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Tag Archives: swells

Critiquing: Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better)

Posted on November 17, 2013 by didymusjudasthomas
Reply

20131117-182254.jpg
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“Orac” and David H. Gorski, M.D., Ph.D., FACS,
collectively, “GOrac” a/k/a GorskGeek thinks that signs of “Getting Worse is Getting Better” [1]๐Ÿ˜›

That’s right ! ๐Ÿ™‚

I almost couldn’t believe my eyes, but GorskGeek seems to have come around to Burzynski’s way of thinking (according to “Dr.” Bob๐Ÿ™‚)

GorskGeek describes it thusly:
—————————————————————–
“Conventional cancer treatment can also cause tumors to swell temporarily, due to inflammation”

“A patient who isnโ€™t familiar with this phenomenon may assume her tumor is growing”

“When that swelling subsides, patients may assume itโ€™s because of Burzynski, Adamson says”

“In reality, the tumor was just returning to its previous size”

“Pseudoprogression can be a real confounder in assessing the response of brain tumors to therapy, being observed up to 28% of the time”
—————————————————————–
Here’s how GorskGeek’s “brother” in blatherskite; I’m NOT a doctor, ๐Ÿ˜ท (but I play one on The Other Burzynski Patient Group), Robert J. (don’t call me “Bobby”) “Bob” Blaskiewicz Blatherskitewicz, describes it [2] ๐Ÿ˜:
—————————————————————–
8/27/2012, Monday [2]

“On the 27th, we hear:”

“Firstly, Amelia hasnโ€™t quite been herself unfortunately”

“She has been very reluctant to walk, a lot more tired, slow and pretty lethargic”

“She was sick on Saturday night also” (8/25/2012)

“We are reasonably confident we have probably gone too far with the steroid reduction so we have actually increased these slightly again today”

“We decided we would rather have a happy and more alert Amelia than one who doesnโ€™t want to do too much โ€“ so we made this decision today in coordination with the Burzynski clinic“

“Weโ€™ll see how she does”

“There is a small chance it is the tumour growing, but much more likely given the scans we have that this is due to swelling of the tumour caused by the treatment”

“Time will tell. […]”

“The symptoms we are seeing right now are a direct result of the tumour, hopefully due to it swelling, and the steroids will fix this”

“They are also what we would see if it has grown”
—————————————————————–
(Below comments by: I’m NOT a doctor, ๐Ÿ˜ท (but I play one on The Other Burzynski Patient Group), Bob Blaskiewicz ๐Ÿ˜œ)

And hereโ€™s another example of something that isโ€ฆdesperately, desperately wrong at the Clinic ๐Ÿ˜ฆ

The patient is being told that the tumor is swelling because of the treatment ๐Ÿ˜ณ

How is it that only at the Burzynski Clinic that getting worse is indistinguishable from getting better?๐Ÿ˜ก

Second point:

this is a tumor on the brainstem

If a possible side effect were swelling of the thing pressing against the brainstem, youโ€™d expect that to be on the informed consent form, right? ๐Ÿ˜

The type of thing that would be among the โ€œserious side effects,โ€ right? ๐Ÿ˜ฎ
—————————————————————–
So, to recap ๐Ÿ˜„:
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
David H. Gorski

โ€ข ( โ€œGetting Worse is Getting Betterโ€) ๐Ÿ˜ƒ

โ€ข โ€œConventional cancer treatment can also cause tumors to swell temporarily, due to inflammationโ€œ
—————————————————————–
Amelia Saunders

โ€ข โ€œ . . . but much more likely given the scans we have that this is due to swelling of the tumour caused by the treatmentโ€

โ€ข โ€œThe symptoms we are seeing right now are a direct result of the tumour, hopefully due to it swelling . . . โ€
—————————————————————–
“Dr.” Bob Blaskiewicz (I’m NOT a doctor, ๐Ÿ˜ท but I play one on The Other Burzynski Patient Group)

โ€ข The patient is being told that the tumor is swelling because of the treatment

โ€ข How is it that only at the Burzynski Clinic that getting worse is indistinguishable from getting better?

โ€ข If a possible side effect were swelling of the thing pressing against the brainstem, youโ€™d expect that to be on the informed consent form, right? “O”
——————————————————————
The problem with this is:

In support of this “phenomenon” , the article provides a link to a Canadian web-site [3] ๐Ÿ˜ถ
——————————————————————
The site posits:
——————————————————————
“RT/TMZ is now widely practiced and the standard of care for appropriately selected patients, we are learning more about the consequences of RT/TMZ”

“One phenomena, termed Pseudo-Progression (psPD)…”
——————————————————————
The problem is that this only applies to “Glioblastoma Multiforme (GBM)”, and the article provides NO proof whatsoever, that any of Burzynski’s “Glioblastoma Multiforme (GBM)” patients have taken “RT/TMZ” ๐Ÿ˜
——————————————————————
Additionally, the site cites the reference as:

Sanghera, Perry, Sahgal, et al., “Sunnybrook Health Sciences Odette Cancer Centre” (in press, Canadian Journal of Neuroscience)

(“In press” refers to journal articles which have been accepted for publication, but have not yet been published)

However, the journal article in question was published 1/2010, so it has NOT been “in press” for over 3 years and 7 months [4] ๐Ÿ˜

Get your act together, aye, CAN-A-DUH ! ๐Ÿ˜‡
——————————————————————
โ˜บ
๐Ÿ˜‰
—————————————————————–

20131117-182306.jpg
—————————————————————–
SpartASScus
—————————————————————–

20131117-182600.jpg
—————————————————————–
Still wrong, GorskGeek
======================================
REFERENCES:
======================================
[1] – 11/15/2013 – Stanislaw Burzynski in USA Today: Abuse of clinical trials and patients versus the ineffectiveness of the FDA and Texas Medical Board (Getting Worse is Getting Better)
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
http://scienceblogs.com/insolence/2013/11/15/stanislaw-burzynski-in-usa-today-abuse-of-clinical-trials-and-patients-versus-the-ineffectiveness-of-the-fda-and-texas-medical-board/
======================================
[2] – 6/3/2013 โ€“ Amelia S
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
http://theotherburzynskipatientgroup.wordpress.com/2013/06/03/burzynski-patient-amelia-s-s-story/
======================================
[3] โ€“ Phenomenon โ€“ Psuedo-progression (GBM), Brain Tumour Foundation of Canada
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
http://www.braintumour.ca/1649/ask-the-expert-psuedo-progression-gbm
======================================
[4] โ€“ 1/2010 – Pseudoprogression following chemoradiotherapy for glioblastoma multiforme
Can J Neurol Sci. 2010 Jan;37(1):36-42
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
http://www.ncbi.nlm.nih.gov/pubmed/20169771/
======================================
======================================

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