Stanislaw Rajmund Burzynski, Stanislaw R. Burzynski, Stanislaw Burzynski, Stan R. Burzynski, Stan Burzynski, S. R. BURZYNSKI, S. Burzynski, Arthur Burzynski, Hippocrates Hypocrite Hypocrites Critic Critics Critical HipoCritical
—————————————————————— GorskGeekgesticulates :
—————————————————————— “At least a third of the video consisted of the difficulties that Hannah had with her treatment, including high fevers, a trip to the emergency room, and multiple times when the antineoplaston treatment was stopped“
“She routinely developed fevers to 102° F, and in one scene her fever reached 103.9° F“”
“She felt miserable, nauseated and weak“
“I’ve seen chemotherapy patients suffer less”
—————————————————————— GorskGeekgets at least one thing correct :
In America(48 days): 12/11/2011 (Sunday) – 1/27/2012 (Friday) [4:52 – 35:43]
—————————————————————— Burzynski Clinic47 days – (7 weeks) 12/12/2011 (Monday) – 1/26/2012 (Thursday) [5:37 – 35:43]
—————————————————————— 47 days – Burzynski Clinic 31 days – treatment NOT mentioned 16 days – treatment mentioned
—————————————————————— 5 days – off ANP: (May have been off ANP5 to 6 days out of 45 days?) 12/25/2011, Sunday(Day 15)Burzynski Clinic
(OFF ANP) 12/27/2011, Tuesday(Day 17)back on ANP
(OFF ANP) 12/28/2011, Wednesday(Day 18)Burzynski Clinic (on ANP much smaller dose) 1/17/2012, Tuesday(Day 38)Burzynski Clinic
(OFF ANP) 1/21/2012, Saturday(Day 42)Burzynski Clinic
—————————————————————— 6 days (temperature mentioned out of 47 days) .12/27/2011 – 102 – down / up .12/31/2011 – 102 – middle of night 1/16/2012 – 102+ – Monday night 1/17/2012 – 101.8 1/20/2012 – 103.9 – Friday night 1/21/2012 – 102.5
—————————————————————— “She felt miserable, nauseated and weak“
However, he does NOT produce one citation, reference, and / or link which would buttress his baste
—————————————————————— “I’ve seen chemotherapy patients suffer less”
just blows . . . back up in his blood-brain barrier
Let’s do what Dr. (Supernaught) Dave and his Science-Baste Medicine would NOT do
Compare the radiotherapyHannah had, to the antineoplaston therapy she had
—————————————————————— 4/1/2011 – Surgery 6/2011 – Started radiotherapy 8 weeks after surgery
1. Needed 6 weeks of radiotherapy
2. Full-on – 6 weeks of treatment(Monday-Friday)
3. Did that, thinking this would make me better
4. Radiotherapy went well for 1st few weeks but fears were confirmed when hair falling out and bouts of tiredness and lethargy
5. Lost hair
6. Two weeks into treatment was hit by wave of tiredness
7. So shattered had to go to bed for week
8. Started having seizures and didn’t know how long she had to live
9. Was still having seizures and lost independence with losing driving licence
10. On top of all of this, dealing with‘v as had number of seizures and now has epilepsy
11. Was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour
A. Hair falling out
B. Lost hair
C. Bouts of tiredness and lethargy
D. So shattered had to go to bed for week
E. Started having seizures
F. With number of seizures, lost independence with losing driving licence
G. Now has epilepsy
H. Was grueling
—————————————————————— Hannah’shair all fell out, she suffered bouts of tiredness and lethargy, had to go to bed for a week, started having seizures, and got epilepsy, all in the course of 6 weeks(30 days – Monday-Friday) of radiotherapy
Does GorskiGeek really expect true Science-Based Medicine researchers; unlike himself, to come to some biased conclusion, that these 30 days of radiotherapy; 20 of which come after the “first couple of weeks” umbrella, are somehow “better” than 16 days of antineoplaston therapy issues ?
—————————————————————— GorskGeeksproselytization of Science-Based Medicine is nothing but a sham
If Gorski actually, really, believed in SBM, he would practice what he preaches
To “Orac,” SBM is nothing more than a TOOL, which he attempts to wield the way Hitlerstormtrooped the SS (Schutzstaffel), Leninkerfuffled the KGB (Komitet gosudarstvennoy bezopasnosti), Stalingate-way drugged the Gulags, and Mussolini#failed with Fascism
GorskiGeek seems to want to Fiesta with Fidel, in that the asserted appearance of both, is because of the belief in the almighty buck
Yes, maybe they’re always just looking for that extra bit of added greenback bill, a blatant handout 
—————————————————————— GorskGeek “believes” in his Science-Basted Medicine so much, that he fails to advise readers how Hannah did aftershe and Pete Cohen returned to the “G.” to the “B.”
Did Hannah experience continued “side effects”?
That’s what I call the hash tag failure of Gorski’s Science-Based Mudicine
—————————————————————— Gabroni Gambit (also known as Gorski Gambit a/k/a GorskGeek Gambit): The failed attempt by “The Skeptics™” to try and “pull the wool”over the eyes of someone who is as smart as a fifth-grader
This tactic is one frequently utilized by communists, dictators, fascists, liars, socialists, and zealots
David H. Gorski, M.D., Ph.D., FACS “Check My Facts”Hack “Orac”, finally ends his 11/15/2013 diatribe of Dr. Burzynski by USA TODAY’sLiz Szabo, Michael Stravato, Jerry Mosemak, and Robert Hanashiro, with:
—————————————————————— “The concluding section of the story tells us why we need to try:”
“No one told Josia’s parents about any of this”
“Not the FDA”
“Jose and Niasia Cotto had no idea that their son’s death prompted an investigation by the FDA, until they were contacted by USA TODAY”
“The Cottos had long believed that Burzynski could have cured their son if only they had taken Josia to see him first, before giving him radiation and chemotherapy”
“They had even hoped to launch a non-profit, A Life for Josia Foundation, to help other children with cancer gain access to Burzynski’s treatment“
“Now, they don’t know what to think”
So what good did Gorski do here, if any ?
1. He offers no opinion as to if he thinks Burzynski should have been responsible for advisingJose and Niasia Cotto that Josia Cotto’sdeath prompted an investigation by the FDA
2. He offers no opinion as to if he thinks the FDA should have been responsible for advisingJose and Niasia Cotto that Josia Cotto’sdeath prompted an investigation
3. He offers no opinion as to if he thinks Burzynski could have cured Jose and Niasia Cotto’s son, Josia Cotto’s if only they had been able to take Josia to Burzynski first
4. He offers no opinion as to what he thinks about the FDA requiring Josia Cotto to receive radiation and chemotherapy, and them failingJosia, before he was able to utilize antineoplaston therapy
Gorski might as well NOT even be here if all he’s going to do is repost the same thing USA TODAY published, yet “say” absolutely NOTHING
Personally, I think it’s has to do with what was said during the JulyTAM 2013 twaddle, when the female panelist made a comment about “people without BALLS”
Since I have mine, here’s what I think:
1. If there was a moral or legal duty to advise Jose and Niasia Cotto that the passing of Josiaprompted an investigation by the FDA, then it was the FDA’s responsibility
2. I think that if the FDA was NOT requiring patients like Josia Cotto to 1st be failed by conventional treatments like surgery, radiation, and / or chemotherapy, there is a chance that Burzynski’santineoplaston therapy could be more effective because of:
What USA TODAY, Liz Szabo, Michael Stravato, Jerry Mosemak, and Robert HanashiroDID NOT TELL YOU ABOUT:
—————————————————————— 12/2002 Burzynski interview 
—————————————————————— 1. Treatment require strong commitment from patients as must be infused with Antineoplastons for many weeks or months ?
—————————————————————— 2. Perhaps 15% of patients taking intravenous infusions of Antineoplastons
—————————————————————— 3. Patients who have most advanced type of cancer will require heavy dosages
—————————————————————— 4. When give large dosages intravenously, have to watch fluid balance…and electrolyte balance
—————————————————————— 5. Intravenous infusion can deliver equivalent of 3,000 tablets a day
—————————————————————— ORAL – CAPSULES OR TABLETS
—————————————————————— 1. Most patients taking oral formulations
—————————————————————— 2. Capsules or tablets
—————————————————————— 3. Limitation of how much medicine can take by mouth
—————————————————————— 4. 50 or 60 tablets a day pretty much all you can take by mouth
—————————————————————— 5. When give orally, see practically no side effects at all
—————————————————————— 6. Patients may develop skin rash, which may last for day or two
—————————————————————— 7. Don’t see any delayed toxicity once treatment stops
—————————————————————— 8. Everything practically goes back to normal within day or two
—————————————————————— 9. Doesn’t even come close to adverse reactions that experience with chemotherapy
—————————————————————— FDA requirements
—————————————————————— 1. Most patients who come to us have received prior heavy radiation therapy, or chemotherapy
—————————————————————— 2. Usually die from complications from these treatments
—————————————————————— 3. Those who survive longest are patients who previously did not receive radiation therapy or chemotherapy
—————————————————————— 4. Longest survivor in this category is now reaching 15 years from time of diagnosis; and she’s in perfect health
—————————————————————— 12/10/1997 
—————————————————————— 1. In addition to original family of Antineoplaston compounds
(the “Parental Generation”)
—————————————————————— 2. Development of 2nd generation of Antineoplastons
In cell culture experiments 2nd generation Antineoplastons developed have been shown to be at least
Thousand times more potent then Parental Generation
—————————————————————— 3. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to
————————————————————— 12/2000 Egypt antineoplaston study 
—————————————————————— 4 newpiperidinedioneA10 analogssynthesized and tested on human breast cancer cell line against prototype A10 and anti cancer drug tamoxifen and DNA binding capacity of compounds evaluated against A10
—————————————————————— “3B” and “3D” were several-fold more potent antiproliferative agents than A10 and tamoxifen and had significantly higher capacity to bind DNA than A10
————————————————————— 10/1/2001 Egypt antineoplaston study 
—————————————————————— Structural characterization of new antineoplaston (ANP) representatives
Combination heat with pH modification had virtually no effect on obtained peaks, attesting to stability and purity of compounds
—————————————————————— One had superior affinity to DNA than
So, what do we know from this interview with Burzynskifrom over a decade ago, his 12/10/1997 Securities and Exchange Commission (SEC) filing and the antineoplaston research from Egypt ?
—————————————————————— 1. Oral (capsule and tablets): PRACTICALLY NO SIDE EFFECTS at all
—————————————————————— 2. Those who survive longest are patients who previously did NOT receive radiation therapy or chemotherapy
—————————————————————— 3. 2nd generation of Antineoplastons have been shown to be at least a THOUSAND TIMES MORE POTENT then Parental Generation
—————————————————————— 4. 3rd generation structurally altered Antineoplaston believe will exhibit markedly improved anticancer activity in human cancer cell lines resistant to Parental Generation
—————————————————————— 5. The research from Egypt shows promising results for binding to DNA
I doubt Dr. Gorski will be blogging about the above, anytime soon, as it
DOES NOT FIT HIS NARRATIVE
====================================== 2000 – Thomas Navarro 
What happened to Donna and Jim Navarro when they chose Burzynski’streatment over orthodox treatments ?
—————————————————————— 4 year oldThomas Navarrodiagnosed with medulloblastoma
—————————————————————— Operated on
—————————————————————— Tumor removed
—————————————————————— Scheduled for radiation therapy
—————————————————————— Parents knew he’d be damaged by radiation therapy
Nobody his age survives this type of tumor anyway after radiation therapy
Why they decided to go to Burzynski Clinic
—————————————————————— Could NOT treat him because FDA requires failure of radiation therapy for such patients
—————————————————————— Parents decided NOT to take any treatment
—————————————————————— Burzynski asked FDA several times to allow administration of Antineoplastons, because already had successful treatments for some other children without any prior radiation
—————————————————————— 5/2001 – developed numerous tumors
—————————————————————— Burzynski suggested to parents they should go for at least chemotherapy
Went for chemotherapy to one of best centers in the country, Beth Israel Hospital in New York
—————————————————————— Chemotherapy was successful, but he almost died from it
—————————————————————— Severly affected his bone marrow
Phone call from Thomas’s father telling Burzynski doctors thinking they won’t do anything else for him and Thomas will die within a week because of severe suppression of bone marrow
—————————————————————— Burzynski encouraged father to do whatever possible because such patients may turn around
—————————————————————— He turned around
About month or two later developed 15 tumors in brain and spinal cord
When close to death, nothing available, FDA called and allowed Burzynski to treat Thomas
—————————————————————— Treated Thomas
—————————————————————— Survived 6 months
—————————————————————— Tumors had substantially decreased
—————————————————————— 11/2001 – ultimately died from pneumonia
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the 15 tumors Thomas Navarro had in his brain and spinal cord, which had substantially decreased under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by chemotherapy ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Dustin Kunnari 
At 2 ½ years old, Dustin Kunnari had brain surgery
—————————————————————— Surgery removed only 75% of tumor
Dustin’s parents, Mariann and Jack, were told Dustinwould only live 6 months
Chemotherapy and radiation may extend life slightly, but at very high cost in quality of life with very serious side effects
Mariann and Jack decided to look into alternatives
Found out about Antineoplastons
After only 6 weeks of intravenous treatment, MRI showed he was cancer free
—————————————————————— One year later another tumor appeared on MRI
By this time Dr. Burzynski had developed more concentrated form of Antineoplastons
—————————————————————— After 5 months tumor was gone
remained cancer free ever since
—————————————————————— Age 7 – taken off Antineoplastons
To further complicate matters, oncologist kept threatening parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment
This continued for a year, even after success with Antineoplastons
—————————————————————— Age 12 at time of 12/2002 interview
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the tumor David Kunnari had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by surgery ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Paul Leverett 
—————————————————————— 5/1999 – diagnosed with glioblastoma multiforme grade 4 brain stem tumor
—————————————————————— Prognosis was would probably be dead before end of 1999
Orthodox medicine gave him no hope of survival
—————————————————————— Given maximum amount of radiation was capable of receiving
Slowed tumors growth slightly, but didn’t alter prospects for survival at all
After research on Internet learned about Dr. Burzynski’sAntineoplastons
—————————————————————— 9/1999 – began taking Antineoplastons intravenously, administered by wife Jennie
After 6 weeks tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks
—————————————————————— 12/2000 – PET scan confirmed complete remission
Stayed on Antineoplastonsuntil 8/2001 to ensure tumor wouldn’t reoccur
Just under 20% tumor necrosis remaining in brain stem, which is probably scar tissue
Oncologist (at MD Anderson, Houston) initially wanted to show scan’s to his hospitals (MD Anderson) tumor review board
for whaever reason, refused further contact and didn’t go ahead with it
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the glioblastoma multiforme grade 4 brain stem tumor Paul Leverett had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by radiation ?
Is this what they mean by:
“In reality, the tumor was just returning to its previous size” ?
====================================== Crystin Schiff 
Ric and Paula Schiff about torture their daughter Crystin had to endure during chemotherapy/radiation treatment
—————————————————————– Diagnosed with perhaps most malignant tumor known, rhabdoid tumor of the brain
Historically, there was no case of such a tumor ever having long response to chemotherapy or radiation therapy
Received extremely heavy doses of radiation therapy and chemotherapy, because nobody expected she would live longer than year or so
Was terribly damaged with this
Responded very well to Antineoplastons
—————————————————————– Complete response
—————————————————————— Died from pneumonia
—————————————————————— Immune system was wiped out, so when she aspirated some food, she died from it
—————————————————————– Autopsy revealed didn’t have any sign of malignancy
Particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s brain tumor, Prados replied in the negative
But a few years before, he had sent you 14 letters documenting effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer
Is this true?
Yes, Jeff Keller had extremely malignant brain tumor
had high-grade glioma of the brain; failed radiation therapy and additional treatments
responded extremely well to our treatment
was one of patients whose case was presented to NCI
there was no doubt about his response
Dr. Prados knew about it
If he was dealing with hopeless tumor like Crystin Schiff, why didn’t he call us?
Do you know why Prados did not tell them about Keller’ssuccess with your treatment?
It’s hard for me to tell
It happens that Dr. Prados and Dr. Friedman, who became boss of FDA, came from same medical school
they work closely together, and perhaps there is something to do with general action against us
It would be inconvenient for Dr. Prados to say that treatment works if FDA was trying to get rid of us and when his friend was Commissioner of FDA at that time
Perhaps that’s the connection….
Perhaps professor and chairman of oncology at the Mayo Clinic in Minnesota, Jan Buckner, professor and head of the division of bioethics at NYU Langone Medical Center, Arthur Caplan, chair of the Children’s Oncology Group, an NCI-supported research network that conducts clinical trials in pediatric cancer, pediatric oncologist and professor of pediatrics and pharmacology at Children’s Hospital of Philadelphia, Peter Adamson, David H. Gorski, M.D., Ph.D., FACS, a/k/a GorskGeek, and “Orac”, ALL think that the rhabdoid tumor of the brain Crystin Schiff had, which disappeared under Burzynski’s antineoplaston therapy, were because of Pseudoprogression a/k/a Pseudo-Progression (psPD) and / or pseudoresponse, caused by chemo and radiation ?
Liz Szabo’sUSA TODAY “killer cancer” article as interpreted by “Orac” made 3 claims :
—————————————————————— “Conventional cancer treatment can also cause tumors to swell temporarily,”
“A patient who isn’t familiar with this”
“may assume her tumor is growing”
The issue with citing these 3 studies is that each then needs to be reviewed to determine if they have any relevance to the patientsBurzynski has treated in the phase II clinical trials:
——————————————————————  – 12/2009 – Pseudoprogression and pseudoresponse in the treatment of gliomas
—————————————————————— 1. Has Burzynskitreated patients with gliomas, brain tumours, or recurrent glioblastoma ?
—————————————————————— 2. Has Burzynski’spatients been treated with combined chemo-irradiation with temozolomide which may induce in 20-30% ?
——————————————————————  – 5/2008 – Clinical features, mechanisms, and management of pseudoprogression in malignant gliomas
—————————————————————— 1. Has Burzynskitreated patients with glioblastoma ?
—————————————————————— 2. Have any of Burzynski’spatients been treated with temozolomide chemoradiotherapy ?
—————————————————————— 3. so-called pseudoprogression can occur in up to 20% of patients
—————————————————————— 4. can explain about 1/2 of 20%
——————————————————————  – In support of this “phenomenon”, the article provides a link to a Canadian web-site which posits:
—————————————————————— “RT/TMZ is now widely practiced and the standard of care for appropriately selected patients, we are learning more about the consequences of RT/TMZ”
“One phenomena, termed Pseudo-Progression (psPD)…”
The problem is that this only applies to “Glioblastoma Multiforme (GBM)”, and the article provides NO proof whatsoever, that any of Burzynski’s “Glioblastoma Multiforme (GBM)” patients have taken “RT/TMZ”
Additionally, the sitecites the reference as:
Sanghera, Perry, Sahgal, et al., “Sunnybrook Health Sciences Odette Cancer Centre” (in press, Canadian Journal of Neuroscience)
(“In press” refers to journal articles which have been accepted for publication, but have not yet been published)
However, the journal article in question was published 1/2010, so it has NOT been “in press” for over 3 years and 7 months 
—————————————————————— GorskGeek stupidly suppositories:
—————————————————————— “It’s very heartening to see a story like this in a major news outlet, and I must congratulate Ms. Szabo for her thorough deconstruction of the phenomenon that is Stanislaw Burzynski“
—————————————————————— GorskGeek, just because a great portion of Liz Szabo’sUSA TODAYarticlequoted verbatim from The Skeptics™ play book, does NOT mean she was anymore successful at “deconstructing” Burzynski , anymore than you have NOT
—————————————————————— GorskGeek then regurgitates:
—————————————————————— “Remember how I said that Bob Blaskiewicz will want your help?”
Anyone may post this interview to their website, as long as it remains
unaltered and freely available. Please place a link back to this webpage.
You may click here to download the PDF version of my interview and
save it to your computer. Please help distribute it. Thank you. Gavin.
Click here to download the free Adobe Reader if you do
not already have it on your computer.
This telephone interview with Dr. Burzynski was held in December 2002. The purpose of the interview is to inform people about Dr. Burzynski’s cancer treatment, Antineoplastons. It will be circulated for free on the Internet. I have no affiliations with Dr. Burzynski either personally or professionally.
Hello Dr. Burzynski. I would like to thank you for taking the time to inform people about your cancer treatment Antineoplastons, and your experiences in the area of cancer over the last 25 years.
Is it true that you were the youngest person in Poland in the 20th century to earn two advanced degrees, an M.D. (Medical Doctor) and Ph.D. in biochemistry at only 24?
I’m not sure if I was the youngest, I was among the youngest. In Poland, its 15 years average (Gavin. For a Ph.D.) after you receive an M.D.
What motivated you to come to the United States? When did you arrive here?
Well basically freedom. You see, I could easily stay in Poland. I was a prominent student, one of the best they ever had in medical school and certainly if I would become a member of the Communist Party I would accomplish a lot in Poland. But I didn’t want to be a Communist and after I declared, “forget it, I’m not going to be a Communist”, they persecuted me. So, practically, it would not be possible for me to do any research in Poland. I arrived in the United States on the 4th of September 1970.
You began working at Baylor College of Medicine in Houston?
I was not employed for 6 weeks, then I got the appointment at Baylor in the position of research assistant. A couple of years later I became Assistant Professor.
I have read that your cancer research was motivated by your observation of a cancer patient in Poland that was missing a particular peptide in their blood, is this correct?
Well Yes. First I discovered some peptide fractions in blood and then I was trying to determine their significance. This means that I was screening the blood samples from people who suffer from various illnesses, among them cancer patients. I found some remarkable changes in concentration of these Peptides in cancer patients. Basically there was a great deficiency of these Peptide fractions in the blood of cancer patients.
What are peptides and how did your research develop from there to developing Antineoplastons?
Peptides are chains of Amino Acids, so if you put together 2 Amino Acids, you have a Peptide.
You have said, “Cancer is really a disease of cells that are not programmed correctly. Antineoplastons simply reprogram them so that they behave normally again.”
They do, but we are not really interested in making normal cells out of cancer cells. What we are interested in is correcting one basic difference between cancer cells and normal cells, and this is the mortality of normal cells and the immortality of cancer cells. Cancer cells are immortal. And if you change them into mortal cells again they will die and the tumor will disappear.
I read a humorous part in Daniel Haley’s chapter about you in his book, “Politics in Medicine.” He says that initially you derived Antineoplastons from your friends blood, but had to change because your friends stopped coming around, is that correct?
Certainly it was difficult to obtain a lot of blood for the research. It was a necessity to look for a source that is widely available. I realized from the very beginning that once I use urine, my critics will use this against me; try to just smear me, “That’s the doctor who is using urine to treat cancer.” But there was no other way to do it.
There are plenty of ignorant remarks about your treatment because it used to be derived from human urine. The process you use now does not involve collecting human urine. Please describe the complete process you use.
Ever since 1980, we are using synthetic analogues of Antineoplastons, made in a state-of-the art biomedical manufacturing facility. These have nothing to do with urine or blood.
Would you describe Antineoplastons as natural?
They are natural of course, they exist in our body.
Your treatment does require a strong commitment from your patients as they must be infused with Antineoplastons for many weeks or months, is that correct?
But most of our patients are taking oral formulations. I would say that perhaps 15% of our patients are taking intravenous infusions of Antineoplastons; the rest take capsules or tablets.
The patients who have the most advanced type of cancer will require heavy dosages. There is a limitation of how much medicine you can take by mouth. Fifty or sixty tablets a day, that’s pretty much all you can take by mouth. But if you give intravenous infusion you can deliver the equivalent of 3,000 tablets a day.
You went into private practice in 1977. How was this funded?
Well, I started private practice in 1973. It was not necessary for me to have any funding, because I joined with other physicians.
Is it true that Dr. Mask at a hospital in Jacksboro, Texas ran your first human clinical trial? What types of cancers did you treat? What were the results of these trials?
I would not call it a clinical trial, because only two patients received initial treatment. They were very advanced, close to death and unfortunately, both of them died. But these cases were not lost because we found we can administer Antineoplastons without having bad side effects.
What is the general side effect experienced by your patients when using Antineoplastons? Does it damage the immune system as chemotherapy does?
We are not talking about one medicine; we tried 12 different pharmaceutical formulations. Basically it depends what formulation we use, but when we give them orally, we see practically no side effects at all. Patients may develop skin rash, which may last for a day or two.
But, when we give large dosages intravenously, we have to watch fluid balance…and electrolyte balance. We don’t see any delayed toxicity once the treatment stops. Everything practically goes back to normal within say a day or two. It does not even come close to the adverse reactions that you experience with chemotherapy.
What is the cost today for a patient using your treatment in a pill form and do insurance companies pay for it? *
Well basically, we do not charge patients for medicines, Antineoplastons are given free of charge. What we are charging for are supplies, and we are charging for standard services such as office visits, nursing services, Lab tests, consultation, evaluation etc. And these services are priced the same way as the average medical services, and they are covered by the insurance.
*(Gavin. Insurance companies will rarely pay for Antineoplastons, which is considered an experimental treatment. It also depends on the type of insurance plan someone may be on.)
So if a patient were using the pills, what would it normally cost per month.
About $2,000 a month.
Antineoplastons is most effective against brain cancer, is that correct?
Well, it’s not really correct. Because brain tumors are very difficult to treat, we concentrate our efforts on the toughest type of cancers. Out of our clinical trials, we have eight that came to the final point, which means they proved that there is some efficacy, and six of these are in various types of brain tumors. But there is another clinical trial, which deals with advanced colon cancer, which also proved efficacy and another one with liver cancer. But we still need to wait a little longer to have a larger number of patients treated and then statistically find out if this is going to work.
Basically the treatment works when we have involvement of the gene, which can be activated by Antineoplastons, and such genes, like gene p 53, are involved in 50% of all cancers. The treatment turns on gene p 53. So it has more to do with what kind of gene the patient has in his cancer cell, rather than the type of cancer.
Is there a special diet to follow when using your treatment?
Yes, since we are expecting there may be some changes in minerals, we usually emphasize a diet that is relatively low in sodium. We treat every patient individually. Every patient has a consultation with a dietary expert who tries to individualize his diet
Is your treatment being used in any other countries?
Yes, we have people coming to us from all over the world. I think we can probably count easily 70 to a 100 countries from which people are coming. But the main effort is now in Japan, outside the US. In Japan there are 2 clinical trials being conducted by Japanese doctors. Also, a group of doctors in Mexico obtained approval from the FDA and Mexican government to do clinical trials.
Now I have several related questions about brain cancer in children.
Dustin Kunnari and Dr. Burzynski. Dustin is one of Dr. Burzynski’s great success stories.
Dustin had brain surgery at 2 ½ years old. The surgery removed only 75% of the tumor.
Dustin’s parents, Mariann and Jack, were told that Dustin would only live for 6 months. Chemotherapy and radiation may extend Dustin’s life slightly, but at a very high cost in quality of life with very serious side effects.
Mariann and Jack decided to look into alternatives. They found out about Antineoplastons and after only 6 weeks of intravenous treatment, Dustin’s MRI showed he was cancer free.
One year later another tumor appeared on the MRI. By this time Dr. Burzynski had developed a more concentrated form of Antineoplastons. After 5 months the tumor was gone. Dustin has remained cancer free ever since and was taken off Antineoplastons when he was 7. Dustin is 12 today.
About how many children suffer from brain cancer in the US each year?
The statistics are available for 1999. The new cases of brain tumors in children were counted as 2,200. Now around 3,000, I would say.
Approximately what percentage of children is still alive after 5 years using orthodox treatments for brain cancer?
It depends on the type of tumor and it’s location, some of the toughest are those that are located in the brain stem. Up to 5 years, you have practically no survival when you use the best treatment available, which is radiation therapy. Chemotherapy usually doesn’t work for such patients. After 2 years, 7 % survival. After 5 years, practically none.
Dustin, after brain surgery.
To further complicate matters, Dustin’s oncologist kept threatening his parents with a court proceeding to take Dustin away and force him to take Chemotherapy/Radiation treatment.
This continued for a year, even after Dustin’s success with Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
Is it correct to say you have had very good results when treating brain cancer in children?
Yes we have. I gave you the example of the toughest, which is located in the brain stem. We get about 40% survival rates after two years. After 5 years at the moment we have about 20% survival rate. The reason is that most of the patients who come to us, have received prior heavy radiation therapy, or chemotherapy. They usually die from complications from these treatments. Those who survive the longest are patients who previously did not receive radiation therapy or chemotherapy. The longest survivor in this category is now reaching 15 years from the time of diagnosis; and she’s in perfect health.
With the more common variety, which is aciotoma located outside the brain stem, we get much, much better. We have 75% of patients who are objectively responding to the treatment. This means that the tumor will disappear completely or will be reduced by more than 50%.
This is another strong point. It’s extremely important. Children are usually damaged for life after radiation therapy, when we can avoid it and bring them back to life.
What criteria must parents of children with brain cancer meet before being able to have their children treated by you?
Well, practically all of these brain tumors must be inoperable. This means that it’s not possible to remove them with surgery. Except for one category, they should have advanced disease. The tumor should have the size of more than 5 mm in diameter and be located in a place that cannot be operated upon.
There is one category of these tumors, medulloblastoma, where the FDA requires that the patients would receive prior standard treatment and fail before we can accept them. In the rest of these children we can accept them without failure of prior treatment.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
Let us talk a little about some of your most successful stories using Antineoplastons with children. Probably the most remarkable case is that of Tori Moreno . In August 1998 Tori was diagnosed with a stage 4 brainstem glioma that was inoperable. Her parents were told she would die in a few days or at the most, a few weeks. When did you start treating her?
Tori had Stage 4 brain stem glioma. The tumor was too risky for surgery. She was diagnosed shortly after her birth. The tumor was very large, about 3 inches in the largest diameter and located in the brain stem. Her parents consulted the best centers in the country and they were told there was nothing to be done. So finally she was brought to us, when she was about 3 ½ months old. This was in October 5 years ago. She was in such condition that we were afraid that she might die at any time. Fortunately she responded, and about 5 months later we determined that she obtained a complete response, which means complete disappearance of active tumor by
MRI criteria. She is a perfectly healthy child and tumor free. She still takes small dosages of capsules of Antineoplastons, but we will discontinue this shortly.
Tori Moreno 9.28.98. Temporarily enlarged due to taking Decadron.
Tori’s parents were told there was nothing that could be done for her and she would be dead in a few weeks.
Tori is alive and well today thanks to Antineoplastons. See photo below.
At the end of this interview, there is a short interview with Kim Moreno, Tori’s mother.
Kim Moreno has set-up a Yahoo e-mail account to answer peoples cancer related questions.
And today she is over 5 years old?
Yes, she’s 5 years old and living a pretty much normal life.
Tori 22.10.02. A perfectly healthy child. Orthodox treatment consists of high does of radiation therapy and possibly toxic chemotherapy as well. Most of the children are dead in a few years. The ones that survive suffer from permanent retardation, along with other serious side effects from the radiation.
Please do not forget about the interview with Kim Moreno, Tori’s mother, at the end of this interview.
But mainstream medicine has been trying to kill the cancer cell using chemotherapy and radiation, is that correct?
That’s right, yes.
Chemotherapy and radiation cannot differentiate between healthy and cancerous cells?
They can differentiate to some point, but basically, this difference is very small, so ultimately, the normal cells will be killed.
Is that why they have such a terrible effect on the immune system?
That’s right, not only the immune system, but also many other systems in the body. Practically, the treatment is destroying healthy parts of the body.
Chemotherapy and radiation also cause cancer, don’t they?
Yes. For instance right now we see a lot of patients who in childhood were successfully treated for leukemia or for Hodgkin’s disease. Then they develop cancer that is practically incurable, like lung cancer, breast cancers; I even encountered a patient in my practice that developed three different types of cancers, and was only 28 years of age. First she was treated for Hodgkin’s Disease, then she developed bone cancer in the places which were radiated for Hodgkin’s Disease, and then she developed breast cancer after that; it’s really horrible. So there is increased incidence of secondary cancers in patients who were treated previously with chemotherapy and radiation.
Shontelle Huron. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons. firstname.lastname@example.org
Ric and Paula Schiff write about the torture their daughter Crystin had to endure during chemotherapy/radiation treatment.
Crystin was diagnosed with perhaps the most malignant tumor known, which is a rhabdoid tumor of the brain. Of course, historically, there was no case of such a tumor ever having a long response to chemotherapy or radiation therapy. She received extremely heavy does of radiation therapy and chemotherapy, because nobody expected that she would live longer than a year or so. So unfortunately she was terribly damaged with this. She responded very well to Antineoplastons. We put her in complete response. But unfortunately she died from pneumonia. Her immune system was wiped out, so when she aspirated some food, she died from it. The autopsy revealed that she didn’t have any sign of malignancy.
But there are also likely permanent severe health concerns related to taking chemotherapy and radiation.
In young children there is permanent damage to the brain. Unfortunately some oncologists who are dealing with such cases are really cruel to the parents, because they are saying, “well, your child will survive, but you are going to have a jolly idiot for the rest of your life.”
Is it true that if parents refuse chemotherapy/radiation treatment for their children the hospital, via the courts, could have the child removed from the parents care and forced to take chemotherapy/radiation treatment?
Yes, unfortunately in some States, the law may require taking children away from the custody of the parents to send them to such treatments.
Jared Wadman. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
Isn’t this what happened to Donna and Jim Navarro when they chose your treatment over orthodox treatments?
That is correct. Thomas Navarro was diagnosed with medulloblastoma. He was operated on and the tumor was removed. Then he was scheduled for radiation therapy. Since he was only 4 years old, the parents knew that he’d be damaged by radiation therapy. Nobody at his age survives this type of tumor anyway after radiation therapy. So that’s why they decided to come to our clinic. Unfortunately I could not treat him because FDA requires failure of radiation therapy for such patients.
And tragically he died in November 2001.
What happened was, the parents decided not to take any treatment. We asked the FDA several times to allow administration of Antineoplastons, because we have already had successful treatments for some other children without any prior radiation. Then ultimately he developed numerous tumors in May the following year. Then we suggested to the parents of Thomas, that if they are not going to take our treatment, they should go for at least chemotherapy. They went for chemotherapy to one of the best centers in the country, to Beth Israel Hospital in New York. The chemotherapy was successful, but he almost died from it. It severely affected his bone marrow. I remember a phone call from Thomas’s father telling me that the doctors are thinking that they won’t do anything else for him and that Thomas will die within a week because of severe suppression of bone marrow.
But I encouraged his father to do whatever is possible because such patients may turn around. Fortunately he turned around, but about a month or two later he developed 15 tumors in the brain and the spinal cord. Then, when he was close to death, when nothing was available for him, the FDA called us and told us now we can treat Thomas. When we treated Thomas he survived 6 months, and the tumors had substantially decreased, but ultimately he died from pneumonia.
Is it accurate to say that the initial orthodox treatment for brain cancer is surgery to remove the tumor?
If the tumor is located in the proper part of the brain. For some locations it is out of the question. But, you are right, that is the first step.
Does surgery alone ever cure a patient with brain cancer?
Well, some cases, with benign brain tumors, when the tumor can be completely dissected, yes, it’s possible. But in most cases it’s not possible.
How much of a risk does surgery present regarding spreading the cancer more quickly and other complications?
Well, not so much regarding spreading the cancer more quickly in the case of brain tumors. Such a spread may happen only with a small percentage of brain tumors that have the highest aggressiveness. But for most of the patients the tumor is not going to spread just because of surgery. Certainly surgery may damage the brain and patients may even die during the surgery. It’s not the ideal thing to do of course because you are removing the tumor and you are removing a healthy part of the brain at the same time. The patient may be permanently damaged by such procedures.
Would you warn against rushing into surgery in light of how effective your treatment is? Would you most times recommend trying your treatment first?
We really would like to know what we are dealing with. This means that we would like to have at least a biopsy; if by chance it’s not going to create sufficient risk for the patient. If the tumor was located in such a place in the brain where surgery is possible, then certainly we could try to remove the tumor. But I think it would be best if we can treat the patient with brain intact and get rid of the tumor completely, because then we risk the least damage possible.
Now I will turn my attention to your legal battles with the FDA. They began in 1983 when they sued you in civil court, is this correct?
In 1983, that was the first court battle with the FDA. The FDA sued us. It took about 6 weeks in court and again, we won.
Then there was an enormous raid by the FDA at your offices on July 17, 1985. What was the reason for this raid?
We were never given a reason. I think there was a concentrated action against a few alternative medicine centers because at the same time there were similar actions in the Bahamas and in some other places.
In the four court cases the FDA has brought against you, have any of your patients testified against you?
Well, on their own will, nobody testified against us. But the FDA encouraged some of our patients, and threatened them in various ways. They forced them to come to the witness stand. But really, once they were on the witness stand they behaved more like our witnesses, not FDA witnesses.
According to Daniel Haley, after the FDA lost its last court case against you in 1997, Congressman Richard Burr said it was “one of the worst abuses of the criminal justice system”. Did Burr ever speak to you about it?
Yes, we talk with Congressman Burr. I believe he is right, because certainly there was no reason for such massive action on the part of the FDA. They knew that the treatment works; that the treatment helps patients, that the patients will die if they win, so they should not do it. All of this was with the taxpayer’s money.
So the FDA has wasted many millions of taxpayer dollars trying to convict you on false charges of transporting Antineoplastons across State lines. What was the motivation for this vendetta?
Well, it’s hard to tell, because it was never properly investigated; why they did it. But, we have some leads. For instance, on one side you have a large pharmaceutical company, which was very interested in getting hold of our patents; this is Elan Pharmaceutical. It happened that I treated successfully a close relative to the CEO of Elan. Elan became very interested in what we have. They came close to signing a final license agreement. But after they learned what we have, they decided to withdraw and then suddenly the FDA and NCI gave their full support to Elan, to do clinical trials with one of the ingredients of Antineoplastons, phenylacetate.
This was a large pharmaceutical company that was trying to appropriate my invention. On the other hand, within the FDA and NCI you have had people who were working closely with this company. For instance Mary Pendergast, who was responsible for the legal action against us, became Vice President of Elan. Also Doctor Michael Friedman, who was initially in charge of NCI cancer research, and who knew that our treatment works, later became commissioner of FDA and he did whatever he could to put us out of business. Not only that, but to simply destroy me.
On the other hand, suddenly the government decided to file for the patents, which claimed the same thing that our patents did. Never in the history of the United States do you have the issuance of two patents for the same invention. It was really a breach of patent procedure. The patent office allowed them to patent something I invented, and which I patented. And dishonest scientist Dr. Dvorit Samid, who initially worked for us, was receiving funds from us and finally went for the higher bidder (Elan).
So you have a lot of leads, which indicate that there was something between the government, dishonest scientists like Dvorit Samid and the large pharmaceutical company, Elan. And it was in best interests for them to get rid of me, destroy me, so they could appropriate my discoveries and benefit from that.
When did you initially apply for your Investigational New Drug (IND)?
We applied in May 1983.
When did you receive it?
Well, it took an extremely long time. Ultimately most of our clinical trials began in 1996, a long time after that. FDA did not allow us to proceed with clinical trials for an extremely long time. Please click here to read the
conclusion of this interview
E-mail this sites address to someone and help spread the word
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
It is important for everyone to understand the economics of the drug industry. I have heard that the cost today for bringing a drug to market is upwards of 500 million and takes about 12 years, is that true?
Yes, you’re right.
The drug company is then given a 17-year patent so that it can make a profit on the drug. It is little wonder the drug companies fight against natural treatments such as Laetrile, because they are unable to patent them and they pose a serious threat to their profit margins. But you are able to patent your treatment, so why was there no interest in it from the drug companies?
Basically you have 17 years from the time when you have approval of the patent and this is independent from FDA’s approval process. You file the patent, once you make a discovery, and then you go through FDA procedure. You spend say 12 years or 15 years for the approval process, then you have only 2 years license from the FDA, because license is going to expire in another 2 years. Certainly the pharmaceutical companies are spending a lot of money in this process.
In our case I decided to develop this on my own, to generate money from my private practice and use the money to support the research of Antineoplastons. Again we were approached by many different pharmaceutical companies, which were interested in working with us. Certainly after the bad experience (with Elan) we are very cautious with whom to deal. On the other hand pharmaceutical companies were afraid of action from the FDA.
The NCI put off testing Antineoplastons using the fact that it failed their standard P388 leukemia mouse test, is that correct?
What is the P388 leukemia mouse test and why did Antineoplastons fail it?
Well we had informed the NCI that this was a bad type of test for antineoplastons. Antineoplastons seems to be specific for species. Different animals have different antineoplastons; mice have a different composition of antineoplastons than humans. Practically, human antineoplastons may work well in humans, but they may not have much activity in mice. We knew this, even before the NCI began testing. On the other hand we didn’t have good results at all in the acute form of leukemia and we didn’t even accept such patients. It was known that if they only do this type of test, it was not going to work. They still tested and used this to say that Antineoplastons don’t work against cancer. Certainly the fact that something works or doesn’t work against mice leukemia is irrelevant.
I’d like the reader to bear with me in the next few questions, as the point will become clear. One of the chemicals you identified in the peptides was phenylacetate. But it was far inferior to the others and you chose not to patent it, is that correct?
This is not a peptide, this is a metabolite of our antineoplastons and it’s an organic acid. So this is a final metabolite of antineoplastons. It has some anti-cancer activity, but the weakest of all antineoplastons. We knew about it and that’s why after some preliminary experience in the treatment of phenylacetate back in 1980, we decided that it’s not worth pursuing this and then we used antineoplastons that have higher activity.
But didn’t you later find out that the NCI actually holds the patent for phenylacetate?
You’re right. NCI is the owner of the patent, Dr. Samid is the author but Elan has the license to use these patents. All of these three work together.
Why did the NCI patent something that was far inferior to your other Antineoplastons?
Because they knew that this was the only chance that they can get hold of something which has to do with antineoplastons.
The NCI ran clinical trials on phenylacetate in 1992 and found it to be worthless, is that correct?
Well, the clinical trials began in 1992 but it took a few years to have the results. It shows some effectiveness in brain tumors and in prostate cancer. But of course it was far away from the results that we can get with antineoplastons.
When did the NCI eventually start clinical trials of Antineoplastons?
I assume you gave the doctors running the trials all the information about correct dosages, is that true?
Yes, well, basically they used dosages that were 50 times lower than what we feel are effective dosages. We have some patient’s relatives who were present when the treatment was administered. Formulations of antineoplastons were badly diluted. This means that the patient was receiving very little antineoplastons and some of these patients were removed from the treatment after a short period of time because they were overloaded with fluid. Well normally we see fluid overload in perhaps less than 2% of our patients. So it makes sense that perhaps the formulations of antineoplastons were diluted and when the Mayo Clinic (1999) determined the concentration of antineoplastons in blood, we realize that it was something like 50 times lower than what it should be.
Do you think the NCI purposely sabotaged your trials?
I have no doubt about it. They sabotaged the trial; they accepted patients who were too advanced. Their main effort was to give a low dose of the medicine for a short period of time and to stop treatment just for some minor problem, like if a patient developed a skin rash. They were trying to give the treatment only for a very short period of time, like for instance a couple of weeks or a month. And then of course the patient was dying after that. It was completely unethical, it was horrible. As you probably heard recently, the pharmacist who was diluting an anti-cancer drug, was sentenced to 10 years in prison. I think the same should happen to these guys who really were trying to use this for their political manipulations.
Jessica Kerfoot. In remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
How much influence do the pharmaceutical companies wield in medicine in the US?
Extreme influence. Most of the oncologists, I’m talking about reputable oncologists, they work for pharmaceutical companies, they work in clinical trials, they receive various type of incentives from pharmaceutical companies. And basically these doctors are approving medicine, FDA may approve the medicine, but finally this advisory board may advise FDA to go ahead with this or do not approve that medicine. So really the doctors who are deciding if the medicine should be approved or not, practically all of them have some type of relation with large pharmaceutical companies.
Is there a conspiracy to suppress other treatments or is it just a case of avaricious businesses, the pharmaceutical and hospital industry’s, doing everything in their power to protect their bottom line?
Well certainly they have a lot of power. When I filed my application for IND, the standard FDA policy was such that they would never approve a new drug for an individual owner, only for the large pharmaceutical companies. And that’s why I believe we waited for such a long time to receive the go-ahead for our clinical trial. So certainly there were obstruction tactics. Whether this is a conspiracy or not is hard for me to tell. As you can see, the leads which I presented, like for instance a researcher who worked for me initially and then decided to go to the higher bidder, which was a pharmaceutical company; then the relationship between the pharmaceutical company and governmental agencies. All of this indicates that there is some type of conspiracy. I think a Congressional committee should study this.
Turning our attention to the doctor/oncology profession. When reading Thomas Elias’s excellent book, “The Burzynski Breakthrough”, I was struck by how many times patients said that their oncologists were aggressively opposed to them taking your treatment.
Even after a patient’s success with your treatment, very few doctors give you the credit. Is this due to jealousy, arrogance, plain old denial or something else?
Probably a lot of arrogance. We have some prominent specialists, the best specialists in the world who really acknowledge our results and would like to work with us. On the other hand you have some doctors who hate to see a patient with success on our treatment. The fact that the patient is coming to their office, years after the patient should be dead, is something like a slap in the face. They hate it.
They will do everything they can to lie, to obstruct the information about this patient. We have a lot of evidence that oncologists were lying about the patient’s condition. For instance the patient recovered completely from highly malignant cancer and the oncologist was telling us the patient died from cancer. So certainly, we have a lot of evidence about some of these doctors who are dishonest, who are liars, who cheat. But on the other hand you can’t really put the same label on the entire profession. There are many other doctors who are honest and who like to know about what we have. Of course our clinic has board certified oncologists who are taking care of our patients.
I found an interesting quote by David Stewart, a philanthropist who helped fund Gaston Naessens cancer research in the 70’s. He says,
“I can say categorically that most scientific researchers with whom I have had to deal are highly opinionated, arrogant, condescending, and have built-in, insurmountable prejudices.”
Would you agree with these sentiments? What have your experiences been?
Well certainly, I think he’s right; unfortunately that’s the truth.
We spoke about Crystin Schiff briefly before. This is a particularly despicable story, because when Ric Schiff asked Dr. Michael Prados, then head of neuro-oncology at University of California at San Francisco Medical Center (UCSF), if he knew of any other treatment besides chemotherapy/radiation for Crystin’s brain tumor, Prados replied in the negative. But a few years before, he had sent you 14 letters documenting the effectiveness of Antineoplastons on Jeff Keller, another patient with brain cancer. Is this story true?
Yes, it’s true; of course Jeff Keller had an extremely malignant brain tumor. He had a high-grade glioma of the brain; he failed radiation therapy and additional treatments. He responded extremely well to our treatment. He was one of the patients whose case was presented to the NCI. So there was no doubt about his response. Dr. Prados knew about it. If he was dealing with a hopeless tumor like Crystin Schiff, why didn’t he call us?
Ryan and mother Cindy. Ryan is in remission for several years after using Antineoplastons.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
Do you know why Prados did not tell them about Keller’s success with your treatment?
It’s hard for me to tell. It happens that Dr. Prados and Dr, Friedman, who became the boss of the FDA, came from the same medical school. So they work closely together, and perhaps there is something to do with the general action against us. It would be inconvenient for Dr. Prados to say that the treatment works if FDA was trying to get rid of us and when his friend was Commissioner of the FDA at that time. Perhaps that’s the connection….
One of your greatest critics is Saul Green (Ph.D. Biochemistry), a retired biochemist from Memorial Sloan Kettering. In 1992 the Journal of the American Medical Association (JAMA), published Green’s article, “Antineoplastons: An Unproved Cancer Therapy.” What were his conclusions about Antineoplastons?
Well, Green is not a medical doctor, he’s a retired biochemist; he never reviewed our results. He got hold of some of our patents and that’s what he based his opinion on.
He was hired by another insurance company (Aetna) that was in litigation with us. He’s like a hired assassin. Not telling the truth. So really to argue with him is good for nothing. Even if something were completely clear he would negate it. He is simply a guy who was hired by our adversaries. He would do whatever they paid him to do.
Paul Leverett was diagnosed with a glioblastoma multiforme grade 4 brain stem tumor in May 1999. The prognosis was that he would probably be dead before the end of 1999. Orthodox medicine gave him no hope of survival.
Paul was given the maximum amount of radiation he was capable of receiving. It slowed the tumors growth slightly, but this did not alter Paul’s prospects for survival at all.
After completing some research on the Internet Paul learned about Dr. Burzynski’s Antineoplastons. Paul began taking Antineoplastons intravenously, administered by his wife, in September 1999. After 6 weeks Paul’s tumor had grown by only 2 %, Glioblastoma’s normally double in size every 2 weeks.
A PET scan in December 2000 confirmed that Paul was in complete remission. He stayed on Antineoplastons until August 2001 to ensure the tumor would not reoccur. There is just under 20% tumor necrosis remaining in his brain stem, which is probably scar tissue.
Paul’s oncologist (at MD Anderson, Houston) initially wanted to show his scan’s to his hospitals (MD Anderson) tumor review board. But then, for whaever reason, he refused further contact with Paul and did not go ahead with it.
The photo was taken with his wife Jennie. Paul had a web site created in order to inform people about his cancer experiences. http://www.dontevergiveup.com
Did Green ask to look at your patients’ files or even talk to any of your patients themselves?
You responded with an article with 137 references, did JAMA publish even part of it?
JAMA refused to publish the article. They decided that they would publish a short letter to the editors. And obviously this is another dirty thing, because letters to the editors are not in the reference books. If you look in the computer and try to find letters to the editor from JAMA, you’ll never find it. So people who are interested will always find Green’s article, but they will never find our reply to Green’s article, unless they go to the library. Then they can look in the JAMA volume in which the letter was published, and then they will find it. So many doctors were asking me why I did not respond to Saul Green’s article because they never found my letter to the editors.
Are they obligated to publish your rebuttal?
Certainly they are, because they put Green’s article in JAMA in the first place, they accepted it without any peer review and then they did not allow me to honestly respond to it. I should be allowed to publish my response to the article in JAMA.
At the time of the publication Green was working as a consultant to Grace Powers Monaco, Esq., a Washington attorney who was assisting Aetna insurance agency in its lawsuit against you. What was the Aetna lawsuit about?
One of our patients sued Aetna because Aetna refused to pay for my treatment. Then Aetna got involved and Aetna sued us. Aetna really became involved in what you can call racketeering tactics because they contacted practically every insurance company in the US. They smeared us, they advised insurance companies to not pay for our services. So based on all of this, our lawyer decided to file a racketeering suit against Aetna. This was a 190 million dollar lawsuit against Aetna. So certainly Aetna was trying to discredit us by using people like Saul Green. And they hired him to work on their behalf.
So there was an obvious conflict of interest for Green because he worked for Monaco who was assisting Aetna. Was this information published in the JAMA article?
Green also questions the fact that you have a Ph.D.. At the American Association for Clinical Chemistry Symposium, July 1997, Atlanta, GA., he says in part
“Burzynski’s claim to a Ph.D. is questionable. Letters from the Ministry of Health,
Warsaw, Poland, and from faculty at the Medical Academy at Lublin, Poland, say,
1. At the time Burzynski was in school, medical schools did not give a Ph.D.
2. Burzynski received the D.Msc. in 1968 after completing a one-year laboratory
project and passing an exam. (3) Burzynski did no independent research while in medical school.”
He cites the people below as giving him some of this information.
1. Nizanskowski, R. ,Personal communication. Jan 15, 1992.
3. Bielinski, S., Personal communication, Nov. 22, 1987
First of all, do you have a Ph.D.?
Well, the program in Poland is somewhat different than the US. What I have is equivalent to a US Ph.D. When a medical doctor in the US graduates from medical school, he receives a medical doctor diploma. In Poland it’s a similar diploma, but it’s called a physician diploma, which is equal to medical doctor. And after that, if you would like to obtain a Ph.D., you have to do independent research, both in the US and in Poland. So you have to work on an independent project, you have to write a doctorate thesis and, in addition, to that in Poland, you have to take exams in medicine, in philosophy and also you have to take exams in the subjects on which you have written your thesis, in my case this was biochemistry.
As you can see from the letter from the President of the medical school from which I graduated, this is a Ph.D..
Saul Green got information from the guys who were key communist figures in my medical school. The second secretary of the communist party in my school, hated my guts, because I didn’t want to be a communist. So, somehow, Green got hold of “reputable” communist sources (laugh) to give him that information. It is exactly the President of the medical school who certified that I have a Ph.D..
So you are saying that theses people he received his personal communication from, Nizanskowski R, and Bielinski S, are both Communists, is that correct, or they were?
Not only communists, but Bielinski was one of the key players in the communist party in my medical school. So certainly he was extremely active as a communist. And, you know that communists, they usually don’t tell the truth.
So there is absolutely no question about it, you have a Ph.D. and Green’s doubts are totally without foundation. Has he ever acknowledged publicly the fact that you have a Ph.D.?
He’s never got in touch with me regarding this.
There are some mainstream oncologists who have stated publicly that your treatment works such as Dr. Robert Burdick, oncologist and professor at the University of Washington Medical School.
He is one of the top experts in this field.
Dr. Burzynski, there are undoubtedly many people alive today solely because of your treatments, but there could be many hundreds or thousands more alive if the public was given free access to your treatment. Do you see this ever happening?
I see this happening within a few years. We already have 8 clinical trials that prove efficacy of the treatment. However, we still need to treat more patients, because in each of our clinical trials it is required that we treat 40 patients. If we are talking about 78 clinical trials, then the number of patients that need to be treated is about 3,000. We are moving forward, probably in another 2 to 3 years we will have final approval.
You may also e-mail Mary Jo Siegel, the lady who runs the web site. Mary is also a cancer survivor using Antineoplastons.
You have fought the government on behalf of your patients’ rights for over 25 years. There must have been a few times when you considered calling it quits. What has sustained you over the years and kept you fighting?
Well you see, basically the principle. Certainly I could practice just regular medicine and not
spend millions of dollars for the research, which I did. And I could go to some other country and practice. But I feel that this is my obligation because what I am doing is right. I’m saving peoples lives. So why should I give in to some mediocre characters, to liars, to people who really misrepresent what I do. And if I fail, then America will fail also. Because really America is the bastion of Democracy in the world. If America is rotten, then the whole world will go down to hell. So if something is rotten in the Patent office, in the NCI and FDA, it is the duty of the citizen to show that this is rotten and should be corrected.
There are a number of good people who can make it work, so why should bad people erode and destroy the entire system. I felt that this was my obligation; I felt that I was right and even if I had to go to prison, I would fight for it, because this is the right thing to do. Otherwise I could not look at myself in the mirror. I would despise myself.
Do you think we will we ever have medical freedom of choice in the US, where we can choose whatever treatment we want for cancer?
I am not sure if this will ever happen. But at least I am hoping that the movement, which we pioneered, like this alternative medicine movement, will bring a lot of good to the American people. After all, now you have official recognition of alternative treatment, more or less, and this is because of our fight. If we wouldn’t fight at that time, then perhaps it would not happen, but maybe it would happen another ten years from now.
Standard medical practices and the observations of physicians who are outside the medical establishment are extremely important, because anybody can make a discovery and improve the health of people. This I think is an important movement, but whether the people of America will ever have a chance to select whatever treatment they want, is another story.
Finally Dr. Burzynski, a hearty thanks to you for keeping your treatment available to cancer patients, for keeping your oath as a doctor and putting the patient ahead of financial gain, and of course, for saving lives. Please keep up the great work. Thank you for giving me the time to conduct this interview and inform people about your work and treatment.
End of interview.
Please be aware. Orthodox medicine often states that people who have recovered from cancer by unapproved methods did so due to a “spontaneous remission”. This means that the cancer just disappears for no apparent reason. First of all, I do not know of any documented cases of spontaneous remissions in brain cancer. In other serious cancers it is so rare as to be unworthy of discussion.
But here is the most crucial point. A true spontaneous remission is when the cancer goes away without any treatment, either approved or unapproved. It’s absurd to suggest that someone who received large amounts of Antineoplastons, and is then cancer free, had a spontaneous remission. If someone has surgery to remove a tumor and they are cancer free for years, we know it was because of the surgery.
Also remember that in many cases cancer patients turn to Antineoplastons (and other so-called alternatives) after chemotherapy and/or radiation have failed. If the patient goes into remission, oncologists often state that it was a delayed response to their treatment. This is a very convenient situation for oncologists. When their treatments fail, they still claim the credit for the patient’s recovery, even after the patient has been on Antineoplastons (or other treatments) for months/years.
Read about Dr. Burzynski’s treatment from the most important sources, the patients who had cancer and who are alive today because of Antineoplastons. The Burzynski Patients Web Site
Kim also has an e-mail account she specifically set-up for people to contact her about her experiences with Dr. Burzynski, oncologists, Antineoplastons and cancer treatments in general. Any e-mail unrelated to these subjects will be deleted.
While searching the Internet for links related to Koch’s glyoxylide, I found a recent article on Dr. Mercola’s web site related to a drug called Methylglyoxal (the lead ingredient, which is a metabolite in our body) that has been tested in India for over ten years. Please see, http://www.mercola.com/2001/jun/13/methylglyoxal.htm
Thank you for taking the time to inform people about your family’s experiences while your daughter Tori was taking Antineoplastons.
Tori was first diagnosed with a Stage 4 brain stem glioma in August 1998, is that correct?
What was the prognosis?
The doctor’s basically told us to take her home and prepare for her to die.
Were there any records of anyone surviving with this type of cancer, using orthodox treatments?
None that they could provide us with.
How many cancer centers did you visit?
We originally were at Miller’s Children at Long Beach Memorial and then went to City of Hope. We also sent her MRI’s to Dr. Fred Epstein in New York to be looked at.
And they all said the same thing, Tori’s brain cancer was fatal and nothing could be done? How long was she expected to live?
Yes, they all said there was nothing we could do. She was given 2-6 weeks to live.
How did you find out about Dr. Burzynski and Antineoplastons?
On the Internet on a brain tumor support group. We read a letter from a father whose daughter was on the treatment.
Did you ask your doctors about Burzynski? Had they heard of him or researched his treatment?
Yes, we asked all of them about it. Most frowned at the idea, the oncologist refused to see her if we took her to see Dr. Burzynski. The only one who told us that he thought Dr. B might have a good chance with helping us was Dr. Fred Epstein.
When did you first visit him?
In October 1998
Did he tell you he could cure Tori?
No. He said he thought Antineoplastons would help her, but he wasn’t sure he had enough time. He was very upfront and honest with the statistics he had with her type of cancer but offered no promises.
How much Antineoplastons was Tori taking?
I can’t even remember what dose she ended up on when she was taking it intravenously.
What were the side effects? In the photos you sent me, Tori is greatly enlarged, I assume due to fluid retention. Is that what it was? How was that alleviated? Were there any other side effects due to the Antineoplastons?
We always had to monitor her potassium and sodium. So, she had to drink a lot of water and therefore we went through a lot of diapers. Those were the worst of the side effects. In the picture, she was so large due to being on Decadron, which we were able to wean her off of in January 1999.
Were you surprised when Tori started responding?
Yes, I have to say I was. It is hard to believe something great is going to come out of something so painful. I guess she taught me not to lose faith in life.
How soon was it before Tori’s brain tumor started reducing in size?
Immediately. It had shrunk in size by 20% after the very first MRI, which I believe was in 6-8 weeks…it’s been a long time and a lot of MRI’s later.
For how long did Tori continue to take Antineoplastons intravenously? Did you administer this yourself at home?
She took them through IV for 2 years and yes; we did this all at home.
Does your insurance company pay for the treatment? Did they try to avoid paying for it?
No, they do not pay for the treatment.
I understand Tori is 5 today. Is she still taking Antineoplastons? Has the tumor completely gone?
Yes, she just turned five in June. She still takes Antineoplastons orally…. she takes 40 capsules a day. Her tumor has decreased in size by 86% and they believe what is left may be scar tissue.
Has Tori suffered any permanent side-side effects from Antineoplastons?
Not one. In fact, it decreased her symptoms dramatically and never caused her any harm.
So Tori is cancer free and side effect free today?
This is an incredible story Kim. Your child was diagnosed with a fatal brain cancer and the best oncologists and surgeons in America told you it was hopeless. Yet you found a cure for your child, without the billions, and so-called cancer specialists, that the NCI has at its disposal. Have any oncologists or doctors asked you about Dr. Burzynski’s treatment?
They tend to ask very quietly, but never really respond to what I have to tell them. There is curiosity there, just no one is really willing to step up to the plate and believe that the antineoplastons had something to do with her survival.
What do they say now that Tori is alive and well?
The neurologists told us that sometimes it happens and they called it “spontaneous remission”. Again, I asked them to provide some statistics and there were none to be seen.
That is of course the height of absurdity. To my knowledge, there has never been a documented case of any brain cancer going into spontaneous remission. Have you ever mentioned that to them?
Yes, again with no intelligent response.
So they are quite content to administer the same cancer causing, toxic treatments, when they know about your daughter’s success with Antineoplastons?
Absolutely. It amazes me that some of them can sleep at night.
Has your opinion about the medical profession, specifically cancer specialists, changed since Tori’s recovery? If it has, in what manner?
Yes, it has changed a lot. I guess the biggest change would be that I no longer sit back and believe anything a doctor tells m e and that we have to take our healthcare into our hands by searching for legitimate options. I believe we have the right to choose.
What do you think about the fact that some 3,000 children in the US (untold thousands worldwide) this year will be diagnosed with some form of brain cancer, and their families will have to face the same horror you did, the horror of losing a child. But virtually all of them will not be told about Antineoplastons, the treatment that cured Tori?
It really makes me sick to my stomach. That is why I want to talk to anyone who wants to listen about Tori’s Story
Finally, I commend you and your husband for finding a way to cure your daughter, when all the “experts” said it was hopeless. You gave her life when she was born, and then you saved her life by finding Antineoplastons.
I thank you once again Kim for answering my questions and sending me the photos of Tori. Give my best to your family.
Gavin Phillips opinion
Dr. Burzynski is a great rarity these days. He is a courageous man who risked everything battling the FDA for over 15 years so as to allow cancer patients access to his treatment. A doctor who puts his patients well being before financial gains. But how many people diagnosed with cancer this year will ever find out about Antineoplastons? A tiny percentage, because very few mainstream oncologists will inform their patients about a treatment that has yet to be approved. And why is that? The NCI and ACS have supposedly been searching for decades for any and all treatments that are effective against cancer. For over 15 years Dr. Burzynski’s treatment has shown that it is effective. Many cancer patients, including some very young children with supposedly hopeless brain cancers, are alive today because of Antineoplastons.
Here we come to the most crucial questions of all. Why did the FDA try their utmost to ruin Dr. Burzynski by involving him in 4 court cases? Why did the NCI make certain Burzynski’s clinical trials failed by diluting his treatment and enrolling patients who were the least likely to respond to Antineoplastons? If this was a one-time only event, we could dismiss it as an aberration; on overzealous government agencies. But the persecution of Dr. Burzynski is not an aberration, but the norm. There have been many well-documented cases in the last 70 some years of doctors/healers who discovered an effective cancer treatment, only to find the full force of the cancer agencies trying to destroy them and their discoveries. I have learned about several during my research. Dr. William Koch/Glyoxylide, Dr. Andrew Ivy/Krebiozen, Harry Hoxsey method/herbs, Royal Rife/radio waves, Ernst Krebs/ Laetrile/Amygdalin, Gaston Naessens/714 X, Dr. Lawrence Burton/Immuno-Augmentative Therapy, Dr. Max Gerson method/diet.
What, if anything, does Dr. Burzynski’s Antineoplastons have in common with these other treatments? Most of them are natural; all of them are inexpensive to produce, especially when compared to the enormous costs of conventional treatments. If cheap cancer treatments with virtually no side effects were allowed to freely compete with the cancer causing offerings of the pharmaceutical companies, the outcome is obvious. The pharmaceutical companies, and the hospitals that administer their drugs, will lose tens of billions in profits. And this I believe is the reason Dr. Burzynski, and the people who have gone before him, have been publicly vilified as “quacks” and their treatments discredited. The fact is that the pharmaceutical companies control American medicine, and they are only interested in treatments from which they can derive a profit.
Every cancer patient in America, and the world, should have free access to Antineoplastons. It is intolerable, not to mention totally un-American, to give a profit obsessed industry a monopoly over Americans healthcare. Nobody should have the right to force toxic chemicals down our family’s throat, especially when Dr. Burzynski’s treatment has proven effective (for some cancers) and does not have appalling side effects.
One point, in which I disagree with Burzynski about, is the possibility of medical freedom of choice happening in America. It would happen in a year or two if enough Americans demanded it. You can help make that a reality. Please forward this interview to as many people as you know, as well as media outlets. Around ten thousand Americans die every week from cancer; we simply must have medical freedom of choice. Thank you for your time.
Gavin Phillips. http://www.cancerinform.org
E-mail this sites address to someone and help spread the word
====================================== Juan F. Martinez-Canca – Consultant – Neurosurgeon (20:31)
So tell me a little about brain tumors
When did you kind of first come across your first brain tumor ?
My very first brain tumor was in high school, unknown entity, fascinating, enigmatic
Unknown, is the word
Uh yes, I hoped
I must say the uh vocation initially in my case came at an early stage in my life
I remember very well, 3 years old saying I will be a doctor, a doctor, a doctor, and gradually I became aware of this vocation from neurosurgery but really I didn’t know what from because of vocations like see it
I put in my soul, so what ?
Here we are
realize that in the following years
My first professional brain tumor was impressed in 1996, something called glioblastoma multiforme, and I was uh, uh, shocked, and thrilled, and excited by seeing a nasty glioma as my register described it
And I was uh in as you can see my poor English
I just wrote in my notebook nasty glioma must be nasty in the history of classification
That person died, unfortunately after a few months, it was a very bad disease, at that stage, was really advanced and uh that was my first ? with reality
The glioblastoma, or nasty gliomas kill people
And that was the starting point of a, of a very complex process that I am still never looking (?)
—————————————————————— Hannah’s Operation (1:35)
In the case of Hannah we wanted to wake her up to make sure that we could remove the whole entire ter (?) as much as we can see, or feel it, without damaging, basic structures
Language, relation with outside world, movement, etcetera, etcetera
That requires a very specific and very expert high expertise from the, from the surgeon, because normally everyone is not awake during this
It’s a very specific operation
Mr ? we were lucky, was there to do it, and I was lucky enough to be the co-pilot
So we performed this procedure
I can’t remember the date now
April, the 1st
April Fools Day
On April the 1st we awakened ?
and I remember very well, that huge feeling of satisfaction, at the end of the procedure
I have, I still have my pictures, do you remember ?
We were taking some pictures during the operation
and that is ? like a trophy, because some people are not very good, some of the people are not very well, but in this case we had fantastic surgeon, a fantastic patient, and a great environment, and it worked very well
And the end of the operation, I remember seeing Hannah’s brain without physical tumor, microscopic means with the eyes
Of course, millions and millions of cells still widespread in the brain
A tumor is never a circumscribed entity
It goes all over the place
Nevertheless, it was a very satisfactory physical procedure
We send the samples for histological purposes
and unfortunately we were wrong, because it was not a grade 2, not a grade 1, it was a grade 3 tumor
? the next step
The grading of the tumors
When grade 1’s and 2’s, usually consider the good guys in the field
But not a good thing to have a brain tumor, but you have to choose, choose a grade 1, or a grade 2
Grades 3 and 4 featured by malignancy
They are far more active tumors than the 1’s and 2’s
Maybe the grow much bigger, and they are far more aggressive than the other 2
Specially grade 4
So you got out most of it, yeah ?
Yeah, it was fun but got a good job here because you’ve got most of the tumor out, and we have Hannah talking, moving, and uh conversing normally
She was no percentage (?) deficit
At some point during the operation she had some stuff, a fitting, some sort of vagueness and she couldn’t talk very well, so we had to stop right away, and change the level of, of oxygenation, but other the operation, microscopically speaking, the whole tumor was taken away
So the tumor was taken away, so it was a success, but in the back of your mind did you know that, did, the job was not complete ?
We always know
We always know that
Except when we are talking with a benign meningeal (?) grade 1 that we can take physically lump away
Except in those cases of rare, rare success and joy
Most of the tumors we know, have millions of cells that remain in the brain, and they can be very, very aggressive
So, did you know in the back of your mind that what you were really doing, in this case, was probably just prolonging her life ?
Uh, in a way we are providing a setting, for a 2nd stage therapy to take place
Certainly, if we do nothing about it in the large (?), which is a (?) part of her brain, Hannah had little chance to survive, many weeks from now
Once the whole thing developed, we knew it was a count down
We need to do 2 things, to establish a way to help her to prolong her life with best programs
That’s, is a universally accepted
Removing a tumor is no longer an option
Again, I believe that (camcorder ?)
So Hannah had radiotherapy, and you saw the scans after the radiotherapy, and, and what did you see ?
We decided, no Hannah decided to go through conventional pathways of treating of tumors, which is oncology medicine (?)
She had radiotherapy, which aim is to kill the remaining cells we have not been able to remove, remove in surgery
So, that happens, and Hannah had a shrinking stage of uh of things, with subsequent scans show the suc success
It was not much tumor
However, the remaining amount of cells were there from day one
We knew they existed, and they were visible on the scan
We could actually produce the scans later right ?
And I will show you pictures of Hannah
And we knew there was (reserve ?) tumor
The aim of the radiotherapy was to try and kill these remnants of tumor that have remained behind
In her case, it was not much tumor left, because we know that subsequent scans were done following radiotherapy
Still the small areas of tumor highlighting halo were still here, as you, as a (?), as a reminder, of the main tumor
Inevitably those cells would progress again, to a further tumor, and usually, to a high grade tumor where the tumor progressed, normally is not rare, to see that they, scale one grade
So, the fear here with Hannah was get, this grade 3, would progress to grade 4 at some point
—————————————————————— Dr. Martinez on Dr. Burzynski (6:50)
Quite obviously you knew that I did a lot of investigating
I looked for people in the world who were still alive, who had uh, this type of tumor
I spoke to you
You told me, of, some things uh, and I’d mentioned to you Dr. Burzynski
What did you
What did you think about that when I 1st mentioned it to you ?
Well, when you mentioned that to me I didn’t know Dr. Burzynski at all
I knew there were some people going to Houston for some therapy, among them, one well known Spanish singer, but she’s well known, very well known actually, going from a, from a another kind of tumor, not a, not a brain tumor
But I knew vaguely about this a, this a person in, in Texas, with his uh fancy treatment, challenging establishment, but, as I said, a little
amount of, of knowledge in my brain
in my brain
Well, I knew immediately when you mentioned that, as well as other options that we discussed, I looked at every option you’ve showed me, because you were really active in looking and intimate, in the literature
You gave me 2 or 3 main leads of reading, but certainly Burzynskicame as the most solid one, because the rest of them you gave me were really experimental therapies, with little or no success, and uh more in my dimension but more imagination than technique, with them
So, I look at Burzynski’s story, and was almost immediately moved about, about his personal uh yearning
Is a person who has been, how many years now ?
30+, sorry, fighting against the very powerful medical establishment, and subjected to court judgments, to punishment by a, by a (?) community, to intense scrutiny, and uh, ostracized by the so-called uh conventional doctors
Despite that, 30 years + later, still doing his business, in fact, the most important thing, with a huge amount of people, smiling, alive, and very healthy following the diagnosis of the tumor
To me that was something revealing
No matter whether this man advocates, on praying to the moon, or going to the sea, (whatever it is ?)
The fact is the fact
He has a large # of patients, alive and well, following diagnosis of tumor
In fact, the most important, children, at the age of 3 or 4, being treated by this uh therapy, reaching 30’s, reaching 20’s, and alive, and very nice, this a living example, that this man, is not uh, selling air
For that I went to the films, available to everyone on the Internet, on YouTube, except the usual terms of communication
I dislike very much, they commit (?)
I really dislike it
But, I must admit it was a good way, to put the facts to the public
The main criticism of Burzynski in the scientific community, is the lack of reliable communications
That, that’s a fact
I will not go into this during this interview, this chat
Because I think it’s a matter for, further discussion
I only go to the physical facts that you can see
In the last court proceedings, there were a large # of supporters, saying, we are the living example, of this process isn’t pantomime (?)
Well I think in my humble microscopical opinion, Burzyn, Burzynski’s trying to do, is to show another way to treat cancer
Another way which directs completely from the current guidelines
The current guidelines are full of financial interests, are full of international agreements, and of course someone who attempts to upset this structure will face serious adversity
This man is brave enough to put his person, his family, his world, on the spot, to fight for the truth
To me, it’s clear
This guy, not going into details again, I don’t want to go into technical details today, because something for further discussion, but only the facts he’s presented, is strong enough to stop and think about it
That’s why, I would like to say, in the 1st instance
And obviously you’ve seen Hannah’s su, scans, and you saw her last scan, and you can see uh her
Well since you told me about this, I intense look at the Internet again, all the available evidence, I looked at his, uh, not publications but at his data
I, I have no peer-review qualifications yet, about Burzynski’s cases, but I look at practical cases
Too many, to be a random chance of, oh this is, she has a one in a million
No, it has, many ones in a million to be a chance
So this man is presenting something serious
So, I ask (?) (?)
Forced to do, because, I thought, ok, what you face here is a conventional radiotherapy, chemotherapy, but if you look at the #’s, that is again, in the public domain, people with grade 3’s, will not survive longer
Grade 4’s, do not survive longer
My duty as doctor is to tell the patient, the person with the grade 4 tumor, you have about 11 months to live without treatment
With treatment is unpredictable
(I don’t know ? or all along ?)
But the #’s are #’s
If you look at the data, people die very quickly from a grade 4
Grade 3, follows very closely
So I thought, there’s nothing to lose by this therapy, because #1 is not incompatible wha, with what you have been doing so far, and it gives you a chance to change perspective, to change environment
Go to a different setting, and try it
That’s a fact (?)
Plus the fact that many, many, many people are being treated (?)
under this guidance, and they are surviving very well, and they are alive
When are you going to Texas ?
We went in December
Well you come back just a few days ago
We came back 3 weeks ago in January
So in that period Hannah had her tumor treated with antineoplastons, and there has already been a scan, which shows shrinking of 15%
Is such a long, long journey, you have a nice little period, a month and a 1/2 maybe ?
After so many months of punishment and suffering, and which have a nice (result ?)
Plus, the emotion of Hannah Hannah has come back to normal, I think
I remember her very depressed and the beginning of story, and not having any single hope in her mind
I remember a video where she was crying
Now she has this chuckle in the video when she is joking about the scan, and so positive and optimistic, and the results cannot be more promising
That, in my view, (certain was seen ?) in detail, I think
—————————————————————— Hannah’s MRI scans (13:34)
Take a look at this
This area of bright, intensity here, is not in the right, so poorly, is abnormal
And that was the 1st pictures we saw for Hannah
And some people said, that must be a stroke because of this a straight line there, and there
Normally, as a rule of thumb, something with a wedge shape, tends to be a stroke, because the vessel, providing blood, opens in the small vessels in a wedge fashion
It look a stroke to me actually, to, to be, to be honest, the very fact that we thought it was a stroke, but then we came to recognize it was a tumor, for all the features in (?)
So this is the 1st picture
If we look at the, on the side of the screen, we have now a different view
Instead of looking from the feet, we’re looking at front of Hannah
Eyes are here
That’s the brain
Look at the left side, because we know, the tumor’s (?) on the left
We look to go, deeper in her head, and we see, a dark area
It’s a different fashion (?) and that’s why you can see the white, becomes like a black
And you can see, the edges of this is strange, formation
Clearly abnormal because nothing there in the side
So this, was the question for the individual
What is it ?
So after a little bit of discussion we came to the conclusion that thought it was a glioma, tumor, from description, in the brain
This is after the operation
After the operation
This is the 17th through the 4th
We go on the right side better because this is the film
We see here something very clear
I want to get another view, so you understand a little bit better
In this view, you can see
Can you see that ?
You can see the (?)
The chunk of bone, we take away, to go into the brain
And these are screws and plates, to keep things in place
2 screws, one little plate
And there, the other one
So this is the axis
Let’s put it on the right so you can see it better
Here, you can see it much better how the craniotomy is performed with one hole, one drill, to put the, the saw and drill away, and you can lift this cover
At the end of the operation we put this plates, one there, one there, one there, and one there, as you can see
2 little plates
2 little screws with one plate to fix the hole
And then, the skin itself
—————————————————————— The Future for the Treatment of Cancer (16:18)
So, so how do you think uh brain tumors will be treated in the future ?
That’s a, that’s a very good question
Uh, certainly not this way
Let me give an answer for another time
But certainly not this way, because uh the chemotherapy, the main, the main group of chemotherapy is that, it is itself a killing agent
You are using, destructive element, to try and prolong life
In, in itself makes no sense to me
Of course, the, the argument for that from the, from the (chemical ?) companies, from the people who produce this (?), excuse me, this doctor, we are saving lives, and it’s true
This is the only way, officially admitted today, to treat tumors, chemotherapy
So do you think we’ll have a cure for cancer ?
I’m hope it is
I think it’s coming, actually, but uh, but uh, it’s not accepted
Then you think Dr. Burzynski’s really on to something ?
The evidence is overwhelming
He’s not I think, the evidence
What I think is irrelevant
Oh my opinion is one opinion in, in millions of them
But if you look at the facts, Dr. Burzynski is achieving things
It’s not, it’s not promising
It’s the delivery of things
If, if I don’t understand it incorrectly
The head of our patients, he’s an ex-patient of cancer
Am I right ?
This girl had a brain tumor Hannah was talking to people have been cured
So this is a fact
This is not tales
This is not uh, uh, selling, thin air
This man, whatever he’s doing, because of his story
Part of his secret agenda, the chemicals (?)
I not asking for the patent of his things
I don’t, I don’t care anyway
But he’s working with compounds, with substances created by this man, that cure people
So why do you think more people aren’t receptive, to the, you know, other oncologists, neurosurgeons ?
That’s a very complex question because uh we are fighting against a very well established protocol of producing doctors that think in a very particular way
Who, whoever decides to direct from that way of thinking is in hot water
The scientific community these days, is uh biased by peer-reviewed publications, commonly accepted guidelines, and there’s no space whatsoever, for any, eh, diversion from the norm
Put it this way
I’m not saying that I directed (?) from norm
I’m not here to argue the system, but I am here, to ask questions
I would like to ask questions
Why, we have to accept
I was in medical school, and I was told by a pediatrician, (?) of the (?) service, babies should a stop breast feeding at the month #4, and they start with these magic formulas for babies
At that, at that point I believed
At that point I was a very young medical student
I said, (?) the head of pediatricians tell me, my baby has to stop breast feeding, at the age of 4 months, must be true
He is a doctor, but he’s a stupid (doc ?
I am so sorry to disagree
He was delivering, a very nasty message
Basically you should continue, 2 years away, 3 years away, when the baby says, that’s it
Naturally stop the breast feeding
You understand what I mean ?
So, in the same fashion, the oncologist delivers the message that they have been taught, by the teachers
And then you go up in the scale
If you go up in the pyramid, the top of the pyramid is usually money, eh, economic interests, political interests, namely
We go outside the core mains of medicine
That’s why my complaint
That’s why my fight here
I would like to ask those things
I may be wrong, by at the end of the day
I may be
I don’t know
I don’t know all the answers
But if at the end of very good search, I am convinced that this is the only way, I say, I am sorry
I had to ask
Go back to the norm
I totally suspect that the norm is wrong
There must be another way
====================================== 1/2012 – Sonali Patil, Ph.D., Research Scientist at The Burzynski Clinic (18:22) 9/18/2012
So you, you, you’re a scientist here ?
I’m a scientist here
And, and you work, just with antineoplastons ?
This is our cell biology lab, and in molecular biology we do basic research on the antineoplastons
Sometimes we also study it in combination with the other, uh, medicines that Dr. Burzynski is interested in
So, but mostly antineoplaston
This is looking at mechanism for action
Trying to understand how it treats the cancer cells, is able to kill the cancer cells without damaging the other cells of the body
So mostly antineoplaston is the target here
And what do you think about antineoplastons ?
We have found, uh, very interesting, uh, molecular pathways targets that antineoplaston is targeting, working very effectively to kill the cells, um, probably better than many other drugs, because, um, it has multiple targets, and so attacks the cells from many different angles, and is able to kill the cancer cells, more effectively
So, can I ask you, how did you come to work in, th, the Burzynski
the institution ?
Through an advertisement, it was
My position was advertised
I started 8 years ago, and
So it was advertised
So when you applied for the job, were you aware of the controversy of, (comments to self: learn to talk)
So when, when did you find out ?
Uh, eh, as soon as I joined (laughing)
Oh yeah ?
Few months later
I thought, it’s easy to find
It’s not hard
It’s not even, uh
Wha, what about any of you other colleagues, that prior to coming here ?
I mean, did they say anything to you, like, you know ?
Well they brought something up
(?) in, uh, uh, being there for him during this trial, my boss, my previous boss was here before me
Uh, so I have a very open picture of it, and it doesn’t bother me
He came up against it and won
So that’s a good thing
An, and why do you think, it kinda hasn’t been, kinda lost the word, hasn’t taken off, you know ?
Has the scientific community hasn’t really embraced ?
Well anything that is non-traditional always, you know, takes its own time to get to people
Besides, the traditionalists don’t want it coming out because, uh, it affects, a lot of other things, um, finance, in, in the big Pharma
that is affected by this
So, um, if it, if it were, um, a medicine already with another big company, it probably would already be out in the market by now, but, uh, it’s because it’s one man’s show
He’s fighting against, uh, traditional medicine, big, big centers like M.D. Anderson right here in Houston
So, most people want to believe, uh, what the other doctors, the oncologists, are telling them, because that’s what everybody does
So very few filter out of that and come looking for him, because they’ve lost hope there, and they’ve tried everything else, and they come because; which I wish they wouldn’t, come here as a last resort, you know
and, by then, sometimes, uh, enough damage has been done that is sometimes even he cannot cure
It’s not magic
There’s a logic to the way the medicine works
The science behind it is not, it’s not just a magic bullet
So, and you have to target it at the right time
Catch cancer at the right time
So I have a, friend of my mother’s at home, whose spent, her whole, academic career, 20, 30 years, researching, astrocytomas
And, uh, you know, I did my research, and, I was no doubt that we were coming here
My, my research was more based on people
Talking to people who had been treated, and seeing the results, and then looking at the research afterwards, and she was just saying that “I’ve spent all my years, research, and research, and research, I can’t find anything, that validates, this, this treatment”
Now I’m not asking you to comment on what she said, but,
No, validation, validation basically means, uh, proof in scientific community
If you’re not accepted into the scientific community, you’re not going to be able to present that truth, and we go and present at conferences all the time, eh, when it comes to publishing papers, uh, we haven’t been very successful Dr. Burzynski has published, uh, a lot of data of his patients
So it’s out there
If you, if you want to believe it, and you’re looking for it, you’ll find it
It’s just, um, it’s not in the mainstream places, because it gets rejected out of there
Um, it’ll probably take some time to get into those spots where everybody else is publishing, and everybody else is talking about it, but it doesn’t mean that it’s not true
So obviously you’re here on a daily basis
So when was the 1st
So the last 8 years
When was the 1st time you actually saw, was it in the dish where you actually saw it ?
Well we see it, we’ve seen it for years before I came here
Yeah, but when was the 1st time you saw it, when you came here yourself and you saw ?
Well we see it every day
Um, we have cancer cells in the lab, that we treat, with the medicine
We see them dying
We see them undergoing a necrosis, which is the cancer deaths, pathway, that most people study and talk about
So, it’s happening, it’s happening in front of our eyes everyday
So, we have proof for it
you know (?)
We just have to get it out there, and there’s a, there’s a system to all that
and were trying to, get it through the system, and get it out there
So what, when you 1st realized there is something here, did you not just feel like just shouting from the rooftops and telling everybody?
Well I wasn’t the one who discovered
He did, in the ’80’s
and since then he’s been shouting from the rooftop
It’s just, nobody would listen to him
So, you know, we’re just doing the, uh, actually it’s backwards
People usually do, uh, pre-clinical research 1st, because the medicine
goes out and to the patients, and we, we are kind of doing it, the other way around
He already has patient data
He’s been treating people
People, survivors walking around, to tell the story, and now we are being made to understand how it works in the cells
So, it’s, it’s kinda doing, the research, after the trials
Just tell me
One more question
What’s it like
How would you describe Dr. Burzynski?
I admire his, uh, passion, for what he does
He truly believes in what he does, and to me that’s, that’s a big thing
If you don’t believe in yourself, then nobody else will, and, his memory
He, he has tremendous memory, and, uh, uh, quick thinking
He’s able to piece together stuff, uh, research articles, papers, put together puzzle, come up with a theory
He does that every day, every time I meet him it’s, it’s interesting to me to see how his brain works
you say, in, in the purest sense, he’s a scientist
I think he’s a doctor 1st, but a doctor who’s very, very interested in science, and that’s an important thing, because a lot of, uh, doctors don’t care about the research, and he does
I think, I think his primary aim is to treat patients, mostly
So if there were any type of skeptic, research scientist out there, what would you say to them about what goes on here?
We do, we do, everything that happens in any other lab, anywhere else
I went to school at Houston, ah, so, I know exactly how the labs work
We do exactly what they do
Um, we try to write up our papers, and send them to the journals, just like everybody else does
Uh, present at conferences
We try to get our data out there
Um, we’re trying to do our best, just the way everyone else is
I, I suppise trying to do your best it, it, it’s fascinating because you actually have something
that really, really does work
I mean, it’s a cure, right ?
We believe it is
It’s a cure for cancer
Not for all cancers
I actually asked Dr. Burzynski
I filmed him the other day and said to him, why do you, specialize in brain tumors ?
Do you know what his answer was ?
What was it ?
He said it’s because it’s the most difficult type of cancer
Well it is if, if you think about it
I don’t think there are many doctors who claim to have survivors, eh, at least in the numbers that he has, to present
and, um, I hear that at conferences too when we, were standing around, they will look at the slides, eh, eh, which is a tumor, and they will say: “Well that’s not a tumor,” ye, “it’s just necrosis
It’s just a patch on the skin, and you just cured nothing, and”, uh, all the, “the patient was probably cured from, the therapy that he took elsewhere, you know, the radiation he got 10 years ago”
“That’s probably what cured him,” but, you know, th, those kind of patients will be rejected from other, hospitals, don’t survive, that far enough to, to tell a story
So what is it ?
Just people living in denial ?
Is it fear ?
Is it ?
Fear or denial
I’m going to do what everybody else does
Why, why should I go out and do something different, here ?
And, and lastly, you know the, the power the pharmaceutical companies have
Well of course
I mean, but I’m nobody to, comment about that
There’s, there’s a lot going on behind the scenes that we are not even aware of, but this is just what, um, my experience is, when I talk to other doctors at meetings and conferences, and they, you’re immediately dismissed as, oh, you know: “What you’re going to say doesn’t really make any sense because you work for, Dr.”
His name has been tarnished
There’s a lot more, to that, than just, people playing politics, this, this, a whole lot of stuff going on behind there
So, I don’t think it’s, it’s (supression ?) as much, it’s just trying to tell your story, uh, so that somebody would listen and accept it, uh, maybe using, the right channels, going, presenting it in a different way, make it more convincing
All that, would help
So if it, if it was you, in his position, would you not have just given up ?
Or would you
We all talk about it all the time, that the amount of determination that he has, most people, would back off and leave, but like I said, he believes in what he does, and that’s what keeps him going
As far as publishing is concerned, ’cause a lot of scientist want to see
We, we, don’t get past the initial screening
We repeatedly send it back to other journals and that’s the process I keep doing all the time
Comes back, I send it back to another journal
Hopefully, one day it will get it
So, let, let, let, let me get this straight, ok ?
You write articles, right ?
and you submit them to, medical journals
and then what happens ?
They come back
Why do they come back ?
Sometimes, um, if they get to reviewers, uh, it’s not enough data, or, which I understand
We can work on changing, modifying papers, but, many times they come back, without any reason
They just get rejected, at the 1st, screen itself
So they come back without any reason
And why do you feel that is, in your own humble opinion ?
Wha ? (laughing) not humble opinion
It’s, it’s hard, um, publishing is a tricky game, you know ?
You have to publish once, to get your name in there, and then, they might publish you again, but, uh, with the negative publicity that we already had, and most of the community would look at the name and say: “Oh we, we just don’t want to, want to even read it”
So, it, it doesn’t even get past the 1st screen, because they don’t turn, flip the 1st page even
Ok, so, what you’re saying is that you see things that are published in these journals
And, you see ?
very similar stuff
We try to, we try to do research that is on par, uh, with what everybody else is doing, as far as the techniques, the ana, the data analysis
We, we try to do everything which is the standard for, uh, the research community, but, doesn’t get past
Um, how frustrating must that be for you ?
Mmm, it is (laughing), it is
So do you feel like you’re a party, or you’re trying to get into a party, and knocking on the door, and no one’s letting you in ?
I feel like that at the conferences too because, um, sometimes they come up to your, poster presentations, and, um, they’ll ridicule you right there, while you’re standing there by your presentation
Ok, just last thing, because one of the things I heard
recently, which were, that, uh, there’s some evidence that Dr. Burzynski has from, from the phase 2 clinical trials, showing people who have, uh, glioblastomas who’ve been alive for 10 years
and there’s something there that they want to try and get published
What you’re saying is, that might never get published ?
Well, Dr. Burzynski’s case is different
He has published some of his patient data
I’m talking about the research, uh, the pre-clinical research, the cell culture data, the molecular data
Um, we haven’t had success getting that out, but, he has, he also faces rejection a lot, but he doe, he has managed to get ta, a few publications in
So how does it work ?
If, if you submit something they can
What’s the process ?
They can submit it back ?
That’s not, there’s a review
There’s a whole review board
Um, you can select your reviewers
It goes through couple of cycles of review before it’s, agreed that they will publish it
And in case they say no to publishing it
do you, can you take it somewhere else ?
Yeah, you can take it somewhere else, but, um, but it’s, the peer-reviewed journals that are the ones that you want to get into, you can publish whatever you want, ah, that doesn’t count
That’s why when, somebody who’s of, uh, any significance in science would not even look at those articles if they’re not in a peer-review journal
So, they have to get into a decent place to make a mark
Do you think that will happen ?
What do you think has to happen in order for ?
It’ll happen, in, in time
They can’t keep refusing you
We, we try again and again
But in time they just want to, not focus on it, and just have’m, bring in more numbers, and keep doing this, and in the meantime keep treating, some number of patients
On, on, top of everything, my personal belief is, uh, brain tumors are not, uh, a money-raising factor, because it’s a, it’s a minority cancer
If this were treating, uh, mainstream cancers as they’re called, as, uh, breast cancer, maybe they would look at it more seriously, but the numbers, with the brain tumors, which is a good thing
I mean it’s a deadly cancer
You don’t want more people to have it, but, that puts it in the category of, um, you know, not so feasible, as far as the money-making
And so, the priority; even though, it’s the most vicious, and it should be looked at more seriously, but, it’s not the one that brings the big bucks
So, put it aside
So why would the FDA, haven’t closed him down then ?
Because they, they, uh, believe the data that he’s sending them so far, and they don’t have a valid point to, just say no, it doesn’t work, and put it away
They see effect, and so they want, more numbers, more data
Is it, it the phase 2 trial is finished ?
but they’re still accepting people ?
on more like a special ?
Special basis, and, um, sometimes compassionate grounds
That’s normal ?
(Yes I guess it is a funding issue ?)
(Like FDA, during the 2nd phase of clinical trials they found the data to be, real, real one, and they gave him the ok to go for 3rd phase of clinical trials, but just to go through this process you would probably need $100,000)
(?) and that’s stalling
(even more, millions dol, millions of dollars, to go through the 3rd phase of clinical trials, and)
(he’s a single doctor
It’s a 1st case)
(probably in American history)
(that single doctor is trying, to get a his job)
Whatever you’ve seen on that plant, everything came out of his practice
So he was the one who funded, literally the, the, research and development phase, but those installation, operation, all this big plant was built ?)
Yes, ’cause, uh,
one of the things I hear a lot, I’ve heard slot in the U.K. is that: “Why is he charging people for clinical trials ?
Well, uh, how else would you run this place ?
How will you run this place, and how else will people be on the trial, because
you know, there’s no pharmaceutical company involved here, right ?
It’s all out of his pocket
Every single bit
And what is stalling (?) is (?) again is, is funds
Yeah, I also heard that the phase 3 they wanna do radiotherapy with, with it
Hopefully, that will not be the case, but
we’re trying to
I think, uh, he is trying to fight against that, but, the FDA is the FDA, so
And what do you think about this case, he’s now got coming up in April ?
You know, he’s got this court case
Well there’s always something
He, he’s won before, so
Do you think he needs the support, do you think he feels the support from, from all of you ?
I think so, for sure
Nobody forced us to work here
We get paid, but, you know
I could always look for another job if I needed to (laugh)
So would you stay here because you really believe in what’s going on here ?
(Yes, that’s one thing that’s unique about our operation, and I’m talking about this location is, uh, whoever joined the company; and we have a guys who joined the company in the 80’s, 90’s
They stay with the company
Turnover is zero)
(Joined the company
Stays with the company
It’s a challenge)
(It’s a (?) challenge for us)
I will be doing some data clean-up and adding additional video transcripts
What stood out to me in the first and lastvideos is that you could hear both sirens and birds
Unlike “The Skeptics™” (sirens) #whining, the birds were celebrating Hannah #winning
Just as I did with the case of Burzynski patient Laura Hymas, so will I do with her friend, Hannah Bradley
Yes, unlike “Orac” I will let Hannah speak for herself instead of adding any bias as “Dr. Check my Facts” Hack does
—————————————————————— Team Hannah Blog
6/6/2013 – Posted by Hannah
It’s uh Thursday the 6th of June
(laugh) And uh we’ve got some really good news
We’ve kind of been holding back a little but
we just wanted to be certain
so what were you going to say
Uh, I am finally off treatment
Finally off treatment which is great so as far as Dr. Burzynski is concerned, the treatment is now finished
Hannah is free
Free of the bag
How’s that feel
Yeah, it feels really kind of strange to be honest
Well you want to go back on it again
I miss the bag, because I miss carrying around ohhh
Now you’re just being a little bit stupid
Um, but the great news is today, we went to go and see Hannah’s surgeon
A another surgeon another doctor um
And that was a bit strange because the last time that we saw surgeon he gave us
it was probably one of the worst days of our life
He gave us the results of
Which was a grade 3 tumor uh I can remember that like that was yesterday
I don’t really remember
Well but I do
It was amazing uh seeing him today because he’s just basically just agreed with everything that uh that’s been said in America that Hannah’s doing really really well she as far as she’s concerned you don’t have to have any scan for another 6 months
Uh so you know really kind of cancer free and
Now, you know, it is incredible
It’s a bit of a miracle and
it both hasn’t hit home
How much is
Well we can start our life
We can start our lives, again
And um we just want to say
a massive thank you
the list is just
this isn’t the end for us
I’m sure we
had a very long day
We had to wait an hour and a half (laugh)
(laugh) Sorry I couldn’t help
The the list of people that we have to thank
Need to thank is so long, and obviously way up at the top of that list has to be uh Dr. Burzynski and all of the people at the Burzynski Clinic who have been just amazing, you know
Just so supportive um and I suppose really without that treatment I don’t
I don’t think
I don’t think
You don’t think you’d what ?
It’s not worth thinking about
Yeah, it’s not worth thinking about
But um we have to thank every single person that contributed and helped us and supported us along the way
Everyone that helped us raise money
Here we go
Who else do we need to thank
Come back up
We have to thank uh
like I said it’s been a long day today
Uh we have to thank Jamie Lowe
We have to thank Lindley Gooden
Who else do we have to thank ?
Uh all the people that were in Team Hannah
All of your friends
Um just everyone that’s been watching these blogs
We really, really couldn’t have done it without you
We are really, really thankful
You don’t want to go do you ?
Hannah and I were thinking about doing our own comedy show because a lot of people
comments like we’re so funny
And who’s the funniest
Uh oh you
So, I don’t know what else to say really apart from, you know, this is really a bit of a fairy tale for us
We know how fortunate
we are and we know how
who we met along the way
haven’t been as fortunate as us
So we uh
So, are you alright down there ?
we’re talking about something serious
Yeah, we know a lot of people who haven’t been as fortunate
As fortunate as we have people are forever in our hearts
You know, um, we know how lucky we are and um
We’re going to make the most of our lives the most of our lives together
We really do think that
You know, there was a time
Many, many times where I really didn’t think that Hannah would be here but, you know, we’re talking 2 1/2 years ago that she was diagnosed and she’s doing better than ever even though she is yawning
I don’t think there’s any words that really put into a sense of how so lucky we think we are, and I really think it’s how our legacy to live with that and try and inspire other people as much as we can as well
So, we’re not going to get go anywhere we’re still we’ll still let you know from time to time how we’re getting on
Uh um I also think we need to give a massive shout out to Ben and Laura Hymas as well who, who really, we went to see them the week before we went to, out to America, and it was there, was a, was a bit of a shock
Realizing what we were about to take on but um she’s
I’m very sorry
She’s someone else who’s done well and we want to give a big shout out to them because we know that they’ve got their lives ahead of them as well as we do too
So, I think without any further ado we’ll give your famous wave
It’s not really a wave, is it
Thank you very much everyone
Wanna hug ?
C’mon hug us 
4/2010 – first met Hannah and we fell in love and since then our relationship has gone from strength to strength 
Hannah (28) has great personality and fantastic sense of humour 
10/5/2012 – from Elstead
4/4/2013 – Hannah Bradley (28)
Hannah Bradley from London, UK 
====================================== MOOD ======================================
Looking back now, was quite naive 
2/2011 – world took dramatic turn 
Hannah Bradley from London, UK 
To my complete horror 
whole world was turned upside down 
scared of all the unanswered questions that lay before me
why was this happening to ME? 
What did the future hold? 
Will I be okay? 
absolutely terrified as realised something seriously wrong 
Everybody else went into panic, but shock calmed 
Inside, scared, could see how frightened Pete was 
wasn’t easy decision but really wasn’t another choice 
Fear pulsed through me as was wheeled to theatre for operation 
4/2011 – thought once surgery over, tumour would be gone 
“Hello,” I croaked 
“Have I still got all my hair?” 
beamed as Pete nodded 
long blonde locks were pride and joy, and surgeons managed to operate without having to shave any 
Waiting for results was one of most harrowing periods for me and my partner 
had to wait for results of biopsy for few weeks and remained positive 
while trying to remain positive throughout 
tried to keep busy so didn’t dwell on what doctors would say 
it was hard 
sensed before they even spoke 
faces were so serious it had to be bad news 
Obviously medical professionals have to be detached when deliver news, but we completely broke down 
tried to bite back sobs so could hear what they were saying 
blinked for moment, realising meant me 
left hospital, in daze 
went to sit in park for 2 or 3 hours, working out how to tell everyone 
rang dad, feeling ashamed he had to deal with news 
didn’t want to upset him 
Pete and I rang close friends and family and became easier each time 
got chain going to spread news so didn’t have to ring everybody, which was relief 
gave me space to come to terms with diagnosis 
Once able to get head around it, felt detached from it: 
needed to get through next stage now 
needed 6 weeks of radiotherapy, did that, thinking this would make me better 
Hannah’s bravery and resolve once again rose up as shortly after this she started 6 week course of radiotherapy
news was not good and world was rocked once more as results showed Grade III tumour
whole world suddenly fell apart again and that very moment I didn’t know how to go on 
knew had to carry on and from somewhere I didn’t know existed within me, found some bravery and started to have next course of treatment, 6-week course of radiotherapy
hope you will understand this was REALLY difficult for me as I loved my hair and without it felt horrible and ugly 
coped well at first, until hair came out in clumps 
warned could be few patches of fall, but lost it all 
wore headscarves but mourned my hair 
work in skincare sales and used to having to look my best 
know it was vain, but hair was part of my femininity 
missed it 
awful but kept going, knowing had to 
Seeking alternatives 
full of hope 
know it’s long fight ahead but feel everyone is behind me and
get so much from that 
have a mantra, which like to think I made up but think I read somewhere: 
‘You never know how strong you are until being strong is the only choice you have.’ 
exactly how I feel 
there was some hope 
was truly an incredible time and once again I was filled with hope as so many people came to my aid to support me by raising money and donating what they had 
still so thankful for all that support 
absolutely overjoyed 
wouldn’t turn my back on conventional medicine, but would advise anyone in situation like mine to look into other options – there could always be another way 
“If this whole thing has taught me anything, it’s that.” 
Thankfully along with other treatment, strategy has worked for me and I’m now trying to help others who are fighting against this horrible disease
====================================== HEALTH ======================================
was salesperson when diagnosed with cancer
ate on the run 
had no real symptoms or warning signs
2/2011 – out of the blue, Hannah had major seizure in middle of the night 
2/2011 – one night Hannah’s life changed drastically without any prior health concerns suddenly had major seizure
2/2011 – had grand seizure while asleep 
2/2011 – major seizure in middle of night 
arms up in the air, body shaking 
2/2011 – lost consciousness and was rushed to hospital [3 + 11]
woke in hospital, had no idea what had happened, tests revealed brain tumour size of golf ball in frontal lobe 
didn’t know anything wrong before had massive seizure in sleep 
boyfriend thought was having nightmare at first, but when couldn’t wake me, realised was unconscious and called ambulance 
came round in hospital few days later and didn’t remember anything 
2/2011 – 4/2011 – don’t remember much about 2 months that followed apart from seeing many doctors, having constant headaches and a # of seizures
had constant headaches and number of seizures
Eventually CT scan showed brain tumour, turned out to be very aggressive, anaplastic astrocytoma
week after CAT and MRI scans told had brain tumour size of golf ball 
in frontal lobe and probably growing there for years 
doctor gave 3 options: 
leave it and see what happened
have biopsy to discover what type of tumour it was and how aggressive
go for surgery to try to remove as much as possible 
diagnosed with very serious brain tumour
diagnosed with very aggressive brain tumour[11-12]
2/2011 – 4/2011 – have no memories of that time, from the night of seizure to coming around from 8-hour operation to remove tumour 2 months later
had about 4 more seizures – including one 2 nights before surgery last April – after discharged because tumour growing and putting so much pressure on brain 
Pain throbbed through inside of skull as peeled eyes open 
Groggy, focused and saw Pete smiling down at me 
was in hospital 5 days before going home to rest and getting biopsy results 
2 weeks later, went back to see consultant and specialist nurse 
news was not good and our world was rocked once more as results showed Grade III tumour
tumour was cancerous and had scary name – anaplastic astrocytoma 
4 grades of brain tumours with 4th being worst 
Mine grade 3 
statistics quoted said person with grade-3 tumour lives around 5 years 
life expectancy for people with tumours like this was 18 months
2 weeks into treatment was hit by wave of tiredness 
so shattered had to go to bed for week 
went well for 1st few weeks but followed by hair falling out and bouts of tiredness and lethargy
started having seizures and didn’t know how long she had to live 
was still having seizures and lost independence with losing driving licence 
On top of all of this, dealing with losing driving licence as had number of seizures and now has epilepsy
At end of July, had another MRI scan, revealed still residue left from tumour 
6 weeks after radiotherapy finished, had another MRI to see what was going on with tumour, Once again more bad news, as there were still remnants of aggressive tumour
Although it was hard I remained hopeful that 6 weeks after radiotherapy would help and I could go on to live a normal life but again results of next MRI were not good 
There were still remnants of aggressive tumour
At this point treatment options where very limited and life expectancy was not very long 
was told only options available on National Health Service were to operate or have radiotherapy again 
Chemotherapy also mentioned but not strong enough for that 
doctors said were really uncertain of expected life span if didn’t do anything and since treatment options in UK so limited, we want to try something else 
didn’t know 100% whether would work, but had to believe in something; wanted to be positive 
Just 8 months after starting treatment had some incredible news 
latest scans show she is cancer free
desire to beat this disease led me to make number other lifestyle changes 
One of biggest changes has been dietary; specifically cutting out most sugars from my diet 
involved learning how to cook, which in itself was huge challenge because I hated cooking with a passion 
Over time I started experimenting with different foods and became more and more adventurous and dare I say it, I even started to enjoy coming up with new healthy recipes 
quickly learned that exclusive food of cancer is sugar, so quickly embraced this and cut out almost completely starchy carbohydrates and refined sugars by incorporating sugar free/starch free food plan 
idea being that diet would feed my body, mind and starve cancer into submission 
also learnt this type of diet is good for blood sugar regulation, body composition and is consistent with the way that our ancestors ate thousands of years ago 
After months of experimentation and with help of couple of great cooks, have learned to make delicious and nutritious healthy meals and this is why I decided to write my own book, The Team Hannah Cookbook
It’s my contribution to helping and inspiring others to eat a better diet 
I would hope you can enjoy these recipes and make them part of your diet 
This book will show you how easy it is uto cut out the carbs and still eat “normally.” 
I now believe that dieting and counting calories doesn’t work 
Low carb is the way forward 
You will find in my book great low carbohydrate recipes for – Breakfasts, Breads & Pastries, Starters, Salads, Mains, Desserts, Treats 
====================================== TREATMENT ====================================== 2/2011 – partner, Pete, called ambulance, was rushed to hospital, unconscious 
decided to have operation, hopeful would get rid of it 
in hospital 2 weeks following 1st seizure and put on strong medication to stop from having fits 
kept awake 2 1/2 hours of 6-hour surgery – medical team wanted to make sure weren’t damaging any part of brain, where tumour was, relating to speech and language 
made list of what to talk about with speech therapist during operation, such as meeting Pete at conference in Croatia year before; favourite American TV series, Friends, niece who’d been staying with family week before seizure 
remember having to touch fingers with thumbs to check movement still there, hand or my leg would involuntarily move when surgeon touched particular part of brain and asking anaesthetist to scratch itch on nose 
“It’s going fine, we’re putting you back to sleep now,” voice said and everything went black 
4/2011 – 8-hour operation to remove tumour
4/1/2011 – decided to have surgery underwent 6 1/2 hour operation
4/1/2011 – surgery and underwent grueling 6 1/2 hour operation
To my relief
results of operation were fairly successful and surgeon managed to remove uhmost of tumour
diagnosed with Anaplastic Astrocytoma brain tumour and over next few months endured 6-hour operation and 6 weeks of radiotherapy
started radiotherapy 8 weeks after surgery 
full on – 6 weeks of treatment, Monday to Friday 
needed 6 weeks of radiotherapy, did that, thinking this would make me better 
radiotherapy went well for 1st few weeks but fears were confirmed when hair started to fall out 
was gruelling – hair fell out, had quite a few seizures – then, at end, scan showed still had remnants of very aggressive tumour
Pete started researching alternative treatments from beginning and was Dr Stanislaw Burzynski, biochemist and physician in US, who seemed right choice for me 
found pioneering treatment in America which could give her a chance 
One name kept cropping up 
treatment is controversial – claims to have identified peptides called antineoplastons, which act as molecular switch to turn off cancer cells without harming normal cells 
After reading everything we could, decided to try it 
At his clinic in Houston he’s developed a treatment using anti-cancer compounds he discovered and now manufactures – and is treating aggressive tumours, especially ones in the brain 
medical community claims unscientific and unproven 
oncologist didn’t want me to go – he wanted to monitor tumour and maybe give more radiotherapy in future 
that was like containing it, not getting rid of it, and treatment hadn’t worked so far 
Dr Burzynski seemed to be only hope of getting rid of cancer for good 
In order to get it needed to raise £150,000 
treatment wasn’t cheap (about £200,000) 
treatment very costly, and even using all savings didn’t have nearly enough 
£200,000 (Dh1.16 million) needed to go to US, plus ongoing shipping of drugs from States and private monthly scans will need for 12-18 months, was out of reach 
Family and friends offered to help, soon there was Team Hannah website 
Within few weeks had £35,000, enough to go to US for consultation and start treatment 
didn’t know 100% whether would work, but had to believe in something; wanted to be positive 
Treatment available in America
Luckily was able to take part in phase 2 clinical trial in Texas, USA 
treatment isn’t available via NHS so had to raise considerable amount of money 
12/2011 – flew with Pete to Burzynski Clinic
—————————————————————— 12/10/2011 – Saturday – video blog
leaving tomorrow morning
—————————————————————— 12/11/2011 – Day 1 – Sunday
flew to USA massive headache
thought was going to faint
—————————————————————— 12/12/2011 – Day 2 – Monday Burzynski Clinic
meeting: Dr. Yi oncologist / Dr. Greg Burzynski
—————————————————————— 12/13/2011 – Day 3 – Tuesday Burzynski Clinic
inject sugar syrup PET scan
MRI scan review
?’s memory / spelling jumbled
fill out form Valium
(as much local anesthetic as could give her w/o knocking her out) catheter – Hickman line
(painful / really painful)
—————————————————————— 12/14/2011 – Day 4 – Wednesday Burzynski Clinic
(feeling wrecked / absolutely wrecked)
start treatment 6 doses of antineoplaston a day 4 hours apart almost 24 hours continuously
(had chest x-ray)
(Dr. Barbera – talk pain medication)
lessons: clamps / hoses / pump
—————————————————————— 12/15/2011 – Day 5 – Thursday Burzynski Clinic
(Day 2 of treatment)
lessons: change pump
—————————————————————— 12/20/2011 – Day 10 – Tuesday Burzynski Clinic Dr. Yi / Dr. SRB enhancing – asked to stay month – next MRI to be done
—————————————————————— 12/22/2011 – Day 12 – Thursday Dr. Hilary Jones on Daybreak
—————————————————————— 12/24/2011 – Day 14 – Saturday
shivering all night
—————————————————————— 12/25/2011 – Day 15 – Sunday Burzynski Clinic
uncontrollable chills couldn’t stop
Monica off ANP
little bit of swelling back of head
—————————————————————— 12/27/2011 – Day 17 – Tuesday
back on ANP
called Burzynski Clinic off ANP
temp down / up
—————————————————————— 12/28/2011 – Day 18 – Wednesday Burzynski Clinic on ANP much smaller dose
close to breaking / cracking
—————————————————————— 12/29/2011 – Day 19 – Thursday
hospital “I’m at my wits end” “I don’t feel I can take anymore”
—————————————————————— 12/30/2011 – Day 20 – Friday
last week up & down
off on off on off
had to go to E.R.
—————————————————————— 12/31/2011 – Day 21 – Saturday
fever in middle of night
temp 102 Dr. SRB thinks flu-like symptoms or tumor actually breaking down ->
1/2012 – started treatment
—————————————————————— 1/1/2012 – Day 22 – Sunday Burzynski Clinic
prob w pump – not closing
felt like completely drunk
Nurse said anti-seizure drug she hadn’t taken before
Gary – directions re pump equip
—————————————————————— 1/17/2012 – Day 38 – Tuesday Burzynski Clinic
If 102 take off ANP
BC 3x – blood – supplies
antibiotics 1 day
antibiotics 2 day – over 102 last night
antibiotics been on 3 days off ANP
—————————————————————— 1/20/2012 – Day 41 – Friday
—————————————————————— 1/21/2012 – Day 42 – Saturday Burzynski Clinic
temp up to 104
Dr. on-call – Ibuprofen 102.5
yesterday afternoon (blood) rash ? off ANP Dr. Popper
—————————————————————— 1/23/2012 – Day 44 – Monday Burzynski Clinic Dr. SRB
gave name from pic
some itch MRI – was to have Wed (12/29/2011 prev MRI) less tumor less enhancement shrunk by at least 10%
Been 1 month
Fri – leave
—————————————————————— 1/26/2012 – Day 47 – Thursday Burzynski Clinic Stable Disease
—————————————————————— 1/27/2012 – Friday – leave
—————————————————————— medication is administered directly into your body through Hickman line 24 hours a day
not an easy option 
Pete and I learnt how to prepare and administer treatment ourselves and carried on in Britain for another 18 months (1 year 6 months)
were there for 7 weeks, and scans showed in that time tumour reduced by 11%
Thankfully has been successful in shrinking tumour
blood was checked twice a week, was scanned every 6 weeks at private hospital 
Most importantly, seemed to be working 
—————————————————————— 6/2012 – back 6 months 3 scans
3/21/2012 – 1
5/2/2012 – 2
7/29/2012 – 3
7 weeks at Burzynski Clinic
—————————————————————— tumour kept getting smaller, in January this year it was all gone 
started treatment and after 9 months had complete response and will continue on treatment until 4/2013 / 5/2013
now off treatment but still being monitored 
Dr Burzynski isn’t miracle worker 
There are well-publicised cases of families raising money for children to be treated at the clinic but children still tragically dying 
People have posted on our website that it doesn’t work, but I’m convinced that, if we hadn’t found him, I wouldn’t be here today 
====================================== SUPPORT ====================================== Pete Cohen:Team Hannah set up to save life of my partner, Hannah Bradley, who’s 28 years old and has brain cancer
All this time, without knowing, Pete had been looking into things, searching, talking to anyone and everyone who could possibly help 
needed to raise around £200,000 to give her opportunity to have life-saving treatment at The Burzynski Clinic in Houston, Texas 
Pete launched campaign – friends and family gathered around, held events, our local radio station supported us – in 2 months already had £100,000, enough to start treatment
You helped her to get it… 
Eagle Radio wanted to help give Hannah hope by raising money towards her fund 
you wanted to help too 
Hannah came in to Eagle Radio to meet Breakfast Show presenters PG and Bev
Listen to interview here: 
Pete (Hannah’s boyfriend) met our reporter Anthony Zahra and starts by talking about how couple met: 
Jeremy (Hannah’s dad) spoke to our reporter Elizabeth Williams:
photos on Hope for Hannah appeal 
Fundraising events you told us about 
—————————————————————— 7/21 – Matthew Cank from Farnham doing sponsored bike ride with friends riding from John O’Groats to Lands End http://2theend.co.uk
** 2/24 (Friday) – Pure Dance at Backline, Guildford from 8pm to 2.30am House, electro & trance music with DJs on rotation Entry £10 with all proceeds going to the appeal 
** 2/25 (Saturday) – Dinner, Dance and Auction at The Mandolay Hotel, Guildford (6.30pm to 12.30am) evening of fantastic food & excellent entertainment 
** 3/3 (Saturday) – special night held at Godalming Naval Club by Hannah’s best friend
£7.50 a ticket All money to the appeal Includes – food, disco, raffles, auction and more 
** 5/19 (Saturday) – Health, Beauty & Fitness Fair at Clock Barn Hall, Godalming Free admission, free talks on health, fitness and nutrition Includes – mini treatments, fitness drop in classes, taster sessions, new health products Raffle & bucket collection to raise money for Team Hannah 
Your generosity was astounding and Hannah surpassed her target much earlier than she could have dreamed 
A film about Hannah’s journey to The Burzynski Clinic
film we made called Hannah’s Anecdote 
made to share with world Hannah’s journey to beat cancer and live normal life 
you can see Team Hannah blog we started October last year as well more information about Dr. Burzynski and treatment for cancer 
totally aware of controversy surrounding Dr. Burzynski but have seen with our own eyes he saved Hannah’s life 
share this with everyone you can, so together we can raise awareness of Hannah’s success and of Dr. Burzynski 
cookbook by Hannah available at teamhannah.com 
Thank you for donating, raising awareness and simply helping to give Hannah hope 
—————————————————————— Hannah’s Annectdote: (40:42)
A film about Hannah’s journey to The Burzynski Clinic
You’ve got a spirit level in the cam, in the front of the camera for a reason
—————————————————————— Hannah’s Anectdote
I’m Hanna Bradley and I’m 27 years old
Well, I found out I had a brain tumor in February 2011
The way I found out is, I had a seizure in, during the middle of the night
I don’t remember anything, but my partner Pete tells me that I did
Rushed to hospital and about week later I was diagnosed with a, an aggressive brain tumor
And then I had to have an operation to remove the brain tumor and I went back for the results, which weren’t that good and I had to go for a radiotherapy
And I spoke to a friend of mine, an incredible man, he’s a doctor, he, he’s retired, he said, why don’t you just look and find people in the world who still have this condition and still alive
So, that’s what I did
And I found some people, and it, and they all led to this guy Burzynski, but you mention Burzynski to uh people who work in the world of cancer, and it’s just like, they, you know, the barriers come up immediately Chemotherapy, radiotherapy, there’s no question about the fact that these things uh, are reflective and they are, save people’s lives, but that’s not what Hannah wants to do
(If I could go there, and take myself off there, I could) Burzynski’s work is, some people wouldn’t say it is gene-targeted therapy
Basically it’s peptides Peptides uh form amino acids in the body, and he’s found from his research that uh, certain people do not have these types of peptides, and uh especially people with certain types of cancer
What have you got to lose, and what’s the worst thing that can happen, if it doesn’t work ?
What’s the best thing that can happens ?
It saves her life
(I’ll give the ass a smack)
—————————————————————— video blog 13th of November 2011 (2:00)
(Come sit down)
Why this week is such a big week is we go to see Hannah’s uh GP tomorrow, and we really need him on side with the treatment that Hannah’s going to have, and, and that could pose a bit of a challenge, because this treatment with Dr. Burzynski is not peer-reviewed, and what that means is that, with the NICE guidelines in this country, people are
very unlike to promote a uh treatment that isn’t peer-reviewed in the way that they would want it to be, but, we’re hoping that he will help and support is when we come back
We will also go and see the oncologist this
which is gonna be a very interesting conversation because again, we want their support
It’s unlikely, very unlikely that they’ll give us the support that we need
because when Hannah comes back, she’s going to need MRI’s every month, and that’s just not gonna happen
We’re going to have to pay for that, but, we’ll let the pets do that of course
We’ll let you know next week, but this week is gone, but for now this is Team Hannah saying, Team Hannah, Team Hannah saying
That the wave that you do
I’m getting better at the wave
I don’t know about that, darling
—————————————————————— Royal Free Hospital London – December 2011 (3:19)
You know, maybe I’ve been led down a garden path if you like, going to work with Burzynski, because you speak to any oncologist; which we have, lots of (?) specialists in this field and they say:
“No don’t do it”
“The guy’s a charlatan”
“You’re wasting your time”
“You’re wasting your money”
“It’s not going to work”
“There’s no clinical research”
But I feel in my heart that we’ve gotta do this
Not just because, you know, what is there left to do, but I actually think it’s going to work
Is it going to be a placebo effect, or is it actually going to be that what this guy does works ?
I’ve spoken to people who he, who he’s treated uh and they all can’t speak highly enough of him and of the clinic that we’re going to
So I’m going to film as much as I can of her journey, and she’s happy for me to film
And the clinic in Houston are happy for me to film whatever I want
So I’m going to
—————————————————————— video blog 10th of December 2011 (4:10)
I don’t know how many blog videos we’ve done but we’ve done quite, quite a few and I think it’s amazing that we’ve got to this point
It doesn’t seem very long ago that we were sitting and talking about doing this, and within a few months we’ve raised all this money and we’re, my bags are packed
Your bags is almost packed
My bag is packed
And your bag is packed and we’re leaving tomorrow morning
I know there’s been a little bit of controversy
about what we’re doing, but please, whatever you hear about it, we have done a lot of research into this
and we feel very confident about what we’re doing, were going to get very well looked after and we’ll be able to share all of that with you
So, next time you see us we’re going to be in
—————————————————————— Day One (4:52)
Good morning Hannah
And where are we ?
At the airport
So, you ready for this ?
Ready to start this next phase of our journey ?
I’m really ready
I hurt, like I’ve got a massive headache
That was pretty traumatic for you, wasn’t it ?
Um, and getting through customs and everything like that
I felt like I was going to faint
Um, yeah, apart from that all good
And how’s it feel to be in Texas
It doesn’t feel any different at the moment
(laughing) (?) that’s a (?) Avis rent-a-car thing-a-ma-bob
—————————————————————— Day Two (5:37)
(?) there you go
I’ve got less hair than Pete
Are you looking in the camera or are you looking in here ?
I’m looking in here
Uh what are you looking there ?
Today is going to be a very interesting day
We’re going to film, all that we can
We’re not going to meet Dr. Burzynski
We won’t be meeting him until the 19th, but we feel more than happy to be meeting his fellow doctors
What’d you reckon ?
You’re going to kill me in the car before you, we get there ?
Because you’re trying to film and drive, and you don’t know where we’re going
There it is
We’ve finally made it
So how’d you feel, that we’re finally here ?
I feel good
Do you ?
You ready ?
What are your expectations ?
I have no idea
Well, lets go and find out
Don’t have any expectations although I sure don’t want to be disappointed
(Close your lips please)
How about this one ?)
(Ok. We’ll have to go )
Should I actually be able to ?
P E C F D
So, was that bad ?
Uh, can’t see any of them
—————————————————————— Meeting with Dr. Yi and Dr. Greg Burzynski (7:14)
(?) we’ve reviewed your scans, your MRI, and we’re very aware of your case
We have permission to start you on the antineoplastons
which as you know are in the final stages of drug approval
Dr. Yi is the oncologist on this case
Likewise Dr. Rowkowski will be involved
Likewise I’ve an I’ll, I’ll be on the case
And my father as you know is aware of what we’re doing here
So as early as Wednesday we’ll be starting treatment
Tomorrow we can put in the catheter, and this is an external
—————————————————————— Day Three (7:44)
What else is happening today ?
Don’t want to think about it right now
Gonna have some sugar syrup put into me
(?) PET scan
Which they inject sugar
I’d rather eat some
Inject sugar and then you’re also having a, this Hickman line fitted
Hopefully they’re gonna let me put on a white coat and come and be by your side
You can’t put on a white coat
You’re not a doctor
Well hopefully they’ll let me film
Well I don’t care about filming
I just care about you being there
—————————————————————— Hannah’s MRI scan review (8:15)
So this is the one that was done in December, right ?
This is the one that was done in December, and it has increased
‘Cause if I look at the, it’s more intense
There’s more weight
upon the image
Seen change in a month, right ?
It’s in a month
Less than a month
That’s why kind of it’s a little scary
’cause it has
I mean it looks like it’s more prominent now
after (?) this MRI scan, and you can see that the tumor is enhancing
She doesn’t know that
How will I tell her ?
Probably not, but she’s probably going to ask, and if the tumor grows like it’s, then you just saw in the scan, then how long does Hannah have left
That would mean very
That’s pretty good
That’s good enough
So any memory problems ?
Any speaking proc, speaking problems
No, not really
Ever since surgery
So, what kind of problem ?
Like when you spell you miss letters ?
It’s just I’m jumbled
So uh were just getting ready now for Hannah to go in and have her PET scan and uh catheter Hickman line fitted and she’s just filling in the form
I’m not even going to ask her how she’s feeling or anything like that ’cause she’s feeling a little emotional
(laughing) You’ve just taken some , some Valium as well, have you ?
This is like your biggest con, fear, isn’t it ?
I just show everyone what you’ve just done to my hand as well
What I’m doing is I’m creating a little tunnel under the skin
So I have to use just a little bit of pressure
So if I hurt you, you tell me
How are you feeling ?
Well, you’ve done so well darling
I’m feeling really cold
You look like you’re some sort of Holy Woman
People are going to come in here and bow to you
Did, did, did you feel that when it was going in and stuff ?
It’s a little bit painful now ?
It’s quite really painful now
Well, it’s a massive tic, of something we have to get done
Yeah, I know
—————————————————————— Day Four (10:52)
I’m feeling wrecked, absolutely wrecked
Well you had, bit of Valium yesterday
And you had as much um local anesthetic
as he could give you he said, without knocking you out,
but you were very, very brave yesterday, do you not think ?
I don’t think so
Why not ?
I wasn’t brave about the (canada ?) they put in here
What’d you think of
What, now what did you think of Judith Curran ?
Oh, she’s great
( Skype on at the same time)
She’s like a mother
Is she ?
(Yeah that’s fine. Whatever)
Yeah, she really does love you
( I’ve got something)
More than most
(?) all mom’s girlfriends
Mum uh Hannah just, I said, I just asked what she thought of you and she said she thought you’re like a mother
I really do need you here
Well you have to have a partner mother at the moment
But you need cuddles you mean ?
Ohhh lots of cuddles
Oh no, no, no don’t
I need something dressed there
She needs help getting dressed
It’s, it’s, you know, it’s basically it’s uh, it’s a little roadway right into your bloodstream, so yeah, it has to stay very clean, and our thing is that we have to teach you
how to do this
You get 6 doses of antineoplaston a day,
they’re 4 hours apart
So, yeah, it’s almost 24 hours continuously
These are your bags
Ok. Thank you
and I’m going to wait until Dr. Barbera comes and talks to you about the pain medicine
Then we will go ahead and hook up
because she did get the chest x-ray and everything’s a go
And everything goes in with a push and a twist
So obviously we’re gonna, when the fluid, we need to open up the clamp
And I always double, triple-check, make sure all the clamps are open
I’ve been on the treatment, I don’t know
It, it’s about
I don’t know
Half day ?
How are you feeling ?
It doesn’t hurt
And this is what you’ve got to carry around with you
Now it’s like
It’s (?) my new bike
Something you have to have with you all of the time, and me with you all of the time
Oh (laugh) Oh god
I can cope with that
Ever since this all happened it seems like it’s just been one thing after another
But we’ve got this far
Who woulda believed that we’d raise the money to get out here
which we have done, and now we’ve started on the treatment and I am pretty impressed with them there I must admit
They’re really nice
—————————————————————— Day Five (13:52)
This is day, it’s day 4 yeah ?
Day 2 on the job
Day 2 on the treatment
Mmmm I need a bit of a shave
um and um yep
You need a bit of a shave
So do I
Yeah, yeah, yeah, yeah, yeah
So, can I get ya
You need a pen ?
Uh, yes please
So pull this back ?
Pull it back to undo the lock
Ok, pump is off, so your next step is to disconnect it
So push in and twist, clockwise
How’s your new friend ?
Yeah, she’s good
What have we done today ?
We’ve learnt more lessons
I’ve learnt more lessons about changing the, changing the pump
How did I do ?
Honey you did well
You think so ?
Considering what ? (laughing) How challenged I am
No, considering how hard it actually is
That you did well
—————————————————————— Day Ten (14:54) Meeting with Dr. Yi and Dr. Stanislaw Burzynski and
Yeah, I think so far where we are we have been very impressed with all we’ve seen
Thank you very much
It looks like (?) we should not (?)
a pretty traumatic day because uh we met with Dr. Burzynskibut he didn’t give us the sort of news that we wanted uh because he’s concerned that the treatment may be enhancing uh and he wants us to stay here until at least um Hannah’s had one month on the treatment and to do MRI and see what’s going on
We can stay here
That’s the most important thing
Just imagine if we had to go home
You know ?
I know you’re tired of all this, you know, and its hard work, and it’s, you know ?
—————————————————————— Day Twelve (15:46)
So the last time we kind of filmed was when we were with Dr. Burzynski and him saying do we want to stay and that
And how, how do you feel about that now ?
Yeah, i’ve got my head ’round it
Do you have faith in him and ?
Yeah, again I know that I’m in the best hands
—————————————————————— Pete’s colleague Dr. Hilary Jones appears on ‘Daybreak’ morning TV show in the UK (16:04)
Are there question marks for you with regards to going over there to this particular clinic ?
I think what we have to bare in mind is that uh the treatment that, that Dr. Burzynski is offering is, is very uh experimental
It’s pioneering research, and pioneers in medicine tend to get a rough ride to begin with, and uh he hasn’t uh uh published the numbers of people in trials that convince the established authorities that his treatment uh works
It’s very interesting treatment
We’ve known about these peptides which can switch uh tumor genes on or off, and this is a different approach to these kind of tumors, that’s uh over and above oncology, chemotherapy, radiotherapy
Um, his results um, if you look at them um, sometimes appear extraordinary in some cases um but of course not in all cases
So it’s very difficult to evaluate, how effective it is
I I researched it pretty carefully myself because I have a friend there at the moment with his partner and the reports I’m getting back are they’re getting excellent treatment, excellent support, very impressed
This is somebody who, who knows a lot about medicine
Very impressed with what’s going on there
Um, we need to keep an open mind
Um it’s unfortunate it costs so much money but pioneering treatment does, and I really hope, that if you go that route that it works out for you
I really hope
So, that was uh, I didn’t know uh he was doing that, and actually the weird thing was that the day before I had actually contacted him just to say that we were doing really well
But poor old Hilary was so caught up in that yesterday
On Twitter, I mean it was just nonstop
People just saying
“Burzynski’s a fraud”
Um, but we certainly don’t feel that he’s a fraud, do we ?
I get the impression that he’s 100% genuine
—————————————————————— 12/25/2011 – Christmas Day (17:50)
Hi. How are you today ?
We’re doing ok
Documenting that ?
Um yeah I’m documenting
That’s against the rules
Really ? Oh dear
Collecting evidence ?
Yeah, I am
We’re gonna sue
We’re gonna, we’re gonna sue a few people
That’s what you love to do in America, right ?
So same symptoms ?
The flu symptoms
Yeah. Ok. How’s your breathing ?
That was, really bad yesterday, wasn’t it ?
Ok. Um, any headache ?
Ok. And you said you had, are they tremors or are they like shakes, like chills ?
But, you know, like I couldn’t stop
It was just
Ok. So it was un, uncontrollable ?
This is how we spent Christmas Day, in the Burzynski Clinic
With the lovely Monica
How (?) would you have it any other way
And the Christmas songs
Hey (mouthing words to song)
We went to the clinic this morning, and she was shivering all night, fever
So she’s off the antineoplastons for the day, and she’s just basically in bed now, just absolutely exhausted, and now she’s got a little bit of swelling on the back of her head, which obviously is a ca, cause for concern when you’ve got a uh, a brain tumor
—————————————————————— Day Eighteen (19:04)
—————————————————————— Hannah was back on treatment yesterday, and last night her temperature went up to 102
So I phoned uh the clinic, and they said take her off the medication, the anti, antineoplastons
So I took her off
Her temperature came down
Then it went up again, and then we went back to the hospital today, back to the clinic, and they’re giving her a much smaller dose um and she’s on much smaller dose and she’s just come back, and she’s just exhausted
And she, I can see she’s just so close to breaking, which is cracking completely
um and I’m just, got to the point where I can’t, I’m just, don’t know what to do
—————————————————————— Day Twenty (20:22)
Well the last week has been very up and down
Um I have come off the dose
Gone back on it
Come off it
Yeah, and then come back off it again um, for several reasons: Fever, um shaking, chills, fever, and bacterial infection, um viral infection, every infection, um and then ended up with me having to go to E.R., the Emergency Room
Well at that point I was really fearing the worst
Because you’d a scan when we got out of here, right ?
and the scan definitely showed some tumor growth
um and I was thinking, what 2 and 1/2 weeks later from that
That we were going back in the hospital
Because the tumor had gotten bigger
What has this whole experience like for you at the moment
Oh it’s just surreal
I just, I can’t explain it
It’s just surreal, to me
What, like its not happening to you ?
You did actually said to me yesterday in the hospital, you said:
“I’m at my wits end”
“I don’t feel I can take anymore”
And what about today ? (laugh)
Well, I reckon I’ve been, I’ve just realized I’ve got to get on with it again
—————————————————————— Day Twenty-Two (21:53)
So it’s, January the 1st, 2012, and we haven’t really got the,
We haven’t got off to a great start, have we ?
Because I’ve had a fever
Uh you, when did you start, feeling feverish ?
In the middle of the night ?
And your temperature went up to 102
What Dr. Burzynski thinks you, why you’re having a fever
you’ve either still got some flu-like symptoms or it could be the, the tumor actually breaking down
We’ve also got some problems with our pump this morning
(So what do you think ?)
Yeah, it’s not closing again
(And then you can also see the)
Uh, there it goes
It ain’t gonna stay that way
I don’t think it’s going to stay closed
Huh, what’d you think about that ?
(? get it fixed)
(and this looks like it’s ?)
(? fix ?)
The last time we saw you, you felt like you were completely drunk
And you had double vision
So,then what, ended up, happening ?
Well, one of the nurses, kindly, pointed out
She said: “What have you taken ?”
That is where we recognized it was an anti-seizure drug, that I hadn’t taken before
And how do you feel now ?
I feel ok
I feel a but shaky
I just have to (?) something to eat
Um, I’m just so tired
Hi, I’m Pete Cohen
Uh you might recognize me
from morning television in the
Nobody recognizes you anymore
You should keep your fingers above the little
guard thing, yeah, and try to hold this
I’ve done it
as straight as you can
Ok. I’ve done it there Gary
and put some support
and then you twist them down
Easier said than done (?)
You can give it much more of a whack and you can u, use the other end as well
No, like this
Got no chance
Use the other end
Ok. Thank you
There you go
There you go (?)
There you go
—————————————————————— Day Thirty-Eight (24:33)
I’ve never had to take care of anyone, the way I’m kind of having to take care of Hannah, and its just constant, and I get stressed around her, which isn’t fair, you know
She’s now got another temperature
She’s got a throat infection
Her temperatures up, uh and uh if it goes up over 102, it’s 101.8
If it goes up over 102 she’s got to come off of the treatment again um, oh, just, just feels like non-stop, you know
Cooking, and changing the bags
I’ve been into this, the clinic 3 times today
Taking her blood
Taking her back, get supplies
Take her back there
I’ve got a fever
It was over 102 last night
I’ve got antibiotics
Which you’ve been on for how many days ?
And we’re off the treatment
So, all in all
But you feel bad because you just want to be on the treatment, and just keep coming off
How does that make you feel ?
Just, I don’t know, angry
What you mean like
The while things pointless
because you can’t stand
I just hope one day we can look back at this and laugh
and just think: “We beat that”
because you couldn’t be doing anymore than what you’re doing
You know ?
You really couldn’t
Should really get a few of your friends to come over
’cause you must be a bit bored of me
C’mon, I’ve been really annoying
How grumpy was I yesterday ?
on a scale of 1 to 10 ?
I don’t know
—————————————————————— Day Forty-Two (26:54)
It’s 6 o’clock in the morning, and Hannah is lying here
Her temperature went up to the highest I’ve ever seen a temperature, on the thermometer
Where is the thermometer ?
Up to 104
I’m gonna just, I’m just trying to cool her down
I just phoned the doctor on-call and she said take some ibuprofen which Hannah has, and the result is ?
It’s come down a bit
Where is it ?
There it is
Well you’d think it’d come down
My god you’re so hot
I can’t believe how hot that is, thats got
Show me what’s going on
This all came up
When did you notice this ?
Yesterday afternoon, but its got worse since then
Yeah, lift up a bit higher if you can
Just zoom in on that
So it’s just one thing after another at the moment, isn’t it ?
Open your hands a little bit
And obviously we’re off, treatment at the moment
And we’re just waiting for who ?
What do you think he’s going to have to say ?
Mmm I don’t know
—————————————————————— Day Forty-Four (28:35)
Who um gave it a name ?
I sent a picture of it to Dr. B and he came back and said I think that’s what it is, and I looked into it and could see that that’s exactly what it is
Well does it bother you or does it just ?
No, it does
And itch ?
In some cases
Oh I’m sorry
Especially under the dressing
(?) Hannah had a fever 104 on Friday night
103.9 I should, if I’m being absolutely, precise
So I think it’s brought this out
I think you can, you can say 104
So, we’re now going to have the MRI that we were going to have on Wednesday
We’re going to have it today
—————————————————————— 1/23/2012 MRI (29:29)
This is one that was just done today ?
2012 Jan 23
Acq Tim: 12:13:09
320 x 230
2011 Dec 29
Acq Tim: 14:50:12
256 x 192
So the difference is that you can see there
How would you describe the differences between
and what you see here ?
Well 1st of all the size of the tumor is less, and um, if you see the actual, the solid enhancing part of the tumor
This is how it looks now
So from that you can see that it’s definitely, something definitely is going on
There’s no question about that
The size is less
The intensity of the enhancement is less
So wha, whe, whe, when you see something like this, wha, what does that show you ?
Well, certainly the, we see that the tumor’s most likely working, as the tumor is showing less enhancement, meaning less activity
And the tumor’s by effect smaller
So, ideally the next scan should be better
So we, we’re definitely going in the right direction
That’s for sure, and it’s brilliant that uh we’re going home on, on
On a high note
On a high note
Especially after our trials and tribulations
—————————————————————— Hannah’s tumor has started to shrink, and she doesn’t know
She doesn’t know that
So I’m going to go in the house
I think she’s still asleep, and give her the good news
Can we go home ?
Can we go home ?
Guess what ?
We can go home ?
And guess what ?
Your tumor started shrinking
It shrunk by at least 10%
Let me just give you a kiss
Hello, how are you ?
Yeah, I’m sorry for ringing so late
Um but I’m ringing with really, really good news
Good, that’s what I wanna hear
Go on you tell
No, you tell him
I don’t think I can
(Go on ?)
(? tell me ?)
has already shrunk by 10%
You’re f’n ‘ell man
That is absolute, amazing
And considering I haven’t been on the treatment for
You’ve been on the dose, off the dose, and on it
When you get started on the
F’n ‘ell man
I’m glad you phoned me
Yeah, you’re the 1st person I called, obviously
So what can you believe we’ve now been here for one month
And we’re going now
What are we going in to have done ?
Hopefully, be discharged
And are you pleased with the progress you’ve made ?
It’s been up and down
Yeah it’s been up and down
(Trip, trip ?)
You look like a Hollywood star
Not many Hollywood stars have a backpack like this though
Yeah but it was also a week ago
I don’t know how long ago that was where you couldn’t even
In you go
In I go
We can’t stay away
We’re getting discharged now
Oh really ?
I think so
Well that’s wonderful
Well yeah, oh we, we don’t wanna go
Right turn mate
Which floor ?
Oh, you’re still filming
Yeah, I just, you know, I mean, you know, why not ?
I haven’t filmed all of this
We’re going up
This was great when I was feeling really sick, ’cause it
Seems like we’ve spent a lifetime together, we used to go to the 4th floor
Um Hannah and I are leaving on Friday
What’s going to be your overriding memory of us ?
What are we gonna do ?
Are you going to miss us ?
What are we gonna do ?
Peace and love
(Remind me, is Hannah ?)
Why don’t you stay
(?) who’s your favorite, because you remember we said we were gonna say
‘Cause, ’cause we can o, we can only take one of ’em home, and who’s it gonna be ?
(? the rash (?) dude)
Well you can only take one attribute from each person, what would it be ?
I’m going to take Ashley home
Really ? Why ?
Yes, I like that
Because she’s, because she has the same condition ?
Because she can look after
So Rick you were told I was a big shot
Yes, going to film everything so
(Who knows ?)
you have to watch out
So, c’mon, what, what point in your head did you think: “My god this guy’s an absolute idiot”
—————————————————————— Day Forty-Seven (34:55)
This, this December 29
This is January 27
Here we have the tumor, visible previously
And we have now
Certainly, outside diameters have decreased
So to some extent, but also the, the intensity of the enhancement, has decreased
As you can see this was much brighter before, now is less
Which means that the tumor is decreasing and it’s uh losing its activity at the same time
Which is a good news
But, again, we are not at the remission
This is called Stable Disease
Probably next time we see this is shrinking more and this wide band is getting thinner, and thinner, and finally
it should disappear
So that’s what you should be looking for
There’s some hair on the camera
Well it’s not mine
It’s definitely not mine
I’m gonna start
Go on then
So it’s June 2012, and we have been back for approximately 6 months from the, America, and generally it’s all going well
I’ve had about 3 scans since I have been back, and they’ve all looked fairly positive
I think they’ve looked more than positive but yeah, go on
Um, yeah, so the tumor, well the enhancing part of the tumor is getting smaller
Basically there’s such a small little part left that I’m sure when you watch this you’ll be able to see some images so people can see your scans
December 7th 2011 scan
March 21st 2012 scan
and we know that if Hannah hadn’t had this treatment, with the type of tumor that she had
May 2nd 2012 scan
she might already be dead, or she probably wouldn’t be here
June 13th 2011 scan
July 29 2012 scan
She is very much alive at this point in time
And what’d you think about all this controversy, because the controversy around what we’re doing, and it’s just, just
I can’t believe it personally
I find it very, very hard the, the hatred and the skepticism, of, um, what Hannah’s doing
What, what, what’s that like for you ?
Well, as I, as I’ve always said along the way, you know, any of the skeptics, what would they do, if they were in my position ?
Would they want to die in 3 to 5 years or ?
Probably less than that
And that’s a horrible thought
Yeah, uh everyone has a, has a right to be sceptic and everyone has a right to their own opinion
Yeah, they do
Um, and, but the funny thing about people’s opinions is, opinions are often based on, what they’ve heard
or what someone hasn’t done, whereas uh, we spent 7 weeks at the Burzynski Clinic uh
And we saw everything
We saw everything
We spent time with this man um, and I tell you from my, from, from, I think from both, I can maybe speak for you hey ?, but uh
he’s one of the most honest, kindest people
Yeah, he is
‘Cause I, I said to you, the other day, about making this film, and you said: “Even if I was going to die tomorrow, I would still want this to be made”
You remember saying that ?
What, what, why did you say that ?
Because, it might give other people a shake up
Yeah, because uh, yeah
Why did we make this ?
Well I made this because I thought it was a journey that was well worth documenting
and maybe could help other people, and maybe help people realize there are other options, apart from the conventional treatment for cancer, and to inspire people
I hope you’re inspired by Hannah’s story because she’s an amazing, she’s a, honestly she’s annoying sometimes
but not very often
So are you. Yep
She has such a desire to live, uh and to enjoy her life, and I think
I don’t know, if there’s anything else that we
Ok, that’s enough for now
Hannah’s most recent scan confirmed she has now had a complete response to the treatment
—————————————————————— Special thanks to
Bradley, Jeremy and Irene
Cohen, Judith and David
Jones, Dr. Hilary
Levitt, Chris and Gina
Martinez, Dr. Juan
Rowkowski, Dr. Bob
Hannah Bradley’s GP The Eagle radio station
—————————————————————— Dr. Stanislaw Burzynski
and all the staff at the Burzynski Clinic
—————————————————————— camera Pete Cohen
additional camera Lindley Gooden
editor Jamie Lowe
—————————————————————— A film by Jamie Lowe & Pete Cohen
This film is dedicated to all the people who donated their time and energy to raise funds to save Hannah’s life
To follow the progress of Hannah’s recovery and find out more about the treatment she received please visit: http://www.teamhannah.com/blog
======================================  – 2/17/2012 – Friday – REAL LIFE – ‘I’ll try anything to beat brain cancer’
====================================== Team Hannah Blog (2:46) 4/1/2013 – Posted by Hannah
‘Cause you’ll put this bit in
(laugh) Ok, so, it’s April the 1st and it’s 2 years on since I had my operation and but ? obviously is out
So, I just wanted to (laugh)
I don’t believe you
Start today again
(laugh) I don’t believe you
It didn’t go “beep beep”
Because it’s on silent
(laugh) Do you think that I’m an idiot ?
3 2 1 go
Hi there um it’s (laugh) the, the 1st of April and it’s 2 years on since I had my operation and I’m pleased to tell you that I’m obviously still here, and um that’s thanks to you guys and thanks to me I suppose from, for fighting so hard for my life
And what, and what have you been up to then ?
I have been up to um just resting a lot and uh making up new recipes uh
Your next book
Yeah, for my next book and
Yeah, that’s pretty much it
And when are you thinking you might be able to come off the treatment ?
End of May
I have a scan in a couple of weeks and we’ll update you after that
And what will that be like, coming off the treatment ?
Oh, it’ll be amazing
So you won’t be walking around with
this fellow here ?
Is there anything else you’d like to say ?
Um, just love to you all
—————————————————————— Team Hannah Blog (3:34) 3/2/2013 – Posted by Hannah
This is the Team Hannah blog and it is the 3rd of March and Peter is actually filming me today
He’s not there, where he normally is
So I’m on my own
Um I’d just like to say how well I’m doing and my last
Ohhh went a bit northern then
My last scan um was mid-February and it showed no enhancing tumor
So that’s really good
Um I’ve just got um a really cystic area in my head
So it looks like they’ve predicted June me me to be off the treatment
So, fingers crossed for June
What will that be like to, to come off the treatment ?
Um, yeah, it will be
The treatment is so uh, restricting I would say
Yeah, it would be good to come off
And what else have you been up to ?
I have been (holding up Team Hannah Cookbook) selling lots of copies,
the other book a little bit
I know that you mentioned in the last blog, but just
What, what’s the book about ?
Well it’s low-carb recipes and I’ve
Been on the radio
I did a radio
promoting it and um it’s great for anyone who wants to cut out sugar
to lose weight and decrease their, and what, decrease their
Yeah, risk of getting disease
Yeah, ’cause we saw a doctor in America, Dr. Rowkowski
and he, and one of the things he said to you was you really need to cut sugar out of your diet
sugar is what he said
Um, and you’ve been getting a lot of people that
trying your recipes and taking photos
on Facebook on Pete’s favorite page
to cook something from the book
put them up on the
page as well
And um where can people find out about your book
Um just slide over to, to Hannah Cookbook and you will find it there
And your blog as well, yeah ?
So, I think we’re done
I just want to say there’s an airplane going overhead
Thank you to everyone whose supported us
it seems a lot of, a lot of film
And why are you laughing
I didn’t quite
What are those
This bench has seen a lot of action
Yeah, it has
Video action, that is
And we’re very thankful to everyone
Thank you, yeah, again
We try and do one after next scan
Big wave, please
====================================== Sapphire Sings For Team Hannah
1/3/2012 – Posted (3:00)
====================================== (Last) Christmas, I gave you my heart
The very next day, you gave it away
This year, to save me from tears
I’ll give it to someone special
Once bitten, and twice shy
I keep my distance, but you catch my eye
Tell me baby, do you recognize me ?
Well, it’s been a year, it does not surprise me
Happy Christmas, I wrapped it up and sent it
With a note saying, “I love you”, I meant it
Now I know, what a fool I’ve been
But if you kiss me now, I know you’d fool me again
Last Christmas, I gave you my heart
The very next day, you
Ok Sapphire, all I have to say is “Thank you, thank you, thank you
You have compiled a CD, um, in aid of Help for Hannah, and you have had quite a lot of sales so far, and you have got a beautiful voice, and I’m sure you’ll go very, very, very far, but “Thank you”, and this is just a little “Thank you” for you, but obviously other people are going to hear it Thank you Love you
Did she also, sing this yesterday, uh, somewhere?
Yeah, she sung it at Aldershot uh Football Club
Again, so Aldershot was playing football against another team
And she sang it for everyone ?
And they raised some money for you ?
Yes, so this has been a big “Thank you” from both of us (laughing)
Let’s, let’s play out a bit more of that song
‘Cause we love this song
Uh yep, it’s my favorite Christmas song
It’s the only Christmas song
(gave it away)
we can hear when it’s not Christmas This year, to save me from tears
I’ll give it to someone special
A crowded room, friends with tired eyes
I’m hiding from you, and your soul of ice
My god I thought you were someone to rely on
Me ? I guess I was a shoulder to cry on
A face on a lover with a fire in his heart
A man undercover but you tore me apart
Now I’ve found a real
Thank you so much
An Update For You
10/21/2011 – Posted
A Message From Pete About Team Hannah (3:07)
A MESSAGE FROM PETE
Hi it’s Pete Cohen and I just wanted to share something with you
Uh in February this year my girlfriend was diagnosed with a, with a brain tumor and when this happened it really obviously rocked our world
You know, everything seemed to be ok
Everything was great in life
And then something happened, and everything changed
And I don’t know whether anything like that has ever happened to you
But these things happen don’t they
And when they happen they really test you
They really challenge you
They, it’s very easy
It made me question lots of things
It made me think to myself, well, you know, what, is life, really fair ?
You know, should this happen to such a young person ?
These things do happen
And it really puts us in a position where it questions what we have
What we have to deal with such difficult circumstances
And I’ve definitely found things in myself that I didn’t know wa was there, you know, resolve, compassion, determination just to, to keep going
And this is the thing human beings we all have this kind of, we all have something else don’t we
All, we all have something more than our stress, and our worry, and our anxiety
We have a our true nature I think can overcome so much, of what life throws at us
You know, obviously we can’t overcome, everything
But what I really wanted to share with you is something that I’ve been so taken aback with, and that’s the beautiful nature of human beings, because we’re trying to take my girlfriend over to America to be treated over there, and we’re having to raise a considerable sum of money, and we’ve actually had to ask people, for help
Now that’s something that’s a bit alien to me, is to ask people and say, you know, can you help me, can you help us
Maybe that’s an insecurity that I have
Bur we’ve asked for help and it’s been amazing to see people all over the world spread the world, donate some money
And I’ve been so touched by that
It’s so life affirming
It so, it gives us such great strength
Any my girlfriend and I have been
so touched by that
So what’s my point here ?
Recognize how important it is for all of us to support each other
Recognize how important it is to affirm each other
You know, that’s one of the most important human needs we all have;
affirmation, it’s the fact that, to take the time to recognize each other
How are you
I care for you
So, thank you so much for watching this, and if you want to help us out please just uh visit the web-site we’ve put together for Hannah
It’s just called Team Hannah . com, and on there you can see a little more about Hannah and what’s happened to her, and the treatment we’re looking for her to have, in America
So, I hope you all have a great day and please, take the time to be there for other people, to care for other people, because that’s what makes this world great
Thanks for watching
Hannah’s message 
So what’s your name ?
I’m Hannah Bradley, and I’m 27 years old, and I come from North Hampton
And what happened to you ?
I had a seizure in middle of the night and my partner tells me I was rushed to hospital
That was in February 2011
And from there I had lots and lots of tests, and they decided that I had a brain tumor, and they were going to operate, and they successfully operated on the 1st of April, 2011, and they, the biopsy went off to be um checked
I found out that I had a grade 3 tumor
I then, under, underwent a, I had a 6 week course of radiotherapy, and that left me with no hair, and can’t remember what else (laugh)
And um that I went under another MRI scan 6 weeks after radiotherapy and we, that again wasn’t particularly good news, and we found out that there was still remnants of the tumor, and the future for me is very uncertain
So what, what are you looking for ?
What are you looking to do ?
Um, I, sorry
What do you want Hannah ?
What is it you’re looking for ?
Um, mainly I, um, I can’t
You just want to live, right ?
So what are you asking for ?
What, what, what do you need ?
I um, I need people to raise money, for, uh, my treatment
I’m looking to going to America because there are things that they can offer me here on the NHS or locally (?) is very, very limited, and there’s a doctor in Houston, and he’s able to help
So you want some help in raising some money, yeah ?
Yeah, it’s completely out of our reach to raise that much money, and it’s, I’d like help to raise the money
Monday, 17 September 2012 07:23 | Written by Administrator
Hannah’s amazing story, fighting and winning over her Brain tumor (Anaplastic Astrocytoma) is available on her support site
There are more videos by Pete and Hannah, documenting her fight and the Burzynski Clinic
When I mentioned Ben and Laura Hymas to Bob Blaskiewicz during the Saturday Google+ Hangout, and suggested that I should compare it to the patient stories he “embellishes”, he suggested I review his patient stories instead
So what am I doing ?
I’m reviewing the patient story of Laura Hymas
However, my goal is to provide a perspective of her mood, health, treatment, and support network, so that readers can get an idea of what someone with cancer; who does not yet know that they have cancer, may be experiencing, so if they note similar experiences or symptoms in themselves or others, they will know that they most likely should seek professional medical assistance, and also be able to use it to compare to other “patient stories”
Laura Hymas: Kent, United Kingdom
—————————————————————— (I will be doing a little data clean-up)
Note how I do NOT “embellish” Laura’s story by adding extemporaneous commentary like Bob Blaskiewicz
—————————————————————— 2005 – Laura met Ben: knew instantly wanted to start family with him 
When first met Laura 3 years ago beautiful, bright and energetic girl 
loyal, kind hearted and has a smile so infectious that it can light up any room 
started planning to marry and grow family 
====================================== 1/2009 – Laura pregnant
a) delighted to be having a baby but pregnancy wasn’t easy 
b) suffered terrible morning sickness so severe had to be admitted to hospital 
—————————————————————— 4/2009 – morning sickness stopped at 16 weeks, from then on felt exhausted 
—————————————————————— 9/2009 – Jacob born  
9/2009 – 
a) felt like happiest woman in the world
b) began planning to marry and grow family
c) adored being a mum 
d) knew wasn’t depression because felt so happy being a mum 
—————————————————————— 9/2009 – 12/2010 – 
a) felt never fully recovered after the birth and over 15 month period
b) certain wasn’t depressed
c) was so happy but exhausted all the time
d) convinced there was something wrong and so frustrating not knowing what
e) so tired even good nights sleep couldn’t get up in the morning to take care of Jacob when Ben went to work; stay in pajamas all day
f) at wits end
g) causing a lot of stress at home
—————————————————————— 5/27/2010 – 
a) felt like luckiest woman alive 
b)son Jacob just celebrated 1st birthday and she and fiance Ben were busy planning wedding
—————————————————————— 10/2010 – frustrating as kept wondering if was imagining it [[
—————————————————————— 12/24/2010 – 
a) no one expected anything serious so I just popped along with Jacob 
b) totally unprepared for what doctor said 
c) When doctors dropped their bombshell, just broke down 
d) happiness was shattered
e) thought of Jacob not having me here is heartbreaking 
f) will do anything to see him grow up and determined to beat this 
g) can’t accept going to die 
h) was in pieces 
i) immediately rang mum, Vanessa, who hurried to hospital to comfort her 
j) strange relief to know hadn’t imagined all symptoms, never expected something so terrible 
k) reassured when read stories saying people did live normal lives with this sort of tumour 
l) huge relief 
a) felt couldn’t accept there were no other options 
b) felt confident 
c) so angry but had no choice 
—————————————————————— 2/2011 – 
a) Being unable to care for son made feel so depressed
b) felt like life was slipping away
c) No words can describe how much this news and period of time affected us as a family
—————————————————————— 4/2011 – 
a) had devastating effect on her as young mum, and affected every part of lives because at moment cannot enjoy time and plan future like any other normal young family 
b) everyone was in for further shock 
c) left reeling when doctors said tumour had grown rapidly 
d) couldn’t believe it 
—————————————————————— 5/27/2011 – confident will get there and beat this 
a) felt very confident, almost empowered 
b) Given situation felt had nothing to lose 
c) astounded by generosity and kindness of general public 
—————————————————————— LAURAS TUMOUR 
—————————————————————— news hit very hard and also devastated her family and friends 
Until something like this happens, you dont realise how much of an effect it has 
fun loving girl who’s taken to motherhood like a duck to water, son is so lucky to have her because she always puts him first 
illness crept up slowly and was affecting long before diagnosis because it was eating away at health and energy which was so frustrating for when wanted to be energetic mum doing loads of things with Jacob 
awful diagnosis had positive and negative effect, fact now knows what was wrong is huge relief because knew deep down something was wrong, but its awful news at same time 
—————————————————————— 6/27/2011 – Anyone who has been or is going through a life threatening illness will understand power of positivity and support network of friends and family 
—————————————————————— faces race against time to travel to US for treatment she hopes will save her life 
—————————————————————— 7/8/2011 – 
helped stay positive and strong as a family even in difficult times 
worried how long it would take before could start treatment 
has been so strong and positive throughout journey, im so proud of her for being such an amazing fiancee and an amazing mum to Jacob – not a day goes by where she doesnt make us smile and keep our home life normal for Jacob at this important time in our little mans life…a really special person 
—————————————————————— 7/28/2011 – had agonising wait for results on Thursday
—————————————————————— 8/3/2011 – 
MIXTURE OF FEELINGS THIS MORNING 
never happy with just sitting around 
spent months researching all kinds of brain tumour treatment protocols looking for most successful, non harmful type of treatment currently available in the world and even speaking to past patients about their experiences, led us to front door of controversial Dr. Burzynski’s clinic in Houston this morning…somewhere that gives us all a bit of Hope 
Driving to clinic we were nervous about how today would be but as soon as we walked through the door we were met with friendly faces and felt instantly at ease 
left clinic feeling relaxed, like were in right place and the day had gone great, been prescribed treatment she wanted and with any luck will be having 1st dose this Friday 
—————————————————————— 8/8/2011 – 
b) like having another baby!
c) it’s really worth it 
—————————————————————— 8/8/2011 – future was still very uncertain 
at times a whirlwind, extremely stressful 
—————————————————————— 10/2011 – 
a) times when feel like giving up 
b) only have to look at Ben and Jacob to know life’s worth fighting for 
c) determined to give treatment my best shot 
bit of a difficult week this week, hadn’t been sleeping well due to MRI scan booked 
After such good result last time where tumour shrank so much were feeling so positive for few weeks after, as next scan gets closer start to worry about silly things, every time has bad day where feels exhausted, worry tumour suddenly started to grow again 
next day have really good day…. might have epileptic seizure, though has a LOT less of them now and aren’t as strong still worry means tumour growth 
get to few days before next scan even sillier things start to cross mind like “I’ve eaten lots of chocolate and had a few KFC’s since last scan was my diet really bad and hasthat made it grow!?!” 
all sorts of worries will go through mind at this point, like anyone else in this situation will understand 
trying to describe just other day what its like being told has malignant brain cancer 
(still hate those words) 
its impossible to describe but so awful makes you feel like you’re character in film “Saw” 
Like someone has put time bomb inside your head, it will grow fast and more it grows you will slowly become more disabled, doctors tell us that current available medicines can only slow it down..there are never any survivors 12-14 months (1 year – 1 year 2 months) from diagnosis is prognosis 
Eventually it will win, and you will lose the fight 
Sometimes in morning wake up and for few seconds forget have one, everything is normal, then reality hits again 
so anxious at this point, think they could tell 
burst into tears 
so shocked, amazing start to 2012 
Every time has bad day where feels exhausted, worry tumour suddenly started to grow again 
fret before a scan  eat bad food  made stay up late some nights watching TV instead of resting 
all sorts of worries will go through mind at this point 
diagnosed with tumour just over year ago, describes what it’s like living with malignant brain tumour 
it’s so awful it makes you feel like a character in the film ‘Saw’ 
like someone has put time bomb inside head, it will grow fast and more it grows you will slowly become more disabled 
Eventually it will win and you will lose the fight 
feel fortunate given chance to at least try treatment 
About improvement, burst into tears 
so shocked, what an amazing start to 2012 
—————————————————————— 2/8/2012 – 
big milestone of a day 
just wanted to wear something to cover the site where tumour is, area has biopsy scar and hair is much thinner from radiation 
—————————————————————— 2/21/2012 – had 6 weekly MRI scan tuesday – scary time as always 
—————————————————————— 3/25/2012 – taking small steps but feeling more like old self all the time 
—————————————————————— 4/5/2012 – “scan week” always stressful time 
—————————————————————— 5/19/2012 – diagnosed 17 months ago now and even on hardest days never given up hope 
—————————————————————— 6/22/2012 – 
Everything takes toll eventually 
feel fine now and have caught up on sleep, for 6 days while off treatment awaiting blood culture results was almost as if nothing was wrong, in perfect health so breath of fresh air to have no IV bag to carry around 
fleeting moment of “normality” for our family again 
—————————————————————— 7/4/2012 – 
been emotional rollercoaster, when look back over past year and a half 
has certainly been a life changing experience for us and all of our family 
extreme stress of situation is starting to wear off and starting to feel able to relax a little now and do “normal” things most families probably take for granted like planning ahead into future rather than living day to day 
don’t think its possible to describe personal experience like this, much like amazing feeling of becoming a parent you have to experience it first hand to really know what its like 
—————————————————————— 8/8/2012 – When look back feel like looking at someone else’s life 
—————————————————————— 8/29/2012 – 
its been well worth all the hard work and effort 
Mentally stayed so strong despite over past 12 months (1 year) having not slept full night due to infusions – calculated has had at least 2150 ninety minute infusions to date 
These days, life is much more hopeful and slightly less stressful 
—————————————————————— 11/27/2012 – 
fight this every day for almost 2 years without ever once faltering or giving up 
Jacob has been here to give a reason to be strong and his unconditional love has been a huge part of healing process 
couldn’t be happier 
—————————————————————— 1/2013 – Dr Burzynski has given me and my family the future back and I am eternally grateful 
appreciate every minute of every day 
I’ll finish treatment but have my life back 
Who knows what tomorrow holds ? 
6/2011 – 
whilst having radiotherapy lost all hair which fell out very quickly – in a matter of hours – too quickly to really have any time to get used to the idea 
(if thats possible) 
for woman it can be a really big part of their identity, especially if you’re just 25 years old 
1/12/2012 – 
When has scan every 6 weeks to find out how treatment is going go through different emotional stages 
After such good result last time where tumour shrank so much were feeling so positive for few weeks after, as next scan gets closer start to worry about silly things, every time has bad day where feels exhausted 
next day have really good day…. might have epileptic seizure, though has a LOT less of them now and aren’t as strong still worry means tumour growth 
eat bad food, stay up late some nights watching TV instead of resting, dragged round country parks for walks 
(probably in hind sight exercise is very good right now) 
has good days and bad days 
Every time has bad day where feels exhausted, worry tumour suddenly started to grow again 
next day have really good day … then might have epileptic seizure, even though has a LOT less of them now 
4/5/2012 – feeling really good apart from sinus infection unrelated to tumour or medication 
—————————————————————— 6/15/2012 – suspected Hickman Line infection, really exhausted and had cold shivers 
====================================== 1/2009 – suffered terrible morning sickness so severe had to be admitted to hospital 
—————————————————————— 5/2009 – morning sickness stopped at 16 weeks 
—————————————————————— 9/2009 – Jacob born  + 
visited GP dozens of times 
At 1st doctor thought was baby blues but months after Jacob born, still felt tired, diagnosed postnatal depression 
came home with anti-depressants 
knew wasn’t depression because felt so happy being a mum 
didn’t even take the pills 
—————————————————————— 5/27/2010 – 
—————————————————————— 10/2010 – while family, from Rochester, Kent, were in Lanzarote, developed weakness in right arm 
At first thought might have slept awkwardly or pulled a muscle 
Some days it was there, some days it wasn’t 
Other times felt tingling in fingers 
—————————————————————— 11/2010 – 
started to lose feeling and co-ordination in right arm which prompted an MRI scan at hospital 
health slowly declined over past year, never fully recovered after having Jacob and mis-diagnosed with range of things including exhaustion 
breakthrough diagnosis came after another visit to GP’s 
had a cold couldn’t shake off and went to see if needed antibiotics 
saw different doctor and he could see from notes sometimes been at surgery every week 
kept list of symptoms on iPhone 
handed it to him and he looked concerned 
been visiting surgery with different symptom every time 
When he saw them together, warning bells rang 
Although he didn’t say he suspected a brain tumour, he sent for tests 
—————————————————————— 12/24/2010 – results arrived  + 
few days later called back for results 
had brain scan but also had blood tests and thought was going to get those results 
had found something on scan 
huge tumour 
doctors broke news has rare, inoperable brain tumour 
told there’s no cure and it’s growing 
bad news was tumour, known as an oligodendroglioma, was inoperable – deep in the brain and removing it would be too dangerous, so all doctors could do was monitor it 
diagnosed with rare Brain Cancer and biopsy revealed is most aggressive type of brain cancer, not only is it inoperable because of size and location but also deemed incurable using available cancer therapies in UK, which can only at best slow down growth 
Tests showed was low-grade, slow-growing tumour 
explained could have had it for 20 years 
reassured when read stories saying people did live normal lives with this sort of tumour 
average life expectancy poor, fewer than 1 in 100 people diagnosed live for 5 years, this cancer is common in people over 50 
(approx 5,000 diagnosed annualy in UK) 
very rare in Laura’s age group, less than 50 cases reported every year in UK and no known cause 
told by doctors in UK that brain tumour was inoperable 
set out to find an alternative cure 
find clinic in Houston, Texas, run by Dr. Burzynski, that pioneers new treatment for malignant brain cancer Laura has 
clinic in America has pioneering treatment proven very effective against this type of cancer without harming the body 
clinic has been running for over 30 years and has been able to not only stabilise, but potentially cure this awful disease in some cases 
treatment not available via NHS 
most patients require anything from 2 to 4 years treatment 
diagnosed with type of brain cancer for which there is no cure in Britain and wasn’t expected to live more than 12 months (1 year) 
Since diagnosed has developed epilepsy and has multiple seizures a day 
right arm almost paralysed so has been unable to pick up Jacob or bathe him 
—————————————————————— 2/2011 – right arm virtually paralysed 
also developed epilepsy and having seizures every day 
tumor turned agressive 
next batch of test results arrived 
results of scan and biopsy 
doctors said tumour had grown rapidly 
turned into worst form of brain cancer – fast-growing, high-grade glioblastoma multiforme 
while they could give chemo and radiotherapy to try to shrink it and prolong life, was nothing more they could do 
didn’t have time to lose 
No one knows how long has left to live – do know has most aggressive form of brain cancer 
If did nothing could be 6 months to a year 
after painstaking research found clinic in Houston, US, which offers treatment still under trial and NHS will not fund 
In States, critics believe it’s expensive, with no proven results 
read stories claiming it worked for some 
sent the clinic notes 
treatment based on clinic’s 25 years of research showing people with the cancer are lacking tumour suppressor 
In people without cancer substance kills growing cancers 
clinic doctor believes replacing it with drug will trigger body’s immune system to rid itself of tumour 
having therapy to help shrink tumour 
—————————————————————— 5/2011 – prescribed 6 weeks radiotherapy coupled with Temozolomide chemotherapy 
potential life saving treatment in America 
travel to US for treatment hopes will save her life 
1) completed radiotherapy course
2) had to stop chemo after few days because allergic reaction
3) doctors very honest – couldn’t continue TMZ cycles because was allergic to it
4) original oncologist against decision to go to America for treatment because controversial and not yet approved by NICE, or any medical body
5) transferred to another oncologist willing to take me on in London
made fully aware early on that cancer treatment and long term prognosis has improved for most common types of cancers over the years 
has been no real improvement in outcomes for Brain Tumours – especially Glioma which although being one of most common cancers, especially in children, are most under funded types of cancer in research arena 
spoke to past patients in US and UK, some who were cured many years ago from ‘terminal’ brain cancers using “antineoplastons” at Burzynski Clinic in Houston, Texas 
clinic treats many types of cancer with other therapies but for antineoplastons primarily focus on brain cancer because it is one of hardest to treat 
Prior to visit to US sent sample of Laura’s brain tumour tissue from biopsy procedure to Pheonix, Arizona 
At lab number of tests carried out including gene expression tests, genetic tests used to identify which treatments would be most effective for Laura as an individual – backup plan if antineoplastons had no effect 
“FDA approved” Phase II clinical trial – specifically “Antineoplaston A10 & AS2-1” which are treatments pioneered by Dr Burzynski in mid 1970’s 
friday finished 6 week radiotherapy course 
treatment supposed to be given alongside chemotherapy but 10 days into 33 day course of chemotherapy developed allergic reaction and had to stop particular drug 
chemotherapy isnt very effective for everyone with Brain cancer and missing out on this drug also means Laura is so much stronger physically than she would have been otherwise, that coupled with great advice from our nutritionalist Jo Gamble has meant Laura is in amazing shape and able to travel to America safely to start treatment 
—————————————————————— 7/2011 – travelled to Burzynski Clinic in Houston end of July to start Antineoplaston treatment and for Ben to be trained on administering medicine by doctors at Clinic
since starting treatment in America in July, has begun to show signs of improvement 
started to get use of paralysed right arm and hand back 
has got a lot more energy and is able to go on short walks with Jacob 
receive gene therapy at clinic in Texas 
treatment involves having daily doses of drugs and scans every 6 weeks 
—————————————————————— 7/2011 – 8/2011 – 3 weeks there and came home and continuing treatment
(administered by Ben with very close direction from clinic)
—————————————————————— 7/25/2011 – MRI scan Monday
had agonising wait for results on Thursday
got results “Increase in size of tumour left frontal lobe” and sent straight off to clinic, took few hours to get green light (because of time difference) and by 6:30pm got call we were waiting for from clinic FDA should give special exception without aproblem – Houston here we come 
—————————————————————— 7/29/2011 – 
Ben bought Friday.morning flights “just incase” 
arrived in Houston, Texas Friday.afternoon after trouble free flight 
—————————————————————— 7/29/2011 – 8/2011 – 
here for next 3 weeks 
Thanks to amazing fund raising and generosity from everyone raised enough money to start treatment now rather than 10/2011, this gives a huge head start 
would originally been having another cycle of chemo until 10/2011 but allergic to it so means NHS don’t have any more options available at this stage 
Chemo isn’t very effective for a lot of brain tumours so isn’t big loss, much better to get onto next step earlier than planned 
FDA law prevents clinic treating at this point unless tumour has grown since last scan 
(if it had shrunk from radiotherapy would’ve had to wait until end of August) 
in catch 22 situation, didn’t want tumour to have grown since April but also wanted to get America ASAP, UK doctors did say not to panic because even if there was growth it could just be post radiotherapy swelling, this put our minds slightly at rest 
decided to take additional option on top of standard treatment has come here for, option has only been available here a few months and – huge advancement in world of cancer treatment 
sample of tumour tissue sent over from Kings Hospital to Lab in Phoenix, Arizona 
Lab running number of different tests on tissue sample and also mapping DNA profile to get “molecular fingerprint” of individual tumour 
Everyone’s cancer is unique to them and therefore will respond best to “unique treatment plan” 
Lab results will be sent to clinic next week and will tell them exactly what drugs will be effective for unique cancer, and what specific genes are involved in causing cancer 
Gene target therapies will also be used to “switch off” genes causing cancer and “turn on” tumour suppressor genes to help stop cancer in its tracks 
rather than having “one size fits all” treatment be recommended treatments based on what clinic knows will be effective for individual case 
—————————————————————— 8/2/2011 – 1st appointment Tuesday where will finally meet Dr Burzynski in person 
appointment booked at clinic in America for start of August so will be flying out at end of month to start treatment 
travel to clinic and began treatment 
—————————————————————— 8/3/2011 – 
11:30AM CONSULTATION AT CLINIC 
journey began 8 months ago (12/24/2010) when diagnosed, found out over following weeks how generally un-successful brain tumour treatment was in UK 
day consisted of consultation with Dr Acelar who will be primary consultant 
She interviewed in more detail about condition then went off and reviewed MRI scan images with Dr Burzynski as he would have final say over treatment plan to be prescribed 
After agonising wait for what seemed like 10 hours but was only 10 minutes Dr Acelar came back into room with Dr Burzynski 
this is a guy we’ve been researching about 6 months, has been completely curing what were previously considered to be 100% fatal brain tumours, and by curing I mean for a lot of patients tumours completely disappear 
wasted no time explaining exactly how treatment works, basically brain cancer is being caused by up to 600 defective genes, treatment will “switch off” cancer causing genes which will make cancer cells go into “apoptosis” 
Apoptosis is natural cycle where cell dies and is broken down by body, in other words tumour will start to break down and dissolve away 
know within 4-8 weeks if working and if not then they can add in other gene targeted therapies – based on results of some genetic testing having done at the moment 
had bloods and physical examination done 
(by another doctor) 
and done for the day 
due back at clinic once they get approval from FDA to treat – which will take 1-4 days 
—————————————————————— 8/4/2011 – 
just got call from clinic and now approved for treatment by FDA much quicker than thought 
didn’t think there would be any problems because fits criteria, having had previous Radiotherapy which is required before you can have any private treatment from Dr Burzynski 
waiting on appointment from doctor who’ll be fitting Hickman Line, which is IV line fitted in chest just below collar bone 
Having IV line fitted is more convenient that in arm long term, and allows delivery of higher doses of medicine from IV pump that will become friend for about next 12 months (year) 
should be getting fitted in morning (Friday), enabling 1st test dose of Antineoplastons in afternoon 
—————————————————————— 8/8/2011 – Burzynski Clinic Houston Texas 
11.am connected and switched on pump for 1st ever Antineoplaston infusion, from that moment on would have to have 90 minute infusion every 4 hours – EVERY DAY .24/7 
grade four cancer diagnosis let alone NHS treatment options, alternative medical research and decisions, fundraising, flying to america for a month 
—————————————————————— 8/8/2011 – 9/2011 – doctors completely honest, said won’t know IF or how quickly will respond until on treatment for at least 8 weeks
—————————————————————— 8/8/2011 – on antineoplaston therapy since
medicine rich in sodium and have to infuse 2 litres daily
(dose lasts 90 minutes every 4 hours 24/7)
drink approx 5 litres of water daily
while pump running
carrying around infusion pump all day connected to Hickman line in chest
MRI scan at private hospital every 6 weeks
8/2011 – came home
25-year-old Laura Hymas, of High Street, Rochester, has seen tumour shrink by more than a third in just 6 weeks after pioneering therapy in America 
already improving since treatment in USA 
—————————————————————— 9/2011 – came home and continued antineoplaston treatment, treatment literally takes over and consumes every day of your life 
Not specifically side effects because been lucky enough to have minimal short term side effects, but impact on daily life – the infusions, preparing medicine bags, blood tests, etc.. 
hopes to have new treatment in US 
took until middle of October to slowly increase antineoplaston dose up to “maintenance dose” Dr Burzynski deems most effective for body weight
hard to see Laura suffer 
know in next few weeks going to lose hair 
Some people say should accept condition is terminal 
—————————————————————— 11/29/2011 -_6 weeks later scan tumour started shrinking by 36% 
—————————————————————— 11/2011 – 36% (Nov 2011) 
decreased in size EVERY 6 weekly scan 
bulk of tumour reduced in size by 77% since reaching maximum tolerated dose of Antineoplastons 
(growth stabilised before hitting this dose) 
—————————————————————— 1/2012 – 56% (Jan 2012) 
decreased in size EVERY 6 weekly scan 
—————————————————————— 1/10/2012 – 
scan every 6 weeks to find out how treatment is going 
such good result last time where tumour shrank so much 
there’s amazing doctor in Houston, Texas 
friendly, happy and kind man who is always polite and making jokes 
sees so many patients but makes real effort to know you as a person, who you are, where you come from, what your story is..how you got to his front door 
doesnt promise you anything, cannot help everyone 
(1st to admit that) 
costs are completely transparent from day one, you even get breakdown of why treatment costs what it does 
has many many patients who had inoperable malignant brain cancers that failed chemo and radiotherapy who are not only still alive 20 years later… are now cancer free 
Some patients have never had any other treatment for their brain cancer apart from Antineoplaston therapy 
(which is what on) 
family who live in Kent just 5 miles from us got in touch just before Christmas as they read about us in the local paper 
son had been diagnosed with brain tumour 
They knew radiotherapy and chemo would only be palliative and having these therapies alone at young age would shorten life let alone brain tumour problem 
searched and searched … Eventually like us found Dr Burzynski too 
sons tumour decreased in size 72.5% from 1 year just on antineoplaston treatment, then put on low dose of medicine for further 3 years 
tumour is still there but hasn’t grown or changed since 
NHS oncologist can’t understand how he’a still here 
was 8 years old when diagnosed, in 1998 
now 21 
happy healthy young man and just passed university degree, looking forward to future 
a lot of criticism about Dr Burzynski, people saying Antineoplastons “unproven” and Dr Burzynski is scam artist taking money from dying cancer patients, that terminally ill cancer patients should be discouraged from “False Hope” he gives people 
any celebrities that try to help fund raise or appeal for people to donate are bombarded on twitter and internet with messages saying they are helping someone see scam artist and quack 
We have been focus of some of these groups, they have been trying to discourage people from donating to us “With Laura’s best interests at heart” 
already tried and exhausted currently available “conventional” medicine 
countless websites discussing Laura, other current patients with fund raising campagins and Dr Burzynski that contain false information about us all 
isn’t new thing to Dr Burzynski, he’s used to it by now but for us it’s distressing 
They try to find holes in Laura’s scan results when she reports good news, one person even told Laura on twitter to “F*** off” then he called her a “Burzynski Troll” and justified actions by saying Laura fake patient designed to encourage more people to give money to “Burzynski scam” 
REAL Stories about REAL people like the one above from family who live near us are ones that give us strength to carry on 
one day critics might decide there’s enough evidence to show treatment works? 
Just because they haven’t seen scientific data doesn’t mean something doesn’t work 
It’s worked for many 
having great response 
Tuesday when had scan at private hospital were walking past office afterwards where radiologist would be examining new scan and comparing it to last one taken 11/29/2011 
stood outside to catch attention of secretary so could arrange next scan, at that point I saw through crack in door someone had brain scans on computer screen 
radiologist rolled back in his chair and popped his head round the door, our hearts were pumping as we were told we could have the result straight away 
radiologist had huge smile on his face 
Its looking good, definitely smaller 
walked in office, and had new scans from that day on screen with Laura’s scans from 11/29/2011 below 
To naked eye obvious to see tumour MUCH smaller and enhancing much less 
(less cancerous) 
pointed out some things and said haven’t finished measuring but estimate AT LEAST 25% SMALLER than last scan 6 weeks ago 11/2011 
said if hang around in hospital cafe for 15 minutes he’ll finish up report and can have copy 
had some lunch and nurse came in short while later with report 
better than even initially thought 
TUMOUR DECREASED 56% in size since beginning American treatment 8/2011 
most recent scan revealed tumour decreased massive 56% in size since beginning of treatment 
scan – 56% tumour decrease! 
latest scan shows tumour at least 25% smaller than last scan 11/2011 
decreased 56% in size since beginning American treatment 8/2011 
sent scan CD off straight away by Fedex to America so doctors could do independent report too 
—————————————————————— 1/11/2012 – 
Yesterday night spoke to doctor at Burzynski Clinic, they’ve reviewed scans and concluded in their opinion tumour has decreased same amount 
need to keep on medicine into 2013 
If one day lucky enough for cancer to completely disappear still need to keep on medicine up to 12 months (1 year) after, “maintenance program” designed to make sure kill every single cancerous cell because Glioblastoma Multiforme are very nasty and has “roots” that even an MRI wouldn’t necessarily pick up 
If stopped treatment too quickly cancer could return 
—————————————————————— 1/13/2012 – 
Dr. Burzynski and clinic have been under constant heavy criticism from people believing he’s a ‘quack’ that gives ‘false hope’ to terminally ill people 
a lot of criticism out there about Dr Burzynski, people saying Antineoplastons “unproven” and Dr Burzynski a scam artist taking money from dying cancer patients and terminally ill cancer patients should be discouraged from “False Hope” he gives people 
already tried and exhausted currently available “conventional” medicine.” 
diagnosed with tumour just over year ago 
Doctors tell us current available medicines can only slow it down – there are never any survivors 12 – 14 months (1 year – 1 year 2 months) from diagnosis is prognosis 
keep on medicine into 2013 
—————————————————————— 2/2/2012 – 
treatment is working so well 
every 6 weeks for MRI scan 
—————————————————————— 2/9/2012 – 
really huge milestone 
Day to day been continuing with medicine 
attached to IV pump using hickman line in chest and has dose every 4 hours 24/7 
Each dose lasts 90 minutes so really interrupts sleep patterns and makes tired – effectively infuses 2 litres of medicine directly into blood stream every day involves a lot of trips to toilet 
medicine high in sodium so on top of this drinks 5 litres of water a day 
aren’t any side effects other than toilet trips, extreme thirst while infusing and tiredness 
Next MRI scan in few weeks so nerves and worries setting in 
—————————————————————— 2/21/2012 – had 6 weekly MRI scan tuesday 
77% (Feb 2012) 77% in just 18 WEEKS 
decreased in size EVERY 6 weekly scan 
scan was even better news – 77% tumour decrease! 
just got results and tumour has continued shrinking 
now 77% smaller than when started treatment 8/2011 
amazing news, was stable few months while increasing Antineoplaston dose, then hit maintenance dose 10/17/2011 
decreased in size EVERY 6 weekly scan 
Glioblastoma Mutliforme is most agressive cancer out there so Laura will need to keep going on treatment for at least another year to kill every single cancer cell 
been fighting this cancer for over year now, almost approaching April 
This time last year told awful news that brain tumour had changed and was now much more aggressive, had turned very cancerous and future was very uncertain because it was one of worse cancers anyone could get, on top of that it was in worst location too 
—————————————————————— 4/5/2012 – 
6 weekly MRI scan went well again 
tumour now reduced to what doctors believe is small cavity there because biopsy 4/2011 
small edge of cavity is still enhancing on scan 
(which means cancerous cells) 
enhancing less than last scan, so everything moving in right direction 
plan for now is to just keep going and continue daily doses of antineoplaston medication 
treatment working so well 
—————————————————————— 5/15/2012 – scan Tuesday shows what remains of tumour is now at stage where hardly enhancing at all on MRI scan, enhancement now barely visible without magnifying scan images heavily 
“active” (growing/spreading) malignant tumour shows up on MRI scan as bright white area 
bright area represents cancerous cells and tumour used to light up like light bulb which was bad news 
aim of any successful treatment is to get rid of everything that enhances so no longer have active tumour 
bulk of tumour reduced in size by 77% since reaching maximum tolerated dose of Antineoplastons (11/2011) 
(growth stabilised before hitting this dose) 
reduction in tumour size meant able to stop taking steroids 
(designed to reduce brain swelling but have nasty side effects) 
epilepsy has got much better, especially in last month 
seizures much less frequent 
What’s left of tumour – is cystic fluid filled cavity* 
*cavity there from surgery (Biopsy) 4/2011 
cavity may never dissapear, might just stay there because brain tissue has been removed 
Alternatively cavity may break down very slowly and hopefully dissapear over time 
Either way isn’t major problem 
—————————————————————— 5/18/2012 – 
had chat with doctor over phone last night, as last scan showed very very little enhancement they have now decided to put on “finishing program” of antineoplastons 
If patient lucky enough to have tumour stop enhancing then they’re asked to carry on treatment for 8 months, then finish 
8 month schedule allows medicine to have time to kill last cancerous cells that aren’t showing up on MRI scan 
told once people finish schedule – in most cases – unlikely tumour will return, most people can go on to live normal tumour free life 
diganosed 17 months ago (1 year 5 months) 
“In the field of Brain Tumours there are no ‘proven’ treatments, only treatments ‘accepted’ by a group of clinicians who practise in that field” 
treatment isn’t guaranteed to work for everyone, but there are many long term (10, 20yr) survivors 
Using traditional chemo and radiation on inoperable GBM has no long term survivors 
—————————————————————— 6/15/2012 – 
suspected Hickman Line infection, really exhausted and had cold shivers 
Burzynski Clinic very on the ball and didn’t want to take any chances, said had to take off antineoplaston treatment and go straight to hospital so doctor could take blood cultures from hickman line and arm, local doctor arranged for us at very short notice 
told by clinic that if infection in line it would have to be taken out and would have to have probably 7-10 day course of antibiotics…then there would be headache of how to get another hickman line surgically fitted because only GP supporting in england 
havent seen or had any contact with NHS oncologist since ealier this year, despite good progress so they probably wouldn’t be able or willing to help in this situation 
Worst case looking at about 3 weeks without treatment – huge worry because hasn’t missed single day of treatment since 8/2011 
—————————————————————— 6/21/2012 – blood cultures were taken and results were clear, no infection present 
started back on antineoplaston treatment again and could forget all problems and what if’s 
While off treatment had good chance to rest and relax, something long overdue 
hadn’t had full nights sleep for nearly 11 months 
medicine is very high in sodium so wake up during doses about 5 times a night for toilet trips and drinks 
totally burnt out last week so suspect cold shivers and exhaustion were just where needed a break and also past year catching up emotionally 
been rollercoaster, on autopilot so don’t think taken 5 minutes to stop and think about whats happened to family, extreme stress of situation, fundraising and worries about raising enough money, trip to america, treatment and all the controversy it attracts 
—————————————————————— 7/4/2012 – 
had MRI scan last week and despite being off treatment for 6 days prior to scan 
(due to suspected IV line infection) 
NO CHANGES 
back on antineoplaston treatment again and still scheduled to finish treatment at end of year 
really lucky to catch tumour early 
last year only initially had 3 options which were surgery, radiation and chemo 
did enormous amount of research and even got MP involved with discussions with head of PCT, they confirmed all standard approaches were palliative, designed to buy time – not something we were told by oncologists, who refer to these 3 modalities as “a radical treatment approach” and give little information apart from “we’ll see what happens” 
they are same options that’ve been used for decades – where is the progress? 
Being an inoperable tumour our only options left were radiation and chemo 
Knowing that best radiation can do is slow down growth 
(in some cases) 
If it worked that would only be small window of time 
was unable to take more than few days of chemo due to allergic reaction 
(which in fact, looking back was actually a normal body reaction to taking a highly toxic substance) 
Would American treatment work or would Dr Burzynski be a crook just like all the sceptics were saying? 
—————————————————————— 8/2012 – no trace of Tumor at all 
always get 2nd opinion from UK radiologist who confirms just cavity left which should resolve over time 
last update just after MRI scan, at which time both Dr Burzynski’s radiologist and private UK radiologist both confirmed there was no trace of residual or recurrent brain tumour on MRI scans 
—————————————————————— 8/29/2012 – 
Scan: one year on treatment! on Wednesday 
Burzynski Clinic advised all they can see on MRI scans is scar tissue, cavity present from where tumour used to be 
UK radiologist was more cautious initially 
(probably because he has never seen a Glioblastoma dissapear before!?) 
he reported on scan and came to same conclusion as Burzynski Clinic 
reported today he beleives all he can see is small cavity/scar tissue too 
fact that 2 parties don’t have any contact gives us great confidence in the 2 mirroring reports 
—————————————————————— 9/2012 – had scan 
—————————————————————— 11/1/2012 – Laura Hymas’s MRI assessment from Dr. Burzynski 11-01-2012
So this is uh a girl who came to see you uh this year, last year
I think this is after approximately uh 4 months of treatment
4, maybe 5 months
So she’s, been on treatment 4 months, and this is when she came to see you here
This was in Ju
I’m sorry, this was in July so this must be 6 months
6 months (both)
Yeah 6 months, yes
So this was July, and this was the next one that she had
This is November, and uh, here is now, January
That’s a substantial difference, certainly
And this is with no chemotherapy
Just the uh
Just antineoplastons only
And, and what type of tumor did she have
Only, oh one, this is glioblastoma
This is the highest malignancy tumor
So you must be pretty happy with this
Well, she did very well
I’m very glad
So maybe next one
Especially, since it was not necessary to use any other treatment
And actually, the response was somewhat slow and we thought that perhaps it would be necessary to add additional treatment, but since she got such a nice decrease we hope we can avoid any further treatment
But this looks great because in addition to decrease in the tumor, we see also shrinkage of uh the cavity after, the operation
You mean the cavity around
The cavity here
So, this also, this is also the case which means that there is certain degree of repair, from the damage that was done by the procedure
She had a biopsy, didn’t she
So lets hope that perhaps another 2 months or 4 months it will disappear completely
—————————————————————— 11/27/2012 – scan this morning, confirm again nothing present, which is amazing news we all couldnt be happier 
—————————————————————— 12/25/2012 – scheduled to finish treatment just after Christmas 
—————————————————————— 1/2013 – It’s GONE
continuing antineoplaston treatment until end of treatment course in 1/2013 and will then have regular MRI scans to ensure tumour doesn’t re-occur
just taking time to relax and see out end of Antineoplaston treatment, which all being well will finish 1/2013 after next scheduled MRI scan 
finish treatment 
====================================== THOSE WHO MADE IT POSSIBLE:
5/12/2011 – Fundraising Launch! Thursday
such an amazing response and so many emails
Thank you so much to everyone, friends, family, friends of friends and even the people who have donated and dont even know us, we are really touched by your kindness
7/8/2011 – family and freinds – parents, especially Laura’s mum and dad 
====================================== THE PEOPLE:
Alice – heard about us because her brother plays football with Laura’s nephew Joe 
6/26/2011 – Bergin, James – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
Catlin (Alice friend Catlin) 
8/3/2011 – Dan – Anglo-Texan friends 
Danielle (Their friends) – run Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425
Elaine (Laura’s sister) 
Figg, Keri – live locally and heard about Laura recently through a friend: Since then have been relentlessly selling wristbands, arranging fundraisers, and running all over Kent trying to get raffle prizes!
Hills, Kirsten – Journalist from BBC
18:00! re-run at 22:30 
5/19/2011 – Hound, Rufus sent Twitter video to his 236,293 followers Thursday 
7/8/2011 – received almost £20,000 in 12 hours then more donations over following weeks as people continued to spread the word about the video 
7/8/2011 – Broken the £50,000 Barrier! – Update on Laura Friday: only started fund raising around 6 weeks ago! 
6/26/2011 – Ben and 2 friends – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
5/31/2011 – Hymas, Eve (Evie) (Bens sister) – 12hr golf marathon Tuesday 7am 
5/31/2011 – friends at their schools who have donated to the fund 
5/31/2011 – Hymas, Theo (Brother) – 
7/8/2011 – Les (Laura’s father in law) and his good friend 
5/31/2011 – Jackson, Jemma – 12hr golf marathon Tuesday 7am 
7/8/2011 – Jeffries, Terry …Local artist who gave a print of a beautiful painting of Venice, DeBeers diamond company donated a gold and diamond pen along with a box of 5 tickets to the Proms at the Royal Albert Hall! 
Joe (Laura’s nephew) up north 
Jones, Sandra – live locally and heard about Laura recently through a friend: Since then have been relentlessly selling wristbands, arranging fundraisers, and running all over Kent trying to get raffle prizes!
7/10/2011 – Local Man Donates £5,000 ! Sunday 
Lee – local man donated £5,000 after reading her story on leaflet in shop near Jacobs nursery 
Ben and Laura’s dad Fred arranged to meet Lee in a coffee shop in Rochester yesterday 
4/19/2012 – Les (Laura’s friend) 
8/3/2011 – Louise – Anglo-Texan friends 
6/26/2011 – Marks, Richard – London Bikeathon East London Thames Barrier through city 26 miles to South West London (Richmond Park) back to Thames Barrier 52 miles in 7 hours!
7/8/2011 – Meaking, Len (Les’ good friend) 
7/8/2011 – Auction and raffle 
6/17/2011 – Morden, Emily – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday 
McKenzie, Leon (ex Crystal Palace) 
time to meet Russ – English guy who lives in Texas who heard about us on twitter – he’s offered to let us have a car for free while we’re here saving about £1000 
Snowdon, Lisa 
Stanley Family 
auction off their dad’s signed Manchester City football shirt
STANLEY, KAYLIE (Kayley) 
one of Laura’s oldest school friends, sadly lost her father to Brain Cancer when they were growing up 
sell her wedding dress and donate proceeds to the fund
Steve (Their friends) – run Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425
6/17/2011 – Stevenson, Robyn – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday 
6/17/2011 – Stevenson, Sam – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday 
6/27/2011 – Taylor, Jessica L E – founder of “Share a Star” charity, Kent  http://www.shareastar.org.uk
6/19/2011 – Willis, Brett – on Sunday completed 60 mile London to Brighton bike ride aim to complete ride in under 5 hours and managed it in 4hrs 51 minutes! 
6/19/2011 – raising £619 
6/19/2011 – everyone who sponsored Brett and played a part in helping us raise money for the treatment fund 
5/31/2011 – generously hosted by Roy, Sarah and Woodage, Charlie 
5/31/2011 – Woodage, Charlie – 12hr golf marathon Tuesday 7am 
08/12/2011 – funded by £75,000 raised by family, friends and strangers 
10/2011 – if does save her life, we can carry on raising money for others in a similar situation 
4/19/2012 – Night Out event Friday that Laura’s friend Les has been busy arranging 
4/27/2012 – Fundraising event is Sponsored Assult Course for kids Friday 
All children will be involved and Lofty The Lion, Bolton Wanderers mascot
children are being educated about Laura and her condition, as school feel is very important that children realise these events can occur in people’s lives
Elaine said there will be Barbeque, ice creams etc 
6/27/2011 – London 52 Mile Bikeathon Completed! Monday
5/31/2011 – public par 65 Bramford Golf Center 
5/31/2011 – Tuesday at 7am, 12hr golf marathon (golfathon)
5/31/2011 – 124 holes and almost £500 in sponsorship 
6/12/2011 – Golf Marathon! Sunday
6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday girls are friends of Laura and all wore grey to represent their support of “Wear Grey For Laura Day” as grey represents the colour for Brain Cancer support 
6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday They all baked and brought cakes in and sold them to customers in exchange for a small donation 
6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday The branch was dressed up in silver balloons and banners to help raise awareness and set the scene! 
6/17/2011 – Barclays staff members: branch in Rayleigh, Essex fund raising day for Laura on Friday raising £573.08 !! 
6/20/2011 – Barclays Branch Fund Raiser Monday 
Cricketers Pub in Gillingham had disco for Laura last Friday; raising £425 – Steve and Danielle (their friends) run
08/12/2011 – enjoyed family trip to Dickensian Christmas Festival in Rochester at the weekend 
7/8/2011 – Golf Tournament Raises £4,040! Friday
Len had charity BBQ at his house last weekend and raised £500 bringing total raised to £4,040 ! 
7/8/2011 – arranged golf tournament wednesday Hintlesham Hallf Golf Club in Suffolk, followed by hog roast, raffle some generous auction items, some nice cake 
7/8/2011 – anonymous golfer donated holiday to La Manga with flights, accomodation and 2 rounds of golf included! 
7/4/2011 – Prima Montessori Family Fun Day! Monday 
7/3/2011 – Jacobs nursery held fun day on sunday to help raise money for Laura’s fund! 
7/3/2011 – nursery staff got together and produced amazing day BBQ, cakes, Tombola, Raffle prizes, Painting and messy play, a Magician/entertainer for the kids, bouncy castle and loads more …including throwing wet sponges
(and later full water buckets!)
at the staff for a few quid!
Mums and Dads even benefited – they got their car washed
(for a small fee) 
The family run nursery have been a great support to us and are arranging more events over the next month, we cant thank them enough for their support and the amazing job they’re doing looking after Jacob – he loves his days at the nursery! 
6/26/2011 – raise amazing £7,650 in total sponsorship for this event from colleagues at RWE Trading where Ben and James work and RBS where Richard works!
6/27/2011 – “Share a Star” Supports Monday  http://www.shareastar.org.uk
4/5/2012 – relaxing spa break courtesy of The Willow Foundation  http://www.willowfoundation.org.uk
====================================== NEWS MEDIA:
3/25/2012 – in local paper last week article celebrating recent scan showed 77% tumour reduction 
5/15/2011 – BBC SOUTH EAST NEWS 
2011 – BELLA magazine
5/27/2011 – Daily Mirror Covers My Story Friday 
IPC magazines journalist 
‘Pick Me Up’ magazine – has circulation of 400,000 copies sold every week 
This is an interview with Dr Burzynski discussing Laura’s case and latest scan results!
Please take a look at the video – you’ll be probably as shocked as we were at what Dr Burzynski says at the end of the interview!
======================================  – 1/13/2012 – Cancer patient’s husband hits back at critics… Jan 13th, 2012 @ 12:54 am › Jonathan Smith-Squire
======================================  – 2/2/2012 – JustGiving Page & Text Donation on Thursday, 02 February 2012
======================================  – 2/4/2012 – Laura & Hannah Video on Saturday, 04 February 2012
======================================  – If youre not able to view the video of Laura and Hannah click here
Wikipedia must be too busy accusing me of using multiple Internet I.P. addresses to try and change every wiki article under the sun, instead of keeping their Burzynski article up-to-date
I await the in-depth analysis which breaks down my blog, Twitter, and Internet activity, showing that it was humanly possible for me to do all that has been claimed
But then again, maybe I’m NOT human !
Is that you HAL ?
Anywho, WP took a crack at addressing the British Broadcasting Corporation’s (BBC) Panorama documentary 
I did some critiques on the documentary article, documentary, and WP’s “credible source,” Dr. David H. Orac … Gorski [2-4]
“Burzynski exploits a legal loophole”by treating patients” with antineoplastons do so as part of a clinical trial, so the drug does not need a licence” for twenty years.” 
“Legal loophole” ?
Not so much
It’s the law
“The Skeptics™” have had years to get it changed in Congress if it were a “legal loophole”
“According to Watford Observer, the mother of Luna Petagine, a young girl with a brain tumor, “cast doubt” on Burzynski’s “expensive treatment.” 
“Expensive treatment” ?
Based on what objective criteria ? [5-6]
The Reading Post said, the “Panorama investigation shown on Monday questioned whether the Burzynski Clinic was ‘selling hope’to families” which doubted the statistics provided by the Burzynski Clinic. 
Based on what objective criteria ?
“They say 776 patients with brain tumours were treated in trials before 2008.”
“And that 15.5% had survived more than five years, which compares favourably to other treatments.” (see #13)
Where’s Wikipedia’s survival rates for:
b) Radiation Therapy
and their comparison of possible adverse effects of chemotherapy, radiation therapy, radiotherapy, other, compared to antineoplastons ?
The issues I had with the documentary were:
1.“The report includes interviews with experts like Professor Richard Grundy of Nottingham Children’s Hospital”
“Prof Richard Grundy treats children with cancer, and runs one of the UK’s biggest research projects into brain tumours.”
“He says it is “unethical” for Dr Burzynski not to share his findings:”
In my ‘opinion,’ it is “unethical” for Professor Grundy to NOT share his findings re Dr. Burzynski’s 2003-2010 phase 2 clinical trial preliminary reports 
2.“Unfortunately the results from Dr Burzynski’s clinic are not published in any form that’s acceptable to the scientific community.””
3. Dr Jeanine Graf
“She sometimes treats patients from the Burzynski Clinic who have become critically ill, but she has never known any of them survive.”
How many patients ?
Richard Bilton asked for numbers from Burzynski, so he should be consistent and have asked Dr. Graf the same question
4.“He must believe in what he’s doing, but I have not been convinced by the existing scientific literature that his therapy has any efficacy.”