove, remove in surgery
So, that happens, and Hannah had a shrinking stage of uh of things, with subsequent scans show the suc success
It was not much tumor
However, the remaining amount of cells were there from day one
We knew they existed, and they were visible on the scan
We could actually produce the scans later right ?
Yeah
And I will show you pictures of Hannah
And we knew there was (reserve ?) tumor
The aim of the radiotherapy was to try and kill these remnants of tumor that have remained behind
In her case, it was not much tumor left, because we know that subsequent scans were done following radiotherapy
Still the small areas of tumor highlighting halo were still here, as you, as a (?), as a reminder, of the main tumor
Inevitably those cells would progress again, to a further tumor, and usually, to a high grade tumor where the tumor progressed, normally is not rare, to see that they, scale one grade
So, the fear here with Hannah was get, this grade 3, would progress to grade 4 at some point
—————————————————————— Dr. Martinez on Dr. Burzynski (6:50)
——————————————————————
Quite obviously you knew that I did a lot of investigating
I looked for people in the world who were still alive, who had uh, this type of tumor
I spoke to you
You told me, of, some things uh, and I’d mentioned to you Dr. Burzynski
What did you
What did you think about that when I 1st mentioned it to you ?
Well, when you mentioned that to me I didn’t know Dr. Burzynski at all
I knew there were some people going to Houston for some therapy, among them, one well known Spanish singer, but she’s well known, very well known actually, going from a, from a another kind of tumor, not a, not a brain tumor
But I knew vaguely about this a, this a person in, in Texas, with his uh fancy treatment, challenging establishment, but, as I said, a little
amount of, of knowledge in my brain
in my brain
Well, I knew immediately when you mentioned that, as well as other options that we discussed, I looked at every option you’ve showed me, because you were really active in looking and intimate, in the literature
You gave me 2 or 3 main leads of reading, but certainly Burzynskicame as the most solid one, because the rest of them you gave me were really experimental therapies, with little or no success, and uh more in my dimension but more imagination than technique, with them
So, I look at Burzynski’s story, and was almost immediately moved about, about his personal uh yearning
Is a person who has been, how many years now ?
20+ ?
30
30+, sorry, fighting against the very powerful medical establishment, and subjected to court judgments, to punishment by a, by a (?) community, to intense scrutiny, and uh, ostracized by the so-called uh conventional doctors
Despite that, 30 years + later, still doing his business, in fact, the most important thing, with a huge amount of people, smiling, alive, and very healthy following the diagnosis of the tumor
To me that was something revealing
No matter whether this man advocates, on praying to the moon, or going to the sea, (whatever it is ?)
The fact is the fact
He has a large # of patients, alive and well, following diagnosis of tumor
In fact, the most important, children, at the age of 3 or 4, being treated by this uh therapy, reaching 30’s, reaching 20’s, and alive, and very nice, this a living example, that this man, is not uh, selling air
Ok
For that I went to the films, available to everyone on the Internet, on YouTube, except the usual terms of communication
I dislike very much, they commit (?)
I really dislike it
But, I must admit it was a good way, to put the facts to the public
This way
The main criticism of Burzynski in the scientific community, is the lack of reliable communications
That, that’s a fact
I will not go into this during this interview, this chat
Yeah
Ok
Because I think it’s a matter for, further discussion
I only go to the physical facts that you can see
In the last court proceedings, there were a large # of supporters, saying, we are the living example, of this process isn’t pantomime (?)
Well I think in my humble microscopical opinion, Burzyn, Burzynski’s trying to do, is to show another way to treat cancer
Another way which directs completely from the current guidelines
The current guidelines are full of financial interests, are full of international agreements, and of course someone who attempts to upset this structure will face serious adversity
This man is brave enough to put his person, his family, his world, on the spot, to fight for the truth
To me, it’s clear
This guy, not going into details again, I don’t want to go into technical details today, because something for further discussion, but only the facts he’s presented, is strong enough to stop and think about it
That’s why, I would like to say, in the 1st instance
And obviously you’ve seen Hannah’s su, scans, and you saw her last scan, and you can see uh her
Well since you told me about this, I intense look at the Internet again, all the available evidence, I looked at his, uh, not publications but at his data
I, I have no peer-review qualifications yet, about Burzynski’s cases, but I look at practical cases
Too many, to be a random chance of, oh this is, she has a one in a million
No, it has, many ones in a million to be a chance
So this man is presenting something serious
So, I ask (?) (?)
Forced to do, because, I thought, ok, what you face here is a conventional radiotherapy, chemotherapy, but if you look at the #’s, that is again, in the public domain, people with grade 3’s, will not survive longer
Grade 4’s, do not survive longer
My duty as doctor is to tell the patient, the person with the grade 4 tumor, you have about 11 months to live without treatment
Be lucky
With treatment is unpredictable
(I don’t know ? or all along ?)
But the #’s are #’s
If you look at the data, people die very quickly from a grade 4
Grade 3, follows very closely
So I thought, there’s nothing to lose by this therapy, because #1 is not incompatible wha, with what you have been doing so far, and it gives you a chance to change perspective, to change environment
Go to a different setting, and try it
That’s a fact (?)
Plus the fact that many, many, many people are being treated (?)
under this guidance, and they are surviving very well, and they are alive
Mmm
Hannah’s case
When are you going to Texas ?
We went in December
December
Well you come back just a few days ago
We came back 3 weeks ago in January
So in that period Hannah had her tumor treated with antineoplastons, and there has already been a scan, which shows shrinking of 15%
Yeah
Is such a long, long journey, you have a nice little period, a month and a 1/2 maybe ?
Yeah
After so many months of punishment and suffering, and which have a nice (result ?)
Plus, the emotion of Hannah Hannah has come back to normal, I think
I remember her very depressed and the beginning of story, and not having any single hope in her mind
I remember a video where she was crying
Now she has this chuckle in the video when she is joking about the scan, and so positive and optimistic, and the results cannot be more promising
That, in my view, (certain was seen ?) in detail, I think
—————————————————————— Hannah’s MRI scans (13:34)
——————————————————————
Take a look at this
This area of bright, intensity here, is not in the right, so poorly, is abnormal
And that was the 1st pictures we saw for Hannah
And some people said, that must be a stroke because of this a straight line there, and there
Normally, as a rule of thumb, something with a wedge shape, tends to be a stroke, because the vessel, providing blood, opens in the small vessels in a wedge fashion
It look a stroke to me actually, to, to be, to be honest, the very fact that we thought it was a stroke, but then we came to recognize it was a tumor, for all the features in (?)
So this is the 1st picture
If we look at the, on the side of the screen, we have now a different view
Instead of looking from the feet, we’re looking at front of Hannah
Eyes are here
That’s the brain
Left side
Right side
Look at the left side, because we know, the tumor’s (?) on the left
We look to go, deeper in her head, and we see, a dark area
It’s a different fashion (?) and that’s why you can see the white, becomes like a black
And you can see, the edges of this is strange, formation
Clearly abnormal because nothing there in the side
So this, was the question for the individual
What is it ?
So after a little bit of discussion we came to the conclusion that thought it was a glioma, tumor, from description, in the brain
So
This is after the operation
After the operation
Operation
This is the 17th through the 4th
Yep
We go on the right side better because this is the film
We see here something very clear
I want to get another view, so you understand a little bit better
Yeah, this
In this view, you can see
Can you see that ?
Yep
You can see the (?)
The chunk of bone, we take away, to go into the brain
And these are screws and plates, to keep things in place
2 screws, one little plate
And there, the other one
Ok ?
So this is the axis
Let’s put it on the right so you can see it better
Here, you can see it much better how the craniotomy is performed with one hole, one drill, to put the, the saw and drill away, and you can lift this cover
Ok ?
At the end of the operation we put this plates, one there, one there, one there, and one there, as you can see
2 little plates
2 little screws with one plate to fix the hole
Ok ?
And then, the skin itself
—————————————————————— The Future for the Treatment of Cancer (16:18)
——————————————————————
So, so how do you think uh brain tumors will be treated in the future ?
That’s a, that’s a very good question
Uh, certainly not this way
Let me give an answer for another time
But certainly not this way, because uh the chemotherapy, the main, the main group of chemotherapy is that, it is itself a killing agent
You are using, destructive element, to try and prolong life
In, in itself makes no sense to me
Of course, the, the argument for that from the, from the (chemical ?) companies, from the people who produce this (?), excuse me, this doctor, we are saving lives, and it’s true
This is the only way, officially admitted today, to treat tumors, chemotherapy
So do you think we’ll have a cure for cancer ?
I’m hope it is
I think it’s coming, actually, but uh, but uh, it’s not accepted
Then you think Dr. Burzynski’s really on to something ?
Definitely
The evidence is overwhelming
He’s not I think, the evidence
What I think is irrelevant
Oh my opinion is one opinion in, in millions of them
But if you look at the facts, Dr. Burzynski is achieving things
It’s not, it’s not promising
Is it
It’s the delivery of things
If, if I don’t understand it incorrectly
The head of our patients, he’s an ex-patient of cancer
Am I right ?
This girl had a brain tumor Hannah was talking to people have been cured
So this is a fact
This is not tales
This is not uh, uh, selling, thin air
This man, whatever he’s doing, because of his story
Part of his secret agenda, the chemicals (?)
be explained
I not asking for the patent of his things
I don’t, I don’t care anyway
But he’s working with compounds, with substances created by this man, that cure people
So why do you think more people aren’t receptive, to the, you know, other oncologists, neurosurgeons ?
That’s a very complex question because uh we are fighting against a very well established protocol of producing doctors that think in a very particular way
Who, whoever decides to direct from that way of thinking is in hot water
Invariably
The scientific community these days, is uh biased by peer-reviewed publications, commonly accepted guidelines, and there’s no space whatsoever, for any, eh, diversion from the norm
Put it this way
Ok
I’m not saying that I directed (?) from norm
I’m not here to argue the system, but I am here, to ask questions
I would like to ask questions
Why, we have to accept
I was in medical school, and I was told by a pediatrician, (?) of the (?) service, babies should a stop breast feeding at the month #4, and they start with these magic formulas for babies
At that, at that point I believed
At that point I was a very young medical student
I said, (?) the head of pediatricians tell me, my baby has to stop breast feeding, at the age of 4 months, must be true
He is a doctor, but he’s a stupid (doc ?
I am so sorry to disagree
He was delivering, a very nasty message
Basically you should continue, 2 years away, 3 years away, when the baby says, that’s it
Naturally stop the breast feeding
You understand what I mean ?
So, in the same fashion, the oncologist delivers the message that they have been taught, by the teachers
And then you go up in the scale
Ok
If you go up in the pyramid, the top of the pyramid is usually money, eh, economic interests, political interests, namely
We go outside the core mains of medicine
That’s why my complaint
That’s why my fight here
I would like to ask those things
I may be wrong, by at the end of the day
I may be
I don’t know
I don’t know all the answers
But if at the end of very good search, I am convinced that this is the only way, I say, I am sorry
I had to ask
Go back to the norm
But (?)
I totally suspect that the norm is wrong
There must be another way
====================================== http://www.neurokonsilia.com/About-Us.html
======================================
“He also stated quite frankly during the Google Hangout that nothing will ever change his mind”
—————————————————————— Woo, Bob did NOT provide enough evidence that would cause me to “change my mind”
—————————————————————— “So what’s the point of any further discourse?”
—————————————————————— Woo, the point is, it gives you the opportunity to explain why you lied to The Guardian [2]
—————————————————————— “His idea of “debate” is having critics post comments on his blog; whether that is to drive up page views or merely to seek attention we’ll never know”
—————————————————————— Woo, who suggested leaving comments on my blog ?
Bob ? [3]
9/28/2013 Google+ Hangout
—————————————————————— 1:13:00
—————————————————————— “Okay, I’ll look at that, and I will respond to it once I’ve taken a look at that, okay ?“
“Um, and I’ll respond on your web-site“
“Um, seems only fair“
—————————————————————— 1:14:00
—————————————————————— 2:09:00
—————————————————————— “… and don’t worry I will go to your site and I will comment on on on what you’ve run“
—————————————————————— 2:10:15
—————————————————————— 2:18:00
—————————————————————— “Um, I will look at your web-site, and we will, uh, we, uh, you, oh make sure that I I go to your blog and and I talk there“
—————————————————————— 2:19:00
—————————————————————— “What none of us understands is his motivation”
“I have discussed this privately in e-mails with Bob B. and you, Guy”
“When asked about this during the session on Saturday all he said was that he wanted to correct what he perceives as misinformation from Burzynski critics on social media”
—————————————————————— Woo, you’re obviously NOT from Texas
It’s like a whole ‘notherCountry
My motivation ?
I am a Texan and an American and I do NOT have any respect for individuals who lie about cancer treatment on social media
Verstehen ?
There’s a saying:
“Don’t mess with Texas”
—————————————————————— “It has to go deeper than that”
“He didn’t wake up one day and out of the blue decide he was going to champion Burzynski”
“He has to have some connection, either personal or commercial”
—————————————————————— Woo, you’re still wrong
Prove it
—————————————————————— “The sheer amount of time and effort he’s pored into writing hundreds, if not thousands of comments on science blogs, his rabid attempts to edit Wikipedia and his own blog posts indicates he something invested”
—————————————————————— Woo, why don’t you count the amount of comments I posted on “Orac’s” Respectful Insolence science blog and let everyone know the results ?
—————————————————————— “He denied he works for Burzynski as he stated he doesn’t even live in Texas anymore, but that is irrelevant”
“I don’t believe Marc Stephens lived in Texas for the duration of time he represented the clinic”
—————————————————————— Woo, who cares what you think about Marc Stephens ?
Prove it
—————————————————————— “I wish he would just be honest and tell us why he has spent devoted so much of his time over the past year (almost) promoting and supporting Burzynski (and Merola, for that matter)”
—————————————————————— Woo, where have I been “promoting and supporting” them ?
Everything on my blog is devoted to showing how “The Skeptics™” lie
—————————————————————— “I was going to say it would be hard to go back to calling him an idiot after hearing him speak on Saturday, as he became humanized”
—————————————————————— Woo, I have no problem calling you an “idiot” after you lied about me [2]
—————————————————————— “His folksy “y’all” and his laughter made him a real person”
“He was no longer just words on a screen, but a living, breathing human being”
“However after seeing the Tweets he posted immediately following the Hangout, where he reverted to his juvenile insults, his name-calling, his inability to write a coherent sentence and his out-and-out lack of respect for people like you and Dr. Gorksi has made me reevaluate my stance”
—————————————————————— Woo, please cite one of these “supposed”Tweetsyou have a problem with
Surely you did NOT think I was giving Bobcarte blanche to continue on Twitter without proving his case ?
—————————————————————— “He simply deserves to be ignored”
“He has a serious personality disorder and doesn’t merit any of our attention ever again”
—————————————————————— Woo, my personality is serious enough NOT to lie about people to The Guardian
Do you have a serious “compulsive liar” personality disorder ?
====================================== Guy Chapman – 10/2/2013 – 12:26 am
“He kind of admitted it when he said that he’d be persuaded by the FDA not having granted phase 3 approval; defining your rejection criteria according to some test whose outcome is already know is one of the techniques used by homeopaths”
—————————————————————— Guy, which homeopathic “remedy” has received Orphan Drug Designation (ODD) and FDA Phase 3 approval ?
—————————————————————— “You do not interpret this thing as I would like, therefore you are denying this thing happened, therefore you lie, is another,”
—————————————————————— Guy, what massive cognitive dissonance dreamworld are you living in ?
====================================== Guy Chapman – 10/2/2013 – 12:28 am
“Actually, we know what he is”
“A troll”
“Why did we let ourselves get sucked in?”
—————————————————————— “Troll” is an excusecowards use to try and label someone in order to claim that they should NOT be put in a position to do something they agreed to
====================================== IamBreastCancer – 10/2/2013 – 12:27 am
“Excellent summary, Guy”
“I agree with WooFighter that his motivation is suspect, but there are some desperately lonely attention-seeking people out there who will grasp onto any controversial issue just to get “in the game.””
“As a cancer patient myself, I was struck by the fact that he could yammer on for almost 2-1/2 hours without showing a shred of concern or compassion for cancer patients or legitimate cancer treatment questions”
“His behavior before, during and since the debate clearly shows he absolutely has no regard for real facts or evidence”
“I’m thankful that he’s unable to write coherently, as it cripples his capacity for causing harm to cancer patients”
“Unlike so many other charlatans out there, I don’t think he represents much of a threat to patient safety, just a lot of noise and bandwidth waste”
“His 15 minutes of fame needs to end”
—————————————————————— Quidama, I’m sorry you have cancer, but it sounds to me like you seriously need a “reality check”: [4]
—————————————————————— A. Tried to “control the conversation” 1. Bob Blaskiewicz
2.
—————————————————————— B.Interrupted the other individual the most: 1. 30+ – Bob Blaskiewicz interrupted DJT
2. (20+ back at ya) – DJT interrupted BB
—————————————————————— C.Asked the most questions: 1. Bob Blaskiewicz
2.
—————————————————————— D.Most speaking time: 1. Bob Blaskiewicz
2.
—————————————————————— E.Most words: 1. 13,933 – Bob Blaskiewicz
2. 8,847 – DJT
—————————————————————— F.Most characters: 1. 66,123 – Bob Blaskiewicz
2. 43,245 – DJT
—————————————————————— G.Acted as if they were teaching a class, and dictating what your possible responses were, implying that they did NOT consider this to be a “debate” where the participants were free to choose their own responses: 1. Bob Blaskiewicz
2.
—————————————————————— H.Proved they do NOT know how to debate 1. Bob Blaskiewicz
2.
—————————————————————— I.Proved they do NOT have manners 1. Bob Blaskiewicz
2.
—————————————————————— J.Must have thought they were on the Morton Downey Jr. talk show (or do you prefer Jerry Springer ?) 1. Bob Blaskiewicz
2.
—————————————————————— K.Controlled themself best:
1. 2. DJT
—————————————————————— L.Did NOT need help from any pro-position pundits
1. 2. DJT
—————————————————————— “Thanks for all you do!”
—————————————————————— You’re welcome
I will be doing some data clean-up and adding additional video transcripts
——————————————————————
What stood out to me in the first and lastvideos is that you could hear both sirens and birds
Unlike “The Skeptics™” (sirens) #whining, the birds were celebrating Hannah #winning
——————————————————————
Just as I did with the case of Burzynski patient Laura Hymas, so will I do with her friend, Hannah Bradley
Yes, unlike “Orac” I will let Hannah speak for herself instead of adding any bias as “Dr. Check my Facts” Hack does
—————————————————————— Team Hannah Blog
6/6/2013 – Posted by Hannah
(6:14)
Okay
Hello everyone
Hi
It’s uh Thursday the 6th of June
Yes
(laugh) And uh we’ve got some really good news
We’ve kind of been holding back a little but
we just wanted to be certain
so what were you going to say
Uh, I am finally off treatment
Finally off treatment which is great so as far as Dr. Burzynski is concerned, the treatment is now finished
Hannah is free
Free of the bag
Free of
Yes
Yes
How’s that feel
Yeah, it feels really kind of strange to be honest
Well you want to go back on it again
No
No
But I
I miss the bag, because I miss carrying around ohhh
Now you’re just being a little bit stupid
Um, but the great news is today, we went to go and see Hannah’s surgeon
Yes
Oncologist
A another surgeon another doctor um
Yeah
And that was a bit strange because the last time that we saw surgeon he gave us
it was probably one of the worst days of our life
Yep
He gave us the results of
Your biopsy
Yep
Which was a grade 3 tumor uh I can remember that like that was yesterday
I don’t really remember
Well but I do
It was amazing uh seeing him today because he’s just basically just agreed with everything that uh that’s been said in America that Hannah’s doing really really well she as far as she’s concerned you don’t have to have any scan for another 6 months
No
Uh so you know really kind of cancer free and
Yep
Now, you know, it is incredible
It’s a bit of a miracle and
it both hasn’t hit home
really
How much
Yeah
How much is
Well we can start our life
We can start our lives, again
Again (laugh)
And um we just want to say
a massive thank you
the list is just
this isn’t the end for us
I’m sure we
boring you
(laughing)
had a very long day
We had to wait an hour and a half (laugh)
(laugh) Sorry I couldn’t help
Calm down
The the list of people that we have to thank
Need
Need to thank is so long, and obviously way up at the top of that list has to be uh Dr. Burzynski and all of the people at the Burzynski Clinic who have been just amazing, you know
Just so supportive um and I suppose really without that treatment I don’t
I don’t think
I don’t
No
I don’t think
You don’t think you’d what ?
It’s not worth thinking about
Yeah, it’s not worth thinking about
But um we have to thank every single person that contributed and helped us and supported us along the way
Everyone that helped us raise money
Um
to thank
Here we go
Who else do we need to thank
I think
Come back up
Come on
(laugh)
We have to thank uh
like I said it’s been a long day today
Uh we have to thank Jamie Lowe
Yes
We have to thank Lindley Gooden
Who else do we have to thank ?
Uh all the people that were in Team Hannah
Yeah
All of your friends
My parents
Your parents
Mhmm
Um just everyone that’s been watching these blogs
We really, really couldn’t have done it without you
And um
We are really, really thankful
You don’t want to go do you ?
Hannah and I were thinking about doing our own comedy show because a lot of people
comments like we’re so funny
Yeah
And who’s the funniest
Uh oh you
Yeah you
Me
Me
Me
Um
So, I don’t know what else to say really apart from, you know, this is really a bit of a fairy tale for us
We know how fortunate
we are and we know how
people
who we met along the way
who weren’t
haven’t been as fortunate as us
So we uh
So, are you alright down there ?
we’re talking about something serious
Very
Yeah, we know a lot of people who haven’t been as fortunate
As fortunate as we have people are forever in our hearts
You know, um, we know how lucky we are and um
We’re going to make the most of our lives the most of our lives together
Um, yeah
We really do think that
No don’t
You know, there was a time
Many, many times where I really didn’t think that Hannah would be here but, you know, we’re talking 2 1/2 years ago that she was diagnosed and she’s doing better than ever even though she is yawning
(laugh)
Um
I don’t think there’s any words that really put into a sense of how so lucky we think we are, and I really think it’s how our legacy to live with that and try and inspire other people as much as we can as well
Ok
So, we’re not going to get go anywhere we’re still we’ll still let you know from time to time how we’re getting on
Uh um I also think we need to give a massive shout out to Ben and Laura Hymas as well who, who really, we went to see them the week before we went to, out to America, and it was there, was a, was a bit of a shock
Really
Realizing what we were about to take on but um she’s
I’m very sorry
She’s someone else who’s done well and we want to give a big shout out to them because we know that they’ve got their lives ahead of them as well as we do too
So, I think without any further ado we’ll give your famous wave
(wave)
It’s not really a wave, is it
Thank you very much everyone
Thank you
Big hug
Wanna hug ?
C’mon
C’mon hug us [10]
====================================== London[1]
4/2010 – first met Hannah and we fell in love and since then our relationship has gone from strength to strength [3]
Hannah (28) has great personality and fantastic sense of humour [3]
10/5/2012 – from Elstead[12]
4/4/2013 – Hannah Bradley (28)[11]
Hannah Bradley from London, UK [15]
====================================== MOOD ======================================
Looking back now, was quite naive [1]
2/2011 – world took dramatic turn [11]
Hannah Bradley from London, UK [15]
To my complete horror [11]
whole world was turned upside down [11]
confused [11]
scared of all the unanswered questions that lay before me
why was this happening to ME? [11]
What did the future hold? [11]
Will I be okay? [11]
absolutely terrified as realised something seriously wrong [15]
Everybody else went into panic, but shock calmed [15]
Inside, scared, could see how frightened Pete was [15]
wasn’t easy decision but really wasn’t another choice [15]
Fear pulsed through me as was wheeled to theatre for operation [15]
4/2011 – thought once surgery over, tumour would be gone [1]
“Hello,” I croaked [15]
“Have I still got all my hair?” [15]
beamed as Pete nodded [15]
long blonde locks were pride and joy, and surgeons managed to operate without having to shave any [15]
Waiting for results was one of most harrowing periods for me and my partner [11]
had to wait for results of biopsy for few weeks and remained positive [3]
while trying to remain positive throughout [11]
tried to keep busy so didn’t dwell on what doctors would say [15]
it was hard [15]
sensed before they even spoke [15]
faces were so serious it had to be bad news [15]
Obviously medical professionals have to be detached when deliver news, but we completely broke down [15]
tried to bite back sobs so could hear what they were saying [15]
blinked for moment, realising meant me [15]
left hospital, in daze [15]
went to sit in park for 2 or 3 hours, working out how to tell everyone [15]
rang dad, feeling ashamed he had to deal with news [15]
didn’t want to upset him [15]
Pete and I rang close friends and family and became easier each time [15]
got chain going to spread news so didn’t have to ring everybody, which was relief [15]
gave me space to come to terms with diagnosis [15]
Once able to get head around it, felt detached from it: [15]
needed to get through next stage now [15]
needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]
Hannah’s bravery and resolve once again rose up as shortly after this she started 6 week course of radiotherapy[3]
news was not good and world was rocked once more as results showed Grade III tumour[11]
whole world suddenly fell apart again and that very moment I didn’t know how to go on [11]
knew had to carry on and from somewhere I didn’t know existed within me, found some bravery and started to have next course of treatment, 6-week course of radiotherapy[11]
hope you will understand this was REALLY difficult for me as I loved my hair and without it felt horrible and ugly [11]
coped well at first, until hair came out in clumps [15]
warned could be few patches of fall, but lost it all [15]
wore headscarves but mourned my hair [15]
work in skincare sales and used to having to look my best [15]
know it was vain, but hair was part of my femininity [15]
missed it [15]
awful but kept going, knowing had to [15]
Seeking alternatives [15]
full of hope [15]
know it’s long fight ahead but feel everyone is behind me and
get so much from that [15]
have a mantra, which like to think I made up but think I read somewhere: [15]
‘You never know how strong you are until being strong is the only choice you have.’ [15]
exactly how I feel [15]
there was some hope [12]
was truly an incredible time and once again I was filled with hope as so many people came to my aid to support me by raising money and donating what they had [11]
still so thankful for all that support [1]
absolutely overjoyed [1]
wouldn’t turn my back on conventional medicine, but would advise anyone in situation like mine to look into other options – there could always be another way [1]
“If this whole thing has taught me anything, it’s that.” [1]
Thankfully along with other treatment, strategy has worked for me and I’m now trying to help others who are fighting against this horrible disease[11]
====================================== HEALTH ======================================
was salesperson when diagnosed with cancer[1]
ate on the run [1]
smoked[1]
had no real symptoms or warning signs[1]
2/2011 – out of the blue, Hannah had major seizure in middle of the night [3]
2/2011 – one night Hannah’s life changed drastically without any prior health concerns suddenly had major seizure[12]
2/2011 – had grand seizure while asleep [1]
2/2011 – major seizure in middle of night [11]
arms up in the air, body shaking [1]
2/2011 – lost consciousness and was rushed to hospital [3 + 11]
woke in hospital, had no idea what had happened, tests revealed brain tumour size of golf ball in frontal lobe [15]
didn’t know anything wrong before had massive seizure in sleep [15]
boyfriend thought was having nightmare at first, but when couldn’t wake me, realised was unconscious and called ambulance [15]
came round in hospital few days later and didn’t remember anything [15]
2/2011 – 4/2011 – don’t remember much about 2 months that followed apart from seeing many doctors, having constant headaches and a # of seizures[11]
had constant headaches and number of seizures[3]
Eventually CT scan showed brain tumour, turned out to be very aggressive, anaplastic astrocytoma[1]
week after CAT and MRI scans told had brain tumour size of golf ball [15]
in frontal lobe and probably growing there for years [15]
doctor gave 3 options: [15]
leave it and see what happened
have biopsy to discover what type of tumour it was and how aggressive
go for surgery to try to remove as much as possible [15]
diagnosed with very serious brain tumour[3]
diagnosed with very aggressive brain tumour[11-12]
2/2011 – 4/2011 – have no memories of that time, from the night of seizure to coming around from 8-hour operation to remove tumour 2 months later[1]
had about 4 more seizures – including one 2 nights before surgery last April – after discharged because tumour growing and putting so much pressure on brain [15]
Pain throbbed through inside of skull as peeled eyes open [15]
Groggy, focused and saw Pete smiling down at me [15]
was in hospital 5 days before going home to rest and getting biopsy results [15]
2 weeks later, went back to see consultant and specialist nurse [15]
news was not good and our world was rocked once more as results showed Grade III tumour[3]
tumour was cancerous and had scary name – anaplastic astrocytoma [15]
4 grades of brain tumours with 4th being worst [15]
Mine grade 3 [15]
statistics quoted said person with grade-3 tumour lives around 5 years [15]
life expectancy for people with tumours like this was 18 months[1]
2 weeks into treatment was hit by wave of tiredness [15]
so shattered had to go to bed for week [15]
went well for 1st few weeks but followed by hair falling out and bouts of tiredness and lethargy[3]
lost hair
started having seizures and didn’t know how long she had to live [12]
was still having seizures and lost independence with losing driving licence [11]
On top of all of this, dealing with losing driving licence as had number of seizures and now has epilepsy[3]
At end of July, had another MRI scan, revealed still residue left from tumour [15]
6 weeks after radiotherapy finished, had another MRI to see what was going on with tumour, Once again more bad news, as there were still remnants of aggressive tumour[3]
Although it was hard I remained hopeful that 6 weeks after radiotherapy would help and I could go on to live a normal life but again results of next MRI were not good [11]
There were still remnants of aggressive tumour[11]
At this point treatment options where very limited and life expectancy was not very long [11]
was told only options available on National Health Service were to operate or have radiotherapy again [15]
Chemotherapy also mentioned but not strong enough for that [15]
doctors said were really uncertain of expected life span if didn’t do anything and since treatment options in UK so limited, we want to try something else [15]
didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]
Just 8 months after starting treatment had some incredible news [12]
latest scans show she is cancer free[12]
desire to beat this disease led me to make number other lifestyle changes [11]
One of biggest changes has been dietary; specifically cutting out most sugars from my diet [11]
involved learning how to cook, which in itself was huge challenge because I hated cooking with a passion [11]
Over time I started experimenting with different foods and became more and more adventurous and dare I say it, I even started to enjoy coming up with new healthy recipes [11]
quickly learned that exclusive food of cancer is sugar, so quickly embraced this and cut out almost completely starchy carbohydrates and refined sugars by incorporating sugar free/starch free food plan [11]
idea being that diet would feed my body, mind and starve cancer into submission [11]
also learnt this type of diet is good for blood sugar regulation, body composition and is consistent with the way that our ancestors ate thousands of years ago [11]
After months of experimentation and with help of couple of great cooks, have learned to make delicious and nutritious healthy meals and this is why I decided to write my own book, The Team Hannah Cookbook[11]
It’s my contribution to helping and inspiring others to eat a better diet [11]
I would hope you can enjoy these recipes and make them part of your diet [11]
This book will show you how easy it is uto cut out the carbs and still eat “normally.” [11]
I now believe that dieting and counting calories doesn’t work [11]
Low carb is the way forward [11]
You will find in my book great low carbohydrate recipes for – Breakfasts, Breads & Pastries, Starters, Salads, Mains, Desserts, Treats [11]
====================================== TREATMENT ====================================== 2/2011 – partner, Pete, called ambulance, was rushed to hospital, unconscious [1]
decided to have operation, hopeful would get rid of it [15]
in hospital 2 weeks following 1st seizure and put on strong medication to stop from having fits [15]
kept awake 2 1/2 hours of 6-hour surgery – medical team wanted to make sure weren’t damaging any part of brain, where tumour was, relating to speech and language [15]
made list of what to talk about with speech therapist during operation, such as meeting Pete at conference in Croatia year before; favourite American TV series, Friends, niece who’d been staying with family week before seizure [15]
remember having to touch fingers with thumbs to check movement still there, hand or my leg would involuntarily move when surgeon touched particular part of brain and asking anaesthetist to scratch itch on nose [15]
“It’s going fine, we’re putting you back to sleep now,” voice said and everything went black [15]
4/2011 – 8-hour operation to remove tumour[1]
4/1/2011 – decided to have surgery underwent 6 1/2 hour operation[3]
4/1/2011 – surgery and underwent grueling 6 1/2 hour operation[11]
To my relief
results of operation were fairly successful and surgeon managed to remove uhmost of tumour[11]
diagnosed with Anaplastic Astrocytoma brain tumour and over next few months endured 6-hour operation and 6 weeks of radiotherapy[12]
started radiotherapy 8 weeks after surgery [15]
full on – 6 weeks of treatment, Monday to Friday [15]
needed 6 weeks of radiotherapy, did that, thinking this would make me better [1]
radiotherapy went well for 1st few weeks but fears were confirmed when hair started to fall out [11]
was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour[1]
Pete started researching alternative treatments from beginning and was Dr Stanislaw Burzynski, biochemist and physician in US, who seemed right choice for me [15]
found pioneering treatment in America which could give her a chance [12]
One name kept cropping up [1]
Dr Burzynski[1]
treatment is controversial – claims to have identified peptides called antineoplastons, which act as molecular switch to turn off cancer cells without harming normal cells [15]
After reading everything we could, decided to try it [15]
At his clinic in Houston he’s developed a treatment using anti-cancer compounds he discovered and now manufactures – and is treating aggressive tumours, especially ones in the brain [1]
controversial [1]
medical community claims unscientific and unproven [1]
oncologist didn’t want me to go – he wanted to monitor tumour and maybe give more radiotherapy in future [1]
that was like containing it, not getting rid of it, and treatment hadn’t worked so far [1]
Dr Burzynski seemed to be only hope of getting rid of cancer for good [1]
In order to get it needed to raise £150,000 [12]
treatment wasn’t cheap (about £200,000) [1]
treatment very costly, and even using all savings didn’t have nearly enough [15]
£200,000 (Dh1.16 million) needed to go to US, plus ongoing shipping of drugs from States and private monthly scans will need for 12-18 months, was out of reach [15]
Family and friends offered to help, soon there was Team Hannah website [15]
Within few weeks had £35,000, enough to go to US for consultation and start treatment [15]
didn’t know 100% whether would work, but had to believe in something; wanted to be positive [1]
Treatment available in America[12]
Luckily was able to take part in phase 2 clinical trial in Texas, USA [11]
treatment isn’t available via NHS so had to raise considerable amount of money [11]
12/2011 – flew with Pete to Burzynski Clinic[1]
—————————————————————— 12/10/2011 – Saturday – video blog
leaving tomorrow morning
—————————————————————— 12/11/2011 – Day 1 – Sunday
flew to USA massive headache
thought was going to faint
—————————————————————— 12/12/2011 – Day 2 – Monday Burzynski Clinic
temp check
vision test
meeting: Dr. Yi oncologist / Dr. Greg Burzynski
(Dr. Rowkowski)
—————————————————————— 12/13/2011 – Day 3 – Tuesday Burzynski Clinic
inject sugar syrup PET scan
MRI scan review
?’s memory / spelling jumbled
fill out form Valium
(as much local anesthetic as could give her w/o knocking her out) catheter – Hickman line
(painful / really painful)
—————————————————————— 12/14/2011 – Day 4 – Wednesday Burzynski Clinic
(feeling wrecked / absolutely wrecked)
start treatment 6 doses of antineoplaston a day 4 hours apart almost 24 hours continuously
(had chest x-ray)
(Dr. Barbera – talk pain medication)
lessons: clamps / hoses / pump
—————————————————————— 12/15/2011 – Day 5 – Thursday Burzynski Clinic
(Day 2 of treatment)
lessons: change pump
—————————————————————— 12/20/2011 – Day 10 – Tuesday Burzynski Clinic Dr. Yi / Dr. SRB enhancing – asked to stay month – next MRI to be done
—————————————————————— 12/22/2011 – Day 12 – Thursday Dr. Hilary Jones on Daybreak
(Pete’s colleague)
—————————————————————— 12/24/2011 – Day 14 – Saturday
fever
bad breathing
shivering all night
—————————————————————— 12/25/2011 – Day 15 – Sunday Burzynski Clinic
flu symptoms
breathing
headache
uncontrollable chills couldn’t stop
Monica off ANP
absolutely exhausted
in bed
little bit of swelling back of head
—————————————————————— 12/27/2011 – Day 17 – Tuesday
back on ANP
temp 102
called Burzynski Clinic off ANP
temp down / up
—————————————————————— 12/28/2011 – Day 18 – Wednesday Burzynski Clinic on ANP much smaller dose
exhausted
close to breaking / cracking
—————————————————————— 12/29/2011 – Day 19 – Thursday
hospital “I’m at my wits end” “I don’t feel I can take anymore”
—————————————————————— 12/30/2011 – Day 20 – Friday
last week up & down
off on off on off
fever
chills
shaking
viral infection
bacterial infection
had to go to E.R.
surreal
—————————————————————— 12/31/2011 – Day 21 – Saturday
fever in middle of night
temp 102 Dr. SRB thinks flu-like symptoms or tumor actually breaking down ->
——————————————————————
1/2012 – started treatment[11]
—————————————————————— 1/1/2012 – Day 22 – Sunday Burzynski Clinic
feel drunky
prob w pump – not closing
felt like completely drunk
double vision
Nurse said anti-seizure drug she hadn’t taken before
bit shaky
Gary – directions re pump equip
—————————————————————— 1/17/2012 – Day 38 – Tuesday Burzynski Clinic
temp 101.8
throat infection
If 102 take off ANP
BC 3x – blood – supplies
antibiotics 1 day
antibiotics 2 day – over 102 last night
fever
antibiotics been on 3 days off ANP
disappointed
pointless
—————————————————————— 1/20/2012 – Day 41 – Friday
fever
104 (103.9)
Friday night
—————————————————————— 1/21/2012 – Day 42 – Saturday Burzynski Clinic
temp up to 104
Dr. on-call – Ibuprofen 102.5
yesterday afternoon (blood) rash ? off ANP Dr. Popper
—————————————————————— 1/23/2012 – Day 44 – Monday Burzynski Clinic Dr. SRB
gave name from pic
some itch MRI – was to have Wed (12/29/2011 prev MRI) less tumor less enhancement shrunk by at least 10%
call Dad
Been 1 month
Discharge
take Ashley
Rick
Fri – leave
—————————————————————— 1/26/2012 – Day 47 – Thursday Burzynski Clinic Stable Disease
stabilization
—————————————————————— 1/27/2012 – Friday – leave
—————————————————————— medication is administered directly into your body through Hickman line 24 hours a day[1]
not an easy option [1]
Pete and I learnt how to prepare and administer treatment ourselves and carried on in Britain for another 18 months (1 year 6 months)[1]
were there for 7 weeks, and scans showed in that time tumour reduced by 11%[1]
Thankfully has been successful in shrinking tumour[11]
blood was checked twice a week, was scanned every 6 weeks at private hospital [1]
Most importantly, seemed to be working [1]
—————————————————————— 6/2012 – back 6 months 3 scans
6/13/2011
12/7/2011
3/21/2012 – 1
5/2/2012 – 2
7/29/2012 – 3
7 weeks at Burzynski Clinic
Complete Response
—————————————————————— tumour kept getting smaller, in January this year it was all gone [1]
started treatment and after 9 months had complete response and will continue on treatment until 4/2013 / 5/2013[3]
now off treatment but still being monitored [1]
Dr Burzynski isn’t miracle worker [1]
There are well-publicised cases of families raising money for children to be treated at the clinic but children still tragically dying [1]
People have posted on our website that it doesn’t work, but I’m convinced that, if we hadn’t found him, I wouldn’t be here today [1]
====================================== SUPPORT ====================================== Pete Cohen:Team Hannah set up to save life of my partner, Hannah Bradley, who’s 28 years old and has brain cancer[3]
All this time, without knowing, Pete had been looking into things, searching, talking to anyone and everyone who could possibly help [1]
needed to raise around £200,000 to give her opportunity to have life-saving treatment at The Burzynski Clinic in Houston, Texas [3]
Pete launched campaign – friends and family gathered around, held events, our local radio station supported us – in 2 months already had £100,000, enough to start treatment[1]
You helped her to get it… [12]
Eagle Radio wanted to help give Hannah hope by raising money towards her fund [12]
you wanted to help too [12]
Hannah came in to Eagle Radio to meet Breakfast Show presenters PG and Bev[12]
Listen to interview here: [12]
Pete (Hannah’s boyfriend) met our reporter Anthony Zahra and starts by talking about how couple met: [12]
Jeremy (Hannah’s dad) spoke to our reporter Elizabeth Williams:[12]
photos on Hope for Hannah appeal [12]
——————————————————————
Fundraising events you told us about [12]
—————————————————————— 7/21 – Matthew Cank from Farnham doing sponsored bike ride with friends riding from John O’Groats to Lands End[12] http://2theend.co.uk
——————————————————————
** 2/24 (Friday) – Pure Dance at Backline, Guildford from 8pm to 2.30am House, electro & trance music with DJs on rotation Entry £10 with all proceeds going to the appeal [12]
——————————————————————
** 2/25 (Saturday) – Dinner, Dance and Auction at The Mandolay Hotel, Guildford (6.30pm to 12.30am) evening of fantastic food & excellent entertainment [12]
——————————————————————
** 3/3 (Saturday) – special night held at Godalming Naval Club by Hannah’s best friend
£7.50 a ticket All money to the appeal Includes – food, disco, raffles, auction and more [12]
——————————————————————
** 5/19 (Saturday) – Health, Beauty & Fitness Fair at Clock Barn Hall, Godalming Free admission, free talks on health, fitness and nutrition Includes – mini treatments, fitness drop in classes, taster sessions, new health products Raffle & bucket collection to raise money for Team Hannah [12]
——————————————————————
Your generosity was astounding and Hannah surpassed her target much earlier than she could have dreamed [12]
Hannah’s Annectdote
A film about Hannah’s journey to The Burzynski Clinic
film we made called Hannah’s Anecdote [3]
made to share with world Hannah’s journey to beat cancer and live normal life [3]
you can see Team Hannah blog we started October last year as well more information about Dr. Burzynski and treatment for cancer [3]
totally aware of controversy surrounding Dr. Burzynski but have seen with our own eyes he saved Hannah’s life [3]
share this with everyone you can, so together we can raise awareness of Hannah’s success and of Dr. Burzynski [3]
cookbook by Hannah available at teamhannah.com [1]
Any help you give will be most appreciated and will keep you updated with Hannah’s journey [3] http://www.teamhannah.com/
Thank you for donating, raising awareness and simply helping to give Hannah hope [12]
—————————————————————— Hannah’s Annectdote: (40:42)
——————————————————————
A film about Hannah’s journey to The Burzynski Clinic
——————————————————————
Look
You’ve got a spirit level in the cam, in the front of the camera for a reason
I know
Ok
—————————————————————— Hannah’s Anectdote
——————————————————————
I’m Hanna Bradley and I’m 27 years old
I have
Well, I found out I had a brain tumor in February 2011
The way I found out is, I had a seizure in, during the middle of the night
I don’t remember anything, but my partner Pete tells me that I did
Rushed to hospital and about week later I was diagnosed with a, an aggressive brain tumor
And then I had to have an operation to remove the brain tumor and I went back for the results, which weren’t that good and I had to go for a radiotherapy
And I spoke to a friend of mine, an incredible man, he’s a doctor, he, he’s retired, he said, why don’t you just look and find people in the world who still have this condition and still alive
So, that’s what I did
And I found some people, and it, and they all led to this guy Burzynski, but you mention Burzynski to uh people who work in the world of cancer, and it’s just like, they, you know, the barriers come up immediately Chemotherapy, radiotherapy, there’s no question about the fact that these things uh, are reflective and they are, save people’s lives, but that’s not what Hannah wants to do
(If I could go there, and take myself off there, I could) Burzynski’s work is, some people wouldn’t say it is gene-targeted therapy
Basically it’s peptides Peptides uh form amino acids in the body, and he’s found from his research that uh, certain people do not have these types of peptides, and uh especially people with certain types of cancer
What have you got to lose, and what’s the worst thing that can happen, if it doesn’t work ?
What’s the best thing that can happens ?
It saves her life
(laughter)
(I’ll give the ass a smack)
—————————————————————— video blog 13th of November 2011 (2:00)
——————————————————————
(Come sit down)
Good morning
Good morning
Good Morning
Why this week is such a big week is we go to see Hannah’s uh GP tomorrow, and we really need him on side with the treatment that Hannah’s going to have, and, and that could pose a bit of a challenge, because this treatment with Dr. Burzynski is not peer-reviewed, and what that means is that, with the NICE guidelines in this country, people are
very unlike to promote a uh treatment that isn’t peer-reviewed in the way that they would want it to be, but, we’re hoping that he will help and support is when we come back
Yeah
We will also go and see the oncologist this
Yes
which is gonna be a very interesting conversation because again, we want their support
It’s unlikely, very unlikely that they’ll give us the support that we need
because when Hannah comes back, she’s going to need MRI’s every month, and that’s just not gonna happen
We’re going to have to pay for that, but, we’ll let the pets do that of course
We’ll let you know next week, but this week is gone, but for now this is Team Hannah saying, Team Hannah, Team Hannah saying
Goodbye
Bye
Goodbye
That the wave that you do
(laugh)
I’m getting better at the wave
I don’t know about that, darling
—————————————————————— Royal Free Hospital London – December 2011 (3:19)
——————————————————————
You know, maybe I’ve been led down a garden path if you like, going to work with Burzynski, because you speak to any oncologist; which we have, lots of (?) specialists in this field and they say:
“No don’t do it”
“The guy’s a charlatan”
“You’re wasting your time”
“You’re wasting your money”
“It’s not going to work”
“There’s no clinical research”
But I feel in my heart that we’ve gotta do this
Not just because, you know, what is there left to do, but I actually think it’s going to work
Is it going to be a placebo effect, or is it actually going to be that what this guy does works ?
I’ve spoken to people who he, who he’s treated uh and they all can’t speak highly enough of him and of the clinic that we’re going to
So I’m going to film as much as I can of her journey, and she’s happy for me to film
And the clinic in Houston are happy for me to film whatever I want
So I’m going to
—————————————————————— video blog 10th of December 2011 (4:10)
——————————————————————
I don’t know how many blog videos we’ve done but we’ve done quite, quite a few and I think it’s amazing that we’ve got to this point
It doesn’t seem very long ago that we were sitting and talking about doing this, and within a few months we’ve raised all this money and we’re, my bags are packed
Your bags is almost packed
My bag is packed
And your bag is packed and we’re leaving tomorrow morning
I know there’s been a little bit of controversy
Yeah
about what we’re doing, but please, whatever you hear about it, we have done a lot of research into this
and we feel very confident about what we’re doing, were going to get very well looked after and we’ll be able to share all of that with you
So, next time you see us we’re going to be in
Houston
Texas
—————————————————————— Day One (4:52)
——————————————————————
Good morning Hannah
Good morning
And where are we ?
At the airport
So, you ready for this ?
I’m ready
Ready to start this next phase of our journey ?
Yeah
Ok
I’m really ready
I hurt, like I’ve got a massive headache
Yeah
That was pretty traumatic for you, wasn’t it ?
Yep
Pressure
Um, and getting through customs and everything like that
I felt like I was going to faint
Um, yeah, apart from that all good
Yeah ?
Yeah
And how’s it feel to be in Texas
It doesn’t feel any different at the moment
(laughing) (?) that’s a (?) Avis rent-a-car thing-a-ma-bob
—————————————————————— Day Two (5:37)
——————————————————————
(?) there you go
Right-o
Hello everyone
Hi
I’ve
Ok
I’ve got less hair than Pete
Are you looking in the camera or are you looking in here ?
I’m looking in here
Uh what are you looking there ?
(laughing)
Hello
Everyone
Today is going to be a very interesting day
We’re going to film, all that we can
We’re not going to meet Dr. Burzynski
We won’t be meeting him until the 19th, but we feel more than happy to be meeting his fellow doctors
What’d you reckon ?
You’re going to kill me in the car before you, we get there ?
Why
Because you’re trying to film and drive, and you don’t know where we’re going
Well spotted
Look
There it is
We’ve finally made it
So how’d you feel, that we’re finally here ?
Yeah
I feel good
Do you ?
Yeah
You ready ?
What are your expectations ?
I have no idea
Well, lets go and find out
Don’t have any expectations although I sure don’t want to be disappointed
——————————————————————
[Temperature]
(Close your lips please)
——————————————————————
[Eyesight]
(Ok
How about this one ?)
D
(Ok. We’ll have to go )
(laughing)
(I’m sorry)
Should I actually be able to ?
(#5)
Ok
P E C F D
(Ok. Good)
——————————————————————
So, was that bad ?
Uh, can’t see any of them
Oh, ok
—————————————————————— Meeting with Dr. Yi and Dr. Greg Burzynski (7:14)
——————————————————————
(?) we’ve reviewed your scans, your MRI, and we’re very aware of your case
Yes
We have permission to start you on the antineoplastons
Mhmm
which as you know are in the final stages of drug approval
Yeah
Dr. Yi is the oncologist on this case
Yeah
Likewise Dr. Rowkowski will be involved
Likewise I’ve an I’ll, I’ll be on the case
Ok. Great
And my father as you know is aware of what we’re doing here
Yeah
So as early as Wednesday we’ll be starting treatment
Mhmm
Tomorrow we can put in the catheter, and this is an external
—————————————————————— Day Three (7:44)
——————————————————————
What else is happening today ?
Look
Don’t want to think about it right now
Gonna have some sugar syrup put into me
(?) PET scan
Yeah
Which they inject sugar
I’d rather eat some
Yeah
Inject sugar and then you’re also having a, this Hickman line fitted
Yeah
Hopefully they’re gonna let me put on a white coat and come and be by your side
You can’t put on a white coat
You’re not a doctor
Well hopefully they’ll let me film
Well I don’t care about filming
I just care about you being there
—————————————————————— Hannah’s MRI scan review (8:15)
——————————————————————
So this is the one that was done in December, right ?
Yeah
This is the one that was done in December, and it has increased
‘Cause if I look at the, it’s more intense
Yeah
There’s more weight
Yeah
upon the image
Ok
Seen change in a month, right ?
Yeah
It’s in a month
That’s why
Less than a month
Yeah
That’s why kind of it’s a little scary
’cause it has
I mean it looks like it’s more prominent now
Yeah
—————————————————————— (8:46)
——————————————————————
after (?) this MRI scan, and you can see that the tumor is enhancing
She doesn’t know that
How will I tell her ?
Probably not, but she’s probably going to ask, and if the tumor grows like it’s, then you just saw in the scan, then how long does Hannah have left
—————————————————————— (9:06)
——————————————————————
Yeah
That would mean very
That’s pretty good
Ok
That’s good
That’s good enough
So any memory problems ?
Any speaking proc, speaking problems
No
No, not really
Ok
Spelling
Spelling, yes
Ever since surgery
So, what kind of problem ?
Like when you spell you miss letters ?
Yeah
Her spelling
Why, yeah
It’s just I’m jumbled
Ok
Yeah
—————————————————————— (9:28)
——————————————————————
Right
So uh were just getting ready now for Hannah to go in and have her PET scan and uh catheter Hickman line fitted and she’s just filling in the form
I’m not even going to ask her how she’s feeling or anything like that ’cause she’s feeling a little emotional
—————————————————————— (9:48)
——————————————————————
(?)
(laughing) You’ve just taken some , some Valium as well, have you ?
Not helping
This is like your biggest con, fear, isn’t it ?
I just show everyone what you’ve just done to my hand as well
—————————————————————— (10:04)
——————————————————————
What I’m doing is I’m creating a little tunnel under the skin
So I have to use just a little bit of pressure
So if I hurt you, you tell me
Ok ?
How are you feeling ?
Shhh
(laugh)
Well, you’ve done so well darling
I’m feeling really cold
Hungry ?
Yep
Alright
—————————————————————— (10:30)
——————————————————————
You look like you’re some sort of Holy Woman
People are going to come in here and bow to you
Did, did, did you feel that when it was going in and stuff ?
Not really
Little bit
It’s a little bit painful now ?
Yeah
It’s quite really painful now
Yeah
Well, it’s a massive tic, of something we have to get done
Yeah, I know
—————————————————————— Day Four (10:52)
——————————————————————
I’m feeling wrecked, absolutely wrecked
(laugh)
Well you had, bit of Valium yesterday
Yeah
And you had as much um local anesthetic
Yep
as he could give you he said, without knocking you out,
Yeah
but you were very, very brave yesterday, do you not think ?
I don’t think so
Why not ?
I wasn’t brave about the (canada ?) they put in here
—————————————————————— (11:23)
——————————————————————
Yes
What’d you think of
What, now what did you think of Judith Curran ?
Talk to
Oh, she’s great
( Skype on at the same time)
She’s like a mother
Yeah
Yeah
Is she ?
Yeah
(Yeah that’s fine. Whatever)
Yeah, she really does love you
( I’ve got something)
More than most
(?) all mom’s girlfriends
Mum uh Hannah just, I said, I just asked what she thought of you and she said she thought you’re like a mother
(Pete’s Mum)
Ohhh
I really do need you here
Oh dear
Well you have to have a partner mother at the moment
Yeah
But you need cuddles you mean ?
Yeah
Ohhh lots of cuddles
Oh no, no, no don’t
I asked
I’ll go
I need something dressed there
She needs help getting dressed
—————————————————————— (12:16)
——————————————————————
It’s, it’s, you know, it’s basically it’s uh, it’s a little roadway right into your bloodstream, so yeah, it has to stay very clean, and our thing is that we have to teach you
Yeah
how to do this
Yeah
—————————————————————— (12:32)
——————————————————————
You get 6 doses of antineoplaston a day,
Mhmm
they’re 4 hours apart
So, yeah, it’s almost 24 hours continuously
Mhmm
—————————————————————— (12:41)
——————————————————————
These are your bags
Ok. Thank you
and I’m going to wait until Dr. Barbera comes and talks to you about the pain medicine
Yeah
Then we will go ahead and hook up
Yes
because she did get the chest x-ray and everything’s a go
—————————————————————— (12:51)
——————————————————————
And everything goes in with a push and a twist
Ok
Quite simple
Alright
Yep
So obviously we’re gonna, when the fluid, we need to open up the clamp
Mhmm
And I always double, triple-check, make sure all the clamps are open
Yep
—————————————————————— (13:10)
——————————————————————
I’ve been on the treatment, I don’t know
It, it’s about
I don’t know
Half day ?
How are you feeling ?
It doesn’t hurt
Yeah
And this is what you’ve got to carry around with you
Yep
Now it’s like
It’s (?) my new bike
a baby
Something you have to have with you all of the time, and me with you all of the time
Oh (laugh) Oh god
I can cope with that
Ever since this all happened it seems like it’s just been one thing after another
Yeah
of obstacles
Yep
But we’ve got this far
Who woulda believed that we’d raise the money to get out here
Mhmm
which we have done, and now we’ve started on the treatment and I am pretty impressed with them there I must admit
Yeah
They’re really nice
—————————————————————— Day Five (13:52)
——————————————————————
Yeah
This is day, it’s day 4 yeah ?
Day 2 on the job
Day 5
Day 2 on the treatment
Mmmm I need a bit of a shave
um and um yep
You need a bit of a shave
So do I
Yeah, yeah, yeah, yeah, yeah
—————————————————————— (14:08)
——————————————————————
Hi
So, can I get ya
You need a pen ?
Uh, yes please
So pull this back ?
Pull it back to undo the lock
Ok, pump is off, so your next step is to disconnect it
So push in and twist, clockwise
—————————————————————— (14:26)
——————————————————————
How’s your new friend ?
Yeah, she’s good
Yeah ?
Mmm
What have we done today ?
We’ve learnt more lessons
I’ve learnt more lessons about changing the, changing the pump
How did I do ?
Honey you did well
You think so ?
considering
Considering what ? (laughing) How challenged I am
No, considering how hard it actually is
That you did well
—————————————————————— Day Ten (14:54) Meeting with Dr. Yi and Dr. Stanislaw Burzynski and
——————————————————————
Yeah, I think so far where we are we have been very impressed with all we’ve seen
Thank you very much
It looks like (?) we should not (?)
a pretty traumatic day because uh we met with Dr. Burzynskibut he didn’t give us the sort of news that we wanted uh because he’s concerned that the treatment may be enhancing uh and he wants us to stay here until at least um Hannah’s had one month on the treatment and to do MRI and see what’s going on
We can stay here
That’s the most important thing
Just imagine if we had to go home
You know ?
I know you’re tired of all this, you know, and its hard work, and it’s, you know ?
—————————————————————— Day Twelve (15:46)
——————————————————————
So the last time we kind of filmed was when we were with Dr. Burzynski and him saying do we want to stay and that
Yep
And how, how do you feel about that now ?
Yeah, i’ve got my head ’round it
Do you have faith in him and ?
Yeah, again I know that I’m in the best hands
—————————————————————— Pete’s colleague Dr. Hilary Jones appears on ‘Daybreak’ morning TV show in the UK (16:04)
——————————————————————
Are there question marks for you with regards to going over there to this particular clinic ?
I think what we have to bare in mind is that uh the treatment that, that Dr. Burzynski is offering is, is very uh experimental
It’s pioneering research, and pioneers in medicine tend to get a rough ride to begin with, and uh he hasn’t uh uh published the numbers of people in trials that convince the established authorities that his treatment uh works
It’s very interesting treatment
We’ve known about these peptides which can switch uh tumor genes on or off, and this is a different approach to these kind of tumors, that’s uh over and above oncology, chemotherapy, radiotherapy
Um, his results um, if you look at them um, sometimes appear extraordinary in some cases um but of course not in all cases
So it’s very difficult to evaluate, how effective it is
I I researched it pretty carefully myself because I have a friend there at the moment with his partner and the reports I’m getting back are they’re getting excellent treatment, excellent support, very impressed
This is somebody who, who knows a lot about medicine
Very impressed with what’s going on there
Um, we need to keep an open mind
Yes
Um it’s unfortunate it costs so much money but pioneering treatment does, and I really hope, that if you go that route that it works out for you
I really hope
Thank you
Indeed
—————————————————————— (17:20)
——————————————————————
So, that was uh, I didn’t know uh he was doing that, and actually the weird thing was that the day before I had actually contacted him just to say that we were doing really well
Yeah
But poor old Hilary was so caught up in that yesterday
On Twitter, I mean it was just nonstop
People just saying
“Burzynski’s a fraud”
Um, but we certainly don’t feel that he’s a fraud, do we ?
No
No
I get the impression that he’s 100% genuine
—————————————————————— 12/25/2011 – Christmas Day (17:50)
——————————————————————
Hello there
Hi. How are you today ?
We’re doing ok
Documenting that ?
Um yeah I’m documenting
(laughing)
everything
That’s against the rules
Really ? Oh dear
(? again)
Collecting evidence ?
Yeah, I am
We’re gonna sue
We’re gonna, we’re gonna sue a few people
(laughing)
That’s what you love to do in America, right ?
—————————————————————— (18:10)
——————————————————————
So same symptoms ?
Yeah
The flu symptoms
Mhmm
Yeah. Ok. How’s your breathing ?
The same
That was, really bad yesterday, wasn’t it ?
Yeah
Ok. Um, any headache ?
Yep
Ok. And you said you had, are they tremors or are they like shakes, like chills ?
Yeah, chills
Chills, ok
But, you know, like I couldn’t stop
Ok.
myself
It was just
Yeah
Ok. So it was un, uncontrollable ?
Yeah
Ok
—————————————————————— (18:41)
——————————————————————
This is how we spent Christmas Day, in the Burzynski Clinic
With the lovely Monica
Of course
And
How (?) would you have it any other way
And the Christmas songs
Hey (mouthing words to song)
—————————————————————— (19:04)
——————————————————————
We went to the clinic this morning, and she was shivering all night, fever
So she’s off the antineoplastons for the day, and she’s just basically in bed now, just absolutely exhausted, and now she’s got a little bit of swelling on the back of her head, which obviously is a ca, cause for concern when you’ve got a uh, a brain tumor
—————————————————————— Day Eighteen (19:04)
—————————————————————— Hannah was back on treatment yesterday, and last night her temperature went up to 102
So I phoned uh the clinic, and they said take her off the medication, the anti, antineoplastons
So I took her off
Her temperature came down
Then it went up again, and then we went back to the hospital today, back to the clinic, and they’re giving her a much smaller dose um and she’s on much smaller dose and she’s just come back, and she’s just exhausted
And she, I can see she’s just so close to breaking, which is cracking completely
(Christmas tree)
—————————————————————— (20:07)
——————————————————————
um and I’m just, got to the point where I can’t, I’m just, don’t know what to do
—————————————————————— Day Twenty (20:22)
——————————————————————
Well the last week has been very up and down
Um I have come off the dose
Gone back on it
Come
Come off it
back on
Yeah, and then come back off it again um, for several reasons: Fever, um shaking, chills, fever, and bacterial infection, um viral infection, every infection, um and then ended up with me having to go to E.R., the Emergency Room
Well at that point I was really fearing the worst
Mhmm
Because you’d a scan when we got out of here, right ?
Mhmm
and the scan definitely showed some tumor growth
Mhmm
um and I was thinking, what 2 and 1/2 weeks later from that
Yeah
That we were going back in the hospital
Mhmm
Because the tumor had gotten bigger
Yep
What has this whole experience like for you at the moment
Oh it’s just surreal
I just, I can’t explain it
It’s just surreal, to me
What, like its not happening to you ?
Yeah
You did actually said to me yesterday in the hospital, you said:
“I’m at my wits end”
“I don’t feel I can take anymore”
Yep
And what about today ? (laugh)
Well, I reckon I’ve been, I’ve just realized I’ve got to get on with it again
—————————————————————— Day Twenty-Two (21:53)
——————————————————————
So it’s, January the 1st, 2012, and we haven’t really got the,
We haven’t got off to a great start, have we ?
No
Why ?
Because I’ve had a fever
Uh you, when did you start, feeling feverish ?
In the middle of the night ?
Yeah. Yeah
And your temperature went up to 102
Yeah
What Dr. Burzynski thinks you, why you’re having a fever
you’ve either still got some flu-like symptoms or it could be the, the tumor actually breaking down
We’ve also got some problems with our pump this morning
(So what do you think ?)
Yeah, it’s not closing again
(And then you can also see the)
Uh, there it goes
(?)
But
It ain’t gonna stay that way
I don’t think it’s going to stay closed
Huh, what’d you think about that ?
(unintelligible)
(? get it fixed)
(and this looks like it’s ?)
(? fix ?)
Love you
—————————————————————— (23:09)
——————————————————————
The last time we saw you, you felt like you were completely drunk
Yeah
And you had double vision
Mhmm
So,then what, ended up, happening ?
Well, one of the nurses, kindly, pointed out
She said: “What have you taken ?”
That is where we recognized it was an anti-seizure drug, that I hadn’t taken before
And how do you feel now ?
I feel ok
I feel a but shaky
Yeah
I just have to (?) something to eat
Um, I’m just so tired
—————————————————————— (23:50)
——————————————————————
Hi, I’m Pete Cohen
Uh you might recognize me
Oh god
from morning television in the
Yeah
U.K.
Nobody recognizes you anymore
—————————————————————— (23:58)
——————————————————————
You should keep your fingers above the little
Ok
guard thing, yeah, and try to hold this
I’ve done it
as straight as you can
Ok. I’ve done it there Gary
and put some support
Yeah
on it
In there
and then you twist them down
Easier said than done (?)
I know
You can give it much more of a whack and you can u, use the other end as well
Ok
No, like this
(laughing)
Got no chance
Use the other end
(?) better
Ok. Thank you
(laughing)
You’re welcome
There you go
There you go (?)
There you go
—————————————————————— Day Thirty-Eight (24:33)
——————————————————————
I’ve never had to take care of anyone, the way I’m kind of having to take care of Hannah, and its just constant, and I get stressed around her, which isn’t fair, you know
She’s now got another temperature
She’s got a throat infection
Her temperatures up, uh and uh if it goes up over 102, it’s 101.8
If it goes up over 102 she’s got to come off of the treatment again um, oh, just, just feels like non-stop, you know
Cooking, and changing the bags
I’ve been into this, the clinic 3 times today
Taking her blood
Taking her back, get supplies
Take her back there
—————————————————————— (25:24)
——————————————————————
I’ve got a fever
It was over 102 last night
Yep. And
I’ve got antibiotics
Which you’ve been on for how many days ?
3 days
And we’re off the treatment
So, all in all
But you feel bad because you just want to be on the treatment, and just keep coming off
It’s just
How does that make you feel ?
Just, I don’t know, angry
Disappointed
Pointless
What you mean like
The while things pointless
Yeah
because you can’t stand
I just hope one day we can look back at this and laugh
Yeah
and just think: “We beat that”
because you couldn’t be doing anymore than what you’re doing
You know ?
You really couldn’t
Should really get a few of your friends to come over
Yeah
’cause you must be a bit bored of me
(laughing). No
C’mon, I’ve been really annoying
How grumpy was I yesterday ?
(laughing)
on a scale of 1 to 10 ?
(laughing)
I don’t know
C’mon
6
Really ?
Yeah
—————————————————————— Day Forty-Two (26:54)
——————————————————————
It’s 6 o’clock in the morning, and Hannah is lying here
Her temperature went up to the highest I’ve ever seen a temperature, on the thermometer
Where is the thermometer ?
Up to 104
I’m gonna just, I’m just trying to cool her down
I just phoned the doctor on-call and she said take some ibuprofen which Hannah has, and the result is ?
It’s come down a bit
Where is it ?
There it is
102.5
Well you’d think it’d come down
My god you’re so hot
I can’t believe how hot that is, thats got
Unbelievable
—————————————————————— (27:50)
—————————————————————— Hannah
Show me what’s going on
This all came up
When did you notice this ?
Yesterday afternoon, but its got worse since then
Yeah, lift up a bit higher if you can
Just zoom in on that
Yep
So it’s just one thing after another at the moment, isn’t it ?
Aye ?
Yes
Open your hands a little bit
Yeah (?)
And obviously we’re off, treatment at the moment
Mhmm
And we’re just waiting for who ?
Dr. Popper
What do you think he’s going to have to say ?
Mmm I don’t know
Ok
Ok, bye
—————————————————————— Day Forty-Four (28:35)
——————————————————————
Who um gave it a name ?
I sent a picture of it to Dr. B and he came back and said I think that’s what it is, and I looked into it and could see that that’s exactly what it is
Well does it bother you or does it just ?
No, it does
Like
Yeah
And itch ?
In some cases
Oh I’m sorry
Especially under the dressing
(?) Hannah had a fever 104 on Friday night
104 ?
103.9 I should, if I’m being absolutely, precise
So I think it’s brought this out
I think you can, you can say 104
—————————————————————— (28:50)
——————————————————————
So, we’re now going to have the MRI that we were going to have on Wednesday
We’re going to have it today
(laughing)
—————————————————————— 1/23/2012 MRI (29:29)
——————————————————————
This is one that was just done today ?
2012 Jan 23
Acq Tim: 12:13:09
955000
320 x 230
Today
2011 Dec 29
Acq Tim: 14:50:12
497500
256 x 192
Today
So the difference is that you can see there
How would you describe the differences between
and what you see here ?
Well 1st of all the size of the tumor is less, and um, if you see the actual, the solid enhancing part of the tumor
This is how it looks now
So from that you can see that it’s definitely, something definitely is going on
It’s changing
Yes
There’s no question about that
The size is less
The intensity of the enhancement is less
So wha, whe, whe, when you see something like this, wha, what does that show you ?
Well, certainly the, we see that the tumor’s most likely working, as the tumor is showing less enhancement, meaning less activity
Yeah
And the tumor’s by effect smaller
Yeah
So, ideally the next scan should be better
So we, we’re definitely going in the right direction
That’s, great
That’s for sure, and it’s brilliant that uh we’re going home on, on
On a high note
On a high note
Especially after our trials and tribulations
So
Certainly
—————————————————————— (30:47)
—————————————————————— Hannah’s tumor has started to shrink, and she doesn’t know
She doesn’t know that
So I’m going to go in the house
I think she’s still asleep, and give her the good news
(?)
Hannah
Can we go home ?
Can we go home ?
Guess what ?
We can go home ?
Yeah
Yea !
And guess what ?
Guess what
Your tumor started shrinking
Yea !
It shrunk by at least 10%
Let me just give you a kiss
Thank you
It’s ok
It’s ok
—————————————————————— (31:30)
——————————————————————
Hi Daddy
Hello, how are you ?
Yeah, I’m sorry for ringing so late
That’s alright
Um but I’m ringing with really, really good news
Good, that’s what I wanna hear
Go on you tell
No, you tell him
I don’t think I can
(Go on ?)
(? tell me ?)
Um
C’mon
my tumor
Yeah
has already shrunk by 10%
You’re f’n ‘ell man
F’
(?)
That is absolute, amazing
And considering I haven’t been on the treatment for
You’ve been on the dose, off the dose, and on it
F’n ‘ell
What
When you get started on the
F’n ‘ell man
(laughing)
I’m glad you phoned me
Yeah, you’re the 1st person I called, obviously
—————————————————————— (32:22)
——————————————————————
So what can you believe we’ve now been here for one month
Yes
And we’re going now
What are we going in to have done ?
Hopefully, be discharged
And are you pleased with the progress you’ve made ?
Yeah
It’s been up and down
Yeah it’s been up and down
(Trip, trip ?)
You look like a Hollywood star
(laughing)
Not many Hollywood stars have a backpack like this though
Yeah but it was also a week ago
I don’t know how long ago that was where you couldn’t even
What ?
What ?
In you go
In I go
Hi
We can’t stay away
(laugh)
We’re getting discharged now
Oh really ?
I think so
Well that’s wonderful
Yeah
Well yeah, oh we, we don’t wanna go
Right turn mate
Which floor ?
2nd floor
Oh, you’re still filming
Yeah, I just, you know, I mean, you know, why not ?
I haven’t filmed all of this
We’re going up
This was great when I was feeling really sick, ’cause it
Seems like we’ve spent a lifetime together, we used to go to the 4th floor
(laugh)
(Ok)
Hi
Ohhh
Hello
Hello
Hi
Hi
Hi everyone
Hello
Hello
Um Hannah and I are leaving on Friday
What’s going to be your overriding memory of us ?
No
What are we gonna do ?
Hey
Are you going to miss us ?
What are we gonna do ?
Of course
Peace and love
(Remind me, is Hannah ?)
Why don’t you stay
(?) who’s your favorite, because you remember we said we were gonna say
(laughing)
‘Cause, ’cause we can o, we can only take one of ’em home, and who’s it gonna be ?
(? the rash (?) dude)
(laughing)
Well you can only take one attribute from each person, what would it be ?
I’m going to take Ashley home
(laughing)
Really ? Why ?
Yes, I like that
Because she’s, because she has the same condition ?
Yep
(laughing)
Because she can look after
Very good
(laughing)
So Rick you were told I was a big shot
Yes, going to film everything so
(Who knows ?)
you have to watch out
So, c’mon, what, what point in your head did you think: “My god this guy’s an absolute idiot”
(laughing)
—————————————————————— Day Forty-Seven (34:55)
——————————————————————
This, this December 29
This is January 27
Here we have the tumor, visible previously
And we have now
Certainly, outside diameters have decreased
Mhmm
So to some extent, but also the, the intensity of the enhancement, has decreased
Mhmm
As you can see this was much brighter before, now is less
Which means that the tumor is decreasing and it’s uh losing its activity at the same time
Mhmm
Which is a good news
But, again, we are not at the remission
This is called Stable Disease
Stabilization
Mhmm
Probably next time we see this is shrinking more and this wide band is getting thinner, and thinner, and finally
Mhmm
it should disappear
So that’s what you should be looking for
Ok
—————————————————————— (35:43)
——————————————————————
There’s some hair on the camera
Well it’s not mine
It’s definitely not mine
Hmmm
Um
No
I’m gonna start
Ok
(laughing)
Go on then
Ok
So it’s June 2012, and we have been back for approximately 6 months from the, America, and generally it’s all going well
I’ve had about 3 scans since I have been back, and they’ve all looked fairly positive
I think they’ve looked more than positive but yeah, go on
Carry on
(laughing)
Um, yeah, so the tumor, well the enhancing part of the tumor is getting smaller
Basically there’s such a small little part left that I’m sure when you watch this you’ll be able to see some images so people can see your scans
December 7th 2011 scan
Yeah, mhmm
March 21st 2012 scan
and we know that if Hannah hadn’t had this treatment, with the type of tumor that she had
May 2nd 2012 scan
she might already be dead, or she probably wouldn’t be here
June 13th 2011 scan
Yeah
much longer
July 29 2012 scan
She is very much alive at this point in time
Yeah
And what’d you think about all this controversy, because the controversy around what we’re doing, and it’s just, just
I can’t believe it personally
I find it very, very hard the, the hatred and the skepticism, of, um, what Hannah’s doing
What, what, what’s that like for you ?
Well, as I, as I’ve always said along the way, you know, any of the skeptics, what would they do, if they were in my position ?
Would they want to die in 3 to 5 years or ?
Probably less than that
Uh (both)
And that’s a horrible thought
Um
Yeah, uh everyone has a, has a right to be sceptic and everyone has a right to their own opinion
Yeah, they do
Um, and, but the funny thing about people’s opinions is, opinions are often based on, what they’ve heard
Yeah
or what someone hasn’t done, whereas uh, we spent 7 weeks at the Burzynski Clinic uh
And we saw everything
We saw everything
We spent time with this man um, and I tell you from my, from, from, I think from both, I can maybe speak for you hey ?, but uh
(laughing)
he’s one of the most honest, kindest people
Yeah, he is
‘Cause I, I said to you, the other day, about making this film, and you said: “Even if I was going to die tomorrow, I would still want this to be made”
Yeah
You remember saying that ?
Yeah
What, what, why did you say that ?
Why ?
Because, it might give other people a shake up
Mhmm
Yeah
Yeah, because uh, yeah
Why did we make this ?
Well I made this because I thought it was a journey that was well worth documenting
(?)
and maybe could help other people, and maybe help people realize there are other options, apart from the conventional treatment for cancer, and to inspire people
I hope you’re inspired by Hannah’s story because she’s an amazing, she’s a, honestly she’s annoying sometimes
(laugh)
but not very often
So are you. Yep
She has such a desire to live, uh and to enjoy her life, and I think
I don’t know, if there’s anything else that we
Ok, that’s enough for now
Hannah’s most recent scan confirmed she has now had a complete response to the treatment
—————————————————————— (39:35)
—————————————————————— Special thanks to
Bacon, Lesley
Bradley, Jeremy and Irene
Cank, Elizabeth
Cohen, Judith and David
Gooden, Lindley
Jones, Dr. Hilary
Levitt, Chris and Gina
Martinez, Dr. Juan
Merola, Eric
Newman, Ofir
Norouzi, Minou
Ramsey, Anna
Rowkowski, Dr. Bob
White, Gemma
Hannah Bradley’s GP The Eagle radio station
—————————————————————— (39:40)
—————————————————————— Dr. Stanislaw Burzynski
and all the staff at the Burzynski Clinic
—————————————————————— (39:48)
—————————————————————— camera Pete Cohen
additional camera Lindley Gooden
editor Jamie Lowe
—————————————————————— (39:54)
—————————————————————— A film by Jamie Lowe & Pete Cohen
—————————————————————— (40:00)
——————————————————————
This film is dedicated to all the people who donated their time and energy to raise funds to save Hannah’s life
—————————————————————— (40:08)
——————————————————————
To follow the progress of Hannah’s recovery and find out more about the treatment she received please visit: http://www.teamhannah.com/blog
====================================== [15] – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
—————————————————————— http://m.gulfnews.com/i-ll-try-anything-to-beat-brain-cancer-1.981203
====================================== Team Hannah Blog (2:46) 4/1/2013 – Posted by Hannah
======================================
(laughing) Don’t
‘Cause you’ll put this bit in
Promise ?
Yeah
Ok
(laugh) Ok, so, it’s April the 1st and it’s 2 years on since I had my operation and but ? obviously is out
So, I just wanted to (laugh)
Start again
Start again
Start again
Start again
Ok
Ok
I don’t believe you
I have
Start today again
(laugh) I don’t believe you
It didn’t go “beep beep”
Because it’s on silent
(laugh) Do you think that I’m an idiot ?
No
(laugh)
Ok
3 2 1 go
Hi there um it’s (laugh) the, the 1st of April and it’s 2 years on since I had my operation and I’m pleased to tell you that I’m obviously still here, and um that’s thanks to you guys and thanks to me I suppose from, for fighting so hard for my life
And what, and what have you been up to then ?
I have been up to um just resting a lot and uh making up new recipes uh
Your next book
Yeah, for my next book and
Yeah, that’s pretty much it
And when are you thinking you might be able to come off the treatment ?
June
End of May
June
I have a scan in a couple of weeks and we’ll update you after that
And what will that be like, coming off the treatment ?
Oh, it’ll be amazing
Yeah, amazing
So you won’t be walking around with
No
this fellow here ?
No
Ok
Is there anything else you’d like to say ?
Um, just love to you all
Oh
The wave
—————————————————————— Team Hannah Blog (3:34) 3/2/2013 – Posted by Hannah
======================================
Hi
This is the Team Hannah blog and it is the 3rd of March and Peter is actually filming me today
He’s not there, where he normally is
Yeah
Exactly
So I’m on my own
Flying solo
Um I’d just like to say how well I’m doing and my last
Ohhh went a bit northern then
My last scan um was mid-February and it showed no enhancing tumor
So that’s really good
Um I’ve just got um a really cystic area in my head
So it looks like they’ve predicted June me me to be off the treatment
So, fingers crossed for June
What will that be like to, to come off the treatment ?
Um, yeah, it will be
The treatment is so uh, restricting I would say
Yeah, it would be good to come off
And what else have you been up to ?
I have been (holding up Team Hannah Cookbook) selling lots of copies,
Yeah
and, and,
the other book a little bit
I know that you mentioned in the last blog, but just
What, what’s the book about ?
Well it’s low-carb recipes and I’ve
Been on the radio
I did a radio
promoting it and um it’s great for anyone who wants to cut out sugar
to lose weight and decrease their, and what, decrease their
Risk
Yeah, risk of getting disease
Yeah, ’cause we saw a doctor in America, Dr. Rowkowski
and he, and one of the things he said to you was you really need to cut sugar out of your diet
to
sugar is what he said
Yeah
Um, and you’ve been getting a lot of people that
trying your recipes and taking photos
Yeah
picking up
on Facebook on Pete’s favorite page
to cook something from the book
put them up on the
page as well
And um where can people find out about your book
Um just slide over to, to Hannah Cookbook and you will find it there
And your blog as well, yeah ?
Yeah
So, I think we’re done
I just want to say there’s an airplane going overhead
Thank you to everyone whose supported us
it seems a lot of, a lot of film
And why are you laughing
Pajamas
pajamas
I didn’t quite
yep
What are those
(laughing)
This bench has seen a lot of action
Yeah, it has
Video action, that is
(laughing)
And we’re very thankful to everyone
Yeah
Thank you, yeah, again
Yeah
We try and do one after next scan
Big wave, please
Bye bye
Bye
====================================== Sapphire Sings For Team Hannah
1/3/2012 – Posted (3:00)
====================================== (Last) Christmas, I gave you my heart
The very next day, you gave it away
This year, to save me from tears
I’ll give it to someone special
Once bitten, and twice shy
I keep my distance, but you catch my eye
Tell me baby, do you recognize me ?
Well, it’s been a year, it does not surprise me
Happy Christmas, I wrapped it up and sent it
With a note saying, “I love you”, I meant it
Now I know, what a fool I’ve been
But if you kiss me now, I know you’d fool me again
Last Christmas, I gave you my heart
The very next day, you
—————————————————————— (1:04)
——————————————————————
Ok Sapphire, all I have to say is “Thank you, thank you, thank you
You have compiled a CD, um, in aid of Help for Hannah, and you have had quite a lot of sales so far, and you have got a beautiful voice, and I’m sure you’ll go very, very, very far, but “Thank you”, and this is just a little “Thank you” for you, but obviously other people are going to hear it Thank you Love you
Bye
Did you
Sorry
Did she also, sing this yesterday, uh, somewhere?
Yeah, she sung it at Aldershot uh Football Club
Again, so Aldershot was playing football against another team
Plymouth, yeah
Plymouth
And she sang it for everyone ?
Yeah
And they raised some money for you ?
Yep
Yes, so this has been a big “Thank you” from both of us (laughing)
Let’s, let’s play out a bit more of that song
Ok
‘Cause we love this song
It’s off
Uh yep, it’s my favorite Christmas song
It’s the only Christmas song
(gave it away)
we can hear when it’s not Christmas This year, to save me from tears
I’ll give it to someone special
A crowded room, friends with tired eyes
I’m hiding from you, and your soul of ice
My god I thought you were someone to rely on
Me ? I guess I was a shoulder to cry on
A face on a lover with a fire in his heart
A man undercover but you tore me apart
Now I’ve found a real
Thank you so much
——————————————————————
An Update For You
10/21/2011 – Posted
A Message From Pete About Team Hannah (3:07)
A MESSAGE FROM PETE
Hi it’s Pete Cohen and I just wanted to share something with you
Uh in February this year my girlfriend was diagnosed with a, with a brain tumor and when this happened it really obviously rocked our world
You know, everything seemed to be ok
Everything was great in life
And then something happened, and everything changed
And I don’t know whether anything like that has ever happened to you
But these things happen don’t they
And when they happen they really test you
They really challenge you
They, it’s very easy
It made me question lots of things
It made me think to myself, well, you know, what, is life, really fair ?
You know, should this happen to such a young person ?
These things do happen
And it really puts us in a position where it questions what we have
What we have to deal with such difficult circumstances
And I’ve definitely found things in myself that I didn’t know wa was there, you know, resolve, compassion, determination just to, to keep going
And this is the thing human beings we all have this kind of, we all have something else don’t we
All, we all have something more than our stress, and our worry, and our anxiety
We have a our true nature I think can overcome so much, of what life throws at us
You know, obviously we can’t overcome, everything
But what I really wanted to share with you is something that I’ve been so taken aback with, and that’s the beautiful nature of human beings, because we’re trying to take my girlfriend over to America to be treated over there, and we’re having to raise a considerable sum of money, and we’ve actually had to ask people, for help
Now that’s something that’s a bit alien to me, is to ask people and say, you know, can you help me, can you help us
Maybe that’s an insecurity that I have
Bur we’ve asked for help and it’s been amazing to see people all over the world spread the world, donate some money
And I’ve been so touched by that
It’s so life affirming
It so, it gives us such great strength
Any my girlfriend and I have been
so touched by that
So what’s my point here ?
Recognize how important it is for all of us to support each other
Recognize how important it is to affirm each other
You know, that’s one of the most important human needs we all have;
affirmation, it’s the fact that, to take the time to recognize each other
Hello
How are you
I care for you
So, thank you so much for watching this, and if you want to help us out please just uh visit the web-site we’ve put together for Hannah
It’s just called Team Hannah . com, and on there you can see a little more about Hannah and what’s happened to her, and the treatment we’re looking for her to have, in America
So, I hope you all have a great day and please, take the time to be there for other people, to care for other people, because that’s what makes this world great
Thanks for watching
Bye, bye
======================================
v=p5tAeYsNOZQ?rel=0
======================================
——————————————————————
Hannah’s message [3]
——————————————————————
(3:02)
——————————————————————
Ok
So what’s your name ?
I’m Hannah Bradley, and I’m 27 years old, and I come from North Hampton
And what happened to you ?
I had a seizure in middle of the night and my partner tells me I was rushed to hospital
That was in February 2011
And from there I had lots and lots of tests, and they decided that I had a brain tumor, and they were going to operate, and they successfully operated on the 1st of April, 2011, and they, the biopsy went off to be um checked
I found out that I had a grade 3 tumor
I then, under, underwent a, I had a 6 week course of radiotherapy, and that left me with no hair, and can’t remember what else (laugh)
And um that I went under another MRI scan 6 weeks after radiotherapy and we, that again wasn’t particularly good news, and we found out that there was still remnants of the tumor, and the future for me is very uncertain
So what, what are you looking for ?
What are you looking to do ?
Um, I, sorry
What do you want Hannah ?
What is it you’re looking for ?
Um, mainly I, um, I can’t
You just want to live, right ?
Yeah
So what are you asking for ?
What, what, what do you need ?
I um, I need people to raise money, for, uh, my treatment
I’m looking to going to America because there are things that they can offer me here on the NHS or locally (?) is very, very limited, and there’s a doctor in Houston, and he’s able to help
So you want some help in raising some money, yeah ?
Yeah, it’s completely out of our reach to raise that much money, and it’s, I’d like help to raise the money
——————————————————————
9/17/2012
Monday, 17 September 2012 07:23 | Written by Administrator
Hannah Bradley
Hannah’s amazing story, fighting and winning over her Brain tumor (Anaplastic Astrocytoma) is available on her support site
Team Hannah
There are more videos by Pete and Hannah, documenting her fight and the Burzynski Clinic
======================================
[1] – September 28, 2013 “The Skeptics™” Burzynski discussion: By Bob Blaskiewicz – 2:19:51
====================================== BB – Bob Blaskiewicz
—————————————————————— DJT – Didymus Judas Thomas
====================================== 0:47:00
—————————————————————— BB – “Ummm, o-kay”
“Uh, I want to turn this over to the people who are watching”
“Um, I want to give them a a chance to address you as well”
“Uhmmm, hi everyone”
—————————————————————— 0:48:00
—————————————————————— 0:53:00
—————————————————————— BB – “A every time that I and and and and, and David (James @StortSkeptic the Skeptic Canary) points this out, that um, you you know you’re not going to speculate about the the FDA but then at every turn you’re invoking the FDA as being obstructionist“
—————————————————————— 0:54:02
—————————————————————— BB – “I, I just find that to be contradictory and and self-defeating“
====================================== DJT – Bob, exactly where did I invoke “the FDA as being obstructionist” ?
====================================== 1:02:00
—————————————————————— BB – “Um, it’s it’s it’s not the FDA’s, but you understand it’s not the FDA’s job to tell someone that their drug doesn’t work“
—————————————————————— 1:03:00
—————————————————————— BB – “it’s it’s it’s up to Burzynski“
“It’s up to Burzynski to show that his drug does work”
“And it’s always been his burden of proof“
“He’s the one that’s been claiming this miracle cancer cure, forever”
====================================== DJT – Bob, Burzynski showed and proved what he needed to prove to the FDA in order to do phase 2 clinical trials, 9/3/2004 – FDA granted “orphan drug designation” (“ODD”) for Antineoplastons (A10 & AS2-1 Antineoplaston) for treatment of patients with brain stem glioma, .10/30/2008 – FDA granted “orphan drug designation” (“ODD”) for Antineoplastons (A10 and AS2-1 Antineoplaston) for treatment of gliomas, and FDA approved phase 3 [1-2]
Oh, and Bob, exactly when did Burzynski 1st claim “this miracle cancer cure” ?
====================================== 1:04:02
—————————————————————— BB – “Um, that we’d love to see, however we can’t see, however we can’t see it because of proti protri proprietary uh protections that the FDA is giving to Burzynski, right ?”
“They’re not sharing his trial designs because they are his trial designs, right ?”
“That the makeup of his drug that he’s distributing are his, uh design, and his intellectual property“
“So the FDA is protecting him, uh from outside scrutiny“
====================================== DJT – Bob, you make it sound like it’s part of some grand “conspiracy” between Burzynski and the FDA to keep information from “The Skeptics™” [3]
——————————————————————
21CFR601
Subpart F–Confidentiality of Information
Sec. 601.50
Confidentiality of data and information in an investigational new drug notice for a biological product
(a) The existence of an IND notice for a biological product will not be disclosed by the Food and Drug Administration unless it has previously been publicly disclosed or acknowledged
====================================== BB – “While you may imagine that that, that that the FDA is is somehow antagonistic toward him“
“They’ve given him every opportunity, over 60 opportunities to prove himself worth uh their confidence and hasn’t“
====================================== DJT – Bob, that certainly explains the 9/3/2004 and .10/30/2008 ODD’s and phase 3 clinical trial approvals by the FDA – NOT [1-2]
====================================== 1:05:00
—————————————————————— 1:42:00
—————————————————————— BB – “I don’t, the thing is though that, that that’s a inver, shifting the burden of proof off of Burzynski”
“Burzynski has to prove them wrong, has to prove him right”
“The FDA is not there to say this doesn’t work”
====================================== DJT – Bob, who initiated and put into place the clinical trial hold ?
Burzynski ?
FDA ?
Both ?
====================================== 1:43:30
—————————————————————— BB – “So, I mean, honestly, um, saying “Well, when the F, FDA tells you that it doesn’t work, the FDA’s never gonna say that because that’s not their job“
—————————————————————— 1:44:00
—————————————————————— BB – “That’s not an option, because they’re never gonna do it“
“They relinquish, a lot of authority, over to Burzynski, and his Institutional Review Board, which, I would mention, has failed 3 reviews in a row” ====================================== Bob, where are the “final reports” for those “3 reviews” ? ====================================== BB – “Right ?”
“It is Burzynski’s job to be convincing”
“It is not our uh, uh, it it it he hasn’t produced in decades“
“In decades”
“In hundreds and hundreds of patients, who’ve payed to be on this”
“Hell, we’d we’d we’d like a prelim, well when you’re talking about something that is so difficult as brainstem glioma, that type of thing gets, really does in the publishing stream get fast-tracked there”
====================================== DJT – Bob, Burzynski has provided numerous phase 2 clinical trial preliminary reports, which our #fave oncologist has chosen to ignore [4]
====================================== BB – “they test it”
“Yeah, and they they they want uh, that was evidence of fast-tracking is what, that rejection was uh e was very quickly“
====================================== DJT – Bob, have you checked The Lancet Oncology [5] to see what was so much more important than Burzynski’s “phase 2 clinical trial Progression-Free Survival (PFS) and Overall Survival (OS) re patients 8 – 16 years after diagnosis, results” [6] and the Japanese antineoplaston study ? [7]
====================================== BB – “So, how long will it be before Burzynski doesn’t publish, that you decide that uh perhaps he’s he‘s, doesn’t have the goods ?“
“Um, so, uh, uh again, the FDA is not the arbiter of this“
“It’s ultimately Burzynski”
“You’ve been speculating about what the FDA’s motivation are like crazy”
“Why not speculate about Burzynski a little bit”
====================================== DJT – Well, how have I been speculating ?
====================================== 1:46:00
—————————————————————— BB – “Well actually I’m not even asking you to speculate about Burzynski, I’m only asking you to tell me, how long would it take, uh how, for him to go unpublished like this, um, for this long, before you would doubt it ?” ====================================== DJT – Note how, above, without proving it, Bob claimed “at every turn you’re invoking the FDA as being obstructionist”, and now, directly above, again, without proving it, Bob claims “You’ve been speculating about what the FDA’s motivation are like crazy” —————————————————————— DJT – what the journals keep saying, in response
====================================== BB – “What ?”
====================================== DJT – You know, are they going to give The Lancet response, like they did in 2 hours and such, saying, “Well, we think your message would be best heard elsewhere,”or they gonna gonna give The Lancet response of, “Well, we don’t have room in our publication this time, well, because we’re full up, so, try and pick another place”?
====================================== BB – “But these but but but that doesn’t have any bearing on“
“That doesn’t”
“Oh I’m not asking you how long, how long, would it take you for you to start doubting whether or not he has the goods ?“
“How long would it take ?”
“It’s a it’s a it’s a question that should be answered by a number uh uh months ?“
“Years ?”
“How long ?”
“It’s been 15 years already”
====================================== DJT – Well, you like to jump up and down with the “15 year” quote, but then again I always get back to, Hey, it’s when, when the report, when the clinical trial is done
—————————————————————— 1:47:06
—————————————————————— DJT – Not that he’s been practicing medicine medicine for 36 years, or whatever, it’s when the clin, clinical trial was done
====================================== BB – “I could push it back to 36 years”
“He hasn’t shown that it works for 36 years”
“I can do that”
“I was being nice” ====================================== DJT – Note how Bob acts like he’s been hit with “The Stupid Stick”
If he wants to go back “36 years”, I can refer back to 1991 (11/15/1991) – Michael J. Hawkins, M.D., Chief, Investigational Drug Branch, Department of Health &Human Services (HHS), Public Health Service, National Institutes of Health (NIH), National Cancer Institute (NCI), sent a 1 page Memorandum Re:
Antineoplaston to Decision Network, which advised, in part:
“It was the opinion of the site visit team that antitumor activity was documented in this best case series and that the conduct of Phase II trials was indicated to determine the response rate”[8] —————————————————————— DJT – The FDA A believes there is evidence of efficacy
====================================== BB – “Perhaps based on bad phase 2”
====================================== DJT – Well, we don’t know that
We don’t have the Freedom of Information Act information —————————————————————— DJT – Remember, Bob is the one who told me during the 9/28/2013 Google+ Burzynski Discussion Hangout:
“You’re you’re you’re assuming”
“You’re you’re you’re assuming that”
“You’re assuming that”
“Um, I’m not assuming that”
“There is a correct answer here”
“You don’t know”
“You don’t know”
“You need to look into it”
“Alright ?”
“Before you dismiss it you have to look into it”
“Everytime somebody throws uh uh something to me, I have to look into it”
“That’s just, it’s my responsibility as a reader”
“T t and what I would honestly expect and hope, is that you would be honest about this, to yourself, and and and that’s the thing we don’t, we often don’t realize that we’re not being honest with ourself“
“I try to fight against it, constantly”
Bob just ASSUMED that the FDA approved phase 3 clinical trials for Burzynski “Perhaps based on bad phase 2”, but tells me NOT to ASSUME ? ====================================== BB – “He withdrew”
“He withdrew the the phase 3 clinical trial”
“I that before recruiting,
although I’ve seen lots of people say they were on a phase 3 clinical trial“
“I wonder how that happened”
====================================== DJT – Well, we know what happened in the movie because Eric particularly covered that when they tried to get what, what, was it 200 or 300 something institutions to take on a phase 3, and they refused
====================================== 1:48:01
—————————————————————— BB – “Uh did do do you think that if they thought that he was a real doctor that they all would have refused like that ?“
====================================== DJT – Well, Eric gave the reasons that they said they would not take a particular uh phase 3
And so using that excuse that you you just gave there, I’m not even gonna buy that one, because that’s not one of the reasons —————————————————————— Note how Bob pulls out the old “if they thought that he was a real doctor” line ?
Is Bob now claiming that Burzynski is NOT even a “real doctor” ? ====================================== BB – “He’s changed things”
====================================== DJT – Eric said they gave
====================================== BB – “That The Lancet is a top-tier journal like New England Journal of Medicine“
“It’s basically be, besieged by uh 100′s of people submitting their, their, their reports”
“Um, it’s just, you know, let’s say he, someone has such a thin publishing record as Burzynski does, do you think that it’s likely that he will ever get in a top-tier journal ?“
“What about the the Public Library of Science?”
“It’s not the only journal there”
“What about BMC Cancer ?”
“There’s lots of places that he can go”
====================================== DJT – We’ll I’m
====================================== BB – “Um, and he doesn’t seem to to have evailed himself of that, as far as I can tell“
“And I would know because he’d get rejected, or he’d be crowing, you know”
—————————————————————— 1:49:02
—————————————————————— BB – “Either way, he’s gonna tell us what happens”
“He told us what happened with The Lancet, you know”
“I don’t have any evidence that suggests to me that he’s even trying” ====================================== Note how Bob refers to Burzynski’s numerous publications as “such a thin publishing record”
Bob, do I need to count all of these for you ? [9] —————————————————————— DJT – Well, I’m, I’m sure that they’re going to keep you appraised just like they have in the past, just like Eric has done in the past
So
I mean, we’ll see what happens with the Japanese study [7]
====================================== BB – “So let’s go back to this”
“How long will it take ?”
“How long will it take before you, the Japanese study’s interesting too because we should be able to find that in the Japanese science databases, and we can find, we can’t find it at all“
“We can’t find it anywhere”
“And, and those are in English, so it’s not a language problem“
“We can’t find that anywhere”
“We’ve asked”
“We asked Rick Schiff, for, for that study”
“And, and it hasn’t come to us“
“He is now I believe on the Board of Directors, over there”
—————————————————————— 1:50:00
—————————————————————— BB – “He should have access to this”
“We can’t get it”
====================================== Bob, did you ask:
1. Annals of Oncology 2010;21:viii221 ?
2. European Society for Medical Oncology (ESMO), Colorectal cancer, Abstract: 3558, May 17, 2010 ?
3. Colorectal Cancer Association of Canada, COLORECTAL CANCER RESEARCH, Month Ending June 19, 2009
11. Antineoplaston Therapy Doubles 5-Year Survival Rate Following Curative Resection of Hepatic Mets (May 27/09) pg. 5 of 20 ?
4. Kurume University School of Medicine (Japan) Department of Surgery ?
5. Hideaki Tsuda ? [7]
====================================== BB – “How how long will it take before you recognize that, nothing is forthcoming ?”
“How long would that take ?”
====================================== DJT – Well that’s like me asking “How long is it going to take for y’all’s, y’all‘s Skeptics to respond to my questions ?”
Because y’all haven’t been forthcoming
====================================== BB – “Well, I mean, were talking about a blog here“
“We’re talking about life”
“No, we’re talking about a blogger’s feelings in that case“
“In in this case we’re talking about, 1,000′s of patients, over the course of of of generations, you know”
“This is important stuff”
“This is not eh eh equating what’s happening to to patients with what’s happening to you is is completely off-kilter as far as I can tell“
“It’s nothing”
“It’s nothing like you not getting to say something on my web-site”
“You know”
“This is they they have thrown in with Burzynski, and they’ve trusted him, and he’s produced nothing“
“Nothing of substance”
—————————————————————— 1:51:00
—————————————————————— BB – “Nothing that that has made all of that um, uh, n nothing th th th that uh his peers would take seriously”
“The other thing that that that strikes me now is that, you know, you you you you keep saying that, well Eric is going to to share things with you”
“Does it ever concern you eh uh eh occur to you that Eric might not be reliable ?” ====================================== Bob, do you want to have a contest to determine which of you is more “reliable” ? ====================================== DJT – Well, he gave you The Lancet information and he posted the e-mail in the movie, and Josephine Jones posted a copy of it [6]
====================================== BB – “He then, and then he”
“And then he he, you know, the the the the dialogue that sprung up around that was, well see, he’s never going to get to get published”
“Well you’re just setting yourself up for wish fulfillment”
“You want him to be, persecuted, so you are ecstatic when he doesn’t get to publish, which is unfortunate for all the cancer patients, who really thought that one day, all the studies were going to be published”
—————————————————————— 1:52:00
====================================== DJT – Well, y’all are free to, you know, claim that all you want, because I don’t always agree with Eric, and uh, he’s free to express his opinion
====================================== BB – “Where has Eric been wrong ?”
====================================== DJT – Well I don’t necessarily believe, what Eric would say about, you know, The Lancet that refused to publish the 2nd one, for the reasons he stated, and which y’all have commented on, including Gorski
You know, I don’t necessarily agree with that
I am more agreeable to y’all, saying that, you know, they’re busy, they’ve got other things to do, but I’m kind of still laughing at their 1st response which he showed in the movie about how they felt about, you know his results would be better in some other publication
I thought that was kind of a ridiculous response to give someone
====================================== BB – “It’s it’s it’s it’s a form letter“
“You know”
“They’re just saying, “No thanks””
““Thanks, but no thanks” is what they were saying, in the most generic way possible”
“Like I said, they’re besieged by researchers trying to publish“
—————————————————————— 1:53:05
====================================== DJT – Well you would think that if its a form letter they would use the same form that they used the 2nd time
You know, they didn’t use the same wording that they used the 1st time
I would have think that, you know, their 2nd comment
====================================== BB – “So, so, possibly”
“So possibly what you are saying is that they in fact have read it, and after having read it they’ve rejected it”
“Is that what you’re saying ?”
“Because that’s what peer-review is”
====================================== DJT – Nah, I’m not saying that they did that all
I’m just sayin’, you know, that they gave, 2 different responses, and I would think that the 2nd one they gave
====================================== BB – “Do you know it was the same editor, that it came from the same desk ?”
“You can’t make that assumption that that the form letter will be the same form letter every time”
“I mean you just can’t“
“I mean in in some ways we have a lot of non-information that you’re filling in, with what you expect, as as opposed to what’s actually really there, and I I I just think you’re putting too much uh stock in one uh, uh, in in in in this uh the publication kerfuffle“
—————————————————————— 1:54:16
—————————————————————— BB – “Um”
====================================== DJT – Well I find it funny, something along the lines of, you know, “We believe your message would be received better elsewhere, you know
I don’t see that as a normal response, a scientific publication would send to someone trying to publish something
I mean, to me that sounds, like, if you’re doing that, and you’re The Lancet Oncology, maybe you need to set some different procedures in place, ‘cuz you would think that with such a great scientific peer-reviewed magazine, that they would have structured things in as far as how they do their operations
====================================== BB – “Well, not necessarily“
“I’ve been in any # of professional groups where the organization is just not optimal, and publications certainly th there are all sorts of pressures from all sorts of different places”
—————————————————————— 1:55:08
—————————————————————— BB – “I I have no problems whatsoever with seeing that this might not be completely uh um uh streamlining uniform processes as possible“
“The fact that it’s not uniform, doesn’t have anything to do with Burzynski not publishing, not producing good data”
“Not just going to a, you know, god, even if, even if, let’s put it this way, even if he went to a pay to play type publication where you have to pay in order to get your manuscript accepted; and he has the money to do this, it wouldn’t take that much, and he were to put out a good protocol, and he were to show us his data, and he would make his, his his stuff accessible to us, then we could validate it, then we could look at it and say, “Yeah, this is good,” or “No, this is the problem, you have to go back and you have to fix this””
“Right ?”
“So we really, every time we talk about the letter that he got, yeah that doesn’t have much to do with anything, really”
—————————————————————— 1:56:02
—————————————————————— BB – “We wanna see the frickin’ data”
“And if he had a cure for some cancers that otherwise don’t have reliable treatments, he has an obligation to get that out there anyway he can“
“And if if peer-review doesn’t, you know, play a, if peer-review can’t do it, you know, isn’t fast enough for him, then he should take it to the web, and he should send copies out to every pediatric, uh, you know, oncologist that there is“
“That’s the way to do it”
====================================== DJT – Well, I’m sure, I’m sure Gorski would have a comment about that, as he’s commented previously about how he thinks uh Burzynskishould publish
====================================== 1:57:10
—————————————————————— BB – “It’s the, it’s the data itself“
“If if Burzynski is is, is confident in his data, he will put it out there“
“Right ?”
“One way or the other”
====================================== DJT – Like I said before
Like I said before on my blog, you know, even if Burzynski publishes his phase 2 information, Gorski can just jump up and down and say, “Well, that just shows evidence of efficacy, you know, it’s not phase 3, so it doesn’t really prove it”
—————————————————————— 1:58:04
—————————————————————— DJT – So then he can go on, you know, for however many years he wants to
====================================== 2:01:00
—————————————————————— BB – “Um, almost no treatment goes out without trials“
“Massive amounts of data are required” ====================================== Bob, do you think that’s the 2.5 million pages of clinical trial data that Fabio said Burzynski sent to the FDA ? [10] ====================================== 2:02:00
—————————————————————— BB – “Uh, in in in that sense, you know, uh all the the the, you know, kind of back-peddling and and and trying to defend him is is going to, not going to help his case at all“
====================================== Bob, exactly where did I exhibit any “kind of back-peddling” ?
====================================== 2:03:03
——————————————————————
BB – “You are, honestly as far as I can tell you are doing the um, you know, you’re you’re ah throwing up uh, uh, uh, you’re giving me another uh invisible dragon in the garage, um”
====================================== DJT – Well y’all, y’all can call things what y’all want
I mean, y’all can give these, fallacy arguments and all that garbage that y’all like, because that’s what y’all like to talk about instead of dealing with the issues
I mean, Gorski doesn’t want to deal with the issues
====================================== 2:04:11
—————————————————————— BB – “Okay, so”
“What you’re telling me is that you trust the FDA to to be able to tell you when he’s not doing, good science, but also that you don’t trust the FDA”
“Do you see an inherent conflict there ?”
====================================== DJT – How did I say I, I didn’t trust them ?
====================================== BB – “Well, when I, whenever I would ask about, like, why would these trials aren’t happening uh and, you know, you say well the the FDA’s arranged it“
“The FDA’s in control”
“They sign off on these things”
“But they’re they’re they’re they’re at the same that they’re, they’re trustworthy they’re also not trustworthy depending on what you need for the particular argument at the time“
—————————————————————— 2:05:12
—————————————————————— BB – “You’re suggesting that they’re untrustworthy”
====================================== DJT – No, I’m just sayin’ that I’ve raised questions and none of The Skeptics wanna to uh talk about ‘em [11]
====================================== BB – “Do you know that the FDA pulled out of the prosecution ?”
“Did you know that the FDA pulled out of the prosecution um of his criminal case, because they were backing a researcher ?” ====================================== Bob, would that “researcher” be Dvorit D. Samid, who was in Burzynski: Cancer is Serious Business (Part I) ? —————————————————————— DJT – Well, we know a lot stuff they did, but that still doesn’t impress me that they pulled out of the prosecution
I mean
====================================== BB – “Yeah, the the the it wasn’t the FDA who was pressing charges, it was a Federal prosecutor“
====================================== DJT – Right
====================================== BB – “Right”
“And and, they declined to provide information that the prosecution needed“
“That’s important”
“That that that’s really important“
“That he has been given the benefit of the doubt, and he has come up wanting, for decades now”
====================================== DJT – Well I find it interesting a lot of this uh, a lot of these letters that were provided between, you know, the government and Burzynski, when the uh phase 2 study was going on, at the behest of the NCI
You know, anybody who reads that stuff knows, that when you just ignore the person that’s been doing, do treating their patients for 20 something years, or close to 20 years, and you change the protocol without his approval, and you don’t use the drugs in the manner that he knows works
====================================== 2:10:15
—————————————————————— BB – “One of the interesting things about Doubting Thomas that I think you should definitely consider for yourself, is that at some point, when faced with the real opportunity to prove or disprove his assertions, he doubted himself”
“And that’s important”
“And that’s where you’re falling short in the analogy”
====================================== DJT – Well, I think The Skeptics, Skeptics are falling short because, you know, they don’t own up to
====================================== BB – “I’ve laid out exactly what it would take for me to turn on a fucking dime”
“I have, I have made it abundantly clear what I need“
“Gorski has made it abundantly clear”
“Everybody else, Guy, and David, and Josephine Jones, uh, the Morgans, all of them have made it abundantly clear, what it would take to change our minds, and you’ve never done that”
—————————————————————— 2:11:02
—————————————————————— BB – “And even in this, this was an opportunity to do that“
“To come up with a basis for understanding, where it’s like, you know what, If we can show this, you know, if we can show a this guy, that, that, there, that his standards are not being met, then, you know, we could possibly have some sort of ongoing dialogue after this”
====================================== DJT – So I can say that since the Mayo Clinic (Correction: M.D. Anderson) finished their study in 2006, and it took them until 2013, to actually publish it, then I can say, well, Burzynski finished his in 2009, which was 3 years later, which would give Burzynski until 2016
====================================== BB – “Why wasn’t that study”
====================================== DJT – for me to make up my mind (laughing)
====================================== BB – “Why wasn’t that, that that that, still . . again, it it doesn’t seem really to to approach the the the, main question here“
“You know, um . . what are the standards that you have that it isn’t, what are your standards to show that it isn’t efficacious ?“
—————————————————————— 2:12:05
====================================== DJT – Well I can say, well I’m going to have to wait, the same amount of time I had to wait for Mayo (Correction: M.D. Anderson) to publish their study; which was from 2006 to 2013
====================================== BB – “Why was the Mayo”
“Why was the Mayo (Correction: M.D. Anderson) study delayed ?” ====================================== Note how Bob ASSUMES that the publishing of the final results of the M.D. Anderson study were delayed —————————————————————— DJT – How do you know it was delayed ?
====================================== BB – “Well you said you had so many years before you finish it and go in”
====================================== DJT – I mean, has anybody
====================================== BB – “Why, why did it take so long ?“
====================================== DJT – done a review of when a clinical trial is studied, and completed, and how long it took the people to publish it ?
You know
If they could point to me a study that’s done that, and say, well here’s the high end, here’s the low end of the spectrum, here’s the middle
====================================== BB – “I have something for you, okay ?”
“Send me that”
“Could you send me that study the way that it was published because um, just just send me the final study, um, to my e-mail address”
====================================== DJT – Sure
====================================== BB – “Um, because, I can ask that question of those researchers, why was this study in this time, and what happened in-between”
—————————————————————— 2:13:03
—————————————————————— BB – “Why did it take so long for it, for it to come out”
====================================== DJT – Sure, but that’s not gonna, you know like, answer an overall question of, you know, somebody did a comparative study of all clinical trials, and, when they were finished, and at, and when the study was actually published afterwards
You know, that’s only gonna be one, particular clinical study
====================================== BB – “Right”
“Um, but it it would, perhaps, answer the question; because you’re using it as an example on the basis of which to dismiss criticism, whether or not, uh, it is the standard, and therefor you’re allowed to accept that Burzynski hasn’t published until 2016, or, um, it’s an anomaly, which is also a possibility, that most stuff comes out more quickly“
====================================== DJT – Well, we know that the Declaration of Helsinki doesn’t even give a standard saying, “You must publish within x amount of years,” you know ?
So, I’ve yet to find a Skeptic who posted something that said, “Here are the standards, published here”
====================================== 2:14:07
—————————————————————— BB – “I I, yeah, the other thing that David James points out is you know, why 2016 when he’s had 36 years already ?“
====================================== DJT – Again, we get back to, when the clinical trial is finished, not when Burzynski started
====================================== BB – “Treating people”
====================================== DJT – I mean, you would expect to find a results to be published after, the final results are in
====================================== BB – “You would expect the Burzynski Patient Group to be a lot bigger after 36 years, and in fact is
====================================== DJT – You would expect some people would want to have confidentiality, and maybe not want to be included
====================================== BB – “So, if you’re unsure about this stuff, if you’re unsure about the the time to publication, why are you defending it so hard, other than saying, “I don’t know, I really need to”
====================================== DJT – Why am I unsure ?
====================================== BB – “Uh about the
====================================== DJT – (laughing) I just gave you an example
====================================== BB – “The reasons, the reasons for which that he’s, no, why are you defending him so hard, when you’re unsure ?
—————————————————————— 2:15:02
====================================== DJT – Oh, who said I was unsure ?
I just gave you an example
—————————————————————— Note how Bob ASSUMES that I’m “unsure” when I had the same answer since 0:32:07 [12]
“Before you dismiss it you have to look into it”
——————————————————————
1:13:00
—————————————————————— “Everytime somebody throws uh uh something to me, I have to look into it”
“That’s just, it’s my responsibility as a reader”
“Um”
——————————————————————
Well you didn’t when I tried to get you to do stuff the 1st time, did ya ?
—————————————————————— “What, what stuff would you like”
——————————————————————
(laughing)
—————————————————————— “What stuff would you like me to do ?”
“I generally, I don’t read your blog”
——————————————————————
Well I, the most, the mostly, excuse me, the most recent article I posted on there is the one about this particular conversation, where I went through all your comments that you had posted, and my response to them
And so I tried to consolidate everything into one, particular article
—————————————————————— “Uh um, alright“
——————————————————————
And that’s the newest article
—————————————————————— “Okay, I’ll look at that, and I will respond to it once I’ve taken a look at that, okay ?“
“Um, and I’ll respond on your web-site“
“Um, seems only fair“
——————————————————————
1:14:00
——————————————————————
2:09:00
—————————————————————— “I’ve made it very clear that he just needs to have a completed study published and replicated before I support his right to go out and charge people what he’s charging for these, for these drugs, and I’m I’m just not seeing that here with you, and I I wonder what could come from, and don’t worry I will go to your site and I will comment on on on what you’ve run“
——————————————————————
2:10:15
——————————————————————
2:18:00
—————————————————————— “Um, I, uh, wanna thank you for coming on here”
“I wasn’t sure that you would actually do it”
“Um, I’m glad that you did”
“I’m glad that we talked”
“Um, I will look at your web-site, and we will, uh, we, uh, you, oh make sure that I I go to your blog and and I talk there“
——————————————————————
2:19:00
—————————————————————— #EPIC #SKEPTIC #FAIL
“Um, alright then, this is your chance t, there are lots of people have lots of questions about me out there”
“Uh, about what my motivations are and such”
“I might as well put that out on the table just so it’s on the record, is that I am taking exactly no money from anyone for this, and have gotten nothin’ but grief from a lot of people, even people who (laugh), even people who support me have given me grief for this“
——————————————————————
1:22:02
—————————————————————— Bob, is that because you LIE ?
I fielded ALL of your questions within 2 hours,15 minutes, and 51 seconds, answering each question within about 1 to 10 seconds of the question being asked
You, on the other hand, have NOT even been able to answer ONE of my questions over a 14 day time-period; while you have had NO problem whatsoever, interjecting your twits on Twitter
——————————————————————
All comments by Professor Robert J. (Bob) Blaskiewicz of University of Wisconsin, Eau Claire “fame” should be considered as likely LIES until such time as he keeps his word to respond on this blog, to criticism of him on this blog
—————————————————————— “I hope somebody is writing all this down out there, so that we can go back and look at these claims later, right ?”
——————————————————————
1:19:00
—————————————————————— Seriously, Bob ?
Do you really think one of “The Skeptics™” was going to write all this down, when none of them showed that they had written down much of anything of much note about Burzynski 2 when they attended the screenings ? 🙂
—————————————————————— *Some words may or may not be missing, but it doesn’t take away from the final result
I will be adding separate critiques that break this down into manageable parts, but wanted to have entire video comments altogether here
——————————————————————
(0:04:38)
—————————————————————— Are you there ?
——————————————————————
Yes
—————————————————————— Okay, we might as well get started if were going to do this
——————————————————————
Okay
——————————————————————
(0:05:00)
—————————————————————— Alright, so ummm I guess we can start with uhhh bit of a conversation [0]
Uhhh
You’ve been on the Burzynski Hashtag for a long time – what’s you’re motivation ?
——————————————————————
Well as I put in my about page, I agreed with the juror that he was neither guilty or innocent [8]
So, so since I see all this opposition by these Skeptics, and I see that the they’re getting all of their facts straight
(Freudian sarcasm slip)
I decided to take the position of being a Skeptic Skeptic
In other words I am skeptical of Skeptics who do not fact-check their information before they post it on social media
—————————————————————— Okay
——————————————————————
And since I see ahhh y’all pretty much trying to take over the net with y’all’s information I decided to come back and correct all the false information that was being put out by other Skeptics
—————————————————————— So what information have Skeptics posted that they uhhh that they missed that demonstrates that Burzynski’s uhhh treatments are effective ?
——————————————————————
(0:06:00)
—————————————————————— What, what have we missed ?
——————————————————————
Well the major issue is that the FDA’s own information says if phase 3 trials are approved – phase 2 trials is to see if there’s evidence of effectiveness
And so if phase 3 trials are approved, that means you’ve provided evidence of effectiveness
That’s the FDA’s own information – I have that clearly on my blog [9]
Also the FDA has given Burzynski uhhh Orphan Drug Designation in 2004 for uhhh brainstem glioma and then in 2009 for all gliomas [10]
So that must mean that there is evidence of effectiveness, otherwise I don’t think they would be doing that
0:07:00
—————————————————————— Well okay, uh one of the issues that Skeptics have with Burzynski is that in order to, let’s say, elevate uh the profile of his drug, in order to make sure that everybody who needs it can get, is to complete a phase 3 uh trial uh he started uh I believe was it just the one, right ?
Uhmmm, and that’s gone nowhere
In fact, it was withdrawn this I think within the last week
It doesn’t look like its going to happen, and this is, you know, for all the the phase 1 and phase 2 trials, those are very preliminary trials
——————————————————————
(0:08:00)
—————————————————————— Uhmmm, the phase 3 is is will be the gold standard, and also the bare minimum that that the larger medical community will accept uhhh as evidence, so it’s like you’ve lowered the bar for for evidence in a way that that you know oncologists don’t
——————————————————————
Well the issue is he was given 2 phase 3 trials that we know of
One was on uh Clinical Trials . gov – the one about eye cancer
—————————————————————— The the
——————————————————————
The vision cancer
—————————————————————— Right
——————————————————————
And then the other one was not posted on there, but then again the FDA has said, and I posted this on my blog because I specifically contacted and asked them and they said we don’t post all clinical trials on our web-site [11]
—————————————————————— (Correction: NCI)
——————————————————————
And so he obviously had that other one about brainstem glioma, that he was trying to get started [12]
But the other issue is that Skeptics have posted on there that he could not get that accelerated approval until he had published a phase 2 trial and that is exactly not the case because other drugs have been given accelerated approval before their results were published in phase 2 clinical trial publications, cuz, so that question remains as well [13]
(0:09:00)
——————————————————————
9:13
—————————————————————— So, do you think that there is a uh uh conspiracy to keep Burzynski from publishing ?
——————————————————————
Well, what we do know is that in the movie, Merola showed that one page rejection from The Lancet
—————————————————————— Right
——————————————————————
where Burzynski was trying to show his results from like 8 to 16 years, and they said we think your uh publication would be seen best elsewhere, or some ridiculous statement like that
And so, I thought that funny of The Lancet[14]
Of course, I understand their 2nd response, which came out, which Eric posted on his Facebook page, y’all, that y’all have talked about – that, you know, they’re busy, they get a lot of
submissions
——————————————————————
(0:10:00)
——————————————————————
I understand that, so obviously he would have to look for a different publication for both of those, things he’s trying to get published
—————————————————————— Clarification: Burzynski and Tsuda
—————————————————————— Right
So, uhmmm, as far as I understand it The Lancet, uhhh the the question of The Lancet publication ehhh is par for the course, that most people are, when they get a speedy rejection from a uh uh, uh journal, are actually uh grateful, because that means there allowed to go ahead and submit their material to another journal more quickly and get it out there
Uhm, but the reaction that we saw on the side of the Burzynski camp was that, see, they’ll never publish us
——————————————————————
(0:11:00)
—————————————————————— Uhm, which is, eg, taken as far as I can tell as evidence of a conspiracy or that his name is is poison uh I mean, I think it is, but uhmmm, that wasn’t indicated in the in the rejection letter in order to uh claim that it is is to go beyond the evidence which again we’re not really willing to do
So, uhmmm what is the the ration the the something that I think a lot of of a lot of The Skeptics have been curious about when it comes to your your your blog and your behavior on-line uhhh is that that that, that the format of your blog does not make sense to us, we don’t understand exactly what you’re trying to do with it
Could you kind of clarify that for us because it’s uhhh long and it’s it’s intense and there’s a lot of emotion behind it but we don’t understand exactly, what it’s supposed to mean
——————————————————————
(0:12:00)
——————————————————————
Well a lot of the time I’m making fun of y’all’s favorite oncologist, the way he words his blogs, and uhmmm I cite specifically from the FDA, from from the National Cancer Institute, from these other scientific sources, from scientific publications
I give people specific information so they can fact-check me, unlike a lot of The Skeptics who just go out there and say things and publish things on social media, they provide no back-up for their uhhh sayings
And so when I critique an oncologist or any other Skeptic I always provide source material so people can always fact-check me and I specifically said that people should fact-check everything ummm that the oncologist should say because he has, I’ve proven him to be frequently incorrect about his information and misleading
——————————————————————
(0:13:00)
——————————————————————
And so I’ve tried to add those things and allow people to search, on specific things like publications, or what I posted about The Lancet, or specifically about The Skeptics, or specifically about the oncologist
So whenever I see something posted new on Twitter, by y’all, sometimes I’ll check it out and sometimes I won’t, and sometimes I’ll comment on it
—————————————————————— Alright, ah have you read The Other Burzynski Patient Group ?
——————————————————————
I was, on there just yesterday to see some more of your post on there [15]
—————————————————————— So, ahmmm what is your response say to the story of Amelia Saunders ?
——————————————————————
Well the thing is, when you accepted this hangout, I published my newest blog article and I specifically listed all the information I had critiqued from you previously including Amelia, and I posted the specific Twitter responses by BurzynskiMovie; which is probably Eric, to your issues with Amelia, and he disagrees with what the oncologist posted, and so I pretty much let his Twitter responses stand to what the oncologist said [2]
——————————————————————
0:14:24
—————————————————————— Okay, what part of, what did I get wrong ?
——————————————————————
Well I also did a critique of the newspaper story that was put out about Amelia in the U.K. [16]
And they had 2, 2 patients that were dealt with
And
—————————————————————— Uh was that Amelia and Luna ?
——————————————————————
I believe, yes
—————————————————————— Luna was the other one, correct[17]
——————————————————————
And one of the patients, Burzynski has specifically published in one of his scientific publications that maximum dosage is not reached for a month
——————————————————————
0:15:00
——————————————————————
So if someone, so if someone only goes in there and has treatment for a month, they’re not even, you know, they’re finally going to reach the uh maximum dosage [18]
And I think that was maybe the case with Luna, I think she was only there for a month
Oh, I, you’re talking, oh this is one of the very 1st ones that we did on the, on the site
Uhmmm, oh, her name is, her name escapes me at the moment
Um, but she wasn’t there for for very long but uh her condition deteriorated very rapidly
Uhmmm, and one of the questions that we had, we raised, is is, you know, you you don’t need to reach full dosage ’cause the the full dosage for these ANP seem to be pretty high, at least the sodium load that that that patients are asked to to carry, or required to carry if they they go on it
And we wondered if the sodium load was ah to great for someone who has a brain tumor, I mean uh, you know uh sodium load will increase your blood pressure, and these people have extra things in their brains that probably won’t react well to swelling, right, and and wont react well to pressure, so we were wondering, if in fact you don’t have to reach the full dosage in order to have uh severe side effects
——————————————————————
(0:16:00)
—————————————————————— Ummm, you know maybe you haven’t reached a therapeutic dose level, but that doesn’t mean that it didn’t have an effect on her
And you can clearly tell, that, you know in the videos, well at least the videos before the family took it down, that she was lethargic and a little bit out of it, she uh the the difference in her conscious state was no noticeable for anyone to see
Ummm, to, you know where she had been up and about to in her bed kind of slurring and and, and and and, in fact just disoriented, just looked like someone had taken the piss out of her
——————————————————————
0:17:00
—————————————————————— I mean, ummm, so that’s, that one, ummm, you know the critique that, reaching therapeutic levels and having a biological effect on someone are are clearly different things in her case
Uhmmm, now I never went on you know on to say ummm that uh she had uh reached therapeutic levels
Uhmmm, I I think as far as I went was that she went, she paid her $30,000 dollars and then she died
Uhmmm, and and and what part of that’s not true
——————————————————————
Well my only thing is, uh, we know that sometimes he will go to a maximum dosage, or you know, the suggested dosage, but he will back down off it, in fact in the uh adverse effects you mentioned those are specifically adverse effects mentioned in his publications, and when that happens normally they will subside within 24 to 48 hours is what it says once you take them off the treatment and let, you know, those conditions take care of themselves, and then you will slowly raise the medication again [19]
0:18:33
——————————————————————
So, you know, it just didn’t tell, if only one month of treatment was enough to even start to do anything for her [20]
—————————————————————— Okay, so, um, going back to Amelia, um, some of the the most um I think the most serious charges is that we see a uh repeatedly in his uh uh stories of his patients, um those are all cited, those are all backed uh by, you know, um at least as good as anything the Burzynski Patient Group has ever done
——————————————————————
0:19:11
—————————————————————— Uhmmm, something that we see over and over are patients reporting over and over that signs of getting worse are signs if getting better
Um, in particular a, uh report that’s very common from from patients is that the center of their solid tumors are breaking up
One of the problems that we we we see is that that is more frequently a sign of ischemic necrosis that the tumor has outgrown its blood supply and that it’s dying on the inside
And when you see something like a 5th of the patients who we’ve been able to to document, reporting this excitedly, we get extremely concerned about what’s happening
——————————————————————
0:20:02
—————————————————————— Uhmmm, what part of that is not absolutely terrifying to you
——————————————————————
Well the thing is, the FDA has approved phase 3 <strong[12]and also given them the Orphan Drug Designation, which means they should have some knowledge about what’s going on, I would think [10]
Plus we don’t know for sure, we’ve heard about, ummm, some of the things supposedly the oncologist has talked about, which is cutting off the blood flow, to the tumor, which is something that some uhhh drugs can do, and I think that’s one of the things Burzynski has tried to do, ah he’s specifically mentioned it in his personalized treatment
But I don’t know for sure if it’s also something that’s done with the ANP’s in just the clinical trials environment
——————————————————————
0:20:02
——————————————————————
So, that could be a possibility
—————————————————————— Well, the the yeah I’ve never seen anyone say that the purpose of the antineoplastons is to cause uhhh, you know, to restrict the blood flow to the tumor and and and uh cause it to die that way, which is certainly one therapeutic approach that’s been, that’s been floated and research has been done on uh and might even be promising and uh what he’s saying is that cancer is caused by a lack of antineoplastons in the system and that basically what he is doing is antineoplaston uh uh supplement therapy uh rath, what’s the word I’m looking for, uhm uh, replacement therapy
Uh and there isn’t a doctor on the planet, uh not a medical specialist on the planet, who, I, who has identified at at as a contributing factor as a contributor to cancer or antineo or lack of antineoplastons
So
——————————————————————
Well
—————————————————————— Why isn’t he, you know, you understand that these doctors, ummm like nothing is true or false because a doctor says it is true or false
——————————————————————
0:22:26
—————————————————————— Uhmmm it’s it’s it but when the entire medical community uhhh who are des are desperately are are every bit as tired of seeing patients die uhmmm and seeing patients suffer or as anyone else’s families are you you imagine what an oncologist sees in that office over the course of of a year and there’s going to be unimaginable suffering
I’m sure that they’re tired of that
And that they would, you know, that if there was the slightest hint that antineoplaston deficiency was a cause of cancer that it would make it into the literature, with or without Burzynski
——————————————————————
0:23:10
—————————————————————— Uhhh ummm, why should we trust him when he has uh the sole uh the only person who had identified antineoplastons as a contributor to cancer when he is the sole manufacturer of the of the therapy uh when he is the uh sole prescriber of the therapy and when he is, where the sole distributor of the therapy from his pharmacy
——————————————————————
Well what I find interesting about these other doctors is like like the doctors mentioned in the movie and BBC Panorama’s report and in some of these newspaper articles where they are mentioned again is that these doctors never do a review of Burzynski’s scientific publications and including our favorite oncologist who refuses to do so [20]
Oh yeah he says he’s read everything but uh you know he claims that he’s uhmmm reviewed, reviewed uh Burzynski’s personalized gene targeted therapy but he, but then just a few months ago he admitted, you know, I don’t know where Burzynski says which genes are targeted by antineoplastons [22]
And I pointed out which specific publications that Burzynski published, publications which specifically mention which genes are targeted by antineoplastons, and I said how can you claim that you’ve read and reviewed every Burzynski publication and you didn’t know which genes are targeted by antineoplastons when that’s specifically in the publications ? [10]
To me that tells me that you do not know how antineoplastons work be because you just admitted you don’t know which genes Burzynski talks about
I mean that’s just funny as heck to me that he would say that
——————————————————————
0:25:07
—————————————————————— Can you go ahead and send me that link that that I saw in the chat that you had uh posted a couple of times in the chat
Could you send me that link, to that publication
I can give you a minute to to go find it if that’s
——————————————————————
Well I’ve, I’ve got it on my blog
Uhm
I mean I can forward it to you at some point
—————————————————————— That would be good
Uhmmm
——————————————————————
But I agree with you about I don’t remember seeing anything about antineoplastons cutting off the blood flow to the, you know the blood brain barrier for sure either
—————————————————————— Well, yeah that’s a, that’s you know one of the major problems that this this cancer has is the location is such a pain to get to
Uhm, and often when we are talking about these cancers, the thing that gets me over and over and over, and this is something that I’ve learned from from working uh with others on the Burzynski Patient Group is what’s it like to be a cancer patient, only by proxy, man I couldn’t imagine really going through this myself, and, you know I’d hate to see my family go through this
——————————————————————
0:26:22
—————————————————————— That these people are at what could be described as a low point, they’re um uhhh, you get a diagnosis of uh brainstem glioma the prognosis is very bad
Uhmmm, there are only a few cases of people recovering from that, I mean they’re there uhm uhhh but, you know that it’s an, it’s an extremely grim prognosis
Uhhh and I worry that when they’re in that desperate state and especially let’s talk about the children, you have these kids who are uh you know 2 and 3 and have had this, you know uh awful diagnosis and the parents are willing to do literally anything to keep their kids alive
——————————————————————
27:16
—————————————————————— What protections are in place for patients as far as that these kids are and and their parents are protected
——————————————————————
0:27:30
——————————————————————
Well I think i know the point that you’re getting at uhhh about the IRB’s and all that good stuff
All I can say is that, you know the FDA can come in with any amount of investigators and say that you did this or that but you have the opportunity to respond, and so they can pretty much say anything, it’s only when the final report comes out that you can take that to the bank
And so all this speculation about what a investigative team may say about the clinic is, to me just like someone going into a lawsuit and saying so-and-so did this, you know, can you prove that, you know, did so-and-so do that [23]
——————————————————————
0:28:09
——————————————————————
So it’s the same thing with the FDA, these um little reports, the final report is what counts, and so, also what I find interesting is some of Burzynski’s publications specifically said, you know this particular uh clinical trial, the IRB was agreed upon by the FDA [24]
Well if if the FDA agreed upon it, you know, then some questions should arise about exactly what did the FDA agree upon
What would we find out from a Freedom of Information Act request on that ?
And, and what I also found interesting is when I did research on other clinical trials for brainstem glioma I found, you know, all these other science based medicine studies where 374 children had died in their studies [25]
——————————————————————
0:29:00
——————————————————————
And what I found interesting is back in 1999, they reported on a clinical trial, they had better results then all these clinical trials afterwards [18]
—————————————————————— Who had the better results ?
——————————————————————
Well, I would have to find you one, there were like 3
—————————————————————— Okay
——————————————————————
There were like 3 major ones that Burzynski has mentioned in his publications to cross-reference his trials versus their trials as far as the results
And so, I, there was one back in 1999 that had better results than a lot of these clinical trials that come afterwards
So when we talk about, you know, what’s really right for the patients well we can see that the drug companies want to test their drugs through clinical trials and, you know, and if your kid dies, well, unfortunately the kid dies
Even though we showed better results in 1999 with a different type of treatment, you would have thought that maybe they would have poured more investment into that particular treatment but that’s not necessarily how the clinical trial system works
——————————————————————
0:30:00
—————————————————————— Hmmm, yeah, the, Guy Chapman has just um uh tossed in a a, a comment
I guess uh that there are a lot of people who wanna talk to you (laughter)
Uh, Guy Chapman has just jumped in and said it looks like you forgot the phase 3 trial is withdrawn and none of the phase 2 trials were published
Uhmmm, this, this is not a minor thing for for for Skeptics
This, this is exactly what will convince us to get on board the Burzynski train is the publication of these trials
But even the preliminary trials, one has been finished, and none has been published in its entirety for over 15 years
When you consider that this is a, as you just pointed out, this is a a cancer, the, especially the brainstem gliomas
That these cancers uh the cases resolved fairly quickly, we know what the outcome are fairly quickly
——————————————————————
0:31:00
—————————————————————— Ummm, do you have any sense of when these trials are going to be published ?
——————————————————————
Well here’s my point, I mean, y’all probably get a better sense from, ummm, Hymas, about what’s going on with that
—————————————————————— From Laura ?
——————————————————————
From her uh fiancé, or husband, whatever his status happens to be right now (laugh)
—————————————————————— Right
——————————————————————
And uh also from Ric, uh they’re more closer to Burzynski than I am, because I have never met Burzynski, I have never e-mailed Burzynski, uhmmm never talked to Burzynski, never met him, blah blah blah
Uh, my sense is that since 1996 when the FDA talked about antineoplastons, that specific FDA Commissioner that was in charge at the time, he set out 7 major points about how there was going to be less people required and there was going to be less paperwork, there was going to be less stringent things about Partial Response [26]
——————————————————————
0:32:07
——————————————————————
And so, to me, the FDA is the final source to go to when people want to complain about how long their trials have lasted uh because the FDA is bottom line, you know, in charge of that
And
—————————————————————— When you, when you think about a major, sorry, go ahead
——————————————————————
And my other point is that, uhmmm, when these trials finish, as I’ve pointed out on my blog, M.D. Anderson finished a trial in 2006 and didn’t publish the results electronically until January of this year [27]
So, just think
Burzynski’s 1st trial we know that finished in 2009
So we would still have more years to go before he caught up to M.D. Anderson as far as publishing
So for him to actually be trying to publish stuff now and The Lancet not publishing because they have other stuff to do, put in there, that’s understandable
——————————————————————
0:33:03
——————————————————————
So, we know that he’s trying to publish, uh but they’re going to keep it close to the vest obviously, from, from how they do their things, and where they’re trying to publish
And plus, like I’ve said before
—————————————————————— Yeah, right, uh
——————————————————————
We’ve still got the accelerated approval thing that’s out there, you know, like the FDA’s given Temodar and, and Avastin, and another drug, whereas they’re not doing the same thing for antineoplastons, eve even though for all intents and purposes from what we know, antineoplastons have had better success rates than Temodar and Avastin when they were approved [13]
—————————————————————— Antineoplastons has a better rate ?
——————————————————————
Well from the information that’s been published in certain um publications
—————————————————————— Right
——————————————————————
And in, and in not only Burzynski’s but elsewhere in, in newspapers or articles, or such like that
—————————————————————— Right, one of the things that that there there are 2 points to be made here
Uhm, the 1st one is that major pharmaceutical companies that are getting this accelerated approval have a track record of producing results which Burzynski does not have
Secondly, when it comes to ummm the rates of antineoplastons, how can we possibly say without a single published trial he, that he has an improved rate over Temodar or anything like that, and that’s exactly what would show to us whether or not his rate is better, the the types of publications that he’s done, that look really good on paper, ummm, to the to the, the common persons eye are these case series where he goes through and picks out people who have happened to have survived
——————————————————————
0:34:47
—————————————————————— But what that doesn’t tell us is whether or not the antineoplaston had anything to do with it
What you need to do is go and separate the background noise, the random weird rare but very real survive, unexpected survivals that occur, and separate those, uhhh, from any effect of antineoplaston, he’s never done that
——————————————————————
0:35:10
——————————————————————
Well what I found interesting is when the FDA approved these other 1 or 2 drugs, some of them specifically said that, uhhh, some of these drugs had, you know, better survivability or they showed no better rate than any previous treatment but we’re approving it anyway [13]
Basically that’s what the publication said and I published this on my blog in an article specifically about, you know, those 2 or 3 drugs that the FDA approved for brainstem or brain related cancers [28]
And so, you know, I’m not going to buy that argument about that, about that specific thing
—————————————————————— But if you think about that, I mean that if it does have a a an improvement rate above uh other treatments
——————————————————————
0:36:03
—————————————————————— That still has an improvement rate, you know, that, that would give another option to people, ummm, even if in the aggregate their rates aren’t better
It might work on some individuals tumors rather than on, you know, you you it it is it taken as a, as a lump but extend life by uh quality of life for 3 months or something um in some cases but, you know, it it still has an effect, a real effect, and deserves to be out there
——————————————————————
Well one of these newspaper articles specifically said, you know, Avastin would maybe keep you alive for maybe 4 more months
So, you know, take that [2]
—————————————————————— That’s a long time when someone is dying
——————————————————————
Well, we can wonder if some of Burzynski’s results are the same, otherwise why would the FDA say, you know, give the ODD [10], why would the FDA give the phase 3 approval [12]
——————————————————————
0:37:02
——————————————————————
Plus I don’t buy some of these doctors coming out and saying stuff, they have the opportunity just like the other doctors in Egypt [29], in Russia [30], in Germany, in, in Poland [31], in China [32 – 33], in Taiwan [34] that have done antineoplaston studies, I’m like, these people can do antineoplaston studies so what’s the excuse for all these other doctors who say that they supposedly can’t do them
You know, the information’s out there and
—————————————————————— Well, one of
——————————————————————
and like these other doctors can do it
—————————————————————— One of the problems that that doctors have in in this country when it comes to doing ummm antineoplastons studies to verify any any effect that uh Burzynski has uhhh I i think back to the one where people say well that the FDA sabotaged his trials, and
——————————————————————
Well, we kind of know that that’s a fact [35]
—————————————————————— Clarification: NIH, NCI, and the Investigators
—————————————————————— Well, if if you think about it though, um, the, the proposed action as I understand it of the antineoplaston is that it’s a deacetylase inhibitor, which slightly unspools DNA, that allows uh, which would allow uh proteins to get into a pair of damaged DNA
And we have drugs that do that which carry a much lower sodium load
Uh, um, it, that would have a therapeutic effect on and that the risks outweigh the possible benefits of using this one particular drug
Um, I’ve seen any number of people looking at um, if you look at the Luna ah Pettiguine uh uh story on The Other Burzynski Patient Group um you see that the doctor is absolutely horrified by the insane sodium load that that Burzynski’s patients are carrying
Um in in some ways that that sodium load is uh leading people to constantly drinking up to I’ve seen 12 liters of water a day
——————————————————————
0:39:11
—————————————————————— That’s not necessary for other deacetylase inhibitors
Um the, why would you prefer that to to another drug if it did essentially the same thing, that didnt have this massive side effect ?
——————————————————————
Well what we know from 1996 from Burzynski’s own information that he’s published, is that not only does he have the original parent antineoplastons, but he’s developed 2nd and 3rd generations, but he can’t just stop in the middle of his clinical trial and use the 2nd and 3rd generations which may be better [36]
(Clarification: 1997)
He can't uh use these other types of um antineoplastons that other researchers, researchers like Egypt [29], or Japan [37] have found um that may be better because he can’t just switch in the middle of the clinical trial
——————————————————————
0:40:04
——————————————————————
Now if he, if the FDA approves his product, well then, maybe he can roll out the 2nd and 3rd generation and these other types of antineoplastons that may be less harsh, but that’s all he’s got to work on and that takes us back to the FDA, having control over the entire process, as far as the paperwork, how many people are in the trials, etcetera
—————————————————————— Well that sss I believe that that’s proposed by the researchers, the design trial, you know they they sign off on it but that is is, is up to uh Burzynski uh my uh David James @StortSkeptic on the[38]
——————————————————————
Right
—————————————————————— ah he has asked everything that Burzynski does looks sort of like the behaviors of pseudo-science
——————————————————————
0:40:56
—————————————————————— So what we’re saying uhhh he does uh uhhh Burzynski like for instance like I said he has vertically integrated, ah, he controls all parts from identification to the creation of the drug uh to the diagnosing uh well he doesn’t do the diagnosing but he does um um prescribe and distribute, he does all that vertically, which is actually something that snake oil salesmen do
——————————————————————
0:41:32
—————————————————————— Another thing that that’s a red flag in Skeptic circles is that his one compound seems to be a sort of panacea for all sorts of different types of, of of cancers, um where we know that cancer has a a varied uh, uh, ideology and and the uh panaceas are are are to be and a variety of different types of causes um, in fact in any one tumor you would, you could say that these, these tumors are are completely uh heterogenous
The idea that there’s gonna be one knockout, it seems rather unrealistic
Um, additionally he charges immense amounts of money for this drug, um, even though the components cost pennies
Um, on top of that, um, there’s something that he asks for a a huge payment up front
——————————————————————
0:42:33
—————————————————————— That’s something that’s been warned against for generations of uh by anti-quack um uh crusaders if if they’re asking for everything up front, then be afraid
Ummm, another thing is that uh the kind of cult that’s sprung up around Burzynski, uh, one that is immune to uh criticism, reason, and pits people who are doing standard cancer research, as enemies, um, creating a black and white version of the world where there are good people and there are bad people
——————————————————————
0:43:15
—————————————————————— There are people who are fighting the disease, and then there are people who are really helping the disease
I mean, if you look at the, the new web-site by the Burzynski patients fighting back group, they say support the cure not the cancer
That’s a manikin world-view of black and white
——————————————————————
0:43:30
—————————————————————— Um, these are all huge red flags, that you’re dealing with a quack
Um, why hasn’t Burzynski done anything to change that ?
——————————————————————
Well I find it interesting that you talk about the cost, because I’ve done a lot of research about the cost, and I was just looking at the cost again this morning, and put it into that particular blog article I was talking about, that I did for this particular program [39]
And, um
——————————————————————
0:44:00
——————————————————————
The thing that’s funny is that people can say, ohhh Burzynski charges a lot, but the fact is, so does chemo, radiation, and some of these newspaper articles that have been published, and specifically in the movie, Burzynski 2, one of the people mentioned how much someone was paying for standard treatment
And I noticed our
—————————————————————— Right
——————————————————————
favorite oncologist didn’t comment about that in his movie review [40]
—————————————————————— Well, there, this is important
This is really important though
Wha, when she’s talking about, that’s Luna Pettiguine’s mother, is is talking about the costs there
Uhmmm, you, when someone is not insured in in this country,
Ahm, the, the the base cost that that’s calculated is, is the hospital only expects to get a fraction, a tiny fraction of that back from the insurance companies, and that’s why the costs are so inflated
Um, usually, when a patient is self-pay there is a self-pay price which is a more reasonable price
——————————————————————
0:45:01
—————————————————————— Additionally, all of those therapies, have demonstrated efficacy, and if Burzynski were to demonstrate his efficacy, $30,000 dollars to start on a life-saving treatment for a child would be a steal, and he would earn every nickel of it
Um, so, those arguments hold very little weight with us
——————————————————————
Well what I find interesting, you know, I’m not sure how people think he’s supposed to pay for the clinical trials, you know, if he’s supposed to go into debt, millions of dollars
—————————————————————— He has a a an enormous house that’s valued in the tens of millions of dollars, he could do that if if the other, the other thing he could do, and this, we would love to see him do this, wousa, would be apply to Federal grant
That, that would be amazing, if he could get a grant to study this stuff
But, you know, um, I I don’t think he’d be able to get one, I don’t think he’s shown uh that he can carry off a uh a research program responsibly
——————————————————————
0:46:08
—————————————————————— Uhmmm
——————————————————————
I find that funny considering the FDA approved phase 3, has given him ODD for brainstem glioma and also also all gliomas [12]
You know, that’s kind of ridiculous [10]
And the people
—————————————————————— Well
——————————————————————
gettin’ off about his house, well who cares ?
They don’t know where his money came for that particular source
—————————————————————— (Clarification: “They don’t know the particular source where his money came from for that house”)
—————————————————————— Oh he, have you noticed the the, the thing on his web-site where if you make a donation to the clinic it goes directly to him ?
——————————————————————
Well, you know, when you have good tax lawyers your tax lawyers will tell you how to structure things, and everybody in America has the right to structure their taxes in a manner that effectively serves them according to our Supreme Court
So, if you have a tax lawyer who tells you, hey this is the best way to do it, to save money, well, you may do that uh based upon your lawyer’s advice
——————————————————————
0:47:00
——————————————————————
So, maybe Burzynski has taken his tax lawyers advice, just like I’m sure he’s taken Richard Jaffe’s ad advice (laugh), which has proved well, for him
—————————————————————— Right
——————————————————————
You know, you know
That’s another thing
—————————————————————— Ummm, o-kay
Uh, I want to turn this over to the people who are watching
Um, I want to give them a a chance to address you as well
Uhmmm, hi everyone
Uhmmm, so, um, let’s, let’s wait for for that to roll in, and I do wait to go back to the, the the, the and let’s be very specific about this, the the things that you see on The Other Burzynski Patent Group, a patient reporting that um uh getting worse is getting better
How do you explain that ?
——————————————————————
0:48:00
——————————————————————
Well I guess we could ask, you know, Ben and Laura Hymas [41]
What was their experience, you know ?
Did they have, did she have to drink uh a lot of water because she was thirsty ?
You know, did she have to drink a lot of water due to the high sodium ?
—————————————————————— Well that’s just a known side-effect, your going to know that going in, but we actually have people say
——————————————————————
So I would ask her about her personal experience instead of saying, you know, instead of quoting some of these other people
—————————————————————— Are there, why why why not, these people, see this is the thing though
The reason that site was started was because the people that don’t make it don’t have a voice
And when you, when you whittle away, when you only look at the at the, the positive outcomes, which is exactly in Burzynski’s favor to only look at the positive outcomes, and to have no sense of how other people’s diseases progressed, right, you’re gonna get a skewed and inaccurate version of the efficacy of this particular drug
Now lets lets lets go back and not talk about Laura, lets talk about these patients who report symptoms of getting worse, as if they were signs of getting better
Some people say that oh it’s a healing crisis or it’s progression of the disease
Or other people say it’s breaking up in the middle, hurrah
——————————————————————
0:49:20
—————————————————————— No, it’s actually a tumor that’s growing
That record there, that’s being left by patients, whose stories are every bit as important as the as the stories of the patients who have lived, are painting a completely different picture
How do you explain that ?
——————————————————————
Well we all know the FDA is in charge of this, and so hopefully they know what’s going on
—————————————————————— Are they feeding these people their stories ?
Are they feeding these people their stories
——————————————————————
No, I’m sure the FDA can look at the records because Burzynski sent them 2.5 million pages according to our friend Fabio [42]
0:50:00
——————————————————————
And uh, you know just something the doctors who came in and did the little ol’ one day, 6 patient records, where they reviewed all the records and slides, and MRI’s, etcetera, you know they can do the same thing, the FDA can do the same thing with all these patients [35]
(Clarification: 7)
And see the same MRI’s and scans, etcetera
I mean, we, we know that with all these 374 children I mentioned dying in other science-based medicine clinical trials [25]
I mean, they, FDA probably went through all their records
And, so, all these people didn’t look good either but, you know, the FDA still gave approval to Avastin and Te Temodar even though a lot of people died in their clinical trials [25]
—————————————————————— Okay I’m going to go back, I want to point something else out to you
Um, I have to, I don’t remember the exact patient so I have to go back to my web-site to take a look at it
Um
——————————————————————
0:51:00
—————————————————————— Because we are, because we’re on a Google+ stream that that’s a lot of data it takes awhile to bring up my, my site
Let me
Uhmmm
——————————————————————
I mean, we could agree that since Burzynski’s publication says that it’s going to take a month to get up to required dosage, and so we know, the tumor can still grow, like he said, up to 50%, he specifically acknowledges that in his publication, so, we know that can happen [43]
——————————————————————
0:51:35
—————————————————————— Well, that seems to give him an instant out, no matter what happens
That turns his claims into something that’s unfalsifiable
If I could give you an example of what unfalsifiable is
Um, and I’ll I’ll draw an uh, uh, case, uh hypothetical case of um uh proposed by Carl Sagan as the invisible dragon in your garage
——————————————————————
0:52:00
—————————————————————— If you say you have have a dragon in your garage, um, you know, you should be able to go over and verify that there’s a dragon in the garage
So let’s say we go over to Carl Sagan’s garage and, you know
Well, I don’t see anything
Well it’s an invisible dragon
Well okay, well then, let’s uh spray paint it
Well, it’s incorporeal
Well, uh, let’s measure for the heat of the breath
Well it’s heatless flame that it breathes
And, you know, okay, well then we’ll put flour down on the ground to see that it’s it it’s standing there
And, oh no it’s ah it’s floating
Well, you know, at some point, when you can’t falsify something
When you cannot, even in principle, prove something false, it’s indistinguishable from something that’s not there
And that kind of out, that oh well the tumor can keep on growing
Th (laugh) that that that’s an invisible dragon, as far as I can tell
——————————————————————
0:53:00
——————————————————————
Well we know from his own publications, he says he can’t just go in and start giving the maximum dose, or recommended dose right off the bat because a particular condition will occur, and he specifically mentions, in the publications what that condition is, I don’t remember it right off the top of my head [20]
But then again, his 2nd generation, his 3rd generation, his other form of antineoplastons that may work in the future, if approved, well those could possibly (not) have the same uh adverse effects that the current parent generation have [36]
But we don’t know, and like I said the FDA I’m sure knows because they have all the records, we don’t have them, and so unlike our favorite oncologist I’m not going to speculate, about what the FDA knows and I do not know
—————————————————————— A every time that I and and and and , and David points this out, that um, you you know your not going to speculate about the the FDA but then at every turn your invoking the FDA as being obstructionist
——————————————————————
0:54:02
—————————————————————— I, I just find that to be contradictory and and self-defeating
Um, let me see
——————————————————————
Well we know they stopped this particular trial, supposedly because a patient died
So what’s the hold-up ?
I mean, hopefully they’ve done an autopsy
What was found
—————————————————————— Well, that’s not necessarily true
——————————————————————
No
—————————————————————— I mean uh when it when it comes to the case um I’ve i’ve talked to oncologists about this
And when it comes to uh for instance in in this case it sounds like it was a pediatric patient who was dying, ummm, who had died, ummm, the,
the 1st inclination is to ascribe the death to, um, to the tumor, which actually, would be to Burzynski’s benefit if there were other cases, I’m not saying there were, but if there were other cases where this type of complication arose, and it was ascribed to the tumor they might well not do it, uh, do an autopsy
——————————————————————
0:55:08
—————————————————————— Um, it’s ah as you could imagine it could be very difficult for the families to do that especially when they have ooh ah, a possibility of what, you know, led to the ultimate demise, that didn’t involve them ultimately somehow being responsible for it, right?
So, it it it doesn’t seem to me that necessarily an autopsy would be um a a done deal
Um, let me see
——————————————————————
And we don’t have a final report from the FDA on what the findings were
—————————————————————— No we don’t and it would be irresponsible to completely speculate on on, on, the outcome of that uh, uh, uh, individual patient, I am still scrolling through looking for this story that I wanted to talk about
——————————————————————
0:56:00
—————————————————————— Uh, and, I guess I’ll
It should be in Amelia’s I I, I packed Amelia’s story with all the stories, um, that I could find um in what we’d written up already
Um
Hold on a sec
She is a cute kid though
Um, alright
Now, our favorite oncologist (laugh), as you keep putting it, um, uh, with with the Amelia story, um, uh, was able to correctly determine that the Saunders family, had a, did not understand the significance of this cyst that had opened up in, uh, that had opened up in the center of the tumor, in fact they were ecstatic
They were delighted
Um, the family, of Haley, um, S, also
——————————————————————
0:57:10
—————————————————————— Uh, the the family of Haley S., also, had the same reading given to them
Um, the same diagnosis uh same prognosis was to, was given to Justin B in 2006
A similar cyst in Lesley S’s story uh ah, was in 2006
Um, and that kept her on uh treatment for a a another month so that could be another $7,000 some odd dollars
We same thing in the, in the case of, uh, Samantha T in 2005
We see it again as far back as 1994, in Cody G’s story
And then lastly and and the worst uh thing that we’ve seen, the patients report that Burzynski himself told Chase uh Sammut
——————————————————————
0:58:00
—————————————————————— The exact same thing
Um, and that was a
Have you read Chase’s story
——————————————————————
I don’t remember specifically
Possibly not
—————————————————————— It would stick with you, because that case is grotesque
The parents, uh, there was even a uh, uh, a fight over whether or not the parents should be allowed to continue treating this kid
He was basically lying, uh, in a uh uh brain dead uh for all intents and purposes, uh, in a in a coma uh without possibility of reversal, in his parents living room for months
Um, eh, all the while, he’s still on the, uh, we’ll I don’t actually, I can’t say that, I don’t exactly know if he was on the treatment the whole time
Um, but, we do have this pattern, that is there, of people believing, that this particular pattern is, uh, progress, a a is not progression of disease but is is inducement to to stay on, um, eh, and this has been going on for decades
Eh, eh just based on what we’ve been able to find that patients have been reporting this for decades
——————————————————————
0:59:20
—————————————————————— At some point, you would think that a doctor would realize that perhaps what these patients are walking away with is inaccurate
Why hasn’t that changed ?
——————————————————————
Well he’s using the same 1st generation drug
—————————————————————— E wel that that that that’s not it
This is this is like the 2nd day of oncology class, that that’s what the tumor looks like
People are reporting that the tumor is no longer growing, um, or that the growing has slowed after they’ve started
Well, okay
There, there is an explanation for that, and why you can’t take that as necessarily being evidence of efficacy
——————————————————————
1:00:00
—————————————————————— Ah, the tumor grows exponentially while the resources are available to it, but then it reaches a point where it’s a self-limited growth, so it, the time between uh doublings in size decreases logarithmically
Um, so this is, this is like basic tumor physiology that we’re talking about, and his patients don’t leave his office, knowing these facts, for decades
This doesn’t have anything to do with the, do with the drug
This this
——————————————————————
Well I’m sure a lot of people leave the doctors office not knowing things (laugh), for decades
—————————————————————— But, but when it’s, this treatment is working or this is not evidence that the treatment is working
That’s pretty basic
I mean we’re not, we’re not talking about deacetylase inhibitors or anything like that were you’d really need to know something about
This is, whether or not, you’re getting the outcome that you want
——————————————————————
1:01:00
—————————————————————— This is the whole reason for going
And it has nothing to do with the with the with the drugs
——————————————————————
Well we know the contin, the tumors can uh continue to grow for awhile, at least, and certain effects that they probably would
—————————————————————— Which is, which is like which we just pointed out was a was an invisible dragon
——————————————————————
Well I’m sure, I mean, it’s going to continue to grow, in any other clinical trial too, for a certain awhile
I mean like
—————————————————————— you’re you’re you’re assuming
You’re you’re you’re assuming that
You’re assuming that
Um, I’m not assuming that
——————————————————————
Well we know that all these other kids died in these science-based medicine trials, and, you know, we can assume that that was the case there too [25]
——————————————————————
1:02:00
—————————————————————— Ultimately it would, but whether or not it it it had a genuine therapeutic effect is a different matter all together
Um, this, what would, what would convince you that you’re wrong
——————————————————————
The FDA not giving him phase 3 approval [12], the FDA not giving him ODD designation [10]
—————————————————————— So you’re saying because the Orphan Drug Designation and the face that there’s a phase 3, therefor it works ?
——————————————————————
And showing that, and showing the FDA that there’s evidence of effectiveness [11]
—————————————————————— So what you’re saying is there’s nothing that would convince you now, that it doesn’t work
——————————————————————
Not until the FDA says it doesn’t work
—————————————————————— O-kay
Um, it’s it’s it’s not the FDA’s, but you understand it’s not the FDA’s job to tell someone that their drug doesn’t work
——————————————————————
Well they seem to be doing a good job of it
——————————————————————
1:03:00
—————————————————————— it’s it’s it’s up to Burzynski
It’s up to Burzynski to show that his drug does work
And it’s always been his burden of proof
He’s the one that’s been claiming this miracle cancer cure, forever
——————————————————————
Well I’m sure, I’m sure they wouldn’t have done things if they didn’t see some evidence that it was working
—————————————————————— Um, I don’t know if you’ve read Jaffe’s book
——————————————————————
No I haven’t read it [44]
—————————————————————— There seems to have been a lot going on there you really should look at it because it’s it’s it’s kind of revealing
Um, that that that it seems that there was a lot of political pressure applied to the FDA which may have been, uh, uh, have influenced the way in which these these trials were approved
I I would say that it is a genuine con uh uh bit of confusion on the parts of Skeptics
We don’t know why the phase 3 trial was approved
I don’t know that we’ve seen even the phase 1 trials, we don’t know why he’s getting a phase 3
And there’s a real story in that, we think
——————————————————————
1:04:02
—————————————————————— Um, that we’d love to see, however we can’t see, however we can’t see it because of proti protri proprietary uh protections that the FDA is giving to Burzynski, right ?
They’re not sharing his trial designs because they are his trial designs, right?
That the makeup of his drug that he’s distributing are his, uh design, and his intellectual property
So the FDA is protecting him, uh from outside scrutiny
While you may imagine that that, that that the FDA is is somehow antagonistic toward him
They’ve given him every opportunity, over 60 opportunities to prove himself worth uh their confidence and hasn’t
Um, but I definitely recommend that you look at Jaffe’s book and you will see, I think, um that um it’s called um, uh Galileo’s
——————————————————————
1:05:00
——————————————————————
I know what it’s called [44]
—————————————————————— You know what it’s called, okay, yeah
Um, definitely look at that
Um, you, you will see, the ways in which, the way that we got to this point, isn’t necessarily having anything to do with the efficacy of the drug
That comes across very clearly
Um, you, you mentioned it yourself, he he’s done well to listen to Jaffe’s advice, right ?
——————————————————————
Right
—————————————————————— So, there there’s a lot to that
Um, uh, but yeah, let me go back to the Twitter feed
Um
——————————————————————
Well I’m just gonna say, you know, the F, the FDA doing what they’ve done, since they approved those 72 initial trials, pretty much speaks for itself [45]
I mean they’ve had every opportunity to shut this down, since then
—————————————————————— Well it sounds to me like they’re they’re not um, the the the you know, they’ve put the clinical hold on now because they now have evidence that somebody may have died because of the treatment
——————————————————————
1:06:06
—————————————————————— Um, I don’t know what the state of that is right now
Um, uh, oh my gosh, um, let me see
Someone has just sent me a, a ah a link to, are you following the Hashtag, as this is going on
——————————————————————
No, I’m just concentrating on what we’re doing
—————————————————————— Okay
I’m doing, I’m doing the 2 things at once and it’s um, ok ok well it’s well ok I can’t I can’t go in and read that right now
Um, I would, ok let me tell you exactly what it will take, for me to come around and promote Burzynski
Um, for me, he needs to get a publication in a uh, yeah, uh uh uh publication in a peer-reviewed journal, a respected peer-reviewed journal, not like the the Journal of Medical Hypothesis or things we just made up
——————————————————————
1:07:16
—————————————————————— Um, something, you know, a a good, respectable journal that oncologists would read, that research oncologists would read
I would need an completely independent group to replicate his findings, and then I’d be all for it
I would say that right now, the business model that the Burzynski Clinic seems to depend on, as best as I can tell from an outsider, that, um, uh, that it depends on people paying money up front
It doesn’t depend on him developing and taking away a viable drug, that he can market to the entire world
His business model as best I can tell, is to keep it in house
——————————————————————
1:08:03
—————————————————————— That seems, if it works, if his drug genuinely works, and he hasn’t sent it along to mass approval, where he gets, for a couple of years at least, you know, exclusive rights to produce and sell this stuff, for one of the most intractable diseases, uh that man eh can can can, you know, can get, um, that suggests to me that there’s something else going on here
Now, someone has just sent a a note, uh that he has failed 3 different Institutional Review Board audits; this is Guy Chapman (@SceptiGuy), uh no other institution has a 3 for 3 fail, according to to Guy iye he knows no other one
Um, that 45% of phase 3 clinical trials fail due to deficient phase 2 design
Um, he has an approved phase 3, but phase 2 was deficient so phase 3 fails
——————————————————————
1:09:07
—————————————————————— Do you think that that could possibly have anything to do with why we’re not seeing the phase 3 advance
——————————————————————
Well #1 I don’t think the one with brainstem glioma where they wanted to use radiation with ANP was really the right way to go, I mean he’s already proven that uh he seems to have better results without [12]
—————————————————————— He’s claimed
——————————————————————
first starting radiation [20]
—————————————————————— He’s claimed
That’s a different thing altogether
And in fact
——————————————————————
Yeah but the thing is radi, I, the FDA was not saying, ok, one study, one side of the study we’re only going to use ANP, in the other side of the study we’re going to use radiation and and ANP like like they would normally do
No, they wanted to make him use radiation in both sides of the study [20]
—————————————————————— Well, you understand why they do that, because in order to, it’s
——————————————————————
They don’t do that with other drugs [13]
—————————————————————— No, they do do this with other drugs, well, it depends on the type
——————————————————————
1:10:01
—————————————————————— Some drugs it’s ethical to give something completely questionable, what they want to make sure that they at least get the standard care, you know which includes radiation
Um, and radiation does seem to extend life, reduce the size of some tumors some times
Um, do you concede, that in order to have a phase 3, you do not need to have a successful phase 2 ?
When 45% of phase 3 fail because they have a deficient phase 2 design, do you concede that ?
——————————————————————
Well I don’t buy anything Guy Chapman sells, considering his past record [46]
—————————————————————— Well, ok
It doesn’t matter where
——————————————————————
(laughing)
—————————————————————— It doesn’t matter where it comes from uh, um
——————————————————————
Well his theories are suspect, anything he hands out, let me tell ya [47]
—————————————————————— So-kay, um that would be shooting the messenger as opposed to dealing with the question, but
——————————————————————
But the question may be bogus, because of where the messenger has been bogus a lot of times before (laugh) [48]
——————————————————————
1:11:04
—————————————————————— the idea, the best, well, the best, well in that case the best response is “I don’t know”
——————————————————————
Well I’m just gonna say what I think about Chapman because he’s proven himself, many times to be questionable
I don’t see him on my blog responding to my criticism [7]
—————————————————————— There’s something that that we don’t know, you’re coming, honestly we didn’t know what to expect when we talked to you
We, were looking at the design, of your web-site and wondering whether or not we would be able to get a a coherent sentence out of you, because the web-site is disorganized, uh
Um, at at at at least it’s the organization is not apparent to the readers
Um, and um according to
——————————————————————
That’s like, that’s like saying that Gorski’s web-site is disorganized, his blog is like anti vaccine one day, Burzynski the next, blah blah blah
—————————————————————— No, that is tied together
——————————————————————
1:12:00
——————————————————————
(laughing)
—————————————————————— But let me, we know that that the the, the central concern is Burzynski
Ah, the source of this ah of of those #’s that I just gave you, Chapman has just updated me and he says um that it is, and I’ll go back to the, the ADR research . com issues in clinical research, so it’s the question, Bay Clinical uh Research and Clinical Development,a white paper called “Why do so many phase 3 clinical trials fail ?”
Uh, it’s prepared by Anistazios Retzios, Ph.D
Is Anistazios Retzios reliable ?
There is a correct here
——————————————————————
Well how would I know ?
I don’t have
—————————————————————— Exactly
That’s the right answer
You don’t know
You don’t know
You need to look into it
Alright ?
Before you dismiss it you have to look into it
——————————————————————
1:13:00
—————————————————————— Everytime somebody throws uh uh something to me, I have to look into it
That’s just, it’s my responsibility as a reader
Um
——————————————————————
Well you didn’t when I tried to get you to do stuff the 1st time, did ya ? [2]
—————————————————————— What, what stuff would you like
——————————————————————
(laughing)
—————————————————————— What stuff would you like me to do ?
I generally, I don’t read your blog
——————————————————————
Well I, the most, the mostly, excuse me, the most recent article I posted on there is the one about this particular conversation, where I went through all your comments that you had posted, and my response to them
And so I tried to consolidate everything into one, particular article
—————————————————————— Uh um, alright
——————————————————————
And that’s the newest article [2]
—————————————————————— Okay, I’ll look at that, and I will respond to it once I’ve taken a look at that, okay ?
Um, and I’ll respond on your web-site
Um, seems only fair
Um, one question I’d wondered, what is the Didymus Judas Thomas reference to
——————————————————————
1:14:00
——————————————————————
Well I thought that was pretty funny because doing biblical research, you come upon, Didymus Judas Thomas, or he’s all, also known by other names
He’s basically The Skeptic
And so, like I said, I consider myself to be Skeptic of The Skeptics
—————————————————————— Oh, so this is the Doubting Thomas
——————————————————————
I thought it was apropos
Of course
—————————————————————— This is the Doubting Thomas
——————————————————————
I’m doubting The Skeptics
Exactly
—————————————————————— Okay, so this is the one, you show me the, you put your your, the, your hand inside the wound
You know, Jesus says, basically, ok, bring it on, check me out, right ?
——————————————————————
Exactly
—————————————————————— Okay
Alright
That that, I didn’t, I didn’t realize that he was also, that that was the same guy
So, it’s it’s the Doubting Thomas
Um, what we would say, um, is that if Burzynski is the savior that he claims to be, that he should, open up his trials, he should open up his uh research uh protocols um and just say, “Look, bring it on”
——————————————————————
1:15:08
—————————————————————— Check out these wounds
But he’s never done that
Instead he he he wants us to just take the words of of of of his apostles
I don’t necessarily trust his apostles
I don’t think that they’re unbiased
(laughing)
I wanna see the data
I wanna see the the wounds in his hands and the the mark on his side
——————————————————————
Well I like how The Skeptics say, you know, all of Burzynski’s successes over the years are anecdotal and uh I consider on the same way that everything negative about Burzynski is anecdotal
—————————————————————— Oh, hey when when we talk about The Other Burzynski Patient Group, I don’t make any pretensions to make that my site proves anything
I I I really don’t
It’s not my job to prove anything
It’s Burzynski’s job
It is a researchers job to prove these things
——————————————————————
1:16:00
——————————————————————
Well my point is he’s proven them to the FDA because they’re the ones
—————————————————————— But we just pointed out, we just pointed out, that the FDA, often approves, phase 3 trials, based on flawed phase 2 clinical trials
That is therefor a real possibility in this case
——————————————————————
Could be, but I would have to read, read the
—————————————————————— Yes you would
T t and what I would honestly expect and hope, is that you would be honest about this, to yourself, and and and that’s the thing we don’t, we often don’t realize that we’re not being honest with ourself
I try to fight against it, constantly
But, um, uh but the way that you’d earlier phrased your uh your response to “could you possibly be proved wrong ?”, . . really did exclude other possibilities of of of of yourself being wrong
So if the FDA
——————————————————————
Well when it comes to Guy Chapman, yeah
—————————————————————— Well I’m not talking about the Guy Chapman
What you off, when I asked you, yourself, you know, what would prove you wrong, you said that the FDA hasn’t approved a phase 3
——————————————————————
1:17:03
—————————————————————— Well, ok
Let’s let’s back, let’s back up
What would the FDA, what happens if the FDA occasionally op op opposes, approves uh phase 3 trials, based on bad phase 2 trials
Would that be, would that cause any doubt in your mind ?
About the efficacy of ANP
——————————————————————
You still there ?
—————————————————————— Yeah, hello, yeah, you’re back
——————————————————————
Yeah, something cut off there for awhile
—————————————————————— Yeah Google+ is a little wonky sometimes
But, would, does, if you were to learn, that sometimes phase 3 trials, uh, are approved, and failed, based on flawed phase 2, would, would that make you reconsider your position of the phase 3 being evidence that it works
——————————————————————
1:18:00
——————————————————————
Well I would certainly look at that, but then again I would also look at the FDA granting him Orphan Drug Designation [10]
—————————————————————— Uh um could you send me that link, the, the, um . me see
I’m just looking at other things that are coming in on the Hashtag right now
Um, so the ANP is Orphan Drug status but is it Orphan Drug for glioma ?
——————————————————————
Orphan Drug for brainstem glioma and all gliomas [10]
—————————————————————— Is it sodium phenylbutyrate or is it the the versions of the drug, the AS10 stuff or A1 or whatever it’s called ?
——————————————————————
Right, it’s both AS10 AS2-1 and AS
—————————————————————— Clarification: A10 and AS2-1
—————————————————————— Okay, that’s what has Orphan Drug status
Alright, I’ll look into that
I hope somebody is writing all this down out there, so that we can go back and look at these claims later, right ?
——————————————————————
1:19:00
—————————————————————— So, oh, um
Do you have any questions for me ?
I’ve spent a lot of times asking questions of you
——————————————————————
Well not really, since you mentioned that you’d go in and look at my most recent article, anything you show in there or any reply you give is going to cover, what we’ve gone over
And so we can re debate it there
—————————————————————— Mhmm
Guy Chapman, throws up the the, the comment, permission to investigate is not evidence of anything other than evidence of a valid protocol, not a uh, evidence of efficacy, in and of itself
That’s another comment
Um, alright then, this is your chance t, there are lots of people have lots of questions about me out there
Uh, about what my motivations are and such
I might as well put that out on the table just so it’s on the record, is that I am taking exactly no money from anyone for this, and have gotten nothin’ but grief from a lot of people, even people who (laugh), even people who support me have given me grief for this
Um, just so that you know, um, there have been, some of the things that have happened, oh, this is an important point too
Um, that when we have criticized this, uh, a # of us, especially Gorski, uh myself, uh Rhys Morgan, uh, um, and and uh Popehat, the the lawyer, blog, uh, um, who else was on there, um, oh, the Merritts, uh, t, uh Wayne Merritt, and his family, people have been critical of of of Burzynski have faced retaliation for opposing him ah and intimidation, and including, um, I had my uh a couple weeks before Christmas my, my, the Chancellor of my University was contacted via e-mail, and uh Eric Merola said that I had been um, uh, been spreading mis truths about Burzynski, that I had been a be, on my my show um had said things that were demonstratively untrue, and he also said that the drug was FDA approved, which it, you know, that’s not right
But um, he said that he was gonna do, talk about me in his new movie, in, uh, relat, in millions of homes, um, and he wanted to get a statement from the University
——————————————————————
1:22:02
—————————————————————— The University of course ignored him, and immediately let me know that I was going to get smeared
Um, I consulted my lawyer and uh uh, you know, the best course of action was figured out, and um uh a Gorski has had his accreditation board contacted, he’s had his bosses contacted, Rhys Morgan received threats of liable suits from somebody who had been hired, by the clinic, to clean up his on-line reputation if he didn’t take down his on-line review of Burzynski, uh, had his a picture of his house sent to him, clearly the message being, “We know where you live kid,” uh, Wayne Merritt; a pancreatic cancer patient, this is something that, that people generally, do not recover from, like generally, die from, received phone calls at home, from, this individual, threatening him with lawsuits; he doesn’t have a law degree so he’s misrepresenting himself
——————————————————————
1:23:15
—————————————————————— Um, but all of this, was done, to critics
Do you think that is deserved ?
Do you think that that is right ?
——————————————————————
Well I’ve specifically stated on my blog that Marc Stephens uh obviously didn’t know what he was doing and went about it the wrong way
My position was he should of bou, got around it, gone about it the way I did, which is, I blog, and show where Rhys is wrong [49], I blog and show where Gorski is wrong [40], I blog and show where you are wrong [2], or Josephine Jones [50], or Guy Chapman [7], etcetera
And, eh, y’all have every opportunity to come on my blog, and I’ve had very few takers, uh, one claiming to be from Wikipedia, who I shot down [51]
——————————————————————
1:24:04
——————————————————————
And hasn’t come back
So, you know, I am welcome to anybody trying to come on my blog, and prove what I posted is wrong, and debate anything
Unlike some of The Skeptics I don’t block people on my blog
—————————————————————— Mhmm
——————————————————————
I don’t give lame reasons for blocking people on my blog because I’m an American and I actually believe in “Free Speech”
—————————————————————— Well to be fair
It it it doesn’t strike me as necessarily a “Free Speech” issue, you know
——————————————————————
Well to me it is when Forbes removes all my comments, in response to Skeptics some, and I showed this from screen-shots
You know, stuff like that [52]
—————————————————————— Was it down-voted ?
——————————————————————
Oh no
—————————————————————— No
——————————————————————
It wasn’t down-voted
—————————————————————— Mhmm
——————————————————————
They, I mean I’ve got screen-shots of where my comments were there, between other people’s comments, and uh, and they just decided to remove all my comments, and I blogged specifically about, you know, what they did and, uh, Gorski’s good friend and pal who authored that particular article
—————————————————————— Mhmm
——————————————————————
So I, I like how The Skeptics run things, you know
——————————————————————
1:25:14
—————————————————————— Well we do have for for for for one thing, um, I guess to understand is that we are uh motivated by um uh a respect, this is the one thing that that all Skeptics I think um are uh respect critical thinking, um, and um respect scientific uh a we we’re mostly scientific enthusiasts, there’s some Skeptics who are not um, uh, you know oh u space nerds, or whatever who are um just sc scholars and the humanities but for the most part we all respect scientific consensus and we respect scientific method and have an enthusiasm for living in the real world, this is something that like all of us us are about
——————————————————————
1:26:00
—————————————————————— And to that end, sometimes that influence is how we run, is how we decide to run our personal web-sites
Um, uh, that whether or not we want our, to give a platform to people who disagree with us, um, you know, uh, when we do, uh . . it it is our sandbox, you know, right ?
This, this (laughter), we’re allowed to to let whoever we want into our sandbox if we, you know, uh if we want
——————————————————————
Well I think that people who really believe in “Free Speech,” and when it’s done rationally, I mean, Gorski would never, really respond to any of my questions, so I [53]
—————————————————————— Did he, did he leave them up ?
Did he leave them up ?
——————————————————————
Well I know that he specifically removed a review I did uh of his review of Burzynski I on his web, on his blog
But he’s pretty much left a lot of my comments up that I’ve seen
Uh, but he never really responded to my questions about, what he based his beliefs upon
——————————————————————
1:27:00
—————————————————————— Right, um, do you think that he is required to answer you
——————————————————————
Well I would think, if you’re going to base your position on a certain thing, and then you can’t back it up with scientific literature, uh, you should answer, maybe not specifically to me, but answer the question
Answer to your readers
—————————————————————— Right
——————————————————————
You know, I can tell his readers come on my blog because it shows that they come on my blog
—————————————————————— Mhmm
Um so a a question uh why were why do you have so many Twitter and Wikipedia sock-puppets
——————————————————————
Well the reason I have so many Twitter things is because, obviously, some of The Skeptics will be on there lying about some tweet I sent, and so Wikipedia, excuse me Twitter will do a little ol’, do their little, hey we’re going to block your account while we do blah blah blah, and I’m not gonna waste my time, going through their little review process, I’ll just create another uh Twitter address because, like, you know, if you read the Twitter information you can have a ridiculous amount of uh Twitter I.D.’s, and I’ll just use another Twitter I.D. and continue on
——————————————————————
1:28:15
——————————————————————
And so Wikipedia can say what they want, because I’ve only ever used one I.P., I’ve only got on there during one time, and when they finally said hey, you know, we’re not gonna uh grant your appeal, I completely left their web-site alone, so all that stuff [54]
—————————————————————— Wikipedia
You left Wikipedia
——————————————————————
that they post [55]
Yep [56]
So all that garbage that they posted about me, about how I supposedly got on-line, on these other articles is just entirely B.S. [57]
—————————————————————— Mhmm
Um a
——————————————————————
And if they can prove otherwise, I’d sure like to see it [58]
—————————————————————— Uh We have uh a response from David James, everyone uh gave you a fair shout
You were a spammer plain and simple
You couldn’t, you couldn’t
work out your questions
——————————————————————
But that’s what y’all always say
That’s what y’all like to say, about everything
—————————————————————— Twitter does not
Twitter does not block people for for arguing
Only for spamming and policy violations
——————————————————————
1:29:05
——————————————————————
Yeah I’m sure that’s what they like to say
I mean, you can report an e-mail, or report a twit, and they’ll block it
But um they’ll never come back and say, and this is why we blocked you, for this particular twit, for this particular reason
—————————————————————— Mhmm
Okay
Um, let me see
Each new account was blocked for additional violations of policies
Um, this is a uh uh referring to the Wikipedia rules too
Um, so
——————————————————————
Wikipedia is a joke [59]
—————————————————————— Um, Wikipedia, do you know why um they’ve locked the Burzynski page ?
——————————————————————
Oh sure, I’m sure, that’s no problem [60]
I don’t have any problem with them locking that [61]
You know, I could tell when I was on there, and when Merola was on there, because he had a different I.P. address than me, I could tell they were his questions because of the way they were formed [62]
——————————————————————
1:30:04
——————————————————————
So I said, well they’re not answering his questions, I’ll just take on that role, and uh ask his questions and ask further questions, and they didn’t wanna deal with it, you know [63]
—————————————————————— Did you notice the part where he threatened, did you notice the part where he threatened to expose Wikipedia
——————————————————————
Expose them for what ?
For doing what they do, which is basically provide false information and one-sided information ? [64]
—————————————————————— We have to, well, they they uh are looking that it’s not one-sided information they want to show
Like they discuss, there is controversy about this guy
——————————————————————
Oh, please
They get on there and they say hey, Lola Quinlan filed a lawsuit, but they don’t tell you anything else
They don’t tell you, you know, Jaffe’s side of the story, and her lawyer’s side of the story
—————————————————————— Yeah, Jaffe’s on there
——————————————————————
(laughing)
—————————————————————— Jaffe’s on there
——————————————————————
Oh Jaffe’s on there but on that specific article about Lola, they didn’t say, here’s the article that was posted on uh Lola’s attorney’s web-site that, that mentions both his responses and Jaffe’s responses, to the uh lawsuit
——————————————————————
1:31:10
—————————————————————— uh well you could add that if you hadn’t gotten blocked
——————————————————————
Uh, trust me, I tried to add that and they wouldn’t add it
——————————————————————
1:32:20 Okay
Um, so, who are you
——————————————————————
(laughter)
You know, The Skeptics like to be nasty, and so, I’ve been like Josephine Jones (@_JosephineJones)
If she wants to play anonymous, I’ll play anonymous [65]
—————————————————————— She’s gotten threats
——————————————————————
Well, I don’t threaten people
I don’t threaten Gorski
I don’t send letters to people’s employers
I deal with them directly, and, you know, if if they won’t answer questions, then, you know, I’ll just post them on my blog for other people to see, and question uh themselves
—————————————————————— So we don’t know who you are
——————————————————————
1:33:01
——————————————————————
Like I said, I’m going to be like Josephine Jones [66]
—————————————————————— Like, she has suffered at the hands of some really mess, and she’s also, you have to realize she’s in the U.K, where libel laws are very lax at this point
That’s changing, ah, but uh, the the legitimate criticism, there is a big case last, me maybe 2 years ago of Simon Singh, talking about an alternative therapy, and, um, he was just saying that there’s no evidence for it but it’s promoted by um chiropractors, or something, or something like that
And he got slapped with a libel suit that cost him several years of his life and a lot of money
Um, so, there are several reasons why someone in the U.K. might uh be uh reticent to use their real name um, uh, and legitimate reasons
Um, in the U.S., I’m not sure that there is
——————————————————————
1:34:00
—————————————————————— I’ve been using my real name for a long time now
Um, you know, Gorski blogs under his real name, and is critical of uh, uh, also, let’s face it, everyone know, knows who “Orac” is
Um, how do we know that you don’t work for the clinic ?
—————————————————————
